I had a test for Potassium that was off thee charts high. Flipping out researching it went back for another test days later and it was normal. Very common for bad tests.
Let me tell you my story. My ferritin was1700 in 12/2020 Doc and I blamed on supplement. march 2022 ferritin was 1700 ,again we blamed on red meat. in a mean time I experience gout. 3/2023 3month ago my blood work was so bad, ferritin 920 ALT and AST was like 200 Thyroid hormone was zero, worst of all HgA1c jumped to 6.9 .My oncologist started phlebotomy 250ml/month(concerning my low WBC and Low Neutrophil count) I had total 3 phlebotomy total blood removal 250 X 3 = 750ml. I was so desperate to become well, I started Carnivore diet + intermittent fasting on 3/22/23 . 9 weeks later I had my blood tests. ALT.AST normal,Thyroid normal, ferritin was 73, HgA1C=5.1 also lost 20lbs without trying too hard, lost 6 inches on my waist. (I do not have Hemochromatosis gene) The result was pure luck, it was not anyone's recommendation other than TH-cam KenBerryMD. I am so happy to have found the way to regain my health.Doc said three phlebotomy did not lower my ferritin level. Something was causing inflammation and the cause was eliminated. In my case the cause of inflammation was Carbohydrate!
Everyone is DIFFERENT. I don't buy it in any way that just eating meat is ok. Maybe for a ht minute but in thee long run it can't be good. You also only get to an oncologist after you have Cancer that I know of. High carbs def bad especially if they are mostly processed foods. @@sparrowt4082
I suspect I’m in a similar situation. Intermittent fasting is really crucial I’m just going off of how I feel. I watched another video from a doctor and I guess keto is only 20 percent of A1C but intermittent fasting is 60 percent by far the most important. Thanks for sharing glad your feeling better God bless you.
20 years ago my ferritin level was over 3000. It was off the scale. Still here, albeit with numerous ongoing health issues and operations. 75 yrs old now. The fifteen first years were the worst. Pain, opioids, chronic fatigue. I made it through and in my bonus life. I don't have high expectations - not able to do much, but I have someone to love, something to do and something to hope for, so I live thankfully. I am content.
@@michellemcdermott2026 God has done that, tks. Give thanks in EVERYTHING. Very important. Doing that has made this life a most interesting journey. Looking forward to the next.
@@JoaninFlorida I have lots of side effects. 1 being severe dizziness. Also you don't only lose iron you lose valuable vitamins. All my vitamin levels drop also. Its just a aggravating situation.
@@floridadadvader What side effects are you having? I was at 3690 and I am down to just over 1500 in 5 months. I've been having a phlebotomy every other week and I just feel really tired afterward and need to take it easy for a day or two and I'm 69 years old. Are they giving you saline after they draw blood?
@@floridadadvader When I started donating I also started losing my equilibrium. I started getting sick immediately after phlebotomies so I stopped back in Dec 2017. Symptoms have been creeping up so I have to start again.
Thanks! I have a very similar story, but I got a genetic test that confirmed I have the homozygous C282Y mutation that causes classic heredity hemochromatosis. In other words, the iron overload mutation came from both of my parents. In 1996, archaeologists discovered the genetic source of iron overload. Bronze Age Viking skulls found in Scotland had intact DNA with the C282Y mutation that causes iron overload.
I’m iron deficient! I thought I could share why my iron levels are so low to help you guys. I’ve been taking high dose turmeric tablets for inflammation and that has severely stopped me absorbing iron. Research it. Good luck!
Thank you so very helpful video. My brother just been diagnosed with this! We had no heard of this before. Now going to get family checks done. Very useful helpful information on how you reduced your levels. Wishing you healthy happy time ahead!
After battleing leukemia and getting a bone marrow transplant, I had a level of 4000 it went unnoticed for almost 2 years. Then recently I was diagnosed with hemochromatosis. Dr says i have the mutated gene. I have gotten my levels down as low as 800, which for me was the lorat in 4 years. I'm doing more consistent phlebotomies. And I hope to get back to a normal range which will be the first time in almost 4 reach a normal range. I just hope that didn't do too much damage to my body.
Thank you so much for sharing your story, have been feeling very fatigued lately even though I lead a healthy, actuve lifestyle. Blood tests showed my iron levels are way above the acceptable levels, my journey begins with more tests and bloodletting in the new year. Had no idea high iron levels were of concern until recently, great to see people trying to get the message across.
Man Japan is one of my favorite places on Earth. I also have hemochromatosis… phlebotomy, diet, cat scans of liver (and pancreas). It’s been an over ten year battle for me. American doctors tend to not take it seriously. Thanks for the video good sir.
600 Ferritin, that's nothing dood. Mine was 3,500 to start with. Now after 6 months weekly blood letting I'm down to 500. A friend at the clinic started at 11,000. However, his liver was damaged due to the iron overload. He is still alive but doesn't look too good.
I had first notice a high ferritin level a few years back (around 500) and questioned it with my doctor. He said no worries because the liver enzyme tests came back as normal. Why the high ferritin then, I asked. Oh it is probably due to inflammation. I did a bit of research and became even more worried. Over the next 2 years the ferritin dropped a bit and came back up. I kept bugging the doctor about it and each time he would order some liver enzyme tests which turned out to be normal. In January 2021 after an online annual physical checkup, he sent me a requisition for lab work. He had skipped the ferritin test and went immediately for the liver enzyme tests which prove normal again. Heck, I wondered what was the ferritin level. My blood glucose was a bit high so I asked my doctor for a referral to a metabolic clinic. She order a full panel of tests to check for insulin resistance and cholesterol. I asked for a ferritin too. Everything came back as expected but the ferritin was 799! She claimed that ferritin was not her area of expertise and that she would recommend to my GP a referral to a hematologist. Meanwhile I started to take Ip6 with inositol 2000 mg daily. Three months later the ferritin went down to 575. Meanwhile I stopped taking Crestor because she suggested that the blood sugar problem could be cause by statins. To my dismay, the cholesterol went through the roof, so I went back on the Crestor. Meanwhile, my GP called to ask what was going on with my cholesterol so I took the opportunity to ask whether he had received the recommendation from the metabolic doctor regarding seeing a hematologist. He said no communication was received from the metabolic doctor, and besides it would be unlikely that a hematologist would accept me because there is nothing wrong with my liver enzymes and hematologists see mostly patients with serious problems like liver cancer. Jeez, there is no way out of this conundrum! Okay, let me see in 3 months whether the ip6 with inositol will further reduce the ferritin. What calmed me down a bit was the fact that studies have shown that organ damage rarely occurs with ferritin below 1000. This was a statement given by a specialist in hemochromatosis.
@@dvrrollers4436 I recommend that you watch the video titled “IP6 & Elevated Iron.” The channel is Daniel.Schlenger. He stresses the importance of testing often to make sure you get the desired results, and to adjust to dosage to the changes in ferritin levels.
Awesome video. Makes me feel more comfortable. I too experienced this, healthy, exercised, and had high liver enzymes. I tested negative for hemochromatosis but I have very high ferritin levels. Around 1,250! I'm now doing phlebotomy. And am working towards recovery
Thanks, Rich! This video is very informative. Yesterday (3-4-24), I had the result of my hemachromatosis test at 794 from the previous 791 two months ago. I wish you have have an updated video on the same topic. Thanks, and God Bless!
I have C282Y mutation my parents have each one on this gene, my grandfather die because of this. My ferritin is good for now, but i have many complications, breast cancer, pain and arthritis, menopause at 45 years old, and other things. I need to change my diet because i think I’m not gonna live well so long. The doctor don’t help too much, he said he never knows about this desease. When I asked him to take this test he looked at me as if I were from another planet. This disease is very present in my family, and after my cancer I felt the urgency to know if I too had. In Quebec we have 1/300 people with this mutation. Doctors should be more aware. Thank you so much for all the explanations it's very useful
It sounds like you need a great specialist. Mayo clinic in Jacksonville, Fl has a HH department. I will be there in march. I have the same situation with my doctor. They do not how to guide you, but they know how to get paid.
Thank you for your video, i just discovered i have it, my iron is high for almost 10 years, my Dr never told me about it until I asked to be tested, hope u feel better since is almost 3 years u made this video!🙏
I was diagnosed 5 yrs ago at 64. Ferritin level got up to 4700. Doctors not quite sure why I lived and without organ damage. But, numerous types of other long term damage that makes my daily life hard. Long story, hope I can tell it sometime.
