Intramuscular Pressure Is Almost Three Times Higher in Fibromyalgia Patients
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- เผยแพร่เมื่อ 6 เม.ย. 2021
- Intramuscular Pressure Is Almost Three Times Higher in Fibromyalgia Patients: A Possible Mechanism for Understanding the Muscle Pain and Tenderness
Robert S. Katz, Frank Leavitt, Alexandra Katz Small and Ben J. Small
The Journal of Rheumatology April 2021, 48 (4) 598-602; DOI: doi.org/10.3899/jrheum.191068
I've been trying to make doctors understand this muscle stiffness for years. I've described it as living your life with resistance rubber bands (like you find at the gym) attached to your arms and legs. It's exhausting.
Mine is that but it is excruciating as well at the same time. It feels like i was beat with a hammer all over by body. Do you get that too its especially like that in the morning or when you wake up from any sleep time?
@@wendyjomendy Sometimes. It also hurts to be touched.
That's a perfect way to explain it. I've got to use it. Even if they don't believe us.
Perfect description ! This is exactly how it feels.
I sometimes likened it to walking in mud. You feel that resistance when you walk.
"Rheumatologists haven't understood fibromyalgia?" No, Rheumatologists go out of their way to humiliate fibromyalgia patients until they're afraid to seek treatment of any sort. Who's going to perform these tests? Not Rheumatologists, they think you're a hypochondriac. Not PCPs, they'll pat your hand and send you to see a counselor. Fibro/CFS/ME specialists? Oh, wait, there aren't any.
It’s really a struggle, so many suffering and the medical field not helping. I am still seeking a dr. Who treats ME and have to ask if they even believe it’s a real condition! Where do you even start to find a care plan? You face all kinds of “opinions” and can find no real knowledge. It’s embarrassing to have professionals tell you it’s in your head, or think you’re just lazy, or physical therapists tell you to exercise more, the blame is all on the patient. I hope they catch up.
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help......
@@lindakelley2676 Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help......
@@stivemichel8021 why do you think we are here? Coz we like to watch videos about fibromyalgia? Why can't you just say what you know?
££?
@@aldastroud9671 email me
This makes sense to me and validates what many of my fellow sufferers are feeling. In my 20s, I would tell people that it was very painful for my 7 lb cat to walk on me. Or someone leaning on me, or poking me playfully. And in what we now know as a flare, I would say that my hair and fingernails even hurt. Does anyone recall the fairy tale called “the Princess and the Pea”? That is us. I am 70 now and at least there is a name for my pain. Still, so many people think it is a psychological condition and therefore not real and makes me very hesitant to say the word. I have also become very fearful of anything that will exacerbate my pain, like sweeping the floor, running the vacuum, lifting mild loads, even walking. So basically I am shutting down to a normal life. It is REAL and fortunately most of my family knows it is real and are very supportive.
Makes sense to me too that its pressure
My fibromyalgia started under my fingernails and toenails. It moved throughout my body. Even to move my eyes was so painful. At one point the bottoms of my feet hurt too bad to stand up. I had to crawl to get my children ready for school. It has been 43 years of pain. A warm climate helped, accupuncture got me walking again, ant venom drops under my tongue stopped the pain but the clinic that gave it closed in Las Vegas.
I keeping saying to anyone who asking me how described fibromyalgia. If fibromyalgia has color my whole body is purple,black,yellow all over me,even my hair is painful. I have this since 2000, and my muscles are always tense even with muscle relax. Fibromyalgia with depression and generalized anxiety disorder is a living hell. I’m not myself anymore.
I hope you are doing better than before.
I was diagnosed in 2008 with polyfibromyalgia rheumatica. I live on opioids mainly for shoulder pain.....but since then, I've developed Arthrosis, restless leg syndrome - very bad stomach ulcers. I am in chronic pain with mobility issues....at almost 65 I have no quality of life bcz my legs are tight & some days won't support me. I live alone...except for the animals I've saved from outdoors...4 cats to care for & racoons that come to feed. I prefer animals to people...so it's ok to be alone. I know how to spend my time. It's near impossible to make plans, as one never knows how bad the pain is as weather affects it, etc. I try to stay positive. One last thing: chronic pain wears a person down. It's unrelenting- always there! On the positive type of thinking...I say "pain reminds me that I'm alive" because the other option is to be limited by it. Yes, o must pace myself. Do too much in one day, may require 3 days to recoup... it's a challenging balance.
If elevated muscle pressure is a contributor to FM, then things like daily stretching, regular massage, magnesium, hot baths, heated pool therapy & muscle relaxants should help us.
Me too. Blood test FMa
Please watch some videos by Dr Ken Berry. The diet he talks about has put my fibromyalgia almost to rest. It absolutely changed and saved the quality of my life. Good luck!
I strongly suggest that all people in constant pain listen to Stanford's Pain Department lectures on TH-cam-- there are a number of them. Additionally, check to see if your Healthcare plan has a pain clinic available--if so, get a referral from your provider to b see seen by them. Chronic pain is a tough nut to crack and requires the patient to understand what is going on with them. Chronic pain is real pain that involves understanding and retraining the pain neurotags in the brain. Most of all, do listen to those Stanford lectures.
I've had it for 20 plus yrs now.
I've found hold cold therapy helps greatly. Baths or I do sauna and cold pool at a gym twice a week. It's my number one prioriry, as it helps decrease inflammation ( and I believe the fibres stick together)which is what our muscles do after activity. If anything is done then it builds daily.
So I've found stretching in the sauna, then walking in the cold water very helpful, as well as natural antiinflammatories daily, and conventional ( celebrex) on days of exercise or lots of activity.
Staying mobile is important ( so stretching in my chair for at least a few minutes a day), plus staying hydrated ( 1 cup per hr), and staying away from too much sugar and processed food is important to.
