My 1-year-old started walking independently at 11 months. He doesn’t respond to his name but responds when we sing songs. He makes eye contact and smiles back. He imitates some of the sounds we make, though not all. He claps when we clap or ask him to clap. He doesn’t wave his hands, even though I’ve taught him a few times. He doesn’t point to things but looks in the correct direction when we point. He babbles ‘baba’ and ‘mama.’ We are a bit confused, so we plan to discuss our concerns during his 15-month check-up.
About the covering of ears: I always find this hard to explain to people but I think Adam actually put it into words really well. I do this in a very similar way to Ezra. Even with pleasant sounds and noise like music I enjoy I will often cover my ears to try and control and regulate it to the exact level I like. Non-autistic people might simply adjust the volume and this is kind of my way of doing that. This doesn't just go for music of course, it goes for all noises. It's definitely a self-regulating behavior. I will also cover my ears and make my own sounds (vocal stimming as you point out in the video) but that is usually a sign I'm in distress. When I vocal stim, most of the time, it's because I'm overstimulated or something is wrong and it can be a warning sign that I may be headed for a meltdown. I know it's different for every autistic person, but I feel like one can kind of tell when it's not "happy stimming" . Especially if it gets louder and louder, more irregular or doesn't stop for a long time, chances are something's wrong and the autistic person needs help.
I am also starting to write my own book, on my life as a person with autism, I was nearly not diagnosed as I was always very sociable even as a toddler, despite having a speech delay where I first started talking since I was 5 years old, before then I used to use Makaton with very limited speech, as I used to have speech therapy. Autism does run in my family on my mums side.
I also did not give high fives when I was growing up (at least until middle school and not without being prompted/reminded around age thirteen or fourteen). I’m guessing this is probably fairly typical of level two. Simon (being level one) seems to be learning it already a little at a time.
As an autisic adult I wanted to gie my perspective on 2 points you made. Although I don't do much vocal stimming, I sometimes will and do it because I like the way my face contorts or I like the vibration(s) on my face it causes. There are also some sounds I just really like hearing (i.e. the phrase "edited it") and some can be a mix of all 3. And on the topic of noises some are physically painful and most loud sounds, regardless if I like them or not, are physically painful.
My sister and I are both on the spectrum and both very sensitive to noise. Now that I am well into my 40s I don’t cover my ears as much as I used to but I tend to grind my teeth a lot. Both my dentist and my hygienist have noticed some wear on my teeth from this.
I had many of these signs but my parents only knew about the most severe cases. I often have to be reminded to look both sides before crossing the street.
Simon needs reminders to. Ezra on the other hand, we don’t really expect him to make eye contact because we realize that it’s very uncomfortable for him.
Your videos have been very helpful. I believe my daughter is autistic. She's almost two and ticks almost all the boxes described here. I went to see a doctor a few months ago and he asks me if I drank alcohol during my pregnancy (hell no - but what?!). As if I don't feel guilty already and could it be my fault that my child is 'different'!!!!! It's been an emotional ride. We have since got the right help and we're now on a wait list to see a specialist paediatrician for diagnosis. I enjoy your videos. Thanks heaps, from New Zealand ❤
Hi I have autism ❤❤❤ you guys are amazing. Being with autism I am so sensitive to some sounds like a pencil when it like has a bad sound it feels like torture I can’t get the sound out of my head it takes like a good 10-20 minutes to get it out of my head that’s why I use pens because they don’t make terrible sounds like pencil’s. When I was younger I would go to my daycare and love to vacuum I got so obsessed into vacuuming and I would not want to stop. Me right now being 14 I hate vacuuming. By the way to this day I hate getting my picture taken.
Someone in my neighborhood who is level two only recently started to become aware of danger just before turning six. Now (at least on a good day) he seems to be afraid of heights (for example).
@@7Aheadfamily On the subject of ADD/ADHD I should add that my right hemisphere condition (Right Hemisphere Syndrome (aka Right Hemisphere Deficit Syndrome)) used to be considered a form of ADD/ADHD based on either the DSM-IV or DSM-IV-TRs footnotes on ADD and related conditions because some of the symptoms resemble hyperactivity and/ or inattentiveness even though it doesn’t truly cause this (in most instances that have been studied to date). By about the mid 2000s the thinking on that changed and now it is considered to be part of the autism spectrum instead. Typically people with this condition are considered to be level one by the late teens or young adult years. Before that it’s not all that uncommon to be level two (like I was) or even (much less commonly) level three and nonverbal in the beginning. The good news about this is that if Simon has this he will likely become much more functional between now and adulthood (with the right speech, physical, and occupational therapies) even if he regresses in one or more (or even all) areas one or even several times between now and then. On the off chance that Ezra has this (It’s pretty unlikely, I don’t yet see any symptoms of it in him, but it’s technically possible) then he could even learn to talk, read, write, tell time, and do math at least on a basic level (perhaps fourth to sixth grade best case with regular work on it until adulthood or even the young adult years.)
