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Thanks for the tips but how can I get moving with Pots if I just end up passing out when I do physical exersize?

Myofascial paid syndrome is the most common manifestation of chronic pain. It is very effectively treated with dry needling and electrico-microcurrent. Activity pacing does not help it.

As a sufferer you got frustrating right for us, is debilitating having to deal with it, your nerves doing unexplained things, i wouldn't wish this on anybody, people who don't understand be kind and if you know someone suffering with fnd tell them you are there for them and that you love them. A hug can be everything having to fight the battle everyday

The diagnosis of FND should be considered a good diagnosis- it is something which can be successfully treated!

The mind has a part to play but this seems to be a rather poorly discussed fact. You mention DSM so fully discuss the old illness of Conversion disorder and how this was treated as a mental illness. It is not appropriate to swap names of illness and then allow every patient to think the symptoms are real. Some patients with alleged FND do feign, fake, or copy others. Patients are not properly treated. Not every child has trauma some just want to opt out of something or opt into illness. The parents mindset often sets the childs course of illness. There is more hysteria now than there ever was simply because we allow it!

Dr. Lee, I’m starting to walk more

Hi

Um, Hi so my son is now 14 in 2024 he got diagnosed with FND in march 2022 however he was always recovering from a concussion at the time which has turned into Post Concussive Syndrome. Both me and my son have been taking each day as it comes. He was doing really well and then my father of all people (we both thought he was a safe stable support) become violent and because of that we are homeless and living in a hostel, oh and fyi we live in australia, since february 2024. My son since the end of april has had multiple issues with his body functions including feeling paralysed- ish from the waist down. Can fnd be retriggered by circumstances? And how can i help him? He is currently in a wheelchair for planter fasciitis in both feet, which has become numbness and not remembering he has legs at times. Thank you Your youtube videos and the resources help. Hugs

Me who hates plain water

Hi I Ave long covid..plus fnd ..n ptsd since I got covid pneumonia back In November 2020..I ad a temperature of 47 going into hospital..went up ta 62 ...then I was put into a induced coma,,then moved to another hospital being put on a ecmo machine I was in induced coma for nearly 3 months..

My 18 year old son been dealing with his FND for a very long time. We think 4th grade. UnFortunately for him he had other issues. It’s the puppet and the Puppeteer. The best way I can describe FND. OT/PT Dr is helping him be aware of how his FND feels. Before, as it acts ups, and after. To reroute, take the movement, being able to talk, see, whatever back. To be the Puppeteer. The one pulling the strings. It’s an everyday, always a part of his life. We need to remember they have FND they are not FND. Believe them. Let them take the lead. They need to understand and learn what they can and can’t do and when they want to say “Get the H**l out of my way (FND) I’m in control of my life. We have to let them do it. But provide the support they will need for the days they have to fight harder, need a hand just to get up. We won’t be here forever but we can make sure they have all they need to be who they want. Do what they want. And have people to support and love them along the way. 

Our mind controls our body. I believe it’s more accurate to define this as a problem with different parts of the brain not communicating properly with other parts of the brain. Ie, a brain “network” dysfunction. I’ve had it 7 years. I’m adapting and making life adjustments to maximize functionality. Probably if I was properly diagnosed sooner, and had appropriate treatments I’d be better off today. It was years before I was properly diagnosed. Once I learned what was actually happening, I started learning more about how to improve.

thank you for this video

i emailed you

My autism nheds causes my fybromyalgia

I told I was having PNES seizures until they put the electrodes into my skull (SEEG) and found the electric activity that they were seeing on the regular EEG. It was found that I was having seizures all day long ( and I have since had brain surgery- more on my channel ).

for me, my question is, does FND cause someone to twist, pull and turn their, neck, hands, arms in different slow postures, with spasmodic vocal speech that is not in context? Does FND cause muscle contractions that contract like electrical spasms in the neck, completely involuntary? My son does have premonitory urge and coprolalia ect. but this is different. its intense, he is pain and its exhausting him but he is having the type of tics that are spasmodic in nature in speech ( vocal tics). This is involuntary. he has all the tics, they come and go and he can suppress for periods of time. We are used to that now but this presentation of the twisting and turning of hands, wrists, then the speech that looks like and sounds very spasmodic, plus the electrical muscle spasms that sometimes turn his head to the side. when he was young, we had a moment where he could not close his mouth for a few minutes, like his jaw was locked? as it used to swing left to right all the time, he could not control it. it didnt last long but he was in pain, like he is with his neck now. Does this sounds like FND? whats the difference between Functional dystonia and cervical dystonia?

FND is the throw away box f/ uninitiated neurologists, much like Fibromyalgia and CFS are for your run of the mill internal medicine doctor. Ask me how I know…Air Force officer with service connected NMOSD/Sjogren’s/Dysautonomia, originally blown off as anxiety and FND. Which cost me use of most of my body (nursing home now). There’s an organic reason for all disease, Dr. Souhel Najjar helped broach this…

I've never heard anyone describe it like this before, so I'll be hearing you on a daily basis💯✅

Superb information ❤

My daughter isnt able to talk, walk, swallow, is in constant pain, and all her muscles in arms and legs are stiff. We have tried everything to help her....how do we start???

