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- เผยแพร่เมื่อ 25 ก.ย. 2022
- A Canadian family is travelling the world before their children go blind.
When three of Edith and Sébastian’s four children were diagnosed with a genetic disease that will eventually leave them blind, they decided to give their children as many visual memories as they could - and see the world.
Retinitis pigmentosa is a condition that people are born with and carriers of the gene often do not show signs or symptoms.
The family is six months into their year-long trip and have so far travelled to Namibia, Zambia, Tanzania, Turkey, Mongolia and Indonesia.
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"I'm going to not show her a book, I'm going to take her to see real elephants and giraffes."
Wow. What great parents. Respect to them
reality you need the money also. So the children are fortunate it was destined for them. Other children and adults will suffice with the environment around them and relationships .
Even so I hope they are creating wonderful memories together
@@luluah1198 thats a dark relization.
@@luluah1198 Exactly. How many parents would be able to go on a one year around the world tour for six people? The amount of money needed for that is astronomical, considering they are not working for a full year. They must have had a lot of savings.
Still, I don't envy the situation. I can't imagine how hard it must be thinking about the future of your three dear children. Not only their life will be so much harder, but the parents will have to figure out the help for them for the rest of their lives.
What a good comment section and thread to come across after witnessing so many goofy comment sections today.
@@pativi6643 actually it’s like 10 buckaroos
My husband was told as a child as well that he was going to go blind. He is 70 now and can still see. He has some blind spots and cannot read books easily anymore but it doesn’t affects his life much. When we first met he would look at me all the time because he didn’t want to forget any detail later on how I look. By all statistics he should have been blind long time ago. As he likes to say, everything is of a person.
“Everything is of a person” couldn’t agree more. Very wise
So glad to read this!
Hopefully these children get to experience many beautiful years like your husband is
What does "Everything is of person" mean?
Because you're looking at statistical anomaly.
@@Enthalpy-- no , faith and determination is greater than your cynical “statistics”
My brother in law was diagnosed with retinitis pigmentosa at the age of 17 and told he would go blind before the age of 30, but thank God he is 58 now and can still see. He has lost some peripheral vision but he can still see quite clearly otherwise and even reads books well. I pray that this will be true for your beautiful precious kids as well.
So whats the role of so called “God” here?
@@aliokms anything is possible for God if we believe in him even the doctor failed to heal us. May the almighty God be with you.. 🙏🙏
@@aphulunyekha5918 why is us believing in him a required condition. If he truly loves us he would do it whether we believed in him or not… gave a fuck about him or not
@@vintagescvrlet That isn't God. That's a misdiagnosis from the doctor. Simple as that. Doctors aren't always right.
@@vintagescvrlet : any thing good happens in this world credit goes to god. What about the bad which happened? So did this condition start because of GoD ? When people died due to Covid no God in the world saved them . They just died all the God’s of the world were just spectators.
1:39 "I don't want them to see what is happening to them as a curse or something terrible, but I want them to see that this is their path in life and they have great challenge but they have the tools to face those challenges." Well said, Mommy! ❤❤
hehe get it? see?
@@noahchoi1213 NO
@@noahchoi1213ok, stvpid
@@noahchoi1213 Wrong time, mr funny man.
Respect for these parents honestly couldn’t imagine having to go through that, my prayers go to them 🙏
What about the kids lol
@@dogewoge6580 LOL checkmate
Mignon les petits annençais.
J'espère qu'ils se porteront bien.
How though
@@dogewoge6580 i was talking about the parents in this case but i do obviously feel so bad for the kids having to have that but i just wanted to say what great parent’s they were im not tryna sound rude of anything
These great kids have seen more of the world than most people. This family is a blessing.
its sad but they bit stupid for making the kids see beautiful scenery, its only going to make the kids feel worse after losing their eyesight
@@lezty It's a double-edged sword I think, in the one hand there will be much more to miss. In the other hand, if for example they want to become writers, their visual memories could serve them for a lifetime.
@@lezty Yeah, idk what's worse. Missing what you once were able to experience, or having those beautiful memories and that's it.
@@lezty nah I'd thank my parents for taking me everywhere before i lost my eyesight. They'll feel bad sure but i don't think worst.
