วีดีโอ

This made me cry. (And I am not a cryer. Lol) I messed up my relationship with my "soulmate" due to this. And he DID understand me. Most ppl don't. I have had 2 unsuccessful mvd's and a RFA that my last surgeon said that that my trigeminal nerve is totally shrunken and covered with scar tissue and that there is nothing else anyone can do. I am in excruciating pain. Thank you for this seminar. I really wish that I could have therapy with you. Most ppl do not understand.

This was very good I do wish that more attention was given to the difference between typical trigeminal neuralgia or type one trigeminal neuralgia and type to trigeminal neuralgia caused by Dental surgery my dental surgery was pretty aggressive bone surgery. It brought on horrific pain I feel like my tooth is being drilled on 24 seven meds don’t help. I’ve been looking into TMS in mind-body medicine and I’m finding quite a few people are healing their trigeminal neuralgia by creating new neural pathways, somatic tracking, releasing past traumas, understanding their personality and a host of different things. I wish I had known about this earlier it’s quite interesting to read the success stories.

Workout time it’s 6am

Any FPA members in 90003 area code I can host 1:1 or small group here. Just teach me how.

Ssdi isn’t enough for facial pain I’m stressing bad coz I can’t work like this!!!! Kaiser!!!!!!!!!!!!!! Yelp us!

I got Kyra’s pure hair for research I’ll donate. Come get it GUARDED… game… guess how many strands of her hair WE got. And see if idk.. what research can benefit US using Kyra’s hair? She knew I was sick. She died for a reason. TO SAVE US coz suffering should be ILLEGAL A CRIME AGAINST HUMANITY…. well that’s my whacky thoughts for today. C u at Kaiser at 9am today. Telepathy subliminal. CIA will chose my drones/clones. And I’m rfid chipped coz I now get suicidal after last drug rape few months ago. Hungry! No food. No ride. I’m scared to get out today. Yesterday was ROUGH!!! how do u feel today? I fb la Sonya Ferguson first thing I woke up in icu after my fist mvd. I think it failed. And I’m allergic to lots of meds including glue used to seal my skull. Thus second surgery to clean all that out and place a titanium plate. But the plate sits or lays a piece of it on top of my ear. Oh boy the pain. Temple hair and eyebrow falling out and I get nerve sores by my mouth on the left side.

I got Kyra’s pure hair for research I’ll donate. Come get it GUARDED… game… guess how many strands of her hair WE got. And see if idk.. what research can benefit US using Kyra’s hair? She knew I was sick. She died for a reason. TO SAVE US coz suffering should be ILLEGAL A CRIME AGAINST HUMANITY…. well that’s my whacky thoughts for today. C u at Kaiser at 9am today. Telepathy subliminal. CIA will chose my drones/clones. And I’m rfid chipped coz I now get suicidal after last drug rape few months ago. Hungry! No food. No ride. I’m scared to get out today. Yesterday was ROUGH!!! how do u feel today?

Hi CEO!!!!

Hiiiii everybody hiiiiiiii ❤❤❤🎉🎉🎉🎉❤❤❤🎉🎉🎉🎉

Thank you again

Thank you for joining us for tonight's webinar. You can receive information and resources in your inbox when you sign up for FPA's Bulletin in this link www.facepain.org/sign-up/

The FPA recently released its second book, Living Well with Neuropathic Facial Pain. It provides a multidisciplinary approach and expands on the various types of neuropathic facial pain, finding the right medications and surgical solutions, and how to afford medication and navigate disability. To purchase the book, please visit facialpainassociation.givecloud.co.

Although the video is not live, we encourage you to comment and ask questions. Your participation and feedback will help us gauge interest in a variety of topics to better serve the community with future webinars. The Facial Pain Association (FPA) does not endorse any product, doctor, procedure, medical institution, or its staff.

