Thank you for this. I am going on 8 months. It’s been a roller coaster ride. Your comment about not forcing to eat things was the best! It makes me feel like it’s ok to not force myself to eat those things. Its like It’s just going to be time. I have a 2 nieces that are going through this too. One got better after 6 months. But my other niece is a year and a half in. But she has noticed some great changes at a year and a half. So I’m hoping at the beginning of the summer I can see some changes. Thanks again.
I’m so glad this resonated with you! I’m sorry that you’ve all had to go through this. It’s interesting though how everyone is improving on their own timeline. I thought I’d be at a different place 20 months in and I’m not. It got me thinking that I need to take my wins, and have no expectations on the timeline. I’ve improved in some ways and those same improvements got set back. The brain is still calibrating. I’m hopeful that it will heal. 🙏🏽🫶🏽🥰 for now we have our community. I’ll be getting back online this coming week.🐘 thank you for sharing your journey, Melanie!🌞
Hope you are doing well now. i have had parosmia since i got covid a few weeks ago and just learning what my safe foods are. it is scary not knowing when it will end but i am hoping for the best, and for everyone else to recover
I’m about 30% better. It’s been so long. I’m praying that everyone heals fully and completely. Thank you so much for sharing. I hope and pray that you heal asap🙌🏽🫶🏽🙏🏽
We have the exact same timeline! I resorted to making videos, as well. If we're gonna have this awful disorder, we may as well help each other get through it. Thanks for what you do! :)
Thanks for mentioning that other people see this as attention seeking or that think that this is not a big issue. My family bought a meal and I specifically asked for no meat, steamed vegetables only but i really cannot do meat (rancid). My brother is the only one that really understood, the rest just looked at me like i was strange. I don’t consider myself to have that attention seeking personality so it took me back a little when i saw that reaction from them looking at me like i was over exaggerating bc i asked my brother to serve food for me bc the vegetable was served next to grilled chicken and i was having a hard time serving myself. I had already explained to them i was having a difficult time to eat. I also experienced what you did, when you think a food is safe and then its not. What is helps me recently, i write lists of safe not safe foods, and looking at them to help me come up with recipes. I also realized for me that i have a better time with cold foods rather than hot.
Hi Cione, I’m so glad that you could relate to the video. I hope and pray that it served some purpose. Yes cold is Waaay better than hot! I’m sorry that it’s taking longer for your Loved ones to understand you and know what to do to better support you. I truly hope that they can begin to see what’s happening to you and help you. Try to set boundaries during mealtime. You need to eat before everyone else does so that if they prepare food can lock yourself up in your room if need be. Please check out my playlist for Parosmia as well so you can see if there’s any tips that might help you. I plan on doing a live Q&A next week so we can all chat about Parosmia. Welcome to the channel and I’m praying you heal sooner than later. Let me know if you’d be interested in joining me on a Q&A next week. I’ll post an update about it soon with details.🌞🙏🏽🌺
Hi Cione I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link. instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
Hey, I am new to your channel and all I can say is I’m so glad I came across your amazing Channel ❤️ Like u I have parosmia. I’ve had it for 7 months and it’s really difficult because most foods I eat/smell/drink taste like rotten and metallic. Being 17 years old and having autism and celiac disease has been always a struggle bc with my autism I found it hard to eat certain foods bc I was sensitive,but now I am a lot better and with my celiac it’s really difficult bc so many gluten free foods are so expensive and with some gluten free foods tasting like cardboard and then the parosmia has made everything 10 times worse. All I can say is we will fight this parosmia and we will have our taste and smell back. I promise ❤️❤️👍
Hi Angelina!! Thank you so much for sharing! This is such a difficult experience. I’m so glad that you finding strength and hopefulness amidst everything that you’re going through! Thank you for sharing your story 💕🌸🥰🙏🏽
I am suffering from 10 months,,, lots of improvement is going on. Now i am just unable to eat and smell onion, garlic, steamed vegetable, and i am a pure vegetarian. Hope we all are get recover soon... 😊😊
Hi There! That’s just terrible. I am glad you’re seeing improvement. Time will keep healing you. I plan on doing a Q&A next week. I’ll let you know the details in case you wanted to join us. The topic will be Parosmia.