@@jaydope4823 id shoot my parent
its amazing just how much parents do for their kids
@@casper6014 right? Treating them right is the bare minimum
@@UnknownUnknown-wm2tzright
not all parents tho
@Alex bruv are you retarded ? They are rich not Einstein the fuck is wrong with you
@Alex I don’t think its possible
My mother has RP, and I would just like to take a moment to thank her for the best childhood and the happiest days of my life. She created the safest environment for us to grow up in. We never needed or felt like we are missing something. Our household knew what is it to love your siblings. To take care of one another. To respect one another. I’m 28 and my family is the most precious thing in my life and I would gladly give my life for my brother or one of my sisters. I knew what it’s like to have a best friend from a very young age. In my case, I had 2 sisters and 1 brother as the closest people to my heart. My mother did all that without her eyesight. Today, she is the happiest woman alive. Always telling us how proud she is of how we turned out. She tells us that we are her eyes and that she sees the world through us. Not a day goes by where we don’t kiss her hand and forehead. She was, still is, and forever will be treated like the queen of our lives. May God grant her health and long life to see us reach the highest of social places. To see us raise our children the way she raised us. I love you, mom. No matter how long we live, we will never be able to repay you for all the things you did for us.
We thank God for her life
so lovely to hear .. I always wondered what it’s like to have a mother that cared . mine left me to live on a new country . your story is so touching
This is so beautiful
This brought tears to my eyes. God bless your mom and your family.
This made me tear up. How lovely. How precious all of you are. I hope y'all stay happy and safe always.
Sweet children. The parents are wise, accepting their kids' realities and preparing them to have good lives.
The parents are not afraid to see what IS, and deal with it!
the parents knew they had a genetic predisposition that could be passed down to their children. that didn't stop them from having (four) kids just to prolong their faulty gene and keep the bloodline going
@@LiquidSnakeSSJ4 So, you claim to know the minds of the parents. You have documentation that proves that the parents wanted to "prolong their faulty gene," don't you?
And, exactly how does one "prolong a gene," faulty or otherwise?
Waiting for your response with bated breath.
@@LiquidSnakeSSJ4As mentioned in the description, many carriers have no idea they carry the gene, due to a lack of signs and symptoms.
@@LiquidSnakeSSJ4 Those are Faulty genes in Eyes, How on earth are they ment to know that
These parents are far from wise. Purposely having defective kids is not a wise thing to do.
Life is not a problem to be solved, but a reality to be experienced. 🙏
So sad
There will always be that 1% of the people who will defy that
But i am sure you would not want to experience some peoples' realities. More than anything life is not fair.
@ellen Bugger off...
DUNE 😏
I’m glad that the parent have the ability to support their kids and make real memories with them instead of just worrying about their condition and make the kids life stressful
This is a really great way to deal with such a situation may God bless them
@@user-kl9dd7xo2q ofc ,they have to take them to doctors and try their best, even if their disease has no cure they still have to check them and stuff. I’m just saying that they are not stressing the kids about it, instead they’re positively dealing with it :)
Yeah parents stressing is so annoying. Stressed parents make it all about their worries instead of about the wellbeing of their kids.
A huge respect for their parents for doing their best to make their kids see everything they could.
The children are so blessed their parents can afford to do this! What a great thing their parents are doing for them.
Honestly they will never forget this journey!!!
I’m a teacher of students with visual impairments/blindness and this is the sweetest thing I’ve seen 😍. I’ve worked with a lot of kids with RP and the experiences their parents are giving them will be invaluable as they continue losing their vision. ❤❤❤
Try to suggest acupuncture and homeopathic and Ayurvedic treatment it will help
@@Bob-sn2xr I believe in natural remedies, but sometimes there's no stopping a degenerative disease. I hope you also believe in SCIENCE, and you aren't just a blind bullshit woo-woo follower.
@@Bob-sn2xr It's a genetic condition, no it won't.
