![UChicago Celiac Disease Center](/img/default-banner.jpg)
- 54
- 28 221
UChicago Celiac Disease Center
เข้าร่วมเมื่อ 21 ธ.ค. 2020
Dedicated to improving awareness, education, research and diagnosis rates nationwide.
cureceliacdisease.org
Additional Information
The University of Chicago Celiac Disease Center is the first center of its kind in the nation, offering a comprehensive approach to the disease: including reliable and accurate patient and professional education, expert diagnosis and treatment for both children and adults, ground-breaking bench and clinical research and active leadership in advocacy efforts.
cureceliacdisease.org
Additional Information
The University of Chicago Celiac Disease Center is the first center of its kind in the nation, offering a comprehensive approach to the disease: including reliable and accurate patient and professional education, expert diagnosis and treatment for both children and adults, ground-breaking bench and clinical research and active leadership in advocacy efforts.
Dinner with the Doctor - Conversations about Celiac Disease and Fertility
In this event we welcomed a leading OB/GYN specializing in infertility as it relates to celiac disease. Dr. Salih spoke to the connections between the two and was joined by an adult and a pediatric gastroenterologist to discuss the topic.
มุมมอง: 101
วีดีโอ
Gluten Free No Bake Nutella Pie
มุมมอง 602 หลายเดือนก่อน
Ingredients: 1 - 13 oz jar chocolate Hazelnut spread (Nutella brand) 1 - 9 inch prepared chocolate crust (Mi-Del brand) 1 - 8 oz package cream cheese, softened 1 - 8 oz container frozen whipped topping, thawed Instructions: 1. Spread 1/4 c of the hazelnut spread over the bottom of the chocolate crust. 2. Beat remaining hazelnut spread and cream cheese together in a bowl until smooth. Fold whipp...
InTransit - Celiac Research Conversation with Valerie Abadie, PhD
มุมมอง 1472 หลายเดือนก่อน
Conversation with Valerie Abadie, PhD and teens with celiac disease regarding the latest in research, clinical trials and advancement in treatments, cures, and so much more.
Blueberry Muffins
มุมมอง 783 หลายเดือนก่อน
Ingredients: 2 eggs 1/2 cup canola oil 3/4 cup brown sugar 1/4 cup granulated sugar 1 tsp vanilla 1 cup plain yogurt 2 - 1/4 cups gluten free flour blend (I used King Arthur) 1 tsp baking soda 1 tsp baking powder zest of 1 lemon juice of 1/2 lemon 1 cup fresh or frozen blueberries Instructions: Whisk together eggs and oil. Add and whisk brown sugar, granulated sugar, vanilla, and yogurt. Add fl...
Family Network - Planning for Celiac Disease in Schools Including Accommodations and 504 Planning
มุมมอง 1073 หลายเดือนก่อน
The UChicago Celiac Disease Center in partnership with national institutions throughout the country presents on the topic of 504 plans and accommodations for those with celiac in school. This presentation covers preschool to college. Presenting on this topic is Vanessa Weisbrod who was instrumental in developing the guidelines used for 504 planning.
Dinner with the Doctor - Drug Development in Celiac Disease
มุมมอง 5004 หลายเดือนก่อน
In this event we welcomed leading scientific experts to discuss the process of developing drugs, clinical trials, research, and where we are currently with drug development for celiac disease.
Flourless Chocolate Cake
มุมมอง 325 หลายเดือนก่อน
Ingredients: 16 oz semisweet chocolate chips 1 - 1/2 cups sugar 3/4 cup boiling water 2 sticks butter, softened and diced 2 tbsp cocoa powder 9 eggs 1 tbsp vanilla Instructions: 1. Preheat oven to 350 degrees. Line and butter a 10" springform pan. 2. Using food processor chop chocolate chips and sugar until an even sandy grain. 3. Pour hot water in and blend until smooth. 4. Add butter and coco...