I feel like my diabetes, arthritis, and hypogonadism could have been prevented if they had checked my iron levels some years back when I first complained of issues.
Ferritin just over 3,700 at diagnosis. It was symptoms that sent me to the doctor. I had extreme fatigue and rapidly increasing hair loss, as well as a variety of other issues, like irregular heartbeats, leg tremors, swallowing problems, joint pain, etc. @@user-im6fy4qp6m
And of course the liver enzymes were high, but I still wasn't prepared for the shock of the cirrhosis diagnosis (also was told I had liver cancer--on two separate occasions--but it turned out I didn't)
@@crackedshamrock A man I know with a Scot-Irish heritage -- he's a "Mc" -- and a non-drinker, is facing liver transplant surgery. An early diagnosis would've helped him.
I have a similar story Rich, totally didn't see this coming. High Liver Enzymes, some fatigue, but it was caught early. So glad for amazing Health Professionals.
Hi I'm a month away from my 38th Birthday. I have just been diagnosed with haemochromatosis. I have had so much anxiety about it, as I'm feeling so unwell I worry I'd feel this way forever. Thanks for making this video it helps to know I'm not alone. Even if I'm all the way in Australia 😊
Hey Leah. I know your message is 2 years old but I'm 38 and my Doc just told me my iron levels are really high. I got freaked out when I discovered my Hemotologist was in a cancer center. This video really helped me feel better. I'm wondering how your experience has been?
how high?did you notice any sympptoms? im at 675 which is barely elevated and have cartilage pain in my joints for days if i do too much phsyical activity. also problems with reflux@@dlodato052584
My eldest brother had it , died from cirrhosis of the liver mid forty, his heavy drinking didn't help, my mother wanted to test my son for it , he was still in primary school, I suspected my mother wanted a donor for my brother, I refused the test for it and said he was to young for the procedure and it may never be a problem for him so it was an unnecessary procedure and that I would have a note made on our medical documents that a family member had it for future reference. Family members are also the first people they test for donor organs (I've always told my two children to be nice to each other , cause you never know when you might need a kidney in joking) , my brother was a chomo, he died on the toilet .
Symptoms don’t usually show up until someone is in their 40s , and by then there may already be some damage. If I were you I’d test myself and my children. Women usually have problems in men’s pause bc they are longer bleeding. Extra iron deposits sit in many areas of the body from joints to liver to pancreas which can lead to early diabetes or cardiomyopathy. Catch it early so you don’t have to play catch up after organ damage.
Thank you for sharing your journey. I'm waiting on my script to start bloodletting, leaching 😉. My levels are at 1400!! I am 44 and experiencing so many horrible symptoms. It can really will mess you up. Stay healthy my friends. ❤
Just waiting to get the 100% go ahead that mine condition is Haemochromatosis…hate feeling unwell and my life feels like it’s on hold.Onwards and upwards!
if you don't mind me asking, what kind of symptoms were you experiencing with ferritin levels at 1400? Im curious because i may be going through the same thing.
I either need to learn phlebotomy or start farming leeches. 408 here. Seeing a phlebotomist this weekend for the first time. I suspect this was due to an chronically infected abscesses tooth I had for over a decade.
I was at 1860 ug/l of ferritin. Normal is between 50 - 150 for men. Hemochromatosis markers from both parents. Year & a half of phlebotomies and I'm back to normal range. Fortunately no organ damage.
I have Hemochromatosis as well. Luckily found out sooner rather than later. Also being checked for diabetes. I'm going to try IP6 and blood letting and maybe donating blood. I was taking turmeric for symptoms before and it seemed to have helped, but I didn't know I had it at the time. Going to start taking turmeric daily again. Also going to cut out most foods and supplements with iron. It's definitely good to know that I have it so I can take action now. I found out the nutritional yeast I just started taking has too much iron in it for me and I started having symptoms when I took some of that and had eggs and spinach and other foods with it.
super lucky you caught that before you aged further and continued to increase ferritin. i only have a single H63D mutation but in my 40s was elevating saturation. ferritin was still normal. even that was starting to increase my a1c and lower testosterone. blood donations a few times per year pulled that saturation right in line and like magic the other issues vanished. it's honestly easier and healthier to eat normally and just donate blood to manage iron ESPECIALLY if you have a pair of mutations, c282y, h63d or s65c. listening to your story it's HIGHLY likely you are a single gene carrier of one of the minor mutations either h63d {most common} or s65c. the fact your diet had that kind of an impact and some blood donations pulled you right in line is a good hint. it's how a lot of us celtic folks are. the history or iron overload traces back to the vikings which is why most all of us that have it are from the british isles / germany / holland / france right in that circle of the world. people who have 2 copies of c282y have it much harder. oh, if you haven't already noticed. if you bring your ferritin all the way down to 10 it's pretty likely you will have joint pain / fatigue that will normalize if you raise it to even 25 or so. everyone is different but 25-40 is my happy ferritin zone. at 10 i'm achey
@@MikeG-js1jt In the US, yes, ng/mL. DIfferent labs have different reference ranges but in the 2 I've used one was 25 for the low and the other was 30 for serum ferritin.
You may want to look into IP-6. Seen it work very effectively in lowering levels in patients with ferritin in excessive of 2000. Dosage can be quite high at around 1500mg TID.
Hi Peter! Hope you are perfect in health! Can you please, give us more details about IP-6? Have you tried it and for how long? Any side effects? Can you suggest a special brand? Thank you!
try to eat brown rice everyday bc it has phylate in it, it prevents iron absorption. Mung bean is also help, too. Put Mung Bean into brown rice. Drink milk, tea, etc..
Thanks for the info Jeff. I learned about other foods that can prevent iron absorption such as calcium but wasn't aware that brown rice and mung bean also prevent iron absorption.
@@richgolden375 i don't have iron overload but i do know mung bean and brown rice are really good. Don't eat white rice..eat brown rice..it's better than white rice. Also, use Sauna 3-4x a week..it will help you with iron overload and make sure u take shower right away to wash it off or it will reabsorb it back into your body...use tower to wipe off sweating and take shower after sauna... it will help
@@richgolden375 There is a supplement called IP6 which chelates (removes) iron (it's made from rice husks and contains phylate). I tried it and my ferritin did reduce but my doctor told me to stop. It actually chelates all the bi-valent minerals in the body, so zinc, copper, magnesium as well so its not recommended. Phlebotomy is the best/safest way.
@@aginginflammationandironov6371 Thanks for the reply Iron. I hadn't heard of IP6 before and, from your description, it doesn't sound like it's worth it. My doctor (in Japan) had also mentioned the possibility of using Deferoxamine, which needs to be injected and includes such wonderful side effects like diarrhea, vomiting, fever, hearing loss, and eye problems. It seems Deforexamine is prescribed as a last case resort in the west so I pushed back against taking it and will stick with phlebotomies for treatment.
What a great explanation of iron overload. I was told there wasn't anything to be done about it, but you've gotten your's under control, that's really encouraging! Thanks so much!
I just had my bloodwork done for the first time at 28, my iron levels were super high. My physician wants me to do more testing for hereditary hemochromatosis. Since I've been vegan for 10 years, I was worried my iron and such would be low (I took a vegan multivitamin with 18mg iron daily) I've now cut out iron from my multivitamins and I measure daily iron intake on my cronometer app. I wasnt expecting this news, but im glad I found out early on. Great video, very informative! 🙂
I'm in the middle of similar scenario & ran across interesting info about our systems being depleted of copper (due to SAD, pesticides, glyphosate, etc). Seems copper regulates iron in the body (as well as other great things). A bisglycinate chelate form is touted as more bioavailable. It is helping but I think I'll also be needing the therapeutic phlebotomies as well.
Thank you Rich for sharing your story. It has helped me with understanding my lectures on Iron overload and Hemochromatosis. I hope to help persons with this condition in the future!
I had no idea that the body accumulated iron over your lifetime. Small acute accumulation of iron leads to a decreased lifetime. There have already been proven data. Now the question is how do you remove the iron that has slowly moved into your organs? Because once it starts moving to your organs they start creating an oxidative reaction. How do ypu remove auch iron from your organs?
