I get the same reactions from people when I still eat something. I even had a nurse say I was crazy, knowing how sick it makes me. But I LOVE food! I MISS food! And as crazy as it sounds, I still CRAVE food! It's so hard to explain or understand, even for gastroparesis sufferers.
I have a different condition but can't eat much food either. Sometimes I'm on just fluids for months and other times I can manage things like custards etc. I do really miss food sometimes.
@@bkornytoo51 Same. My family always warns me to not eat so much or becareful of what I'm eating and I snap at them only to become violently sick and apologize to them for being bitchy when they were right, only to repeat it all over again next time my appetite finally comes back and I get so painfully hungry. I love food too much and also am literally starving so it is hard to not overdo it eating.
@@_epic_dyslexic_ While I'm actively ill, I am very careful . . . now anyway. The first couple of years were a harsh learning curve. Now, not to be gross, if I want to eat something, I chew it, taste it, but I spit it out. A lot of times I can't do even that, but when I can, lol, I do.
It wasn't gross. Your body is not gross. You aren't gross. You're just trying to survive. :) Your video may help lots of people know what's going on with their bodies and that's great.
My biggest fear is vomit - like I’m a huge emetophobe but this video helped me get through my fear. You’re so strong to deal with this on a daily basis!
I think when you have a chronic disease like that, not that you get used to it, but you expect it. Like I used to hate needles, but when I got diagnosed with Diabete type 1, I kinda just had to deal with it.
Rest in peace Amy you are no longer suffering Enjoy all your favourite foods now there's no worry of not being able to eat or getting sick You were such a strong person
Im,14 and have gastroperes, type 1diabetes, and chronic pancreatitis. I am so thankful I do not have to have a full time tube. I had one once and I was the worst thing iv had to do.i understand how you feel. I'm sick so,much,that I have to be homeschooled. I'm actually up at 3:15 am not able to sleep right now. You might not ever see this since you posted this over a year ago but I felt commenting.
So much respect for you and your ability to carry on through all that pain, and for sharing what you go through. Vloggers like you really do help others with chronic illness feel less alone and educate healthy folks so they can have more empathy. And don't worry about showing stuff that's graphic--if you can be brave enough to live it, to film it, and to share it, then we can all be brave enough to watch it.
I'm prepping for my colonoscopy tomorrow, dx'd with gastroparesis a couple months ago. My belly hurts so bad, I appreciate the candid approach you take in your videos. Thank you!
Rest in peace Amy it’s sad that you can’t see this but tens of thousands of people even millions miss you and you are out of pain now and resting peace fully R.I.P Amy
well i'll never again complain about running out of milk for my coffee, you have shown just how entitled we tend to feel how ignorant we get, thank you for bringing me back down to earth you are an inspiration.
people with Chronic Illnesses/pain are the strongest people I know. I’m a part time carer for my mum (I’m 13) as she suffers with Fibromyalgia, Osteopetrosis, Nerve Damage, Hip Dysplasia and many more unknown conditions. She’s only 31. She’ll be in a wheelchair in a couple years time. All of her conditions are incurable. The only thing doctors are doing is giving her pain relief which her system is already used to and so she is constantly in unbearable pain and can’t even walk properly. It’s so so sad hearing other people’s struggles and stories and we all need to stick together and support eachother ❤️
Katelyn x Your mother is extremely lucky to have a daughter like you that is willing to give up part of her life in order to help her with her illnesses.
I’m a part time cater of my mum as well. I’m 22, and she’s 45. You are so strong. I get what you are going through. It’s really hard, but I know that we both can probably appreciate how strong our bonds are with our mum and that is such a lovely thing. Keep her safe during this time, sending love and and smiles ❤️
Katelyn x hi, my mum is like yours and has fibromyalgia arthritis tinitis ME and etc, if you wanna talk give me your Instagram and we can talk about it :)
I feel for her... I had bone cancer in my right leg and 30 surgeries on it. I have had two bad car wrecks, one damaged most of the left side of my body, dislocating my knee, hip, broken ribs, broken collarbone. Got stabbed and ten surgeries on my stomach and my bowels quit working so now I only shit once every 4-6 weeks when I am hospitalized for an enema.
Amy, I feel for you, I see these almost exact same things everyday for almost the last 10 years with my wife. People who don't have gastroparesis or who aren't directly involved in their lives really don't understand how debilitating this disease is. I just came across your TH-cam channel last night as I am always looking for something or someone to help my wife and to ease her pain with this mess and I was shocked at the similarities you both have. I have witnessed doctors berate my wife, call her a drug seeker, have openly had her removed from their offices because they say she is faking her illness. The facts are there is absolutely no research being done here in the US for this disease but millions suffer. My wife has spent at times almost half of every year in and out of the hospitals, mostly due to line infections and feeding tubes becoming infected causing sepsis. I can't count the times I have come to the realization that she may not be coming home this time. You are a true warrior Amy, and thank you for spreading the word about this disease as it needs to be put out there for all to see and hear. I will keep you and all others suffering from this in my prayers. Fight and never give up!
@@nzkiwiange thank you, my wife is my world. I was dead serious about my wedding vows, and no matter what I'm staying by her side. Have a great day and wishing you a Merry Christmas!
I have the stomach flu currently, and I’m just amazed at how you are able to feel this way all the time... I’m a big baby right now because I absolutely hate vomiting... I admire your strength, truly!!
I think this is a fantastic awareness video. It is what it is, if I want to understand something I want to see the good, bad and ugly of it otherwise what's the point. Thankyou for posting this, you're a star.
I was diagnosed with gastroparesis when i was 11, and this made me really emotional to watch because ive gone through so many of the same things. there are days where i'm bloated and vomiting and in so much pain i don't want to move, but I go to work or school anyway, because this is my normal. I've never been on a feeding tube but I can't count how many times i've been on a completely liquid diet. It's hard, because I know so many with gastroparesis have it worse than I do, but that doesn't mean i'm not sick, that i'm not suffering. thanks for sharing some of your story, it makes me feel a little less alone.
Hi! I have gastroparesis too and couldn’t keep anything at all down. Then, I started taking the medicine zofran five years ago. It has helped me so much.
What are the symtoms? I'm 35 and have been sick for years. Medications don't digest properly unless I eat a 2 week diet of curtain foods and drinks. I suffer every day. I feel like it is my hormones but then again I don't know. I have done a few test that I'm sure you are aware of... Just not the ultra sound yet
It’s been a long time since she passed. I also still miss her videos. I was so rooting for her! She was such a positive when so much of her life was negative. Life is not fair! If it was she would be here, gracefully showing us to be strong! I miss you girl. I know you are showing angels how to be angels! Fly high love ❤
You are an amazing young woman. As a mother, my heart goes out to you. I don't know what your personal beliefs are, but I hope it won't offend you that I want to pray for you, and pray for a cure, or much more helpful treatments.
Those were some kind, respectful words, Moss Lady. As an agnostic who's rarely enjoyed the respect of others for my beliefs, though I'm always thoughtful of theirs, it's very much appreciated.
Wish my mom was still here to care- I've been diagnosed with gastroparesis and barrett's esophagus and I suffer every day! But it does help to know that other people have this problem and I'm not alone! We all suffer in different ways but with the same outcome!
You did more than bring awareness. You're saving me from drowning. I get so sick and tired of being sick and tired. You're such a warrior I can't tell you how much I needed this channel.
Last Monday I was diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer and the beginning stages of Diverticulitis. They also reconfirmed my previous diagnoses of IBS and GERD. Thank you for showing what gastroparesis is like for so many people!!
Brooke TheFam, not necessarily. I had IBS for almost 30 years before having any problems with or being diagnosed with Gastroparesis. But if you're having symptoms like that I'd definitely talk to your doctor about it. The way they diagnose GP is with a simple test called a gastric emptying study.
amethystviolet dreams, I also have Endometriosis, Polycystic Ovarian Syndrome, Interstitial Cystitis, Hashimotos Thyroiditis, Hypothyroidism, Chronic Fatigue Syndrome and chronic migraines. Along with Degenerative Disk Disease.
At first I thought, do you really feel like you want to continue living like this in constant pain and suffering and not being able to have a normal life? But then, I think that what you do you is so hard to achieve for many and they, even me, I would give up on this. You have the will to survive, you feel power in yourself despite it all and you deseve all the best.
When I was in middle school, I had an infection in my esophaguses that caused me extram nausea whenever I ate. It wasn’t until later doctors finally did a test that found the cause, but before that I was throwing up 2-3 times every day for around 3 months. I’m older now and haven’t had anything like it happen since then. Just a few months of it left me physically and emotionally exhausted. I can’t imagine what it must be like to have to go through that for your whole life. Thank you for raising awareness and telling your story. Wishing you well, and I hope you have much better days after this ♥️
Niel Moutou they couldn’t give me anything until they found out what was wrong with me. They did a few test before they finally found out that it was an infection. It took about 3 months before I was finally able to be put on medication.
I have so much respect for you right now. I don't have GP thankfully, I have chronic anxiety though and vomiting is a huge trigger for me.. This video really made me feel so grateful I don't have to go through what you do. You're so strong and really brave to put this out there on the Internet. Thank you for sharing x
KittyAphrodite me too. I live everyday hoping I don’t get sick. I have IBS too as well as anxiety so there are some days where I just don’t want to get up because I’m scared that I’ll get sick. It makes me feel better knowing I’m not the only one that feels this way. It interferes with everyday life.
