Beating Burkitt's Lymphoma - Christen's Story - The Nebraska Medical Center
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- เผยแพร่เมื่อ 26 ก.ย. 2024
- Omaha, Neb - Christen Nino De Guzman knew she was sick. The 21-year-old student at the University of Nebraska-Lincoln was sleeping all day and missing class because she felt so tired. She assumed she had the flu.
"I went to a hospital in Lincoln and they told me I was anemic," said Nino De Guzman. "But in the next few weeks, I developed horrible night sweats -- my sheets and clothes would just be soaked."
She soon ended up in an emergency room and was given antibiotics for bronchitis. Unfortunately, she continued to get sicker.
"I finished school for the summer and was back home in Omaha," she said. "My mom took me to a hospital here and they discovered I had tumors throughout my abdomen. But after two weeks of testing, they still didn't have a definitive diagnosis. Meanwhile, my stomach was blowing up like I was seven months pregnant. Doctors thought it was from all the fluids I was getting, but in reality it was the tumors tripling in size."
That's when her mom had Christen transferred to The Nebraska Medical Center. "Immediately, there was a team of doctors around my bed trying to figure out what was wrong," said Nino De Guzman. "Within a day or two, they told me I had a type of non-Hodgkins lymphoma called Burkitt's lymphoma. I remember one of the E.R. doctors telling me they thought it was stage four, but he said 'I think we can cure this.' I would cling to those words for the next four months."
"The kind of lymphoma Christen had accounts for only 1% of adult lymphomas," said Philip Bierman, MD, hematologist/oncologist at The Nebraska Medical Center and one of the physicians who treated Christen. "It requires aggressive chemotherapy, but it can be extremely difficult to diagnose and there are other kinds of lymphoma that can be confused with it."
"Patients like Christen should be treated at a place that has the experience with the chemotherapy that's required for this lymphoma," said Dr. Bierman. "In this part of the country, we probably have the most experience with it."
After several rounds of intense and complex chemotherapy, Christen was recently declared cancer-free. She just returned from a trip to New York City and has big plans for the future.
"I feel so thankful to live so close to the number one hospital in the world for treating my kind of lymphoma," said Nino De Guzman. "It's a place where people come from all over the world to get treated. This will definitely be a special Thanksgiving for my family and me."
For more information about lifesaving lymphoma treatment call 1-800-922-0000.
My son survived burkitts lymphoma. God bless you.
My brother passed from Burkitts on January 1, 1980. Thank God the treatments have improved in 41 years. So happy for you.
Oh no 🤦♀️ May he Rest In Peace!
I am 34 years old and cleared stage 4 Burkitt's lymphoma and leukemia last year. Unfortunately I am now dealing with side effects and granulomatous disorders of the lymphatic system and possible autoimmune disorders from the cancer and treatment. Trying to stay strong. It is such an inspiration for me to here others have beaten it.
I hope you will beat this for good Lee. Sorry to hear you went through so much pain. Prayers going up.
i wish you well, keep on fighting!
Hey, how are you now? I hope everything is good now
My husband just finish his treatment
The survival rate very very good of this type cancer!!
I pray for him
Best of luck!
How is he doing now?
i realize I am quite off topic but does anybody know of a good place to watch newly released tv shows online ?
I went thru CLL treatment in 2009. In 2021 my cancer came back much worse. I had CLL and Burkitt's. I was in palliative care waiting to die when I was finally diagnosed and moved from palliative care to a cancer clinic for treatment. I was at stage 4. I did 4 rounds of intense chemo, almost died twice, but pulled thru and in remission now. I am also dealing with some side effects from treatment but I am vertical, alive and still kicking.
Sending you love. You are incredible.
I was 14 years old when iwas diagnosed with sporadic burkitts lymphoma, the year was 1992 i was just going into the 8th grade and playing volleyball very athletic. I was given an 80% chance of survival rate did a year of chemotherapy went into remission but after the year of treatment i relapsed in the central nervous system😢 my eyes went crossed and the right side of my face went paralyzed. They told me at the age of 15 i was going to have a very slim chance now i was given a 5% chance of beating the cancer i had a stem cell transplant full body radiation i beat the cancer with a god given miracle❤ my face and eyes went back to normal. I am happy to be alive but suffer many bad side effects from all the major two years of treatment , cant have children,wear hearing aids have osteo necrosis from the prednisone plus a major stroke. But i am alive and 44 years old and jesus keeps me pain free and healthy as a horse doctors are amazed how healthy i am after what i have been through . God bless everyone who has battled any type of cancer doesnt seem to matter how healthy we are to get it . P.s because i was at such a bad stage doctors said i was cured shen i remained cancer free for 2 years . And its been 29 years cancer free long story made short love❤❤❤❤❤❤❤ again giod bless you all
I love this story. I am a native Nebraskan and UNL alumni. I am 50 now and was just diagnosed with NHL, Follicular, B-cell, Indolent, Low grade lymphoma. I am starting treatment this week. Its been terrible waiting for the diagnosis and scheduling of appt, but finally I am starting on Thursday. I pray for a cure outcome and immediate relief from symptoms. Amen to Christen for getting the help you need.