Also keep positive, focus on what you can do, and let go of victim mentality. I am grateful I am able to do what's needed and all I've learnt about myself and the world during this time.💖
I've had fibromyalgia for about 30 years. It has wrecked my life. On a positive note, I've learned patience and how to slow down.
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help.
Same for me. My life is a painful joke. I'll be glad when it's done to be honest.
@@simonwilson1810
chelsea
mckenzy1
Gmai l.
@@simonwilson1810 that’s my email address, email me
Ditto..
I've had FMS / CFS for 27yrs.. nothing really works! I cant understand the torture of this disease! And only those who have it knows how hard it is to live with! The pain, the sleeplessness, the fatigue.. and the fact those who dont have it will never believe the pain we endure. But for God I wouldn't make it one more day! May God help You each one!
Opiods helped me and then they just stopped prescribing. Life was barely manageable on medications, it’s a living torturous hell without. The CDC went on the warpath and punishes legitimate sufferers because of the actions of addicts, without differentiation. Now, pain clinics will only prescribe “buprenorphine” which doesn’t work for everyone. It’s shameful that doctors have abandoned pain patients and leave them to suffer, refusing to treat them or give them options.
Try kratom
@@alholds what are you suggesting? I don't know what "Kraton" is !! Might you please explain?
@@malkaringel7864 wow, I take kratom for fibromyalgia. It’s a natural opioid made from plants in Malaysia. Google it and see if it’s available in your state or country
@@alholds thanks 👍 I'll do that!
@@malkaringel7864 it definitely helped me after coming off tramadol,
God bless Dr. Katz and all others working to alleviate this body and thus soul crushing condition. I turn 44y/o in a week, have had Fibromyalgia since age 3; with PTSD (non-military), awful quality sleep, daily head to toe pain too to bottom, anxiety, depression, cognitive and memory issues (Fibrofog), and truly vile IBS. I was misdiagnosed with Muscular Dystrophy at age 6 in 1985, when “Fibro” was beyond a “myth crazy people make up for attention”. That was overturned in 1998, and I spent the next 3 years and many after to be correctly diagnosed with Fibromyalgia.
Hearing there are up and coming tests is thrilling! All I want is a real life! Since I’ve had Fibro and PTSD since 3 (a couple “gifts” from an estranged, hyper-violent father who visited twice in my childhood and beat everybody…), I had to do the “Process of Elimination” tests. 3-5 rheumatology visits, specialists for bones/other musculoskeletal conditions 3x+ times, 3x 20-22 sessions of physical therapy of all forms (I was told by PT’s only 15% of Fibro patients made ANY progress while 85% were made WORSE. I was yelled at by several doctors for showing up to appointments I was referred to for *WASTING THEIR TIME*: “There is NO HOPE for YOU! Quit going to doctors hoping we can help you! We can’t!” . I was put on Methadone and Xanax for over 20 years by doctors who actually cared and worked together for over a decade to settle on, after much trial and error, to provide relief far more effective than anything tried before. It was so helpful!! Then both doctors eventually retired. Since then, new greedy, egotistical/God-Complexed doctors have 1. Refused to continue those medications and cut me cold Turkey from both (*extremely* dangerous/I could have died and wished I had. Now despite CDC reversing their regulations and actually apologizing openly on November 3, 2022, encouraging all MD’s and Nurse Practitioners to PLEASE prescribe opioids again, as the their 2016 guidelines were proven false, forcing actual severe/extreme/chronic pain patients to suffer for no actual reason! Yet even healthcare providers operating on government funds are still scared.
Why? Because they’re too proud to look at the 20 pristine years of records I have showing safe and most effective yet found help for this crushing pain and all related conditions!
My Fibromyalgia pain levels have skyrocketed after being taken off the medications compassionate doctors got the very best, SAFE (uncommon combinations, as all are different, but SAFE). New doctors are to proud to even read patient records beyond 1-3 months! What’s the point of records? These same doctors have computers do 90% of their work for them *while* making far more money than their predecessors of just 2-3 decades ago did! They want status, $, yachts, Islands, jets, mansions, cars… YOU as a patient are to most (not all) doctors a free cash machine. They don’t care if you suffer or die or endure torture that wrecks your social and romantic life, can easily destroy any ability to work or make any dreams come true no matter how hard you try. That is ALL TRUE in 2023. I cannot exist another 44 years like this. I can’t. Nobody could, and nobody should have to!
If anyone needs to talk about their fibromyalgia experience, I’m @stradlemonkey on Twitter, and always open to hearing from legitimate people who deserve to be heard. As a man who’s had it over 40 of my 44 years, I have a LOT of experience and knowledge and am aware of how cold and dark some doctors can be. Find me there! God bless all with this horrible condition and bless those trying to advance diagnosis and treatment!!! Just please, no scoffers, as I block them all. God loves us even when every day is a 8-10 on a pain scale! I *will* listen!
I've had fibromyalgia for more than 20 years now and I have pain in my skin too. If someone touches my skin or pokes me it hurts so much that I can still feel it hours later. Anyone else have that? I hate being in pain constantly. My life has been a depressing mess. I had a doctor tell me I needed psychiatric help! He dropped me as a patient. It was very hurtful. I also suffer from CFS and Lyme disease and I was just diagnosed with rhumetoid arthritis.
allodynia is my main problem other than brain fog. one day i could barely wash my arms in the shower because it hurt that bad to touch them, even gently. it doesn't last for hours for me but a gentle poke hurts 10/10 and i can feel it throbbing in that exact spots for a few minutes after. i got my medical marijuana card for anxiety and i find it helps with my fibromyalgia symptoms because it keeps my stress and anxiety down and helps me get to sleep
@@tourmii Oh how I wish medical Marijuana was legal here in Texas where I live. This state is so backwards 😒 smh.
