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Life With Shary
Canada
เข้าร่วมเมื่อ 8 มิ.ย. 2017
วีดีโอ
COUNTDOWN TO OUR KIDNEY TRANSPLANT
มุมมอง 9263 ปีที่แล้ว
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MY COVID-19 VACCINE EXPERIENCE / PFIZER VACCINE
มุมมอง 3443 ปีที่แล้ว
#iganephropathy #dialysispatient #pfizervaccine
NOSE BLEED AFTER MULTIPLE NASOPHARYNGEAL SWAB TEST
มุมมอง 2.8K3 ปีที่แล้ว
#epistaxis #covid19swab #nosebleed #iganephropathy
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
มุมมอง 2853 ปีที่แล้ว
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
Where have I been? My thoughts of being immunocompromised during pandemic.
มุมมอง 2803 ปีที่แล้ว
Where have I been? My thoughts of being immunocompromised during pandemic.
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
มุมมอง 9213 ปีที่แล้ว
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
มุมมอง 8344 ปีที่แล้ว
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
HOW I KNEW THAT MY KIDNEY WAS FAILING | SIGNS & SYMPTOMS OF KIDNEY FAILURE
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#iganephpropathy #kidneydisease
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
มุมมอง 99K4 ปีที่แล้ว
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
มุมมอง 5244 ปีที่แล้ว
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
Question and Answer About My Personal Life/ Kidney Disease Vlog |
มุมมอง 6144 ปีที่แล้ว
Question and Answer About My Personal Life/ Kidney Disease Vlog |
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
มุมมอง 5444 ปีที่แล้ว
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
Mental Health Effect of CKD/ Things I learned
มุมมอง 4924 ปีที่แล้ว
Mental Health Effect of CKD/ Things I learned
Autoimmune Diseases Reality/ Effects in my body.
มุมมอง 6634 ปีที่แล้ว
Autoimmune Diseases Reality/ Effects in my body.
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
มุมมอง 3224 ปีที่แล้ว
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
มุมมอง 4484 ปีที่แล้ว
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
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Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
Medications side effects/ kidney failure symptoms
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Medications side effects/ kidney failure symptoms
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
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Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019
มุมมอง 2194 ปีที่แล้ว
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019
Thank you for sharing Ms Shary it helps a lot.. I’m researching on how to do it for my brother. Thank God I found you here.. God bless you more’
Huggsssssss 😢 you know it's hard to live with this disease. We live in Philippines and we don't have resources to have a better fight with this disease. I feel envious you live there. :'(
@rheajoymacni8545 sorry po. I hope magimprove ang healthcare ng makatulong sa pagpapagaling ng bawat isa.
Thank you for the video ❤
Parasite infection is the cause of anemia
❤ sending you love and good wibes. Hope your health improves
Cyclists likes here
How are you doing can you update
@amiee713 Hi . Unfortunately I will be needing another transplant due to Bk virus
How r you today ma'am
Since my mom had been vaccinated for Covi x2 yearly plus flu jabs and tested . Her health has deteriorated at a speed , it’s frightening . From extremely healthy to piss poor . Now bleeding of the nose daily for the past 6 months .
Im late but congrats! How are you now
My doctor telling me there is cure for it. And then i checked internet and lost my trust for him🙂
Mam i have injected epo injection in stomach near belly button and in evening but my injected area is paining and feeling like vomating so how should i manage
Check guy's the BAD side effects from.this 💩
Hi how r u now
My relative is affected by the disease. He is in stage1 with protienurea 0.50gm 24hr
Probably dehydration was the cause of muscle cramps at age 9
Hello maam nag inject po ako ng Epoetin normal pang po ba yun nag dugo? Kc po dumugo un site na .ok lang po ba yun..ty
Mam how are u doing now
I already had sinus infection when they did swab it bled right after been using sunupulse to irrigate everyday it's better but not letting them do it again.
