How I treat Mitochondrial Disease| Mito cocktail
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- เผยแพร่เมื่อ 3 ส.ค. 2024
- Today i share the medications & supplements I take for Mitochondrial Disease.
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-MITOCHONDRIAL DISEASE: www.mitoaction.org/mito-faq
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I take almost all the exact same things! Some I take in powder form so there's less to swallow. I have also started to get big into exercise and it has helped heaps. I noticed a difference in just a few weeks. Thanks for sharing! All the best
*THANK YOU SO MUCH **_MITOWARRIOR_** !* P.S. almost all of these supplements are recommended for women have difficulties getting pregnant as it increases egg quality and egg quantity.
Thank you soo much for sharing and with so much detail…this was really thoughtful and kind of you to do!
I’m sure you know this by now but carinitine causes fish smell. But you are so kind to share your regiment.
♥️♥️♥️ Keep after it!
I just want to say that you helped me a lot with these vlogs. Keep posting 💖
I'm so glad! Thank you for commenting❤️
Such a great soul. Keep on fighting and thanks for sharing your experience. 🙏
Thank you!
My brother was born with a mitochondrial dysfunction. It affected his heart; he had hypertropic cardiomyopathy. He has had stamina issues his entire life. He has always gotten tired walking distances that normal people would have no problem doing.
In the past, though, it was manageable provided that he took a break. Long story short, all of a sudden in April 2021 he got heart failure out of nowhere. His ejection fraction was only 5%(measurement of of blood leaving heart with each contraction)at one point. Long story short, he ended up having to get a heart transplant in June 2021.
He has recovered somewhat, but he has nowhere near the even limited stamina that he had before. He was in a hospital bed from May 2021 to August 2021, but it has been a year and a half since then. It depresses me, because its at a point where he can only leave the house to go very short distances. Hes only 30 years old and transplanted organs only last about 10-20 years depending on the person before he would need a second one(assuming nothing worse happens to him before then), and the anti rejection drugs wreak havoc on the body. Im always worried about him. I wish there was something out there that would help with his stamina at least. He already takes some of the things mentioned in the video.
WE ARE ALL BORN WITH FM/CFS (IF) OUR PARENTS HAS IT ...❗ IT TAKES SOME KIND OF (TRAUMA) (TO OUR BODY TO ACTIVATE) OUR.. FM..CFS.. MY GUESS IS THE GOV. DID SOMETHING YEARS AGO TO BOTH OUR PARENT'S DNA OR THEIR PARENT'S WAY WAY BACK ❗ ...SOME TYPE OF JAB OR SOMETHING .. ID NEVER WISH IT ON ANYONE ...🔴
:(
May God be with you man, sending you so much love and prayers brother
Thank you for sharing your brother's story❤️ I apologize for replying (nearly a year) late. The road with mitochondrial disease of any kind is incredibly difficult and has a ripple affect on many. I'm sorry this is your reality. Your brother is so blessed to have you.
Good video. Good luck with your health situation.
Thank you!
I also have Mito and Im so grateful for your videos! ❤
Thank you for the tips, I will buy these and try.
What else is it You take (you had a whole box if pills. )
Thank you 🙏🏼
May God bless you and heal you and set you free from all dependency on supplements. 🙏
Much love to you Hailee.This was sincerely very helpful to me.
Aw thank you! Glad I could help❤️
@@TheMitoWarrior also, 2 genius doctors/scientists that u can learn alot from here on youtube are... phd david sinclair, and dr. berg.
God Bless Lil Warrior
Hey from your newest subscriber. I have LHON and mito affects me in so many ways including pain and vision loss. I just wanted to say hello and that you have really beautiful eyes💕
Hello, and thank you!
It’s very encouraging and nice to see this wisdom in someone as young as yourself. You’re spot on about supplementation working best when personalised to specific needs. I have drug induced psychosis N-Acetyl-Cysteine, Lithium Orotate, Glycine and a few other things brought it down to asymptotic. These supplements saved my life perhaps quite literally as I have had suicidal ideation and been in a psych a few times, now I’m doing very well. Likewise it looks you’ve got your mito condition under control enabling you to live your best life. You have an uplifting story thanks for sharing.
Thank you for sharing too! It still blows my mind many years into taking supplements, how important and life changing they can be!
Great video. You should try adding B1 in high dose, liquid magnesium malate and full spectrum vitamin E.
Alpha lipoic acid really needs to be in the R form and not S form, the S form which most companies bag out is a synthetic version, the R form is way more superior.
