My daughter has been experiencing symptoms for years: growing pains, seizures, POTS, headaches and joint pain and subluxations. After she had COVID in late 2020, we think she has long COVID. It's so hard because she doesn't have insurance and has to pay out of pocket for everything. Thank you for sharing your journey and starting this channel!
My story is so similar to your story it's crazy the only thing is I was 27 and a half when I was diagnosed by a geneticst. I'm so glad I found your video!!
Hii!! I'm 21 y/o, and just now I've discovered what has been happening to me for all these years (pain, paint and more pain, hyperflexibility and fatigue)... Even though I'm still looking for a doctor who knows about this stuff, I've done my research and I'm pretty sure I've got hEDS... The thing is I'm still processing all this new information and it can be overwhelming... How do you know if it's best to use a cane, a wheelchair or another mobility aid? Is it something your doc tells you or how does that work?
My daughter has been experiencing symptoms for years: growing pains, seizures, POTS, headaches and joint pain and subluxations. After she had COVID in late 2020, we think she has long COVID. It's so hard because she doesn't have insurance and has to pay out of pocket for everything. Thank you for sharing your journey and starting this channel!
Great to see other people’s eds journey.
Let me know your experience with EDS below!🌻
This is very clear and informative. Thank you so much!
Glad it was helpful!
Thank you so much for making this video. I have HEDS and struggle to manage it. Thank you again my fellow zebra ❤
My story is so similar to your story it's crazy the only thing is I was 27 and a half when I was diagnosed by a geneticst. I'm so glad I found your video!!
Excellent content and extremely helpful. Thanks for sharing your story.
Thank you!
I would really appreciate more information about your strength training routine, and any tips about exercise.
What other supplements have you had success with? Thank you for sharing your experience with us, it was very helpful.
Hii!! I'm 21 y/o, and just now I've discovered what has been happening to me for all these years (pain, paint and more pain, hyperflexibility and fatigue)... Even though I'm still looking for a doctor who knows about this stuff, I've done my research and I'm pretty sure I've got hEDS... The thing is I'm still processing all this new information and it can be overwhelming...
How do you know if it's best to use a cane, a wheelchair or another mobility aid? Is it something your doc tells you or how does that work?
I had growing pains. Nit sister out brother.
Do you have fybromyalgia with your heds neurologist says i have migraine in body
Were you on crutches?
Yeah and the autism means we have a different brain stemnfor pain