Thank you so much for your story Rich! Will you be posting a video any time soon on your progress? Hemochromatosis is such a complex condition, it's nice hearing people's stories like that of yourself. My husband and I are currently looking into whether or not he has it.
no mention of copper, it regulates iron, according to the book "Cure your fatigue" by Morley Robbins. Of course you have to donate blood, and ferritin levels in blood is not the way to check, but unless you a super rare or lost lots of blood 95% of ppl have iron overload
I have a very high ferritin level & I used to donate my blood every year but now they wont accept my blood as my level is too high. Its not easy here either in France...
Thanks! Just went in for a checkup blood test today and will get the results by the end of the week. Feel a lot better now that the phlebotomies are over and I'm well on the road to recovery (if not fully recovered - gotta wait and see the test results)
Rich was so blessed to have met a good doctor to guide him, answer his questions and calm him down with such alarming news of his health. His story was well reported, easy to follow and informative. 👍👍👍💚
My step dad developed this as he aged. For other reasons he went on a keto diet for four months, lost 40 pounds, then continued to eat healthy. His iron problem went away. Did you try fasting?
@@CapCashOG I can't say it was the keto diet. Perhaps it was the weight loss or eating healthy. Perhapes, he had insulin resistants or fatty liver or a combination and once he got healthier the iron problem went away.
Thanks. While my doctor stuffed around re my high iron levels, I researched natural methods and started them (I have a medical background). I used turmeric, green tea, IP6 btw meals, lactoferrin, cabbage in various forms, bragg ACV. I also followed the morley robbins protocol to repair the damages, and hardly ate any red meat. I did get strong chelation symptoms so took liver herbs etc. Took nearly one year, but continue to rebalance the damage.
Thanks for sharing Kids Future. Interesting to hear about natural iron chelation methods and absorption prevention methods. For those not familiar, iron chelation refers to something that can help remove the iron already stored in your body (such as tumeric) whereas other things such as calcium can prevent iron absorption in the first place. Any reason why you didn't want to undergo phlebotomy to reduce your iron levels?
@@BabyGangsterIsMe As I've said in other reply chelation is a little dangerous because it chelates zinc. copper and manganese as well, which is not so good. Phlebotomy is the best approach if your veins can take it.
Please understand this is not a long term solution. You will also be losing other needed nutrients if you do this. The only current practical solution is regular phlebotomy/venesection. I stay healthy, follow a vegetarian diet, but I still need venesection every 6 months now (initially I needed it weekly, then monthly, then 3 monthly)
Hello everyone. I am writing from Mongolia. My dad´s ferritin level is almost 700. Local hospital took an MRI just few days ago and his diagnose is second stage liver cancer. My dad is not taking it well. 😭 As I have read on the internet iron deposit in the liver can be look like cancer. Could you please tell me how your liver looked like when you are first diagnosed hemochromatosis? It would be much appreciated 🙏🙏🙏
4 years ago I went to my primary care doctor feeling so awful. Bad fatigue and all over muscle aches well I had to do routine blood work and my liver enzymes were high and ferritin levels were in the high 800s. I was immediate sent a referral to hemotology. I went through 3 theraputic philbotomies and hated it. I have bad veins and only one arm that's good for giving blood. The needle is big and I'm such a baby. Well long story short my ferritin levels went back to normal and things were ok. I don't have the gene for hereditary hemocromatosis so I'm not sure why this happened to me. Now I'm feeling awful again so I figure my levels are high again. 😬 I just need to find the root cause.
What are you feeling now? I was just diagnosed today and I will be getting giving blood every couple of weeks for a few months. I have been looking for somebody that has mentioned the muscle aches as I don’t see that as a symptom very often but it is my primary symptom. Muscle aches, fatigue, and brain fog. Let me know how you’re feeling.
@@wmauibill I'm doing good now. I check my ferritin levels during routine blood work and they have been normal. Yes the muscle aches were crazy and the exhaustion. Just feeling unwell. At the time I was working and over weight and didn't take care of myself. I started intermittent fasting and it helped my entire body. Not saying that will help everyone but it helped me. My liver enzymes are now normal too. I still from time to time check my ferritin and liver enzymes when I'm feeling off but they have been normal for awhile now. Let me know if you have any more questions. Good luck with that philbotomies.
I found out I have hereditary hemochromatosis after taking a 23andMe DNA test. Fortunately my liver function was not affected yet but I had developed osteoarthritis, type 2 diabetes, and hypogonadism which was likely caused by my hemochromatosis. I started out with 1600 ferritin. After 6 months of weekly phlebotomies I got down to 30 ferritin but it left me very anemic.
Can you explain how 23andMe helped you? I have read that after you pay for 23andMe you still have to pay another company to interpret the raw data and give you clear and decoded results.
@@LencoTB I'm not sure what you mean by "helped me". I bought the kit, sent in the sample, and they emailed me the results. I didn't have to pay anyone else.
I have always had low ferratin, it helped to cut out sugar and a lot of coffee. I was eating a lot of sugar. Maby not the best tips, but it can help you guys to not obsorbe too much iron😅
Thank you for sharing your story. I was recently diagnosed with Hereditary Hemochromatosis and it has been an interesting process going through treatment.
Let me tell you you do not want it down to 10. The range hasn’t been changed since it was created. Here the normal is around 15-200. Doctor here in America say optimal is 100. I’m in America. I had to have 3 man made iron infusions. The days after the infusions were painful to the bone. That’s the bone marrow working. I felt so much better. When mine is below 30 I feel bad.
Thank you! I enjoyed watching your video (actually had several good laughs). A family member has hereditary hemochromatosis. I tested myself, and I do not have it, but acknowledge that I may be a carrier. So awareness is needed!
Thanks for sharing, I recently due to COVID discovered the same after an special blood exam recommended by the WHO (which includes ferritin mandatory) , now I need to inform to my endocrinologist to get an action plan, fortunately I am in the 500ish ferritin level but could be a life threatening issue if the version of COVID I had was a severe one. So dodged a bullet this time. The good thing about your case is you basically prevented a lot of diseases, you could develop diabetes or maybe a stroke. I don´t know why ferritin analysis and detection must be included in any health check blood exams, here in my country you specifically need to ask for it and pay an as extra fee to the laboratory.
I'm pretty sure the word..phlebotomy .. the PH .. lebotomy .. sounds like the letter F .. which may explain the inability to pronounce the word .. fl - ebotomy. Diet seems to work a bit when one leaves the natural iron binding phytate in the food ..“Soy protein with native phytate significantly reduced tHcy (P = 0.017), transferrin saturation (P = 0.027), and ferritin (P = 0.029), whereas soy protein with native isoflavones had no effect on any variables.”
Thanks so much for this video...I have had elevated liver enzymes for a about 20 years...tested positive for both hemachromatosis genes...iron levels have been slightly elevated....just went for a liver ultrasound and awaiting the results of that...I will be going on a more stringent weight loss program through a dietician in November and doing everything I can to get things back on track...don't have all the information yet but I also believe in radically taking the bull by the horns and doing whatever is needed to restore one's being to optimal health.... mentally, spiritually, and physically. All the best.
Thanks for the comment and wish you the best in getting your liver enzymes down. I also admire your gung-ho spirit and taking the steps you can now to improve your health, even without all the information. I'm a big fan of the "ready -> fire -> aim" philosophy, where you do enough preparation and due diligence to get started, then actually go for it and adjust based on what you find along the way.
You are in Japan and there are few cases, probably because there are some Northen Europeans. In Bulgaria (southeastern Europe) there are no cases of hereditary hemochromatosis. My daughter went for a genetic screening for all diseases and they found a heterozygous C282Y. Then it turns out that it is from me - I also am heterozygous carrier of the mutation. Latest research states that hemochromatosis can be found even in people that are heterozygous. For the moment my ferritin levels are 370 and I started a diet change. hope to lower it that way
Dealing with the same issue. Ferritin count started at 534 in March. Cutting out high iron foods for 2 mos brought the count down to May number of 503. Another blood test Aug 14th.....we’ll c what that reveals. I’ve been on vacation.....that should b interesting!!!
Hi Texas native, glad to hear you noticed the high ferritin relatively early on (at 532). In my experience cutting out high iron foods (such as read meat) got me off to a good start in reducing my ferritin, but the real drops started with the weekly phlebotomies. Good luck with your post vacation checkup and continuing treatment & recovery!