@@Texasgrrl77 maybe see if you can find some cbd lotion and see if it helps at all with the "tender skin" that's actually how i explained it to my doctor too lol it can be a little expensive and it doesn't help mine a TON but it does help a little bit and it could help out with other body aches too. topical creams with things like arnica and comfrey could possibly be helpful for your muscle and joint pains too, you can maybe find them at little health food stores or stores like whole foods but can definitely find some of that online too on etsy and amazon and those are normally cheaper than cbd! etsy has some bath teas for chronic pain too. i've made those for myself with my own herb combos and have found that they help quite a bit. i hope if you try any of this that it's at least a little helpful ❤ being in pain is exhausting- physically and mentally
Yes I have pain with my skin too
My skin hurts also. Especially when I first wake up my skin burns and tingles painfully. It feels like my cells are being electrically charged and are colliding with each other. I live in a basement apartment and my upstairs landlord controls the air-conditioning. I'm lucky if it's 64 degrees down here and I sweat and freeze at the same time. The pain is so bad that I could scream and I sometimes do. Does anyone else have this electric pain in their skin?
You are definitely on the right track doctor! Look into vegus nerve degeneration, there’s many connections to fibromyalgia, and this is one I would ask doctors to look into!
I have have always thought my FMS & Chronic Fatigue is related to trauma, I have experienced. My hypothesis was some malfunction in the RAS, and the Fight/Flight/Freeze response. Perhaps your work will lead to greater understanding. Bravo
My fibro presented after I was rear ended by a van. My sons presented when his brother/my son died at 24 yrs. My daughter's fibro presented when her boyfriend fell off the map, just disappeared. She thought something bad had happened for 2 o r 3 months. Definitely is genetic. Definitely manifests itself through traumatic events.
@@nancyegan841Sounds crazy-
But seen these things in many people my whole life..
Even me.
Indeed, the muscular-skeletal system of those suffering from fibromyalgia appears to be under very high pressure at various locations. This is the result of fascia, connective tissue, which has gone wild and which pulls together almost all other tissues, often in the same specific places, into dense rock-hard lumps. This pressure, with all its consequences, falls mainly on vital nerve fibres deep inside the trunk.
Also almost all problems in the limbs are a direct consequence of this defect. In many cases, by using my method, in which I apply a very high pressure with my hands to the affected places in the body, a fast meaningful recovery or considerable relief can take place.
Especially in cases with incorrectly diagnosed fibromyalgia, there appear to be good possibilities for recovery. For example, many symptoms of Lyme disease, MS, TOS and Sciatica, etc., are quite similar and can produce the same fibromyalgic phenomena. And, of course, what we call "stress" remains a major still unknown factor in all possible causes.
I find that my muscles are always tensed. When I notice it, I have to focus on relaxing my muscles. And yes, the ADA really messed up the lives of real pain sufferers by limiting pain meds. I wish them all to suffer as we do.
Edit, I have had to relax my muscles at least 5 times in the last two minutes. It’s ongoing.
Edit, also biofeedback instructor had a device that measured muscle tension. I learned how to relax with it.
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help..
@@stivemichel8021 I also suffer from chronic daily migraine which adds to the problems. I injured my hip two years ago and still suffer that pain. Recently my right shoulder is giving me trouble when I raise my arm. I’m 66 and have had this since I was a child.
@@NanaSevers you need treatment ?
I can give you my email so you can contact me
@@stivemichel8021 where are you located?
My muscles are always tense too. I really have to focus as well, to relax them, especially at night. And I have a headache condition call Hemicrania Continua, which basically means a headache all the time, on my left side. For relaxation I sometimes use the “Calm” app to help relax.
It took almost 10 years to get diagnosed with fibromyalgia. I was on flexeril, Lexipro and trazadone, among others. Yes it helps with pain, but I felt like a zombie. I was tired all the time. Once I changed my diet to low carb (not technically keto), I finally got relief from the constant pain. I highly recommend some type of low carb diet for significant pain relief. For sleep I use medical marijuana indica capsules. I’m able to wake up refreshed instead of drugged. A low carb works better than all the prescriptions. I got off of 9 prescription pills, with the guidance of my acupuncturist. Deep tissue massage, acupuncture, magnesium and b1 have also made a huge difference. I wish more doctors would address diet instead of just prescribing pills. But it’s too bad that everything that helps is not covered by insurance.
I've been 6 months no change.
Exactly, esp gov ins. Thats a conflict of interest. It shows they dont care what helps the people.
Rather, it what helps their freemason friends on their quest for money.
While it keeps the .Gov in control which is most important to them.
If fibro patients had it in us we ALONE could take control back in doing so fix this hell hole of a country
Do the Indica capsules make you hungry? Cuz I know there's indica and sativa, but I also know that I am exceptionally sensitive to canbabis' appetite increasing effects. So I'm trying to find something that I can take that doesn't wake me up at 3 in the morning with the munchies! The last thing I need to do is to start putting on weight. That's one of the reasons why I've rejected the other medications I've been offered, that and the fact that I just don't want to take pharmaceuticals. So I would much rather address this through natural means. My friends were kind enough to make me this really cool tincture, all it is is 99% alcohol with a bunch of buds and stems thrown in it and then I fill up an old oil perfume roller bottle and use it as a roll on treatment and it works pretty good as far as a topical is concerned, however, I have some really deep pain that it just won't get too because it's too deep so I would like to be able to consume a product without worrying about eating everything in sight!
Few people actually come to realize diet and exercise play the biggest role in these ailments caused by food inflammation, sedentary lifestyles and toxic environmental influences chemically and others.
I live with it now for nearly 20 year. Sometimes very bad. Sometimes better. Bad one can't even wear clothes. It is very irritating. It feels like if my clothes has thorns in it. My skin goes even red where the clothes touch my skin
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help..
