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National Scleroderma Fndn Texas Bluebonnet Chapter
เข้าร่วมเมื่อ 16 ก.ย. 2017
The National Scleroderma Foundation Texas Bluebonnet Chapter is a non-profit organization devoted to furthering the mission of providing support, education, and research to patients and families of those diagnosed with this incurable autoimmune disease.
It is our hope to bring this disease more into the public's awareness as we continue to fight for a cure.
We hope you enjoy, like, and share these videos so that more can learn about what Scleroderma is and how it effects the lives of those living with it.
Thanks for stopping by,
Love and Gratitude from the TBC!
It is our hope to bring this disease more into the public's awareness as we continue to fight for a cure.
We hope you enjoy, like, and share these videos so that more can learn about what Scleroderma is and how it effects the lives of those living with it.
Thanks for stopping by,
Love and Gratitude from the TBC!
Hand and Wound Care with Scleroderma
This presentation covers the following:
Wounds, treatments for specific issues pertaining to hand
Updates on wound coverage and ulcers
New minimal options for increasing blood flow to the hand
By Dr. Mark Khorsandi, DO
November 19, 2022
Wounds, treatments for specific issues pertaining to hand
Updates on wound coverage and ulcers
New minimal options for increasing blood flow to the hand
By Dr. Mark Khorsandi, DO
November 19, 2022
มุมมอง: 364
วีดีโอ
2022 06 The Scleroderma Body Dr M Mayes HD 1080p
มุมมอง 4.5K2 ปีที่แล้ว
The symptoms of scleroderma vary greatly from person-to-person, and not all people with scleroderma develop all complications. Dr. Maureen Mayes will reveal the symptoms of scleroderma that may be visible when the skin is affected, and the invisible symptoms as when internal organ systems are affected.
Ginny Maril, PhD Staying Well in Trying Times SD 480p
มุมมอง 743 ปีที่แล้ว
Dr. Ginny Maril presented at the Scleroderma Education Day Webinar on February 27, 2021 for the Scleroderma Foundation Texas Bluebonnet Chapter. Dr. Maril's session titled "Staying Mentally Well in Trying Times” includes three major sections: Risks of Chronic Stress Complications of COVID What We Can Do About It All Ginny Maril, PhD bio: * Licensed Psychologist * Associate Director of Clinical ...
Lesley Ann Saketkoo, MD, MPH: Be Friending the Scleroderma Gut SD 480p
มุมมอง 2093 ปีที่แล้ว
Dr. Lesley Ann Saketkoo presented at the Scleroderma Education Day Webinar on February 27, 2021 for the Scleroderma Foundation Texas Bluebonnet Chapter. Her session titled "Be Friending the Scleroderma Gut" includes: * Healing through essential self-management * Four Pillars of Medicine * Being the pilot of your health * The GUT likes smooth, soothed and slow * Attention, Creativity, Curiosity,...
Fernando Torres, MD Lung Treatment and Transplant SD 480p
มุมมอง 1523 ปีที่แล้ว
Dr. Fernando Torres presented at the Scleroderma Education Day Webinar on February 27, 2021 for the Scleroderma Foundation Texas Bluebonnet Chapter. His session titled Lung Treatment and Transplant and covered Anti-inflammatory treatment, Anti-fibrosis treatment, and Lung Transplant. Fernando Torres, MD bio: - Professor of Medicine at UT Southwestern Medical Center and Director of the Lung Tran...
Heidi Jacobe, MD What's Happening in Your Skin When You Have Scleroderma? SD 480p
มุมมอง 7923 ปีที่แล้ว
Dr. Heidi Jacobe, discusses skin changes associated with Systemic Sclerosis (Scleroderma) including the phases (Edematous, Sclerotic, Atrophic), diagnosis, distribution of skin involvement (Limited vs Diffuse Cutaneous), and treatment. Dr. Jacobe also delves into screening for internal organ involvement, and therapies. This presentation is part of Scleroderma Foundation Texas Bluebonnet Chapter...