Keep up your great vidoes. Good health
Thank you! I appreciate the suggestion! :)
@@TheMitoWarrior Tried detoxify the mithocondria? sometimes they jam up and become less efficient. Use glycin+nac for that.
You are very couragious to share your condition on YT. May the Almighty strengthen and protect you. From a biochemical point of view most of what you show here is spot on like Lipoic acid, Magnesium, B1 and 2. The Q10 should be "Ubiquinol" (best from "kaneka" ) not Ubiquinone which is much weaker. Most of natural aging is also sort of a "mitochondrial disease". Thus many medications that are upcoming in these days could be useful especially for the fatigue part of it. I have tried (for antiaging) with good success: Taurine and Arginine/alphaketoglutarate. But the real gamechanger was NMN sublingual which is the direct precursor to the central molecule NAD+. ( "renuebyscience" is top - many others don´t hold their promise).
Thank you for your video, I seem to be developing mitochondria disease due to aging. I boosted my CoQ10 supplement and it helps.
Have you ever heard of spectrum needs ? It basically combines all of these things you're taking into a single powder to try and make it to where you're not taking so many things . I use it I put it into my feeding tube formula. I just started it 3 weeks ago I do however take extra CoQ10 . I've been very sick for 10 years but in May I went and saw a amazing geneticist and he put me on the spectrum needs . It was a relief that we didnt have to buy all these supplements separately . Just a thought :)
Thank you so so much! I actually have talked about this with my genetic doctor and because the daily amount I take is 3-5x more then what is in spectrum needs. It unfortunately wouldn't be financially feasible. Thank you again I really appreciate the suggestion!
@@TheMitoWarrior that totally makes sense ! It would be extremely expensive if you needed high amounts of it !
It's proven to rebuild the mitochondria backed by research
I looked it up and it’s all synthetic forms of vitamins. I’m looking for organic to be optimal and not harmful in any way long term.
@@YouButter synthetic is completly the same as ""organic"". The chemical structure is exactly identical there is no difference. Its just a marketing tactic.
Make sure you take organic WHOLE-FOOD Vitamin C. Ascorbic acid is like an empty shell of Vitamin C... missing the whole, balanced C. This can have further cell disfunctioning. I don’t have the research notes handy but remember something that involves copper, which is needed for metabolizing iron correctly (lest it sit and rust...anywhere).
Think of white table salt stripped of the rest of the nutrients compared to balanced REAL Salt or Himalayan or sea salt.
I am just researching for mitochondria physical destrophy myopathy ,my sister is also suffering from same problem when I see your video I see my sis in u thanks for making this video.may allah bless u and all who is suffering from this decease .insha allah we will find the final solution for this deceas.
I wish you all the best as well. ❤️
Hang in there! There seems to be lots of new studies on mito health and should be some new products coming along.
I'm from Lebanon , I have mitochondrial disease
That is so cool! The Lebanon part not having mito Haha.
@@TheMitoWarrioryeah! I have a patient who is from Lebanon and is the most WONDERFUL person!
Thank you so much for this!!!! I took accutane and feel as if it may have messed me up completely. Started feeling so tired and I would get out of breath easily from workouts. Even bowel movements (sorry tmi) would make me so incredibly tired. Eating would make me feel great for a couple of minutes and again, a sudden energy drain would occur. I took coq10 and no joke, started to feel so much better. Im able to feel “back to normal”. Im going to buy the ALA as my preworkout already has l carnitine in it. People would notice me yawning so much and it is less now! Thank you so so so so much
but..do have a genetic mitochondrial disease? have u been tested?
Look into R-Alpha lipoid acid.
I tried the mito cocktail, the only thing that is working is carnitine, as a matter of fact I have carnitine deficiency. The smelling of fish comes from the carnitine. I also take high dose of vitamin D since I don't expose myself to the sun
Hello mitowarrior u r so brave girl m from india spinach kale broccoli n black berry can't cure mitochondrial but they can reduce ur symptoms n u live a healthy life without depending on medicine
Look up benefits of beet juice.
If if helps with energy, has to help mitochondria.
I just know that what you said with increase in CoQ10 and 2 tbsp tbsp beet juice, I get to feel better with more energy and sleep is better 😊
I take L carnitine and b2 and b12 and others
Solgar melatonin liquid 10mg is the best on the market
I’m see that CO-Q-10, sister!
I wonder if the normal things that increase mitochondria like cold showers, exercise, and healthy food would help in your case? Nutritional yeast has a lot of B vitamins.