@@jessmc6243 prayer can help and medical research will evolve. Be optimistic
@@jessmc6243 yes it will
Scientists will find a way
The mom has an amazing, positive outlook. I have always believed that whatever happens, it happens to make sure we become the best we can be, to steer us onto the path that leads to an extraordinary life. I had a brain tumor 26 years ago and it gave me strength and resilience I didn’t know I had. As Gandalf told Frodo, all we have to decide is what to do with the time that is given to us. ♥️
These kids are so precious. I just wanna hug them. I hope one day technology will be able to cure blindness.
The love & support of the parents is incredible.
And the income as well lol
@John Edwards bro what? 💀
@@Unknown-kl9mm First Child: Born and was diagnosed to be blind
Parents: Let’s have another one
Third child: born and was diagnosed to be blind
Parents: Gambling is fun
Fourth child: Born and was diagnosed to be blind
@@idontcare6505 🤨🤨
@@idontcare6505 you have no clue when the kids were diagnosed, meaning that they were very likely diagnosed when they were over a certain age, so they wouldn’t have known until they’d already been pregnant and having the next kid. They’re close in age. Also, it doesn’t matter either way because they’re allowed to have children. Blind is not a death sentence. They’re experiencing a life they might not have been able to experience if they never received these diagnoses as well, a beautiful life full of culture and traveling that a lot of people would only hope to experience. Educate yourself and learn some compassion before making ignorant and stupid comments
Wonderful core memories that these kids will have for a lifetime. It’s good that there parents are fortunate to give them this experience.
My deepest respect and prayers go to this family. I hope and pray our scientists/doctors discover a cure for retinitis pigmentosa.
That seriously just shows how much these parents love their children. Wow.
Y’all are an Amazing family!
Why did keep having children after the first was diagnosed?
@@miamitten1123 they don't know and mind your business
Instant tears rolling down my cheeks. Be grateful for what you have. 😔❤️
Aydan this canadian family wouldn't want anyone to cry. they are living their best lives and making their kids comfortable.
It's grateful btw.
as a parent myself, it breaks my heart for counting down on our kids condition to get worse. my pray and thought went to you and your family. i pray that you and your family all the best.
Such a devastating diagnosis, but such an absolutely wonderful story, as I look at it much differently. Those are two of the most loving parents I’ve ever seen on the Internet, to drop everything for an entire year just to give their children a visual memory for them to hold onto their entire life long even after they lose their vision. They’re getting the chance to do and see more things than most of us that are not visually impaired will ever get to do & see in our life time. It must have taken enormous sacrifice for both of the parents emotionally, physically, psychologically, and financially, to be able to give their children this absolutely wonderful gift. Sadly, not many families could afford to do something like this, but in a situation like this, You absolutely have to do everything that you can to make it work, because when it comes to your children, admit it, you would literally do almost anything for them. If that were my son, and if it was a possibility, I would give him both of my eyes if it meant preventing him from going completely blind. I’m sorry if I’m offending the visually impaired community, I don’t mean any offense, but for a young child who was born being able to see everything, I can only imagine what it would be like when they completely lose their vision. The memory of all those places, people, and cultures they got to explore and see, I think will bring them a lot of comfort, knowing that their parents did everything they could to let them see the entire world while they could. I actually have several friends that are visually impaired, some partially, others completely blind, but all live perfectly normal lives, working full-time jobs, raising children, however they have all told me the same thing, that they would give almost anything to have their sight back. One of my friends has three young children, having lost her vision in high school, after a very clumsy teacher accidentally left a beaker of sulphuric acid with no lid, right next to her desk. She got up quickly, accidentally knocked over the container that should have been properly stored under a fume hood, and had sulphuric acid splashed in both eyes, blinding her instantly and permanently, not to mention disfiguring her face. She has told me so many times that if she had only one wish, it would be the ability to actually see her own children’s faces. She doesn’t talk about it often, because it’s too painful, but whenever she does, I think I cry more than she does, because it just breaks my heart. She’ll be the first want to tell you she has a lot to be grateful for, having a wonderful husband and three beautiful children with a very loving and supportive family, and though she has adapted to life without vision, I can easily understand why she says that. What parents would not want to see what their own children look like?. She interprets others by touching them, she can identify anyone just by