Good to hear you got your ferritin down to 300 and are feeling better. Did your doctor mention if your liver will start to heal from the fibrosis now that you've lowered your ferritin level?
Drink lots of cabbage juice [use a blender ------ > half a cabbage + 2 cups of water] also eat lots of cabbage - coleslaw, kimchi. As excess cabbage can cause goiter [cabbage depletes iodine = goitrogenic], you'll need to add a drop or two of lugol iodine. Takes about 2-3 months for iron level to normalize. I read that lactoferrin which is found in milk, cheese, etc. can also help. The richest source of lactoferrin is colostrum. Best is to work with a doctor or medical people as low iron is just as bad. blog.valerieaurora.org/2019/04/06/iron-and-cheese-how-i-used-lactoferrin-to-treat-iron-overload-part-3/
I'm hypothyroid patient and my ferritin level low my doctor suggested me monofer infusion after this my face colour few shade darker. After 45 days I checked my ferritin level it's 380 it's too much higher before infusion my ferritin level is 29. It's dangerous for me . Can I drink lemon water for reduce it?
I haven't heard of drinking lemon water as a way to lower ferritin levels. If your ferritin levels are a concern I'd suggest you follow up with your doctor, especially as you're a hypothyroid patient as well.
Hi Rich thanks for sharing I've got a 90% polycythaemia diagnosis, but a Dr I work with says I might have hemochromatosis also as my ferritin is very high but folate was normal, thanks for sharing your story :)
Hi Faye, thanks for sharing your story as well. From my understanding high ferritin is one sign of hemochromatosis, but there are other factors to take into account as well (such as transferrin saturation). That's why, despite my high ferritin levels, my doctor wanted to take a liver biopsy to confirm his hunch before starting phlebotomy to treat hemochromatosis. My dad's DNA test showed that he is likely an unaffected carrier of hereditary hemochromatosis, thus I got to skip the biopsy and head straight to phlebotomy. Lucky me :) Wishing you a speedy recover for polychythaemia and (potential) hemochromatosis!
I have the C282Y and H63D from both sides but did not get my diagnosis till age 62 and had a ferritin level over 1500. It was just too late. I am in liver failure, portal hypertension and presence of esophageal varices. I had no clue what was wrong...but was told I have a year, possibly two. I never heard of this disease before.
Despite ur IRON deposits in liver, portal vein THICKENED (became hypertensive). And lead to low blood flow into Liver. Liver doesn't get failed that quick due to iron overload unless you skipped few important symptoms such as pain, sorry to hear....but anyone having early signs at US Scan level might apply CASTER OIL externally (Cysts, Periportal Thickness, Coarse Echotexture)....
Hello, my mom is a kidney patient. She has very high levels of iron (Ferritin). She needs to grow her blood cells too as she has low blood hemoglobin. As a kidney patient, can You tell me how she can lower her iron level and higher her blood cell level at the same time? You can suggest a diet chart or any kind of medication or exercise as well as whatever you like to move on.
Your problems were compounded (apparently) by poor medical monitoring from the start. Blood pressure should be a routine check on your health, the first thing done if you are suspected to be unwell, and ferritin should be automatically included in any really thorough blood test (although perhaps in Japan the genetic disposition for haemochromatosis may be rare so not a moderately routine blood test).
Hi. I was covid 19 affected in aug. In hospital dr check my blood. Found ferritine level 780. after 4 days it was 1800. But when my fever gone after 4 days, it come down to 708. After my discharge from hospital again i check after 5 days. Ferritine level was 704. Tomorrow dt 9 sept 20 i am going to visit my lever specialist dr. Hope everything will be ok. 😣
Just had a bunch of blood tests done 2 weeks ago, asked for the whole package caused hadn't had any for years, and found out my Ferritin is 540. Thanks for this video.
Glad to hear you caught the high ferritin relatively early. As some of the other comments mentioned (but I didn't mention in the video) is that inflammation can also cause high ferritin levels, so be sure to follow up with your doctor and try to track down the cause. Good luck!
@JoaninFlorida I had to self-refer to a liver clinic, where a CT scan was ordered, followed by a biopsy. The hematologists I've seen do not seem to be aware of the harmful effects iron has on the liver.
High ferritin can be also false positive, meaning it doesn't mean you really have an iron overload, but be a marker for inflammation.
I had a test for Potassium that was off thee charts high. Flipping out researching it went back for another test days later and it was normal. Very common for bad tests.
Most are high in iron but show low, they are designed to not understand bloodwork
Let me tell you my story. My ferritin was1700 in 12/2020 Doc and I blamed on supplement. march 2022 ferritin was 1700 ,again we blamed on red meat. in a mean time I experience gout. 3/2023 3month ago my blood work was so bad, ferritin 920 ALT and AST was like 200 Thyroid hormone was zero, worst of all HgA1c jumped to 6.9 .My oncologist started phlebotomy 250ml/month(concerning my low WBC and Low Neutrophil count) I had total 3 phlebotomy total blood removal 250 X 3 = 750ml. I was so desperate to become well, I started Carnivore diet + intermittent fasting on 3/22/23 . 9 weeks later I had my blood tests. ALT.AST normal,Thyroid normal, ferritin was 73, HgA1C=5.1 also lost 20lbs without trying too hard, lost 6 inches on my waist. (I do not have Hemochromatosis gene) The result was pure luck, it was not anyone's recommendation other than TH-cam KenBerryMD. I am so happy to have found the way to regain my health.Doc said three phlebotomy did not lower my ferritin level. Something was causing inflammation and the cause was eliminated. In my case the cause of inflammation was Carbohydrate!
I love these Carnivore testimonies. ❤ I'm seeing them EVERYWHERE!
Everyone is DIFFERENT. I don't buy it in any way that just eating meat is ok. Maybe for a ht minute but in thee long run it can't be good. You also only get to an oncologist after you have Cancer that I know of. High carbs def bad especially if they are mostly processed foods. @@sparrowt4082
Wow.. Thats quite amazing...
I suspect I’m in a similar situation. Intermittent fasting is really crucial I’m just going off of how I feel. I watched another video from a doctor and I guess keto is only 20 percent of A1C but intermittent fasting is 60 percent by far the most important. Thanks for sharing glad your feeling better God bless you.
@@shinola228ferritin is directly related even though she didn’t have the iron tested it’s another byproduct of the issue.
20 years ago my ferritin level was over 3000. It was off the scale. Still here, albeit with numerous ongoing health issues and operations. 75 yrs old now. The fifteen first years were the worst. Pain, opioids, chronic fatigue. I made it through and in my bonus life. I don't have high expectations - not able to do much, but I have someone to love, something to do and something to hope for, so I live thankfully. I am content.
Cod liver oil can send ferritin levels soaring.
God bless you
@@michellemcdermott2026 God has done that, tks. Give thanks in EVERYTHING. Very important. Doing that has made this life a most interesting journey. Looking forward to the next.
@@steinarbruun3852 me too
@@michellemcdermott2026 Do u have Iron overload and always hungry ?
I have hemochromatosis & have been ignoring it, after seeing your video im going to the doctors again, thanks for sharing this. Godspeed
Why would you ignore something that is so easily treated. You only have to give blood until your numbers are normal.
@@JoaninFlorida I have lots of side effects. 1 being severe dizziness. Also you don't only lose iron you lose valuable vitamins. All my vitamin levels drop also. Its just a aggravating situation.
Ive been at 2000 for so long. Even when getting treatment the lowest I've gotten was 1400 but then all the side effects.
@@floridadadvader What side effects are you having? I was at 3690 and I am down to just over 1500 in 5 months. I've been having a phlebotomy every other week and I just feel really tired afterward and need to take it easy for a day or two and I'm 69 years old. Are they giving you saline after they draw blood?
@@floridadadvader When I started donating I also started losing my equilibrium. I started getting sick immediately after phlebotomies so I stopped back in Dec 2017. Symptoms have been creeping up so I have to start again.
Thanks! I have a very similar story, but I got a genetic test that confirmed I have the homozygous C282Y mutation that causes classic heredity hemochromatosis. In other words, the iron overload mutation came from both of my parents. In 1996, archaeologists discovered the genetic source of iron overload. Bronze Age Viking skulls found in Scotland had intact DNA with the C282Y mutation that causes iron overload.