Hi Annie I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link. instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
I am coming up to 8 months with this. I am kind of lucky in that I can tolerate most foods even though they don’t taste properly. I can drink coffee, for example, but I prefer not to for the most part bc it tastes weird. I’m vegan so no idea if meat would taste bad or good. Most veggies taste okay, but bland. I can eat garlic, but I don’t really taste it much. I couldn’t taste cilantro at all but last week I actually could taste it. So so strange. All the best to everyone.❤️
Thank you so much for sharing Shanna!! Sounds like you have a combination of Hyposmia and Parosmia. Have you ever been studied? I went to a study where they tested to see what I could identify and tolerate. I did the study when I was at my worst. Hyposmia was worse than Parosmia, I was shocked. It’s all very interesting. I’m glad that you can tolerate things and nourish yourself! 8 months is a long time. It’s a super strange disorder! I hope that you heal soon. And thank you for stopping by and sharing your story. Every bit helps the community!!🫶🏽🌞🌅
I am 20 months into this journey. I like you, have a pretty bad case of Parosmia. I refuse to push through the taste and smell... because I think I get sick when I eat stuff that has the "Covid" taste. I also believe in listening to my body, even when my body is not working the same. Every food you listed is also a trigger of mine, plus many more. I believe that time is the ultimate cure but until then I am doing my best to makr food as pleasurable as possible. I use different seasonings to help add flavor. I use very little processed foods. I don't cook "covid" foods in my house. I also take the time to garnish my plate. I have also found ways to simulate foods I missed. I can't do dill pickles, but I can do chickpeas so I brined them with vinegar, sugar, water, dill and then I roasted them. Have you tried salt and vinegar chips? They are a go to for me. Best wishes on your recovery and God bless 🙏
Wow that’s amazing. I’m going to jot down some of your tips not just for myself but for my next update. I’m going to try salt and vinegar chips. It’s so weird that majority of chips, even salt and pepper chips, contain garlic and onions. I’ll look for salt and vinegar chips without garlic and onions and hopefully this works. Thank you for all your suggestions and input. I’m so sorry it’s taken this long. Like you, I don’t eat anything unpleasant so that my meals are enjoyable but I’ll try garnishing them as well!! Such a great tip. For us, those little steps Go such a long way! Sincerely, thank you so much!!!🥰💪🏽 May you heal soon!!
Hi Renae I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link. instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
20 months going strong here too! Have completely forgotten what all my favorite scents smell like. I have a massive perfume collection that used to be one of my most prized possessions and I’m considering just throwing the whole thing away.
My timeline matches yours to a T! Had COVID in November 2020....then anosmia for 3-4 weeks..... then was THRILLED to have taste & smell back.....but that didn’t last long as it was yanked out from under me again when I got parosmia in February 2021. It’s uncanny how many people’s timelines match this exactly! Now everything either smells like STRONG vitamins (my urine, chicken, etc), burnt rubber tires (garlic), or months-old moldy sunken-in pumpkins/rotted earth/decaying sea algae smell (anything fresh, clean, floral, etc-think: soaps, shampoos, perfumes, cleaning supplies, etc). Totally sucks. Luckily most things taste ok, with the exception of chocolate. That one smells AND tastes wonky!! Hooray! 😒😓 one of my favorite things, turned yucky!
@@KarmasPeaces you’re welcome! Thank you for sharing your video as well! Sadly, everything still reeks! And I even got covid once more since I left my first comment, and it made my taste and smell diminish quite significantly. That was only about a month ago and it’s still not back to its full state. How’s your parosmia doing? Any improvements or updates?
I uploaded my latest update. Feel free to check my Parosmia playlist🤦🏽♀️lol. It’s been a challenge but thankfully there’s some improvement. I also share my experience going on vacation with Parosmia lol. Ambitious. There is hope for us however it just sucks that we have to go through this for so long. I’m about 10% better. Keep healing and thank you so much for being a part of my community. 🙌🏽
@@KarmasPeaces thank you-I’ll definitely check it out! I’m so glad to hear that you’re just a tiny, tiny bit better! You’re welcome! It’s so good to be able to connect with people who are going thru the same struggle bc I know absolutely no one in my life who still has lingering effects of covid...im the only one!....so it can be very lonely sometimes! I’m glad to have found a parosmia community! ❤️
Please consider going vegan. This could be a great fresh start for many. I am vegan, and I’m wondering if it has helped me with parosmia. I am able to tolerate and actually enjoy most of what I eat as a vegan. ❤
I totally understand what you mean. I was forced to be vegan the first year of this however for me it was most foods that I couldn’t do. I have gradually improved and definitely see benefits in healthier meals but unfortunately my case of Parosmia has been extreme. Now after 21 months I’m able to eat 8-10% of foods I normally ate. I do make my own vegan dressing with cashews, avocado and salt. I make vegan smoothies. But because I’m so limited with my meals I’m at the point of eating whatever I can to have sustenance and nourishment. Most vegetables I can’t have. There are still many fruits I can’t tolerate either. It’s not easy designing a vegan diet with such limited tolerance. Once I can unlock more foods like vegetables, especially, I can make the vegan switch. I wasn’t a big meat or dairy person to begin with lol. I hope that sometime this year I can report even more progress. Thank you for your sweet suggestion and sharing your story. I hope it helps someone here🥰🙌🏽🫶🏽❤️❤️
I can’t eat anything at a restaurant that’s made with “butter,” but they don’t use butter they use margarine or oil because I smell and taste it as fish. So I used to love grilled cheese sandwiches. But I can’t eat them anymore because I taste the oil or margarine used when they make it, and it smells and tastes like fish. I literally took one bite the other day at Mel’s drive in and almost hurled.