touching their face. She’s got one wicked sense of humor, she never calls me by my name, to her I am “ski ramp”, referring to my nose which sticks out rather predominately. Funny enough I never thought about it before until I met her, and now that’s all I can think about. So I made her a deal, I promised her if I can find a doctor to give her Back her vision, she has to pay for the plastic surgeon for me to have a nose job! I’m not making light of the situation, but you see, I too am disabled, and have faced some pretty horrific things, so I look at these type of things with a lot of dark humour, just because it’s much easier to deal with as opposed to being filled with self pity and crying “why me?” all the time. Life can really stink, and can be so cruel and so unfair. Yet for those of us who have faced it, there’s always a silver lining that most of the people can’t see, pardon the pun. Most of us just take everything for granted, we never think about it because it’s always there, but once it’s gone, it’s only then that we realize just how lucky we truly were, and we’re forced to reassess everything in our lives, and you’d be amazed at just how many things we are so lucky to have that we just take for granted and never take into consideration. This is a beautiful video, of a beautiful family, facing some pretty horrible futures, at least healthwise, but, and not to sound coldhearted, I am not going to show pity, because for me personally, pity is so condescending, pity implies something is over, something will never ever happen again, something that puts limitations on us, but I don’t look at it that way, because even when we lose something like that, the human spirit is indomitable, and it’s absolutely remarkable how we find ways around our problems to do the things we always wanted to do. It’s not a death sentence, even though it might seem like it at first, I look at it like a test of character, a test that I probably failed quite a few times until I got it right. Granted I still have my vision, but you’re speaking to somebody who’s dying, there’s no sugarcoating it. We’re all dying in a sense, i’m just doing it a lot quicker than most others. Started off with severe Crohn’s disease at 20, my large intestine ruptured at 21, I died for three minutes, they open me up and saw cancer growing on the outside of my shattered large intestine, and over the following three decades I had 37 surgeries removing 95% of my entire G.I. tract, and developed nine further chronic illnesses, secondary to all the treatments, chemotherapy and radiation, because the cancer came back four more times. But just a few weeks ago I discovered because I have no intestines left, my body is shutting down one organ at a time. Right now my kidneys are dying, actually, they’re pretty much dead already, and it’s begun a chain reaction because our entire system depends on all the other systems within our body. I’m in desperate need of a liver transplant, depend on dialysis and something called TPN, which in layman‘s terms is basically intervenous nutrition 12 hour infusions a day, every day, for the rest of my life. My gallbladder has to be removed, my lungs are shutting down, basically my whole body is beginning to fail. I just discovered all this a couple weeks ago, but the reason I’m not freaking out is because I knew it was gonna happen eventually, I just didn’t know when. Now that I know, I think I’ll do what the people in this video did, because the clock is ticking, I wish I could slow it down but I can’t, and there’s no doctor on earth who can stop it from happening….but please, DO NOT pity me! I’ve had a lot of problems, but everyone has problems, nobody’s life is perfect. I’ve probably had a lot more problems than most, but I have also had far more adventures than most. I can remember being a young gay teenager terrified my life was over if my parents found out, thinking I’d never find happiness. There was no Internet then, so I answered an ad in the personals column of the Toronto sun newspaper for a matchmaking service, and I met my husband 10 days after I turn 20, who was a newly arrived refugees from El Salvador. I’ve been to his country 10 times now, we’ve travelled all over the world, raised a family, I Learned to fly a plane, got my license to drive an 18 wheeler, a cruise ship, a train….. all the things I wanted to do as a little boy, because I knew my time was going to be limited long before the doctors even told me, so when I wasn’t in the hospital, I took advantage of every second I could, and when I finally do die sometime before the end of next year, I only want one word on my epitaph, “HAPPY!” . Life is what we make it, no matter what it throws at you, make it the best one that you possibly can because there are no second chances. Please remember that, just enjoy life, and know that there will be bumps along the way, but the rewards Far outweigh any losses, I promise you. This is the first time I’ve told anybody the truth, because I just found out a few weeks ago, and it feels great being able to share it, thanks for listening, let’s pray for the children in this video, because they are our future, Let’s encourage them so they know there’s nothing they won’t be able to do! Many thanks, and much love from Toronto xoxo
Thank you for sharing. I’ll remember your story from now on, especially when I feel defeated. Bless you.
Thank you for sharing! Thank you for inspiring!
