วีดีโอ

I just listened to this and it is excellent. I am buying her book.

This community outreach continues to be the most valuable tool in my toolkit. I immediately purchased this book. My husband is 6.5 years into living with PD and I am always looking for support and guidance along the way. Lois is articulate, honest, forthcoming and speaks from the heart. Thank you for all that you do Stanford! and Thank you especially (caregiver sister emeritus) Lois Kelly.

They say younger people should receive diagnose early on plus life changing methods. Not touring our brains

Ask china or who typed that article on Chinas behalf

What happens with the heartrate in OH? In POTS I know you need a heartrate above 120 or increase with 30 bpm without a drop in bloodpressure.

My name is David Olsen. I just left a message before hand, but I’d like to put this in that. I forgot to mention my voice is loud because I have very bad hearing but the swallowing issues which I mentioned in my earlier comment is still there and that is annoying cause when I’m eating, I have to eat real small portionsand like I’m gagging and spitting up phlegm and sneezing any help you can give again thanks again. I’m sorry I left that part out.

I’ve been diagnosed with Parkinson’s since 2017 and my name, which I didn’t mention in the beginning is David Olsen and I have the typical Parkinson’s problems but lately when I swallow, I feel like I’m gagging now and after that, I spit up a lot of phlegm, and I have a sneezing fit of at least 5 to 7 sneezes I have eaten small meals. I try not to eat big portions at one time. I did have hiatal hernia surgery back in 2017 as well. I have no more heartburn and was good after that but now it’s not so I don’t know if it’s from the Parkinson’s or something else cause I heard swallowing is a poor out of Parkinson’s but it’s annoying. Is there any help you can give me Thanks again for all you do

I have Parkinson’s, just how long is subject to conjecture. I was diagnosed three years ago and taking Carbidopa/Levodopo was wonderful when I first started. Eventually, I was titrated up to 8 pills a day and so it seemed like my need would never stop. I also worried about Parkinson’s Dementia which current medication cannot address. I have read everything I can, scientific studies especially. Incidentally, I was involved as a clinical coordinator for clinical trials in the nephrology practice I managed in Salinas, Ca. I understand there is no cure currently for PD. Therefore, I am most interested in slowing or reversing the condition. I read the research and clinical trials on a number of potential regimes. The most recent is Ambroxol, which much to my chagrin is not available in the USA over the counter as it is in Europe and most of South East Asia. I felt like I would not meet inclusion criteria for the Ambroxol Clinical Trial, plus placebos do not interest me at this point at my age and condition. Because I live 54:31 in Thailand now, I decided I had nothing to lose by doing my own “Clinical Trial”. The only hold up was, the dose used in the on going Clinical trial was well over a 1000 mg, or about 10 times normal use of this lung treating medication. To me, this seemed inordinately high and thus perhaps hard on the kidneys for its removal. Realizing that previous studies illustrated the safety of the drug, I remained skeptical of its safety. Consequently, I bought only the 30 mg tablets and started taking them somewhat as a replacement slowly stopping Carbidopa/ Levodopa. My cognitive abilities were still affected so I held on to the Carbidopa/Levodopa in so far as three tables taken a day. I took one 30 mg Ambroxol and one Carb/Levodopa. However, after 3 months, I found Ambroxol 75 mg sustained release in the Philippines and took it only once a day along with one 30 mg regular release Ambroxol. Then, I discontinued Carbidopa/Levodopa all together so now only the one 75 mg sustained release and one 30mg regular Ambroxol. I decided today after 7 months of Ambroxol, I will take only the 75 mg Sustained Release 24 hour Ambroxol. Another thing to understand is, I am an asthmatic with chronic Coccidioidomycosis which has flared up many times over my life, to the point of having a wedge resection in 2006. It was thought after many tests including a PET Scan was lung cancer. Apparently, I do not make appreciable antibodies. How am I up to this point. No tremors, which were mild before in left hand and both legs, and most other symptoms which were mostly non motor are gone. Constipation which was a problem left immediately after the first dose of Ambroxol (Ambroxol is a mild laxative). I am now running and walking 7 miles three times/week. My neurologist at Palo Alto VA Medical Center is aware of my Ambroxol consumption and eliimination of Carbidopa/Levodopa. Lastly, I am 76 years old, Bp 120/68, p 38 resting (a runner all my life or other strenuous exercise), weigh 148 lbs, and lift weights still. I enjoyed this lecture, keep up your good work. Robert