Other than mindfulness which has helped a lot - do you have any recommendations for spasms, they’re debilitating. I’m retraining my nervous system, meditation, yoga etc, the spasms are in my sleep, when I’m awake, etc. thankyou. 🩷

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This was extremely helpful. I will be checking out your other vidoes as well. My daughter was recently diagnosed and has been really struggling. She loves school and gets perfect grades despite all the struggles she faces, but we have been missing quite a few days due to her symptoms. We have a care plan in place that is mostly helpful but I think she could benefit from a 504 or something. Do you think its normal to receive a diagnosis without any kind of MRI or blood work? All she had was an EEG and a physical. Her condition is getting worse and harder to manage. She is seeing a therapist (who had no clue what FND was) but it doesnt seem to be helpful. In fact, now the biggest thing my daughter worries about is if she will ever live a normal life.

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My Daughter developed Fnd Oct 23. We ended up taking her out of 6th form which she'd just started for a year, while we did neurehab, cbt etc. She's back in college now, but only able to manage 16 hours. She's doing a different much easier course, and it's more for the social aspect. It's the chronic fatigue that is the real impediment now, it's crippling her

The fatigue is the real killer with FND

Thanks for the continued output.

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i generally like your content however this sounds great but the most traumatic thing my daughter who is a teenager told us was how embarrassing an episode in front of her peers other teens have been Teens can be mean, make horrible comments , video tape and take pictures of other children in a very vulnerable state and not all teachers are on board with a plan or protecting your child during an episode. this sounds great but it is not reality! my daughter has cried countless times from feeling socially isolated to be forced to have episodes in front of her peers. i can’t speak for everyone i can only say this approach made my daughter worse. And many providers still push for this, HS is a difficult place we were all teens but it’s as though providers have forgot what that phase of life felt like. As i said i generally like your content, however for us this approach made everything worse.

Excellent excellent excellent

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I’m so glad we found the cause of my fainting! Otherwise I would be concerned I have FND because I also have Tourette’s. And sometimes when I faint my muscles go into spasms that look like a seizure, but apparently it has something to do with the brain oxygen levels or something like that. When I realized my fainting episodes all happen after flashbacks, we were able to pinpoint that I switch between hyperventilating and holding my breath during flashbacks which can be very dangerous and cause me to pass out. I’ve had my fair share of concussions due to this but I’m glad I’ve figured it out so that now when I have flashbacks, the people around me know to tell me to breathe slow deep breaths so that I don’t pass out!

Hi Dr. Lee, I've heard of keto diets or fasting (because of ketosis) helping brain function with people with neurological disorders. I know with FND, there is no structural damage to the brain, however just wondering if youve come across any information related to specific diets that would help FND?

I am 22 but I’ve been struggling since 2 after surgery. It started with GI and progressed to other things. I had my first episode of paralysis in my legs at 6/7 I believe. No none cause..I am looking to see if I have FND Would you be able to help me ?

This has been so helpful! I am on the wrong profile for my dog lol but I got your link on Facebook. I appreciate this advice and looking inward at the things I can do different. He is 17 and I do bombard with questions and medical information. I probably would have spiraled as well to all the appointments and therapies and this helped me check myself to slow down and be proactive in the sense of what he wants and his own independence.

Thanks fer this!

Or hEDS... Or both...

Finding providers that are knowledgeable in FND and actually want to help is impossible

The real question is how to find a therapist, whether psych or PT, versed in FND.

Thankssss mommm😭🫶

My daughter 11 she suffered a concussion 7 months ago. She had rehabilitation and her recovery is almost fully normal except she suffers from numbness or loss of sensation in her thighs and legs. She was diagnosed with FND I don’t know what to think or believe at this point.

Thank you. Found this very interesting as my son has just been diagnosed.

The biggest thing for me was quitting dance because my studio was incredibly toxic. Other than that I would advise people to not do physical therapy until you’re mostly recovered since they can’t do much if you can’t move

It is real..but when you start healing the gut, everything change..❤

another snake oil idiot that things chronic pain has a choice. Stop calling it chronic pain, you are talking about regular pain.

I was diagnosed with PNES 3 years ago and mine are caused by complex PTSD and severe trauma. I had an abusive childhood an traumatic experiences like physical abuse, rape and molestation by 10 abusers) I suppressed the memories then got them back through nightmares/night terrors in my highschool years, still never had any major injuries or seizures up till this point in my life but a experience at 19 confronting the rapist who traumatized/affected me most caused a massive trigger and my seizures started. Therapy and weed are the only treatments that work for me and when in the first year they were every other day between 5-10 a day but now 3 years later they are only 1-3 times a day and I get them only once up to 3 times a week and sometimes have long periods of a week or week and a half seizure free now.💜SeizureWarrior💜 i just turned 23yrs old in April.

I was just diagnosed with fnd but ive been diagnosed with tourettes aswell. Are those connected? Could my tourettes diagnosis be incorrect?

Do you have concerns about having your teenage child see a psychologist for chronic stomach pain? Check this video out! Click the link below to learn more about exactly how I help teens resolve chronic pain and FND: www.teenchronicpainacademy.com/info