Hi There I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link. instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
I am at the 1 year point and I am struggling. Most sweets are acceptable and most carbs but most vegetables and a lot of fruit is horrible. Sometimes I have a day where something that was horrible tastes kind of acceptable (not good but not horrible) just slightly off and I get excited to be able to to tolerate that food and then the next day it's horrible again. It's messing with me sooo hard. I am sick and tired of carbs and sweets but am at a loss of what to eat. I keep trying things only to keep realizing I still can't have all these foods. Coffee was unacceptable for a while and I was so desperate for it. Now everytime I brew it I get hit by the "off" smell but I managed to make that my "normal" for Coffee now. It was a lot of battles with myself hating the taste but still wanting the coffee....gaking a sip and say no it's too bad but then still keep going back in hopes it would change. I am able to drink coffee even though it doesn't taste or smell like it but I think I could only do it cause I wanted it soooo bad and it was so horrible to make me gag or throw up. Onion, bell pepper and garlic make me want to throw up immediately and most other things are just bad not bad enough to make me throw up but bad enough to not wanting to eat the food.. Losing appetite over it. Sorry for my rant... I just feel no one around me understands how hard and devastating it is...
Hi Nina!!! This is a horrifying experience. I’m working on building a bigger community so that we can share ideas and experiences. I’m so so sorry that it’s so difficult. Every day is a battle. But this will pass and we will heal. In the meantime, I know it’s difficult but try not to eat or be around ANYTHING that bothers you. This helps. If people are cooking you may need to step out and have them air out the house for you. Their food should be put in airtight containers in the fridge. This around you need to see these videos as well. Thank you so much for sharing. I’ve been planning on doing a live ages ago. Let’s see if I can do one this week!🌞🥰I pray you heal sooner than later!!🌻
@@KarmasPeaces Thank you! It truly is such a battle every day. I hope my doctor can come up with something that can help. I have seen people plugging their nose and that works but those nose clips always slide of or have to be so tight that it is painful. I have been doing smell training for a while but don't really see it help🤷🏼♀️ I will talk to my doctor about Alpha lipoic acid on my upcoming visit and I am on a waiting list to see a nutritionist but am not sure what they can do but you never know, maybe they can help me navigate a bit. I had high hopes that it would get better at this one year mark....lets hope for this year. I hope we all can get some relieve and feel a some normalcy with food again. It's such a big part of everyday life. ❤️🙏
I should mention my side and my husband's side of the family try really hard to make meals that I can eat when we are over for am meal and it is very sweet. I just feel like a burden but I know they care. Some comments like try this or that are hard sometimes but I know they mean well. As long as their food is on the other side of the table and not right in front of me it's not too bad. I am getting more used to smelling the off smells and tasting it when it's mild. I am very grateful that family tries to do what they can even though they don't understand it fully.
That’s great Nina, we are blessed. So many sufferers don’t have understanding or supportive families. But even in the support they offer we feel terrible🤦🏽♀️ We don’t want to burden everyone or feel so vulnerable. I can sooo relate! As it gets lighter I think back to when almost everything was intolerable. It reminds me that there is slow healing. Some days it’s still very difficult. Thank you for sharing!!
You’re very welcome. Make sure to check out my Parosmia playlist. Then read the comments because everyone is trying different things. Also if you haven’t already please join the Facebook Support Group! facebook.com/groups/232669991396703/?ref=share
it’s almost been a week since I tested positive for COVID and I’m getting really bad phantosmia. I almost constantly feel a disgusting smell that seems to come from nowhere but I haven’t lost my sense of smell altogether. thank you for helping me identify what’s actually going on ❤️
You’re sooo welcome. I know it’s a rough journey. It was life altering for me. I’ve found strength through support groups on Facebook. I put the information in the description of some of my Parosmia videos. My family has been my strongest ally. Don’t push yourself. Protect yourself as much as you can feel the horrid smells. Also, try to burn sage. At first she bothered me but as time passed I’ve used it to clean the air and it definitely has helped with Parosmia and Phantosmia! Feel better soon🙌🏽🙌🏽🙌🏽🌞💵
Hi Charlotte! Some things feel worse while others have improved. It’s so interesting how it’s been unraveling. Stem cells sounds like a great idea. I’ll do some research and ask my doctor. 🙌🏽🌻I hope you heal soon. It’s horrific
@@KarmasPeaces thanks DEAR 💕 l am so Afraid cant eat anymore CANT injoy my life and drink coffie anymore 😖 even the air Smell s rotten l am so down l trayd smell traning and IT doesent Work so my only HOPE is stamcells do you Think if we get new stamcelles the neurons in the brain Will get the right smel again 💛🙏
I’m so sorry. In my opinion, Everything is a risk. We may create more damage than healing. This tiny neurons that became damaged are trying to heal. They need a stress free and calm environment, as far as I believe. I’m really confident that until they develop something, only time can heal us. Make a list of only the things you can eat and then see what creative foods you can make. The point is to steer clear of the harmful foods and smells. That causes stress on the body and I believe it can further harm our progress, at least from my own personal experience. Also join the support group on Facebook. Here’s the link. It’s helped me this loooong Year when I was at my wit’s end: facebook.com/groups/232669991396703/?ref=share @Charlotte Birgitte Thomsen
My daughter has Parosmia, she is getting a Stellate Ganglion Block injection tomorrow. This injection has a 85% success rate. I’ll let you know her results. 🤞🏻
Update: Injection went well, fairly simple procedure. Her smell has improved slightly, which helps with taste, but 10hrs later, results are not as expected. She has been extremely emotional all evening, disappointed. She was hoping this was going to be the fix after 7mo and 40lbs later. It has been hell on a 17yo girl. We might try a second injection on the opposite side just to make sure we did all we could. Will be talking to the dr tomorrow. I’ll keep you updated. Good luck to you as well.