I am 56 AuADHD and wear ear protection at all times. Reusable ear plugs for sleeping have a flat top so they don't come out when I'm stimming, and they are soft inside. It feels like the noise is further away and more understandable. The pain is much less, and it helps me focus on words instead of ticking clocks, scraping chairs... I've found that the small accommodations really create more space inside me for releasing my creativity. My verbal stimming continues only now it comes from the diaphragm 😄 so it resonates deeper in my core 😊 and I enjoy singing hymns which is also my verbal stim. My family is military and in the 70s we went aboard a battleship. I ♥ small spaces and there were A LOT on that ship... much to the horror of the sailors who hunted me down for several hours... Autism was not known back then When I look towards someone, I feel like I take in their entirety. It makes zero sense in most cases for me to look at someone's face and especially their eyes *shudder* how draining. I do look at those I ♥ in the eyes periodically during 1:1 conversations to let them know they are special. My bff says I make her feel like there is no one else in the world 😀 I have learned to accommodate NT in business and look at them the way they need. I bring in my action figure and stim under the conference table as well 😊 or I'll bring in bulk squishies and dump them on the table... NT like to stim too and I'm not so out of place. I was very affectionate with grandpa bc he was safe. I believe he was likely on the spectrum. I give affection by being in someone's personal space, listening to them, doing what they ask, participate in their work bringing them what they need... that's how I feed my dopamine deprived brain. Someone, anyone, no matter the relation or closeness, just runs up and gives me affection... OH.MY.MY.MY... that is incredibly painful. Our thought suckers really get stuck and create hyper focus, then you jar us away from something that was likely interesting and touch us... we are likely overstimulated, so we are in pain... that touch feels like assault... slowly approaching, getting our attention, telling us your intentions and your next actions and what you want to receive during the interaction, now that's helpful and kind. Thank you for sharing your experience 🥰
To this day I struggle with danger. I often cross the street without watching and my mom has to call me back, I almost got run over twice because of it. I also always collected items to the point where I drop things because I can't hold so many items. I also always stimmed vocally. It's kind of like a high pitched throat noise that feels good, similar to Ezra's. To this day I do it, sometimes without realising it. I rarely looked at the camera. When I did I would make faces or look very weird. To this day my mom really struggles to take pictures of me, because the second I see the camera, I stop looking "normal" With the zoning out it often happened that in really loud environments I would kind of be in this bubble and not hear when people talked to me, sometimes taking 3 or more tries before I even acknowledged the person. Although this actually got worse as I got older. I had repetitive hand movements that I would do, but I'd mostly jump and spin. I never smiled socially. I do now because I know I have to, but when I was younger I wouldn't. If someone smiled at me I felt really weird. It only really worked with close family. I loved hiding in tight spaces! Now I'm also afraid of them if I could get stuck, but I used to crawl into my closet and squeeze in. Same with cardboard boxes. I would lay inside them a lot. When I'm upset now I still do go and hide into really tight spaces. They feel safe and comforting.
@@7Aheadfamily Of course! I could go into more detail if you'd like? I don't know if it would be helpful since everyone experiences it differently, but if you'd like me to, I could.
@@7Aheadfamily Sure! This might turn into a fairly long comment though. I'll just go through every point with an example. I'm better with examples than I am with pure theory. So for danger, it's like I just don't register the possible consequences of my actions (this happens in general, I have very poor action/reaction awareness because I struggle to imagine the future). So for example once when I was younger, a man was waiting outside my high school with a dog, and he told me I could keep his dog for the day, as long as I gave it back to him that night at the train station. I gave him my phone number and house address and got the dog. Luckily my mom found out before I went back, and explained to me he most likely had bad things in mind. To me it was just a nice guy with a dog, because it didn't match the "Stranger Danger" I'd been taught of "White man in a van with candy" so it was no problem (my mom then proceeded to generalise the statement to "Any stranger offering you anything"). Same with crossing the street, in my mind I often don't think about the cars, I just see the other end of the road and have to get there. When it comes to holding things (I think I may have commented this on another video) it's both because it feels good to have my hands full (I hate feeling my hands being still and empty) and because once I'm holding something, it feels incredibly overwhelming to have to put things down. It's like I freeze while I analyse all the steps it would take to go from Item 1 and Item 2 in my hand, to Item 1 on the table, to Item 2 on the table, to Item 3 in my hand. Looking at the camera always felt weird because to me it feels like the camera is staring back, so I will often look at the hands of who's holding it, or somewhere else altogether (which is similar to eye contact, where I will either look at the person's mouth, nose, or away completely, unless it's someone I trust a lot). It's also because I hate the feeling of being forced to be still and put on a face. I have never been able to sit still, so much so that in primary school my mom almost got me assessed for ADHD (it's now unsure whether I have it since one assessment came back negative and one positive). The zoning out can happen in different ways but people tell me it looks the same. It can either be when I'm really overwhelmed, so I will go inside my head and play music for myself (it's weird to explain, but I can kind of see media and hear audio in the back of my mind if I focus enough) in order to kind of retreat from the chaos around me. Or it can be when I'm really focused on something I like, and then I stop being aware of everything else. In both cases, it's like I get tunnel vision (I don't actually get it, but I perceive it?) and people's voices are really muffled, so I don't hear what anyone tells me. The social smile is similar to the camera. It feels really uncomfortable having someone staring at me expecting a reaction. Whenever someone expects something of me and stares, I feel stressed and often even partially or fully lose the ability to speak (usually it just turns into me repeating whatever the question was). So when I'm expected to smile I often feel stressed out, and my smile feels very fake. I've been told at times it looks weird from an outside perspective too. The tight spaces just bring a sense of comfort, as long as I know that I can get out when I want. I really like compression, even when I'm going to sleep, I will often curl up really tight at first, before actually moving into a comfortable position. The compression feels nice and it's like the restlessness leaves my body for a while and I don't feel kind of tingly all over. I hope it was helpful. I left out the stimming since I think it's a fairly universal experience. For me it happens with either really strong or really weak sensory input or emotions, although I often can't recognise it in the moment, since I am really bad at telling emotions apart other than sad/happy/angry/excited/scared.
maybe Ezra covering his ears is a stim for him as well as controlling the level of sound he hears. let me explain my reasoning: this could be a way where he is connecting his mind with his body through touch
Fun fact: if you have autism and ADHD you can just call it AuDHD AuDHD refers to having both autism spectrum disorder and attention deficit hyperactivity disorder (ADHD). There are a few reasons why we have seen a sudden rise in AuDHD. Let's explore the similarities and differences between ASD (autism) and ADHD. We will also go over the reasons why AuDHD is becoming more common.
Still Looking for that beautiful blue jeans jacket embellished with perhaps 500 Cables with 6 inch protruding out of a firm attachment to jacket, Ezra's size or size 8 boys or size 10?