Thank you for sharing your story! Much blessings to you, may the next few months be filled with so much joy for you 💕💕
@@miraisilva5507 thank you! So far so good, I’ve already started traveling, it’s a bit difficult because of Covid, and because of my health, but I’m getting pretty good at finding ways around it, but I’ve discovered something. The happier I am, the slower my sickness advances, and according to my doctors, there’s scientific proof to back up that fact, that if you maintain a positive attitude, try to resist all stress, it allows your body to fight harder, because by this point at least three of my internal organs should have completely stopped working, but by some miracle, they are all still functioning. I know that nothing will stop the progress of its deterioration, but if I can at least slow it down, then I consider myself the luckiest man in the world, so I’m trying to keep as happy as I can, I don’t sweat the little things in life, and I just try to be as grateful as I can for the good things that I have, and despite everything, I do have a lot to be thankful for. If wealth and success was measured by the amount of people who love you and that you love in return, I would be one of the wealthiest luckiest people on this planet. A little bit of love goes a very long way, trust me on that. Again thank you so much for your kind reply, sending you love right back! ❤️❤️❤️
Thank you so much…sending light, love and positivity ❤️❤️❤️❤️
This is such a lovely story. Probably the saddest but also the coolest. God bless them. 🙏
"God bless them"? What rubbish. If there was a "God" that blessed, these children would not eventually lose their sight and there wouldn't be such misery around the World for so many children. All you "God" praisers need to wake up and live in the real World. How many of the millions of prayers the deluded faithful of so many creeds offer up actually bring a real result? None and yet so many have deluded themselves for thousands of years.
God is the one making them go blind 💀
Definitely not the saddest. I mean idk how anyone could think that with everything else going on in the world.
These Kids are blessed to have the parents that they have. And I feel fortunate to have come across their story.
@@grotty9850 God doesnt cause disease and if he ever did likely it was so they don't have to SEE the atrocities that men cause that lead to suffering, disease, and death and live a harmonious life connected internally with the Lord. Better to be actually blind than spiritually blind.
But really, disease is a contributed by sin which isn't of God but of humans.
God bless 🙌
@@grotty9850 Way to ruin a post that had good intentions.
Tragic and wholesome at the same time. I don't even know them and I shed a tear. Parents of the year? More like the century
I mean, they knew there was a good chance their children would go blind and had them anyway. Is that parent of the year?
@@randomuploadsism ikr, these would be most selfish parents out of all other parents (who also had kids for selfish reasons)
@@randomuploadsism read desc
@@cbazxy2697 read desc
@@ZYZZ_WHEY okay, i read that it shows no sign or symptoms and so what?
Main reason why someone suffers from a crime, disability, any condition or disease is because they were put in that situation first place by that i mean giving birth.
People do try to fight their procreation instinct and give some thought, they just do it like throwing a dice
Respect to these wonderful parents for going above and beyond for their kids, and all the best to these kids!
Totally agree! If you loved this video you might like our channel.
My dad has RP (and I’m a carrier of the gene). My dad did the same thing in his 20s, before he was blind in his 30s. He’s amazing and does so much despite his blindness. His two brothers also have RP. You are giving your children’s some awesome experiences to remember for a lifetime!
They are blessed to be able to do this for them. I hope medical,science finds a cure to save sight for them and they still keep these memories ❤
It's very likely stem cell research would have fixed this if Bush hadn't outlawed it in the early 2000s. You can't prevent programmed cell death, but with your own stem cells you can regenerate new ones that won't be rejected.
Having done some reading about this disease (and having seen the TH-cam channel of Molly Burke, who has this condition but mostly does videos about topics that apply to most or all blind people, regardless of the cause of their blindness), I expect that research will go something like this:
1) Researchers will continue working on the possibility of using an engineered virus to replace one or more genes in the nucleus of every cell throughout a person's body--a potential cure for most or all genetic disease. (This research has already begun.)
2) Due to the risks associated with these techniques, especially when they are still new and experimental, they will first be used in attempts to treat fatal genetic diseases, where the answer to "What if we do nothing?" is little or no worse than the risk of doing _something._ My prediction is that in general, the more quickly-fatal a genetic disease is, the better candidate it will be for early clinical research on human patients.
