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Thank you

"Both Ends" thinking ....What a perfect description of what I've experienced with Ambiguous Loss. Being OK to grieve what is no longer a part of our relationship while thankful for what we still have --- and knowing this will change over time as the illness progresses. Thank you, Dr. Boss (and Emma for sharing this).

I want to know how to cope with triggers when you see your spouse.

I always feel like I’m a widow with no funeral.

It’s not just dementia. There are many illnesses that mimic dementia, brain injury related to stroke, which is my husband.

You are amazing! Keep using your voice 🙏 I care for my mom who has heart failure and breast cancer. My upmost respect 🤍

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Thank you Emma Heming Willis for always using your platform & being a voice!💜 I never thought I would ever be thanking NY for anything but I must give credit where credit is due. Thank you to Senator Hinchey for sponsoring this bill. I hope all your colleagues on both sides of the isle will get this bill passed & other states will follow. It’s the right thing to do. Thank you.🙏👏👏👏💜

YMCA was so much fun, the candy man was awesome.

Amazing lady you are 👑. Thanking God for you. Continual prayer for you and yours. God bless you with his many blessings he has for you love Lesley ❤️❤️❤️

Great information! My husband was diagnosed and I feel like finding this was hope for my boys and I.

I love all her books lol!

Gardening. Gardening. Gardening... is an art! Creativity! 🎉

Trust that pretty much none except perhaps a rare academic has tried to comprehensively review the perhaps decades of studies. I'm pretty sure such can be reversed and it is not difficult if one is aware that there are 200,000+ edible plants and learns what are the most important, e.g. the highest antioxidants in the world would be merely one of several components in therapy. It's up to you on your own to grab dozens of textbooks and get studying. Pretty much the entire way research is done could be compared to as if someone also conducted endless research to find a single metabolic pathway or a single drug with nothing else required for anything concerning health such as energy mood skin hair eyesight sexual function memory aging etc. That's not how the corpse works. Perhaps useless. Just as normal function requires a wide range of nutrients that I think few understand, so any dysfunction could include a lack of such as well as a potential wide range of harmful exogenous or endogenous factors. E.g. even one factor such as if you yourself notice your eyesight getting worse over the years, that is also a sign your brain health is also declining. A start : The Neuroscience of Dementia Diet and Nutrition in Dementia and Cognitive Decline Bioactive Nutraceuticals and Dietary Supplements in Neurological and Brain Disease Diet and Nutrition in Neurological Disorders Oxidative Stress and Dietary Antioxidants in Neurological Diseases Phytonutrients and Neurological Disorders Treatments, Nutraceuticals, Supplements, and Herbal Medicine in Neurological Disorders Vitamins and Minerals in Neurological Disorders Role of Nutrients in Neurological Disorders

😢 *promosm*

Dear Emma , we are sending you so much love and hope , hope everything will be ok . My grandfather was really sick , like your Bruce . He didn' t recognize no one from the family, he couldn't move his hands and legs and his brane was really damaged. My grandmother start giving him fresh goat milk ( we were having a goat) 350 ml to 600ml a day. And after 4 months , one morning he just stand up from the bed and start walking and making breakfast. He was 6 months into a hospital , and 4 months at home on a bed. He said that he don't remember this . He was aboslutely health again. I hope my story to help you , the real goat milk ( not those from the supermarket) is the closest thing to mothers breast milk, and it cures the brain FROM everything.I saw with my eyes how goats milk cures dementia and amnesia to my grandfather, and a stroke to one of my friends father. Dont waste time with medications , try to help Bruce with fresh goat milk, and he will be health again. I pray for you and your amazing family. God bless all of you.

Hi, I wanted to suggest alkaline water, real alkaline, not purified, it has to be distilled and or "spring" warer. That could help with youre husband's condition. They aren't dying in China, that's why they have a population issue, strictly due to the fact that they live breath and drink and think only alkaline. I hope it works for you guys. Oh and pray 🙏. Take care. Xo

Thank you Emma, Maria and Rachel for this! Xoxox

Hi Debbie! Ugh what a problem. You are not alone! Did you know the AFTD has virtual support groups? I’m the NJ/ NY ambassador if you want to look me up. Happy to help! Xoxoxo, Sandra

I like that you call yourself “care partner”. My mom had Alzheimer’s disease. I learned to ask for help when I felt overwhelmed. It worked for our family.

