Paralysed with love
Paralysed with love
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Get a feeding tube with me | life with chronic illness | Paralysed with love
About a week ago I threw up my feeding tube which was about as fun as it sounds...
So I thought I'd bring you along today to get a new feeding tube inserted in day surgery. I have a feeding tube for a condition I have called gastroparesis (a paralysed stomach) to help me get all the nutrients I need. It bypasses my stomach and goes straight into my small intestines and has honestly been life-changing. Medical devices can be overwhelming and scary but they're nothing to be ashamed or embarrassed about! You're stronger than you know and if you need a medical device to keep you functioning that doesn't change anything!
Have a fabulous week and look after yourself!
*Get 25% off Glamify & Glow's Relief Pad: glamifyandglow.com/?ref=qdG8BQ8LnvArV
- Links marked with * are affiliate links. I earn a little commission each time you use my discount code/link. Thanks so much for your support!
Come say hi!
Instagram: paralysedwithlove?hl=en
Facebook: profile.php?id=100070487676136
TikTok: www.tiktok.com/@paralysedwithlove?lang=en&is_copy_url=1&is_from_webapp=v1
Website/Blog: www.paralysedwithlove.com/
My name is Maddy and this is Paralysed With Love. I talk all about living with chronic physical and mental illnesses and learning to live a full life no matter our circumstances. Don't forget to subscribe to my channel so you can stay up to date with all of my videos and join the madness of life with chronic illness! Everyone is welcome! Let me know what videos you want to see next on my channel!
Life is tough, but so are we!
Maddy xx
มุมมอง: 484