3) *If* this or a similar technique for gene replacement makes it to the clinical stage, and *if* it proves over time not to have a serious risk of debilitating or fatal adverse events, then it will be a _massive_ boon to global health, since it will be applicable to--as I said before--most or all genetic diseases. A few people get will their well-deserved Nobel Prizes, and a slew of rare diseases with long names ranging from retinitis pigmentosa to fibrodysplasia ossificans progressiva will become curable, at least if caught early. As for the prospect of treatment for people who have had a genetic disease for awhile (whether because it was not caught early or because they'd had it for years before the treatment became available), that will depend on the disease and probably on the person as well, and I can't hazard a guess what it would look like for an adult with RP.
This lady has so much courage. May she and her family be blessed.
Both of my nephews have this. The odd thing is that it affects both of them differently, so It's really hard to say when exactly they'll lose their vision. The oldest seems to have more difficulty seeing color, and the youngest seems to have more difficulty overall but it's worst in low light conditions.
You are very brave and good parents. I send my blessing to your kids and your family.
Why life has to be so unfair to children? Surely no child deserves this or any other illness.
Wish these beautiful children and their brave parents lots of courage and resilience as they said.
Children are not a separate species from "people". I wish nobody to have a disease like this regardless of age. They will be suffering mostly throughout their adult years.
blame the parents. these parents knew they had a genetic predisposition that could be passed down to their children, and yet they still went ahead and had FOUR kids. blame the parents for selfishly wanting to preserve their flawed genetics.
i knew someone personally who had a genetic condition and their first son was born with a severe case of cerebral palsy. she was told by the doctor that it's not recommended to have a second child because the chances of the second one inheriting the flawed gene is extremely high, and then what does she do.. she has another child, and this one not only has an even worse case of cerebral palsy than his older brother, but he's also on the autism spectrum. now these two brothers will have to endure the cold harsh reality of this world we live in, and i'm speaking as someone who has a mild case of cerebral palsy, myself. this world is still 'survival of the fittest' and always will be
God says if we don’t see signs of God, The Creator- we are like blind, human is conceptual thinker in universe, it’s amazing & mind has enormous capacity- Hope well ‘isotine’ eyedrops can be used as ‘eye tonic’
What children deserve is to not be born into an experience full of pain and suffering
@@LiquidSnakeSSJ4 They didn’t know. They had all 4 of their children before their eldest was diagnosed with it. Do some research before accusing parents who clearly love their children very much. They have enough to deal with without horrible people like you commenting on a situation which you clearly know nothing about.
This is a tragedy, but it is also a wonderful example of the strength and creativity people find in these moments. It is fortunate we still have people who wish to tell these stories.
I feel sad for the kids who are too young that they probably won’t remember most if any of the trips. Hopefully they are able to go again when they are older
Their brains will subconsciously remember, even if consciously they don't
@@BIGFREAKYMANof course they are, stvpid
we travel the world with our kids, and they remember most of our travels
Losing eyesight will make their brain to remember ONLY these visual memories, as they will not store anymore visual memories in the future
I read that they will likely not go completely blind, but have a very thin sliver of sight in possibly one or both eyes. The family is taking lots of photos and videos for this reason.
Beautiful 🥰. I love what the parents are doing for them. The memories will stick with them forever as long as they are on this beautiful world. That's love. Pure love from their parents. Oh, what a joy! God bless all of them 🙏🙌.
If you loved this video, our channel might be worth a watch! My wife has about 15 years left of eyesight and we are travelling full time with our 2 kids. 😊🙏🏾
Such wise, wise parents.They will have those memories and experiences for the rest of their lives and this will prepare them to continue to live exceptional experiences even while blind. The comment on resilience is spot on. Wishing you peace, happiness and safety on your travels!