I suddenly am having major nosebleeds and spitting up a lot of blood after having 4 tests. Most of the time when I blow my nose, blood comes out. I wondered if it was related to the PCR tests
plz say hw to deal with iga,also say wt lifestyle should i follow
Have you received any additional diagnosis above IGAN?
With some more time after local anesthesia the pain would have reduced. I feel really sorry for u.
My doctor telling me there is cure. Is it true? I mean the internet says the opposite
She’s cute
how r u now?
Hello. Bakit ka nag loss weight? Kasi ako din nag loss weight bigla bigla. I have also CKD
D na kasi maganda appetite ko nun Kaya namayat na.
@@lifewithshary9779 oh I see. Pero ngaun ok na ba appetite mo?
Glad your wells now, 🙏 Get better and stronger, we always on your side.
Never recap a needle to avoid needle prick injuries :)
I’m 37 I’ve had IGAN since I was 22 at the time of diagnosis. My kidney function at the time was in the mid 80s now it has dropped to 42%. I am starting a lot of different medication‘s tomorrow including Farxiga, Tarpeyo and 4 others, I am scared but I found your channel and I’m really happy that I did. It gives me some hope. Thanks for sharing your journey. I am also thinking of starting a channel to document my journey.
What were symtoms when you were 22 ?
@@talhaandaimanmustafa9372 none at all. Discovered it by random blood work
I MISS YOU DRE SHARY!!!!! 💚💚💚💚💚 LAKASAN MO PA LOOB MO
Welcome back😊
Hi, I wanna ask once lang ba iinject ang epo 400iu? Or depends pa din sa doctors order? Tyia ❤
Hi do you still make videos
What are the side effect
A LOT!!@😮
Thank you for sharing…. Nice explanation
Hope you are doing okay
Hi.. I have been diagnosed with Iga last Nov. Protein at 7, Urine shows 4+. I got biopsy and kidney still functioning okay but with severe filter. My filter is 35% scars. I was told that I was on late stage. And if i want to be under studies, i need to at have it down. My BP is at 150. Infammation is showing up to my face and legs (3x larger than normal), i have this burning feeling when peeing I am on my 3 months with steroids. I barely sleep 5 hrs a day. I have side effect of overeating. Fats everywhere my face. I have remove meat on my diet. I stays positive with my condition even knowing that im possible for dialysis. One thing i added is I added Kimchi last january as i have read its good... Im not sure if that helps but thta was the only added to my diet. Before kimchi, my results still at 4+. Now, I have it +2. All my results is good. I will update this comment after a few months if it really helps and all.
Thank you for sharing your story. Changing diet is hard but I'm happy you are able to do it. I hope for continues improvement and full recovery.
Thank you for your video. I was diagnosed with Igan this year and now half way through my prednisone treatment which is hard and make me feel week. My doctor says things are improving though. I feel great support from wife, family and friends which means a lot to me. I also feel God’s presence and comfort knowing He’s in control. It has helped me appreciate life and enjoying every moment in life. How are you doing now? Gos bless you!!
Hi Shary, I was diagnosed with ERD last November and undergoing dialysis 2x week. I felt better since November. Hope you are too.
hi, how long have you been doing the epo injection?
Maybe 2 years until I got my kidney transplant.
How many units did you inject mam?
bilib ako sa tapang mo maam..dialysis patien ako and i do that once a week..ako lang din ang nag eenject sa sarili ko...
After, do not cap the needle! Snap the yellow cover forward to cover the sharp
Thankyou so much for your video. Our daughter (11) will be starting EPO soon and your video was a great help. Well done for doing it yourself!
You should start MMA you would be great at it 😅
Hola Buenos dias en Caso de bloquear la geringa antes de aplicarse que SE deve haces
Any update? How are you now?
Hi all please look up a new medication coming out for IgAN called Sparsentan and talk to your doctor. It’s slotted to come out Nov 2022 and has had amazing results in clinical trials to reverse the protein damage.
look how they shove so deeep they scrap you brain