I have Parkinson’s, just how long is subject to conjecture. I was diagnosed three years ago and taking Carbidopa/Levodopo was wonderful when I first started. Eventually, I was titrated up to 8 pills a day and so it seemed like my need would never stop. I also worried about Parkinson’s Dementia which current medication cannot address. I have read everything I can, scientific studies especially. Incidentally, I was involved as a clinical coordinator for clinical trials in the nephrology practice I managed in Salinas, Ca. I understand there is no cure currently for PD. Therefore, I am most interested in slowing or reversing the condition. I read the research and clinical trials on a number of potential regimes. The most recent is Ambroxol, which much to my chagrin is not available in the USA over the counter as it is in Europe and most of South East Asia. I felt like I would not meet inclusion criteria for the Ambroxol Clinical Trial, plus placebos do not interest me at this point at my age and condition. Because I live 54:31 in Thailand now, I decided I had nothing to lose by doing my own “Clinical Trial”. The only hold up was, the dose used in the on going Clinical trial was well over a 1000 mg, or about 10 times normal use of this lung treating medication. To me, this seemed inordinately high and thus perhaps hard on the kidneys for its removal. Realizing that previous studies illustrated the safety of the drug, I remained skeptical of its safety. Consequently, I bought only the 30 mg tablets and started taking them somewhat as a replacement slowly stopping Carbidopa/ Levodopa. My cognitive abilities were still affected so I held on to the Carbidopa/Levodopa in so far as three tables taken a day. I took one 30 mg Ambroxol and one Carb/Levodopa. However, after 3 months, I found Ambroxol 75 mg sustained release in the Philippines and took it only once a day along with one 30 mg regular release Ambroxol. Then, I discontinued Carbidopa/Levodopa all together so now only the one 75 mg sustained release and one 30mg regular Ambroxol. I decided today after 7 months of Ambroxol, I will take only the 75 mg Sustained Release 24 hour Ambroxol. Another thing to understand is, I am an asthmatic with chronic Coccidioidomycosis which has flared up many times over my life, to the point of having a wedge resection in 2006. It was thought after many tests including a PET Scan was lung cancer. Apparently, I do not make appreciable antibodies. How am I up to this point. No tremors, which were mild before in left hand and both legs, and most other symptoms which were mostly non motor are gone. Constipation which was a problem left immediately after the first dose of Ambroxol (Ambroxol is a mild laxative). I am now running and walking 7 miles three times/week. My neurologist at Palo Alto VA Medical Center is aware of my Ambroxol consumption and eliimination of Carbidopa/Levodopa. Lastly, I am 76 years old, Bp 120/68, p 38 resting (a runner all my life or other strenuous exercise), weigh 148 lbs, and lift weights still. I enjoyed this lecture, keep up your good work. Robert

I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplement on TH-cam🎉..

Thank you for the practical advice Barbara! This presentation helped me feel stronger and more prepared for whatever the future brings. 🥰

I want this. From india

Hi! I have either POTS or OH. But what is the main differences? Are there the differences in drop in blood pressure that occur in OH but not in POTS? Or is it the increase by at least 30bpm in heart rate in POTS?

We didn't see anyone?? Who taking??

Any update after 2 years.

A gentleman in a PD Reddit group reports that he was in a Buntanetap trial and noticed significant improvements

No captions unbelievable

ASTOUNDING. Thank you for providing/ sharing this shutterbug work.

How can I find this doctor Or where can I get the glove

My mother has psp and just had a very big aspiration event a few weeks ago. But I didn't realize that she has been very slightly aspirating for a while now. So now she has aspiration pneumonia. She has almost no speech left. She barely moves her lips. I wish I'd known and seen this sooner. This is so informative.

fgf-1 looks promising just like the glove guy peter. but the symbyx company looks like there on to something.. please look into the gut biome to the brain exchange. if you fix the gut biome maybe that will help the brain out using that vagus nerve. we have been waiting three years for the skin patch pump. it just got rejected again. why is it all over the world they are using it but not here. i will tell you why, the fda is fightning with the medicare and the insurance companies on who is going to pay foe what??? there are millons of advanced people needing this asap.

How to contact Dr tass for treatment

I have essential tremors doctor tass as I am living abroad I want to come for treatment and I have problem in both hands legs

11 years after this presentation and it’s still taking too long to diagnose. It took 7 years of frustration with doctors to get a diagnosis of LBD for my mom. Her doctors expressed no curiosity or desire to figure out what was happening.