Thats something confusing to me. Is not when they go blind, they will miss those moments more and will want to experience the eyes again more then if they had not travelled at all? The parents are showing them the significance of eyes at peak knowing that they gonna lose them ultimately 😳
@@chillnaan2984 They will be able to continue to do many things, even while blind. They will use their other senses which are just as meaningful such as touch and smelling the scent of the ocean or the rain, bread baking. They’ll still hear the birds singing and the laughter of children. They’ll still be able to feel the warmth of the sun on their faces, the wind in their hair. Most importantly, they’ll still have the love and conversations with family and friends! 😊
@@malloryjines5050 yeah thats true, but in this case there parents are teaching them the significance of one sense which is eyes, which they gonna lose in i think soon. They are becoming aware the power of eyes which they will not have any more. It seem counter acting to what her mother believes. 😐
These children have incredible parents ❤
Lol
I mean the parent's caused this by having them i feel like its the least they can do
at 22, on my first solo backpacking trip, I severely snapped my foot from a motorcycle accident and was told I'm lucky to be alive let alone have a functioning foot. I was told I would get arthritis very early so decided to travel the world as much as I can and have since then solo traveled to 117+ countries. these kids are special to have such parents to show them more than some people will ever see in their lifetimes
How is your health now?
Amazing family. I pray your strength and resilience helps you beat this illness. Whatever the outcome your kids will have done more now than a lot of people do in their lifetime Nothing will bring them down ...what an inspiration.
That's so amazing that such a blessing that the parents were able to give their children these experiences. I am so sorry for the children, but I hope these experiences make the loss a little less heartbreaking
I have pair of eyes and I never been to 6 continents . They've seen the world and everything. Kudos to their parents! That's love and positivity!
* 6 countries but yes, 6 continents would be a bit more impressive
This is amazing. Their kids will forever think back on these great times they had with their mom who was involved in every single one of their greatest moments.
my dad has rp and despite the diagnosis, he is the greatest father and gave me the best childhood i could ever ask for.
I’m glad for you,being disabled doesn’t make you less of a person
@Alex whaaat?
You might have rp too. It is genetic
When they listed their favourite things... they're so precious. Their parents are brilliant, if they do become blind those memories and views will stay with them and they will have plenty of stories to tell. All the best to this beautiful family
Amazing parents raising amazing children. Blessings to you all 🕊
Lynda, huge privilege to be able to travel like this.
@@PHlophe indeed it is 😊
What beautiful parents ... may prayers be over them. They are all so strong indeed.
No words can describe these parents' love for their children. Mommy Edith and Daddy Sébastian, you have my respect.
Awww! Precious family! Mom and Dad are so thoughtful to give their children all of these visual memories.
Some parents abuse and torture their kids. They don't deserve to be parents. But than parents like in this video exist. They are real hero's in my eyes 🤍 wish the best for the kids
Heroes with no capes
You are the best parents for these children. I learned so much from you. I realized that I shouldn’t take things for granted. I will try my best to have visual memories so that when I am already unable to walk, see, hear or talk I have wonderful memories to go back to. I am 54 and I have a degenerative spine disease that’s making life difficult but after watching your video I am renewed.
Absolutely AMAZING, but heartbreaking story.... You can NEVER take their memories!!!! What a beautiful family. God Bless All of You! 🙏
Beautiful children, what a beautiful little girl. What a beautiful way to let them see and feel the beautiful world we live in. May this horrible disease take much longer than expected to take their eyesight from them. Wishing it never happens. 🙏🏻
I will pray for them. Really an emotional documentary, respect and gratitude for brave parents
What incredible parents! How absolutely heartbreaking! 💔
This is one of the few times that I wish the doctors diagnosing them are dead wrong. That they live a long happy and healthy life ❤
Memories like that become part of a person that nothing can take away. It's a great and important project.
Dementia :
Thats so heartwarming, god bless there family and I hope there children cherish those memories always!
Respect for the parents, every parents want their kids happy❤️
Heartbreaking yet rewarding at the same time.
Their mum is awesome and has the right outlook to life’s event
Takes a heart of steel to know your children are going to lose their vision and do everything you can to give them memories for a lifetime. The strength parents show can move the earth !
What a wonderful gift these parents are giving their children (and themselves).
If they knew they had genetic disease and their offspring have chance of going blind, I think its irresponsible to have 4 kids.
oh I am so glad you said that. That's what I felt like saying. I am visually impaired and I chose not to have children because I didn't want to if there was a chance for my children to have my eye condition. I could understand if you had one child that had it but for children that have it. It's not fair to them.
