Teen is one of the first ever to get his genes edited. Why he says the process is 'cool and freaky'
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- เผยแพร่เมื่อ 7 ธ.ค. 2023
- CNN's Meg Tirrell sits down with Johnny Lubin, one of the first in the world to try a new kind of medicine that uses a gene-editing tool called CRISPR to offer a potential cure for sickle cell disease. #CNN #News
I lost three sisters to sickle cell, and it brings me joy to see this. I wish all the best to Johnny and all the other patients.
I hope it works w/o side effects.
Sorry to hear this.
@@mach1553 There will be side effects. Let's just hope that they ain't major and the treatment is still worthwhile.
There won’t be any
Beyond happy for him I’ve had sickle cell for 21 years and I went through the same gene editing process and it’s been more than a dream come true just when I was all out of options and just biding my time this was presented to me and my family and I’ve been in the best physical health of my life ever since💯👍🏽
So you are actually the first on the planet to have the editing?
Wonderful news. Prayers for continued good health.
A few hundred people have actually already been cured of sickle cell through gene editing, the boy in the video is just one of the first teenagers to have it done !@@TheLawrence05
@@TheLawrence05 not on the planet but one of the first people in Cleveland
@@teresalegler2777 thank you !
What a sweet kid. Wishing him a lifetime of success and health.
you sweet for that
His smile and demeanor are infectious!!! That huge smile made me click for the story😁Such great news for him and his family. High five to the doctors, researchers, and funding!!!
In Canada, 6 beds out of ten are used for people afflicted with schizophrenia. Gene editing will be a major turn point for humanity and hopefully for the best.
at very HIGH costs at first. it could take decades to be affordable when it finally gets approved for the general public.
Hopefully the young man has a long and healthy life.
Nope he is just sterile now
How do you figure that since the cells edited were hemoglobin not sex cells?
What a beautiful young man. Best wishes for a fantastic pain free life !🙏🏻❤️
Go Johnny go! Your attitude is amazing, and your smile is the brightest 👍👍👍 from a California Granny 👍🥰
Bro is just a straight up chill dude fr
"do you feel like a medical pioneer?"
"I don't know, I feel like a guinea pig"
This kid is funny 😂 I hope he's doing well
Incredible!!!!!!! All the best to you. Another reason why health care should be universal.
Extraordinary technology and outcome. Hope the results are lifelong for the kid!
Genetic engineering will never ever go wrong
Not from the point of view of the ruling elite
@@Inmyownleague
Yup. Already experimenting on black children 🙄
Get your zombie bunkers ready
This is only the beginning....
It doesn't hurt that they chose a good-looking, well-spoken kid from good-looking, well-spoken parents. Walking advertisements. Well done.
😢😢I can’t wait to get my son this cure I go through so much with him
Ya gotta love modern medical science! Hopefully the cost can be brought down enough that the treatment can be made available to everyone that needs it.
What a cute kid. Wish him all the best. Be well.😊
What an amazing thing! I remember patients coming into the ED in SC crisis. So much pain and suffering. How wonderful!
Fantastic news! Best of luck! Love the progress in Medicine.
This is amazing! I hope this is something they are able to make more affordable or a procedure that insurance covers to help sickle-cell patients and their suffering. But we know how the insurance companies are. Either way this is amazing!
Precious boy! Great news!!!❤❤❤
Mr. Lubin now 17 feet tall.
The future will be stranger than any of us mere mortals could have possibly imagined
Omg this kids is so smart and hilarious! I love his personality! I’m glad his treatment is working and pray the treatment last longer than expected!
So cool! Great news for this young man's future :)
Thank god that boy looks so happy now
What this kind of procedure open the door to terrifies me.
The diseases that they are helping, should be terrifying you
Yeah...... Even you can see the unsettledness in his face. He may be smiling but it's still a concern. I actually see the concern in the sense even though he's smiling but everyone else is trying to throw it under the rug
Yes, he may feel better and I'm glad he feels better but I know at night time he's thinking. I just wish the parents would have waited
Man this kid is a perfect 50/50 blend of his parents 😄
God love you johnny! I hope it's permanent.
Amazing story so happy for the family
How this possibly could cost 2 million dollars is a mystery once you understand this procedure. Fraud in medicine is ridiculous.
You bet! Milking every penny from every potential patient. The high cost is possibly because of the small pool of eligible patients who can actually afford it. If there were 10 million potential clients, the cost would likely be more reasonable.