What other drugs help or therapies if Caridopa/ Levidopa is causing severe nightmares and constipation in my HWP??? HELP!!!

How do you get a Symbyx Laser in USA? PLEASE HELP.. My dad is a deserving Veteran.. Caridopa/ Levidopa is giving him REM disrupted sleep: which entails disturbing nightmares, active sleepwalking which is very dangerous.. MEDS ARE NOT WORKING AND EXCACERBATING PD

日本語で映像内容を　ざっくりまとめると　別々に動くはずのシナプスが同期して異常反応してしまうのがパーキンソン病。脳深部刺激療法で特定のパターンのパルスを流すと大きく改善される。しかし手術など患者の負担は大きい。 タス先生は、大脳の感覚野，運動野に注目した。ペンフィールドのホムンクルスにあるように，手の感覚に対応する大脳の面積・エリアは大きい。手に刺激を与えれば大脳の広い範囲に良い影響を与えられるのではないか？と手袋から同じパルスを送って過激を与えたら脳の活動が明らかに変わり、患者も改善された。という。素晴らしい。

Have you heard of Aminopyridine? A Naturopath said they have some success w this.. I am at my wit’s end w C/L - as it’s causing hallucinations and severe constipation w my HWP… Having a really tough time w HWP and not sure what to do.. The dilemna is: On C/L they get horrific REM disorder dreams/ Nightmares/ Paranoia- and even called 911 in middle of night saying there was truck coming through apartment. They have off C/L for a few days- and these horrible active nightmares where they sleepwalks have subsided.. HOWEVER, it seems like the Dopamine or missing C/L now they have less motivation to get themselves off bed, to physically walk themselves to the bathroom; constantly asking me to help pull them up, I am having more now to dress, put diapers on them ( as they also are having frequent urination) and had last few nights where they don’t know where bathroom is and we’ve traded the vivid nightmares w C/L for lack of motivation / w short term memory issues- and they aren’t having “the get up and go” as much to do daily tasks… Any thoughts? THANK YOU AND SENDING STRENGTH AND LOVE TO ALL OF YOU IN THIS BATTLE 🙏🏽🙏🏽🙏🏽🙏🏽

My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌…

My sister has been put in a psychiatic hospital, dementia unit for PD. I live far away and find this unacceptable that her children have allowed this. She has fallen many times having been isolated alone upstairs in their home. No going for rides, having her join family dinners. Eats alone, lives alone. No stimulation. Yelled at. Which I have heard them doing while she is on phone with me that they didn't realize she was on upstairs phone. Her mind is brilliant. They treat her disgustingly. I have no money to get to her. Took her kitties of years away, took her hope of any stimulation and love away. HELP PLEASE

If anyone is interested in making your own, Google FreedomWavePD.

I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment. My smile is so bright because I am happy .’

Thanks for the insightful sharing...it's help a lot!

Ambroxyl , a common OVER THE COUNTER cough medicine in europe, is an orphan because it is not patentable by big pharm. Results in the UK seem very encouraging. I would love to try it. Unfortunately not sold in North America..

This was helpful. Thanks for sharing.

Thanks for great insights! About buntanetap - they had 520 ptients phase 3, 6momths trial enrolled in record speed. Interim analysis done at 2 months mark said - go ahead, do not increase trial size. They already completed this trial. After first cleaning jobs cro cleaning center made some mistakes and found that 40-50 patients had low buntanetap plasma levels and company had to exclude those, or go ahead with them before database lock. Also, internet is full of anectodal responses how Buntanetap changed prkinsons ptients lifes. We will see Parkinsons results in June. Their alzheimwrs phase2/3 with 320 patients 3 motnhs study comes out this konth too!! Data is already cleaned

What are the reported percentages for 1) permanent dysarthria after FUS and 2) permanent cognitive impairment after DBS?

27:10 - 27:45 you say that she definitely needs medication and that it should be the first step 4 separate times and that there are only some exercises that can be done in her hospital room but they wouldn't help much at all. I'm no doctor so correct me if I'm wrong but wouldn't exercises ( of which there are plenty ) diet and alternative measures be your first steps, not medication of which could have several side effects short term and long term. strengthening your muscles, cardio and blood flow is definitely better then laying in bed all day taking medication which is just slapping a band aid on a knife wound.