Well done Amy. I think you showed real courage and inspiration posting this. I think as a vlogger people see what 10-15 minutes of your life in snippets each day. They think that as you are up, talking, with a bit of make up on that things are much better than maybe what you make out on IG etc. The thing is in these vlogs YOU decide what YOU want us to see each day. No one knows how hard it can get the other 23 hours 45 minutes of your day. People don't see the constant pain, the tears, the vomiting, and just in general feeling poorly. The bit I love is when someone who's outside of family/friends/professionals says 'how are you' my immediate answer 'I'm fine' being chronically ill we tend to play down our symptoms to others as unless they have been there, or had a loved one go through they just don't get it! I wonder at times if I turned round and said in reply 'things are hard' my ileostomy leaked twice in the night so I had to change it twice, I had a hypo of 1.8mmol/l on my continuous glucose monitor alarm wake my sister and I up on mine and her receivers to a Urgent Low so we had to correct that. My sats monitor alarmed several times during the night in the mid 70's despite having my oxygen and non invasive ventilator on so had to again wake my sis up to do some chest physio on me to get the gunk off my chest which made me cough till I puked up..... by that time my feed needed changed by then it was morning and I'm exhausted and worn out! HOWEVER INSTEAD OF ALL THAT I POLITELY FAKE A SMILE AND SAY ***I AM FINE*** THANK YOU!! You should be really proud of yourself for this I'm sure it's going to open up people's eyes to what really goes on with GASTROPARESIS behind closed doors and when the cameras not recording! You did amazing big thumbs up🖒 Gilly x ♡ x ❣ 📷✔➿💯☤⭐❣
Just Gil x ahhhh omg! This is so accurate! Like what you said about being a daily vlogger I choose what I want to post and people only see like 10-15 mins of my life that's nothing! I wanted this to be real and raw and I know some people may find it too much but this is life for us, we have to go through this everyday 💚
Amy Lee Fisher the people who will find it 'too much' are the people who are ignorant to illness and have probably never had to deal with anything close to what a day in our shoes is like & as one of my fav snippet of a quote from Marilyn Monroe "if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.” I'm so glad you made this video as it shows how everything might look okay in front of the camera but when it's off it's a different story. It would be interesting to do a 24 hours in the life of kinda video. A few of us could get together and do it. Mine would consist of bed and sleep but it would be a cool concept. Keep up the good work lovely 🐼🌟
You are one of the bravest person I’ve seen I TH-cam...you are so beautiful 😍 Thank you very much for sharing and bringing awareness about this condition. May God give you the strength to carry on...✨🙏🏻✨
I was diagnosed at age 15, going on 8 years now. Thankfully I was never severe enough to need a feeding tube, but everything else is so so so spot on. Thank you for bringing more awareness to this disease that nobody talks about. Much love, stay strong. 💚
This makes me feel so guilty for my eating disorder because I should be grateful I can eat food physically because while you can’t eat because of an illness and I can’t eat because I have made myself this way I feel horrible , anyways your so so strong and a true inspiration thank you for this amazing awareness video !❤️❤️
It says there's 937 comments and I'm not going to read them all, but I sincerely hope that there isn't a person out there that could "hate" on such a video. IF such a person exists, than they're far too messed up mentally for you to even have to worry about. Let that go in one ear and out the other, because that's not an opinion that even remotely matters. Ok, now with that said, I just wanted to take a moment to thank you so very much for your strength and courage to not only make this video, but to post it as well. I too have gastroparesis, but nowhere near as bad as you. I don't have a feeding tube or anything. Anyways I find that it's just completely knocked me on my ass, and there's no way that I could film during one of my REALLY bad moments... so mad props to you for that strength!!! Your video also gives me some hope... mine ISN'T as bad as it could be and for that I need to be grateful. So when I'm sad or pissed off that I'm too sick to live life, I'm going to remember this video and say if she can still smile so can I. I only wish others, INCLUDING DOCTORS, had a better understanding of just how much of a toll it takes on a person. CONSTANT nausea that has you popping over the counter and prescription anti nauseants like candy, and even then it only takes the edge off... mild nausea still remains. The not being able to sleep, or waking up suddenly and before you can make it to the bathroom, OR BEFORE YOU CAN EVEN REACH FOR YOUR EMERG BUCKET, you've spewed all over yourself, bed and in my case CARPET. Which is soooooo fun to clean when you're that sick, bloated and in pain. Having people congratulate or ask me how far along I am.... that's fun. Sometimes you wanna snap back and say well if you mean the 9lb turd stuck in my system somewhere, about a week now. The constant pain that has you rubbing your tummy like you're pregnant doesn't help I suppose lol. It's just such a toll... as you already know, and so many people who don't understand trivialize it... and that's my bother. Even in the healthcare field, like mentioned previously. Sorry for the novel comment... I just really wanted to thank you and empathize... I also wanted to say don't you ever worry about people "hating", they simply just don't get it or are too messed up in their own head to show sympathy, and like I said those aren't comments worth worrying about anyways in that case. Thanks again and try to take care always
I have IBS and find that sometimes that in itself is hard enough to deal with (comes and goes), but man, what you go through is just beyond. I can't even fathom my symptoms times like 100 and every single day. You are strong, girlfriend, and that you still find reason to smile! Glad I came across your channel! Keep it up
Karis Hallson I also have ibs and I’m only 9 years old and I’ve suffered so much and sometimes I feel like I’m gonna puke but I never do and I have a fear of vomiting and vomit
@@ALPHADARKFANG you're obviously very uneducated. You're just as disgusting as turds of shit. Why? Cause u don't understand that IBS isn't always shitting yourself. Plenty of people experience IBS completely differently. Symptoms range from nausea, vomiting after eating or drinking, spastic colon, constipation, diarrhea, bloating...etc. Just cause you have IBS doesn't necessarily mean you instantly suffer of bowel incontinence. Stop shaming people for having medical issues just cause you find it gross 😃 now how about you shut the fuck up cause you can't handle being corrected nor being an educated respectful person.
Omg, this makes me appreciate my life,and how all these symptoms I don't deal with. But this video made me understand how lucky I am. Thank you Amy for this very wonderful,challenging video; I hate seeing the way you go through; stay strong and I believe in you
I am so sorry what your going through. As a nurse more than 30 years I can say I’ve met a number of folks with gastroparesis and they’re all suffering terribly. I think showing the reality of it is courageous of you. Thank you 🙂
It took me a second to identify the background sound while you were talking at first. Having been in the ICU listening to my husband's IV pump, I finally realized I was hearing yours. Miss your videos Amy. Rip ❤️
Hello! I don't mean this to sound condescending in any way but you have really made me appreciate what I have in my life and in my body. I think you are an incredibly strong person. I watched this video a few days ago and came back to comment because it's been weighing on my mind, and I just didn't want to pass by without saying thank you for sharing something so personal. I'll keep you in my prayers xx
I AM SO TRULY SORRY HOW CHALLENGING EACH DAY IS FOR YOU... THIS IS WHY WHEN I COMPLAIN ABOUT SOME STUPID THING THAT IS PUTTING ME OUT, I TRY TO REMIND MYSELF EVERY TIME, THAT THERE IS SOMEONE OUT THERE GOING THROUGH SO MUCH MORE THAN ME, TO STOP MY BITCHING, AND THINK OF THEM. I AM THINKING OF YOU AMY LEE FISHER... I AM SO IMPRESSED BY YOUR STRENGTH ND KIND HEART. YOU ARE AN ANGEL SENT FROM GOD TO TEACH EVERYDAY PEOPLE, HOW TO BE HUMBLE... SWEET GIRL.GOD BLESSED YOU WITH THE MOST BEAUTIFUL HEART, AND IT HAS COME AT A HIGH PRICE, BUT EVERYTHING GREAT S WORTH THE FIGHT.
brain: you have a phobia of vomit me: yes and an interest in medical videos brain: just don’t me: clicks video (it’s fine i’m actually using this as an exposure for my phobia. i’m really getting better every day! lovely video)
My mom has gastroparesis, EDS and POTS. In your EDS video and this one your perfectly capture what it's like and I'm sorry for you and what you have to deal with. This gave me a new understanding of what she has to deal with so thank you.
Hi There, I too appreciated this post...Yes, your Mom is suffering along with us. How unselfish of you look into her disease and witness the things she deals with, so you have better understanding. You too, are courageous! The Sister that made the video, she is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain... Please, watch a few of these videos, they are very encouraging! And comforting.... The Kingdom.. www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9 What did God Create The Earth.... tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO Sick ones, that have endured tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO .......... "Does God Have a Name" www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1 Psalms 83 18
Hello, I am writing from Argentina. I am a nursing student and I love your videos. I wish you would not go through all this, but your videos explaining different things make me understand everything from the patient's point of view and it is very useful to understand them and be able to support them. I hope you get well soon :)
My mom was diagnosed with it about 1-2 weeks before she passed away. She had it so bad that she couldn't even hold down a small 3 oz bottle of water. Thank you for helping bring awareness
It's great you posted this people just see the good on social media most of the time when in reality it's not like that your super brave for spreading awareness with the truth of what it's really like ☺️☺️
Your body and face looks so beautiful even ur sick :( . you are really a strong girl to can handle this. Not everyone has a strong body as you. god bless you. Hope you feel better today
Thank you for sharing this, as a medical student it’s so helpful to see how these things actually affect the daily lives of the people that have to suffer from them. I couldn’t ever imagine what it’s like being in your shoes, but I can see how strong you are and i hope this video also makes others with this condition feel less alone 🤗
Dear Amy! When I think of heros, I think of people like you who suffer with chronic illness and are a real light in our lives with their strengths! I've checked out all of your videos and you made me realize how precious life is! I admire your humour, knowledge and love for your own body! You are doing a fantastic thing with your vlogging! Thanks for being so couragous!
