I just wanted to say thanks to everyone for all the kind words and taking a few minutes to watch the video. I had posted this after Alyssa's memorial as simply an easy way to share it with everyone who attended. Only a handful of people had watched it until a few weeks ago. I probably wouldn't have even noticed if not for the emails saying someone posted a comment. People have asked me what it was like to have a daughter like Alyssa. I said much more about this at her memorial, but it's something I would never wish on anyone but also something that I would never trade. God taught me a lot through her, some very beautiful and unexpected things and some very difficult and painful things. I realize this video is just one of countless ones on TH-cam, but it's nice to see her life still touching, if only briefly and in a very small way, a few other people. Thank you all for that.
Brian Spinar God bless you and your family. I tearfully cried so many tears for her and grateful God is holding her and she's always your angel with you all always.
Brian Spinar one of my friends has this and she is 17 this year and only recently lost her ability to walk so is now in a wheelchair but she can still talk and use her arms and hands at the moment and no one knows if she will loose her ability sooner or later
Brian Spinar you have such a beautiful little angel,she is so good , has such a great heart .I pray for your family . It is so important to find a cure for Rett-Syndrom and outher horrible diseases, so we need awareness for it and thats exactly what you are doing, my deepest Respekt for all of you Sorry for my english nice greetings from Europe
What a little doll she is. Her eyes are so mesmerizing. The dogs seem to know she was special. Love to you and your family. Praying for all victims and families of the horrible disease.
She was so beautiful. . . I can't imagine the pain of losing a child, my heart breaks for you, but also rejoices for her because she is now doing all those things she could never do before.
Jesus took Alyssa's hand, and said "my child, let's walk." Her fingers loosened by His touch, she said aloud, Lord I can talk!" He said, "Yes, you can, and you can sing ~ along with all the angels, you can look upon the flowers and beautiful waterfalls. There's so much more I want you to see...there is no hurry though ~ it's why I created Eternity. I called your name and brought you here...Paradise was waiting for you. No more sickness and no more fear, Only love and a body that's new.
I knew Alyssa. In middle school, we were both in best buddies together. Even though we weren't assigned buddies, I would still spend lunch with her. She was so kind and so much fun, she was a true friend. Last year I became president of best buddies and I was excited to tell Alyssa and to have another year with her, but I could never find her and it really made me sad that we didn't yet to spend our last year of middle school together. I am saddened to hear about the departure of Alyssa, but she is now safe in the arms of Jesus. May God bless your family. 🙏❤️
I had a love one pass away. And she's watching over me. Long not short my mom was preg with a baby girl Alyssa coline. She died when she was outside. Because she ran in the street. Like=Love god=For my baby sis
Alyssa was there to teach you and I the power of unconditional love. I learned so much from her life, Alyssa's capacity to endure, her courage through it all was remarkable; she didn't seem fussy or complaining with her health issues and all the complication. Thank you for sharing!
She was clearly so loved. You can see love in her eyes in most photos. A beautiful tribute. Thanks for sharing your story,one I will remember that’s for shore.As people have said now you can catch a breath and heal from your own pain knowing she is stil surrounded with love and with no more physical pain to endure she can rest too. Bless you all.💖
What a beautiful child and a beautiful, moving tribute. I can sense so much of the love you felt for her. My eyes are filled with tears and I am so grateful to have seen this. I had never heard of Rett Syndrome but I will be sure to stop and say an encouraging word to the family of anyone I meet who has it. Thank you so much for sharing your beautiful daughter's story.
What a beautiful angel...heartfelt prayers to you & your family. Thank you for sharing her with the world. Seems that Gods only shares his special angels with us for a short time then he calls them back home..
Thank you for all your information for this horrible disease, your child was so beautiful. Those eyes are to kill for. She was still perfect in so many ways. I am so sorry she passed away but I am glad that you had her for several years to help and enjoy her. Thank you for sharing her story with all of us, it make
Could not stop crying while watching this. My name is Alyssa and I have the exact same birthday as this girl, same year and everything, which is why I clicked on this video. I was unaware of this syndrome until now and it is so sad to see what a few amount of people like Alyssa have to go through. This video is so inspiring. Sorry for your loss.. this beautiful silent angel will be missed.
What a beautiful little angel. I'm sorry that she had to struggle with this disease but I have a feeling her presence in your lives was such a blessing and well worth your own struggles trying to keep her comfy and happy. God bless your family.
Beautiful memories of such a beautiful soul! She is whole now, running, singing, playing and all of the things that she could not do here on earth. Heaven gained another angel. Prayers for the family. ❤️🙏🙏❤️
My heart breaks for your loss. Remember her & your good times together, mourn for the bad and loss. She was beautiful and brought this disease to the public's eye through your strength in telling her story. God bless you and your family.
