I am 27 and had this problem my whole life and the comments can get to me sometimes but the person making those comments are most likely miserable for other reasons than the smell so just wish them well. I hope for strength happiness and peace for you ♡
The different diets haven't worked for me. I still ended up with a really bad smell. It's a bad smell that I can't smell. I've been dealing with this problem for over 30 years. No matter how many times I shower. I still get negative reactions. I live in a small apartment building. I overheard my neighbors complaining about a bad smell coming from my apartment. So, I started putting air fresheners in the hallway. Like you, I work from home.I couldn't deal with all of the negative comments in an office setting.
I agree and I've always said nothing beats an actual diagnosis otherwise theorising about it just make it sounds crazy trying to explain it to people. I know B2 and Magnesium have been part of my staple for a few years and that has helped in some ways to be able to be in public, but hasn't done much for my breath.
Your an amazing young man and I pray that you find a cure..I suffer from bad breath and no matter the diet, the tonsils being removed, brushing, flossing, dentist visits, taking probiotics, digestive enzymes, etc...Nothing works! It's frustrating, and now we are maskless it really makes me feel nervous to speak in public!! This started after my husband passed 8 years ago..not sure if the stress threw my microbione off but its been hell since then..Everyday I search for a cure...for years I never smelled it, now there are times I can..it is not easy to deal with this BS...but we can't give up..we deserve to be healthy and whole, loved by someone..peace my brother keep up the good fight
I feel you, I'm going through the same thing and it's honestly been very hard to live with. I try to keep my head up but I feel like I've developed trauma due to this. I hope you can find something to help you bro.
I would also wake up really early when I was in college, like 5:30am, so that I could shower and go to breakfast before anyone got their. I had a dorm room to sleep in but I didn't want to deal with my roommate so instead I would sleep in my car. It would get so cold too. Their where many times that I went to sleep in my car and it would be snowing outside or below freezing, and all I had to keep me warm was the cloths I had on and a couple of blankets. One time I was sleeping in my car, it was snowing, and it was like 2 or 3 am when I was woken up by someone with a bright flash light try to look in through my car windows. Luckily, the windows where all frozen from the inside so they couldn't see in. It ended up being a cop. The cop ended up letting me sleep in my car after I basically told them I had TMAU.
having this for 6 years, I’ve read and tried it all it feels like to lessen the reactions. I only get transient smells nowadays but I always get reactions 24/7. I believe there is more than one type of patm. In my case what I’ve put together is (my)body is not methylating neurotransmitters properly. I know none of us really know but that’s where I’m at on my journey. What I do know is you gotta keep pushing and enjoy life the most you can. Take care of yourself
Did you just do the urine test for tmau? I tested negative for tmau through the choline overload urine test. But I did the genetic testing for tmau and it came back that I have tmau. I think you should get the genetic testing done to truly rule it out!
Это не тмау, это либо ишемия кишечника, либо изменение ткани кишечника и только биопсию кишечника укажет патологии. Но начать нужно с тестов на агрегацию тромбоцитов, тк у пахнущих людей склонность к тромбоцитопении. Это может быть тромбоцитопатия по типу германский пудлака, гиршпрунг вызывает склероз мышечной ткани толстого кишечника
i don’t really have any diet i kinda just make sure i have variety but what helped me was cleaning up my diet lots of water 30g of fiber a day, daily probiotic, inulin and using the bathroom 2x/ lowering transit time it’s not completely “cured” but nobody has said or done anything in a minute
I worked in a very labour intensive physical job for years and got some reactions. Negative TMAU test. Did diets etc didn't work. Im very active with the gym etc. I got into tennis at one point which i played like 3-4 hours at a time and the reactions were baaad the next day. The usual intermittent smells but exacerbated pungent/frequency wise. i came to realised that very intense exercises or labour work is what exacerbates reactions. i got a new job for something less laboured and also stopped doing very intense workouts and tennis. i have had 0 reactions for over a year.. UNLESS i do very intense workouts which the reactions happen the day after but then disperse after around 2 days. i now work hands on with people daily. No idea if its coming from breath or sweat. Breath due to the intense twisting motion doing something to my intestines or something to do with sweat, Bacteria?. Maybe this helps someone.