InTransit - Social and Emotional Affects of Celiac Disease on Teens
มุมมอง 1255 หลายเดือนก่อน
Dr. Meg Clark WIthington speaks to teens about the affects celiac disease has on them socially and emotionally and gives advise on how to navigate through these things in healthy ways as well as when to ask for help from family and/or professionals.
Sheet Pan Lemon Garlic Chicken
มุมมอง 716 หลายเดือนก่อน
Ingredients: 1.5 lbs boneless skinless chicken thighs 1 lb baby gold potatoes, quartered 3 cups broccoli florets Lemon Garlic Marinade 1/3 c olive oil 3 cloves garlic, minced 3 tbsp fresh lemon juice 2 tsp lemon zest 1 tbsp dijon mustard 1 tsp each salt, pepper, dried basil, dried oregano, onion powder 1/2 tsp each paprika, cumin, dried thyme Parmesan Yogurt Herb Sauce 1 c plain greek yogurt 1/...
Dinner with the Doctor - Bone and Joint Health in Celiac Disease
มุมมอง 5126 หลายเดือนก่อน
In this event we welcome Endocrinologists and a Rheumatologist to discuss how bone and joint health are connected to and affected by celiac disease.
CME: Gluten Challenges in Celiac Disease Session 1
มุมมอง 6116 หลายเดือนก่อน
Session 1 recording of the November 18, 2023 CME, "Gluten Challenges in Celiac Disease." Bringing together top experts from across the nation, this activity dives deep into diverse ranges of experience and cutting-edge research. The focus is on diagnosis, the gluten challenge, and groundbreaking research. We're here to equip you with the freshest insights and clinical strategies, ensuring you s...
CME: Gluten Challenges in Celiac Disease Session 2
มุมมอง 4496 หลายเดือนก่อน
Session 2 recording of the November 18, 2023 CME, "Gluten Challenges in Celiac Disease." Bringing together top experts from across the nation, this activity dives deep into diverse ranges of experience and cutting-edge research. The focus is on diagnosis, the gluten challenge, and groundbreaking research. We're here to equip you with the freshest insights and clinical strategies, ensuring you s...
Family Network - Dual Kitchens
มุมมอง 1627 หลายเดือนก่อน
In this video we show how to set up a dual kitchen. A space that is used for both gluten-free and gluten containing cooking.
Gluten-Free Cut Out Cookies
มุมมอง 787 หลายเดือนก่อน
Gluten-Free Vanilla Almond Sugar Cookies adapted from Bakeat350 Ingredients: 3 cups all-purpose gluten-free flour (I use King Arthur brand) 2 tsp baking powder 1 cup sugar 1 cup salted butter, cold and cut into chunks 1 egg ¾ tsp pure vanilla extract ½ tsp pure almond extract Instructions: Preheat oven to 350. Combine flour and baking powder, set aside. Cream the sugar and cold butter. Add the ...
Gluten-Free Stuffing Recipe
มุมมอง 1278 หลายเดือนก่อน
Ingredients: 1 tbsp olive oil 2 Spicy Italian Sausages, casing removed 4 celery stalk, fine diced 1 small onion, fine diced 1 garlic clove, minced 1 lb French bread , cut into 1" cubes 1 tbsp fresh parsley 1 tsp fresh thyme 1 tsp ground sage 1 tsp Italian seasoning 1/2 tsp dried thyme 1 tsp salt 1-2 cups chicken broth 6 tbsp butter, melted 2 eggs, beaten 1.5 cups shredded Italian cheese blend 1...