I'm so sorry for the loss of such a beautiful angel! She's now running free and talking, telling everyone what she couldn't down here.RIP Beautiful girl!
She was an angel who came to spend time with her wonderful family here. Bless her beautiful spirit and the special family whose presence she graced. I hope some answers are found to help these Rett girls and the boys who are affected. It seems so tragic to see such a beautiful child losing the abilities she has struggled so hard to learn as an infant. These little girls teach us so much, unconditional love, patience and persistence. This video both broke my heart and left me amazed at the human spirit of one little girl and all of those around her that made her life special. Thank you❤️
bless Alyssa's life and struggle and her ever constant loving family. AND all her therapists, teachers, special needs support which in my opinion never get enough credit. What a beautiful, loving soul.
Oh my goodness. Alyssa was a beautiful and gorgeous little girl. I am so sorry for your loss. I also just realized, she kinda looked like me when i was younger which makes this even more emotional to me! I hope you and youre family are doing well.
such a beautiful girl. i found it hard at times to watch because it was like seeing a healthy kid in there, trapped by this disease, at a time she should have been blossoming. so sorry for your loss, but i know you are blessed for the time you had with her.
She was blessed to have such a wonderful family who made sure that every day of her life here on earth was as normal as possible and filled with love and the best care. She was a beautiful child.
Aww that is the most saddest video I've watched. Your daughter is soooo cute, adorable and pretty. May god comfort you and heal, embrace you all and strengthen you. I am confident she is dancing in Heaven. Thank you for sharing your inspiring story.
This girl was not beautiful....She WAS beauty in itself... And...special thoughts to this amazing parents not showing themselves...but give it all to their baby's memory. Rest easy, Beautiful.
What a beautiful little girl.. I'm so sorry for your loss and the struggle you went through. It looks like you gave her a wonderful and happy life! God bless~
This is so sad. I have a hospice shirt and it represents this kind of stuff God bless the people that are supportive and are amazing enough to care and take care of this child R.I.P. Alyssa
So terribly sorry for your loss. Ironically my father passed away one year ago today so I do know the heartache. Also I lost my baby sister at age 34 due to complications with diabetes. She was a double amputee and blind. That was her life expectancy. That was 18 yrs ago. The pain never goes, it just eases a bit. God's many blessings to you and yours!
I'm crying like a baby she's so beautiful it's heartbreaking she had to go through that many prayers for you and the family 😢 she's a very beautiful Angel in heaven
Very touching video thanks for sharing this journey you and your family had she truly is an absolutely angel!!! Absolutely amazing video!!! Truly glad you shared the videos and information with TH-cam Viewers. I’m truly sorry for your loss but she truly is a glorious astounding angel. My deepest condolences for you and your family.
To this brave and beautiful family. I am so very sorry for the heart breaking loss that you have had to suffer. I really hope that the doctors and scientists find a cure for this horrible disease.
I am sorry for the loss of your daughter, she was a beautiful soul. My friends son has also been affected by this disease. They are the small number of boys that have been diagnosed. Hunter has been fighting for his life in a hospital over 2 hours away from home for almost a year now. He is 15 and was a late diagnoses because it being so rare in boys. We could use prayers that Hunter will come home soon. Thank you, peace and love
What a beautiful little girl. Memorizing eyes. So sorry for your loss. RIP Alyssa. You were and always will be truly loved. Don’t worry, your in good hands now, Sweet Girl. You’ll be missed by thousands....
this is heartbreaking. it got me in tears. may God give you and your family the strength to overcome this pain. I take life for granted but things like this makes me appreciate more everyday of my children life. God bless you all. I'm totally heartbroken. I'm without words. only time will heal.
I just wanted to say thanks to everyone for all the kind words and taking a few minutes to watch the video. I had posted this after Alyssa's memorial as simply an easy way to share it with everyone who attended. Only a handful of people had watched it until a few weeks ago. I probably wouldn't have even noticed if not for the emails saying someone posted a comment. People have asked me what it was like to have a daughter like Alyssa. I said much more about this at her memorial, but it's something I would never wish on anyone but also something that I would never trade. God taught me a lot through her, some very beautiful and unexpected things and some very difficult and painful things.
I realize this video is just one of countless ones on TH-cam, but it's nice to see her life still touching, if only briefly and in a very small way, a few other people. Thank you all for that.