I am newly diagnosed with gastroparesis and I am so thankful for Amy's videos. I've been trying to watch her videos every day since I found them. Her videos are helping me accept my condition, and not get so anxious about it. I love the way she handled her condition so positively and she's inspiring me to do the same. It won't help me to be anxious about something I have no control over. I also want that for my family because I don't want them to worry so much.
Very informative video! I have been suffering with gp for 10 years. Every gi doctor I've seen tells me there is no pain with gp. Or pain meds slow your molitity. YES THERE IS PAIN AND I DON'T CARE WHAT YOU LEARNED IN SCHOOL, I'M THE ONE IN PAIN!!!! AND I DON'T CARE IF PAIN MEDS SLOW MY MOTILITY, THERE'S NOTHING IN MY STOMACH 95% OF THE TIME. SO JUST GIVE ME THE PAIN MEDS SO I CAN FEEL HALF WAY HUMAN! THE VOMITTING IS THE WORST. VEINS IN MY FACE ARE BLOWN OUT AND I HAVE TO SEE THE DENTIST AT LEAST 4 TIMES A YEAR SO I CAN KEEP THE TEETH I HAVE. ALMOST ALL OF MY UPPER TEETH ARE CROWNED. THIS DISEASE IS VERY EXPENSIVE! IT LEADS TO OTHER COMPLICATIONS SUCH AS PANCREATITIS AND DIABETES. AND LUCKY ME SUFFERS WITH THAT ALSO. GP WILL TAKE YOU COMPLETELY DOWN EMOTIONALLY, PHYSICALLY, AND MENTALLY. PLEASE SEE A THERAPIST IF YOU SUFFER FROM GP AND ALL IT'S SISTER ILLNESSES. YOU'RE GONNA NEED IT!
Ren if you live with chronic pain you would completely understand what she is saying. I have nerve damage in my stomach. The pain goes up my back down my legs and stops me walking sometimes. Without painkillers I’m rolling around in pain. With them I can stand up and get through a day. People with chronic conditions NEED painkillers.
I have type 1 diabetes which I know is absolutely NOTHING compared to your condition. But it just caught my eye that your condition can lead to type 1 diabetes. I can’t imagine what it’s like for people who have to live with t1d and this! That would be so hard.
@@normaurmon8756 take care of your diabetes. I am also a T1D and my lack of care of the disease has led to me having GP. Trying to balence food, insulin and puking, can really make blood sugars go whack.
Thank you so much for making this video. It means so much to people like me who just want to know that they're not alone. It's such an awful disease and in the worst times it really feels like nobody knows how it is... I have had GP for about 2 yrs, from diabetes and I am a gainer so people have no clue that I'm sick. I look like I eat really well when the reality is that I'm lucky to eat a small amount of food each day. And then really lucky to keep it down. I've been through all of these issues, minus the tube stuff... It's not fun! Stay strong and continue to tell your story cuz you're a huge inspiration!
I honestly had no idea what gastroparesis was until someone informed me that August is gastroparesis awareness month. I'm so sorry that you have to deal with this.
I was diagnosed with gastroparesis, was diagnosed right after my hyperemesis gravidarum. I'll never forget the doctor that last saw me accused me of just wanting pain meds. The embarrassment of being yelled at and labeled was so heartbreaking. Hugs to you from California.
Holy shit girl, respect! I didn't even know this existed like dam. I feel so sorry for yal! I hate it when I get a stomach bug or period cramps or my little sister wakes me in the middle of the night but u have that constantly! I feel for u, I really do! x
I’m so sorry for what you’re going through...it must be so hard and you must be so strong. I can’t even imagine how many times you felt down and how sad you must feel sometimes. The fact that you keep going on and turned all of this into something so constructive and positive, is amazing. I send you a huge hug!
Amy Lee Fisher, you are absolutely amazing, you are an inspiration to all and don’t let a stupid disease stop you from so many different things. You have an attitude that radiates positivity. You don’t let people’s judgement stop you from seeing the bright side of every inspiration. You have let me see a new side of life, a world I took for granted.
I am in awe of your courage and strength ... I am praying for you ... you are beautiful ... thank you for showing what a debilitating condition it is ... i had no idea of such chronic pain and suffering
I have all 3 conditions you have. I got the gastric pacemaker fitted for mine! Then after my pacemaker was fitted i, who was always super bendy, developed the problems with this. Turns out like you i have EDS , POTS and gastroparesis whohoo and to top it all off took a bowel prolapse and had a partial bowel removal 2 months ago. Life hey!!! Nice to see your bloating look idential to mine. Its sooollleee distroying!!!! I havnt worn jeans in 3 years!!! Plus the pacemaker hurts sooo bad with bloating but allows me to drink now where b4 i was pretty much about to die of deyhration!! Love ur foggy brain stuff too btw!! Have u tried pepsi max i know.it sounds mad but it really helped me dizzy head by keeping my stomach active!! I keep it flat and sip the cans all day! It doesnt work with any other.fizzy type crappy drink only pepsi max lol not the best for u but stops my dizzys as much. I like to call them swetty sugar rushes lol. Keep it up 😃
I totally understand what you are going through. Over the last year I have been in and out of dr appointments, given medication, in and out of hospital with left sided abdominal pain, vomiting, feeling like my stomach has gone through a meat grinder, I cant eat much without being nauseous, I take days off work for the pain to reduce to be able to anything. Your video has helped alot. Thankyou
Such an amazing awareness video! I’m so sorry you have to deal with this on such a regular basis. Thankyou for sharing your experiences and for spreading awareness of this!
One thing I've found about severe chronic pain and illness is how lonely it is. At least for me. When you can't escape it and no one can help you and everyone is going on with their normal life around you it makes me feel so alone. My chronic pain and illness started as an adult and worsened after having a child which means I'm a caretaker of a child and there's no one to take care of me. It might have been easier in some ways to deal with this kind of thing when I was younger but I don't know. I wonder if sharing helps you in those moments. I hope it does bc it sounds like a nightmare. I can never decide which is worse, migraines or severe nausea (although a migraine with nausea is def the worst.) Fortunately for me the acute severe pain only happens occasionally and I've had some ability to recover and it's been a year since my last severe acute state. I have so much sympathy for ppl who suffer everyday. It takes such strength to keep going. And having to live with an ng tube sounds horrible. I've had a few ng tubes and they were torture everytime. I'd rather have needles stuck in me repeatedly.
Hi Zoey, I too appreciated this post... She is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain... Zoey, prayers going up for you... Please, watch a few of these videos, they are very encouraging! And comforting....It gives us Hope! So sorry for your pain, You are NOT alone, DO NOT GIVE UP, PLEASE! The Kingdom.. www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9 What did God Create The Earth.... tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO Sick ones, that have endured tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO .......... "Does God Have a Name" www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1 Psalms 83 18
I agree! In August 2016, I started getting sick. For the past year I've been in and out of hospitals missing out on so much at my high school. I finally got diagnosed with Gastroparesis a couple months ago but I'm always cooped up at home or the hospital, my best friends never visit me anymore and are all moving on with their lives while I'm here all alone and stuck. I have surgery with balloon dilation and botox in less than 2 weeks and that surgery alone is in a whole different state than what I live in.
Girl, I thank GOD for people like you. You really help me to appreciate life more and I hope and pray you don't have to deal with this sickness much longer. Stay strong you beautiful thing! I pray The LORD eases your pains and everything else you deal with!
My nearly 4 year old daughter is currently being tested for this. It's such a frightening time for us and Dr's aren't being clear with what it is, so thank you so much for taking the time to go into this condition in depth. Love and light to you and thank you again x
I was just diagnosed in April after years of pain and issues. I didn’t/don’t know anything about it and I’m still waiting to be seen by GI. Gotta love the VA
We have all the same illnesses. I used to vlog about a different illness of mine but became too ill. I'm hoping to start making them again. Love your videos! :)
Rest in Peace Amy. Going to miss your videos so much. I don't have a Chronic Illness like Gastroparesis but still I enjoyed your videos. RIP 🙏 And condolences to the Family and Friends.
Oh man. You are really strong to come on TH-cam and tell your story helping others w your same condition. I pray that this condition doesn’t limit any of your happiness, success or peace in life
Hey girl don’t feel bad your so strong I also had a feeding pump in my belly for 15 years I have short bowl syndrome and I finally learned how to eat and keep my weight up enough to finally get it removed , I feel for you I also had the nose feeding tube when I would get hospitalized for months at a time I spent years in the hospital, your such a strong girl for going through all this that is a tough road to walk every day you are brave and strong just keep hope and keep pushing through ☺️I’m also in the hospital now I been here 4 days I’ve been having stomach problems and throwing up every time I eat so after months of going to hospital to hospital I finally came across a doctor who finally found out what was wrong with me and i have to get gallbladder removed so I get surgery soon for that also I get released from the hospital tomorrow afternoon and I can’t wait I miss my dogs 🐕 so much and I have an appointment to get the surgery done soon yay finally after loosing 30 pounds in 3 weeks I’m only 4ft 5inch and I use to weigh 98 pounds and dropped to 65 in 3 weeks im really tiny and I’m 29 years old but everyone says I look 8 years old, I hope 🤞 you the best just hang in there girls are super strong 💪 take care ☺️
Omg I had never heard of this disease, thank you for being so brave. My heart goes out to you, it looks so difficult to deal with, I hope you get some relief and find more effective treatments soon. Hugs to you from Australia, your so lovely and real and caring and compassionate. You're also a beautiful young woman. 💗
Amy you're so brave! You're so strong it's unreal! You go through so much but you always come out fighting & always cracking a smile for your viewers, I'll always keep supporting you!😁x
I was diagnosed with this five years ago. I am 37 now, and I started being sick every morning when I was 9. The nausea would subside later in the day back then, and it took many years and many tests to figure out what I had. It was heartbreaking every time I went to the doctor, and they told me everything looked fine, because I knew something was wrong. I spend every day of my life too nauseous and weak to be able to go anywhere, or do anything. Nausea medication doesn’t help at all. The only thing that has ever given any relief is pain medication, but doctors do not want to prescribe them because they slow motility. It is so hard having an invisible chronic illness. This disease has stripped me of any quality of life, as I wake up sick everyday, never feeling well enough to go anywhere. The pain we experience everyday is more than anyone should have to handle, but we keep going. You are strong, even when you feel weak because you continue to fight.
