Learning About Lichen Sclerosus with Dr. Erin Foster
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- เผยแพร่เมื่อ 17 ต.ค. 2024
- Dr. Erin Foster is a board-certified dermatologist specializing in mucosal, oral, and genital dermatology. Her research focuses on shared decision-making with patients, genital lichen sclerosus, and the immunological basis of skin conditions. An MD with a Ph.D. in skin immunology, Dr. Foster is a passionate advocate for advancing knowledge of lichen sclerosus among medical trainees, primary care providers, and the general public.
In this session, Dr. Foster will educate us on lichen sclerosus from a dermatologist's point of view. You will learn all about symptoms, treatments, and other need-to-know things about LS. She will also answer your questions.
Is LS also similar to Morphea or EHK Ichthyosis in any way?
They currently have me on Clobetasol twice a day. They don't know what this is yet. I'm having to do my own research. Anyway. When I do it twice a day I get major headaches. Also, does large doses of Vit D3 help with this type of lichen?
Very helpful session. Appreciate this information, presentation.
You are so welcome!
I know that I have been bimoldal but no MD looked at my valvular area until I was 52. I had almost always annual Gyn exams from age 21 on. I am now 75 and a month ago had a wide valvular excision. The result was P 53. I was told that the only continuing treatment is examination. Please note I have done this in. LS clinic at Beth Isreal Clinic Boston MA since 2000. They did not notice the area of concern. I had to point it out to them after they examined me then they took a biopsy and it took from May until October to have the wide surgical excision. Next follow up in May 2025. I can’t find good experienced risk assessment. Can you recommend someone other than BIDMC. I had hives from colbestrol cream. Ointment was ok but now given halobetasol propionate ointment. I have never had the symptoms improve.
Sorry to hear you've had such a hard journey. We have a referral provider directory where you may find a provider in your area.
lssupportnetwork.org/providers
Also, want to mention that I use halobetasol as well. Have you seen the video with Dr. Jill Krapf on How to use your steroid correctly with Dr. Jill Krapf - th-cam.com/video/FdwECxBJIBI/w-d-xo.html
Hi. I'm new here. I just got diagnosed 4 weeks ago. I cant watch this entire video right now even though I'm sure its very informative and I am grateful for that. However all of this information is extremely overwhelming. I do plan on finishing this video hopefully soon I do want to be informed, but it seems like everything I'm learning is only bad news train. I don't know how much more bad news I can take. I wish there was some good news, I know being informed is good but also it's this whole thing is scary I'm so terrified. I just need to take a break from this I'm extremely overwhelmed but I would just love to know what the good news is. I'm 15 minutes in this video and I haven't heard anyone mention free ice cream for life yet or anything else that sounds remotely positive about this incredibly scary thing.
So sorry to hear of your recent diagnosis. It all sounds scary but believe me, it can be controlled well with steroid creams etc under the care of a good dermatologist or vulvar specialist ( here in the UK). I am 7 years into my diagnosis. Information and knowledge is power believe me. Arm yourself with as much knowledge about it as possible. I didn't want to know at the beginning as was in shock from the diagnosis. My Mother had vulvar cancer which we believe was from untreated Lichen Sclerosis..... she was of that generation that never talked about 'intimate' things. But because of what happened above, I have now watched and read as much as possible and realise there is much you can do to help yourself!!! Hence the coconut oil:). Wishing you well.
@@charlottehodgson5093 Thank you ❤️ I do appreciate the information and I did watch the video. I'm still grieving my normalcy and it's been hard. I'm glad to know information and support is available, I guess that's the good news. I'm just scared. I'm so sorry to hear about your Mom. ❤️ I definitely want to arm myself with as much knowledge as I can but it's so hard when it all sounds so scary at first. Lots of love ❤️
@@banjothesiamesecatisfunny For you young women diagnosed with it I can imagine how awful it all sounds and the concern as to how it is going to impact relationships etc My heart goes out to you all. I am in my ‘third age’ at 72 but still a shock finding you have something you had never heard about and no one talks about 🫣 I am open about it with family and friends and my daughter sees a dermatologist for a check up as it seems to have a genetic link in some people. She already has Lichen Planus affecting the skin on her body when she is stressed. I have had oral Lichen Planus for 30+ years and she has it too. It seems there is a link between that and LS sadly.
