Multiple Sclerosis Clinical Research: Who are the Cast of Characters?
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- เผยแพร่เมื่อ 27 ก.ย. 2024
- In this video, I teach you more about Multiple Sclerosis Clinical Research. Specifically, and the CAST of CHARACTERS who conduct an MS clinical trial! Want to up your game about Multiple Sclerosis Clinical Research? Then start watching right now!
The Boster Center for Multiple Sclerosis is actively enrolling several MS clinical trials right now! Check out our website www.BosterMS.com or call 614-304-3444 for more information!
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COMMENT with your thoughts and questions about Multiple Sclerosis Clinical Research and the cast of characters who participate in MS clinical trial below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
![Multiple Sclerosis Clinical Research: MS Clinical Trials [Part TWO]](http://i.ytimg.com/vi/7oOvJqs8WfU/mqdefault.jpg)
Thank you for that information! By the way, I love the sun catcher!
You're quite welcome Darla! I love that sun catcher too! TY! #WeHaveMS BosterMS.com
@@AaronBosterMD
I love that sun catcher x3 !
Very good topic to explore. Many people do not know exactly what goes into clinical trials- this may make MS’rs more likely to sign up- as knowledge is power. Thank you for explaining the ins/ outs.
Sharing is caring
Thank you!
I had no idea that the evaluated was supposed to be blinded. My last clinical trial the blinded evaluator left for another pursuit and my own MS Specialist took over. My experience in the clinical trial was really a positive experience. I had a great relationship with the whole team, and at times when my Specialist happened to be around she would swing by and see me. I normally felt closely taken care of under my care team, but during the clinical trial I felt very secure in the extra monitoring and attention I received.
Dr. Boster, I left a message at your office. I’ve had MS since 2004, and would love to be seen by you. I have not received a call back (I know your office is crazy busy). My current neuro does not seem to fully understand MS. In fact he told me that they don’t do MRIs of the brain and spine on the same day, which I know they do as I’ve had both many times and he didn’t know what a cooling vest is! Help!
Sarah, Thank you for reaching out. You can also email us at info@bosterms.com as well. I look forward to seeing you in consultation soon!
Very informative video Dr. B
Like always you are always helping all us MS people fighting this horrible disease
Thank you MiKe!
Thanks for this information. It will be very helpful to those considering participating in a trial. I did a drug study in 2013 with Gilenya vs an injectable. I received Gilenya for one year and continued on it until late 2014 when I was diagnosed with breast cancer. I actually had two relapses during the study that probably were caused when I had to decrease dose due low lymphocytes. I think it saved some brain volume loss but possibly triggered the cancer. Luckily I kept up with my screening mammograms every year and it was detected early.
Off subject: I’ve been on Ocrevus over three years now. Any new word on COVID vaccine effectiveness for those of us on Ocrevus? I’m fully vaccinated having waited at least twelve weeks before first vaccine. I’m still taking precautions as if not vaccinated.
Thanks! I always enjoy your posts.
Sandra
Dr. B ,
U must have a inner cowboy! 🤠
The boots 👢, the hat! I'm intrigued..
I'm loving our awesome nerologist, it suits u dr B.
AS I realized I completely put my comment 🙃I the wrong place orginally, I will try again!
"So thanks for this video, although I'm not in a clinical trial I did enjoy the education you offered us in the matter, and look forward to the furture videos you do moving forward "
P.s.
I give u A + ++ on your video props! In general
Cowboy hats, chickens, river, and even a dragon in a egg..(I look forward to more with thr dragon egg! Hint hint) I mean really the possibilities are endless.. and the sun catcher! 🌞 just loving it. U really do have the most awesome patients in addition to us having a pretty awesome doctor! =*)
Keep up the good work dr b. 👏
I really had nothing to say but thank you!
Sincerely,
Cynthia camille
#wehavems
#godbless
Dr. Boster, has there been credible research on drastically increasing testosterone
levels for females as a means of treating MS? As in increasing it to a
level appropriate for males. Thank you.
🧡
I love watching your videos but can you put on closed captions so I can understand what you are saying. I am hard of hearing. Thank you.
Sorry about that
Thank you - informative as usual. However, I would suggest the most important person isn't the trial coordinator but the patient. I used to do some work with NIH clinical center. They used to remind me that patients are volunteering their time and body to develop future treatments with potentially negative impacts on their health. I thought this was an important perspective.
Kevin, without question, the person with MS volunteering is the MOST important person involved, I agree 100%.
This video was created to help educate a PwMS on the various roles the clinicians play in executing a clinical trial. The intent is to help demystify the experience of MS clinical trials. My comment about the coordinator being "the most important person," was referencing the clinical trial team. The patient always remains the most important person involved.
I used to be the clinical trial coordinator for RTOG studies at St. Vincent's Medical Center in Jacksonville, Florida. I wish we lived closer to your Center in Ohio.
That's awesome Michel. Did you enjoy working as a clinical trial coordinator at St. Vincent's?
The hat was fun!
Thank you!
Hi from England! Can you do a video on MS and Erythromelalgia please? I struggle finding info regarding MS causing erythromelalgia. Thank you, and thank you for educating us!
Hey Dr. Aaron, I have a question related to the diagnosis of CIS. I hope you are willing to read the follow. Obviously not medical advice, just want to understand the science. I have had 3 months of burning skin sensation in the territory of the left trigeminal nerve. The pain started as a severe daily itch 1-2 hours at a time but has now become a 3-8 hour flare up once daily (burning), no paroxysmal pain. I have some mild paraesthesia but intermittent and very mild. I have been extremely concerned that I could have CIS although I have no lesions on my MRI /angiogram/2nd gadolinium MRI. Bloods are also normal.
My neurologist said because the scan was normal it wasn't CIS and the character of my pain doesn't match CS, as well as the trigeminal nerve being a rare occurrence.
Can you comment on the likelihood
So I wanted to see if you think CIS would fit this character of pain and diagnostic findings? I think I have just made this into an obsessive compulsion.