Shervin Assassi, MD, MS - Lung Involvement in Systemic Sclerosis: Manifestations, Diagnosis, Screeni
มุมมอง 4263 ปีที่แล้ว
Dr. Shervin Assassi, Rheumatologist and Scleroderma Specialist presented "Lung Involvement in Systemic Sclerosis (Scleroderma): Manifestations, Diagnosis, Screening" at the Scleroderma Foundation Texas Bluebonnet Chapter Scleroderma Education Day Webinar on February 27, 2021.
Maureen Mayes, MD, MPH presents "Scleroderma Current and Future - Clinical Trial Update" Feb 27 '21
มุมมอง 3963 ปีที่แล้ว
Dr. Maureen Mayes is the keynote speaker and presents at the Scleroderma Foundation Texas Bluebonnet Chapter's Scleroderma Education Day Webinar on February 27, 2021. Dr. Mayes brings us up to date on Scleroderma Clinical Trials, both current and future. Maureen Mayes, MD, MPH bio: - Scleroderma Foundation’s 2020 Lifetime Achievement Award. The Lifetime Achievement Award is the Foundation’s hig...
FUNCTIONAL MEDICINE SCLERODERMA FEB 2020
มุมมอง 1.3K3 ปีที่แล้ว
Leann Silhan, MD presented Functional Medicine and the Scleroderma Patient in February 2020 to the Dallas/Fort Worth Scleroderma Support Group. Dr. Silhan opened her integrative and functional medicine practice in September 2019 after 8 year of pulmonary practice in the University setting. She has a background in pulmonary, critical care and internal medicine,
Claudia Davila shares her heart as a caregiver at TBC's Straight Talk event
มุมมอง 836 ปีที่แล้ว
Claudia Davila shares her heart and her experience as a caregiver to a Scleroderma patient at the Texas Bluebonnet Chapter's event "Straight Talk: A Patient Perspective" in Austin, Texas on February 17, 2018.
Robert Meek talks about being a husband and caregiver at Straight Talk
มุมมอง 1236 ปีที่แล้ว
Robert Meek talks about being a husband and caregiver to a Scleroderma patient at the "Straight Talk: A Patient's Perspective" event in Austin, Texas on February 17, 2018 for the Texas Bluebonnet Chapter of the Scleroderma Foundation
Jovana Desarden tells her Scleroderma Journey at TBC's "Straight Talk"
มุมมอง 1736 ปีที่แล้ว
Jovana Desarden, San Antonio Support Group Leader, tells her Scleroderma journey at Texas Bluebonnet Chapter's "Straight Talk: A Patient Perspective" event held in Austin, Texas on February 17, 2018.
Jacob Davila tells his Scleroderma Journey at TBC's "Straight Talk"
มุมมอง 2076 ปีที่แล้ว
Jacob Davila, Houston area Support Group Leader and Texas Bluebonnet Chapter Board Vice President, tells his Scleroderma journey at Texas Bluebonnet Chapter's "Straight Talk: A Patient Perspective" event held in Austin, Texas on February 17, 2018.
Amber Paris tells her Scleroderma Journey at TBC's "Straight Talk"
มุมมอง 1326 ปีที่แล้ว
Amber Paris, Dallas/Fort Worth area Support Group Leader, tells her Scleroderma journey at Texas Bluebonnet Chapter's "Straight Talk: A Patient Perspective" event held in Austin, Texas on February 17, 2018.
Kathy Baker tells her Scleroderma Journey at TBC's "Straight Talk"
มุมมอง 1886 ปีที่แล้ว
Kathy Baker, Texas Bluebonnet Chapter Board Member and Support Group Chair, tells her Scleroderma journey at Texas Bluebonnet Chapter's "Straight Talk: A Patient Perspective" event held in Austin, Texas on February 17, 2018.