Ha! That would be perfect!!!! He is size 7 right now. We’ll keep in eye out for anyone making those types of jackets. I bet he would want to carry it, though and not wear it.
One reason E might cover his ears is that the noise is to loud. I can like music just fine but, it doesn't mean I want it loud. Another reason might be to much background noise. I thought I could hear an auditory stim in the back of one of your videos. I was shown a clip of the Arias interrogation, and my question was "what's in the microwave?" If he hears lots of background noise he may want to block out the sound, and he has a solution handy.
@@7Aheadfamily I see that he was quieter with them and may have covered his ears less. Maybe finding ones he will wear more often, or waiting for him to mature into the understanding that they help the noise if you keep them on will be best. I know weighted blankets can seem bad when I'm overstimulated, but work 90% of the time.
In connection with the last myth some people that I know confuse autism with being antisocial or even sociopathic. That must be a pretty common myth because more than a few people in the Brony fandom picture Cozy Glow on My Little Pony as being autistic even though she is very clearly not autistic.
I feel like I see so many signs but then there are some things that my two-year-old is doing like he loves to give high fives but he also will isolate himself in a room full of people He does not seem to like really loud noise depending on what it is he does these highest pitch screams randomly whenever he's just playing which I think is a comfort for him he also loves to spend counterclockwise and he also spends items such as wheels within the same direction He's been doing that since before he was one and he also loves to line up all of his toys or almost whatever it is like I've seen with the older boy I believe who has level two where all the shoes were lined up My son will line up all of his cars when he has snacks such as goldfish he would line them all up in a perfect line I'm thinking he has some sort of form of OCD as well but he is very academically smart as far as knowing his letters colors numbers and shapes but he also does have a very high separation anxiety from me so thank you so much for sharing this video very excited and curious really want to get my baby to help he needs and learn all of the tools and tips to be a better parent for him and to ensure that he's getting everything he needs before it's too late.
I have autism and even at 21 years old, (heads-up, long post ahead) I still get hurt so often because I don't realise that something is dangerous. Over time, I've learnt to be more carefull and that has reduced the amount of injuries I get but I still get hurt often (I'm often told at work to not "run up the ladder" and be more carefull so, that's one thing I've been working on and I'm now carefull when going up a ladder) Sound: I'm hypersensitive to sound, I personnaly don't like music because it's too many sounds at the same time but, even for sounds I might like (such as watching this video), I'll reduce the sound by a lot (I'm watching this video on my phone at 2 clicks from mute). I'll wear noise cancelling earphones to help in public. I hate taking pictures, no idea why. I'm okay with seeing a picture of myself but, taking that picture is really hard. Chewing: I use chew-toys or chew-necklaces to help me. Zoning out: I zone out all of the time, I actually need to make sure that I listen to an audiobook when driving for more then 30 minutes because I will zone out while driving. Eye contact: I used to have what my psychologist called "learnt eye contact" but, after being diagnosed, I stop forcing myself to make eye contact and that helps me to focus better on what is being said to me. It's like I either give eye contact and my whole focus is on eye contact or I listen to you but don't make eye contact. I stim a lot, make repetitive hand movements, play with fidget toys, etc. I use it to help regulate my sensory needs. Social smile: no idea, didn't notice Small spaces: I do that! I live in a pretty big one bedroom appartment and I'm moving into a smaller one because this one is too big for me. Affection: it's hard for me (mostly because of other diagnoses) but, I have my way to show affection like asking to spend time with you (don't have any other examples in mind right now)
Sidenote, I've missed a lot of the asd club meetings, it's been crazy (exams, sickness, injury, appartment hunting and more) and I've been struggling to even hangout with my friend so, once the crazy stops or slows down, I'll be back to the meetings.
Thank you for sharing all of these details. They are insightful for many parents. Thank you. and we've missed you at the ASD club calls, but we understand when you can't make it.
We are happy to see you again, when you are ready. Good luck with your apartment hunting. Moving is a big deal, with lots of decisions. Hope it goes smoothly.
Thank you for sharing this experiences my baby girl she’s 2y and 7 months. She clap 👏 and hi fives. Little eye contact and responds her name sometimes she egnore me when I call her, but she don’t like church and no scare danger she don’t like playing with children , she not talking yet. She say mama papa, she try hard to speak what I say .she counting numbers and alphabet .she’s in preschool now with specialneeds .she sleep good and eat good 👍she smiles and happy girl
May i ask you please when you knew ezra is autistic? When you guys diagnosed him ? BTW i want to wish you the all best. You are defintely an a wonderful family
I've noticed that my 18 years toddler has some signs of autism but on the other hand he has some signs of "normal kid". Maybe it's speech delay problem ? I'd say that he has some problem with pointing and respond to his name. That's probably the main signs he has.
We have had some testing done,, but not genetic, So far Ezra has Apraxia of speech, ADHD, Autism, level3, with intellectual deficit and possible OCD. We asked our pediatrician about getting some more testing done, like genetic testing, but it is expensive and sadly insurance won't pay for it.
I just went to my autism evaluation appointment on Wed Jun 19 with my psychologist & she did activities with me like a visual spatial pattern exercise to test my developmental skills . She also just asked me to define some words that she showed me on these vocabulary cards & then told me to repeat numbers she said going from least to greatest or in the same order as her . I took what I believe was a ASSQ ( autism spectrum quotient ) with true or false type questions . My next appointment will be on July 3rd or the week of July 4th . 7 ahead what kind of autism assessment do you think I took since I'm 17 ? Was it the ADDOS , or what and do you think the results will say I have mild ASD like Simon or something else ?
That is very interesting. I don’t know what the ADOS-2 test looks like for 17-year-olds but I know that they have different versions for each age group. The fact that you are 17, and still not diagnosed could mean that you are more likely level 2 or level 1, like Simon, but whatever the diagnosis turns out to be, it’ll be good to know for sure.