Thank you soooo much for the update. I can’t imagine how a 17 year old must be feeling. I can only hope that this injection will at least expedite her healing time.
@@cainefamilycaine7852 that's very unfortunate... I hope the second attempt has much more promising results! I can imagine how she must be feeling as well as yourself... It's likely very hard watching your daughter like this... Fingers crossed for the second time!
Many people with testimonials of it working. I am on week one, and have seen significant improvement, like smelling peanut butter, which I couldn’t even get close to before. Plus other things. I made sure with a doctor, but it seems like it has healed a ton of people
Somebody once said they noticed complex smells that are not just 1 single scent oftentimes smells the worst and that simple things smell the best....and I have found that to be true for me. Perfumes with many “notes” smell awful, but a simple candle made with 1 essential oil smells a bit more accurate. The only exception to this is garlic, for me. Clearly garlic is just 1 scent-itself!-however it smells horrible and so so distorted to me! I was in the car with my mom recently and the car in front of us almost got in a accident and slammed on their brakes and skidded and left some streaks in the road and my mom said “wow, smell their tires?!” and I said back to her “I literally thought I was smelling food from the restaurant over there. 🥲”
Wow! I can relate to this. Garlic is the villain in my story. In the beginning, the same was true of perfumes for me. Now after much oil diffusing and burning sage, I can tolerate most perfumes and a few of them smell accurate. Unfortunately, there are quite a lot of simple smells that are debilitating for me, like peanut butter, chocolate, etc. However, I still believe your theory to be true for the most part. The hardest part for me has been accepting that my reality is not theirs. Feels like I’m living in an alternate universe and I have to quickly figure it how to balance both worlds without going nuts lol!! 🙌🏽🙏🏽🫶🏽
@@KarmasPeaces Weird, I wonder what it is about garlic!! Oh also chocolate smells and tastes horrible to me too!!! And wow yes I totally know what you mean about having to cope with your body being completely unable to accurately perceive the reality around you. It’s utterly infuriating!! It makes you not trust your own body if you cannot trust one of your 5 senses!!
Thank you for this. I am going on 8 months. It’s been a roller coaster ride. Your comment about not forcing to eat things was the best! It makes me feel like it’s ok to not force myself to eat those things. Its like It’s just going to be time. I have a 2 nieces that are going through this too. One got better after 6 months. But my other niece is a year and a half in. But she has noticed some great changes at a year and a half. So I’m hoping at the beginning of the summer I can see some changes. Thanks again.
I’m so glad this resonated with you! I’m sorry that you’ve all had to go through this. It’s interesting though how everyone is improving on their own timeline. I thought I’d be at a different place 20 months in and I’m not. It got me thinking that I need to take my wins, and have no expectations on the timeline. I’ve improved in some ways and those same improvements got set back. The brain is still calibrating. I’m hopeful that it will heal. 🙏🏽🫶🏽🥰 for now we have our community. I’ll be getting back online this coming week.🐘 thank you for sharing your journey, Melanie!🌞
Hope you are doing well now. i have had parosmia since i got covid a few weeks ago and just learning what my safe foods are. it is scary not knowing when it will end but i am hoping for the best, and for everyone else to recover
I’m about 30% better. It’s been so long. I’m praying that everyone heals fully and completely. Thank you so much for sharing. I hope and pray that you heal asap🙌🏽🫶🏽🙏🏽
We have the exact same timeline! I resorted to making videos, as well. If we're gonna have this awful disorder, we may as well help each other get through it. Thanks for what you do! :)
Aww Hannah!!! Hang in there! Its mind boggling and crazy but we just have to keep pushing. It will be over soon enough. 🙌🏽🥰
@@KarmasPeaces I have to believe it for us! :D
@@parosmiapal Yessss we do!!