วีดีโอ

A CHAOTIC WEEK IN MY LIFE | Chronic Illness edition | Asthma, allergies, werk | Paralysed with love
มุมมอง 1459 หลายเดือนก่อน
Hello Hello Hello! Welcome back to another weekly vlog. Living with chronic illness can be hard and this week definitely had lots of ups and downs. This week was a bit chaotic but I'm glad I got in a yoga and gym session and was able to cover the work shift! Bring on the next week! I hope you've had a wonderful week and are looking after your mind and body. Life is tough, but so are we. Maddy x...
A WEEK IN MY LIFE WITH CHRONIC ILLNESS | Emergency Vet Visits, Body Image, Uni | Paralysed with love
มุมมอง 1989 หลายเดือนก่อน
Hello Hello Hello! Welcome back to another weekly vlog. Living with chronic illness can be hard and this week definitely had lots of ups and downs. I'm so glad we have some answers for Mags and can make the most of the time we have left with her. This mastocytosis and asthma flare-up has been an absolute killer but I thiiiiink we might be heading in the right direction. Fingers crossed! I'm so ...
When Spring hits | A WEEK IN MY LIFE | Paralysed with love
มุมมอง 14210 หลายเดือนก่อน
Spring has well and truly sprung and my lungs aren't loving it! Join me for another weekly vlog trying to tackle life with chronic illness and living in my slick chick, egg head era. It has been so good to get back to work and find a purpose again! How has your week been? Regrow Hair Clinics: www.regrowhairclinics.com.au *Get 25% off Glamify & Glow's Relief Pad: glamifyandglow.com/?ref=qdG8BQ8L...
A WEEK IN MY LIFE | A rough week with chronic illness | Paralysed with love
มุมมอง 14910 หลายเดือนก่อน
Well, she's well and truly burnt herself out team... But I'm the happiest I've been in a long time and so excited to be back at work even if it is just for a few hours a week! Small steps are still steps! How's your September going so far? My sister's MIL's shop, Shall Design: www.shalldesign.com.au *Get 25% off Glamify & Glow's Relief Pad: glamifyandglow.com/?ref=qdG8BQ8LnvArV - Links marked w...
A WEEK IN MY LIFE - Chronic Illness Edition | Paralysed with love
มุมมอง 9211 หลายเดือนก่อน
A WEEK IN MY LIFE - Chronic Illness Edition | Paralysed with love
A WEEK IN MY LIFE - Chronic Illness Edition | Paralysed with love
มุมมอง 20311 หลายเดือนก่อน
A WEEK IN MY LIFE - Chronic Illness Edition | Paralysed with love
A WEEK IN MY LIFE: chronic illness edition | Paralysed with love
มุมมอง 15111 หลายเดือนก่อน
A WEEK IN MY LIFE: chronic illness edition | Paralysed with love
A Week In My Life - Chronic Illness Edition| Paralysed with love
มุมมอง 23911 หลายเดือนก่อน
A Week In My Life - Chronic Illness Edition| Paralysed with love
A week in my life with chronic illness | Paralysed with love
มุมมอง 971ปีที่แล้ว
A week in my life with chronic illness | Paralysed with love
My feeding tube must-haves | Paralysed with love
มุมมอง 219ปีที่แล้ว
My feeding tube must-haves | Paralysed with love
Overcoming chronic illness fatigue - I'm sick of being sick | Paralysed with love
มุมมอง 610ปีที่แล้ว
Overcoming chronic illness fatigue - I'm sick of being sick | Paralysed with love
WEEKLY VLOG: life with chronic illness and a feeding tube | Paralysed with love
มุมมอง 708ปีที่แล้ว
WEEKLY VLOG: life with chronic illness and a feeding tube | Paralysed with love
We've got a fair bit to catch up on! Clay and Chats | Paralysed with love
มุมมอง 138ปีที่แล้ว
We've got a fair bit to catch up on! Clay and Chats | Paralysed with love
CHRONIC ILLNESS VLOG | My life with gastroparesis, endometriosis and injections and appointments
มุมมอง 4292 ปีที่แล้ว
CHRONIC ILLNESS VLOG | My life with gastroparesis, endometriosis and injections and appointments
A CHRONIC ILLNESS VLOG | A week with a gastroparesis flare, migraine and an IV | Paralysed with love
มุมมอง 3262 ปีที่แล้ว
A CHRONIC ILLNESS VLOG | A week with a gastroparesis flare, migraine and an IV | Paralysed with love
CHRONIC ILLNESS VLOG | My life with gastroparesis, endometriosis, migraines and mast cell disease
มุมมอง 6042 ปีที่แล้ว
CHRONIC ILLNESS VLOG | My life with gastroparesis, endometriosis, migraines and mast cell disease
PAIN RELIEF WITHOUT PAIN RELIEF | DEALING WITH CHRONIC PAIN EVERY DAY | Paralysed with love
มุมมอง 1882 ปีที่แล้ว
PAIN RELIEF WITHOUT PAIN RELIEF | DEALING WITH CHRONIC PAIN EVERY DAY | Paralysed with love
What's In My Mental Health Took Kit? Self Care, Sleep Hygiene, Hobbies & More | Paralysed with love
มุมมอง 2972 ปีที่แล้ว
What's In My Mental Health Took Kit? Self Care, Sleep Hygiene, Hobbies & More | Paralysed with love
Let's talk about gastroparesis | What is life like with a paralysed stomach? | Paralysed with love
มุมมอง 9402 ปีที่แล้ว
Let's talk about gastroparesis | What is life like with a paralysed stomach? | Paralysed with love

ความคิดเห็น

  • @alyssawssinging4039
    @alyssawssinging4039 หลายเดือนก่อน

    This illness is terrible I’ve had it since I was 16 diagnosed at 16 and im 23 now almost 24 and my doctor now says it now gotten worse and yeah I can tell I barley can eat before I could barley eat anyways but now I vomit a lot more and have so much nausea I just wish we didnt have to go thru this

  • @ameliabrinker4814
    @ameliabrinker4814 6 หลายเดือนก่อน

    I LOVE this. I have a J tube and am on continuous feeds so I'm hooked up to a backpack allllllllllllllllll the time and thought the same thing when I saw that other video.