Social anxiety and autism can have similar symptoms, including repetitive behaviors, but they manifest differently. For example, people with social anxiety may fidget, tap, or engage in self-soothing gestures to alleviate discomfort or anxiety. People with autism may engage in repetitive behaviors, known as "stimming", to regulate sensory input or self-stimulate. "Stimming" behaviors include: Hand-flapping, Rocking, and Repeating certain phrases or words. ❤❤
Great Question! It is different almost every night. Thankfully Simon is a really good and deep sleeper, otherwise we would defiantly have some issues. There have been a few times when Ezra is too loud and Simon will actually yell at him to be quiet and Ezra actually listens to him. :)
I am confused about my autistic child who loves loud music, almost 6 yrs old, does make eye contact, has improved his speech, but not yet there to retell a full story only bits and pieces. he also understands some of our home language aswell, He is some social, will get excited and even turn off tv if i say we are visiting frnds, loves to play with others but don’t know how, still doesn’t understand taking turns, but i think it also has to do with his speech issues..even though he is disturbed by phone alarm, he loves Dj and dances so well in party.. honestly if dj is there then i am less scared of him randomly walking outside and get into accidents. He is smart, reads (hyperlexia)at 2 and half years, great at maths, but he does have expressive and receptive speech disorder so at one point do u think his speech impediment going to slow down his learning ability? Also in india, he is not understanding and not scared of traffic/ spider/ snake.. most likely he is not understanding how dangerous it is and don’t understand death. He will run to streets and multiple times we almost lost him.. so its very stressful.. do u think he will ever understand and be cautious of what is safe and what is dangerous, yesterday he was so patient with his baby teeth being pulled by daddy.. in hospitals too he behaves so good( good with vitals and needles) that none suspected him having autism.. but the school evaluated him and said moderate autism..so that also confused me.. there was 3 months in school he had a lot of emotional instability.. but now he got way better.. so i am not sure evaluation happened in that period so it came out moderate instead of mild.. I have not diagnosed him officially due to American background check issues.. maybe i should do detail one in overseas
With your child running into streets, what has helped us stop Ezra from doing the same is using a toddler leash such as this one: Our new custom leash - MyBiggerHarness.Etsy.com. Do you have any more questions that we could help you with?❤
Kids can be autism but it could change because the kids will get more support then when you get a diagnosis for autism at 18 year old you will get nothing so that means you will get worse as time goes on.
That happens because of the misconception that a person can outgrow autism. I have never seen (or even heard of) one example of a person going from being autistic to being neurotypical.
Our doctor said there are times when someone is diagnosed with level two autism, but gets a lot of support and works really hard to ends up with level one autism when they are older. And some people who don’t know autism very well may think that they aren’t autistic anymore, but they are simply Masking it. On the other hand, there are some severely negative effects of masking autistic traits, so I don’t think that should be the goal. I would love a world where autism is accepted, so that my children don’t have to feel like they need to mask their autistic traits. There is so much they can contribute in the community while still being autistic.
@@7Aheadfamily Very true. Mine actually got worse as I grew up because I wasn't diagnosed until age 17 after leaving school so I had no support and people just thought I was weird, bad and/or annoying. In hindsight, my symptoms were always right there, and they got worse the older I got, even as a 13 year old I noticed there was something there
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My 1-year-old started walking independently at 11 months. He doesn’t respond to his name but responds when we sing songs. He makes eye contact and smiles back. He imitates some of the sounds we make, though not all. He claps when we clap or ask him to clap. He doesn’t wave his hands, even though I’ve taught him a few times. He doesn’t point to things but looks in the correct direction when we point. He babbles ‘baba’ and ‘mama.’ We are a bit confused, so we plan to discuss our concerns during his 15-month check-up.
Great information! Thanks for sharing all about autism in 2 year olds!
Glad you liked it
About the covering of ears: I always find this hard to explain to people but I think Adam actually put it into words really well. I do this in a very similar way to Ezra. Even with pleasant sounds and noise like music I enjoy I will often cover my ears to try and control and regulate it to the exact level I like. Non-autistic people might simply adjust the volume and this is kind of my way of doing that. This doesn't just go for music of course, it goes for all noises. It's definitely a self-regulating behavior.
I will also cover my ears and make my own sounds (vocal stimming as you point out in the video) but that is usually a sign I'm in distress. When I vocal stim, most of the time, it's because I'm overstimulated or something is wrong and it can be a warning sign that I may be headed for a meltdown. I know it's different for every autistic person, but I feel like one can kind of tell when it's not "happy stimming" . Especially if it gets louder and louder, more irregular or doesn't stop for a long time, chances are something's wrong and the autistic person needs help.
Thank you so much for sharing!❤️
I am also starting to write my own book, on my life as a person with autism, I was nearly not diagnosed as I was always very sociable even as a toddler, despite having a speech delay where I first started talking since I was 5 years old, before then I used to use Makaton with very limited speech, as I used to have speech therapy. Autism does run in my family on my mums side.
great PDF BTW, I have replied to your email that it was sent on.
Thats so Cool! Thank you so much for sharing!❤️
I also did not give high fives when I was growing up (at least until middle school and not without being prompted/reminded around age thirteen or fourteen). I’m guessing this is probably fairly typical of level two. Simon (being level one) seems to be learning it already a little at a time.
That’s interesting. We forgot to mention in the video that Ezra will give high-fives now but only to people he really knows well.
As an autisic adult I wanted to gie my perspective on 2 points you made. Although I don't do much vocal stimming, I sometimes will and do it because I like the way my face contorts or I like the vibration(s) on my face it causes. There are also some sounds I just really like hearing (i.e. the phrase "edited it") and some can be a mix of all 3.
And on the topic of noises some are physically painful and most loud sounds, regardless if I like them or not, are physically painful.
Good point on how not every person who is autistic likes or does vocal stimming.👍
My sister and I are both on the spectrum and both very sensitive to noise. Now that I am well into my 40s I don’t cover my ears as much as I used to but I tend to grind my teeth a lot. Both my dentist and my hygienist have noticed some wear on my teeth from this.
