Living with Ehlers-Danlos Syndrome

Business-owner and mother Nathalie Larcombe walks us through her experience and insights in dealing with Ehlers-Danlos syndrome, a connective tissue disorder that affects her body's ability to make collagen, impacting everything from hair growth to joints to living with constant pain. Follow her journey as she shares her story and reveals how she finds hope and victory amid constant struggle.
Watch out for the full interview coming soon.
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Produced by Lion Mountain Entertainment Ltd
(c) 2021 Lifestyle Cardiology Ltd

[@Dulcimerist]

Excellent video! I had to be my own advocate just to get diagnosed with my hypermobile type Ehlers Danlos syndrome.
I also advocated to try the new EDS medication option Pyridostigmine to treat my gastroparesis and POTS, and that medication has been a miracle for me.

[@freshheartproject6122]

Thank you! It's amazing how important being your own advocate is. We're so pleased that you have found a medication that works for you. Take good care.