BJ Harp speaks about Emotional Aspects of Chronic Illness at TBC's "Straight Talk"
มุมมอง 426 ปีที่แล้ว
BJ Harp speaks about Emotional Aspects of Chronic Illness at TBC's "Straight Talk"
Misti Chapman tells her Scleroderma Journey at TBC's "Straight Talk"
มุมมอง 5576 ปีที่แล้ว
Misti Chapman tells her Scleroderma Journey at TBC's "Straight Talk"
I am an occupational therapist/hand therapist. Regarding a question asked if you can use paraffin on open ulcers.... Please, do not use paraffin wax on open ulcers. This will make your ulcer worse. You can wear hospital gloves (or cut out a finger on a hospital glove if you only have one ulcer) to cover the ulcers and then dip in the wax. But please, don't dip uncovered ulcers in wax.
I agree Jennifer, I battle digital ulcers, I use paraffin on my hands but never with a open ulcer, now we have a patient in one of our support groups that uses paraffin on a open ulcer and it works for her! I totally agree with you, we always tell our patients to always consult with their doctors and to make sure they go to a doctor that specializes in Scleroderma! Thank you for your comment :)
@@debbiecharlton9749 Oh interesting. I still wouldn’t recommend doing that- concern for infection and the non-sterile wax contaminating a healing wound bed. It’s best to following instructions that come w the device (and your doctor) and it states not to use on open areas. There are so many other things to do that are safe and help ulcers. Although, I do understand how complex Scleroderma is and how individual treatment success varies with each person.
Do you know there are root and herbs which can eliminate Autoimmune, Scleroderma and Lupus Symptoms slowly in 2 weeks Roots and plants like; Anise , aralia,basil chamomile with little seamoss and a lot others my dear, these herbs cure are without no side effects at all. Scleroderma & lupus they say has no cure but I still can't believe I got a negative result, so you go try it. I came on TH-cam seeing others making comments in herbs and Dr Steven. Really his herbs are effective and natural 100%, I got it delivered to me and took it warm for 2 weeks , 2 times daily. The Symptoms slowly went away and a week after I got a negative results for both incurable diseases. Herbs is really good way of approaching a definite cure meet him here for more herbs Information ( orderherbs.steven@gmail.com )🌿☘️
Do you know there are root and herbs which can eliminate Autoimmune, Scleroderma and Lupus Symptoms slowly in 2 weeks Roots and plants like; Anise , aralia,basil chamomile with little seamoss and a lot others my dear, these herbs cure are without no side effects at all. Scleroderma & lupus they say has no cure but I still can't believe I got a negative result, so you go try it. I came on TH-cam seeing others making comments in herbs and Dr Steven. Really his herbs are effective and natural 100%, I got it delivered to me and took it warm for 2 weeks , 2 times daily. The Symptoms slowly went away and a week after I got a negative results for both incurable diseases. Herbs is really good way of approaching a definite cure meet him here for more herbs Information ( orderherbs.steven@gmail.com )🌿☘️
Thank you for your presentation. It has clarified a lot and I understand my disease much better.
B.e.S.T f'u"l'l D.a.T.i.n.G h.o.T G.i.r.L's -L-o-V-e-S-e-X-..❤️⤵️ 18cams.xyz !💖🖤❤️今後は気をライブ配信の再編ありがとうです！この日のライブ配信は、かならりやばかったですね！１万人を超える人が見ていたもん（笑）やっぱり人参最高！まさかのカメラ切り忘れでやら1かしたのもドキドキでした,.💖🖤 在整個人類歷史上，強者，富人和具有狡猾特質的人捕食部落，氏族，城鎮，城市和鄉村中的弱者，無`'守和貧窮成員。然而，人類的生存意願迫使那些被拒絕，被剝奪或摧毀的基本需求的人們找到了一種生活方式，並繼續將其DNA融入不斷發展的人類社會。.說到食物，不要以為那些被拒絕的人只吃垃圾。相反，他們學會了在被忽視的肉類和蔬菜中尋找營養。他們學會了清潔，切塊，調味和慢燉慢燉的野菜和肉類，在食品市場上被忽略的部分家用蔬菜和肉類，並且學會了使用芳香的木煙（如山核桃，山核桃和豆科灌木 來調味食物煮的時候 1618483607
Love her! That was great! Thank you!!
BEAUTIFUL!😘💗 great job cousin💗💗