I think people take most things for granted and don’t think about what people have to go through like yourself every single day.And watching this has opened my eyes to how lucky I am.Thank you for sharing your story with me....your truly an inspiration! 🥰
Thank you for adding a warning for vomit because I have Emetophobia. I am going to be tested for this soon so I wanted to see what others where experiencing.
I am having issues... I was stabbed three years ago and I’ve had ten surgeries on my stomach. My bowels have completely quit working, I cannot shit on my own. I go 4-6 weeks in between bowel movements. I’ve lost seventy pounds in a year, I barely eat. I’m always nauseous and miserable and it gets worse daily. I feel for you... I miss food and normalcy too.
How do you get help with bowel movements? My bowel movements are damaged due to EDS, I was told my muscles don't do the job properly, but I don't know what can be done. Sounds like you're not getting support but I thought I'd ask..
Please never be nervous about posting about the reality of your condition, I had never heard of this before and you are truly an inspiration and make me realise how lucky some of us are. I honestly don't know how you do it but you should be so proud of yourself everyday, much love girl!
I have gastroparesis also unfortunately. I take Omeprazole. Which will eventually give me kidney failure liver failure. But I can't get off of it. And I follow very strict gastroparesis diet. The only thing that seems to help when I'm having a really bad flare-up. Is laying in a hot shower or sitting. And I have a little heater in my room and I'll nest on the floor with my pot in case I have to vomit. And vomiting is so intense. It could literally go on for a week. And then it's a very painful after. I also get a lot of bloating. But yours looks like alot of pressure! I know how that must hurt OMG I feel for you. I always keep a heating pad around but sometimes the weight of the heating pad is too much. . Thank you very much for helping to get the word out about gastroparesis. Cuz it has been a living hell.
Watching this in 2019....been watching you since your McDonald's sent me to hospital video, just watching some of your old videos....you're gorgeous and beautiful inside and out, stay strong ❤️ x
I have been battling GP for 10 years. I am a gainer so no Doctors want to address the GP even though loads of tests and scans confirm it. I am currently fighting for a pacemaker but it doesn't look good. You are so brave to show exactly what this illness looks like. This video is so real, raw and informative ℹ️. Thank you. Be blessed.
Before I came across your videos, I actually thought that nothing can match upto my depression, basically my mental state. But then I just realized that some people's lives are way tougher than mine.... I hope that you keep staying as strong as you are. Most definitely will be praying for you ❤️❤️
Rest in peace Amy, sending you lots of love to where you are resting in peace and pain free finally, my heart goes out to tom and all your friends/family.
I feel ur pain. I thought I was dieing before I was diagnosed. Over a year and a half of misdiagnosis after misdiagnosis. Multiple jobs lost sleepless nights chronic pain every day of my life. Relationships don't last because I'm always sick and people don't understand. I lost over 25% of my body weight people I haven't seen in a long time think I'm on drugs. My feelings get hurt all the time I don't get invited to things anymore I know I shouldn't care but I'm only 26. I was in the Military so I'm not weak mentally or physically. G.P has stripped me of financial freedom a social life and mental stability. I cry all the time everyday if I'm not feeling sorry for myself I have uncontrollable anger lashing out at everyone because no one understands I want to be normal. My G. I doctor said that if I keep losing weight then I have to get a feeding tube. Yesterday I seen him so I put ankle weights on and as much clothes as possible without looking out of the ordinary and still I lost weight. A lack of nutrition has started to destroy my body my hair is starting to fall out and is getting lighter. Holes in my teeth and finger nails my skin is horrible I'm on 11 different meds over 25 pills a day things are only getting worse I'm scared and feel alone I just want to be 'normal' my moms tells me a feeding tube will make my quality of life a lot better. I have shitty insurance that's making things difficult. I watch your videos and see I'm not alone. I can't thank you enough for putting up your most vulnerable moments sharing your struggles. I draw strength from you. Your videos and videos of others with G.P help me get through the really bad days when I feel hopeless and lost. Thank you for sharing your story. It really helped me today. I have extreme anxiety and get really sad when I don't feel good I want it all to go away. Seeing your struggles with G.P is helping me more than you can imagine. Seeing you stay positive and keep going on with life is inspiring. Thank you so much. I hope you have a wonderful new year filled with love happiness and support. G.P isn't defining you so I won't let it define me either. Take care and Thank you again
Everyone going through a chronic illness is so strong and brave. I pray for all of you. I pray that you stay healthy and that your good days out number your bad ones. I pray that one day you can be healed.
When you said, "I love food. It's not my fault that this happened to me", my heart just broke. You are so strong.
Doina Neculcea I relate to that so well. Glad my brother is always willing to eat food I can't eat or finish. I miss food so much.
I get the same reactions from people when I still eat something. I even had a nurse say I was crazy, knowing how sick it makes me.
But I LOVE food! I MISS food! And as crazy as it sounds, I still CRAVE food!
It's so hard to explain or understand, even for gastroparesis sufferers.
I have a different condition but can't eat much food either. Sometimes I'm on just fluids for months and other times I can manage things like custards etc. I do really miss food sometimes.
@@bkornytoo51
Same. My family always warns me to not eat so much or becareful of what I'm eating and I snap at them only to become violently sick and apologize to them for being bitchy when they were right, only to repeat it all over again next time my appetite finally comes back and I get so painfully hungry. I love food too much and also am literally starving so it is hard to not overdo it eating.
@@_epic_dyslexic_ While I'm actively ill, I am very careful . . . now anyway. The first couple of years were a harsh learning curve. Now, not to be gross, if I want to eat something, I chew it, taste it, but I spit it out. A lot of times I can't do even that, but when I can, lol, I do.
It wasn't gross. Your body is not gross. You aren't gross. You're just trying to survive. :) Your video may help lots of people know what's going on with their bodies and that's great.
Michelle Everett I think she means like ppl will not like blood and stuff
I love blood and gore and medical dramas and also I want to be a firefighter
Not really good motivation for it.
Michelle Everett she clearly didn’t mean her body, she meant the throw up and blood. 🤦🏻♀️
sorry this is late but yasss preech she needs to know this
My biggest fear is vomit - like I’m a huge emetophobe but this video helped me get through my fear. You’re so strong to deal with this on a daily basis!
Same
Amanda Harris I have a serious phobia over sick n this is helping me aswell
Same
Same 🤒
I think when you have a chronic disease like that, not that you get used to it, but you expect it. Like I used to hate needles, but when I got diagnosed with Diabete type 1, I kinda just had to deal with it.
Rest in peace Amy you are no longer suffering Enjoy all your favourite foods now there's no worry of not being able to eat or getting sick You were such a strong person
Strong trooper this breaks my heart
She’s in better place now
What you mean?? Is she dead
@@einercolt9970 yes she passed away 😢 there is a video on her channel
@@einercolt9970 Her body is dead, not her.
Im,14 and have gastroperes, type 1diabetes, and chronic pancreatitis. I am so thankful I do not have to have a full time tube. I had one once and I was the worst thing iv had to do.i understand how you feel. I'm sick so,much,that I have to be homeschooled. I'm actually up at 3:15 am not able to sleep right now. You might not ever see this since you posted this over a year ago but I felt commenting.
X
Omg... breaks my heart to hear that people are so sick...
Hey I have type 1 diabetes and sometimes that’s hard for me so I respect you so much for all the other stuff you have to go through 😘
You go girl!!!
@Pugicorngirl Tdm stop
So much respect for you and your ability to carry on through all that pain, and for sharing what you go through. Vloggers like you really do help others with chronic illness feel less alone and educate healthy folks so they can have more empathy. And don't worry about showing stuff that's graphic--if you can be brave enough to live it, to film it, and to share it, then we can all be brave enough to watch it.
DarkBlue Matter bless you! Thank you so much! 💜
Keep going strong beautiful❤
DarkBlue Matter well said ♡
I'm prepping for my colonoscopy tomorrow, dx'd with gastroparesis a couple months ago. My belly hurts so bad, I appreciate the candid approach you take in your videos. Thank you!
DarkBlue MatterAmen
Rest in peace Amy it’s sad that you can’t see this but tens of thousands of people even millions miss you and you are out of pain now and resting peace fully R.I.P Amy
How did she pass??
well i'll never again complain about running out of milk for my coffee, you have shown just how entitled we tend to feel how ignorant we get, thank you for bringing me back down to earth you are an inspiration.
people with Chronic Illnesses/pain are the strongest people I know. I’m a part time carer for my mum (I’m 13) as she suffers with Fibromyalgia, Osteopetrosis, Nerve Damage, Hip Dysplasia and many more unknown conditions. She’s only 31. She’ll be in a wheelchair in a couple years time. All of her conditions are incurable. The only thing doctors are doing is giving her pain relief which her system is already used to and so she is constantly in unbearable pain and can’t even walk properly. It’s so so sad hearing other people’s struggles and stories and we all need to stick together and support eachother ❤️
Katelyn x Your mother is extremely lucky to have a daughter like you that is willing to give up part of her life in order to help her with her illnesses.