I'll be honest. I got on anti depressants and its been helpful. A big part of my smell is due to my paranoia. I think there may be an underlying... definitely get tested for all infections. I'll be calling a genealogist soon myself.
Именно цилии-микротрубочки, которые продвигают жидкость в клетках имеют дефект. Цилии поражаются при электромагнитном изучении, избытке кальция, перепаде атмосферного давления, дыхании парфюмерии. Поэтому запах от одной и той же еды в разные дни может быть разной интенсивности. Самое интересное, что дефекты цилий предполагают нарушение не только глаз(вонючие люди носят очки), но и почек, желчеобразование, работу кишечника. Поэтому искать нужно гены, поражающие одновременно глаза-почки-кишечник. Для этого подходят гены цилиопатии и гены гликозилировпния, тк сборка цилий происходит непосредственно с участием процессов гликозилирования. Гликозилировпния это присоединение маннозы, галактозы, глюкозы, фукозы, рибозы к липидам и белкам. Продуктом гликозилировпния является трансферрин, тиреотропный гормон, иммуноглобулины и холестерин. Возможно поэтому у вонючек бывает снижен холестерин, трансферрин, иммуноглобулины, тиреотропный гормон. Нарушение гликозилировпния это неусвоение углеводов, ферменты и белки организма при этом дефектны! Нарушение гликозилирования вызывает вздутие живота, метеоризм, повышенное газообразование!
The fix is in your rant. Your diet if you are vegan/vegetarian is loaded with sugars whether natural from fruits and some vegetables or added sugars. Carbs that convert into glucose which is the same as sugar. And starchy foods pizza, pasta, rice, potatoes, that convert into sugar this way of eating is also loaded with toxins like oxalates, tannins etc recking havoc on our system. The apple diet gave a little relief because the sugar metabolizing in your system was reduced. Try animal based diet organic grass fed meats if you can't do red meat. Stick to organic free range non grain fed steroid antibiotic free fowl. Wild caught salmon/sardines, non starchy or sugary veggies spinach, romaine lettuce, broccoli, brussel sprouts etc. The studies you have read about issues with eating meat is false or pertain to meats loaded with antibiotics, steroids or grain fed etc. Until you find that specialist you are looking for this maybe your best bet. And will save you a lot money. You're going to be a lab rat either way. You might as well be in control for now. This way of eating will get boring. You have nothing to lose. You either want to try whatever it takes to be a healthier happier you. Or give up and smell terrible for the rest of your life. Remember this didn't happen to us overnight so it won't be cured overnight. See a dietian and or a nutritionist to help with any nutrients that you may lack doing animal based. Again if it doesn't work you've lost nothing.
Minirin-desmopressin. It is used in the treatment of thrombocytopathy: deficiency of the blood coagulation factor F8, von Willibrant factor, with a German pudlak defect. People with blood type 1 have a genetic von Willibrant factor deficiency. With the German - pudlaka, people have problems with vision and problems with the intestines due to swelling of the intestinal vessels. In the Germanic pudlak, a platelet aggregation test with adrenaline (a stress hormone) shows a decrease in platelet aggregation. The intestine is ischemic. Do platelet aggregation tests with ristomycin, ADP, epinephrine, collagen.
I am 27 and had this problem my whole life and the comments can get to me sometimes but the person making those comments are most likely miserable for other reasons than the smell so just wish them well. I hope for strength happiness and peace for you ♡
The different diets haven't worked for me. I still ended up with a really bad smell. It's a bad smell that I can't smell. I've been dealing with this problem for over 30 years. No matter how many times I shower. I still get negative reactions. I live in a small apartment building. I overheard my neighbors complaining about a bad smell coming from my apartment. So, I started putting air fresheners in the hallway. Like you, I work from home.I couldn't deal with all of the negative comments in an office setting.
At the end of the day, just live . It sucks , I've been at this since 2009, and nothing works.
You are truly intellectual. Your strength is amazing. May God continue to bless you and I pray for your healing and strength.
I agree and I've always said nothing beats an actual diagnosis otherwise theorising about it just make it sounds crazy trying to explain it to people.
I know B2 and Magnesium have been part of my staple for a few years and that has helped in some ways to be able to be in public, but hasn't done much for my breath.