Brian Spinar I am so sorry for your loss. She is the most beautiful girl and will always be remembered. Stay strong x
Brian Spinar God bless you and your family. I tearfully cried so many tears for her and grateful God is holding her and she's always your angel with you all always.
Brian Spinar one of my friends has this and she is 17 this year and only recently lost her ability to walk so is now in a wheelchair but she can still talk and use her arms and hands at the moment and no one knows if she will loose her ability sooner or later
Brian Spinar you have such a beautiful little angel,she is so good , has such a great heart .I pray for your family . It is so important to find a cure for Rett-Syndrom and outher horrible diseases, so we need awareness for it and thats exactly what you are doing, my deepest Respekt for all of you
Sorry for my english nice greetings from Europe
Brave and loving family. Thanks for your courage, and sharing this video.
She had beautiful eyes. RIP
Absolutely beautiful child
Deborah Troutman-Immink yes,beautiful
What a little doll she is. Her eyes are so mesmerizing. The dogs seem to know she was special. Love to you and your family. Praying for all victims and families of the horrible disease.
She was a beautiful girl. RIP.. sorry for ur loss
Alyssa was such a beautiful girl with beautiful eyes. RIP sweet girl
Very beautiful child who can run free and play joyfully now in heaven!
The doggie is so sweet protecting her
Good doggo
She was so beautiful. . . I can't imagine the pain of losing a child, my heart breaks for you, but also rejoices for her because she is now doing all those things she could never do before.
Jesus took Alyssa's hand, and said "my child, let's walk." Her fingers loosened by His touch, she said aloud, Lord I can talk!"
He said, "Yes, you can, and you can sing ~ along with all the angels, you can look upon the flowers and beautiful waterfalls.
There's so much more I want you to see...there is no hurry though ~ it's why I created Eternity.
I called your name and brought you here...Paradise was waiting for you. No more sickness and no more fear,
Only love and a body that's new.
This is so beautiful, and comforting. Thank you so much for sharing.
geez you know how to make a person cry ( pass me another tissue please ). That is very beautiful, thank you for posting and sharing.
I don’t believe in “Jesus”
Where can I find this or is it something you have written x
Arianna Shayeghi I do 😔 this comment made me disappointed I hope one day Jesus will show you he's real
I knew Alyssa. In middle school, we were both in best buddies together. Even though we weren't assigned buddies, I would still spend lunch with her. She was so kind and so much fun, she was a true friend. Last year I became president of best buddies and I was excited to tell Alyssa and to have another year with her, but I could never find her and it really made me sad that we didn't yet to spend our last year of middle school together. I am saddened to hear about the departure of Alyssa, but she is now safe in the arms of Jesus. May God bless your family. 🙏❤️
Gingereena 5201 Funny you only comment a year after her death.
I just think it's interesting.
Sofia Di Gennaro yeah because it’s probably not a truthful comment
AvGeek201 That's what I was implying, yes.
Liar
Alyssa is a beautiful girl and she is in a better place now. My God bless you and your beautiful family and my condolences goes out to you💗
this song is beautiful, yet sort of haunting....so glad baby girl went to sleep....poor sweet baby girl...........
shelley noname
Truly time for play now Silent Angel Alyssa. Prayers of comfort for the Spinar family. She'll suffer no more. Thank you for sharing awareness.
B
It hurts my heart so bad to see these beautiful children with terminal illnesses, god bless her
I'm literally crying right now 😭 I'm so sorry you lost your beautiful daughter 😔 God bless and rest her soul. God bless you, the family of Alyssa
What a totally gorgeous little angel
She Is absolutely beautiful. Heaven has a stunning little angel.
She is the prettiest person I've ever met she has so much potential in her and she deserved to live and make her own family ❤️❤️❤️😭❤️😭😭😭
I just found this today. I was greatly touched by this. May God bless you and your family.
Her eyes are beautiful... 😇 R.I.P.
She was a very sweet, beautiful girl. I'm sorry for your loss.
My condolences your family. Rest Easy sweetie
eternal rest grant unto this beautiful girl o lord and let perpetual light shine apon her amen 💖
I had a love one pass away. And she's watching over me. Long not short my mom was preg with a baby girl Alyssa coline. She died when she was outside. Because she ran in the street. Like=Love god=For my baby sis
This is beautiful and she is too
I'm so so sorry for your loss 💖
Sorry for your lost she was very beautiful little girl
Alyssa was there to teach you and I the power of unconditional love. I learned so much from her life, Alyssa's capacity to endure, her courage through it all was remarkable; she didn't seem fussy or complaining with her health issues and all the complication. Thank you for sharing!