You are such a brilliant star...and an advocate for taking the high road. You did do your journey with dignity and grace. Your Mom is smiling down on you and giving you the strength to continue doing what you do. You and your family are a true inspiration for others to follow. Blessings and goodness to you and yours..

Emma, you are such a beautiful person inside and out. Thank you for sharing your heart with us and bringing awareness to FTD ❤

This is without a doubt an amazing piece of information for me. My husband at 52 impulsively quit his job. We had a mortgage, five children, pets, he didn’t look for a job for six months! He didn’t care! Then he held multiple jobs for the next five years due to him making impulsive decisions. He is high IQ management bachelor degree career path who developed FTD diagnosed a couple years ago. It’s still not hitting him he has it. We have been through hell, him making bad decisions.

Very emotional interview by both Doctor and caregiver. Very informative and heartfelt. Thank for all you are doing!

It's hard to walk that fine line between the privacy and dignity issues revealing publicly that a parent has dementia and the desire to find support and information for yourself (the caregiver or adult child) or your loved one living with dementia.

Wonderful interview! My only wish is to hit the fast forward button to prevention and cure.

So glad I watched this. She vocalized so much of what I am feeling. But not being a part of any group- it is hard to know if what you are feeling is normal. I especially related when she talked about going through the stages of grief every day.

Thank you for getting this info to us!

Thank you Emma and Linde for this interview. Hearing your story Linde, I felt like I was hearing my own journey with my Mom. Thank you for sharing your story with others. I wish I had this video to watch years ago as I was googling the odd behaviors my mom displayed two years ago. I think doctors too need to be fully aware of FTD as well and not to just simply say its dementia. When we explained the odd behaviors to the first neurologist my mom saw, he didn't even see that as a red flag and simply just had more tests run. He didn't even mention the possibility of it being FTD. It wasn't until we went to seek a second opinion from Dr. Schulz at UT Health here in Houston where we got more answers and he actually showed us my Mom's brain scan and finally gave us the diagnosis of FTD. You mentioned going through the five stages of grief while the person is living and that's exactly what I'm going through at the moment. It's hard for me to be with my mom and I feel that guilt but it pains me to see her this way knowing this isn't her and how much I miss her. Thank you both for being big advocates for FTD awareness. I'm hoping I can do the same too.

Emma you are very brave and I want to say thank you. I'm a care partner spouse to my husband with one of the FTD movement disorders. You are doing a great thing. We are nearing the end of our journey but it's been worth it to stick around to the end. Much love

another reason diagnosis is so important!

Thanks for the encouragement. Care partners must love on each other.

Wow!! Making your mess your message. I’m volunteering and sharing our FTD story. I’m the ONLY volunteer in West Virginia. There are no support groups here. I don’t think the 2 neurologists or their teams we saw even know about FTD. I am a nurse and struggled to get a diagnosis for my husband. YOU and these lovely sisters show me that we are not alone.

Greatly appreciate your endeavors and service here.

Sending all my love to Emma. God bless you for teaching the world about FTD. Hugs, Ruthie

So brave of Emma to go to New York and speak letting the world know about FTD, No one really seems to understand what this is. My husband was officially diagnosed over 5 years ago with progressive aphasia and now it's transitioned into FTD. I am still learning daily, it's not like any other form of dementia, and I have no idea if he realizes the changes in himself. He was a brilliant musician, an avid snow skier, was on bike racing teams, went to the gym daily, and was so strong. Today he has aged 20 years in the last year, so many changes. We no longer can travel as he is housebound these days, and I am the sole care partner. I have to say I never cry, but listening to Emma today, brought tears to my eyes as I so understand what she is experiencing. My heart is with her and her family.