Your an amazing young man and I pray that you find a cure..I suffer from bad breath and no matter the diet, the tonsils being removed, brushing, flossing, dentist visits, taking probiotics, digestive enzymes, etc...Nothing works! It's frustrating, and now we are maskless it really makes me feel nervous to speak in public!! This started after my husband passed 8 years ago..not sure if the stress threw my microbione off but its been hell since then..Everyday I search for a cure...for years I never smelled it, now there are times I can..it is not easy to deal with this BS...but we can't give up..we deserve to be healthy and whole, loved by someone..peace my brother keep up the good fight
Yeah it’s crazy everybody think I’m crazy I tried everything nothing works but I’m gonna keep it pushing ❤
May I know what is your staple food menu every day? I eat rice with a very fatty side dish, a little drink, vegetables and fruit.
and also lack of exercise, 1 time in 2 months.
I remember you from the Mebo tmau group. You're still struggling with this? Wow smh.
@@melaninblessed1106 why you shaking your head this shit is real😂
@@laporshafaceslife I know it's real lol I'm a sufferer too. I thought you cured yours because I haven't seen you in the mebo group. 🤷♀️
I feel you, I'm going through the same thing and it's honestly been very hard to live with. I try to keep my head up but I feel like I've developed trauma due to this. I hope you can find something to help you bro.
I would also wake up really early when I was in college, like 5:30am, so that I could shower and go to breakfast before anyone got their. I had a dorm room to sleep in but I didn't want to deal with my roommate so instead I would sleep in my car. It would get so cold too. Their where many times that I went to sleep in my car and it would be snowing outside or below freezing, and all I had to keep me warm was the cloths I had on and a couple of blankets. One time I was sleeping in my car, it was snowing, and it was like 2 or 3 am when I was woken up by someone with a bright flash light try to look in through my car windows. Luckily, the windows where all frozen from the inside so they couldn't see in. It ended up being a cop. The cop ended up letting me sleep in my car after I basically told them I had TMAU.
I feel you. I’ve tried so many things too. It’s just exhausting in the end. Sending you love.
I’m a 38 year old male. You and I are the same. It’s been over 5-6 years for me.I can’t agree with you more!
having this for 6 years, I’ve read and tried it all it feels like to lessen the reactions. I only get transient smells nowadays but I always get reactions 24/7. I believe there is more than one type of patm. In my case what I’ve put together is (my)body is not methylating neurotransmitters properly. I know none of us really know but that’s where I’m at on my journey. What I do know is you gotta keep pushing and enjoy life the most you can. Take care of yourself
Did you just do the urine test for tmau? I tested negative for tmau through the choline overload urine test. But I did the genetic testing for tmau and it came back that I have tmau. I think you should get the genetic testing done to truly rule it out!
Это не тмау, это либо ишемия кишечника, либо изменение ткани кишечника и только биопсию кишечника укажет патологии. Но начать нужно с тестов на агрегацию тромбоцитов, тк у пахнущих людей склонность к тромбоцитопении. Это может быть тромбоцитопатия по типу германский пудлака, гиршпрунг вызывает склероз мышечной ткани толстого кишечника
I'm planning on doing it.
i don’t really have any diet i kinda just make sure i have variety but what helped me was cleaning up my diet lots of water 30g of fiber a day, daily probiotic, inulin and using the bathroom 2x/ lowering transit time it’s not completely “cured” but nobody has said or done anything in a minute
I agree bro cause I've tried basically everything on TH-cam and nothing so far....
I thought I was doing great and armpits were good.Went and hit 50 golf balls or so. Armpits smelled like fish! FML
I worked in a very labour intensive physical job for years and got some reactions. Negative TMAU test. Did diets etc didn't work. Im very active with the gym etc. I got into tennis at one point which i played like 3-4 hours at a time and the reactions were baaad the next day. The usual intermittent smells but exacerbated pungent/frequency wise. i came to realised that very intense exercises or labour work is what exacerbates reactions. i got a new job for something less laboured and also stopped doing very intense workouts and tennis. i have had 0 reactions for over a year.. UNLESS i do very intense workouts which the reactions happen the day after but then disperse after around 2 days. i now work hands on with people daily. No idea if its coming from breath or sweat. Breath due to the intense twisting motion doing something to my intestines or something to do with sweat, Bacteria?. Maybe this helps someone.