We really do🌞🌅
Thanks for mentioning that other people see this as attention seeking or that think that this is not a big issue. My family bought a meal and I specifically asked for no meat, steamed vegetables only but i really cannot do meat (rancid). My brother is the only one that really understood, the rest just looked at me like i was strange. I don’t consider myself to have that attention seeking personality so it took me back a little when i saw that reaction from them looking at me like i was over exaggerating bc i asked my brother to serve food for me bc the vegetable was served next to grilled chicken and i was having a hard time serving myself. I had already explained to them i was having a difficult time to eat. I also experienced what you did, when you think a food is safe and then its not. What is helps me recently, i write lists of safe not safe foods, and looking at them to help me come up with recipes. I also realized for me that i have a better time with cold foods rather than hot.
Hi Cione, I’m so glad that you could relate to the video. I hope and pray that it served some purpose. Yes cold is Waaay better than hot! I’m sorry that it’s taking longer for your Loved ones to understand you and know what to do to better support you. I truly hope that they can begin to see what’s happening to you and help you. Try to set boundaries during mealtime. You need to eat before everyone else does so that if they prepare food can lock yourself up in your room if need be. Please check out my playlist for Parosmia as well so you can see if there’s any tips that might help you. I plan on doing a live Q&A next week so we can all chat about Parosmia. Welcome to the channel and I’m praying you heal sooner than later. Let me know if you’d be interested in joining me on a Q&A next week. I’ll post an update about it soon with details.🌞🙏🏽🌺
@@KarmasPeaces q&a sounds good love👌🏽 thanks for your reply, it helped not feeling alone on this.
Awww that’s wonderful!!! Great!
Hi Cione
I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link.
instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
Hey, I am new to your channel and all I can say is I’m so glad I came across your amazing Channel ❤️
Like u I have parosmia.
I’ve had it for 7 months and it’s really difficult because most foods I eat/smell/drink taste like rotten and metallic.
Being 17 years old and having autism and celiac disease has been always a struggle bc with my autism I found it hard to eat certain foods bc I was sensitive,but now I am a lot better and with my celiac it’s really difficult bc so many gluten free foods are so expensive and with some gluten free foods tasting like cardboard and then the parosmia has made everything 10 times worse.
All I can say is we will fight this parosmia and we will have our taste and smell back.
I promise ❤️❤️👍
Hi Angelina!! Thank you so much for sharing! This is such a difficult experience. I’m so glad that you finding strength and hopefulness amidst everything that you’re going through! Thank you for sharing your story 💕🌸🥰🙏🏽
Join this support group on Facebook. I’m a member here.
facebook.com/groups/232669991396703/?ref=share
I am suffering from 10 months,,, lots of improvement is going on. Now i am just unable to eat and smell onion, garlic, steamed vegetable, and i am a pure vegetarian. Hope we all are get recover soon... 😊😊
Hi There! That’s just terrible. I am glad you’re seeing improvement. Time will keep healing you. I plan on doing a Q&A next week. I’ll let you know the details in case you wanted to join us. The topic will be Parosmia.
@@KarmasPeaces yeah sure dear, i will join this session. Please provide me instagram or any other links or time of live session of youtube. Thanks
Wonderful!!
I has distorted smell and taste for about 6months ,but herbal medicine from Dr ogbebor herbal centre on TH-cam cured me
I had distorted smell and taste for about 6months ,but herbal medicine from Dr ogbebor herbal centre on TH-cam cured me
This year will be the last year you will have parosmia! And for me too. Put it out in the universe.
Aww thank you Annie🙌🏽🙌🏽🙏🏽🙏🏽❤️ THIS IS THE YEAR PAROSMIA GOES AWAY FOREVER 🙏🏽🌻🌺
Hi Annie
I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link.
instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
Yess!!! Its so horrible i pray we all recover and food tastes and smells better then ever!!
@@DivineStar37 it will happen!! I promise! Thank you for being a part of my community and sharing your voice!
Thank you Divine Star! We will🌞🙌🏽🙏🏽
I am coming up to 8 months with this. I am kind of lucky in that I can tolerate most foods even though they don’t taste properly. I can drink coffee, for example, but I prefer not to for the most part bc it tastes weird. I’m vegan so no idea if meat would taste bad or good. Most veggies taste okay, but bland. I can eat garlic, but I don’t really taste it much. I couldn’t taste cilantro at all but last week I actually could taste it. So so strange. All the best to everyone.❤️
Thank you so much for sharing Shanna!! Sounds like you have a combination of Hyposmia and Parosmia. Have you ever been studied? I went to a study where they tested to see what I could identify and tolerate. I did the study when I was at my worst. Hyposmia was worse than Parosmia, I was shocked. It’s all very interesting. I’m glad that you can tolerate things and nourish yourself! 8 months is a long time. It’s a super strange disorder! I hope that you heal soon. And thank you for stopping by and sharing your story. Every bit helps the community!!🫶🏽🌞🌅
I just read about the ganglion block shots that are helping some people thank you for sharing
Thank you so much and welcome to the channel!!