@Betsy I agree
exactly my thoughts
Huge respect to these parents for their outlook and their courage
I feel so sorry for the parents😔my deepest prayers for you and your family, you have my greatest respect. You're sacrificing so much time and effort for them and that is true and real love. I really can't imagine knowing that you will lose your eyesight down the track. Stay strong guys.
Thank you for making a big sacrifice for your children to see and feel the world before they lost their sight, and for helping them be resilient. They’re so beautiful children. I’m glad they have both of you as their parents because they are in good hands. God bless🙏💐😊❤️
Phenomenal parenting . Well done I wish you all nothing but the best
INCREDIBLE parents! What amazing memories for both these parents and the children ❤❤❤❤
What a gift to give the children. My husband has RP and had a chance to experience the world when he was younger, and it really helped to shape who he is today.
Congratulations to these parents for this experience. I, too, afflicted with this disease. It sucks.
World class parents 🙌🏼
I would've done the same for my children but i am a child myself, so nbd. 🤭
They have no future 😂🤣😂🤣😂
@@SteveXNYC just evil.
@@SteveXNYC They're already a success.
@@SteveXNYC cretin
This is such a horrible thing for these kids. But what about their parents who kept producing more kids even after they knew this is a genetic problem.
It should be illegal now they have to suffer
@@xyeB i agree. I had seen some parents who are dwarf and they keep producing more dwarf kids who can't even walk properly. This is extremely mean they don't even think about their kids now they have to suffer too.
@Alex that why i said it should be illegal because some people are so selfish.
I pray that one day medical science finds a cure for their condition. This is tragic and I couldn't help shedding a tear. No child deserves to lose their vision. Perhaps they will only lose some of it and not all. God bless their parents for their amazing love.
God bless them. What a loving and beautiful gift the parents are giving their children.
This is very inspiring to a lot of people. Don’t wallow in misery but enjoy life as much as you can.
if you know you have something genetic like this that can be passed down to your children, don't have children. it's cruel.
this is lovely. it's also a really lucky thing, as there are plenty of parents and people I'm sure, that can't afford, don't have the money, resources to bring this to their kids or who they love. i want this for every child, every single one going through this, we deserve this beauty in our life, while we're alive, together.
This is what every parent wishes thier children to do...see the world they couldn't see when they were young and gain a new perspective and appreciation on life
Respect to the parents! My prayers go to them!!!! 🙏🏽🙏🏽🙏🏽🙏🏽
@TH-cam Commenter the fact that you took time out of your day to say that comment is embarrassing
@TH-cam Commenter Agreed.
@TH-cam Commenter But, isn't that the only thing we far-away people can do? It's regrettable we cannot do anything else for these kids.
They are so beautiful! The whole family! I am praying that research find a cure for them and God bless them all! So precious.
Praying for this beautiful family. You are wonderful parents.
God bless these people!!! what a gift to give your child.
That’s lovely respect to the parents ❤
Such amazing parents! The children look so resilient. ❤️ May they have good life ahead!
Salute to this family and I pray to god they find a cure. Such adorable kids!
What great parents. I pray that the children have healthy and wonderful lives.
I’m so happy they decided to do this for their children ❤
Incredible parents, hats off to these folks!
Amazing parents and kids. Prayers for them 🙏
This is the best thing they could do! Traveling to give them amazing visual memories to hold on to and not because they think the kids will be unable to travel when they're blind. They have great parents who will make sure they have the confidence to succeed in and enjoy the world.
Families like these give me hope in humanity. God bless those children and their parents!
Salute to the parents.
Love and hugs to the children.
Really great and dedicated parents, sucks that the life puts us in harsh conditons sometimes. Man I hope these kids somehow just miraculously avoid the consequences.
@Greedo That's a myth spreading through these comments. They didn't know. Take it back.
Such amazing, beautiful parents. God bless 🙏 ❤️
This is beautiful, my heart is touched big time!
Heard about this on the radio. Its so sweet, sending prayers to them!💗
This is heartbreaking, I'm loosing my sight too but I'm a older man who has lived his life. These are just kids.
This is really heartbreaking!
So strong and resilient. Prayers to them. 🙏