They all can/and do help! Unfortunately that doesn't mean it increases enough mitochondria for my body to function normally. They are good things though that are generally encouraged by my doctor and I do what I can with my limitations.❤️
How can one get tested for Mitochondria disease or anything related to loss of energy (cellular issues)?
There are two ways to get tested. The first is through a muscle biopsy. Which is the most invasive. The second is through genetic testing. Depending on the company you either send in a saliva sample or a swab from your mouth. Both kinds of tests have to be ordered by a doctor! I got genetic testing which confirmed my diagnosis years ago. Let me know if you have any more questions!
@@TheMitoWarrior Wow- thanks for answering so quickly! Will try the genetic testing, although I don't feel too comfortable doing that, I'm desperate to get my life back at this point.
How are you feeling now?
Have you looked into Dr Jack Kruse, with Love and Respect building melanin and making sure your nNemf environment is Good can be Foundational.
This was way too fast lol. Would you ever consider to do a video explaining this in more depth?, you know like, the first time you started taking them, sides effects, and stuff like that. I take some of this supplements for my mito, but some of those I'm just too chicken to try them even if my doctors say I need them to function. :)
Great idea!
Starts at two minutes
I have a very mild form of mitochondrial myopathy.. Can anyone recommend what I Should take?
I highly recommend CoQ10 and L-Carnitine. Both are over the counter and easily found in pill or liquid form. L-Carnitine is the type of supplement that is more internal. Meaning you might not physically feel better taking it, however that does not mean it is not working and helping internally. CoQ10 is one you may feel more energized after taking. But it can take a while to feel that possible increase in energy. With both you have to be consistent and take everyday and I recommend taking both with food just to be safe. Vitamin C is also a good one, as is Vitamin B vitamins as well. Here's a link for more info! www.mitoaction.org/diagnosis/mito-cocktail-coq-10/
I am clinician never heard of mitochondrial disease,please explain
Hi! Mitochondrial disease is when the mitochondria energy in the cells around the body don't produce enough energy to function properly. I have several videos that go more in depth of my experience and what that looks like. I'll link a few for you!
What is mitochondrial disease?: th-cam.com/video/wfwRnP3lmh8/w-d-xo.html
All about mitochondrial disease: th-cam.com/video/-nYWvQQvhFA/w-d-xo.html
Taking too much (200mg or greater) Coq10 gives me insomnia.
I was thinking the same thing. One of the supplements is causing insomnia.
I've had insomnia my whole life. It started prior to me taking any supplements, and I'm not the only one in my family to experience insomnia!
Something else I take that has helped me tremendously is 1 teaspoon of baking soda dissolved in water 1 hour before every meal, it really helps, continued prayers for you, God bless you my friend ❤️
Thanks! God bless you as well.
@@TheMitoWarrior Your very welcome. My mom's doctor has a family member who has mitochondrial disease and one of their treatments is sodium bicarbonate (baking soda) so I thought I would try it and it has really helped me. I was experiencing a lot of lactic acidosis and in just a few days it has helped me tredemously and I have lots more energy and no muscle soreness or aching now. You are a blessing and a inspiration to all of us battling this terrible disease, keep up the good fight and I look forward to seeing your new videos.
@@chatham888 thanks I appreciate that!
And the DW pillow-
Mitochondrial disease patients who are also doctor who fans……
Start club?
Haha stop that's the best! Who's your favorite doctor?
@@TheMitoWarrior Capaldi
You said you talk these supplements.
Why aren't you saying how much.
The reason I don't share how much I take is because it varies a lot person to person! What works for me in terms of dosage may be too much or too little for you. I always encourage talking to your doctor for their recommendations. Hope that answers your question!
You have a doctor that helped you. I don't have a doctor that would even consider.
You are correct about dosage and individual responses.
I'm glad you get to have improved fatigue.
I suppose I will increase slowly.
What is your max dose?
After 20 years as a respiratory therapist, I understand your hesitation.
Keep talking to show that you found something that works 😊
Go vegan, start to do cardio 3x week
that doesnt cure mito. i have mito and im vegan but mostly because meat is more difficult for me to digest and triggers stomach pains and constipation. this is a video about mito disease
Vegan is horrible
She needs to try a ketogenic diet or even a CARNIVORE diet. Those vegan diets are not good because most vegans eat a lot carbs and carbs are inflammatory. Ketones are healing to the body and brain and mitochondria.