@@afanaobeba7876 I read the research paper and this is Easily done for under 25k if that. 2 million is some fictitious number made up by a scammer.
can you offer it cheaper?
@@RedzicMuharem Dang right if i am allowed to use the proprietary information and facilities SUBSIDIZED by the government.
@@thiosemicarbizidebenzoylal2921 then go do it
Hope it helps him feel better 🙏🙏🙏
So happy for him 🥰
We are on the right track.
I wish I could help in someway. Look at that smile. Give those scientists what they need .
This is wonderful!! Congratulations✨💜✨
$2million!!!!!! WTF!
This is how "I Am Legend" starts.
2 million dollars per treatment? That's pathetic
Human body have 35 trillion red blood cells that has to be modified. And this with modified DNA markers at the exact spot.
That's murica! 🇺🇸 💩🇺🇸💩🇺🇸
I’m very happy for him
Know your blood type and that of your partner so your kids don’t have to go through the pain of sickle cell.
How does blood type affect this?
@@urjitkhatua956 people with ro subtype are affecting the most. Sickle cell mostly affects people of African descent because it’s a mutation that fends off malaria.
Sickle cell has NOTHING to do with blood type.
@@ADAJ3KINGANGEL Thank you. Never knew the connection with malaria -- the good news is, the bad news is.
@@ADAJ3KINGANGEL Kid... No mutation are not for fending of malaria, but people with it dont get as sick, due to malaria parasite cant bind to misshaped blood cells. Mutation happens at an rate of 1 in 10^-8 per generation. hemoglobin type is not a blood type.
Glad for biomedical science❣ So, if you're a person with "sticky blood" could that perhaps explain intractable or complex pain syndrome?
I dunno I just remember my RN buddy telling me that sickle cell anemia is one of the most painful conditions you can have. I imagine it wouldn't be a mystery if it's that bad.
Scientists are amazing.
Thanks to them we can have what we want and need.
@@malachite072 YEAH! At a cost. High blood pressure, diabetes and heart disease has been around since time. Scientist have done nothing to cure any of those diseases. There are more people suffering from those diseases.. are they not? Scientists are frauds in la coats.
"cool and freaky" is exactly how I'd imagine it to be!
If the past three years have taught me anything it's that scientist always have public safety FIRST in mind. And that they would never misuse their mountains of grant money for nefarious reasons...
This technology WILL be used by bad people with bad intent for money, power, fame, control.... you name it.
You sound like an antivaxer😂
Right?
@@Welmoscawow sarcasm. I wonder if u ever visited a doctor, use any science related medicine, or anything that science? Just a thought.
Polls now show 24% of u.s. citizens know one person thats been injured by the c19 vaxx and updates. Soon the public will be outraged.
Best wishes for a long healthy and happy life!
Hope this medical treatment is lifelong.
"We are not only men of science: we are men of hope."
- Dr. Jonas Venture
Banker Cabal Eugenics
You are moaning over a kid being cured of a deadly disease. How miserable are you?
I hope everything works out how they think it will
Probably not. Gene editing to my understanding at this stage is just breaking a link and making sure it stays broken as the body will attempt to repair it. It's messy. But, could be old news already I ain't heard much about it in years.
Gotta start somewhere if you have a place to start from. Long as it can do more good than harm.
Every time I hear of gene editing or therapy, I think of Jesse Gelsinger and all the lessons from that trial gone wrong. Still, I very much hope this young man continues to heal from sickle cell. Wish him all the best.
My boyfriend has Tri Cickle cell anemia I wonder if this therapy "chrisper "Curious to hear more good news about this treatment working for many diseases
Wow ! That’s amazing, I hope it’s a cure for him ❤
when you vote for “affordable housing” it has nothing to do with making housing more affordable to the average homebuyer. what you’re actually voting for is more HUD housing or housing for drug addicts, felons, and mentally ill people. affordable housing is a scam run by democrats.
This is great!!!
Such a lovely story.
This is the future and one of the greatest achievements of mankind of my lifetime.
he went from a deficiency to an upgrade!
Did they talk about the drawback? The risk of developing cancer
This awesome! Happy for them. Hopefully they can make this more accessible. In the meantime I'll have to figure out how to make 6 million+ to give my family a shot at trying this
2 millions traitement? 😢
I remembered 9 years ago when my nephew were born and we found out he has Down syndrome I went online looking for cure for him and at the time it was gene editing it was an early stage . I remembered being hopeful that one day there will be something out there for my nephew and I’m so happy that we getting closer n closer . I know there so many peoples would benefits so much from this and hopefully they can make it affordable for everyone as well
cure? whats wrong with him?
are you implying the enforcement of eugenics?