The most effective treatment i have used so far for fibromyalgia (that is more sustainable for me personally than prescription drugs) is taking a more quickly absorbable magnesium (magnesium glyconate) several times a day, and repairing my gut (see Body Ecology diet for one possible way to repair gut). Sweating every day (epsom salt baths or portable infrared sauna) also help me tremendously. Also, meditation, yoga, qigong or tai chi at end of day are a drug free way to relax the mind and body. I also get that at times, it is exhausting to do these things but there are ways to improve symptoms without prescription meds for those who have too many side effects from the proposed Rx meds or are looking for additional ways to improve health in addition to rx meds.
Love sauna. It’s my reward after exercise.
If you try Shaklee Alfalfa for detox. It will help cleanse the Colon it may help.
Fortunately, I live in Colorado. If it weren't for medical marijuana life would be unbearable. The doktors gave me muscle relaxers, downers, opioids (offered me patches and pump), which all had horrible side effects, besides being drugged up all the time. Forget that! I'll smoke a bowl or have a cup of tea, thank you very much.
getting my patient card was the best decision i ever made
Makes sense, I’m physician and I have been inflicted by Fibromyalgia since 2013, I used some over the counter muscle relaxants in the beginning and they helped somewhat initially, but as Fibromyalgia progressed and got complicated with Chronic fatigue I find that they’re no longer effective and they add to the brain fog that I experience in the first half of the day. The high muscle pressure is very convincing for me as I have been documenting my level of discomfort in relation to the barometric pressure, the lower the atmospheric pressure the higher and more debilitating the pain along with the other symptoms.
I have approached my rheumatologist with the notion that atmospheric energy changes in the electromagnetic spectrum are impacting me long before barometric pressure is affected. We’re walking towers of hemoglobin in electrolytic fluid. We’re walking antennae in electronic environments. It’s bound to be affecting our central nervous system and inducing stray signals.
Yes, the barometric pressure falling, and even the day before it starts to fall, the full body pain is exquisite.
I'm here in bed because of really bad pain. The pain started amping up last night, when a tropical storm was coming on shore. Coincidence? No. I respond this way to every storm. My neurologist and my pain specialist both have told me that most of their patients suffer when there is a weather change. Yet, there is nothing they can suggest to help endure until the weather is normal again. I've had CFS for more than 25 years. Treatment has not really improved since I was diagnosed in 1997.
@@hollywebster6844 I'm sorry. I feel your pain both literally and metaphorically. 💐❤
I’m affected by high wind. Sounds nuts but I can predict rain/storms from average of 400 miles away.
I have developed a muscular release therapy under the hypothesis of all disease being of a sympathetic muscular reaction interfering with normal human function . Muscles tend to have been activated for fight and protection from a neurological perception (fused) . I call it loaded unexploded . We are but a reactive organiam responding to the threat of a real or perceived environment. The pressure also manifests in the bone causing hardening reducing bloodflow and bone and joint regeneration. It's good that your studies are proving this intra muscular tension. I would suggest you study the likes of Parkinson's patients as you cannot have tremor without extreme intramuscular tension .
If elevated muscle pressure is a contributor to FM, then things like daily stretching, regular massage, magnesium, hot baths, heated pool therapy & muscle relaxants should help us. I know my muscles are always tense with many of them like rocks.
I was diagnosed with FIBROMYALGIA, chronic fatigue pain,l also have Hypothyroidism!, l have had pain problems as a child l also use to have terrible pain in the leg muscles as a child my mother would say it was only growing pains , but l have hurt all over all my life , no doctors have ever addressed this pain, only about 15-20 years ago was finally diagnosed with fibromyalgia, chronic fatigue, they never ran blood work on autoimmune diseases, which l think l may have the thyroid autoimmune disease, they never thought to run further test on me , because l have always tried the walk it off mentality , that’s basically the way l was raised stop complaining “ it will go away “ but now lam 73 1/2 and still having severe symptoms, also the fogginess and flu like symptoms every day, lam too sick to even look around for a doctor to help me! I am to the point of giving up and going to a State where they allow you to die , because this stuff l have is a living Hell
@@florabraswell8423 so sorry to hear of your struggles. I’m suffering from fibromyalgia as well. I need to get better because need to find job. I’m going to try magnesium glycinate & other suggestions given by others who suffer same as us. Doctors aren’t helping because most don’t understand or believe in fibromyalgia. I’ve seen rheumatologist & she referred me back to my PCP, PCP had referred me to rheumatologist. It’s very stressful to suffer in so much pain & have to deal with these doctors. No one ever performed the muscular test. When I told my PCP that I was diagnosed with fibromyalgia he asked me what do I take for depression. I don’t suffer from depression & never been diagnosed with depression. These quacks are not worth our money because they definitely don’t care. I’ll pray for you along with everyone who suffers.🙏
When I get any kind of massage or touch therapy, I feel a constilation of referral pressure/sweet pain through my body in totally unrelated areas but I can feel their connection. The relief is signficant. This makes a lot of sense with what I am experiencing.
My fibromyalgia pain is highly manageable due to the sleep cocktail. I use 2 mg of lorazepam and 20 mg of cyclobenzaprine. If I try to sleep without these things I sleep fitfully and wake up in pain. I also use a low dose of gabapentin. I sleep very well and wake up not feeling wiped out. It helps me out a great deal because the fibromyalgia is secondary to Huntington's disease which is more than enough to deal with.
Fibromyalgia feels like being in a bar room brawl, without the obvious signs.
No one is qualified to talk about it, only the people suffering from it are the experts. Mornings are the worst , walking like a robot because your legs are tight and painful.
Good example the bar room brawl. I say it feels like you got rolled under a moving truck just short of being crushed by it.
He hasn’t had _anyone_ who’s had problems with 22 gauge needles?! With fibromyalgia?! I tried to do the nerve conduction studies on one arm. They could do the part down my arm to my hand one time because they could use the stickers around my fingers. They had to stop the part checking my neck to shoulder because I immediately started sobbing when the first needle was inserted - before any electricity was applied - and had to have it removed. I told the doctor it felt like I was being stabbed with a tiny, _burning_ sword. I don’t know how all these studies keep finding people with FMS who can tolerate all the needles, muscle biopsies, etc.