  • @histired
    @histired 8 หลายเดือนก่อน

    My mom uses a backpack bc she gotta go in the subway and it's very common here in my town since robberies and pickpocketers

  • @candaceberman1448
    @candaceberman1448 8 หลายเดือนก่อน

    I also have severe gastroparesis and other chronic illness but I have a surgery coming up for a tube and I'm so scared thanks for making this video

  • @smtasrifshamim
    @smtasrifshamim 8 หลายเดือนก่อน

    hi

  • @AbbyKuusisto-wp7bc
    @AbbyKuusisto-wp7bc 8 หลายเดือนก่อน

    I Have Gastroparesis as well!

  • @nuggetandem
    @nuggetandem 8 หลายเดือนก่อน

    So glad you have a new tube. I love seeing all your vlogs

  • @camillamore5026
    @camillamore5026 8 หลายเดือนก่อน

    New tube looking fab!

  • @user-zg7ub3ou9y
    @user-zg7ub3ou9y 9 หลายเดือนก่อน

    Your video content is very good, I hope you improve very quickly. Good luck to you

  • @user-zg7ub3ou9y
    @user-zg7ub3ou9y 9 หลายเดือนก่อน

    I love your videos, I am very happy to see , I hope you have a lot of success, that you continue to grow in everything you propose ❤❤

  • @georc3108
    @georc3108 9 หลายเดือนก่อน

    💙☠🏝

  • @asian.404
    @asian.404 9 หลายเดือนก่อน

    Hi there I hope you are well. I visited your TH-cam channel and watched your videos. your content is very good. But your video SEO score is very low. As a result, your videos are not reaching your target audience. Your channel's views and subscribers are not increasing. Below we found your channel issue : 1. SEO Score is very low 2. No Title - Description - Tag SEO friendly 3. No Share Social Media Platform and many problems on your TH-cam Channel Immediately need SEO for your TH-cam channel I speak as a TH-cam expert If you do proper SEO of the videos then your problem will be solved. Let me know if you agree that I would like to help you. Thank You.

  • @asian.404
    @asian.404 9 หลายเดือนก่อน

    Hi there I hope you are well. I visited your TH-cam channel and watched your videos. your content is very good. But your video SEO score is very low. As a result, your videos are not reaching your target audience. Your channel's views and subscribers are not increasing. Below we found your channel issue : 1. SEO Score is very low 2. No Title - Description - Tag SEO friendly 3. No Share Social Media Platform and many problems on your TH-cam Channel Immediately need SEO for your TH-cam channel I speak as a TH-cam expert If you do proper SEO of the videos then your problem will be solved. Let me know if you agree that I would like to help you. Thank You.

  • @KatieSimmonds1
    @KatieSimmonds1 10 หลายเดือนก่อน

    Relate to this so much! 🩷 I just finished reading The Collective Regrets of Clover and really enjoyed it! How’d you like it? I’m so sorry about Maggie 🐶 💔

  • @nuggetandem
    @nuggetandem 10 หลายเดือนก่อน

    Sending so much to you and Maggie during this journey ❤. If you need anything don't hesitate to let me know. Also congrats for starting to study again. 🎉

  • @Freelancer_Milon73
    @Freelancer_Milon73 10 หลายเดือนก่อน

    Hey went to your channel and saw that you are below everyone else. There is no SEO in your channel. Your channel content is Awesome. Why are your channel's videos not getting many views? The first thing is that the SEO (your videos 'SEO' is 19.6//100% whereas it should be more than 80 to 90% out of 100%) is not done properly. If you want, can I help you?