I’m iron deficient! I thought I could share why my iron levels are so low to help you guys. I’ve been taking high dose turmeric tablets for inflammation and that has severely stopped me absorbing iron.
Research it. Good luck!
How much is the doseage?
Often the issue is copper not iron.
@Islam‘s The Solution 4 Every Problem Tannins only inhibit absorbtion of non heme iron. It's important to make that distinction.
Thank you so very helpful video. My brother just been diagnosed with this! We had no heard of this before. Now going to get family checks done. Very useful helpful information on how you reduced your levels. Wishing you healthy happy time ahead!
@@Cork_UO Thank you, interesting!
After battleing leukemia and getting a bone marrow transplant, I had a level of 4000 it went unnoticed for almost 2 years. Then recently I was diagnosed with hemochromatosis. Dr says i have the mutated gene.
I have gotten my levels down as low as 800, which for me was the lorat in 4 years. I'm doing more consistent phlebotomies. And I hope to get back to a normal range which will be the first time in almost 4 reach a normal range. I just hope that didn't do too much damage to my body.
Thank you so much for sharing your story, have been feeling very fatigued lately even though I lead a healthy, actuve lifestyle. Blood tests showed my iron levels are way above the acceptable levels, my journey begins with more tests and bloodletting in the new year. Had no idea high iron levels were of concern until recently, great to see people trying to get the message across.
Please share how are you now .
@chuck4abuck1 had my latest blood tests 2 weeks ago, after several blood donations my levels are right where they should be, feeling much better.
Man Japan is one of my favorite places on Earth. I also have hemochromatosis… phlebotomy, diet, cat scans of liver (and pancreas). It’s been an over ten year battle for me. American doctors tend to not take it seriously. Thanks for the video good sir.
Did nobody ever tell you to donate blood?
no one takes it seriously, not a glamour disease
Makes me sad. No updates from him since this video. Hope he is ok? Wish he would update so we know he is ok.
Scary indeed
It is a condition that if managed you are ok. There is no cure but blood letting is effective. I imagine he is ok.
He is ok since January this year
@@abokoryussuf3834 how do you know
His instagram
600 Ferritin, that's nothing dood. Mine was 3,500 to start with. Now after 6 months weekly blood letting I'm down to 500. A friend at the clinic started at 11,000. However, his liver was damaged due to the iron overload. He is still alive but doesn't look too good.
Thank you for taking the time to make this video, much appreciated.
Sure thing A Celis, glad you found it helpful.
I had first notice a high ferritin level a few years back (around 500) and questioned it with my doctor. He said no worries because the liver enzyme tests came back as normal. Why the high ferritin then, I asked. Oh it is probably due to inflammation. I did a bit of research and became even more worried. Over the next 2 years the ferritin dropped a bit and came back up. I kept bugging the doctor about it and each time he would order some liver enzyme tests which turned out to be normal. In January 2021 after an online annual physical checkup, he sent me a requisition for lab work. He had skipped the ferritin test and went immediately for the liver enzyme tests which prove normal again. Heck, I wondered what was the ferritin level. My blood glucose was a bit high so I asked my doctor for a referral to a metabolic clinic. She order a full panel of tests to check for insulin resistance and cholesterol. I asked for a ferritin too. Everything came back as expected but the ferritin was 799! She claimed that ferritin was not her area of expertise and that she would recommend to my GP a referral to a hematologist. Meanwhile I started to take Ip6 with inositol 2000 mg daily. Three months later the ferritin went down to 575. Meanwhile I stopped taking Crestor because she suggested that the blood sugar problem could be cause by statins. To my dismay, the cholesterol went through the roof, so I went back on the Crestor. Meanwhile, my GP called to ask what was going on with my cholesterol so I took the opportunity to ask whether he had received the recommendation from the metabolic doctor regarding seeing a hematologist. He said no communication was received from the metabolic doctor, and besides it would be unlikely that a hematologist would accept me because there is nothing wrong with my liver enzymes and hematologists see mostly patients with serious problems like liver cancer. Jeez, there is no way out of this conundrum! Okay, let me see in 3 months whether the ip6 with inositol will further reduce the ferritin. What calmed me down a bit was the fact that studies have shown that organ damage rarely occurs with ferritin below 1000. This was a statement given by a specialist in hemochromatosis.
Thank you for sharing the story. My ferritin level is in the 500s. Maybe I should take IP6 too.
@@dvrrollers4436 I recommend that you watch the video titled “IP6 & Elevated Iron.” The channel is Daniel.Schlenger. He stresses the importance of testing often to make sure you get the desired results, and to adjust to dosage to the changes in ferritin levels.
How are your levels now? I have the same thing as you. Normal liver results but high ferritin. If you stop taking IP6 did it go up again?
@@LencoTB It hovers around 500. I haven’t had it tested for over one year. I am due for blood tests in May. I will let you know then.
@@lilystonne4108 yeah please let me know. It would be interesting to see how the results are. Are you taking IP6 or are pausing with it?
Awesome video. Makes me feel more comfortable. I too experienced this, healthy, exercised, and had high liver enzymes. I tested negative for hemochromatosis but I have very high ferritin levels. Around 1,250! I'm now doing phlebotomy. And am working towards recovery
instaBlaster...
what was the cause then since you were negative for hemochromatosis??
@@user-im6fy4qp6m he needs copper bit does not know, read the book CUre.
@@user-im6fy4qp6mferritin can get cranked up like that when your body is inflamed or has an infection or other issues going on
Thanks, Rich! This video is very informative. Yesterday (3-4-24), I had the result of my hemachromatosis test at 794 from the previous 791 two months ago. I wish you have have an updated video on the same topic. Thanks, and God Bless!
I have C282Y mutation my parents have each one on this gene, my grandfather die because of this. My ferritin is good for now, but i have many complications, breast cancer, pain and arthritis, menopause at 45 years old, and other things. I need to change my diet because i think I’m not gonna live well so long. The doctor don’t help too much, he said he never knows about this desease. When I asked him to take this test he looked at me as if I were from another planet. This disease is very present in my family, and after my cancer I felt the urgency to know if I too had. In Quebec we have 1/300 people with this mutation. Doctors should be more aware. Thank you so much for all the explanations it's very useful
It sounds like you need a great specialist. Mayo clinic in Jacksonville, Fl has a HH department. I will be there in march. I have the same situation with my doctor. They do not how to guide you, but they know how to get paid.
do your research
Thank you for your video, i just discovered i have it, my iron is high for almost 10 years, my Dr never told me about it until I asked to be tested, hope u feel better since is almost 3 years u made this video!🙏
Hi Rich, I first watched your video about 9 months ago and it was very informative. Will you do an updated on your progress please?
You are a great communicator. Very thorough and effective. I really got a lot from this. Thanks.
Me too would like to Thank You for your very informative video...well done...👍🇺🇸
I was diagnosed 5 yrs ago at 64. Ferritin level got up to 4700. Doctors not quite sure why I lived and without organ damage. But, numerous types of other long term damage that makes my daily life hard. Long story, hope I can tell it sometime.
I feel like my diabetes, arthritis, and hypogonadism could have been prevented if they had checked my iron levels some years back when I first complained of issues.
@@Cork_UO same thing happen to me
bloody amazing.... dodged a bullet there
My peak ferritin was 3,856. If I wrote a book on my hemochromatosis experience, it would be as long as "War and Peace"!
OMG...
what level was it when you first found out? did you notice symptoms
Ferritin just over 3,700 at diagnosis. It was symptoms that sent me to the doctor. I had extreme fatigue and rapidly increasing hair loss, as well as a variety of other issues, like irregular heartbeats, leg tremors, swallowing problems, joint pain, etc. @@user-im6fy4qp6m
And of course the liver enzymes were high, but I still wasn't prepared for the shock of the cirrhosis diagnosis (also was told I had liver cancer--on two separate occasions--but it turned out I didn't)
@@crackedshamrock
A man I know with a Scot-Irish heritage -- he's a "Mc" -- and a non-drinker, is facing liver transplant surgery. An early diagnosis would've helped him.
Awesome man, I appreciate you, and you explained very well, may Allah protect us from all kinds of deceases
I have a similar story Rich, totally didn't see this coming. High Liver Enzymes, some fatigue, but it was caught early. So glad for amazing Health Professionals.