She was clearly so loved. You can see love in her eyes in most photos. A beautiful tribute. Thanks for sharing your story,one I will remember that’s for shore.As people have said now you can catch a breath and heal from your own pain knowing she is stil surrounded with love and with no more physical pain to endure she can rest too. Bless you all.💖
What a beautiful child and a beautiful, moving tribute. I can sense so much of the love you felt for her. My eyes are filled with tears and I am so grateful to have seen this. I had never heard of Rett Syndrome but I will be sure to stop and say an encouraging word to the family of anyone I meet who has it. Thank you so much for sharing your beautiful daughter's story.
its a great video dad,i love it
Sara Spinar I'm terribly sorry for your loss...I pray you can find peace and comfort. She was an angel for sure
Side note
She has the most pretty eyes, ever! R.I.P 😭
What a beautiful angel...heartfelt prayers to you & your family. Thank you for sharing her with the world. Seems that Gods only shares his special angels with us for a short time then he calls them back home..
Thank you for all your information for this horrible disease, your child was so beautiful. Those eyes are to kill for. She was still perfect in so many ways. I am so sorry she passed away but I am glad that you had her for several years to help and enjoy her. Thank you for sharing her story with all of us, it make
Could not stop crying while watching this. My name is Alyssa and I have the exact same birthday as this girl, same year and everything, which is why I clicked on this video. I was unaware of this syndrome until now and it is so sad to see what a few amount of people like Alyssa have to go through. This video is so inspiring. Sorry for your loss.. this beautiful silent angel will be missed.
Your daughter was absolutely beautiful ! I'm so very sorry for your loss. I imagine her now running & dancing with the Angels. God bless you all.
This was beautiful. I wish she was still with you. at least she’s in a good place.
I'm so sorry for your loss. I had heard the name of this syndrome but wasn't familiar with it.
What a beautiful little angel. I'm sorry that she had to struggle with this disease but I have a feeling her presence in your lives was such a blessing and well worth your own struggles trying to keep her comfy and happy. God bless your family.
R.I.P beautiful ❤️
Thank you for sharing your story
So beautiful . You can really see her soul through her eyes.
Beautiful memories of such a beautiful soul! She is whole now, running, singing, playing and all of the things that she could not do here on earth. Heaven gained another angel. Prayers for the family. ❤️🙏🙏❤️
Alyssa was a very beautiful child. I hope you have been able to release the pain and cherish the good memories.
What a beautiful girl! Thank you for sharing your family's story ❤
I am so sorry for your loss and I wanted to say she is a beautiful girl and she went way to soon. Rest In Peace ❤
I cried a lot of time when something come on like this
My heart breaks for your loss. Remember her & your good times together, mourn for the bad and loss. She was beautiful and brought this disease to the public's eye through your strength in telling her story. God bless you and your family.
I'm terribly sorry for your loss. You'll see her again on the other side I promise
What a beautiful angel, thanks for sharing, God bless you all
Thank you for sharing Alyssa's story! I'm glad she had such a loving family to provide for her. I hope I will meet her in heaven one day! God bless.
I'm so sorry for the loss of such a beautiful angel! She's now running free and talking, telling everyone what she couldn't down here.RIP Beautiful girl!
Prayers for your family! What a beautiful angel! Thank you for sharing her with the world!!
I keep coming back to this, such a beautiful girl, you can tell how much she was loved by Mom, Dad, siblngs big brother....
She was an angel who came to spend time with her wonderful family here. Bless her beautiful spirit and the special family whose presence she graced. I hope some answers are found to help these Rett girls and the boys who are affected. It seems so tragic to see such a beautiful child losing the abilities she has struggled so hard to learn as an infant. These little girls teach us so much, unconditional love, patience and persistence. This video both broke my heart and left me amazed at the human spirit of one little girl and all of those around her that made her life special. Thank you❤️
She’s so beautiful! I’m so sorry you had to deal with such a horrible disorder in such a innocent child
started crying while watching this. she looked like a beautiful girl. i’m so sorry for your loss :(
She is in a better place now 💖. Rest in paradise 😊😭
What an absolutely beautiful little girl , god blessed her with an awesome family
May God Bless and thank you for sharing your princess with us
bless Alyssa's life and struggle and her ever constant loving family. AND all her therapists, teachers, special needs support which in my opinion never get enough credit. What a beautiful, loving soul.
I'm just in tears over this special beautiful child. Her round cheeks and beautiful eyes. God holds a special place for Mothers like you.
Gorgeous little angel. I know it's very late since I only just saw this in my recs now, my condolences for the loss of your beautiful daughter.