Thanks for sharing! Ezra used to grind his teeth when he was 3, 4, and five, but now he doesn’t do it often
I had many of these signs but my parents only knew about the most severe cases. I often have to be reminded to look both sides before crossing the street.
Glad you are here, sharing. We appreciate you commenting
I have autism and I would just like to say that your an amazing family and Ezra and Simon are amazing xx
Thank you so much!❤❤
You are so kind!❤❤
I still need to consciously remember to make eye contact even today.
Simon needs reminders to. Ezra on the other hand, we don’t really expect him to make eye contact because we realize that it’s very uncomfortable for him.
I have 2. Friends that are
Autistic and it fun to see how smart they are
I bet. Both Ezra and Simon are very intelligent.
@@7Aheadfamily hey can guy do a day in a life
We will keep that in mind! Great idea!💙💙💙
Your videos have been very helpful. I believe my daughter is autistic. She's almost two and ticks almost all the boxes described here. I went to see a doctor a few months ago and he asks me if I drank alcohol during my pregnancy (hell no - but what?!). As if I don't feel guilty already and could it be my fault that my child is 'different'!!!!! It's been an emotional ride.
We have since got the right help and we're now on a wait list to see a specialist paediatrician for diagnosis. I enjoy your videos. Thanks heaps, from New Zealand ❤
Thank you for sharing!❤❤❤
Hi I have autism ❤❤❤ you guys are amazing. Being with autism I am so sensitive to some sounds like a pencil when it like has a bad sound it feels like torture I can’t get the sound out of my head it takes like a good 10-20 minutes to get it out of my head that’s why I use pens because they don’t make terrible sounds like pencil’s. When I was younger I would go to my daycare and love to vacuum I got so obsessed into vacuuming and I would not want to stop. Me right now being 14 I hate vacuuming. By the way to this day I hate getting my picture taken.
Thank you for sharing all of this about yourself. We are happy you’ve found out channel
Someone in my neighborhood who is level two only recently started to become aware of danger just before turning six. Now (at least on a good day) he seems to be afraid of heights (for example).
I’m glad he is learning. When we took Ezra on all those national park trips, we had to put him on a leash to keep him safe.
I’m glad he is learning. When we took Ezra on all those national park trips, we had to put him on a leash to keep him safe.
Some people that I know who may have ADD but no autism diagnosis also tend to zone out after being overstimulated.
This is very true. I have many friends who I know have ADHD and so that same thing
@@7Aheadfamily On the subject of ADD/ADHD I should add that my right hemisphere condition (Right Hemisphere Syndrome (aka Right Hemisphere Deficit Syndrome)) used to be considered a form of ADD/ADHD based on either the DSM-IV or DSM-IV-TRs footnotes on ADD and related conditions because some of the symptoms resemble hyperactivity and/ or inattentiveness even though it doesn’t truly cause this (in most instances that have been studied to date).
By about the mid 2000s the thinking on that changed and now it is considered to be part of the autism spectrum instead. Typically people with this condition are considered to be level one by the late teens or young adult years. Before that it’s not all that uncommon to be level two (like I was) or even (much less commonly) level three and nonverbal in the beginning.
The good news about this is that if Simon has this he will likely become much more functional between now and adulthood (with the right speech, physical, and occupational therapies) even if he regresses in one or more (or even all) areas one or even several times between now and then.
On the off chance that Ezra has this (It’s pretty unlikely, I don’t yet see any symptoms of it in him, but it’s technically possible) then he could even learn to talk, read, write, tell time, and do math at least on a basic level (perhaps fourth to sixth grade best case with regular work on it until adulthood or even the young adult years.)
Thank you for sharing💙
I am 56 AuADHD and wear ear protection at all times. Reusable ear plugs for sleeping have a flat top so they don't come out when I'm stimming, and they are soft inside. It feels like the noise is further away and more understandable. The pain is much less, and it helps me focus on words instead of ticking clocks, scraping chairs... I've found that the small accommodations really create more space inside me for releasing my creativity.
My verbal stimming continues only now it comes from the diaphragm 😄 so it resonates deeper in my core 😊 and I enjoy singing hymns which is also my verbal stim.
My family is military and in the 70s we went aboard a battleship. I ♥ small spaces and there were A LOT on that ship... much to the horror of the sailors who hunted me down for several hours... Autism was not known back then
When I look towards someone, I feel like I take in their entirety. It makes zero sense in most cases for me to look at someone's face and especially their eyes *shudder* how draining. I do look at those I ♥ in the eyes periodically during 1:1 conversations to let them know they are special. My bff says I make her feel like there is no one else in the world 😀 I have learned to accommodate NT in business and look at them the way they need. I bring in my action figure and stim under the conference table as well 😊 or I'll bring in bulk squishies and dump them on the table... NT like to stim too and I'm not so out of place.
I was very affectionate with grandpa bc he was safe. I believe he was likely on the spectrum. I give affection by being in someone's personal space, listening to them, doing what they ask, participate in their work bringing them what they need... that's how I feed my dopamine deprived brain. Someone, anyone, no matter the relation or closeness, just runs up and gives me affection... OH.MY.MY.MY... that is incredibly painful. Our thought suckers really get stuck and create hyper focus, then you jar us away from something that was likely interesting and touch us... we are likely overstimulated, so we are in pain... that touch feels like assault... slowly approaching, getting our attention, telling us your intentions and your next actions and what you want to receive during the interaction, now that's helpful and kind.
Thank you for sharing your experience 🥰
Thank you so much for sharing!❤
What a lovely Married Couple
Thank you
@@7Aheadfamily Fidelity and Service to Others are today two
Unknown commodities. You Two
Are to be commended.
❤️❤️❤️
To this day I struggle with danger. I often cross the street without watching and my mom has to call me back, I almost got run over twice because of it.