Anyway, wishing you all the best going forward 🤗
Thank you so much for providing support and awareness! Your kindness is why I love this community. 🥰🤗🥰🤗
I'm sorry you're feeling this way. I want to let you know there is hope. LS can be managed, and you can live comfortably. It may seem like a giant monster right now, but you can tame the beast. Please don't let it steal your joy.
We have a lot of free information on our websites and podcast. I encourage you to listen to the episode I did with Dr. Jill Krapf on proper steroid treatment. It has changed lives.
How to use your Lichen Sclerosus steroid treatment with Dr. Jill Krapf - th-cam.com/video/FdwECxBJIBI/w-d-xo.html
We also have it in blog form - lssupportnetwork.org/drjill
And to go through the playlists we put together for you on TH-cam.
Newly diagnosed TH-cam Playlist - th-cam.com/video/VKZTAUKpNcw/w-d-xo.html
Living with LS - th-cam.com/play/PLVSlOuoh9J5JSbI_Y5bHjO0eb6cuwXkrW.html
We have two types of support groups. The first is a free virtual meetup. We host them every other Saturday from 2-4 and 7-9 PM EST. The next one is this Saturday, March 2. You can sign up at
lssupportnetwork.org/connect
Many people find it helpful to connect face-to-face with people who understand what they're going through.
It's no pressure. You control your interaction. You can just listen if you want to. You don't even have to turn on your camera. We do an hour of education for beginners in our first session.
Our other support group is our private membership, LSSN Membership. It's a safe, intimate, positive space where we learn about our condition from and with each other. There are no distractions because it's off of social media.
We work on healing the mental effects as well as the physical. Our video library has over a hundred hours of education, varying from expert interviews and Q&A to Welcome Parties. We also have all the expert replay sessions from our previous (W)holistic Healing Summits.
It's a family. We genuinely want the best for each other. You can get access and learn more at
lssupportnetwork.org/membership
Give yourself grace and take your time so you can heal. Just know you are not alone.
You got this!
I was diagnosed with Vulval LS in 2019. It has been well controlled with steroid ointments for the past few years.
However a week ago I had a disturbed night with pain in the clitoral area. Woke to discover my right hand side labia ( what isn't fused) was very red and hugely swollen and throbbing in pain. I couldn't sit or walk so spent the day mostly standing or lying down. It got worse and is now oozing blood. So I started using Dermovate twice a day, morning and bedtime after washing with Dermol. Seeing a male doctor later on today but not holding out much hope and have left an urgent message with the secretary of my dermatologist asking for help. No response yet.
Am I looking at a 'flare'? How can I help myself as not in a good place😢
Hey, I'm checking in. How are you now? I hope you are okay 😢
@@banjothesiamesecatisfunny thank you for asking :). My dermatologist let me down and didn't even respond to my messages asking for advice :(. The doc I saw was really lovely and between us we worked out a way forward and the Dermovate twice a day for a week calmed it all down, thankfully. Seeing my dermatologist end of February and have photos to show her to ask what it was I went through!! Back on my regular course of treatment now it has all settled and found using pure organic coconut oil several times a day in that area has really helped my comfort levels :)
@@charlottehodgson5093 Oh my gosh I've been praying for you so hard I'm so glad you're feeling better! ❤️
So happy you're doing better. Sorry I didn't answer right away. I was on medical leave. Moisturizing is highly recommended. The steroid can be drying. I'd love to hear what the dermatologist says. It sounds like a contact dermatitis, especially because it was such an extreme reaction. We have a resource on it on our website. Lichen Sclerosus Or Vulvar Dermatitis - lssupportnetwork.org/lichen-sclerosus-or-vulvar-dermatitis/
@@lichensclerosussupportnetwork Hi and many thanks for your response. Saw my dermatologist yesterday and showed her the photos my husband took for me. She immediately said it wasn't a flare and looked like an 'infection'. It is all very odd as my doc did swabs and they came back clear. So don't think I will ever really know for certain. She was pleased with what she saw and said I was doing all I should be and to continue the protocol as it was obviously helping. I am also using Organic Extra Virgin coconut oil several times a day to keep the area moisturised etc. She said she had a slight concern about the fusing over the clitoral hood etc and my urethra looked like it was going to be 'compromised' and did I have any issues when urinating. So pleased I found your You Tube channel and am slowly working my way through the back catalogue. Great information. Thank you so much...... we need something like this in the UK!! The British Vulval Society do put a very occasional video up but do not do in depth as you do. Thank you!