Dinner with the Doctor - Dermatitis Herpetiformis
มุมมอง 18K9 หลายเดือนก่อน
Dinner with the Doctor - Dermatitis Herpetiformis
Family Network - Manufacturing, Labels, and Disclaimers
มุมมอง 11910 หลายเดือนก่อน
Family Network - Manufacturing, Labels, and Disclaimers
Gluten-Free Recipe: Loaded Baked Potato Salad
มุมมอง 5011 หลายเดือนก่อน
Gluten-Free Recipe: Loaded Baked Potato Salad
Gluten-Free Recipe: Gluten Free Biscuits
มุมมอง 116ปีที่แล้ว
Gluten-Free Recipe: Gluten Free Biscuits
Gluten-Free Recipe: Gluten Free Chocolate Chip Cookies
มุมมอง 55ปีที่แล้ว
Gluten-Free Recipe: Gluten Free Chocolate Chip Cookies
Spotlight on Males with Celiac Disease featuring The Celiac Project
มุมมอง 609ปีที่แล้ว
Spotlight on Males with Celiac Disease featuring The Celiac Project
Gluten-Free Kitchen Segment: Pantry Storage
มุมมอง 36ปีที่แล้ว
Gluten-Free Kitchen Segment: Pantry Storage
V v 77 8x I⁸vb67f7f v 7d⁸b⁸8d8dy7d
Is there a drug available now .
There is no drug available currently.
In North Idaho where I reside there are a number of potential Celiac patients of Irish descent. My son is a confirmed Celiac. He lives in Washington state. I am untested although symptoms throughout my life now including ataxia. My other children have never been tested. I am sure my parents had it and also my brothers. One died at age 30 of colon cancer, the other had multiple sclerosis. Alcoholism is strong here. Many are mixed native American heritage her had multipl ; not tested for Celiac. I have been ignored or gaslighted by U S doctors and am now 88 years old. This is catastrophic.
I appreciate these types of discussions, and I hope you do more. However, please provide more specifics. What drug, what company, which trial, what time frame? What mechanism is used? Everyone seems so careful in how they talk. Please provide specifics if possible. Don't be afraid of providing details.
If your not a medical professional, alot of it probably wouldn't make sense. Also, what would you do with that info if you had it? Just let the process play out.
Thank you very much for taking the time to host and participate in this session, and for posting it to TH-cam. I'm based in Europe and wasn't able to dial in (time zone issues) and ask any questions. When you were discussing different therapies currently in development, I would have appreciated a more granular discussion, actually naming specific trials that are currently underway instead of keeping it very high level. I understand doing so might be sensitive for a host of reasons, but it would really make things more tanglible. If I had a chance to join in live, I would have asked your POV on novel therapy angles such as mRNA and CRISPR as it relates to celiac disease. Thank you for everything you're doing for the celiac community!
In a shared kitchen is there any gluten-full baking allowed?
Yes, of course. If you chose to have a shared kitchen that means both gluten containing and gluten-free are happening in the same space. You just have to take the precautions as demonstrated in the video.
What is my blood work comes back positive ? I don’t want to do the endoscopy
We would suggest discussing this with your clinician to determine the best approach for you and your situation. Many things are taken into consideration when deciding about an endoscopy.
Feeling really depressed , irritable and even getting easily angry when I've had certain food like pasta. Pasta causes a really bad mood swing and I become very negative and overly sensitive over things I normally deal with calmly.
Really! Reintroduce a poison that is making you ill too find out if it's making you ill 😳 You people are monsters
I cant believe what im hearing these so called specialists say! Wonder how many of them actually suffer with CD?!
Would have great when there were time stamps 😊❤
Short: i Hate Gluten and All Grains. #save100millionlives
Thank you doctors.....
Really appreciate this informed discussion. I live in a rural area and don't have access to good celiac care, sometimes I feel that I know more than my doctor. It's so important for me to take responsibility for my own health but I need access to experts. Thanks!
I don't live in a rural area and feel the same. They gave me a dietitian, and I knew more than they did.
Thank you SO MUCH for sharing your expertise!
Thanks everyone!
Thank a LOT!
Excellent! Thanks to all of you.
As a clonal you mean gamma delta positive and gamma delta negative ?