Thank you Emma (and Nicole) for being such good "informants". There's not much positive about this disease but the effort you're putting into educating others is only a plus. As the disease advances caregiving becomes more difficult and a full time job for more than one person. The depressing part is that it's a one-way road with a predictable end that you can do nothing to stop. Having support for family members is important and Nicole has found some good avenues for that. This disease has really stolen my girls Mother and requires so much of my attention that it also takes away my time with my girls and grandkids. There are no good answers but I know Nicole gets a lot of support from you, Emma and hopefully you also can count on her as a person to talk to when in need. Feel free to contact me also if I can share anything helpful.

Thank you for bringing such public awareness of this horrible disease. My mother died from Dementia. She had Cerebral Atrophy - her brain was literally shriveling up inside her skull. Myself, my son, & my brother all moved in together to take care of her. We did this for over 10 years. The hardest part was watching the slow deterioration of her cognitive AND physical skills. In the beginning she would laugh about having a 'swiss cheese brain'. The day came when she looked at me and asked "Who are you?" That was devastating, my brother had the same reaction the first time she said it to him. She would ask for me and I would say "I'm right here Momma" and she would look at me and say "No, I want my daughter Shari". I would have to leave the room and come back in for her to accept that I was 'Shari'. During all that time I wondered if she was aware and I believe she was. Somewhere, deep inside that shriveling brain of hers, she knew what was happening. Shortly before she passed we had a moment where she suddenly looked at me and it was MY MOM, the Mom I had always known, looking at me. And she very clearly said to me "I don't want to be like this anymore". And then she snapped back into her dementia state. And I knew, in that moment, that she was fully aware of what was happening to her. It was just trapped inside her brain and couldn't come out. But in that 30-second exchange the woman I had known my entire life was there - fully - and let me know how she felt about it. It wasn't long after that she passed. So, sorry for going on so long when all I intended was just a quick thank you for shining a light on this terrible disease.

We are dealing with PSP. Neuro degenerative conditions are horrible diseases. God bless you and your family.

So sad.

"Without some true respite (stepping away and creating a safe space for yourself...giving yourself permission to let go of being a carer and simply be a human being for a little while) people break themselves, and getting broken doesn't fix dementia, it just breaks another human being. 😔

Hi Emma Hering Willis. Even over here in Australia you are making a difference for the people living with dementia - and their families. Not just as a result of having a high profile as the wife of Bruce Willis but the professionalism of your presentation, and the fantastic resources you are sharing who so often don't have a platform to speak out within a broader context. Teepa Snow/Positive Approach to Care made all the difference for me. When I look at your eyes I feel like I'm looking at myself when I was acting as the care partner for my mother living with Lewy Body Dementia. It was such a confusing journey (and still is). I hope you find some skilled care partners so you can continue this journey in a way that is easily sustainable for all of you. I absolutely know that living with dementia does not mean someone is unable to enjoy good times - even when they're struggling. Please tell your husband that one of his fans out here hopes he's having a Yippee-Ki-Yay type of day !!

I love the awareness that you are spreading❤️ As a 29 year old care partner for my 53 year old mom with FTD, it’s been such a hard road. Not really understanding what the disease is at first and then being educated on it has been a blessing and a curse. Trying to focus on the positive side of being aware

Love this ❤️❤️

You did such a wonderful job! You are such an authentic wise caring and articulate person and it all showed this morning! I'm sure your girls are very proud of you! Great job!

Don't k ow how to find help

I fall prey to keeping this journey a bit quiet but I am getting there. I am finding it hard to find a companion for my mate when I unable to do so. Very hard for me not to Be the one who is responsible For his well being and integrity

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Thank you Emma for all you are doing! This was so helpful, great ideas and much to think about.

My bro wanted a bite from an apple left on his bed by his wife..he couldn’t grab apple w/his hand, but bowed his head to apple on bed to bite it. No language. Just cried like a baby. His wife abandoned him. He died in a few months. That kind of dementia is hell.