I’m a part time cater of my mum as well. I’m 22, and she’s 45. You are so strong. I get what you are going through. It’s really hard, but I know that we both can probably appreciate how strong our bonds are with our mum and that is such a lovely thing. Keep her safe during this time, sending love and and smiles ❤️
Katelyn x hi, my mum is like yours and has fibromyalgia arthritis tinitis ME and etc, if you wanna talk give me your Instagram and we can talk about it :)
I feel for her... I had bone cancer in my right leg and 30 surgeries on it. I have had two bad car wrecks, one damaged most of the left side of my body, dislocating my knee, hip, broken ribs, broken collarbone. Got stabbed and ten surgeries on my stomach and my bowels quit working so now I only shit once every 4-6 weeks when I am hospitalized for an enema.
Wolf Girl take care of yourself. You’re a strong girl and you will go far in this world
Amy, I feel for you, I see these almost exact same things everyday for almost the last 10 years with my wife. People who don't have gastroparesis or who aren't directly involved in their lives really don't understand how debilitating this disease is. I just came across your TH-cam channel last night as I am always looking for something or someone to help my wife and to ease her pain with this mess and I was shocked at the similarities you both have.
I have witnessed doctors berate my wife, call her a drug seeker, have openly had her removed from their offices because they say she is faking her illness. The facts are there is absolutely no research being done here in the US for this disease but millions suffer. My wife has spent at times almost half of every year in and out of the hospitals, mostly due to line infections and feeding tubes becoming infected causing sepsis. I can't count the times I have come to the realization that she may not be coming home this time.
You are a true warrior Amy, and thank you for spreading the word about this disease as it needs to be put out there for all to see and hear.
I will keep you and all others suffering from this in my prayers.
Fight and never give up!
Wow Conrad, you sound like an amazing husband and your wife is so strong, I couldn't cope, just amazing! xo Love to your wife
@@nzkiwiange thank you, my wife is my world. I was dead serious about my wedding vows, and no matter what I'm staying by her side.
Have a great day and wishing you a Merry Christmas!
Conrad McDowell aww, you’re an amazing husband! How are things with her now?
She never gave up she is a strong person and now she passed away rest in peace 😭😭😭😭😭😭😭
I have the stomach flu currently, and I’m just amazed at how you are able to feel this way all the time... I’m a big baby right now because I absolutely hate vomiting... I admire your strength, truly!!
I have it now to i watched for the same reason
I vomited at horse back riding today because of my gastroparesis 😂
I'm dying pls help
When I was a kid I threw up alot for no reason
Carmen Osterlie Same 😂😂
katerina650 i had it on spring break it was horrible i thought i was dying
I think this is a fantastic awareness video. It is what it is, if I want to understand something I want to see the good, bad and ugly of it otherwise what's the point. Thankyou for posting this, you're a star.
Forever Heath thank you!!💕💕💕
Forever Heath exactly
I was diagnosed with gastroparesis when i was 11, and this made me really emotional to watch because ive gone through so many of the same things. there are days where i'm bloated and vomiting and in so much pain i don't want to move, but I go to work or school anyway, because this is my normal. I've never been on a feeding tube but I can't count how many times i've been on a completely liquid diet. It's hard, because I know so many with gastroparesis have it worse than I do, but that doesn't mean i'm not sick, that i'm not suffering. thanks for sharing some of your story, it makes me feel a little less alone.
Hi! I have gastroparesis too and couldn’t keep anything at all down. Then, I started taking the medicine zofran five years ago. It has helped me so much.
What are the symtoms? I'm 35 and have been sick for years. Medications don't digest properly unless I eat a 2 week diet of curtain foods and drinks. I suffer every day. I feel like it is my hormones but then again I don't know. I have done a few test that I'm sure you are aware of... Just not the ultra sound yet
I was diagnosed when I was 7..
It’s been a long time since she passed. I also still miss her videos. I was so rooting for her! She was such a positive when so much of her life was negative. Life is not fair! If it was she would be here, gracefully showing us to be strong! I miss you girl. I know you are showing angels how to be angels! Fly high love ❤
RIP sweet girl💕💕 a true warrior on so many levels!!!!
I've honestly never heard of this before. I don't know how you do it. You're an amazing, brave, beautiful person.
I’ve never heard about this eather
You are an amazing young woman. As a mother, my heart goes out to you. I don't know what your personal beliefs are, but I hope it won't offend you that I want to pray for you, and pray for a cure, or much more helpful treatments.
Those were some kind, respectful words, Moss Lady. As an agnostic who's rarely enjoyed the respect of others for my beliefs, though I'm always thoughtful of theirs, it's very much appreciated.
She is wearing a cross necklace
That's cute
I wish there WAS a cure - it's just awful what we go through ! One day maybe there will be a cure!
Wish my mom was still here to care- I've been diagnosed with gastroparesis and barrett's esophagus and I suffer every day! But it does help to know that other people have this problem and I'm not alone! We all suffer in different ways but with the same outcome!
I find this a bit scary but I feel like I have to watch it because thats the point of raising awareness
You are so brave n seeing u like this make me cry.
Wimsem - Tekenen & Knutselen
Your comment was what I first read(& saw) and you are so right.
p)
It’s so sad, her body has been slowly dying for many years. I’m so glad that she is no longer miserable. Finally she’s found peace.
You did more than bring awareness. You're saving me from drowning. I get so sick and tired of being sick and tired. You're such a warrior I can't tell you how much I needed this channel.
Last Monday I was diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer and the beginning stages of Diverticulitis. They also reconfirmed my previous diagnoses of IBS and GERD. Thank you for showing what gastroparesis is like for so many people!!
MissaLVT 💖
MissaLVT I lierally have all of that too
Is IBS related to gastroparesis?? I have IBS and lately have really bad stomach pains and feel nauseous after eating
Brooke TheFam, not necessarily. I had IBS for almost 30 years before having any problems with or being diagnosed with Gastroparesis. But if you're having symptoms like that I'd definitely talk to your doctor about it. The way they diagnose GP is with a simple test called a gastric emptying study.
amethystviolet dreams, I also have Endometriosis, Polycystic Ovarian Syndrome, Interstitial Cystitis, Hashimotos Thyroiditis, Hypothyroidism, Chronic Fatigue Syndrome and chronic migraines. Along with Degenerative Disk Disease.
I have gastroparesis because of years of an eating disorder and I relate to this so much. Even though the reasons are different.
System K bulimia?
Mina Wangberg No, anorexia.
Well I am glad you are doing better with your anorexia😊😊
caroline skinner They had me eat a “radioactive egg” and watched it digest (or not digest)
Hailey Hitchcock Thank you!!
You are a very strong young lady. Thank you sharing your story. I will be praying for you. God Bless you.
At first I thought, do you really feel like you want to continue living like this in constant pain and suffering and not being able to have a normal life? But then, I think that what you do you is so hard to achieve for many and they, even me, I would give up on this. You have the will to survive, you feel power in yourself despite it all and you deseve all the best.
When I was in middle school, I had an infection in my esophaguses that caused me extram nausea whenever I ate. It wasn’t until later doctors finally did a test that found the cause, but before that I was throwing up 2-3 times every day for around 3 months. I’m older now and haven’t had anything like it happen since then. Just a few months of it left me physically and emotionally exhausted. I can’t imagine what it must be like to have to go through that for your whole life. Thank you for raising awareness and telling your story. Wishing you well, and I hope you have much better days after this ♥️
what was the cause of your vomit and extreme nhausea
Niel Moutou it was from the infection. It basically got really irritated whenever I ate and caused me a lot of nausea
Brooke B did they give you medications?
Niel Moutou they couldn’t give me anything until they found out what was wrong with me. They did a few test before they finally found out that it was an infection. It took about 3 months before I was finally able to be put on medication.
I have so much respect for you right now. I don't have GP thankfully, I have chronic anxiety though and vomiting is a huge trigger for me.. This video really made me feel so grateful I don't have to go through what you do. You're so strong and really brave to put this out there on the Internet. Thank you for sharing x
MissMoo Me too. 😢
MissMoo vomiting is a huge trigger for me as well.
Brittany Crawford Illnesses are a HUGE phobia of mine. Like getting a cold, fever, stomach bug... 😲
KittyAphrodite me too. I live everyday hoping I don’t get sick. I have IBS too as well as anxiety so there are some days where I just don’t want to get up because I’m scared that I’ll get sick. It makes me feel better knowing I’m not the only one that feels this way. It interferes with everyday life.
KittyAphrodite stomach bugs and flus are my biggest fear
Well done Amy. I think you showed real courage and inspiration posting this. I think as a vlogger people see what 10-15 minutes of your life in snippets each day. They think that as you are up, talking, with a bit of make up on that things are much better than maybe what you make out on IG etc. The thing is in these vlogs YOU decide what YOU want us to see each day. No one knows how hard it can get the other 23 hours 45 minutes of your day.
People don't see the constant pain, the tears, the vomiting, and just in general feeling poorly.