I am 20 months into this journey. I like you, have a pretty bad case of Parosmia. I refuse to push through the taste and smell... because I think I get sick when I eat stuff that has the "Covid" taste. I also believe in listening to my body, even when my body is not working the same. Every food you listed is also a trigger of mine, plus many more. I believe that time is the ultimate cure but until then I am doing my best to makr food as pleasurable as possible. I use different seasonings to help add flavor. I use very little processed foods. I don't cook "covid" foods in my house. I also take the time to garnish my plate. I have also found ways to simulate foods I missed. I can't do dill pickles, but I can do chickpeas so I brined them with vinegar, sugar, water, dill and then I roasted them. Have you tried salt and vinegar chips? They are a go to for me. Best wishes on your recovery and God bless 🙏
Wow that’s amazing. I’m going to jot down some of your tips not just for myself but for my next update. I’m going to try salt and vinegar chips. It’s so weird that majority of chips, even salt and pepper chips, contain garlic and onions. I’ll look for salt and vinegar chips without garlic and onions and hopefully this works. Thank you for all your suggestions and input. I’m so sorry it’s taken this long. Like you, I don’t eat anything unpleasant so that my meals are enjoyable but I’ll try garnishing them as well!! Such a great tip. For us, those little steps Go such a long way! Sincerely, thank you so much!!!🥰💪🏽 May you heal soon!!
Hi Renae
I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link.
instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
20 months going strong here too! Have completely forgotten what all my favorite scents smell like. I have a massive perfume collection that used to be one of my most prized possessions and I’m considering just throwing the whole thing away.
My timeline matches yours to a T! Had COVID in November 2020....then anosmia for 3-4 weeks..... then was THRILLED to have taste & smell back.....but that didn’t last long as it was yanked out from under me again when I got parosmia in February 2021. It’s uncanny how many people’s timelines match this exactly! Now everything either smells like STRONG vitamins (my urine, chicken, etc), burnt rubber tires (garlic), or months-old moldy sunken-in pumpkins/rotted earth/decaying sea algae smell (anything fresh, clean, floral, etc-think: soaps, shampoos, perfumes, cleaning supplies, etc). Totally sucks. Luckily most things taste ok, with the exception of chocolate. That one smells AND tastes wonky!! Hooray! 😒😓 one of my favorite things, turned yucky!
Thank you thank you for sharing!!! 🙌🏽🙌🏽🙌🏽 how are you doing
@@KarmasPeaces you’re welcome! Thank you for sharing your video as well! Sadly, everything still reeks! And I even got covid once more since I left my first comment, and it made my taste and smell diminish quite significantly. That was only about a month ago and it’s still not back to its full state. How’s your parosmia doing? Any improvements or updates?
I uploaded my latest update. Feel free to check my Parosmia playlist🤦🏽♀️lol. It’s been a challenge but thankfully there’s some improvement. I also share my experience going on vacation with Parosmia lol. Ambitious. There is hope for us however it just sucks that we have to go through this for so long. I’m about 10% better. Keep healing and thank you so much for being a part of my community. 🙌🏽
@@KarmasPeaces thank you-I’ll definitely check it out! I’m so glad to hear that you’re just a tiny, tiny bit better! You’re welcome! It’s so good to be able to connect with people who are going thru the same struggle bc I know absolutely no one in my life who still has lingering effects of covid...im the only one!....so it can be very lonely sometimes! I’m glad to have found a parosmia community! ❤️
Your words mean so much to me🙌🏽🙌🏽
a long time ago i wished soda tasted bad to me so i would stop drinking it (addiction)
well i got my wish ):
I’m so sorry. How are you feeling today? 🙏🏽🙌🏽❤️🌞
@@KarmasPeaces today I tasted peach juice and it was good lol
Yes we need to celebrate our small wins 🙌🏽🌞
Please consider going vegan. This could be a great fresh start for many. I am vegan, and I’m wondering if it has helped me with parosmia. I am able to tolerate and actually enjoy most of what I eat as a vegan. ❤
I totally understand what you mean. I was forced to be vegan the first year of this however for me it was most foods that I couldn’t do. I have gradually improved and definitely see benefits in healthier meals but unfortunately my case of Parosmia has been extreme. Now after 21 months I’m able to eat 8-10% of foods I normally ate.
