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This is my third time in less than 6 months

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Thank you very much. I really appreciated this video. Just finished all my treatments for breast cancer. I will do this massage to help drain the fluid buildup.

Er, urgent care, 2 doctors appointments... during hurricane prep... recurring cellulitis and kyphodema... usually starts with an insect bite or sting... also after a saliva gland surgery. Sigh... so frustrating

Unfortunately my son had lymphedema 1 week post covid infection, ,I think it case report , the genetic study done was negative

انا من ليبيا كيف يمكن انا حصل ع علاج طبيعي

I have chest lymphedema and found your video most helpful. Where can I get the foam ball in US?

Cuz yall stupid

This video came up in my TH-cam feed when I was looking for self massage videos to help the puffiness below my simple mastectomy and lymph removal scars about a year after my surgery. Four lymph nodes were removed and turned out to be negative for cancer. I had mostly stopped my self massage when I really didn't see much change in the puffiness. Your technique was different since the chest sweeping was done with great pressure than I had been taught. It also included the squeezing in the axilla. I starting using it two times a day, morning and evening. and truly believe I can see the swelling reduce. I'm not completely sure why in a couple of instances in the video you have the patient squeeze the axilla on the side from which she started to sweep, but I follow every technique shown. Thank you for making this video. It has really given me hope. I am suspecting that I will have to keep performing the massage for the rest of my life to keep the lymph flowing.

Why can't I have this treatment on the NHS OR where can I pay to have this done ?

Thank you so much. Where can I get the roller used in the video please?

Thank-you ladies for sharing your story - very encouraging !! ... I have subbed : )

when is the best to do self lympatic massage? in the morning in the evening? also how many time per day we need to empty the nodes with the ball?

How do you do the leg "sweep" if you have very large upper legs.

Most people with lymphedema can’t bend there knee, this lady has a mild form

My GP decided that I have primary lymphoedema just last week and arranged a clinic appointment. I'm 68, I've had a problem with my right leg, they found a SVT in August and I was concerned my leg was swollen even more now. Afterwards I wondered if this is why my upper arms are so big, it's been an embarrassment for so long and clothes have been an issue. I'm going to ask at the clinic. I don't know why nobody suggested it when they had to find the biggest BP cuff. So I'm only just at the start of discovering more. I'm dismayed at the prospect of stockings because I have peripheral neuropathy and anything compressing my feet causes pain, I have that in my fingers too. Also I live in toe post sandals and bare legs in summer and I have lots of pairs, some of which are unworn and I don't know if I'll ever be able to wear them now.

A family member has this. These women are very brave and strong. They are beautiful.

Please can you advise what is the best self-care plan for lipo-lymphoedema which I have. Female age 75. I am dry body brushing twice daily and doing skin care, and also use a vibration platform 3 x 4 minutes daily on low speed 1 or 2 to aid lymphatic flow which seems to help me. My ankles are no longer swollen. After the first week I had lost 5 lbs in weight following this regime which I assume was trapped lymph fluid. I find it almost impossible to lose weight despite trying most of my life. Apparently, I've had lipoedema undiagnosed since puberty which has now led to mild secondfary lymphoedema. Is there anything else I can do to help myself please.

Very interesting. My GP has changed my diuretic to Indapamide 1.5 mg to help with my blood pressure as he diagnosed me in May this year with Lymphoedema. After I self-referred to local Hospicwe Lymphoedema, nurse there said my actual diagnosis was lipodoema/secondary mild lymphoedema. Also have 4 angiomyolipomas on my kidneys - are lipomas associated with lipoedema? Anyone know the anser please.

Just yesterday I had my worst inflammatory episode yet. Bruised my leg accidentally a week ago, while at the gym and it started hurting again yesterday at noon. Within a few hours I had fever of 38,5, rigor and was in pain. Glad I got to the doctors office quickly and was able to start on Amoxicillin. Next day morning I’m already better. I was overwhelmed that at the age of 25 one can develop systemic symptoms so quickly. they say lymphoedema patients can still enjoy a fairly high quality of life if they manage it, well if wearing the socks and washing them daily isn’t enough, how should one live if they can so easily go into a septic shock? It’s been 4 years since my diagnosis 10 since first symptoms and honestly I’m still learning how limiting this condition is. John, Warsaw, PL.

Yes achy legs and throbbing after standing

Why wasn't the right leg pressed from the groin down to the top of the foot like the left leg was? Wouldn't the sore leg need that also?

