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Kelly & FA
เข้าร่วมเมื่อ 20 มี.ค. 2020
I share about my life with Friedreich's Ataxia, because this is what I desperately needed when I was newly diagnosed at age 18. I want to show life goes on, challenges can be overcome, and there is so much joy in this world when you look for it.
10 ways my life has changed with a puppy // Living alone with a rare disease
In this video, I share a few (10? 11?) ways my life with a rare disease has changed with a puppy to care for. Jasper is A LOT of work, but also the most loving, cuddly pup. I filmed this a few months ago (January) and life is certainly different now, but I thought this was still fun to share.
Also not happy with the quality....but thought I'd share anyway.
I’m definitely not following my regular posting schedule these days, but will continue to create content when I feel up to it!
xx
******************************************************
MUSIC:
th-cam.com/video/UTdvf3GjFEc/w-d-xo.html
Music by Mark Generous - Chill City Nights - thmatc.co/?l=1031D1BE
Music by Chinsaku - Blossom - thmatc.co/?l=37FEBFA8
th-cam.com/video/SJWoLUxVEVY/w-d-xo.html
LINK TO LEARN MORE ABOUT FA: curefa.org/
SOCIAL MEDIA LINKS:
INSTAGRAM: kelbarendt
TIKTOK: www.tiktok.com/@kelbarendt?_d=d7lb3j8eedahab&language=en&sec_uid=MS4wLjABAAAAdSiWgpN0QrDVNJ4YApPZf_5410IPeBpESvYM3VwRFASVj1zta54L9fLPssMewyua&share_author_id=6773100001411712006&u_code=da1ch6a3b267ai&user_id=6773100001411712006&tt_from=sms&source=h5_m
PINTEREST: www.pinterest.com/kelbarendt/
FACEBOOK: deactivated for now :). (maybe forever)
BLOG: www.mydarlinglifewithfa.com/
email: kellyandfa@gmail.com
SHOP ALL MY AMAZON PICKS HERE: www.amazon.com/shop/kelbarendt
Also not happy with the quality....but thought I'd share anyway.
I’m definitely not following my regular posting schedule these days, but will continue to create content when I feel up to it!
xx
******************************************************
MUSIC:
th-cam.com/video/UTdvf3GjFEc/w-d-xo.html
Music by Mark Generous - Chill City Nights - thmatc.co/?l=1031D1BE
Music by Chinsaku - Blossom - thmatc.co/?l=37FEBFA8
th-cam.com/video/SJWoLUxVEVY/w-d-xo.html
LINK TO LEARN MORE ABOUT FA: curefa.org/
SOCIAL MEDIA LINKS:
INSTAGRAM: kelbarendt
TIKTOK: www.tiktok.com/@kelbarendt?_d=d7lb3j8eedahab&language=en&sec_uid=MS4wLjABAAAAdSiWgpN0QrDVNJ4YApPZf_5410IPeBpESvYM3VwRFASVj1zta54L9fLPssMewyua&share_author_id=6773100001411712006&u_code=da1ch6a3b267ai&user_id=6773100001411712006&tt_from=sms&source=h5_m
PINTEREST: www.pinterest.com/kelbarendt/
FACEBOOK: deactivated for now :). (maybe forever)
BLOG: www.mydarlinglifewithfa.com/
email: kellyandfa@gmail.com
SHOP ALL MY AMAZON PICKS HERE: www.amazon.com/shop/kelbarendt
มุมมอง: 894
วีดีโอ
My TV Debut on Lifetime // sharing insights on living with FA, RARE Disease Day 2021
มุมมอง 6363 ปีที่แล้ว
Today, February 28th is World Rare Disease Day. A few days ago, I was on s Lifetime show highlighting different rare diseases, and I was able to share some insight about my life with Friedreich’s ataxia. Keep watching to see my segment and to watch the full episode, go here: thebalancingact.com/category/behind-the-mystery/ LINK TO LEARN MORE ABOUT FA: curefa.org/ Music by Fiji Blue - It Takes T...
How you can help my Rare Disease community in 30 seconds or less!!
มุมมอง 3583 ปีที่แล้ว
If you can’t tell,I’m exhausted making this… new puppy mom here :) PLEASE SIGN HERE: www.curefa.org/advocacy?fbclid=IwAR0BA8XAwU8lC-INf-wbV_l8GYxTrYMXQ7OTrF2ph8T41lIxGf9WPoUlQzo MUSIC: th-cam.com/video/UTdvf3GjFEc/w-d-xo.html LINK TO LEARN MORE ABOUT FA: curefa.org/ SOCIAL MEDIA LINKS: INSTAGRAM: kelbarendt TIKTOK: www.tiktok.com/@kelbarendt?_d=d7lb3j8eedahab&language=en&sec_uid=...