I do make my own vegan dressing with cashews, avocado and salt. I make vegan smoothies. But because I’m so limited with my meals I’m at the point of eating whatever I can to have sustenance and nourishment. Most vegetables I can’t have. There are still many fruits I can’t tolerate either. It’s not easy designing a vegan diet with such limited tolerance. Once I can unlock more foods like vegetables, especially, I can make the vegan switch. I wasn’t a big meat or dairy person to begin with lol. I hope that sometime this year I can report even more progress. Thank you for your sweet suggestion and sharing your story. I hope it helps someone here🥰🙌🏽🫶🏽❤️❤️
I can’t eat anything at a restaurant that’s made with “butter,” but they don’t use butter they use margarine or oil because I smell and taste it as fish. So I used to love grilled cheese sandwiches. But I can’t eat them anymore because I taste the oil or margarine used when they make it, and it smells and tastes like fish. I literally took one bite the other day at Mel’s drive in and almost hurled.
It’s just horrible. 🤦🏽♀️ Don’t lose hope and keep eating the foods that you can tolerate or that you find delicious 💪🏽🙌🏽🙏🏽
@@KarmasPeaces thanks. Let’s all hope so, and I appreciate your positive thoughts
Hi There
I’ll be interviewed on Instagram tomorrow regarding this topic of parosmia and more tips. Hope you can make it! Here is the link.
instagram.com/p/Ce1Bg8DMdcU/?igshid=YmMyMTA2M2Y=
I am at the 1 year point and I am struggling. Most sweets are acceptable and most carbs but most vegetables and a lot of fruit is horrible. Sometimes I have a day where something that was horrible tastes kind of acceptable (not good but not horrible) just slightly off and I get excited to be able to to tolerate that food and then the next day it's horrible again. It's messing with me sooo hard. I am sick and tired of carbs and sweets but am at a loss of what to eat. I keep trying things only to keep realizing I still can't have all these foods. Coffee was unacceptable for a while and I was so desperate for it. Now everytime I brew it I get hit by the "off" smell but I managed to make that my "normal" for Coffee now. It was a lot of battles with myself hating the taste but still wanting the coffee....gaking a sip and say no it's too bad but then still keep going back in hopes it would change. I am able to drink coffee even though it doesn't taste or smell like it but I think I could only do it cause I wanted it soooo bad and it was so horrible to make me gag or throw up. Onion, bell pepper and garlic make me want to throw up immediately and most other things are just bad not bad enough to make me throw up but bad enough to not wanting to eat the food.. Losing appetite over it. Sorry for my rant... I just feel no one around me understands how hard and devastating it is...
Hi Nina!!! This is a horrifying experience. I’m working on building a bigger community so that we can share ideas and experiences. I’m so so sorry that it’s so difficult. Every day is a battle. But this will pass and we will heal. In the meantime, I know it’s difficult but try not to eat or be around ANYTHING that bothers you. This helps. If people are cooking you may need to step out and have them air out the house for you. Their food should be put in airtight containers in the fridge. This around you need to see these videos as well. Thank you so much for sharing. I’ve been planning on doing a live ages ago. Let’s see if I can do one this week!🌞🥰I pray you heal sooner than later!!🌻
@@KarmasPeaces Thank you! It truly is such a battle every day. I hope my doctor can come up with something that can help. I have seen people plugging their nose and that works but those nose clips always slide of or have to be so tight that it is painful. I have been doing smell training for a while but don't really see it help🤷🏼♀️ I will talk to my doctor about Alpha lipoic acid on my upcoming visit and I am on a waiting list to see a nutritionist but am not sure what they can do but you never know, maybe they can help me navigate a bit. I had high hopes that it would get better at this one year mark....lets hope for this year. I hope we all can get some relieve and feel a some normalcy with food again. It's such a big part of everyday life. ❤️🙏
I should mention my side and my husband's side of the family try really hard to make meals that I can eat when we are over for am meal and it is very sweet. I just feel like a burden but I know they care. Some comments like try this or that are hard sometimes but I know they mean well. As long as their food is on the other side of the table and not right in front of me it's not too bad. I am getting more used to smelling the off smells and tasting it when it's mild. I am very grateful that family tries to do what they can even though they don't understand it fully.
That’s great Nina, we are blessed. So many sufferers don’t have understanding or supportive families. But even in the support they offer we feel terrible🤦🏽♀️ We don’t want to burden everyone or feel so vulnerable. I can sooo relate! As it gets lighter I think back to when almost everything was intolerable. It reminds me that there is slow healing. Some days it’s still very difficult. Thank you for sharing!!