I also always collected items to the point where I drop things because I can't hold so many items.
I also always stimmed vocally. It's kind of like a high pitched throat noise that feels good, similar to Ezra's. To this day I do it, sometimes without realising it.
I rarely looked at the camera. When I did I would make faces or look very weird. To this day my mom really struggles to take pictures of me, because the second I see the camera, I stop looking "normal"
With the zoning out it often happened that in really loud environments I would kind of be in this bubble and not hear when people talked to me, sometimes taking 3 or more tries before I even acknowledged the person. Although this actually got worse as I got older.
I had repetitive hand movements that I would do, but I'd mostly jump and spin.
I never smiled socially. I do now because I know I have to, but when I was younger I wouldn't. If someone smiled at me I felt really weird. It only really worked with close family.
I loved hiding in tight spaces! Now I'm also afraid of them if I could get stuck, but I used to crawl into my closet and squeeze in. Same with cardboard boxes. I would lay inside them a lot. When I'm upset now I still do go and hide into really tight spaces. They feel safe and comforting.
These details of your experiences and feelings are so important for parents to know about. Thank you for being willing to share.
@@7Aheadfamily Of course! I could go into more detail if you'd like? I don't know if it would be helpful since everyone experiences it differently, but if you'd like me to, I could.
If you feel comfortable sharing, we would love to hear your thoughts!❤❤
@@7Aheadfamily Sure! This might turn into a fairly long comment though. I'll just go through every point with an example. I'm better with examples than I am with pure theory.
So for danger, it's like I just don't register the possible consequences of my actions (this happens in general, I have very poor action/reaction awareness because I struggle to imagine the future). So for example once when I was younger, a man was waiting outside my high school with a dog, and he told me I could keep his dog for the day, as long as I gave it back to him that night at the train station. I gave him my phone number and house address and got the dog. Luckily my mom found out before I went back, and explained to me he most likely had bad things in mind. To me it was just a nice guy with a dog, because it didn't match the "Stranger Danger" I'd been taught of "White man in a van with candy" so it was no problem (my mom then proceeded to generalise the statement to "Any stranger offering you anything"). Same with crossing the street, in my mind I often don't think about the cars, I just see the other end of the road and have to get there.
When it comes to holding things (I think I may have commented this on another video) it's both because it feels good to have my hands full (I hate feeling my hands being still and empty) and because once I'm holding something, it feels incredibly overwhelming to have to put things down. It's like I freeze while I analyse all the steps it would take to go from Item 1 and Item 2 in my hand, to Item 1 on the table, to Item 2 on the table, to Item 3 in my hand.
Looking at the camera always felt weird because to me it feels like the camera is staring back, so I will often look at the hands of who's holding it, or somewhere else altogether (which is similar to eye contact, where I will either look at the person's mouth, nose, or away completely, unless it's someone I trust a lot). It's also because I hate the feeling of being forced to be still and put on a face. I have never been able to sit still, so much so that in primary school my mom almost got me assessed for ADHD (it's now unsure whether I have it since one assessment came back negative and one positive).
The zoning out can happen in different ways but people tell me it looks the same. It can either be when I'm really overwhelmed, so I will go inside my head and play music for myself (it's weird to explain, but I can kind of see media and hear audio in the back of my mind if I focus enough) in order to kind of retreat from the chaos around me. Or it can be when I'm really focused on something I like, and then I stop being aware of everything else. In both cases, it's like I get tunnel vision (I don't actually get it, but I perceive it?) and people's voices are really muffled, so I don't hear what anyone tells me.
The social smile is similar to the camera. It feels really uncomfortable having someone staring at me expecting a reaction. Whenever someone expects something of me and stares, I feel stressed and often even partially or fully lose the ability to speak (usually it just turns into me repeating whatever the question was). So when I'm expected to smile I often feel stressed out, and my smile feels very fake. I've been told at times it looks weird from an outside perspective too.
The tight spaces just bring a sense of comfort, as long as I know that I can get out when I want. I really like compression, even when I'm going to sleep, I will often curl up really tight at first, before actually moving into a comfortable position. The compression feels nice and it's like the restlessness leaves my body for a while and I don't feel kind of tingly all over.
I hope it was helpful. I left out the stimming since I think it's a fairly universal experience. For me it happens with either really strong or really weak sensory input or emotions, although I often can't recognise it in the moment, since I am really bad at telling emotions apart other than sad/happy/angry/excited/scared.
WOW!😀 That is really cool that you can that much in detail! Thank you so much for sharing. ❤️
maybe Ezra covering his ears is a stim for him as well as controlling the level of sound he hears. let me explain my reasoning: this could be a way where he is connecting his mind with his body through touch
That is a very possible reason. Thanks for sharing.
Could I get a hi Jeremiah I am such a huge big fan of yours 😊i hope I get a chance to meet you all one day!❤❤❤
Hi Jeremiah! Nice to meet you!😊😊😊
Fun fact: if you have autism and ADHD you can just call it AuDHD AuDHD refers to having both autism spectrum disorder and attention deficit hyperactivity disorder (ADHD). There are a few reasons why we have seen a sudden rise in AuDHD. Let's explore the similarities and differences between ASD (autism) and ADHD. We will also go over the reasons why AuDHD is becoming more common.
Cool! Thank you so much for sharing!❤️
He likes the noise just not that loud ❤. Like me I always have my noise cancelling headphones with me in case things get to loud
Thank you for sharing your experience. That is very helpful! 😊
@@7Aheadfamily no problem at all. I’m glad I could share and help 😌
❤️
@@7Aheadfamily 💖
❤️
I also didn’t usually look at the camera when I was growing up. My parents would always dismiss it as either shyness or stubbornness.
Thanks for sharing!!
Still Looking for that beautiful blue jeans jacket embellished with perhaps
500 Cables with 6 inch protruding out of a firm attachment to jacket, Ezra's size or size 8 boys or size 10?
Ha! That would be perfect!!!! He is size 7 right now. We’ll keep in eye out for anyone making those types of jackets. I bet he would want to carry it, though and not wear it.