The bit I love is when someone who's outside of family/friends/professionals says 'how are you' my immediate answer 'I'm fine' being chronically ill we tend to play down our symptoms to others as unless they have been there, or had a loved one go through they just don't get it!
I wonder at times if I turned round and said in reply 'things are hard' my ileostomy leaked twice in the night so I had to change it twice, I had a hypo of 1.8mmol/l on my continuous glucose monitor alarm wake my sister and I up on mine and her receivers to a Urgent Low so we had to correct that. My sats monitor alarmed several times during the night in the mid 70's despite having my oxygen and non invasive ventilator on so had to again wake my sis up to do some chest physio on me to get the gunk off my chest which made me cough till I puked up..... by that time my feed needed changed by then it was morning and I'm exhausted and worn out! HOWEVER INSTEAD OF ALL THAT I POLITELY FAKE A SMILE AND SAY ***I AM FINE*** THANK YOU!!
You should be really proud of yourself for this I'm sure it's going to open up people's eyes to what really goes on with GASTROPARESIS behind closed doors and when the cameras not recording!
You did amazing big thumbs up🖒
Gilly x ♡ x
❣ 📷✔➿💯☤⭐❣
Just Gil x ahhhh omg! This is so accurate! Like what you said about being a daily vlogger I choose what I want to post and people only see like 10-15 mins of my life that's nothing! I wanted this to be real and raw and I know some people may find it too much but this is life for us, we have to go through this everyday 💚
Amy Lee Fisher the people who will find it 'too much' are the people who are ignorant to illness and have probably never had to deal with anything close to what a day in our shoes is like & as one of my fav snippet of a quote from
Marilyn Monroe "if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.”
I'm so glad you made this video as it shows how everything might look okay in front of the camera but when it's off it's a different story.
It would be interesting to do a 24 hours in the life of kinda video. A few of us could get together and do it. Mine would consist of bed and sleep but it would be a cool concept.
Keep up the good work lovely
🐼🌟
You are one of the bravest person I’ve seen I TH-cam...you are so beautiful 😍 Thank you very much for sharing and bringing awareness about this condition. May God give you the strength to carry on...✨🙏🏻✨
I was diagnosed at age 15, going on 8 years now. Thankfully I was never severe enough to need a feeding tube, but everything else is so so so spot on. Thank you for bringing more awareness to this disease that nobody talks about. Much love, stay strong. 💚
This makes me feel so guilty for my eating disorder because I should be grateful I can eat food physically because while you can’t eat because of an illness and I can’t eat because I have made myself this way I feel horrible , anyways your so so strong and a true inspiration thank you for this amazing awareness video !❤️❤️
Everyone is on a different path. Don't feel guilty. Both are terrible things.
How old is this video?
I hope you're better now
It says there's 937 comments and I'm not going to read them all, but I sincerely hope that there isn't a person out there that could "hate" on such a video. IF such a person exists, than they're far too messed up mentally for you to even have to worry about. Let that go in one ear and out the other, because that's not an opinion that even remotely matters.
Ok, now with that said, I just wanted to take a moment to thank you so very much for your strength and courage to not only make this video, but to post it as well. I too have gastroparesis, but nowhere near as bad as you. I don't have a feeding tube or anything. Anyways I find that it's just completely knocked me on my ass, and there's no way that I could film during one of my REALLY bad moments... so mad props to you for that strength!!! Your video also gives me some hope... mine ISN'T as bad as it could be and for that I need to be grateful. So when I'm sad or pissed off that I'm too sick to live life, I'm going to remember this video and say if she can still smile so can I. I only wish others, INCLUDING DOCTORS, had a better understanding of just how much of a toll it takes on a person. CONSTANT nausea that has you popping over the counter and prescription anti nauseants like candy, and even then it only takes the edge off... mild nausea still remains. The not being able to sleep, or waking up suddenly and before you can make it to the bathroom, OR BEFORE YOU CAN EVEN REACH FOR YOUR EMERG BUCKET, you've spewed all over yourself, bed and in my case CARPET. Which is soooooo fun to clean when you're that sick, bloated and in pain. Having people congratulate or ask me how far along I am.... that's fun. Sometimes you wanna snap back and say well if you mean the 9lb turd stuck in my system somewhere, about a week now. The constant pain that has you rubbing your tummy like you're pregnant doesn't help I suppose lol. It's just such a toll... as you already know, and so many people who don't understand trivialize it... and that's my bother. Even in the healthcare field, like mentioned previously.
Sorry for the novel comment... I just really wanted to thank you and empathize... I also wanted to say don't you ever worry about people "hating", they simply just don't get it or are too messed up in their own head to show sympathy, and like I said those aren't comments worth worrying about anyways in that case. Thanks again and try to take care always
I’m so sorry you have to deal with such a debilitating illness. Please hang in there and I wish you the best💖
this is not disgusting, this is life, you are amazing :) You are amazing person Amy Lee Fisher!
I absolutely loved this awareness video! I don't think I've ever seen one so real & raw! Thank you so so sooo much for making & posting this video!
Amanda Rose I'm so glad I'm getting such positive feedback I'm so glad you liked it 💖💖💖
You’re very brave for sharing such a personal aspect of your life. It was very informative. Thank you for sharing!
Can't imagine what you go through on a daily Basis. You are honest and strong.
I have IBS and find that sometimes that in itself is hard enough to deal with (comes and goes), but man, what you go through is just beyond. I can't even fathom my symptoms times like 100 and every single day. You are strong, girlfriend, and that you still find reason to smile! Glad I came across your channel! Keep it up
Karis Hallson I also have ibs and I’m only 9 years old and I’ve suffered so much and sometimes I feel like I’m gonna puke but I never do and I have a fear of vomiting and vomit
That condition is pretty gross
@@ALPHADARKFANG so are you.
@@cottoneyes566 ya ur obviously insane i don't shit myself like these people if u don't have anything useful to say stfu
@@ALPHADARKFANG you're obviously very uneducated. You're just as disgusting as turds of shit. Why? Cause u don't understand that IBS isn't always shitting yourself. Plenty of people experience IBS completely differently. Symptoms range from nausea, vomiting after eating or drinking, spastic colon, constipation, diarrhea, bloating...etc. Just cause you have IBS doesn't necessarily mean you instantly suffer of bowel incontinence.
Stop shaming people for having medical issues just cause you find it gross 😃 now how about you shut the fuck up cause you can't handle being corrected nor being an educated respectful person.
Omg, this makes me appreciate my life,and how all these symptoms I don't deal with. But this video made me understand how lucky I am. Thank you Amy for this very wonderful,challenging video; I hate seeing the way you go through; stay strong and I believe in you
I have gastropersis since 1993. I thought I was alone. Your video video has given me hope! Thank you and God bless you...
I am so sorry what your going through. As a nurse more than 30 years I can say I’ve met a number of folks with gastroparesis and they’re all suffering terribly. I think showing the reality of it is courageous of you. Thank you 🙂
She died the other day. Far too young
It took me a second to identify the background sound while you were talking at first. Having been in the ICU listening to my husband's IV pump, I finally realized I was hearing yours. Miss your videos Amy. Rip ❤️
I wish so bad she got to have a pain free life. She was amazing 😞
i am truly in shock that you are so up beat and happy and positive i absolutely envy your courage and positivity god bless you and carry on girly ❤️
God bless no shit if I was God I would never let her suffer.
Hello! I don't mean this to sound condescending in any way but you have really made me appreciate what I have in my life and in my body. I think you are an incredibly strong person. I watched this video a few days ago and came back to comment because it's been weighing on my mind, and I just didn't want to pass by without saying thank you for sharing something so personal. I'll keep you in my prayers xx
marissa vachon thank you so much 💖💖
Thank you Amy for doing this video. The public needs to be educated. My daughter also suffers from GP, it has been eight years now.
I AM SO TRULY SORRY HOW CHALLENGING EACH DAY IS FOR YOU... THIS IS WHY WHEN I COMPLAIN ABOUT SOME STUPID THING THAT IS PUTTING ME OUT, I TRY TO REMIND MYSELF EVERY TIME, THAT THERE IS SOMEONE OUT THERE GOING THROUGH SO MUCH MORE THAN ME, TO STOP MY BITCHING, AND THINK OF THEM. I AM THINKING OF YOU AMY LEE FISHER... I AM SO IMPRESSED BY YOUR STRENGTH ND KIND HEART. YOU ARE AN ANGEL SENT FROM GOD TO TEACH EVERYDAY PEOPLE, HOW TO BE HUMBLE... SWEET GIRL.GOD BLESSED YOU WITH THE MOST BEAUTIFUL HEART, AND IT HAS COME AT A HIGH PRICE, BUT EVERYTHING GREAT S WORTH THE FIGHT.
brain: you have a phobia of vomit
me: yes and an interest in medical videos
brain: just don’t
me: clicks video
(it’s fine i’m actually using this as an exposure for my phobia. i’m really getting better every day! lovely video)
I've never related to something so much! glad you are getting better I am not XD
I have such a severe phobia that I pause at the moment where she was by the toilet and I just can't watch further. I skipped.
Wow I'm doing the same thing as therapy I have very intense emetophobia so I'm trying this as new type of therapy
Uhh literally same.
Literally same
My mom has gastroparesis, EDS and POTS. In your EDS video and this one your perfectly capture what it's like and I'm sorry for you and what you have to deal with. This gave me a new understanding of what she has to deal with so thank you.
ObjectiveMotive your so welcome and I’m so sorry about your mum x
Hi There, I too appreciated this post...Yes, your Mom is suffering along with us. How unselfish of you look into her disease and witness the things she deals with, so you have better understanding. You too, are courageous!