You’re very welcome. Make sure to check out my Parosmia playlist. Then read the comments because everyone is trying different things. Also if you haven’t already please join the Facebook Support Group! facebook.com/groups/232669991396703/?ref=share
it’s almost been a week since I tested positive for COVID and I’m getting really bad phantosmia. I almost constantly feel a disgusting smell that seems to come from nowhere but I haven’t lost my sense of smell altogether. thank you for helping me identify what’s actually going on ❤️
You’re sooo welcome. I know it’s a rough journey. It was life altering for me. I’ve found strength through support groups on Facebook. I put the information in the description of some of my Parosmia videos. My family has been my strongest ally. Don’t push yourself. Protect yourself as much as you can feel the horrid smells. Also, try to burn sage. At first she bothered me but as time passed I’ve used it to clean the air and it definitely has helped with Parosmia and Phantosmia! Feel better soon🙌🏽🙌🏽🙌🏽🌞💵
I would love a Q &A
Awesome!! Let me see if I set one up soon then🥰
@@KarmasPeaces is your parosmia getting worse l Also Think we need stamcells 😥🙏
Hi Charlotte! Some things feel worse while others have improved. It’s so interesting how it’s been unraveling. Stem cells sounds like a great idea. I’ll do some research and ask my doctor. 🙌🏽🌻I hope you heal soon. It’s horrific
@@KarmasPeaces thanks DEAR 💕 l am so Afraid cant eat anymore CANT injoy my life and drink coffie anymore 😖 even the air Smell s rotten l am so down l trayd smell traning and IT doesent Work so my only HOPE is stamcells do you Think if we get new stamcelles the neurons in the brain Will get the right smel again 💛🙏
I’m so sorry. In my opinion, Everything is a risk. We may create more damage than healing. This tiny neurons that became damaged are trying to heal. They need a stress free and calm environment, as far as I believe. I’m really confident that until they develop something, only time can heal us. Make a list of only the things you can eat and then see what creative foods you can make. The point is to steer clear of the harmful foods and smells. That causes stress on the body and I believe it can further harm our progress, at least from my own personal experience. Also join the support group on Facebook. Here’s the link. It’s helped me this loooong Year when I was at my wit’s end:
facebook.com/groups/232669991396703/?ref=share
@Charlotte Birgitte Thomsen
My daughter has Parosmia, she is getting a Stellate Ganglion Block injection tomorrow. This injection has a 85% success rate. I’ll let you know her results. 🤞🏻
Oh my gosh!! Please do! I’m so curious. Thank you for sharing and keeping us posted!
I'm commenting so I get notified about your update =) I wonder if this injection is available in South Africa
Update: Injection went well, fairly simple procedure. Her smell has improved slightly, which helps with taste, but 10hrs later, results are not as expected. She has been extremely emotional all evening, disappointed. She was hoping this was going to be the fix after 7mo and 40lbs later. It has been hell on a 17yo girl. We might try a second injection on the opposite side just to make sure we did all we could. Will be talking to the dr tomorrow. I’ll keep you updated. Good luck to you as well.
Thank you soooo much for the update. I can’t imagine how a 17 year old must be feeling. I can only hope that this injection will at least expedite her healing time.
@@cainefamilycaine7852 that's very unfortunate... I hope the second attempt has much more promising results! I can imagine how she must be feeling as well as yourself... It's likely very hard watching your daughter like this... Fingers crossed for the second time!
Have you tried LAL?
Hi Moises! I have not tried that. Please tell me more about it.🙌🏽✨
th-cam.com/video/Y3RD11a6Xnw/w-d-xo.html
@@KarmasPeaces alpha lipoic acid.
Many people with testimonials of it working. I am on week one, and have seen significant improvement, like smelling peanut butter, which I couldn’t even get close to before. Plus other things. I made sure with a doctor, but it seems like it has healed a ton of people
As far as food, I can handle sweet potatoes, or potatoes, honey smoked turkey ham. Yucca, white rice, avocados, grain bread. No chicken, fish or beef
Somebody once said they noticed complex smells that are not just 1 single scent oftentimes smells the worst and that simple things smell the best....and I have found that to be true for me. Perfumes with many “notes” smell awful, but a simple candle made with 1 essential oil smells a bit more accurate. The only exception to this is garlic, for me. Clearly garlic is just 1 scent-itself!-however it smells horrible and so so distorted to me! I was in the car with my mom recently and the car in front of us almost got in a accident and slammed on their brakes and skidded and left some streaks in the road and my mom said “wow, smell their tires?!” and I said back to her “I literally thought I was smelling food from the restaurant over there. 🥲”
Wow! I can relate to this. Garlic is the villain in my story. In the beginning, the same was true of perfumes for me. Now after much oil diffusing and burning sage, I can tolerate most perfumes and a few of them smell accurate. Unfortunately, there are quite a lot of simple smells that are debilitating for me, like peanut butter, chocolate, etc. However, I still believe your theory to be true for the most part.
The hardest part for me has been accepting that my reality is not theirs. Feels like I’m living in an alternate universe and I have to quickly figure it how to balance both worlds without going nuts lol!! 🙌🏽🙏🏽🫶🏽
@@KarmasPeaces Weird, I wonder what it is about garlic!! Oh also chocolate smells and tastes horrible to me too!!! And wow yes I totally know what you mean about having to cope with your body being completely unable to accurately perceive the reality around you. It’s utterly infuriating!! It makes you not trust your own body if you cannot trust one of your 5 senses!!
Yesss 🙌🏽🙌🏽🙌🏽 you get me!!!