I believe this completely. The muscle pressure is one of my worst symptoms . I get what they say about the nerve pain issue too . I get lots of nerve pain . I am right now in severe muscle pain and I know its the muscle . I often feel like I have a 20 pound person hanging off my shoulders and their weight presses painfully into every muscle in my back . When I go for my walk , that 20 pounds quickly turns to 50 . The only relief comes from muscle relaxants and real sleep .
Muscle pressure is my worst symptom as well , but trying to get help for sleep with muscle relaxants in the UK is very difficult .... no doctors want to give them out ..
Yes
I know pain. I've had all types but whats most debilitating is Fibromyalgia.
It hurts all over, inside and out. In the northeast where weather is amped up high and barometric pressure is low it's so bad that in the fall 2 days into it you begin getting suicidal ideation's.
Im aware that doctors givenoaths but im also aware of the old boys network getting each others back.
If it was one of them they'd be getting everything they needed to reduce pain and gain quality of life.
Gawd I wish I could get out of pain!!!!
Leg cramps are newer issues for me, severe joint issues mainly.
However, your description sounds like how my legs feel!!!
Thanks 🙏
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help
Magnesium is good for that.
Wow! I have been saying to my new Doctor for nearly a year now that if I could have low dose muscle relaxants I would be able to function a little better. On my last visit I asked for a short course and he refused even though my previous Doctor had prescribed me 2mg Diazepam. I just keep being told to top up with Paracetamol when the pain gets too much, but the pain intensifies when my muscles tighten to the point I can hardly move. I'm in the UK and I would gladly give my right arm for a Doctor like Dr. Robert Katz. I was diagnosed with Fibromyalgia in 2008 and the way I have been treated has worsened to the point of dismissal. I saw a Locum a few months ago and after checking my notes on the PC did no less than put up a screen that shown "How long do I treat a Chronic Pain Patient for?" UNBELIEVABLE.
How wonderful it is to listen to this doctor ...
Finally! THANK YOU! No one thinks you really hurt as bad as you do. It is SO painful, an 8-9 every day. We need help. Thank you. Muscle relaxers don't help me at all though
I even get muscle pain in my face and head. Weird feeling like my head is being pushed, pulled and twisted. I’m a 20 year sufferer but noticed muscle problems since I was 7 years old. Lately I wake up after two - three hours feeling like I have deep bruising across my back and horrible pain throughout my body.
This sounds interesting, I can find no further information about this.
Look at personality traits like people pleasing and perfectionism which cause someone to ignore their needs in favour of others (anxious preoccupied and fearful avoidant attachment primarily).
These create huge mental load and that impacts the body.
I've had fibromyalgia and CFS for many years I also have chronic pain and osteoarthritis my muscles ache so much and my pain is unbearable but no prescription help me even pain clinic cannot help me I hate this totally robbed me of a normal life I don't sleep well due to pain and stiffness
Yes!! It sucks!!!!
🥵😭🥵😭
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help
Try a yeast free diet
Helped me
✌❤🌍
It’s a whole helluva lot of work, but I managed to get beyond this stage. God bless you with stamina and resolve.
I wake up with my hands clenched. Relax? I d/n how. Always on standby for a tremenous spasm at the most
undesirable moment. CFS, Polym &,Fibromy. Bad enough having just one issue but I put on my mask (happy face) then
go home and crash. But, I know there's thousands in the same situation. Former Realtor for 20 yrs who helped the lower end
folks get a home, I dragged them all over the county, hunted for the best cheap home, then sat & held their hand during
processing application & tangled with appraisers but I did it because the 'posh agents' did not want to help them. Then I
spent 10 yrs fighting with s.s. disability because back in the day the drs. just shrugged their shoulders. Today is somewhat
better. Rambling here, sorry. Pa./N.C. baby boomer. I refused strong meds. Pgh. specialist has me on Lexapro, gentle/rarely
a side effect. WOW. Thank you Lord.
Wow... this is amazing.
My fibromyalgia started in my neck muscles 15 years ago, it’s always been my muscles and ligaments pain. Every muscle in my body is affected with severe spasms that I felt I needed emergency room treatment. I get this everyday and night. Magnesium helps. Also ice pack for instant neck pain relief. Hurts so much to do this but it works. Tried acupuncture but was to painful in wrists and ankles, made me scream out in agony, they had to be taken out, I’ll never try that again. Vitamin injection helped, gave me a burst of much needed energy!
What all does that indicate, the the muscle pressure is 3 times higher??
Also tunning forks vibration and sound frequency really helps! So relaxing it takes you to another world of pure bliss.
Im excited about this. Now people know how fibro pain feels . It feels like someone is pinching/twisting your muscle and not letting go.
I wish I could remember more... There were needleless procedures developed to use on newborns where surgeries could be done on their TINY veins. It worked.
Statins caused all my troubles
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help.
Yeah but what causes the muscle pressure?
Wonderful that this needle can determine the pressures as proof of level of pain but we in Australia have been give all the muscle relaxants for years with not much improvement in pain if only he was suggesting other ways of treatment but all he mentioned has been tried over and over and the side affects of these drugs make your life even harder to deal with.
I spend a fortune on CBD gummies, thank god I live in Oregon.
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help
Cannabis has been a game changer for me. It doesn’t seem to affect me like it does friends I’ve been around who are high. I don’t get goofy or any other typical sigh. Just relief of pain. But to hear there’s an objective test proving fibro feels like a relief in and of itself, really!
So true. 3 weeks ago I had a muscle spasm behind my right knee and it took 3 days to heal. It limited the ability to move my leg and my ability to walk. Diagnosed Fibromyalgia/Osteoarthritis. 😩
And another question is we all know fibro has a multitude of symptoms such as anxiety depression tummy aches how you gonna target those as well?