The same eugenics that led Hitler to kill millions, spearheaded caste systems?
Congratulations!
Amazing 👏
actually the gene editing may have given him super powers that he hasn't discovered yet 🤔
Turns out... he IS a superhero.
Justice for Jonathan Lewis
very cool. id watch a documentary on this new medical technique. its expensive now but it could become widely available with enough rich people using it. after awhile it could become cheap
I wish he can be a real mutant super hero
I used to play online video games a lot. I befriended another player through this game, he was friendly, and we played several times per week. Then one day he stopped logging on. I later found out he died of sickle cell disease. Was super sad to hear about it. I didn't even know about the disease beforehand, and had no idea he had it. Glad to see this advancement saving lives. Game on!
"You don't need a donor?" Tell me you don't understand gene therapy without telling me you don't understand gene therapy
How much is it tho?
I’m pretty sure the first drum clip was that one drum beat
HAH yes I was looking for someone else who heard it
@@zazo1625given the circumstances, our boy trolled exquisitely. 🤌
2 million per treatment? That's steep.
Thank you to the new station for doing this story that affects mainly Black people hats off to you!
No you don’t need a donor just 2 MILLION 🤦🏻♂️ let me just get that out my account… crazy
Science is not cheap, what do you expect. With time it will get cheaper. Jesus you people always bitch about everything
I remember when they talked about designer babies. you could pick the color of your babies eyes or hair color.
this is not the same as the movie the island right?
Kid’s got good taste in video games.
So, is this a treatment or a cure?
It's not a once and done thing once a gene is switched off or taken out of service your body will attempt to repair the damage. You have to ensure it cannot it takes a few rounds.
3 of my blood relatives died in less than a year. 98 percent of my family is dead. I lost my father to kidney disease. My mom to Alzheimers. My uncle to a heart attack. My family has a long list of sicknesses and illnesses. One day my families medical history is going to come to take me out as well. I am so close to being the last surviving member of my family. If my parents genetically engineered me and their parents engineered them then this would not be happening to me. I was born in 1980. No such thing as genetic engineering then. Maybe it's not that bad.
Crisper and gene editing? Sounds like the movie Rampage 🙃
It’s how humanity ends itself but not our problem now .
@@verilyveronica8430 Kids... gene editing is nothing new. it's have been done since the 60s. The new things is the technices of doing it. Both are regulated by laws both national and international.
@@redstarchrille It does not change what I said in any way
Who.... must be before my time, carry on boomer
@@redstarchrilleyou should "edit" your remedial comment SMH
What's harder to find? A bone marrow donor, or $2,000,000?
$2 million per treatment is super eye watering, but this is beginning and that should come way down over time. Very exciting stuff!
It is to be covered by employer insurance and Medicaid.
Awesome news.❤
Just thinking about the implications os mind blowing
this is only the beginning
Amazing
$ 2 Million! That is way out of reach for most people..... even after the price goes down. Say it goes down in cost by 90% (which is a VERY generous estimate here), it is still going to be $ 200,000. Still out of reach.
I see your point. But, from commercialization point of view, it took 12 years of research and almost $1.5 billion dollars in research funds. So, they have to charge a high price so that they can pay back the investors with great earnings. Secondly, it will be reimbursed by employer insurance and Medicaid in US and other nationalized insurance systems in EU. However, yes it won't be accessible to people in under-developed countries. That will take 50 more years. You need top medical facilities to administer this complicated treatment (there are only 10 in US who have the capacity).
Good news FDA thank you
Cool!
I hope he does get super powers.
Big pharma is going to hate this
Sickle cell patient describes
Yayyyy for Johnny
2 million dollars per treatment. Seems like our people will be better off using the money to fund crspr labs and geneticist training colleges at HCBUs.
Your people? Dude, they aren't going to help any of us.
A lab capable of performing CRISPR typically needs an NIH P01 center grant, something to tune of $50 million minimum.
It’s a neglected disease in the pharmaceutical industry for a good reason.
No gene editing for that Face 💀
CRISPR was discovered only a decade ago??
So who wrote it into the novel, Jurassic Park?
I can't understand why this procedure costs two million dollars.
Because it took 12 years of research and almost $1.5 billion dollars in research funds. Where do you think that money comes from?
@@sb5224 the insurance company to whom we pay premiums even though they can refuse us the benefits from the.12 years and $1.5 of research their customers paid for.