Welcome to the FPA’s Video Series featuring presentations from the 2024 FPA Conference. The topic for today’s webinar is Data to Discovery: Navigating Facial Pain Research Panel featuring Jonathan Greenberg, PhD, Robert Lasser, MD, MBA, Raymond F. Sekula, Jr., MD, and Brandi Underwood.

Hi , I have question from dr sekula as he mentioned in last webinar that even with compression those patients are not good for mvd surgery, what was the reason for that?? What type of pain should be there for MVD surgery ?? As those people have constant pain as well as stabbing sometimes but still he denied that she is not good for surgery, Is compression only cause sharp pain then what is the caus eod these dull aches??? Kindly get these answers

Hold on I gotta write down the course so I can take it. It’s free right?

Hiii everybody. Catching up on my notes. Chopper flyby it’s 5:30 pm pst Kyra’s vortex. I have her hair for genetic research if yall interested. I’ll donate it.

Thank you that was informative and I did my FPA rotations I’ll finish now I’m accepting gltq and FPA clients for free life services no applications needed

Social worker on our case with Dr mace in pentagon anyone need IHSS and respites ? Not sure who to call lol. Coz I do! Military I need only what about you?

Send our research to kiaser I see behavior health twice tomorrow

So social security and facial pain….. no money then what do we do? No urgent care transportation. I just sit and suffer. No point s reaming for help no more.

Then go global again sync to all the support groups. Telepathy me for upcoming FPA video support group on demand for those of us with no one to support us at home with limited support.

Shug can pay all my missing car alignments.. and bills back pay to Halloween next year for African American Latino Americans voodoo sanataria curse on my bloods souls. I been cursed since Facebook Now let’s return the favor. That’s why I created Covid 19 I been falling my whole life secrets. Multiple sclerosis Dr author art the pain eraser detected it in 2010 in Long Beach. I got his office here if he’s ready. I need donations unless he opens an office walking distance from me and I need a job to pay for services unless he proctors me and I finish my integrative independent excel supported living program I started program design in 2003 then again when I was homelesss 2013 then again in 2010 coz I knew that was my end I was gonna die now I’m on iPhone life support with FPA Who else in da hood lives with this we can have private group in my kitchen. I’m in 90003

Shug can pay all my missing car alignments.. and bills back pay to Halloween next year for African American Latino Americans voodoo sanataria curse on my bloods souls. I been cursed since Facebook Now let’s return the favor. That’s why I created Covid 19 I been falling my whole life secrets. Multiple sclerosis Dr author art the pain eraser detected it in 2010 in Long Beach. I got his office here if he’s ready. I need donations unless he opens an office walking distance from me and I need a job to pay for services unless he proctors me and I finish my integrative independent excel supported living program I started program design in 2003 then again when I was homelesss 2013 then again in 2010 coz I knew that was my end I was gonna die now I’m on iPhone life support with FPA Who else in da hood lives with this we can have private group in my kitchen.

Shug can pay all my missing car alignments.. and bills back pay to Halloween next year for African American Latino Americans voodoo sanataria curse on my bloods souls. I been cursed since Facebook Now let’s return the favor. That’s why I created Covid 19 I been falling my whole life secrets. Multiple sclerosis Dr author art the pain eraser detected it in 2010 in Long Beach. I got his office here if he’s ready. I need donations unless he opens an office walking distance from me and I need a job to pay for services unless he proctors me and I finish my integrative independent excel supported living program I started program design in 2003 then again when I was homelesss 2013 then again in 2010 coz I knew that was my end I was gonna die now I’m on iPhone life support with FPA

Shug can pay all my missing car alignments.. and bills back pay to Halloween next year for African American Latino Americans voodoo sanataria curse on my bloods souls. I been cursed since Facebook Now let’s return the favor. That’s why I created Covid 19

Shug can pay all my missing car alignments.. and bills back pay to Halloween next year for African American Latino Americans voodoo sanataria curse on my bloods souls.

