ROUTINE & HOW AM I DOING • SPINA BIFIDA AWARENESS MONTH {29}

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Disclosure: I am participating in the Verizon Style Voices program and have been provided with a Samsung Galaxy Camera, Nokia Lumia 928 Smartphone and six months of service in exchange for my honest opinions about the product. This video may have been shot with that camera or phone. More for more information visit: ad-for-verizon.com/
Part 1: What is Spina Bifida?
• WHAT IS SPINA BIFIDA? ...
Part 2: Development
• DEVELOPMENTAL ANSWERS ...
Part 3: Surgeries
• SURGERY ANSWERS • SB A...
Part 4: Cause & Prevention
• CAUSE & PREVENTION • S...
Part 5: Awareness & Advice
• AWARENESS & ADVICE • S...
Part 6: Routine & How Am I Doing
• ROUTINE & HOW AM I DOI...
Entire Spina Bifida Awareness Playlist:
• Spina Bifida Awareness...
{Ankle Foot Orthosis (AFO}
en.wikipedia.org/wiki/Ankle-fo...
{DOBBS BAR}
www.dobbsbrace.com/
{FAQ}
Q: Who is Flickerbug?
A: My son.
Q: What's up with him?
A: Watch this here video • 🍍My Special Needs Mom ... then watch this playlist if you want more info: • Spina Bifida Awareness...
Q: How tall are you?
A: 6 foot 1 inch
Q: Why did you cut your hair?
A: Just wanted a style change.
Q: Did you cut it because of heat damage?
A: Nope, I used heat on it because I knew I was gonna cut it.
Q: Why cut your hair off then wear wigs?
A: Why not?
Q: Now that your hair is short, do you plan on keeping it like that?
A: Not sure, I don't have any specific plans.
Q: When was the last time you cut your hair?
A: I went to the barber in April of 2012 and haven't been back since.
Q: What is the name of the song at the end of your video?
A: See music information below.
Q: How long have you been natural?
A: I went natural in 1999, then permed and went back in 2002.
Q: How long is your hair?
A: It was 20 inches long when I cut it. It's maybe 2-3 inches now.
Q: Where are you from, I hear an accent.
A: Born and raised in the U.S. Virgin Islands. BIG UP VI MASSIVE!!!
Q: I want to send you something, what's your address?
A: See mailbox information below or check my channel page.
{MAILBOX INFO}
If you want to send me something here's the address:
Glamazini.com
6290 Ronald Reagan Dr - Suite 162
Lake Saint Louis, MO 63367
USA
{MUSIC}
Music by: J-Soulja
Song title: Jesus Will Save The Day
Used with permission of the artist.
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SAMSUNG GALAXY CAMERA
{VIDEO EDITED WITH}
COREL VIDEO STUDIO PRO X4
xo
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©This Is Art, LLC. All Rights Reserved. For more about my disclosure policy, visit www.glamazini.com/privacy-policy

[@beautifulzion2012]

Thanks so much for watching and being engaged in the entire series. It really means a lot.

[@andthencannie]

I've watched this entire series and your testimony (along with everything else lol!) and I just have to say how much of an inspiration you are. You are a faith builder, strong, determined and brave. Thank you for sharing your life, beautiful family, and even the hard times. I am praying for abundant blessings for you, Flickerbug & your family.

[@CherishMyDaughter]

Roshini, I know people are saying this over and over, but I am seriously praying for you. I'm all late in watching the videos, but when I think of all the YEARS God has used you as a blessing in my life, just being you and sharing your journey--it is not hard at all to want to wish you well, hope God's presence and power surrounds you and breaks off every yoke and limitation and empowers you to walk through every situation in supernatural abundance---lacking nothing. Every morning is new and God's fuel never runs out no matter what we feel and feelings are huge--especially for women. Jesus is so gentle with our feelings. Praying.

[@beautifulzion2012]

It's one day at a time but somehow you reach the end and realized he carried you through. Thanks for tuning in and remaining engaged in this series, it really meant a lot to me.

[@beautifulzion2012]

Thank you so much. Your kind words & prayers really mean a lot!

[@LocsMermaidia]

This was so inspirational...I suffered from depression up until I was 22. It was not easy. You have to stay focused or it can spiral out of control - and I've been there - but in the past! 😀 thank you for sharing xxx

[@Qochemist]

Thank you so much for sharing and being so candid and honest...You are blessed and you are blessing others.... God's grace has truly kept you. Hugs to you and my favorite Flickerbug :)

[@CharliGirl868]

Thanks for sharing yourself & Flickerbug. I can't imagine it's easy for you, but you are helping others.

[@itsPatriciaMarie]

Thank you for sharing this series with us! God bless

[@basbleupeaunoire]

I loved this series!!! I teach and I believe you do an excellent job of explaining things.

[@BNFocused]

Thanks for sharing this intimate moment with the world. Be blessed and continue to be a strong family for each other. I appreciate your time and insight. Be well!

[@beautifulzion2012]

Thanks, you too.

[@mrsfruity76]

You're an amazing person and a wonderful mom to Flickerbug. And he's an awesome little boy. Thank you for shedding some light on this topic, and sharing your experiences. I learned a lot by watching this series. Be blessed :-)

[@MsABee1]

You Rock girlfriend! Thank you so very much for sharing and teaching us about Spina Bifida! Much love and well wishes to you and your lovely family! God is GOOD!

[@beautifulzion2012]

All the time.

[@rzashida]

Great video, I learned alot. Thanks for speaking out.

[@YT4Me57]

I am so proud of and grateful to you and your husband. You are leaning on God's grace and each other on this journey and that is a blessing. In turn, you have blessed others in ways you can't even imagine. Your statement on how you are managing with depression is a God-send. For those of us who have (like me) or do struggle with clinical depression, it's good to know and be reminded that God can deliver. May the Lord continue to bless your family.

[@beautifulzion2012]

Thanks for watching!

[@DW5918]

Little Flickerbug is so handsome. You are a great corageous mom. Thank you for sharing. I learned a lot. God bless you and your family.

[@beautifulzion2012]

❤

[@infinitelyblessed4812]

Thanks alot for sharing i really learnt alot.Stay strong

[@EricGus67]

Thank you for making these videos .. as a fellow parent of a son born with spina bifida its great to see another parent answering many of the same common questions that people ask me.. Its really amazing to see someone who understands all the little things about caring with an infant/child with SB .. I hope you dont mind if I use some of your videos for a presentation at a SBA event, I think having a mom (and not a medical professional, although by the time your child is born I think we all could qualify as medical professionals with all the stuff thrown at us) answer these questions actually a much better way to present this information to the public who may not be aware of spina bifida.

[@beautifulzion2012]

Eric Gustafson No problem, feel free to use my videos and share them. Thanks and God bless.

[@beautifulzion2012]

Thank you :)

[@blueisis02]

I enjoyed this series very much. I had no clue what spina bifida was or its affects until you educated me. I thank-you for that ;-) my qs for you is: how has your experience with flickerbug & his diagnosis affected your faith? Do you feel closer to the Lord? Angry? Confused? Joyful? Curious about what HIS plans are for you & the family? Have you considered making this your platform to educate & raise money for r&d? I know this is personal, so if you wish not to answer that's cool too.

[@toyakellum1637]

We have so much in common! I mean all of it. My 4 year old son was born with hydrocephalus and has cerebral palsy. He is my first and only child. I wish you were my neighbor.

[@beautifulzion2012]

Toya Kellum Where are you located? Maybe you can find a local group of moms??