I have the same story as you. Good luck.
@@peterjohnson8469 Do u have also High hemoglobin ?
Hi I'm a month away from my 38th Birthday. I have just been diagnosed with haemochromatosis. I have had so much anxiety about it, as I'm feeling so unwell I worry I'd feel this way forever. Thanks for making this video it helps to know I'm not alone. Even if I'm all the way in Australia 😊
How are you now?
Hey Leah. I know your message is 2 years old but I'm 38 and my Doc just told me my iron levels are really high. I got freaked out when I discovered my Hemotologist was in a cancer center. This video really helped me feel better. I'm wondering how your experience has been?
how high?did you notice any sympptoms? im at 675 which is barely elevated and have cartilage pain in my joints for days if i do too much phsyical activity. also problems with reflux@@dlodato052584
some great u tube vids from Australia deep dives.
My eldest brother had it , died from cirrhosis of the liver mid forty, his heavy drinking didn't help, my mother wanted to test my son for it , he was still in primary school, I suspected my mother wanted a donor for my brother, I refused the test for it and said he was to young for the procedure and it may never be a problem for him so it was an unnecessary procedure and that I would have a note made on our medical documents that a family member had it for future reference. Family members are also the first people they test for donor organs (I've always told my two children to be nice to each other , cause you never know when you might need a kidney in joking) , my brother was a chomo, he died on the toilet .
Symptoms don’t usually show up until someone is in their 40s , and by then there may already be some damage. If I were you I’d test myself and my children. Women usually have problems in men’s pause bc they are longer bleeding. Extra iron deposits sit in many areas of the body from joints to liver to pancreas which can lead to early diabetes or cardiomyopathy. Catch it early so you don’t have to play catch up after organ damage.
Thank you for sharing your journey. I'm waiting on my script to start bloodletting, leaching 😉. My levels are at 1400!! I am 44 and experiencing so many horrible symptoms. It can really will mess you up. Stay healthy my friends. ❤
Just waiting to get the 100% go ahead that mine condition is Haemochromatosis…hate feeling unwell and my life feels like it’s on hold.Onwards and upwards!
if you don't mind me asking, what kind of symptoms were you experiencing with ferritin levels at 1400? Im curious because i may be going through the same thing.
I either need to learn phlebotomy or start farming leeches.
408 here. Seeing a phlebotomist this weekend for the first time. I suspect this was due to an chronically infected abscesses tooth I had for over a decade.
I was at 1860 ug/l of ferritin. Normal is between 50 - 150 for men. Hemochromatosis markers from both parents. Year & a half of phlebotomies and I'm back to normal range. Fortunately no organ damage.
How did you manage that? and is there any treatment is still going on?
@@anumichael9925 Whats your symptomps
@Casey Anthony UFC Dizziness, headache, shortness of breath, heart palpitations, anxiety ?
@@Skybluewindcool This is what I have now.!!!
Sky, that's what I'm starting to feel as well..
I have Hemochromatosis as well. Luckily found out sooner rather than later. Also being checked for diabetes. I'm going to try IP6 and blood letting and maybe donating blood. I was taking turmeric for symptoms before and it seemed to have helped, but I didn't know I had it at the time. Going to start taking turmeric daily again. Also going to cut out most foods and supplements with iron. It's definitely good to know that I have it so I can take action now. I found out the nutritional yeast I just started taking has too much iron in it for me and I started having symptoms when I took some of that and had eggs and spinach and other foods with it.
Iron can be a killer, higher iron associated with early death
super lucky you caught that before you aged further and continued to increase ferritin. i only have a single H63D mutation but in my 40s was elevating saturation. ferritin was still normal. even that was starting to increase my a1c and lower testosterone. blood donations a few times per year pulled that saturation right in line and like magic the other issues vanished. it's honestly easier and healthier to eat normally and just donate blood to manage iron ESPECIALLY if you have a pair of mutations, c282y, h63d or s65c. listening to your story it's HIGHLY likely you are a single gene carrier of one of the minor mutations either h63d {most common} or s65c. the fact your diet had that kind of an impact and some blood donations pulled you right in line is a good hint. it's how a lot of us celtic folks are. the history or iron overload traces back to the vikings which is why most all of us that have it are from the british isles / germany / holland / france right in that circle of the world. people who have 2 copies of c282y have it much harder. oh, if you haven't already noticed. if you bring your ferritin all the way down to 10 it's pretty likely you will have joint pain / fatigue that will normalize if you raise it to even 25 or so. everyone is different but 25-40 is my happy ferritin zone. at 10 i'm achey
25 to 40 what? How is it being measured?.... nanograms per milliliter?
@@MikeG-js1jt In the US, yes, ng/mL. DIfferent labs have different reference ranges but in the 2 I've used one was 25 for the low and the other was 30 for serum ferritin.
im in the mid 600s and have joint pains how mcuh worse can it get if i go lower?@@mathfaster
You may want to look into IP-6. Seen it work very effectively in lowering levels in patients with ferritin in excessive of 2000. Dosage can be quite high at around 1500mg TID.
I have also found a single high dose of 4 grams of IP6 on empty stomach has also worked well.
Hi Peter! Hope you are perfect in health!
Can you please, give us more details about IP-6?
Have you tried it and for how long?
Any side effects?
Can you suggest a special brand?
Thank you!
I ordered is it working
@@cadewahl1956 how long you been taking.
try to eat brown rice everyday bc it has phylate in it, it prevents iron absorption. Mung bean is also help, too. Put Mung Bean into brown rice. Drink milk, tea, etc..
Thanks for the info Jeff. I learned about other foods that can prevent iron absorption such as calcium but wasn't aware that brown rice and mung bean also prevent iron absorption.
@@richgolden375 i don't have iron overload but i do know mung bean and brown rice are really good. Don't eat white rice..eat brown rice..it's better than white rice. Also, use Sauna 3-4x a week..it will help you with iron overload and make sure u take shower right away to wash it off or it will reabsorb it back into your body...use tower to wipe off sweating and take shower after sauna... it will help
@@richgolden375 There is a supplement called IP6 which chelates (removes) iron (it's made from rice husks and contains phylate). I tried it and my ferritin did reduce but my doctor told me to stop. It actually chelates all the bi-valent minerals in the body, so zinc, copper, magnesium as well so its not recommended. Phlebotomy is the best/safest way.
@@aginginflammationandironov6371 Thanks for the reply Iron. I hadn't heard of IP6 before and, from your description, it doesn't sound like it's worth it.
My doctor (in Japan) had also mentioned the possibility of using Deferoxamine, which needs to be injected and includes such wonderful side effects like diarrhea, vomiting, fever, hearing loss, and eye problems. It seems Deforexamine is prescribed as a last case resort in the west so I pushed back against taking it and will stick with phlebotomies for treatment.
Thank you for this video and sharing your experience. I guarantee you are saving lives. I wish you all the best in health and happiness.
What a great explanation of iron overload. I was told there wasn't anything to be done about it, but you've gotten your's under control, that's really encouraging! Thanks so much!
Thats because the cure is blood letting. Which isn't something that can be sold by pharmaceutical companies.
useless.
I just had my bloodwork done for the first time at 28, my iron levels were super high. My physician wants me to do more testing for hereditary hemochromatosis. Since I've been vegan for 10 years, I was worried my iron and such would be low (I took a vegan multivitamin with 18mg iron daily) I've now cut out iron from my multivitamins and I measure daily iron intake on my cronometer app. I wasnt expecting this news, but im glad I found out early on. Great video, very informative! 🙂
I'm in the middle of similar scenario & ran across interesting info about our systems being depleted of copper (due to SAD, pesticides, glyphosate, etc). Seems copper regulates iron in the body (as well as other great things). A bisglycinate chelate form is touted as more bioavailable. It is helping but I think I'll also be needing the therapeutic phlebotomies as well.
Thank you Rich for sharing your story. It has helped me with understanding my lectures on Iron overload and Hemochromatosis. I hope to help persons with this condition in the future!
A white guy, with a Japanese accent?
I had no idea that the body accumulated iron over your lifetime.
Small acute accumulation of iron leads to a decreased lifetime. There have already been proven data.
Now the question is how do you remove the iron that has slowly moved into your organs? Because once it starts moving to your organs they start creating an oxidative reaction. How do ypu remove auch iron from your organs?
