Life With Shary
Life With Shary
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วีดีโอ

COUNTDOWN TO OUR KIDNEY TRANSPLANT
มุมมอง 9263 ปีที่แล้ว
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MY COVID-19 VACCINE EXPERIENCE / PFIZER VACCINE
มุมมอง 3443 ปีที่แล้ว
#iganephropathy #dialysispatient #pfizervaccine
Animals we've seen on our morning walks.
มุมมอง 1753 ปีที่แล้ว
#animalsroamingintoronto
NOSE BLEED AFTER MULTIPLE NASOPHARYNGEAL SWAB TEST
มุมมอง 2.8K3 ปีที่แล้ว
#epistaxis #covid19swab #nosebleed #iganephropathy
Fighting to win 💪😊
มุมมอง 4133 ปีที่แล้ว
#iganephropathy #hemodialysis
IJ catheter insertion / Line for dialysis
มุมมอง 2.1K3 ปีที่แล้ว
#hemodialysis #kidneyfailure
Going to the hospital.🥺
มุมมอง 2623 ปีที่แล้ว
#iganephropathy #chronickidneydisease
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
มุมมอง 2853 ปีที่แล้ว
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
Where have I been? My thoughts of being immunocompromised during pandemic.
มุมมอง 2803 ปีที่แล้ว
Where have I been? My thoughts of being immunocompromised during pandemic.
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
มุมมอง 9213 ปีที่แล้ว
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
UPDATE OF PRE-TRANSPLANT WORK UP
มุมมอง 6373 ปีที่แล้ว
UPDATE OF PRE-TRANSPLANT WORK UP
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
มุมมอง 8344 ปีที่แล้ว
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
HOW I KNEW THAT MY KIDNEY WAS FAILING | SIGNS & SYMPTOMS OF KIDNEY FAILURE
มุมมอง 1.1K4 ปีที่แล้ว
#iganephpropathy #kidneydisease
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
มุมมอง 99K4 ปีที่แล้ว
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
มุมมอง 5244 ปีที่แล้ว
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
Monthly Blood Test | CKD LIFE
มุมมอง 4554 ปีที่แล้ว
Monthly Blood Test | CKD LIFE
Anemia signs & symptoms and treatment
มุมมอง 6214 ปีที่แล้ว
Anemia signs & symptoms and treatment
BREAKFAST MEAL FOR GAINING WEIGHT
มุมมอง 6394 ปีที่แล้ว
BREAKFAST MEAL FOR GAINING WEIGHT
Question and Answer About My Personal Life/ Kidney Disease Vlog |
มุมมอง 6144 ปีที่แล้ว
Question and Answer About My Personal Life/ Kidney Disease Vlog |
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
มุมมอง 5444 ปีที่แล้ว
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
Mental Health Effect of CKD/ Things I learned
มุมมอง 4924 ปีที่แล้ว
Mental Health Effect of CKD/ Things I learned
Autoimmune Diseases Reality/ Effects in my body.
มุมมอง 6634 ปีที่แล้ว
Autoimmune Diseases Reality/ Effects in my body.
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
มุมมอง 3224 ปีที่แล้ว
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
มุมมอง 4484 ปีที่แล้ว
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
มุมมอง 5304 ปีที่แล้ว
Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
Medications side effects/ kidney failure symptoms
มุมมอง 6114 ปีที่แล้ว
Medications side effects/ kidney failure symptoms
Banaue Rice Terraces in Philippines
มุมมอง 5954 ปีที่แล้ว
Banaue Rice Terraces in Philippines
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
มุมมอง 7154 ปีที่แล้ว
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019
มุมมอง 2194 ปีที่แล้ว
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019

ความคิดเห็น

  • @maryanndy6480
    @maryanndy6480 13 วันที่ผ่านมา

    Thank you for sharing Ms Shary it helps a lot.. I’m researching on how to do it for my brother. Thank God I found you here.. God bless you more’

  • @rheajoymacni8545
    @rheajoymacni8545 14 วันที่ผ่านมา

    Huggsssssss 😢 you know it's hard to live with this disease. We live in Philippines and we don't have resources to have a better fight with this disease. I feel envious you live there. :'(

    • @lifewithshary9779
      @lifewithshary9779 14 วันที่ผ่านมา

      @rheajoymacni8545 sorry po. I hope magimprove ang healthcare ng makatulong sa pagpapagaling ng bawat isa.