And home care therapies and IHSS

The dumbos just can’t comprehend that. EYE NEED REAL MILITARY NOT VETS TO DO MY IHSS

EYE DO BUSINESS WITH PROFESSIONALS ONLY

I’m tired of suffering now I need a REAL REMOTE INCOME ON BMO

Latinos can pay for our life long comfort care

lol they also demonizing me coz of a stillborn baby at full time on the day she was due so Latinos can have supreme global rights.

Steroid shot wearing off body pain coming back got it on last Friday and it’s Tuesday evening. Pains coming back!!!! I’m getting in the tub with epsom salt and baking soda. Relax with a blunt. Listening in. Telepathy me please. I have teflon my vessel was hair thin. The hood think I need dick and prayers when I really need JAMA And that don’t mean Jamaican

Steroid shot wearing off body pain coming back got it on last Friday and it’s Tuesday evening. Pains coming back!!!! I’m getting in the tub with epsom salt and baking soda. Relax with a blunt. Listening in. Telepathy me please. I have teflon my vessel was hair thin. The hood think I need dick and prayers when I really need JAMA

Steroid shot wearing off body pain coming back got it on last Friday and it’s Tuesday evening. Pains coming back!!!! I’m getting in the tub with epsom salt and baking soda. Relax with a blunt. Listening in. Telepathy me please.

Steroid shot wearing off body pain coming back got it on last Friday and it’s Tuesday evening. Pains coming back!!!!

Hiii everybody hiiiii ❤❤❤🎉🎉🎉🎉❤❤❤❤🎉🎉🎉

He mentioned that normal contact is not an issue then why mvd surgeries are regular done in these cases also among surgeons community and even many have compression but no pain so what is teh missing thing, why doctors are unable to find a real issue behind TN till date , What is happening to research?? This disease is from 100s of years

Hiii

Thank you Dr Liedtke for this life-saving information .

Isnt burning pain a advanced version of sharp pain as cindition progress then how pain change its nature viceversa ?? @drlim please address this issue ,is it due to interventions done or normally??

Thank you for this webinar. Question for Dr Scott-Morrow: Clearly TN and other chronic pain diseases can cause trauma/PTSD symptoms. Is there research into the converse: whether and how trauma or stress contribute to chronic pain diseases? I’m struck, for instance, by the high prevalence of headache disorders among Indigenous peoples, groups that also have a high incidence of trauma/historical trauma, and wonder if a connection has been hypothesized.

Did he say 50 percent people have neurovascular contacts ??@8:23

Hiiiiii❤❤❤❤❤🎉🎉🎉🎉🎉

Just you and eye I

There is research into caregiver PTSD. This is a long-term stressor that leads to complex PTSD (C-PTSD), and it is harder to treat than single-stressor traumas. My daughter had TN, , ON, and cluster headaches, and she died from an awful combination of medications prescribed to treat her facial pain. I now have CPTSD (although I've had lots of other traumas). Caregiver PTSD leads to heightened risk for contracting 28 different categories of infectious diseases, most notably respiratory and skin infections, as well as UTI's. If it's an inflammatory disease, we're at risk for developing it. Chronic pain and chronic illnesses, including IBS and IBD, Crone's disease, rheumatoid arthritis, fibromyalgia, and MS are on our horizon. We are at increased risk for heart attack, dementia, stroke, and cancer. I am not making this up: Caregiving kills the caregiver. Yes, caregiver PTSD is a very real thing.

Thank you for joining us for today’s webinar. You can receive information and resources in your inbox when you sign up for FPA's Bulletin in this link www.facepain.org/sign-up/

The FPA just released its second book, Living Well with Neuropathic Facial Pain. It provides a multidisciplinary approach and expands on the various types of neuropathic facial pain, finding the right medications and surgical solutions, and how to afford medication and navigate disability. To purchase the book, please visit facialpainassociation.givecloud.co.

Although the video is not live, we encourage you to comment and ask questions. Your participation and feedback will help us gauge interest in a variety of topics to better serve the community with future webinars. The Facial Pain Association (FPA) does not endorse any product, doctor, procedure, medical institution, or its staff.