I have Burkitt's lymphoma and my lymphoma has gotten alot smaller with 2 rounds of chemo, 2 years ago I had a stroke and I beat that, now I will beat Burkitt's Lymphoma too. The day after I found out that I had lymphoma I met with the cancer doctor at the VA Hospital, had a bone marrow biopsy and was admitted to the hospital, the 3rd day I had my 1st chemo, and the next 2 days my 2nd and 3rd chemo's.
Too bad everybody can't get top care like this lady
i beat it as well toughest thing i’ve ever been threw.
i have Burkitts right now, getting chemo :)
Ana Jeric
Can you tell me about you now, please?
how are u?
Get well soon Ana. Prayers going up!
Awww...her doctor is so sweet. And he seems to care about what he does and wants to get to the bottom of things! Doctors just aren't like that anymore.....I could imagine getting diagnosed with cancer is devastating. I would definitely feel more at ease with a doctor who is as passionate and easy-going as he seems to be!
Thanks, Cynthia - we have a lot of docs here like that :)
A very close friend of mine was diagnosed with Burkitts yesterday. He travelled from central coast California to San Francisco for treatment. What is the survival rate? He is in stage 4. I pray that he is in good hands.
With proper treatment, Burkitt's is very survivable. Even though it is one of the most aggressive kinds of cancer, that ironically makes it one of the most treatable with the proper drug regimen.
what the proper regimen of burkitt lymphoma
@@parmindersinghsingh6683 Im treating burkitt right now, I’m doing R-DA-EPOCH. Im in just the second session now, in last of first session I was feeling great already. Im very confident this chemo is healing me in Gods name 🙏🏻🙏🏻
My 8 year old son was diagnosed with mature B cell non Hodgkin burkitts lymphoma. He had one round of intense chemo and suffered complications blockage in his bowel which then perforated. He had another round of chemo and were told he had relapsed/refractory. The hospital we are at in the uk is said to be the best children’s hospital in the world “great Ormond street hospital” but we spent 10 days on their paediatric ward with all the signs and symptoms of cancer and it took them near on 2 weeks to diagnose him.
I am beyond heart broken for my son. He is being given a anti Body treatment called Blinatumomab which only treats ALL AML in the hope it gets his cancer down to have his bone marrow transplant. If this doesn’t work there is a clinical trial which has only been treated on mice. I am so angry with the hospital and his doctors as Oliver my son is such a unique case that I wish his doctors who haven’t got the experience with this would of pointed us in the direction of a hospital/doctor that has earlier on. I am praying this is his journey to his remission. He has been through so much and his still going through it. He begs me everyday for his life to go back to normal it’s devastating just heartbreaking. Please pray for my Oliver to get his remission
Prayers going up for Oliver!
Hello! I have a 7 year old boy with Burkitt Lymphoma just diagnosed as well. We are currently at St. Jude in Memphis. This is really where you should be! No child pays for treatment here. I pray you see this and can also get him seen by a qualified facility.
How is he?
@@iluvGodnUSA my beautiful soulmate took his last breath in my arms on the 2/10/20. His big brother and sister were asleep beside him. I got to tell him mama loves you before the life slipped from him. My world is destroyed my heart is broken beyond ever being repaired. I fear everyday his crying for me he is scared and alone. I have nightmares of that moment he took his last breath. He was struggling to breath looking straight into my eyes. My poor boy.
I am purely here for the sake of Oliver’s brother and sister until I get to be with my Oliver.
@@filizjohnson2059 I am very sorry about all of this pain you have experienced. It is so much. I will be praying that God fill any void you may have. You are so strong. Please keep going for all those around you ❤️🌻
My symptoms exactly ! I might have s tumor but it will make you feel like you can’t go on anymore couldn’t wake up and couldn’t get out of bed
I have a 2 years old boy who is diagnosed with burkitts lymphoma too I need your help about some information did you ever know what was the cause of the cancer? and how did it go with the skin rash and the mouth sore?
Hic Mo
What information do you have now, please? And what about the child now?
My mum survived Burkitts
What kind of doctors or hospitals couldn't diagnose her? How is that even possible with the progress of medicine?????
Because most doctors and hospitals are rubbish. You must always advocate and fight for your own wellbeing and go to someone else if you’re not being taken seriously.
How can we find out what all this treatment entailed? We would very much like to compare it with what my son is having in Portland. He was in the middle of a more general type of chemo before they knew exactly what type he had. His is Birkitts too. They finished the first chemo round about a week ago. He has a very tenacious pneumonia that is being treated with multiple antibiotics. They don't want to do any other chemos until his antibiotics are finished. He's really weak and quite depressed but tries to move around as much as he can. He's in isolation because of another infection he got. I sure wish I could know he's getting the very best treatment for this unusual type of cancer. It has really crushed our family.