One reason E might cover his ears is that the noise is to loud. I can like music just fine but, it doesn't mean I want it loud. Another reason might be to much background noise. I thought I could hear an auditory stim in the back of one of your videos. I was shown a clip of the Arias interrogation, and my question was "what's in the microwave?" If he hears lots of background noise he may want to block out the sound, and he has a solution handy.
Yea, your definitely right, that he feels like it's to loud for him.
We did give him noise canceling headphones... th-cam.com/video/azQ9XJvUPPI/w-d-xo.htmlsi=20zNDlFAg_osRalu
@@7Aheadfamily I see that he was quieter with them and may have covered his ears less. Maybe finding ones he will wear more often, or waiting for him to mature into the understanding that they help the noise if you keep them on will be best. I know weighted blankets can seem bad when I'm overstimulated, but work 90% of the time.
We've never used weighted blankets. We should try that. 😊
In connection with the last myth some people that I know confuse autism with being antisocial or even sociopathic.
That must be a pretty common myth because more than a few people in the Brony fandom picture Cozy Glow on My Little Pony as being autistic even though she is very clearly not autistic.
Yes, it is too common, and is just not true.
My son was diagnosed at 3 years old
Thank you for sharing!❤❤❤
I love your channel
❤️
I feel like I see so many signs but then there are some things that my two-year-old is doing like he loves to give high fives but he also will isolate himself in a room full of people He does not seem to like really loud noise depending on what it is he does these highest pitch screams randomly whenever he's just playing which I think is a comfort for him he also loves to spend counterclockwise and he also spends items such as wheels within the same direction He's been doing that since before he was one and he also loves to line up all of his toys or almost whatever it is like I've seen with the older boy I believe who has level two where all the shoes were lined up My son will line up all of his cars when he has snacks such as goldfish he would line them all up in a perfect line I'm thinking he has some sort of form of OCD as well but he is very academically smart as far as knowing his letters colors numbers and shapes but he also does have a very high separation anxiety from me so thank you so much for sharing this video very excited and curious really want to get my baby to help he needs and learn all of the tools and tips to be a better parent for him and to ensure that he's getting everything he needs before it's too late.
Thank you for sharing!❤❤
What other videos would be helpful to you?💕💕
I have autism and even at 21 years old, (heads-up, long post ahead) I still get hurt so often because I don't realise that something is dangerous. Over time, I've learnt to be more carefull and that has reduced the amount of injuries I get but I still get hurt often (I'm often told at work to not "run up the ladder" and be more carefull so, that's one thing I've been working on and I'm now carefull when going up a ladder)
Sound: I'm hypersensitive to sound, I personnaly don't like music because it's too many sounds at the same time but, even for sounds I might like (such as watching this video), I'll reduce the sound by a lot (I'm watching this video on my phone at 2 clicks from mute). I'll wear noise cancelling earphones to help in public.
I hate taking pictures, no idea why. I'm okay with seeing a picture of myself but, taking that picture is really hard.
Chewing: I use chew-toys or chew-necklaces to help me.
Zoning out: I zone out all of the time, I actually need to make sure that I listen to an audiobook when driving for more then 30 minutes because I will zone out while driving.
Eye contact: I used to have what my psychologist called "learnt eye contact" but, after being diagnosed, I stop forcing myself to make eye contact and that helps me to focus better on what is being said to me. It's like I either give eye contact and my whole focus is on eye contact or I listen to you but don't make eye contact.
I stim a lot, make repetitive hand movements, play with fidget toys, etc. I use it to help regulate my sensory needs.
Social smile: no idea, didn't notice
Small spaces: I do that! I live in a pretty big one bedroom appartment and I'm moving into a smaller one because this one is too big for me.
Affection: it's hard for me (mostly because of other diagnoses) but, I have my way to show affection like asking to spend time with you (don't have any other examples in mind right now)
Sidenote, I've missed a lot of the asd club meetings, it's been crazy (exams, sickness, injury, appartment hunting and more) and I've been struggling to even hangout with my friend so, once the crazy stops or slows down, I'll be back to the meetings.
Thank you for sharing all of these details. They are insightful for many parents. Thank you. and we've missed you at the ASD club calls, but we understand when you can't make it.
We are happy to see you again, when you are ready. Good luck with your apartment hunting. Moving is a big deal, with lots of decisions. Hope it goes smoothly.
@@7AheadfamilyThanks.
Your welcome💙
I love him, he is so cute
Thank you so much for sharing!❤️
Elopement is the hard part for me 😭😭
Yeah, I bet you're right about that.😀 ❤️
Thank you for sharing this experiences my baby girl she’s 2y and 7 months. She clap 👏 and hi fives. Little eye contact and responds her name sometimes she egnore me when I call her, but she don’t like church and no scare danger she don’t like playing with children , she not talking yet. She say mama papa, she try hard to speak what I say .she counting numbers and alphabet .she’s in preschool now with specialneeds .she sleep good and eat good 👍she smiles and happy girl
Thank you for sharing!💕💕
Love From Rawalpindi Punjab Pakistan❤
Thank you!❤❤
May i ask you please when you knew ezra is autistic?
When you guys diagnosed him ?
BTW i want to wish you the all best.
You are defintely an a wonderful family
Thank you 😊 ezra was 21 months when we had him officially diagnosed. We share a video about it here.
5 Signs of Autism in Babies
th-cam.com/video/_U1G1d0fWU8/w-d-xo.html
I've noticed that my 18 years toddler has some signs of autism but on the other hand he has some signs of "normal kid".
Maybe it's speech delay problem ? I'd say that he has some problem with pointing and respond to his name. That's probably the main signs he has.