Thank you so much for your story Rich! Will you be posting a video any time soon on your progress? Hemochromatosis is such a complex condition, it's nice hearing people's stories like that of yourself. My husband and I are currently looking into whether or not he has it.
why you both doing screening???
@@doctoratiq😂👍🏼
no mention of copper, it regulates iron, according to the book "Cure your fatigue" by Morley Robbins. Of course you have to donate blood, and ferritin levels in blood is not the way to check, but unless you a super rare or lost lots of blood 95% of ppl have iron overload
I have a very high ferritin level & I used to donate my blood every year but now they wont accept my blood as my level is too high. Its not easy here either in France...
I'm going through this right now. That's why I'm looking at this video.
Me too. I hope you are doing better now 6 months later.
Dude ! Your helping people.
Where the hell are you. are you ok ?
Post something!
🙏
Thank you so much for doing this video!!! It was extremely helpful and I wish you the best on your journey!
Thanks! Just went in for a checkup blood test today and will get the results by the end of the week. Feel a lot better now that the phlebotomies are over and I'm well on the road to recovery (if not fully recovered - gotta wait and see the test results)
Rich was so blessed to have met a good doctor to guide him, answer his questions and calm him down with such alarming news of his health.
His story was well reported, easy to follow and informative. 👍👍👍💚
Great video!! Thanks for doing this. Yes lets keep raising awareness!
My step dad developed this as he aged. For other reasons he went on a keto diet for four months, lost 40 pounds, then continued to eat healthy. His iron problem went away.
Did you try fasting?
interesting. So Keto diet solved his iron overload problem? what was his ferritin level?
@@CapCashOG I can't say it was the keto diet. Perhaps it was the weight loss or eating healthy. Perhapes, he had insulin resistants or fatty liver or a combination and once he got healthier the iron problem went away.
Oh... the iron problem then rooted from insulin resistance? So he is now ok with iron rich food? His iron level is also ok? He can eat red meat?
@@mrs.gemstone its been over a year and no problems. No more blood letting and he eats everything.
@@hicoteo it's amazing. He now reverse his disease completely. Good to hear. So for iron overload, insulin resistance is a key... thank you
Thanks. While my doctor stuffed around re my high iron levels, I researched natural methods and started them (I have a medical background). I used turmeric, green tea, IP6 btw meals, lactoferrin, cabbage in various forms, bragg ACV. I also followed the morley robbins protocol to repair the damages, and hardly ate any red meat. I did get strong chelation symptoms so took liver herbs etc. Took nearly one year, but continue to rebalance the damage.
Thanks for sharing Kids Future. Interesting to hear about natural iron chelation methods and absorption prevention methods.
For those not familiar, iron chelation refers to something that can help remove the iron already stored in your body (such as tumeric) whereas other things such as calcium can prevent iron absorption in the first place.
Any reason why you didn't want to undergo phlebotomy to reduce your iron levels?
@@richgolden375 there are 2 methods... 1. Phlebotomy 2. use chelator to decrease IRON... it depends on your doctor ...
@@BabyGangsterIsMe As I've said in other reply chelation is a little dangerous because it chelates zinc. copper and manganese as well, which is not so good. Phlebotomy is the best approach if your veins can take it.
Please understand this is not a long term solution. You will also be losing other needed nutrients if you do this. The only current practical solution is regular phlebotomy/venesection. I stay healthy, follow a vegetarian diet, but I still need venesection every 6 months now (initially I needed it weekly, then monthly, then 3 monthly)
how are you doing now? what helped the most
Hello everyone. I am writing from Mongolia. My dad´s ferritin level is almost 700. Local hospital took an MRI just few days ago and his diagnose is second stage liver cancer. My dad is not taking it well. 😭 As I have read on the internet iron deposit in the liver can be look like cancer. Could you please tell me how your liver looked like when you are first diagnosed hemochromatosis? It would be much appreciated 🙏🙏🙏
4 years ago I went to my primary care doctor feeling so awful. Bad fatigue and all over muscle aches well I had to do routine blood work and my liver enzymes were high and ferritin levels were in the high 800s. I was immediate sent a referral to hemotology. I went through 3 theraputic philbotomies and hated it. I have bad veins and only one arm that's good for giving blood. The needle is big and I'm such a baby. Well long story short my ferritin levels went back to normal and things were ok. I don't have the gene for hereditary hemocromatosis so I'm not sure why this happened to me. Now I'm feeling awful again so I figure my levels are high again. 😬 I just need to find the root cause.
Are you always hungry and dizziness and heart palpitations n balance problem due to this
What are you feeling now? I was just diagnosed today and I will be getting giving blood every couple of weeks for a few months. I have been looking for somebody that has mentioned the muscle aches as I don’t see that as a symptom very often but it is my primary symptom. Muscle aches, fatigue, and brain fog. Let me know how you’re feeling.
those are side effects of statins....@@wmauibill
@@Skybluewindcool no not always hungry, dizzy but I do have rapid heartbeat. I was mainly tired all the time and feeling just unwell.
@@wmauibill I'm doing good now. I check my ferritin levels during routine blood work and they have been normal. Yes the muscle aches were crazy and the exhaustion. Just feeling unwell. At the time I was working and over weight and didn't take care of myself. I started intermittent fasting and it helped my entire body. Not saying that will help everyone but it helped me. My liver enzymes are now normal too. I still from time to time check my ferritin and liver enzymes when I'm feeling off but they have been normal for awhile now. Let me know if you have any more questions. Good luck with that philbotomies.
I found out I have hereditary hemochromatosis after taking a 23andMe DNA test. Fortunately my liver function was not affected yet but I had developed osteoarthritis, type 2 diabetes, and hypogonadism which was likely caused by my hemochromatosis. I started out with 1600 ferritin. After 6 months of weekly phlebotomies I got down to 30 ferritin but it left me very anemic.
Weekly phlebotomy, that sounds cheap.
Can you explain how 23andMe helped you? I have read that after you pay for 23andMe you still have to pay another company to interpret the raw data and give you clear and decoded results.
@@LencoTB I'm not sure what you mean by "helped me". I bought the kit, sent in the sample, and they emailed me the results. I didn't have to pay anyone else.
@@g00se0017 My insurance pays for it.
Thank you so much! Very helpful information and i do hope you’re blessed with good health! Love!
I have always had low ferratin, it helped to cut out sugar and a lot of coffee. I was eating a lot of sugar. Maby not the best tips, but it can help you guys to not obsorbe too much iron😅
Thank you for sharing your story. I was recently diagnosed with Hereditary Hemochromatosis and it has been an interesting process going through treatment.
Let me tell you you do not want it down to 10. The range hasn’t been changed since it was created. Here the normal is around 15-200. Doctor here in America say optimal is 100. I’m in America. I had to have 3 man made iron infusions. The days after the infusions were painful to the bone. That’s the bone marrow working. I felt so much better. When mine is below 30 I feel bad.
you are probably low in copper and retinol. they regulate iron
Thanks for your video, I hope you succeed in your goal for lower iron. Will be good to see an update
I like him very positive and well spoken
Such an old video but so helpful thank you 🙏 hope all is well with you now.
Thank you for sharing your experience, very helpful information. Wish you all the best.
So how are you doing now and what did you eat?
Hi Rich, how are you going now a few years later ? going through the motions now but only at the start of the journey. Thanks for sharing this.
Thank you! I enjoyed watching your video (actually had several good laughs). A family member has hereditary hemochromatosis. I tested myself, and I do not have it, but acknowledge that I may be a carrier. So awareness is needed!
I went through the same thing. I get a phlebotomy every 4 months 500 ml .
Thanks for sharing, I recently due to COVID discovered the same after an special blood exam recommended by the WHO (which includes ferritin mandatory) , now I need to inform to my endocrinologist to get an action plan, fortunately I am in the 500ish ferritin level but could be a life threatening issue if the version of COVID I had was a severe one. So dodged a bullet this time. The good thing about your case is you basically prevented a lot of diseases, you could develop diabetes or maybe a stroke. I don´t know why ferritin analysis and detection must be included in any health check blood exams, here in my country you specifically need to ask for it and pay an as extra fee to the laboratory.
yes Insane, most common genetic disease, needs one cheap test.Ignored.