Oh my goodness. Alyssa was a beautiful and gorgeous little girl. I am so sorry for your loss. I also just realized, she kinda looked like me when i was younger which makes this even more emotional to me! I hope you and youre family are doing well.
losing a child, no matter how, is the hardest thing a parent can face. if you have children hug them tight and tell them you love them
such a beautiful girl. i found it hard at times to watch because it was like seeing a healthy kid in there, trapped by this disease, at a time she should have been blossoming. so sorry for your loss, but i know you are blessed for the time you had with her.
what a beautiful girl!! soo sorry for your loss. Thank you for sharing I have not heard of this disease until I saw your vid.
What a beautiful child with a tragic disease. God rest her soul.
Absolutely beautiful little girl. Her family is strong and loving. RIP Angel
She was absolutely beautiful, God love her, and bless you. I'm so sorry...
She is in a better place now with god to protect her. R.I.P. Alyssa. She is so beautiful and its very sad im sorry for your loss.😞
She was blessed to have such a wonderful family who made sure that every day of her life here on earth was as normal as possible and filled with love and the best care. She was a beautiful child.
Alyssa was such a beautiful little girl, she was so blessed to have a family that never left her side through it all
Aww that is the most saddest video I've watched. Your daughter is soooo cute, adorable and pretty. May god comfort you and heal, embrace you all and strengthen you. I am confident she is dancing in Heaven. Thank you for sharing your inspiring story.
I’m so sorry for your loss. Such a beautiful little girl.
Beautiful children
This girl was not beautiful....She WAS beauty in itself...
And...special thoughts to this amazing parents not showing themselves...but give it all to their baby's memory.
Rest easy, Beautiful.
What a beautiful little girl.. I'm so sorry for your loss and the struggle you went through. It looks like you gave her a wonderful and happy life! God bless~
This is so sad. I have a hospice shirt and it represents this kind of stuff God bless the people that are supportive and are amazing enough to care and take care of this child R.I.P. Alyssa
So terribly sorry for your loss. Ironically my father passed away one year ago today so I do know the heartache. Also I lost my baby sister at age 34 due to complications with diabetes. She was a double amputee and blind. That was her life expectancy. That was 18 yrs ago. The pain never goes, it just eases a bit. God's many blessings to you and yours!
I'm crying like a baby she's so beautiful it's heartbreaking she had to go through that many prayers for you and the family 😢 she's a very beautiful Angel in heaven
What a beautiful angel!
I am so sorry about your loss. She was a real angel. God bless you all.
She’s beautiful and perfect now. 💗
Such a beautiful child. I'm so sorry for your loss
Very touching video thanks for sharing this journey you and your family had she truly is an absolutely angel!!! Absolutely amazing video!!! Truly glad you shared the videos and information with TH-cam Viewers. I’m truly sorry for your loss but she truly is a glorious astounding angel. My deepest condolences for you and your family.
What a beautiful child. God bless you and bring you peace
Such a beautiful girl, god bless her.
so sorry and thank you for sharing her story
To this brave and beautiful family. I am so very sorry for the heart breaking loss that you have had to suffer. I really hope that the doctors and scientists find a cure for this horrible disease.
We shared the same birthday! ❤️ 12/01/2007
Beautiful tribute to a beautiful young lady💞
I am sorry for the loss of your daughter, she was a beautiful soul. My friends son has also been affected by this disease. They are the small number of boys that have been diagnosed. Hunter has been fighting for his life in a hospital over 2 hours away from home for almost a year now. He is 15 and was a late diagnoses because it being so rare in boys. We could use prayers that Hunter will come home soon. Thank you, peace and love
a little princess gone to soon I'm crying
So so sweet sorry for your loss, alyssa RIP GONE TO SOON BUT NEVER FORGOTTEN
What a beautiful little girl. Memorizing eyes. So sorry for your loss. RIP Alyssa. You were and always will be truly loved. Don’t worry, your in good hands now, Sweet Girl. You’ll be missed by thousands....
so sorry for your loss. god bless you and your family and of course your beautiful daughter in heaven.
Thankyou for sharing this video - what a beautiful daughter and heartbreaking to see her suffer so much. Safe in the arms of Jesus 💖
she was beautiful her soul lives on forever in a amazing peacful place ✨❤️
She's a beautiful young lady, sorry for your loss
She's a guardian angel now.
this is heartbreaking. it got me in tears. may God give you and your family the strength to overcome this pain. I take life for granted but things like this makes me appreciate more everyday of my children life. God bless you all. I'm totally heartbroken. I'm without words. only time will heal.
She was a beautiful little princess. May she Rest In Peace no more suffering for her. I'm so very sorry for your family's loss.