I have tried high fat, low fat , no fat , low carb, no carb, high protein , “well balanced eating”. What is the “healthy eating approach “ I have not had sugar direct in over 30 years, eat occasional tiny piece of cake on birthday (now I eat the keto versions of bday cakes😊) , eat healthy green leafy veggies only, v low carbs, area low calories as well like 800Dr Mosleys, and many more. I have now cut out vegetables to minimal as it has carbs as well and my sugar levels are not coming down. With obesity, diabetes 2, fibromyalgia, fatty liver and lipedema all attempts tried so far didn’t help so far… Things that worked in the past doesn’t work for me anymore(50s now) I found that since Covid my diabetes and inflammation levels are higher and more difficult to control than ever. I don’t want to do surgery, I will not give up nor do I want to starve myself or over indulge, I want to be healthy fit and energetic again. It is so frustrating approaching health professionals who just assumes you are doing all the wrong things and that’s how you got into this situation. If you have tried something that worked for you please share.

I am also wondering on the effect of diet sodas on lipedema?

How do diet sodas affect lymphedema negatively seen that their low calorie?

Thank you so much for your video. I have had Lymphodema for over 20 years but for a long time I just didnt take care of it. I ended up getting a DVT. My left leg is where I have the swelling. By taking care of myself using compression garments and getting the fluid out of my body my leg went down 4 inches in diameter in my calf. I will definitely start doing these techniques to keep it under control. I also have cut back on my salt intake

Great video! Thankyou Maxine, Anita and the LSN.

Eline, you really did a great job! Hopefully our voice will be heard and things will change soon. Thanks for your efforts from all the lymphedema patients community! ❤

Great job Eline presenting our efforts and collaboration. Thank you for representing us all at ILF 2023.

I have lymphedema in my left arm, and at risk in my right arm. So, where should I get shots, blood draws, etc?

This is indeed correct. There is no much information about abdominal lymphoedema and it is absolutely overlooked. Thank you for your video.

Very good just wish you were closer to the client to demonstrate

Thanks for providing a greater awareness of lymphoedema. Your attitude is very inspiring and I have forwarded this to a friend of mine who also has lymphoedema.

Thank you for doing this interview. I am Afro Caribbean also with primary lymphoedema. It doesn’t stop me from living my life but a lot of change has had to take place 😊

Thanks, always for making these videos, and helping to raise awareness.

Interesting. I am glad I have seen this

If you had recurrent cellulitis does that mean the antibiotic treatment did not work

What about drinking colloidal silver? Or using it as a cream to rub on the arm?

Hey I saw you in that other video.nice to hear your voice again. Yea my leg is not swollen but it is flooding... Hard to get the skin to grow back when it flows like this.. how's your day?

Really helpful and thanks but wish the video was clearer.

L I K E 👍 👍👍 👍👍😻 😻 😻 😻 😻💯💯💯

Bouncing on a trampoline clears out lymphatic systemic.

I have just joined LSN. I did not know of Professor Mortimer until this week. I wish I had because I have just come out of hospital having just had a third attack of cellulitis. I have had 3 attacks of this twice in my left leg this year and once in my right leg in 2020. I was diagnosed with Lymphodemia in 2004 and have been able to control this with compression socks and exercise up till now. Cellulitis is the game changer and this latest attack was the most severe I was in the hospital 3 times having antibiotics pumped into me day and night for days. The consultants were wanting me to be referred to a specialist but in our area, all we have is Lymphoedema nurses what they could not understand is that I have not had a traumatic cancerous event to set it off. The attack was so bad it dropped into my foot and then into my toes, especially my big toe this swelled up so bad that there were concerns I would lose it and the fluid poured out of my toe for weeks before scabbing over. So far it has not gotten into my veins but the hospital was doing DVT checks on me every other day whilst an inpatient. It is still not fully healed but I have already started exercising again I won't give in to this awful condition I'm a fighter to the last but how anyone can consider this a trivial condition is beyond me.

I can vouch for that through my own personal experience. My lymphoedema has in fact improved since my hip replacement. It did get much worse initially due to the surgery related swelling but that only lasted for a matter of days. I feel quite joyous.

2:48 - AMEN!!! I hate football! I'm with ya!

I puffed up like a marshmallow after bilateral hip surgery. I also had cancer with radiation to my pelvic area. My lymph nodes were fried and my hips displaced

Insect repellent makes it hard to put on my garments, I’ve tried. Next time I would spray over the garment after putting it on when needing strong insect repellent. This time I’m gonna try a body oil that can be used as a light insect repellent as that shouldn’t hinder me putting in my garment.

Maybe cures are not profitable?

My mum has recurrent cellulitis in her lower limbs and has repeated courses of antibiotics which have been ineffective. As the Dr says it s really problematic. Mum was fine until she was hospitalised with COVID, now she succumbs to lots of secondary problems. Nightmare!

do we have to wear for lif