I had two different treatments regimens,. R-EPOCH and R-CODOX..
I feel like I have this or some type of Lymphoma. I'm from upstate New York and I'm broke because working is so difficult. I had to walk out and quit my job about three weeks ago because I had an embarrassing episode which involved me feeling really confused and then very hyperactive. I feel my organs are enlarged and I have several lumps from my neck and chin, down through my chest into my abs and in my groin. I also have EBV, having mono two years ago and ever since then I've felt so exhausted. Now it's more or less a depression. I have no idea what to do about it considering I can't even afford copays. I'm turning 23 in November and I still live at home. I feel like my life is ending.
How u doing
i so feel for you i have no insurance either and have been selling my stuff on ebay just to survive. I wonder how people go about paying for medical care without insurance as i found a lump about the size of half dollar on the side of my neck putting my makeup the other day. i have been feeling exhausted sick to my stomach and major night sweats for a few months. please let us know how you are doing!
How re you?
What was the name of the chemo used? My 8 yr old son has this same condition.
Hi Keith - we are checking with the doctors who cared for Christen to see what information we might be able to provide. Hope to have something for you soon.
+Keith Sholler Doctors tell us Christen took a regimen that contained several drugs. Is your son being treated at an NCCN (National Comprehensive Cancer Network) facility? These hospitals write the rules for cancer treatment nation and worldwide.
+Keith Sholler My 16 year old son was diagnosed in August 2015 with BL. He was treated at St. Jude's in Memphis (we received the news Monday and he started chemo Friday). We go back May 18th for his final CT and PET scans as well as bone marrow and spinal fluid check. He finished his last treatment April 4th. He received many medicines, Cytarabine, Etoposide, Methotrexate, Vincristine, Cyclophosphamide were the major ones. It really wiped him out, at one point he went from 176 lbs to 134 lbs. He played soccer and hockey. His treatments have been finished for a month now, his numbers are still low but he's feeling good. I am sure Nebraska is a wonderful hospital but so is St. Jude's if you can go there.
Keith Sholler prayers
@@charliebryant686 how is your son? Please share your story.
My 39-year-old aunt has the same problem, but her body is so weak and is unable the to get the cycles on time. Only injecting fluid to her spinal cord makes her so sick that she only can breathe through the ventilator. I wanted to know is this typical?
+Saba Joshaghani I am sure she got Methotrexate injections. My son got them as well (a total of 12). He also had IV high dose methotrexate. He suffered tremendously from the mucusitis that it caused and would have to be admitted because of the horrible pain, plus he could not swallow and it hurt to even breathe.
Thank you so much Charlie, unfortunately my aunt passed away 2-3 days after my post. She was so weak to keep up with the chemo.
Charlie Bryant
Thank you so much Charlie, unfortunately my aunt passed away 2-3 days after my post. She was so weak to keep up with the chemo.
I am sorry to hear that. My son was 16 years old (turns 17 tomorrow) so he had a lot of youthful strength to fight through it (even though at times he could hardly sit up).
my dad has stage 4 of this type of cancer can somebody is this curable?
unfortunately he got profration in small intestine ne he hot infection i dont know what will happen bcz chemo will delay due to infection
@@parmindersinghsingh6683 how is he now?
My 3 year old son has been diagnosed with burkitts lymphoma...
Oh no 🤦♀️. Prayers going up for your son, Vikas.
Prayers for you Vikas, I have Burkitt’s myself, but the good news treatability is excellent in children!!
TURN OFF THIS ANNOYING PIANO MUSIC!!
JESUS 🤦 only half through the video and I have to quit cause you can’t concentrate on anything because of the annoying loud background music
i doubt she ultimately survived this and if she did, it most likely was not Burkitt's lymphoma
My husband has berkitts lymphoma stage four it's aggressive he's had 8 rounds of chemo so far positive news handled chemo well we are concerned that on his 4th round of chemo they took blood from his hand put in spine won't that spread cancer in spine please any info will help
They had to do it because headaches from spinal injections that weren't successful
May son was diagnosed after many trips to the ER. We had gone to OU Children’s in Okc twice and they were going to send us home again with directions of more metucil which was not unblocking him. I cried and begged for them to do more at least get some scans and so they did and came back with Burkitts lymphoma. He was stage four. He did five months of some very rough chemo treatments but it’s been almost seven years and he’s so healthy and doing great.
That's amazing to hear. He must be very though. Hope he never deals with it ever again!
May God bless you always. My friend. Amen ❤😢
What was your chemo regimen? Does anybody know this girls came over regimen?
Can it cure in stage 2 ? Pray for wife...