  • @abhishek7592
    @abhishek7592 22 วันที่ผ่านมา

    Thank you for the video ❤

  • @marianilsson7616
    @marianilsson7616 หลายเดือนก่อน

    Parasite infection is the cause of anemia

  • @riobella6846
    @riobella6846 หลายเดือนก่อน

    ❤ sending you love and good wibes. Hope your health improves

  • @lepavis
    @lepavis หลายเดือนก่อน

    Cyclists likes here

  • @amiee713
    @amiee713 หลายเดือนก่อน

    How are you doing can you update

    • @lifewithshary9779
      @lifewithshary9779 หลายเดือนก่อน

      @amiee713 Hi . Unfortunately I will be needing another transplant due to Bk virus

  • @xd-zm5yu
    @xd-zm5yu 2 หลายเดือนก่อน

    How r you today ma'am

  • @shepopop
    @shepopop 2 หลายเดือนก่อน

    Since my mom had been vaccinated for Covi x2 yearly plus flu jabs and tested . Her health has deteriorated at a speed , it’s frightening . From extremely healthy to piss poor . Now bleeding of the nose daily for the past 6 months .

  • @nunuki100
    @nunuki100 3 หลายเดือนก่อน

    Im late but congrats! How are you now

  • @dhanvinsarath2382
    @dhanvinsarath2382 3 หลายเดือนก่อน

    My doctor telling me there is cure for it. And then i checked internet and lost my trust for him🙂

  • @amazing_stories.
    @amazing_stories. 4 หลายเดือนก่อน

    Mam i have injected epo injection in stomach near belly button and in evening but my injected area is paining and feeling like vomating so how should i manage

  • @renatahorackova8045
    @renatahorackova8045 4 หลายเดือนก่อน

    Check guy's the BAD side effects from.this 💩

  • @manvi1064
    @manvi1064 4 หลายเดือนก่อน

    Hi how r u now

  • @falguninayek5749
    @falguninayek5749 4 หลายเดือนก่อน

    My relative is affected by the disease. He is in stage1 with protienurea 0.50gm 24hr

  • @AshishKumar-wf5yq
    @AshishKumar-wf5yq 4 หลายเดือนก่อน

    Probably dehydration was the cause of muscle cramps at age 9

  • @rossjacobnavarro6502
    @rossjacobnavarro6502 5 หลายเดือนก่อน

    Hello maam nag inject po ako ng Epoetin normal pang po ba yun nag dugo? Kc po dumugo un site na .ok lang po ba yun..ty

  • @Igorota29
    @Igorota29 5 หลายเดือนก่อน

    Mam how are u doing now

  • @donnaparks1919
    @donnaparks1919 6 หลายเดือนก่อน

    I already had sinus infection when they did swab it bled right after been using sunupulse to irrigate everyday it's better but not letting them do it again.

  • @Valcey777
    @Valcey777 8 หลายเดือนก่อน

    I suddenly am having major nosebleeds and spitting up a lot of blood after having 4 tests. Most of the time when I blow my nose, blood comes out. I wondered if it was related to the PCR tests

  • @edwin6294
    @edwin6294 9 หลายเดือนก่อน

    plz say hw to deal with iga,also say wt lifestyle should i follow

  • @doctorsdiary101
    @doctorsdiary101 9 หลายเดือนก่อน

    Have you received any additional diagnosis above IGAN?

  • @doctorsdiary101
    @doctorsdiary101 9 หลายเดือนก่อน

    With some more time after local anesthesia the pain would have reduced. I feel really sorry for u.

    • @dhanvinsarath2382
      @dhanvinsarath2382 3 หลายเดือนก่อน

      My doctor telling me there is cure. Is it true? I mean the internet says the opposite

  • @jameszbierski391
    @jameszbierski391 10 หลายเดือนก่อน

    She’s cute

  • @jcfrane7916
    @jcfrane7916 10 หลายเดือนก่อน

    how r u now?

  • @thetiw-ads6786
    @thetiw-ads6786 ปีที่แล้ว

    Hello. Bakit ka nag loss weight? Kasi ako din nag loss weight bigla bigla. I have also CKD

    • @lifewithshary9779
      @lifewithshary9779 ปีที่แล้ว

      D na kasi maganda appetite ko nun Kaya namayat na.

    • @thetiw-ads6786
      @thetiw-ads6786 ปีที่แล้ว

      @@lifewithshary9779 oh I see. Pero ngaun ok na ba appetite mo?

  • @DannyxDang
    @DannyxDang ปีที่แล้ว

    Glad your wells now, 🙏 Get better and stronger, we always on your side.

  • @madeleinebrown1710
    @madeleinebrown1710 ปีที่แล้ว

    Never recap a needle to avoid needle prick injuries :)

  • @MissingLeo
    @MissingLeo ปีที่แล้ว

    I’m 37 I’ve had IGAN since I was 22 at the time of diagnosis. My kidney function at the time was in the mid 80s now it has dropped to 42%. I am starting a lot of different medication‘s tomorrow including Farxiga, Tarpeyo and 4 others, I am scared but I found your channel and I’m really happy that I did. It gives me some hope. Thanks for sharing your journey. I am also thinking of starting a channel to document my journey.