In 2018 I was diagnosed with a Marsh 3b as a seronegative. Prior to that I had Eoe, bilateral Babinski sign, high ferritin with low iron serum, low vitamin D (7,95), low hdl. 2 years ago i had another endoscopy and the result was almost the same Marsh 3a. Now with a pure carnivore diet I have been diagnosed with a chronic small intestine inflamamtion with gastroparesis and incontinent cardias with also a subclinical hypothyroidism. In my last duodenum histology I have gamma delta positive and negative with Cd4 DN and Cd8 positive. I do not have any CD 19 or 20.
There is nothing you can take for celiac you need to go on gluten free diet if you don't you could get cancer.
My confusion with the test is,, dont stop eating gluten. If you try a gluten free diet and most of your symptoms disappear what more testing do you need? Other than a doctor telling you what you have I would think your body has told you. If there is any medication I geuss you need an official diagnosis.
There are numerous reasons you may want an official diagnosis. The first thing to keep in mind is that it may not be celiac disease but more of a gluten intolerance. A gluten intolerance is handled in a different way. Also, there are other gastrointestinal issues that for a time have some relief from a gluten-free diet so you could assume it's one thing when it may be another. The other reason is more related to children. Often times it is necessary to have a medical diagnosis to show that the child needs special meals prepared in the school setting whether it's elementary or college. Arrangements need to be made to ensure the child is safely being fed. They also may need other accommodations while in school, camp, daycare etc that would require an official diagnosis. I hope all this helps!
Of course it is confusing. If you have a condition and there is only one effective treatment like the strict GFD and it works what else could it be. Yes your body has told you what an official diagnosis will only reaffirm. Why go through increased suffering if you are feeling better and then feeling worse with the re-introduction of gluten just so you can be informed again of what you already know? Personally from someone who was offically diagnosed almost 20 years ago via biopsy I would have tried the diet at the onset of my symptoms 20 years before that and if it had worked would have stayed on it forever satisfied with my better health. I can never get back those 20 lost years of poor health pre-diagnosis. The offical diagnosis was nothing but directions on starting the strict GF diet. Thanks for your logical thinking comment.
@@noglu106 Hello. Sorry about your suffering for many years. I think diagnosis is key because if someone feels discomfort or health issues from eating wheat or another cereal, it may be because other component of the food instead of gluten. For instance, wheat has components such as ATI, wheat germ agglutinin, fodmaps, that can trigger gi discomfort. Fermentation of grains predigest those component and make them much more digestible. Also wheat flour can contain additives like bromine, synthetic vitamins, or may be prepared with baker's yeast. These ingredients may be gi disruptors for many people. Humbletly, that is why i think is important an accurate diagnosis, because it may not be gluten specifically what causes harm in everyone. Sorry for my english. Best wishes
@@JuanLopez-vf3mo No apology needed. I have something you might have overlooked when insisting on testing. You haven't considered the possibility that the person may not have health insurance or cannot afford the testing. Should that person continue to suffer while waiting to afford the necessay tests or see if diet helps? Just a thought. Thanks for your reply.
@@noglu106 It's a fair point. Here in Argentina, blood tests are free in most cases, or at least are not expensive. But for sure is not the case for many countries. Sorry for my english Thank a lot for the reply
I'm very sorry that you and your sister have had to deal with this and I'm glad you seem to be dealing with it quite well. For what it's worth I'd just like to say that you are very pretty, wow.
I’m 22 years old and I think I have it. I’ve been struggling with eating for about a month now because everytime I eat my stomach gets so irritated. I experience bloating, gas, constipation, and pain. And it is ruining my relationship with food. It makes me not want to even eat. My appointments to see a GI specialist isn’t until October 3rd :/
I'm so sorry to hear you are struggling! I am glad you made an appointment with a GI doctor. That is the best first step you can take. No matter what they find know that the suffering is temporary. Once you know what foods are the problem you will be able to heal and enjoy food again. Please don't stop eating gluten because you need it in your system for the celiac tests to work properly.
It is maybe an interesting thing to spell out exactly why the gluten items are on the bottom....because you don't want gluten falling down into or onto the gluten free items...if gluten free in on the top, there is no chance crumbs or gluten will contaminate your GF items.