The Sister that made the video, she is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain...
Please, watch a few of these videos, they are very encouraging!
And comforting....
The Kingdom..
www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9
What did God Create The Earth....
tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO
Sick ones, that have endured
tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO
..........
"Does God Have a Name"
www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1
Psalms 83 18
Hello, I am writing from Argentina. I am a nursing student and I love your videos. I wish you would not go through all this, but your videos explaining different things make me understand everything from the patient's point of view and it is very useful to understand them and be able to support them. I hope you get well soon :)
No es muy fácil encontrar argentinos por acá :')
Rest in peace Amy ♥️
My mom was diagnosed with it about 1-2 weeks before she passed away. She had it so bad that she couldn't even hold down a small 3 oz bottle of water. Thank you for helping bring awareness
You're so strong. I dont know how you cope. i have emetophobia (fear of vomiting) I would literally want it to all end. Thinking of you x
Same !!
Same emetophobia is the worst
same its the worst😭
I know
I’ve had it for 1 and a bit years
It's great you posted this people just see the good on social media most of the time when in reality it's not like that your super brave for spreading awareness with the truth of what it's really like ☺️☺️
jade armstrong thank you beautiful girly ✨
Your body and face looks so beautiful even ur sick :( . you are really a strong girl to can handle this. Not everyone has a strong body as you. god bless you. Hope you feel better today
Thank you for sharing this, as a medical student it’s so helpful to see how these things actually affect the daily lives of the people that have to suffer from them. I couldn’t ever imagine what it’s like being in your shoes, but I can see how strong you are and i hope this video also makes others with this condition feel less alone 🤗
Dear Amy! When I think of heros, I think of people like you who suffer with chronic illness and are a real light in our lives with their strengths! I've checked out all of your videos and you made me realize how precious life is! I admire your humour, knowledge and love for your own body! You are doing a fantastic thing with your vlogging! Thanks for being so couragous!
I am newly diagnosed with gastroparesis and I am so thankful for Amy's videos. I've been trying to watch her videos every day since I found them. Her videos are helping me accept my condition, and not get so anxious about it. I love the way she handled her condition so positively and she's inspiring me to do the same. It won't help me to be anxious about something I have no control over. I also want that for my family because I don't want them to worry so much.
Very informative video! I have been suffering with gp for 10 years. Every gi doctor I've seen tells me there is no pain with gp. Or pain meds slow your molitity. YES THERE IS PAIN AND I DON'T CARE WHAT YOU LEARNED IN SCHOOL, I'M THE ONE IN PAIN!!!! AND I DON'T CARE IF PAIN MEDS SLOW MY MOTILITY, THERE'S NOTHING IN MY STOMACH 95% OF THE TIME. SO JUST GIVE ME THE PAIN MEDS SO I CAN FEEL HALF WAY HUMAN! THE VOMITTING IS THE WORST. VEINS IN MY FACE ARE BLOWN OUT AND I HAVE TO SEE THE DENTIST AT LEAST 4 TIMES A YEAR SO I CAN KEEP THE TEETH I HAVE. ALMOST ALL OF MY UPPER TEETH ARE CROWNED. THIS DISEASE IS VERY EXPENSIVE! IT LEADS TO OTHER COMPLICATIONS SUCH AS PANCREATITIS AND DIABETES. AND LUCKY ME SUFFERS WITH THAT ALSO. GP WILL TAKE YOU COMPLETELY DOWN EMOTIONALLY, PHYSICALLY, AND MENTALLY. PLEASE SEE A THERAPIST IF YOU SUFFER FROM GP AND ALL IT'S SISTER ILLNESSES. YOU'RE GONNA NEED IT!
Ren if you live with chronic pain you would completely understand what she is saying. I have nerve damage in my stomach. The pain goes up my back down my legs and stops me walking sometimes. Without painkillers I’m rolling around in pain. With them I can stand up and get through a day. People with chronic conditions NEED painkillers.
I have type 1 diabetes which I know is absolutely NOTHING compared to your condition. But it just caught my eye that your condition can lead to type 1 diabetes. I can’t imagine what it’s like for people who have to live with t1d and this! That would be so hard.
@@normaurmon8756 take care of your diabetes. I am also a T1D and my lack of care of the disease has led to me having GP. Trying to balence food, insulin and puking, can really make blood sugars go whack.
@@Elizabeth-ci8jm Amen to that! We DO need pain meds. I have an appointment for a pain clinic and hopefully they will be able to help me!
Thank you so much for making this video. It means so much to people like me who just want to know that they're not alone. It's such an awful disease and in the worst times it really feels like nobody knows how it is... I have had GP for about 2 yrs, from diabetes and I am a gainer so people have no clue that I'm sick. I look like I eat really well when the reality is that I'm lucky to eat a small amount of food each day. And then really lucky to keep it down. I've been through all of these issues, minus the tube stuff... It's not fun! Stay strong and continue to tell your story cuz you're a huge inspiration!
I honestly had no idea what gastroparesis was until someone informed me that August is gastroparesis awareness month. I'm so sorry that you have to deal with this.
Don't be sorry or nervous. If people see what happens it should help in understanding. You Are an Amazing person! Much love to you
I was diagnosed with gastroparesis, was diagnosed right after my hyperemesis gravidarum. I'll never forget the doctor that last saw me accused me of just wanting pain meds. The embarrassment of being yelled at and labeled was so heartbreaking. Hugs to you from California.
Holy shit girl, respect! I didn't even know this existed like dam. I feel so sorry for yal! I hate it when I get a stomach bug or period cramps or my little sister wakes me in the middle of the night but u have that constantly! I feel for u, I really do! x
I’m so sorry for what you’re going through...it must be so hard and you must be so strong.
I can’t even imagine how many times you felt down and how sad you must feel sometimes. The fact that you keep going on and turned all of this into something so constructive and positive, is amazing.
I send you a huge hug!
Thank you for the warning about vomit. I have emetophobia, Thank you for warning ❤
As a nurse, all I can say is that you are amazingly clear, concise and optimistic. Blessings to you!
Amy Lee Fisher, you are absolutely amazing, you are an inspiration to all and don’t let a stupid disease stop you from so many different things. You have an attitude that radiates positivity. You don’t let people’s judgement stop you from seeing the bright side of every inspiration. You have let me see a new side of life, a world I took for granted.
I am in awe of your courage and strength ... I am praying for you ... you are beautiful ... thank you for showing what a debilitating condition it is ... i had no idea of such chronic pain and suffering
I have all 3 conditions you have. I got the gastric pacemaker fitted for mine! Then after my pacemaker was fitted i, who was always super bendy, developed the problems with this. Turns out like you i have EDS , POTS and gastroparesis whohoo and to top it all off took a bowel prolapse and had a partial bowel removal 2 months ago. Life hey!!! Nice to see your bloating look idential to mine. Its sooollleee distroying!!!! I havnt worn jeans in 3 years!!! Plus the pacemaker hurts sooo bad with bloating but allows me to drink now where b4 i was pretty much about to die of deyhration!! Love ur foggy brain stuff too btw!! Have u tried pepsi max i know.it sounds mad but it really helped me dizzy head by keeping my stomach active!! I keep it flat and sip the cans all day! It doesnt work with any other.fizzy type crappy drink only pepsi max lol not the best for u but stops my dizzys as much. I like to call them swetty sugar rushes lol. Keep it up 😃
This makes me so genuinely distraught that someone could be living in this much pain constantly. I desperately wish things get better for you :(
She passed away on April 1st.
14:20 awww why is no one talking about how cute that tattoo is!! btw you are a blessing love stay strong
I totally understand what you are going through. Over the last year I have been in and out of dr appointments, given medication, in and out of hospital with left sided abdominal pain, vomiting, feeling like my stomach has gone through a meat grinder, I cant eat much without being nauseous, I take days off work for the pain to reduce to be able to anything.
Your video has helped alot. Thankyou
Such an amazing awareness video! I’m so sorry you have to deal with this on such a regular basis. Thankyou for sharing your experiences and for spreading awareness of this!
One thing I've found about severe chronic pain and illness is how lonely it is. At least for me. When you can't escape it and no one can help you and everyone is going on with their normal life around you it makes me feel so alone. My chronic pain and illness started as an adult and worsened after having a child which means I'm a caretaker of a child and there's no one to take care of me. It might have been easier in some ways to deal with this kind of thing when I was younger but I don't know. I wonder if sharing helps you in those moments. I hope it does bc it sounds like a nightmare. I can never decide which is worse, migraines or severe nausea (although a migraine with nausea is def the worst.) Fortunately for me the acute severe pain only happens occasionally and I've had some ability to recover and it's been a year since my last severe acute state. I have so much sympathy for ppl who suffer everyday. It takes such strength to keep going. And having to live with an ng tube sounds horrible. I've had a few ng tubes and they were torture everytime. I'd rather have needles stuck in me repeatedly.
Hi Zoey, I too appreciated this post...
She is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain...
Zoey, prayers going up for you...
Please, watch a few of these videos, they are very encouraging!
And comforting....It gives us Hope!
So sorry for your pain, You are NOT alone, DO NOT GIVE UP, PLEASE!
The Kingdom..
www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9
What did God Create The Earth....
tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO
Sick ones, that have endured
tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO
..........
"Does God Have a Name"
www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1
Psalms 83 18
I agree! In August 2016, I started getting sick. For the past year I've been in and out of hospitals missing out on so much at my high school. I finally got diagnosed with Gastroparesis a couple months ago but I'm always cooped up at home or the hospital, my best friends never visit me anymore and are all moving on with their lives while I'm here all alone and stuck. I have surgery with balloon dilation and botox in less than 2 weeks and that surgery alone is in a whole different state than what I live in.