    • @talhaandaimanmustafa9372
      @talhaandaimanmustafa9372 11 หลายเดือนก่อน

      What were symtoms when you were 22 ?

    • @MissingLeo
      @MissingLeo 10 หลายเดือนก่อน

      @@talhaandaimanmustafa9372 none at all. Discovered it by random blood work

  • @baleileimgomez
    @baleileimgomez ปีที่แล้ว

    I MISS YOU DRE SHARY!!!!! 💚💚💚💚💚 LAKASAN MO PA LOOB MO

  • @ladyraketera
    @ladyraketera ปีที่แล้ว

    Welcome back😊

  • @dollynotsodolly
    @dollynotsodolly ปีที่แล้ว

    Hi, I wanna ask once lang ba iinject ang epo 400iu? Or depends pa din sa doctors order? Tyia ❤

  • @swagorl
    @swagorl ปีที่แล้ว

    Hi do you still make videos

  • @ma.elenago5057
    @ma.elenago5057 ปีที่แล้ว

    What are the side effect

  • @patriciasuarez5807
    @patriciasuarez5807 ปีที่แล้ว

    Thank you for sharing…. Nice explanation

  • @maryann9247
    @maryann9247 ปีที่แล้ว

    Hope you are doing okay

  • @lizabitonio2005
    @lizabitonio2005 ปีที่แล้ว

    Hi.. I have been diagnosed with Iga last Nov. Protein at 7, Urine shows 4+. I got biopsy and kidney still functioning okay but with severe filter. My filter is 35% scars. I was told that I was on late stage. And if i want to be under studies, i need to at have it down. My BP is at 150. Infammation is showing up to my face and legs (3x larger than normal), i have this burning feeling when peeing I am on my 3 months with steroids. I barely sleep 5 hrs a day. I have side effect of overeating. Fats everywhere my face. I have remove meat on my diet. I stays positive with my condition even knowing that im possible for dialysis. One thing i added is I added Kimchi last january as i have read its good... Im not sure if that helps but thta was the only added to my diet. Before kimchi, my results still at 4+. Now, I have it +2. All my results is good. I will update this comment after a few months if it really helps and all.

    • @lifewithshary9779
      @lifewithshary9779 ปีที่แล้ว

      Thank you for sharing your story. Changing diet is hard but I'm happy you are able to do it. I hope for continues improvement and full recovery.

  • @joeamado2704
    @joeamado2704 ปีที่แล้ว

    Thank you for your video. I was diagnosed with Igan this year and now half way through my prednisone treatment which is hard and make me feel week. My doctor says things are improving though. I feel great support from wife, family and friends which means a lot to me. I also feel God’s presence and comfort knowing He’s in control. It has helped me appreciate life and enjoying every moment in life. How are you doing now? Gos bless you!!

  • @ashleydesabilla311
    @ashleydesabilla311 ปีที่แล้ว

    Hi Shary, I was diagnosed with ERD last November and undergoing dialysis 2x week. I felt better since November. Hope you are too.

  • @maxolan2480
    @maxolan2480 ปีที่แล้ว

    hi, how long have you been doing the epo injection?

    • @lifewithshary9779
      @lifewithshary9779 ปีที่แล้ว

      Maybe 2 years until I got my kidney transplant.

  • @sarahomaisahesmail628
    @sarahomaisahesmail628 ปีที่แล้ว

    How many units did you inject mam?

  • @tribu1071
    @tribu1071 ปีที่แล้ว

    bilib ako sa tapang mo maam..dialysis patien ako and i do that once a week..ako lang din ang nag eenject sa sarili ko...

  • @sudoku252
    @sudoku252 ปีที่แล้ว

    After, do not cap the needle! Snap the yellow cover forward to cover the sharp

  • @willhutchinsonthecameraman
    @willhutchinsonthecameraman ปีที่แล้ว

    Thankyou so much for your video. Our daughter (11) will be starting EPO soon and your video was a great help. Well done for doing it yourself!

  • @MrLegendzHDz
    @MrLegendzHDz ปีที่แล้ว

    You should start MMA you would be great at it 😅

  • @cocomujica6786
    @cocomujica6786 ปีที่แล้ว

    Hola Buenos dias en Caso de bloquear la geringa antes de aplicarse que SE deve haces

  • @kalyanikadam
    @kalyanikadam ปีที่แล้ว

    Any update? How are you now?

  • @tompkinsfamily9437
    @tompkinsfamily9437 ปีที่แล้ว

    Hi all please look up a new medication coming out for IgAN called Sparsentan and talk to your doctor. It’s slotted to come out Nov 2022 and has had amazing results in clinical trials to reverse the protein damage.

  • @robertvandyke9781
    @robertvandyke9781 ปีที่แล้ว

    look how they shove so deeep they scrap you brain