Fibro is multi symptomatic and therefore you generally need different medications to treat the different symptoms. I take Topirimate for the migraines, Zolpidem to sleep and Benzodizepines and Muscle relaxants to relax the muscles. Then my life is bearable. The other symptoms I simply cope with, using OTC medication as and when necessary. I don't smoke, don't drink, and you never hear me complain about my Fibro. Before Covid I was dancing (Ballroom and Latin American) up to 14 hours per week. I'm 65 years old and have had Fibro since age 14, but only got it formally diagnosed at age 63, even though I knew exactly what I had 5 years before getting it diagnosed
@@melanieoreilly2565 I'm much younger, diagnosed 5 years back, if I go dancing next day I'm in much pain, can't understand your fibromyalgia
I'm not trying to be a downer, but I really want to caution people about taking recommendations from comment sections from people they don't know. Every time I tell someone I have fibro, I get so much unsolicited advice I want to bang my head against a wall. Pain sufferers are constantly targeted by companies and individuals trying to sell supplements at premium prices that don't have anything other than anecdotal evidence to back up their products. Or they might cherry pick just enough hopeful sounding excerpts from a single isolated study and make conclusions that aren't yet supported by actual findings. That doesn't necessarily mean certain supplements or therapies wouldn't be beneficial for you, but most laypeople lack the level of understanding needed to evaluate if a study was done well and if the results are significant enough to make certain claims. Just do as much research as you can before investing a lot of money in something and definitely research the legitimacy of any studies cited for a product. Sometimes even studies published in scientific journals don't pass muster. Some good questions to keep in mind are: Was the study conducted by the company or a third party? (aka. Is there bias?) Was the study peer reviewed? What was the sample size? Were there other studies with similar findings or was this the only one? Was the study controlled enough to make reasonable conclusions? If you know anyone with a masters or phd in the biological sciences, try asking them for their opinion on a study, or bring it to your pcp. I've been roped into purchasing lots of things over the years by people I felt were very trustworthy because I wanted to believe so badly they would make a significant difference in my quality of life. Some of them, were actually a bit helpful, however they were too expensive for me and the companies were MLM structured systems that incentivized you to spend all your time and energy on selling their products to other people and getting them to do the same. Anyone who tells me they "cured" their fibromyalgia, I look at with extreme scrutiny and skepticism. Even if your body responded well to a certain therapy, you can't claim that you cured your fibromyalgia. As far as medical science knows, fibro is a lifelong condition that will require maintenance throughout your entire life. Just because someone is fortunate enough to find a strategy that works well for their body and maybe has achieved longer periods of "remission", that doesn't mean things will stay that way. That also doesn't mean there is any guarantee it will work for others. Even drugs approved by the FDA specifically for fibro only help a small percentage of people. Again, not trying to be a downer, just wanting to share a word of caution with spending money on everything anyone says helped their auntie.
Fibromyalgia for 35 years almost bedridden now. Considering nerve spine stimulator to help with pain
Amazing finding.
I am 72 years old and have had Fibromyalgia since I was a very little girl. Having definitive testing is a tremendous breakthrough but what good will it do for all of us in the long run except to enable people to get disability. (That would be huge for many!) The drugs that he recommends are horrible.
@Susan Magario I was diagnosed in 2001 and stayed on pain medications and muscle relaxers. I would never feel much better on drugs. I started drinking golden milk turmeric tea, ginger, cinnamon, turmeric, coarse black pepper, and almond milk. I drink it twice a day, and it has reduced my inflammation and muscle pain way better than any drugs. I also changed my diet to mostly vegan. No sugar, gluten, dairy, or soy. Only sweetener I use is Raw unfiltered honey. I eat organic meats, no processed meats. No pre-packaged food.The doctor is right about it being the brain sending signals, but the gut flora is where everything in our bodies begins, and then the brain. Changing your gut flora works best with no drugs in your body. I make my golden milk tea different from what you will see others making on TH-cam.
@@karenredding9439 I cannot drink tea that is caffeinated because I have Essential Tremor. I can do without the extra shaking. LOL!
Please don’t let anyone convince you that there isn’t a cure for fibro, fibro can be treated. I’ve seen about 7 patients including my stepmomma get cured so if you’ve been suffering from chronic pain and fibromyalgia, there is treatment that really works. Contact me if you need help......
@@SueTwee Golden milk tea isn't made with any caffeine nor is ginger tea.
Agree
Ive got fibro...have had it for 4years...and it has ruined my life😢im in pain everyday...some days alil bettet than other days...i foung swimming and water excerises are so good and reliveing the body from so much pain...but then after swimming it comes back sometimes worse than before i swam😢i try so hard everyday to not be a burden on my partner😢he says he loves me and will care for me as long as i need him😊hes a good man❤he knows how painful it is, im so happy i have a partner in my life that understands my fibro pain.
I’ve had fibromyalgia for 10+ years and have taken Lyrica for at least that long and I’m so thankful it has worked so wonderfully for me. I still have mild symptoms and muscle stiffness has recently become one that is more noticeable. I thought maybe it was my imagination, but hearing so many of you talk about it Helps me to know that what I feel is valid. I highly recommend and encourage any of you that haven’t tried Lyrica to ask your doctor about it. It has given me such great relief for such a very long time. I fear the day that it may not work as well but for now it does and I am so grateful.
did u gain weight? I did...40 lbs 🙁 What dosage do you have & how often do you take it? I'm still on it because I would be in so much more pain if I didn't have it
I was given gabapentin in the past for something else and realize I can't take it because it causes my tongue to freeze in the middle of sentences and I can't speak so clearly it's doing something to the nerves in my brain or my tongue so unfortunately I can't take Lyrica either as it's closely related to gabapentin.😢
1. What causes the muscle tightness? 2. What other conditions can cause the same muscle tightness. 3. My wife has heightened surface pain ie on the skin. Could it be that the muscle condition is causing hypersensitivity to the skin?