We have done a video on speech delay if that would be helpful to you😊
th-cam.com/video/nPeadMHiTW8/w-d-xo.html
🤚🏻🤚🏻🤚🏻🤚🏻🤚🏻
Ezra a nord that man how was trying to give him a hi five
Thank you for sharing!❤❤
Has Ezra ever had genetic testing done?Is it possible that he has more than just Autism, like Fragile X for example?
We have had some testing done,, but not genetic, So far Ezra has Apraxia of speech, ADHD, Autism, level3, with intellectual deficit and possible OCD. We asked our pediatrician about getting some more testing done, like genetic testing, but it is expensive and sadly insurance won't pay for it.
@@7Aheadfamily Oh no, i’m sorry to hear about that! At least you have answers for now. What amazing parents you guys are!
Thank you!😊
You both do a great job ear rub to loud he loves his stuff
Thank you!❤
Np love watching
❤️❤️❤️
Not all young children understand what the high five signal is
I just went to my autism evaluation appointment on Wed Jun 19 with my psychologist & she did activities with me like a visual spatial pattern exercise to test my developmental skills . She also just asked me to define some words that she showed me on these vocabulary cards & then told me to repeat numbers she said going from least to greatest or in the same order as her . I took what I believe was a ASSQ ( autism spectrum quotient ) with true or false type questions . My next appointment will be on July 3rd or the week of July 4th . 7 ahead what kind of autism assessment do you think I took since I'm 17 ? Was it the ADDOS , or what and do you think the results will say I have mild ASD like Simon or something else ?
That is very interesting. I don’t know what the ADOS-2 test looks like for 17-year-olds but I know that they have different versions for each age group. The fact that you are 17, and still not diagnosed could mean that you are more likely level 2 or level 1, like Simon, but whatever the diagnosis turns out to be, it’ll be good to know for sure.
@@7Aheadfamily Whats the likely hood of my psychologist saying I have it and not just anxiety or another similar disorder ?
Social anxiety and autism can have similar symptoms, including repetitive behaviors, but they manifest differently. For example, people with social anxiety may fidget, tap, or engage in self-soothing gestures to alleviate discomfort or anxiety. People with autism may engage in repetitive behaviors, known as "stimming", to regulate sensory input or self-stimulate. "Stimming" behaviors include: Hand-flapping, Rocking, and Repeating certain phrases or words. ❤❤
@@7Aheadfamily Does Simon or Ezra have anxiety disorders ? If so which one do they have if so ?
We don't know right now however I think it's very likely they do.
On TH-cam look up what autistic people hear vs what neurotipical people hear could give you an answer
Thank you so much for sharing. ❤️
Why do we miss kids in all disabillitues
i don't know.
What was ezra doing in the background you can hear him stimming alot
he was in his bed, we filmed this at night after we put the kids to bed.
@@7Aheadfamilyhow long is he usually loud for until he sleeps and how does simon react to it?
Great Question! It is different almost every night. Thankfully Simon is a really good and deep sleeper, otherwise we would defiantly have some issues. There have been a few times when Ezra is too loud and Simon will actually yell at him to be quiet and Ezra actually listens to him. :)
I am confused about my autistic child who loves loud music, almost 6 yrs old, does make eye contact, has improved his speech, but not yet there to retell a full story only bits and pieces. he also understands some of our home language aswell, He is some social, will get excited and even turn off tv if i say we are visiting frnds, loves to play with others but don’t know how, still doesn’t understand taking turns, but i think it also has to do with his speech issues..even though he is disturbed by phone alarm, he loves Dj and dances so well in party.. honestly if dj is there then i am less scared of him randomly walking outside and get into accidents. He is smart, reads (hyperlexia)at 2 and half years, great at maths, but he does have expressive and receptive speech disorder so at one point do u think his speech impediment going to slow down his learning ability? Also in india, he is not understanding and not scared of traffic/ spider/ snake.. most likely he is not understanding how dangerous it is and don’t understand death. He will run to streets and multiple times we almost lost him.. so its very stressful.. do u think he will ever understand and be cautious of what is safe and what is dangerous, yesterday he was so patient with his baby teeth being pulled by daddy.. in hospitals too he behaves so good( good with vitals and needles) that none suspected him having autism..
but the school evaluated him and said moderate autism..so that also confused me.. there was 3 months in school he had a lot of emotional instability.. but now he got way better.. so i am not sure evaluation happened in that period so it came out moderate instead of mild.. I have not diagnosed him officially due to American background check issues.. maybe i should do detail one in overseas
Thank you for sharing❤
With your child running into streets, what has helped us stop Ezra from doing the same is using a toddler leash such as this one: Our new custom leash - MyBiggerHarness.Etsy.com. Do you have any more questions that we could help you with?❤
My sister have a atusim baby because of Laptop
Not sure I'm following you❤
Kids can be autism but it could change because the kids will get more support then when you get a diagnosis for autism at 18 year old you will get nothing so that means you will get worse as time goes on.
That happens because of the misconception that a person can outgrow autism. I have never seen (or even heard of) one example of a person going from being autistic to being neurotypical.
Our doctor said that the levels of autism can change, depending on the support the child gets
Our doctor said there are times when someone is diagnosed with level two autism, but gets a lot of support and works really hard to ends up with level one autism when they are older. And some people who don’t know autism very well may think that they aren’t autistic anymore, but they are simply Masking it. On the other hand, there are some severely negative effects of masking autistic traits, so I don’t think that should be the goal. I would love a world where autism is accepted, so that my children don’t have to feel like they need to mask their autistic traits. There is so much they can contribute in the community while still being autistic.
@@7Aheadfamily Very true. Mine actually got worse as I grew up because I wasn't diagnosed until age 17 after leaving school so I had no support and people just thought I was weird, bad and/or annoying. In hindsight, my symptoms were always right there, and they got worse the older I got, even as a 13 year old I noticed there was something there
@@thomasschoeck9080
Their youngest son does not have autism.
He was evaluated for four hours from a professional. He has level 1 Autism, with no intelectual delay. It is used to be called Aspergers.