2021 PLAN WITH ME | How I plan for a new year with my Rare Disease
มุมมอง 4063 ปีที่แล้ว
I update you on my life with a rare disease in January, and I share how chronic illness affects how I plan everything. I walk you through a few aspects I am planning for 2021! Do you have any productivity hacks if you deal with anything similar? Tell me in the comments. DIRECTIONS FOR GOOGLE SHEETS CALENDAR: 1. Open a new Google Sheet on Google Drive 2. Click Add-Ons at the top, click get add-o...
DECEMBER 2020 life update // the truth behind my LONG break
มุมมอง 4713 ปีที่แล้ว
I introduce you to my new WONDERFUL addition to my life, my puppy. My rare disease, Friedreich's ataxia, can be challenging, but I'm always finding ways to infuse joy and warmth into my life. I want to show you how to elevate your vibe with a disability. Jasper is the sweetest little guy. He also sucks up all my time and energy. (Hence, my break from posting). After the new year, I’ll move back...
HOW TO END 2020 ON A STRONG NOTE // mindset hacks that help me cope with FA
มุมมอง 5413 ปีที่แล้ว
I share 5 mindset hacks I’m taking with me through the end of 2020 in an effort to end this year on a strong note. Whether you have a rare disease or disability Friedreich’s ataxia or not, everyone has their challenges in life. Here’s how I’m working to overcome some of mine. Hope you enjoy! Let me know what you think! MUSIC: Music by Ryan Little - Think About You - thmatc.co/?l=57F75E05 Music ...
How I make an Acai Bowl // my go-to snack with FA
มุมมอง 3823 ปีที่แล้ว
In today’s video, I show you how I make one of my favorite, go-to snacks, an acai bowl. FA makes tasks like this more challenging but here’s how I adapt! 1 handful of frozen mango 1 handful of frozen blueberries Frozen acai packet Splash of almond milk Toppings: -sliced banana -chia seeds -toasted coconut chips HomeGeek Blender: amzn.to/34T6KbN Reusable Bag: www.target.com/p/russbe-reusable-fre...
How I Prepared to Speak to a BioTech Company about my RARE disease | Friedreich’s ataxia
มุมมอง 4033 ปีที่แล้ว
In this video, I share how I prepared to speak to a biotech company, Larimar Therapeutics, and why I think it’s important. They are in the clinical stages of developing a treatment for Friedreich’s ataxia. larimartx.com/ Hope you enjoy! Let me know what you think! MUSIC: Music by Fiji Blue - I Should've Told You - thmatc.co/?l=E6E81970 Music by Mr. Chase - Wild Cherry - thmatc.co/?l=1FA1B5BB LI...
October Week in my life with rare disease (FA) //fall vibes in Columbus xx
มุมมอง 4093 ปีที่แล้ว
Life with a rare disease like Friedreich's ataxia isn't easy, but I've grown and adapted, and live my life to the fullest. I share a pretty typical week in my life with FA in October 2020. All the Fall vibes. I’ll take you around German Village on my mobility scooter and show you all the stunning fall colors. I’ve been going to the gym 5-6 days a week, going to bed/ waking up earlier, and eatin...
Autumn in German Village // A ride on my mobility scooter with rare disease
มุมมอง 4803 ปีที่แล้ว
I share my afternoon ride in German Village on my mobility scooter. Living with a rare disease, Friedreich’s ataxia, I love living in the middle of a lovely, charming part of Columbus, Ohio. I went to Stauf’s coffee and went to the park to read my book. A pretty ideal day xx I filmed this at the end of September. Now, it’s October 13th and EVEN MORE gorgeous in German Village with the changing ...
My Family Raising Awareness and Money for Research for Friedreich's Ataxia // My RARE disease
มุมมอง 6713 ปีที่แล้ว
In this video, I talk about rideATAXIA Global Challenge. My family organized our own ride on September 26th, so I put together a little video of it. Enjoy! Link to donate to my personal page: secure2.convio.net/fara/site/TR/Events/General?px=1065167&pg=personal&fr_id=1681 Link to more info about rideATAXIA Global Challenge: curefa.org/ride-ataxia MUSIC: Music by Singto Conley - Flora - thmatc.c...
My Morning Routine for a Productive Day with FA // life with rare disease and disability
มุมมอง 6403 ปีที่แล้ว
In this video, I share my morning routine that has helped immensely with being productive with Friedreich’s Ataxia. Living with a rare disease and chronic illness is definitely not easy, but I’ve learned some hacks over the years to really streamline my mornings, so I’m efficient, productive, and happy :) Please let me know if you have further questions! What do you do in the morning to get off...
