The Story of Alport Syndrome

[@TheSharona50]

Thankyou for making this video. My son was diagnosed with Alports syndrome. He is 17.

[@filipeksagem]

How is he going now?

[@airbnb1]

Thank you. Hope is still there.

[@katringunnarsdottir2770]

I lost my son in 2020 due to Alport Syndrome. He was only 25 years old. This disease is a nightmare 💔

[@davidyang8550]

Thank you from South Korea

[@jyyjyy02]

Why do you thank Korea? My son has this disease I'm curious about your writing

[@garkotionlineclasses7788]

thanks for this information.my brothr is diagnosed with this syndrom.

[@abis9210]

I have alport syndrome and didn’t know much about it

[@dishanksoni83]

I'm dishank I'm 18 and diagnosed with alport syndrome and life become very hard

[@filipeksagem]

Hello, are red blood cells in the urine dysmorph at alport syndrom?

[@AlportSyndromeFoundationUSA]

Hematuria, or blood in the urine, is often one of the first signs of Alport syndrome. You can learn more about Alport syndrome diagnosis on our website: www.alportsyndrome.org/resources-for-medical-professionals/diagnosis/

[@living4mysister162]

I have it but oddly I'm the only one in my family who has AS

[@mariobelledonne907]

Do you think that clinical trials might help to delay progression of kidney failure?

[@living4mysister162]

Mario Belledonne I'm hoping. I unfortunately have the severe form (kidney failure (kidney transplant 7 yrs post) ,hearing loss, and eye problems) I've had corrective surgery on eyes. But I'm wondering if AS also causes us to be skinny because I cant gain weight and I'm underweight

[@crims752]

@@living4mysister162 Hey, If you haven't already, Tell a doctor, I don't know if this is a symptom but im pretty sure they will give you medication

[@wasted0778]

​@@living4mysister162 how much hearing loss did you have ?

[@shokhejan1095]

I am also diagnosed with alports disease I m 31 yr old ...