True working in hot conditions or high labour makes it worse way worse
😊
I'll be honest. I got on anti depressants and its been helpful. A big part of my smell is due to my paranoia. I think there may be an underlying... definitely get tested for all infections. I'll be calling a genealogist soon myself.
Антидепрессанты не помогут!!! У людей не работает детокс, а мутации в генах цилий, которые обнаружили в России не существует лечения!!!!!
What antidepressants are you using?
I feel ya, we're all trying to figure things out, how can I get in touch with u
Where did u get the test for tmau?
Именно цилии-микротрубочки, которые продвигают жидкость в клетках имеют дефект. Цилии поражаются при электромагнитном изучении, избытке кальция, перепаде атмосферного давления, дыхании парфюмерии. Поэтому запах от одной и той же еды в разные дни может быть разной интенсивности. Самое интересное, что дефекты цилий предполагают нарушение не только глаз(вонючие люди носят очки), но и почек, желчеобразование, работу кишечника. Поэтому искать нужно гены, поражающие одновременно глаза-почки-кишечник. Для этого подходят гены цилиопатии и гены гликозилировпния, тк сборка цилий происходит непосредственно с участием процессов гликозилирования. Гликозилировпния это присоединение маннозы, галактозы, глюкозы, фукозы, рибозы к липидам и белкам. Продуктом гликозилировпния является трансферрин, тиреотропный гормон, иммуноглобулины и холестерин. Возможно поэтому у вонючек бывает снижен холестерин, трансферрин, иммуноглобулины, тиреотропный гормон. Нарушение гликозилировпния это неусвоение углеводов, ферменты и белки организма при этом дефектны! Нарушение гликозилирования вызывает вздутие живота, метеоризм, повышенное газообразование!
It’s like the guy that swore up and down about keffir. I forgot his name
Do you still take chlorophyll??
Yes I do.
Sorry to hear abt that, same here :/ have you done a gut test perhaps ane it pointed out high levels of xx bacteria?
Try Pineapple .i am uesing that right now and my shit and all smell good .give it a go👍
Hi I think baking soda baths and using baking soda to rinse mouth helps balance PH issues. Try it!
I’m not saying it’s the fix all but stay consistent and even add apple cider vinegar sometimes I noticed a difference
The fix is in your rant. Your diet if you are vegan/vegetarian is loaded with sugars whether natural from fruits and some vegetables or added sugars. Carbs that convert into glucose which is the same as sugar. And starchy foods pizza, pasta, rice, potatoes, that convert into sugar this way of eating is also loaded with toxins like oxalates, tannins etc recking havoc on our system. The apple diet gave a little relief because the sugar metabolizing in your system was reduced. Try animal based diet organic grass fed meats if you can't do red meat. Stick to organic free range non grain fed steroid antibiotic free fowl. Wild caught salmon/sardines, non starchy or sugary veggies spinach, romaine lettuce, broccoli, brussel sprouts etc. The studies you have read about issues with eating meat is false or pertain to meats loaded with antibiotics, steroids or grain fed etc. Until you find that specialist you are looking for this maybe your best bet. And will save you a lot money. You're going to be a lab rat either way. You might as well be in control for now. This way of eating will get boring. You have nothing to lose. You either want to try whatever it takes to be a healthier happier you. Or give up and smell terrible for the rest of your life. Remember this didn't happen to us overnight so it won't be cured overnight. See a dietian and or a nutritionist to help with any nutrients that you may lack doing animal based. Again if it doesn't work you've lost nothing.
Minirin-desmopressin. It is used in the treatment of thrombocytopathy: deficiency of the blood coagulation factor F8, von Willibrant factor, with a German pudlak defect. People with blood type 1 have a genetic von Willibrant factor deficiency. With the German - pudlaka, people have problems with vision and problems with the intestines due to swelling of the intestinal vessels. In the Germanic pudlak, a platelet aggregation test with adrenaline (a stress hormone) shows a decrease in platelet aggregation. The intestine is ischemic. Do platelet aggregation tests with ristomycin, ADP, epinephrine, collagen.