Advocating for my RARE DISEASE // I met with Senators on Capitol Hill in DC and Virtually
มุมมอง 4893 ปีที่แล้ว
In this video, I share my experience in advocacy. I prep for virtual meetings with Congress to advocate for ataxia. I explain the legislative asks (curefa.org/advocacy ) and a little about how a senator meeting works. Please let me know if you have further questions! SOCIAL MEDIA LINKS: INSTAGRAM: kelbarendt TIKTOK: www.tiktok.com/@kelbarendt?_d=d7lb3j8eedahab&language=en&sec_uid...
My Evening of Self-care // after a rough CHRONIC ILLNESS week
มุมมอง 1K3 ปีที่แล้ว
In this video, I bring you along for my evening of self-care. I talk about the importance of being your own advocate in the face of something like FA. I didn’t film everything from my evening, because honestly I just didn’t feel like it lol. I also talked about how self-care doesn’t have to look a certain way to be self-care. Part of my evening was spent cleaning my kitchen. For me, tidy space=...
My Quick & Easy Everyday Skincare & Makeup Routine with a Debilitating CHRONIC ILLNESS
มุมมอง 5003 ปีที่แล้ว
In this video, I share my quick, everyday morning skincare and makeup routine. When you live with a debilitating chronic illness, like Friedreich’s Ataxia, it’s important to find a routine that works for YOU. Preferably something simple, easy, and effective. Like AOC says in her incredible video here, (th-cam.com/video/bXqZllqGWGQh/w-d-xo.htmlttps://th-cam.com/video/bXqZllqGWGQ/w-d-xo.html ), t...
The Story of my RARE Disease Diagnosis // the years before FA
มุมมอง 1.9K4 ปีที่แล้ว
The Story of my RARE Disease Diagnosis // the years before FA
The GENETICS behind FA | My Rare Disease
มุมมอง 9624 ปีที่แล้ว
The GENETICS behind FA | My Rare Disease
Top 3 Pieces of WORKOUT GEAR with FA // stay active at home
มุมมอง 1.5K4 ปีที่แล้ว
Top 3 Pieces of WORKOUT GEAR with FA // stay active at home
what I eat in a day // LOW on groceries vs. NEW groceries
มุมมอง 1K4 ปีที่แล้ว
what I eat in a day // LOW on groceries vs. NEW groceries
Life Lately | here's what new in my life & what to expect from me in the future
มุมมอง 2.1K4 ปีที่แล้ว
Life Lately | here's what new in my life & what to expect from me in the future
how to support the #BLM movement when you have a DISABILITY (or just can't protest on the streets)
มุมมอง 3K4 ปีที่แล้ว
how to support the #BLM movement when you have a DISABILITY (or just can't protest on the streets)
QUARANTINE VLOG with my parents in the suburbs // anxiety breakdowns included
มุมมอง 1.6K4 ปีที่แล้ว
QUARANTINE VLOG with my parents in the suburbs // anxiety breakdowns included
I Have a Favor to Ask You (from a girl with a rare disease) | LUSM2020
มุมมอง 2.4K4 ปีที่แล้ว
I Have a Favor to Ask You (from a girl with a rare disease) | LUSM2020
My TOP 10 TIPS for working from home ( from a self-proclaimed WFH expert )
มุมมอง 1.3K4 ปีที่แล้ว
My TOP 10 TIPS for working from home ( from a self-proclaimed WFH expert )
a (not so) productive day in my life in quarantine VLOG | when my CHRONIC ILLNESS has its own plans
มุมมอง 1.5K4 ปีที่แล้ว
a (not so) productive day in my life in quarantine VLOG | when my CHRONIC ILLNESS has its own plans
A very honest Q&A// all about the DIAGNOSIS that changed my life
มุมมอง 3.7K4 ปีที่แล้ว
A very honest Q&A// all about the DIAGNOSIS that changed my life
my PERSPECTIVE on SOCIAL DISTANCING w chronic illness/ disability | & more about Covid-19's effect
มุมมอง 1.1K4 ปีที่แล้ว
my PERSPECTIVE on SOCIAL DISTANCING w chronic illness/ disability | & more about Covid-19's effect
DEEP DIVE: what is FA? | A look into my rare neuromuscular disorder
มุมมอง 3.4K4 ปีที่แล้ว
DEEP DIVE: what is FA? | A look into my rare neuromuscular disorder
Welcome to Kelly & FA | An intro to my life with a RARE neuromuscular disease
มุมมอง 5K4 ปีที่แล้ว
Welcome to Kelly & FA | An intro to my life with a RARE neuromuscular disease