4. Alternative tech could use ultrasound or other em reflectivity like pinging a cable under tension, different tension =different pitch.
This is interesting. However I do believe fibro has an Inflammation component. I at 40 a very thin have had to get rings cut off. I'm not sold have been on duloxatine for a about six years with relaxants.
Actually my physio therapist said that my Fibro has caused me joint damage. I had 3 years where I was bed bound and my muscles fatigued in my legs. The physio said because the muscles weren’t able to support the joint so the gap between the bones in my knees has shrunk. My bones grind on each other and it’s very painful.
I needed to use magnesium which I usually take at night hoping it will also help me sleep sometimes it seems to but in the past it gave me such bad diarrhea that I couldn't use it however a natural healing doctor told me I was using the wrong kind of magnesium and that I needed to use and magnesium tartrate. That will not give you diarrhea!
I take Cyclobenzaprine 30mg and Nabumetone 1,000mg daily and I do this consistently (not as needed). After I had been taking this level daily consistently, after about a month or so my pain was much better. Not ALL better, but much improved. I had bad reactions to the typical fibromyalgia drugs like Lyrica, Cymbalta, Savella and Gabapentin so can't take those. fibromyalgia diagnosed 2011 after MVA. vasovagal syncope diagnosed 2021. small fiber neuropathy diagnosed 2021. autonomic dysfunction diagnosed 2022. I have tons of autoimmune symptoms but no diagnosis in that arena (YET).
My fibro has only been under control with Cymbalta. But that eventually stopped working. Muscle relaxers never helped me personally.
Good luck finding a Dr that works this hard to understand. Most don’t care, your to difficult of a patient, they label you as hypochondriac, drug seeker, depressed, on and on. Tell you to see a cognitive therapy Dr or mindfulness. Ok Dr. Let’s see how well that works for nerve pain. It’s doesn’t
Thank you for any research work being done in this regard. Its frustrating tohave a tonne of symptoms and be dismissed with" its all in your head " or "get psychological help" when i dont see it being the root cause. Fibro patients can actually describe in minute detail, all the pathways the pain has travelled through.
Im still trying to understand if my jumping off the bed whilst asleephas anything to do with this condition. I sleep v fitfully.
The problem is that you see the psychology side of it as dismissal; it’s not. It IS the root cause.
That doesn’t mean your pain isn’t real - by every definition it is.
You didn’t wish this on yourself but the path out IS psychological, particularly in reducing internal pressure from things such as people pleasing and perfectionism which cause a conflict between what you need and what others expect of you.
Iam suffering from fibromyalgia almost 10yrs . Now I am frustrate of this disease
Is it fluid congestion that causes the intramuscular pressure to be so high?
Interesting, why is it that some drs think the pain is all in your head, my dr looks at me like im not right, my 2 sisters and niece have fibromialgia, my mam is riddled in athritis has plastic hips, and uses a walking stick.
Yep, and when you get irritable at them for suggesting it's all in your head, they said, "Well, technically, all pain is in your head..." As if that holds any meaning.
Some doctors are of the belief that if it didn’t happen to them, it didn’t happen.
I'm just seeing this video now and it's 2 years old. Why didn't my rheumatologist mention this? I've had Fibro for 40 years!
Probably because it hasn't caught on, and I'm sure your rheumatologist isn't watching spurious TH-cam videos for any tentative leads
Would the increased muscle pressure contribute to HBP?
Why not use magnesium to relax the muscles? It totally works.
It does indeed work as the stimulator of muscles to contract are Sodium & Calcium ions. Adequate Magnesium ions counteract the Calcium levels & can help muscles relax.
Not for me ,we are all different.
Oh no. Took my already high anxiety levels to off the charts. And it’s recommended for people with anxiety. Just goes to show that what works for one doesn’t work for another
@@lisaanders5374was it just a magnesium compound, or did it also contain B-vitamins
Have there been any links between ehlers-danlos syndrome and fibromyalgia?
I would be interested in the difference between the pressure in the muscle knots vs the muscle areas of a FM person in an area where there is not any knots.
I know that when I have RFA on my nerves that about two weeks after the knots start to dissolve and come back when the nerves regrow.
Which hospital/doctor in London investigates in this way?
How do you solve life? Cyclobenzaprine is my last resort: sooo drying heightens sinus congestion/headaches. Best: exercise stretches and sleep. It’s an uphill battle. Add prayer, rest and painting. Stress reduction.
You should look into seeing an upper cervical chiropractor it helped me out a lot. They take X rays and see if the C1 atlas bone in your neck is out of position and then they do gentle corrections so it's not interfering with the spinal cord.
Now please start testing painful tissues for elevated oxalate levels.
We also have to many emf electricity around us all. Read the invisible rainbow a history of electricity and life by Arthur Firstenberg.
Can diplopia (strabismus) be a symptom of fibromyalgia? (eye muscle)
So how would you treat something like intramuscumar pressure?
Muscle relaxers
This is what I try to explaine to my Doctors, how it feels. But they cant give me meds so, they say there is nothing they can do and a leave with nothing and in more pain then it was worth to get out.
Our rheumatologist in our city will not see fibromyalgia pts saying gps can treat w drugs approved by fda
🎉My pain is muscle, joint and bone pain. Fibromyalgia is a hideous disease which lives to the first 4 letters: HIDES. Very well so and it's so frustrating and utterly debilitating. 😢😢
i have been having severe upper back , shoulder and neck tightness and pain ( Fibro pain) and I could hardly function, I took one of my Atenolol 50mg tabs I had left from a script I used to take and I was pleasantly shocked when I woke up the next morning. I had a much better sleep but I also found that the muscle pressue was prob 80% improved from the night before. could fibro possibly be an issue with adrenaline?
this technique is helpful for diagnosis. I have fibromyalgia and have suffered all the conditions of pain, trouble sleeping and brain fog. I have seen a lot of the comments here about how different treatments help the pain and sleep. They all help, Magnesium spray and supplements help, drugs that treat neurological issues like gabapentin, and muscle relaxers all have helped. However, the sleep component is very important and no one here has mentioned CBN, cannabinoids found in the cannabis plant. It has no side effects, is not addictive, and gives me a good night's sleep. My doctor knows nothing about it. I had to research it and determine my personal dose on my own. But works it for me.