Zoey Zoey-Zoey
I'm so sorry sweety,just know your not alone
I definitely agree. I have celiac diease and IBD as well as chronic pain and i tottaly agree
How ironic is it that my name is Zoey too and I also have a chronic illness.
Gotta stick together 💪🏻
Girl, I thank GOD for people like you. You really help me to appreciate life more and I hope and pray you don't have to deal with this sickness much longer. Stay strong you beautiful thing! I pray The LORD eases your pains and everything else you deal with!
My nearly 4 year old daughter is currently being tested for this. It's such a frightening time for us and Dr's aren't being clear with what it is, so thank you so much for taking the time to go into this condition in depth. Love and light to you and thank you again x
I was just diagnosed in April after years of pain and issues. I didn’t/don’t know anything about it and I’m still waiting to be seen by GI. Gotta love the VA
I could see how exhausted you were, I’m so sorry you have to go through this. I wish there was a 100% cure. ❤️ prayers for you!
We have all the same illnesses. I used to vlog about a different illness of mine but became too ill. I'm hoping to start making them again.
Love your videos! :)
Love how all if the comments are positive. You are amazing.
Rest in Peace Amy. Going to miss your videos so much. I don't have a Chronic Illness like Gastroparesis but still I enjoyed your videos. RIP 🙏 And condolences to the Family and Friends.
Oh man. You are really strong to come on TH-cam and tell your story helping others w your same condition. I pray that this condition doesn’t limit any of your happiness, success or peace in life
Hey girl don’t feel bad your so strong I also had a feeding pump in my belly for 15 years I have short bowl syndrome and I finally learned how to eat and keep my weight up enough to finally get it removed , I feel for you I also had the nose feeding tube when I would get hospitalized for months at a time I spent years in the hospital, your such a strong girl for going through all this that is a tough road to walk every day you are brave and strong just keep hope and keep pushing through ☺️I’m also in the hospital now I been here 4 days I’ve been having stomach problems and throwing up every time I eat so after months of going to hospital to hospital I finally came across a doctor who finally found out what was wrong with me and i have to get gallbladder removed so I get surgery soon for that also I get released from the hospital tomorrow afternoon and I can’t wait I miss my dogs 🐕 so much and I have an appointment to get the surgery done soon yay finally after loosing 30 pounds in 3 weeks I’m only 4ft 5inch and I use to weigh 98 pounds and dropped to 65 in 3 weeks im really tiny and I’m 29 years old but everyone says I look 8 years old, I hope 🤞 you the best just hang in there girls are super strong 💪 take care ☺️
Omg I had never heard of this disease, thank you for being so brave. My heart goes out to you, it looks so difficult to deal with, I hope you get some relief and find more effective treatments soon. Hugs to you from Australia, your so lovely and real and caring and compassionate. You're also a beautiful young woman. 💗
Amy you're so brave! You're so strong it's unreal! You go through so much but you always come out fighting & always cracking a smile for your viewers, I'll always keep supporting you!😁x
ItsEthanHull omg! This comment thank you so so much Ethan! 💕💕
Amy Lee Fisher no worries😄xxx
I'm 17 years old and was just diagnosed with gastroparesis. Your videos have really helped me cope with my diagnosis!
I was diagnosed with this five years ago. I am 37 now, and I started being sick every morning when I was 9. The nausea would subside later in the day back then, and it took many years and many tests to figure out what I had. It was heartbreaking every time I went to the doctor, and they told me everything looked fine, because I knew something was wrong. I spend every day of my life too nauseous and weak to be able to go anywhere, or do anything. Nausea medication doesn’t help at all. The only thing that has ever given any relief is pain medication, but doctors do not want to prescribe them because they slow motility. It is so hard having an invisible chronic illness. This disease has stripped me of any quality of life, as I wake up sick everyday, never feeling well enough to go anywhere. The pain we experience everyday is more than anyone should have to handle, but we keep going. You are strong, even when you feel weak because you continue to fight.
I think people take most things for granted and don’t think about what people have to go through like yourself every single day.And watching this has opened my eyes to how lucky I am.Thank you for sharing your story with me....your truly an inspiration! 🥰
Thank you for adding a warning for vomit because I have Emetophobia. I am going to be tested for this soon so I wanted to see what others where experiencing.
CrystalForest ASMR tested for a phobia? May I ask wat the point would be ?
I am having issues... I was stabbed three years ago and I’ve had ten surgeries on my stomach. My bowels have completely quit working, I cannot shit on my own. I go 4-6 weeks in between bowel movements. I’ve lost seventy pounds in a year, I barely eat. I’m always nauseous and miserable and it gets worse daily. I feel for you... I miss food and normalcy too.
That is horrible, I'm so sorry! I hope you're doing okay!
I hope you're okay!
But who the hell stabbed you?!
❤🧡💛💚💙💜
(That were healing hearts :3)
@@super.radioactivity_ a man who also raped a little boy and stabbed two other women
How do you get help with bowel movements?
My bowel movements are damaged due to EDS, I was told my muscles don't do the job properly, but I don't know what can be done.
Sounds like you're not getting support but I thought I'd ask..
@@katlynmorford1231 I hope he who stabbed you was arrested and punished. I hope you find peace of mind
Please never be nervous about posting about the reality of your condition, I had never heard of this before and you are truly an inspiration and make me realise how lucky some of us are. I honestly don't know how you do it but you should be so proud of yourself everyday, much love girl!
I have gastroparesis also unfortunately. I take Omeprazole. Which will eventually give me kidney failure liver failure. But I can't get off of it. And I follow very strict gastroparesis diet. The only thing that seems to help when I'm having a really bad flare-up. Is laying in a hot shower or sitting. And I have a little heater in my room and I'll nest on the floor with my pot in case I have to vomit. And vomiting is so intense. It could literally go on for a week. And then it's a very painful after. I also get a lot of bloating. But yours looks like alot of pressure! I know how that must hurt OMG I feel for you. I always keep a heating pad around but sometimes the weight of the heating pad is too much. . Thank you very much for helping to get the word out about gastroparesis. Cuz it has been a living hell.
You’re truly incredible! My heart breaks for you. God bless you!
I hate vomiting and now I’m thinking how much of a baby I am compared to you and all the people with this disease. Love from New York! ❤️
Watching this in 2019....been watching you since your McDonald's sent me to hospital video, just watching some of your old videos....you're gorgeous and beautiful inside and out, stay strong ❤️ x
I have been battling GP for 10 years. I am a gainer so no Doctors want to address the GP even though loads of tests and scans confirm it. I am currently fighting for a pacemaker but it doesn't look good. You are so brave to show exactly what this illness looks like. This video is so real, raw and informative ℹ️. Thank you. Be blessed.
Before I came across your videos, I actually thought that nothing can match upto my depression, basically my mental state. But then I just realized that some people's lives are way tougher than mine.... I hope that you keep staying as strong as you are. Most definitely will be praying for you ❤️❤️
Rest in peace Amy, sending you lots of love to where you are resting in peace and pain free finally, my heart goes out to tom and all your friends/family.
I feel ur pain. I thought I was dieing before I was diagnosed. Over a year and a half of misdiagnosis after misdiagnosis. Multiple jobs lost sleepless nights chronic pain every day of my life. Relationships don't last because I'm always sick and people don't understand. I lost over 25% of my body weight people I haven't seen in a long time think I'm on drugs. My feelings get hurt all the time I don't get invited to things anymore I know I shouldn't care but I'm only 26. I was in the Military so I'm not weak mentally or physically. G.P has stripped me of financial freedom a social life and mental stability. I cry all the time everyday if I'm not feeling sorry for myself I have uncontrollable anger lashing out at everyone because no one understands I want to be normal. My G. I doctor said that if I keep losing weight then I have to get a feeding tube. Yesterday I seen him so I put ankle weights on and as much clothes as possible without looking out of the ordinary and still I lost weight. A lack of nutrition has started to destroy my body my hair is starting to fall out and is getting lighter. Holes in my teeth and finger nails my skin is horrible I'm on 11 different meds over 25 pills a day things are only getting worse I'm scared and feel alone I just want to be 'normal' my moms tells me a feeding tube will make my quality of life a lot better. I have shitty insurance that's making things difficult. I watch your videos and see I'm not alone. I can't thank you enough for putting up your most vulnerable moments sharing your struggles. I draw strength from you. Your videos and videos of others with G.P help me get through the really bad days when I feel hopeless and lost. Thank you for sharing your story. It really helped me today. I have extreme anxiety and get really sad when I don't feel good I want it all to go away. Seeing your struggles with G.P is helping me more than you can imagine. Seeing you stay positive and keep going on with life is inspiring. Thank you so much. I hope you have a wonderful new year filled with love happiness and support. G.P isn't defining you so I won't let it define me either. Take care and Thank you again
Dont feel disgusting for vomiting or bleeding. I found that the video was perfectly fine. You are such a strong woman.
Everyone going through a chronic illness is so strong and brave. I pray for all of you. I pray that you stay healthy and that your good days out number your bad ones. I pray that one day you can be healed.
I have the biggest fear of vomiting! I can't imagine how awful this is
You are so strong Amy ❤️
She passed on April 1st 💔
@@skylaedwards2610 yea saw her little video before she passed, I'm heartbroken! She was a beautiful lady inside & out
RIP Amy ❤️❤️ Xx