Thank you for the video. I wonder how you are doing now. I just found out my ferritin levels are high and my dr suggested donating blood
I'm pretty sure the word..phlebotomy .. the PH .. lebotomy .. sounds like the letter F .. which may explain the inability to pronounce the word .. fl - ebotomy.
Diet seems to work a bit when one leaves the natural iron binding phytate in the food ..“Soy protein with native phytate significantly reduced tHcy (P = 0.017), transferrin saturation (P = 0.027), and ferritin (P = 0.029), whereas soy protein with native isoflavones had no effect on any variables.”
I went carnivore at 77. Highly suggest it. Will look at more recent of your videos to see it you have advanced.
Bro are you still doing video? Where are you now? All videos was 2yrs ago before pandemic...
We are the same sickness my iron is 986 after 1 month down to 600 exactly what you have experience is my experience..
Thanks so much for this video...I have had elevated liver enzymes for a about 20 years...tested positive for both hemachromatosis genes...iron levels have been slightly elevated....just went for a liver ultrasound and awaiting the results of that...I will be going on a more stringent weight loss program through a dietician in November and doing everything I can to get things back on track...don't have all the information yet but I also believe in radically taking the bull by the horns and doing whatever is needed to restore one's being to optimal health.... mentally, spiritually, and physically. All the best.
Thanks for the comment and wish you the best in getting your liver enzymes down. I also admire your gung-ho spirit and taking the steps you can now to improve your health, even without all the information. I'm a big fan of the "ready -> fire -> aim" philosophy, where you do enough preparation and due diligence to get started, then actually go for it and adjust based on what you find along the way.
Thank you for sharing this information with us. ♥️✋
Much love and wishes for good health
You are in Japan and there are few cases, probably because there are some Northen Europeans. In Bulgaria (southeastern Europe) there are no cases of hereditary hemochromatosis. My daughter went for a genetic screening for all diseases and they found a heterozygous C282Y. Then it turns out that it is from me - I also am heterozygous carrier of the mutation. Latest research states that hemochromatosis can be found even in people that are heterozygous. For the moment my ferritin levels are 370 and I started a diet change. hope to lower it that way
Dealing with the same issue. Ferritin count started at 534 in March. Cutting out high iron foods for 2 mos brought the count down to May number of 503. Another blood test Aug 14th.....we’ll c what that reveals. I’ve been on vacation.....that should b interesting!!!
Hi Texas native, glad to hear you noticed the high ferritin relatively early on (at 532). In my experience cutting out high iron foods (such as read meat) got me off to a good start in reducing my ferritin, but the real drops started with the weekly phlebotomies. Good luck with your post vacation checkup and continuing treatment & recovery!
Hai.. How is your condition now
be aware that ferritin level can change 15% from day to day
mine was 800 , already have liver fibrosis. once they started taking out blood monthly, i felt better after it dropped below 300
Good to hear you got your ferritin down to 300 and are feeling better. Did your doctor mention if your liver will start to heal from the fibrosis now that you've lowered your ferritin level?
@@richgolden375 yes, liver appears normal.
Thank god your liver is healing.
And I found mine today 600
Curious to know if he stated the numbers of his low blood pressure.
Amazing story! Very informative. Thank you for sharing. I'm curious about my Ferritin levels now and will get them checked.
Great story. I hope you are well.
Thank you so much for this video. My brother has just been diagnosed and he is wondering what to do.
Drink lots of cabbage juice [use a blender ------ > half a cabbage + 2 cups of water] also eat lots of cabbage - coleslaw, kimchi. As excess cabbage can cause goiter [cabbage depletes iodine = goitrogenic], you'll need to add a drop or two of lugol iodine. Takes about 2-3 months for iron level to normalize. I read that lactoferrin which is found in milk, cheese, etc. can also help. The richest source of lactoferrin is colostrum. Best is to work with a doctor or medical people as low iron is just as bad.
blog.valerieaurora.org/2019/04/06/iron-and-cheese-how-i-used-lactoferrin-to-treat-iron-overload-part-3/
Why not try IP6? It lowers ferretin
Great info, and great job self-correcting your diet. I so enjoyed this> Thanks
Thanks!
I’m 47 years old and my ferritin is at 1090. 🤦♂️
Waiting for my appt. with the phlebotomist.
I'm hypothyroid patient and my ferritin level low my doctor suggested me monofer infusion after this my face colour few shade darker. After 45 days I checked my ferritin level it's 380 it's too much higher before infusion my ferritin level is 29. It's dangerous for me . Can I drink lemon water for reduce it?
I haven't heard of drinking lemon water as a way to lower ferritin levels. If your ferritin levels are a concern I'd suggest you follow up with your doctor, especially as you're a hypothyroid patient as well.
What does it mean when mine is not hereditary. My ferritin is 600, but hemoglobin is low. I'm confused! Thanks for sharing
Thanks! My ferritin is 740 I’m seeing my dr on Friday!
Anyone know if low blood pressure was caused by the high ferritin?
Hi Rich thanks for sharing I've got a 90% polycythaemia diagnosis, but a Dr I work with says I might have hemochromatosis also as my ferritin is very high but folate was normal, thanks for sharing your story :)
Hi Faye, thanks for sharing your story as well.
From my understanding high ferritin is one sign of hemochromatosis, but there are other factors to take into account as well (such as transferrin saturation). That's why, despite my high ferritin levels, my doctor wanted to take a liver biopsy to confirm his hunch before starting phlebotomy to treat hemochromatosis. My dad's DNA test showed that he is likely an unaffected carrier of hereditary hemochromatosis, thus I got to skip the biopsy and head straight to phlebotomy. Lucky me :)
Wishing you a speedy recover for polychythaemia and (potential) hemochromatosis!
I have the C282Y and H63D from both sides but did not get my diagnosis till age 62 and had a ferritin level over 1500.
It was just too late. I am in liver failure, portal hypertension and presence of esophageal varices.
I had no clue what was wrong...but was told I have a year, possibly two.
I never heard of this disease before.
They did not offer transplant?
Despite ur IRON deposits in liver, portal vein THICKENED (became hypertensive). And lead to low blood flow into Liver. Liver doesn't get failed that quick due to iron overload unless you skipped few important symptoms such as pain, sorry to hear....but anyone having early signs at US Scan level might apply CASTER OIL externally (Cysts, Periportal Thickness, Coarse Echotexture)....
There is a thing call MRI that you can do to check.
My Ferritin is almost 600, but my doctor said it was normal. Obviously not if it is supposed to be under100.
Hello, my mom is a kidney patient. She has very high levels of iron (Ferritin). She needs to grow her blood cells too as she has low blood hemoglobin. As a kidney patient, can You tell me how she can lower her iron level and higher her blood cell level at the same time? You can suggest a diet chart or any kind of medication or exercise as well as whatever you like to move on.
Ketogenic diet?
Your problems were compounded (apparently) by poor medical monitoring from the start. Blood pressure should be a routine check on your health, the first thing done if you are suspected to be unwell, and ferritin should be automatically included in any really thorough blood test (although perhaps in Japan the genetic disposition for haemochromatosis may be rare so not a moderately routine blood test).
Hi. I was covid 19 affected in aug. In hospital dr check my blood. Found ferritine level 780. after 4 days it was 1800. But when my fever gone after 4 days, it come down to 708. After my discharge from hospital again i check after 5 days. Ferritine level was 704. Tomorrow dt 9 sept 20 i am going to visit my lever specialist dr. Hope everything will be ok. 😣
Just had a bunch of blood tests done 2 weeks ago, asked for the whole package caused hadn't had any for years, and found out my Ferritin is 540.
Thanks for this video.
Glad to hear you caught the high ferritin relatively early. As some of the other comments mentioned (but I didn't mention in the video) is that inflammation can also cause high ferritin levels, so be sure to follow up with your doctor and try to track down the cause. Good luck!
@@richgolden375 Thanks a lot. Hope you are getting good too.
This is an amazing testimony! Thank you
@JoaninFlorida I had to self-refer to a liver clinic, where a CT scan was ordered, followed by a biopsy. The hematologists I've seen do not seem to be aware of the harmful effects iron has on the liver.
Thank you so much for sharing your story, it’s been very helpful God bless you.
Thank you for sharing your experiences
mine was 800 but I had surgery and then I had an infection so I am waiting 3 weeks to do my test again to see where I am
Rich , how are you doing now?
As of today (1-22-22)your video is 2 years old.