“She received her medical training in Germany and umm uhh later on umm a umm study genetics..” If you can’t speak, don’t. People come to the Internet to get information. We are not captive audience submissively held captive to kiss up to the professor in order to get a grade. As a teacher, as a speaker, you fail.

My husband had a violent dream someone attacking him he started hitting me: he has a hand tremor, he said I had strings on my shirt and came over to take the strings off, what he saw the tape for night running on my shirt, he was a marathon runner, so he was familiar with this type of shirt. He does not think he needs to see a numerologist to be evaluated. He uses his calendar for daily activities for remembering. His driving is not good, lacks confidence. He has become more depressed and anxious. He does have ortho stasis at times, not all the time. Thoughts?

Parkinson disease 🦠 is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…My Dad is well again

What about muscular spasms as an early symptom? My mom had the unexplained falls very early on, very painful musclar spasm in the legs,i probably didn't notice the eye movement early on. She passed away march 2023.

Hi Where can i buy a pair of vibtrating gloves? looking forward to your reply with much interest!! All the best

Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine🌿 🌿🌿from Dr Madida that truly works that helped treat, cure and reversed all his symptoms. My Dad is well again.

Did anyone tried the bhaptic gloves reprogrammed following the codes provided by Dr Tass’s lab in Stanford ?

I’ve been diagnosed with Parkinson’s since 2017 and I’ve had tendencies to fall backwards. Sometimes I try to catch myself I haven’t had any recent fall. My first falls were forward or to the side but now I’m having trouble keeping my balance when I’m falling backwards and I also have trouble Moving my eyes from left to right this has been an ongoing problem since I was very young but it’s a real problem now I can’t read because my eyes don’t follow the lines properly and it’s becoming a real problem. I’m stuttering and when I eat, I’m spitting up a lot of phlegm. Is that a symptoms of PSP or is that the Parkinson’s disease that they initially diagnosed me with please help thanks for your help. 0:32

It's still amazes me when senior people who should know better talk about aggregated proteins in neurodegenerative disorders as simple causes instead of markers or as causes in interaction. Contrary to the overconfident protein-centric view of neurodegenerative disorders, we actually don't understand what's causing them. And to describe aggregated protein is the cause obscures the simple fact that we don't know where these protein aggregates really come from or how they get started or how they escaped protein quality control, in other words the failure of proteostasis has to be antecedent to these aggregates spreading. In addition, the aggregates aren't simply a cause of inflammation they are often times spread via inflammation and changes in the glial system, famously the Tauopathy in Alzheimer's disease. Additionally there are over two dozen monoclonal antibody therapies that have failed to show disease modification or that show only very minimal slowing of degeneration despite the success that these oftentimes have in removing the protein villain. So this whole proteinopathic theory of neurodegeneration has serious challenges and even more serious holes in it. This is not to suggest the ridiculous notion that protein aggregates are not contributing to neurodegeneration, because that's also ridiculous. But it is not by any conceivable stretch a complete theory of neurodegeneration and far from a guide to treating clinical stage disease.

Onde tem esse tratamento no Brasil

Although this lecture is 10 yrs old if I were to choose one video to have a caregiver or a family member or friend with interest to watch it would be this one. I haven't watched every video but many and this is the best, most concise with the best look at the disease from Dr. Kerchner who is a skilled lecturer and bring enough levity to this serious subject to make it very interesting as well as important.. My husband has been diagnosed with LBD and has an appointment with with the geriatric Neuro Science Dept.of our state's university medical center. He is seeing the head of the dept. who specializes in neurolgy and psychiatry and is in the Lewy body department.. We had to be referred by a physician then a team of medical providers selects patients that best fit the criteria because there are more referrals than the 4 physicians in the department can handle. I've never wanted anything more than for my husband to be accepted and he was. It is critically important that as a caregiver you learn everything you can, take online classes, watch videos and read because many difficult aspects of the disease can be made so much better by how you help your loved one deal with them. My goal is to make each day as good as possible, that we find fun, continue to communicate with one another whatever that means at any given time and that these are years in the end we both will cherish. My best to all of you. This is a challenge that we should expect will bring us rewards if we do what is needed, approach with a positive attitude and find doctors who allow us to work with them for the best results for everyone.

I am not diagnosed as MSA patient as yet but this was the most down to earth explanation of every symptom I've seen. Thanks for making it so understandable!!