What anbout robaxin?? Instead of flexerile? Is robaxin addictive?
Did this test turn out to be effective?
Makes sense why cyclobenzaprine helps
After I have interacted with normal life, my muscles feel pulled at both ends. Like wrist to elbow area and elbow area to shoulder. The ends of my muscles are very sore, burn, feel on fire and are extremely pulled. Is this normal? Is this a normal for fibromyalgia? Or am I experiencing something else? Thank you for any insight.
Anything like you've described is typical of fibromyalgia.
I don't have tender muscle but tender fat. My tendons scream and joints freeze. I feel inflamed but have no swelling. Cymbalta helps but it is still there. If something touches my skin, even if I scratch it, I feel like it was hit with a bat. I am convinced it's relative to fat and carbohydrates. Like can fat hurt?
Try keto diet for some time or a month, fat with carbs is or maybe a problem but not meat and fat alone, and more than that it has to do with cns brain
I have this too. Along with diabetes. Withoht giving you my whole series of life causing pain events. I have a fusion in my neck. Pain meds no longer help as I believe it is a progressive disease. I have no quality of life. Nobody gets it! Recemtly I ve learned there is something that burst fat cells luidifying them thus fatty liver etc. So i want to try glucofort which i cannot afford. As it destroys the cells that burst fat cells.
Be weary with cymbalta make sure youre not on tramadol with it. As it can cause serotonin syndrome.
Also cymbalta has some narly side effects.
But what is the cause of the muscle pressure... I've been on muscle relaxants for a long time, it rebounds, it's a bandaid.
But what causes the increased pressure in the first place? Otherwise we are just treating the symptoms, not the disease.
Its muscular ,brain, nervous system and brain and spine and inflammation is a big problem for me blockages and a build up of poisons causes more illnesses while we wait for treatment mercury is a problem for me and floride
If I step on anything hard it is excruciating!
I noticed that the woman in the blue and white shirt was not relaxing her muscles as much as possible. I've had severe fibromyalgia since the early 90s. I received injections in my lower back for the severe pain, and after years of very painful shots I decided to completely relax my muscles one day, and I never had a painful injection again. This might be why the woman in the dark shirt had a 19 reading, her body did not seem to be tensed up while having the saline injected. I see that it has been 3 years since this video was made. Let's hope the Australian scientists come out with their pills that will help with fibromyalgia. I do not know the name of the medicine that they are working on, if you know more please let me know. Thanks.
No sound!!!
How many here have undergone a deworming protocol with pyrantel and ivermectin?
Proper electrolytes, hydration and massage, dilute and move toxins out of the muscle tissue after a couple weeks. BEEF JERKY DOESN'T STRETCH WELL. I have helped dozens of people with massage, castor oil heat packs, essential oils for pain, and gentle ROM stretches. Also probiotics and Epsom salts baths helped with the fatigue. I owned a therapeutic treatment clinic in Carnation Wa for a dozen years, had a six month waiting list to get in the door.
😮
Everybody. FMa BLOOD TEST.
I was diagnosed with fibro about 2010 but I’ve had symptoms for years before that. Two things changed my life: 1. Naltrexone 2. Carnivore diet. Naltrexone gave me my life back but after carnivore diet I don’t need naltrexone anymore. My fibromyalgia isn’t GONE completely but most days if I’m on the diet, it’s almost gone. And my fibromyalgia was so bad at one point I actually discussed with my sister that I might need to be on disability because I was barely able to do daily activities. All the drugs this guy is talking about were useless to me. I was on gabapentin and tramadol and fexeril and others. I was also taking iboprofen multiple times per day. No help. Antidepressants? Ineffective. For me and TONS of others who I’ve read about doing the carnivore diet, it changed my life. No drugs needed!
How long were you on carnivore before you noticed a difference in pain level please x
I noticed a difference within a week and it kept improving for probably 2-3 weeks until I felt like a new person.
@@SS-bi1nj really? That's wonderful 😊 I tried carnivore for nearly a month,never really helped I'm on high fat,high protein and lower carb which seems to have helped a little but it's taken over 3 weeks I'm hoping if I stick to it I'll have better results.maybe we all need to find what suits us and stick with it if you get results
Yes I’m sure each person’s needs are highly individual and may require more than one intervention. One thing for sure, cutting out processed foods and eating whole foods can’t possibly be a bad thing. Also, healing may take longer in some than others. Good luck!
Presumably your talking Low Dose Naltrexone LDN
Watch dr.Berry... on you tube ...excellent podcast on reducing pain using a particular diet...no drugs...worth a try...please check this doctor Berry out!!!
culprit: microwaves: it can last a few years before it disappears
Let me starting as a former nursing educator. Why are you touching a sterile needle close to injection insertion length? Second recapping the needle awwwwwww😂
Now as a fibromyalgia patient. My neck has been so stiff for a couple weeks now. I get shoulder pain the chiropractor relieves by stretching my neck. It stays gone too, about 6 months. He said I’m very tight in my neck, traps and area. I couldn’t figure out why. I was thinking my years of bending over a patient’s bed, but maybe not.
I’m learning so much between here and Dr Giverna(sp?)
Great... so forcing more drugs on me to fix symptoms instead of the cause.... and all based on another theory....
You can take the drugs and feel better, or complain and be in pain. Your choice