  • @nuggetandem
    @nuggetandem 10 หลายเดือนก่อน

    Omg love the tiny Teddy's. A good new snack idea. I do the same things with bras. I've never tried the frozen pink drink that from Macca's. Sorry your allergies are flaring

  • @KatieSimmonds1
    @KatieSimmonds1 10 หลายเดือนก่อน

    🤍🤍🤍

  • @randomfabuloushuman34
    @randomfabuloushuman34 10 หลายเดือนก่อน

    FELT I’m allergic to wheat, gluten, corn, milk, soy, peanuts, pecans, and walnuts but it’s so hard to avoid all of those

    • @paralysedwithlove8565
      @paralysedwithlove8565 10 หลายเดือนก่อน

      It can be such a struggle! I'd definitely recommend working with a dietitian xx

  • @Bro_playzYT
    @Bro_playzYT 10 หลายเดือนก่อน

    LOL

  • @LaurenxOtt
    @LaurenxOtt 10 หลายเดือนก่อน

    I love how comfortable you are with the camera! Also as a chronically ill TH-camr myself, you're really inspiring me to continue!

    • @paralysedwithlove8565
      @paralysedwithlove8565 10 หลายเดือนก่อน

      Thanks so much lovely! I'll have to check out your channel! I hope you've had a restful weekend x

  • @Patrick-dg7yp
    @Patrick-dg7yp 11 หลายเดือนก่อน

    just cause ur tired dose not mean u can stay inside all day im always tired and I just deal with it. just be better

    • @paralysedwithlove8565
      @paralysedwithlove8565 10 หลายเดือนก่อน

      Thanks so much! I can't believe I didn't think of JUST BEING BETTE?! You should be a doctor!

  • @lindamaliki9360
    @lindamaliki9360 11 หลายเดือนก่อน

    I love your content keep up the good work

  • @lindamaliki9360
    @lindamaliki9360 11 หลายเดือนก่อน

    Omg your so pretty

  • @nuggetandem
    @nuggetandem 11 หลายเดือนก่อน

    Omg I can't believe he didn't call. That sucks that the end of your week was crappy. But so exciting for the end of TMS. I can't wait to hear how you think of the whole thing.

    • @paralysedwithlove8565
      @paralysedwithlove8565 11 หลายเดือนก่อน

      Thanks lovely! Turns out someone didn’t note down that it was Telehealth… ah well, talked to him yesterday so we all good 🥰

  • @wall6473
    @wall6473 11 หลายเดือนก่อน

    OMG THATS SO PRETTY

  • @ponytailduck
    @ponytailduck 11 หลายเดือนก่อน

    sending my love ❤

  • @KatieSimmonds1
    @KatieSimmonds1 11 หลายเดือนก่อน

    Great vlog!! Loved it 😊

  • @kathleendeboer3427
    @kathleendeboer3427 11 หลายเดือนก่อน

    Love your videos <3 <3

    • @paralysedwithlove8565
      @paralysedwithlove8565 11 หลายเดือนก่อน

      Thanks so much 💛 I’m really enjoying making them!

  • @normamercado5420
    @normamercado5420 11 หลายเดือนก่อน

    You make me laugh. You are so funny.

  • @corrinecoffey7498
    @corrinecoffey7498 11 หลายเดือนก่อน

    so true i just did it last week!

  • @KatieSimmonds1
    @KatieSimmonds1 11 หลายเดือนก่อน

    Loved this!! 😍 I haven’t been sleeping well lately so my next reset is of my sleeping! Insomnia suuucks 😢🤞🏼

    • @paralysedwithlove8565
      @paralysedwithlove8565 11 หลายเดือนก่อน

      So sorry to hear 💛 I hope you’ve had a few better nights xxx

  • @mymyj1968
    @mymyj1968 ปีที่แล้ว

    I hope everything is well I’ll pray for u

  • @FireLeaf281
    @FireLeaf281 ปีที่แล้ว

    Thank you ❤ thank you I needed this. I’m crying in to the dark right now but you help.

    • @paralysedwithlove8565
      @paralysedwithlove8565 11 หลายเดือนก่อน

      Sending so much love 💛 you’re not alone x

  • @nataliereid7609
    @nataliereid7609 ปีที่แล้ว

    You are reading so many books at once! Amazing! 😮

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      I can’t concentrate on one at once 😂😂 I get too distracted hahaha

  • @madnatify
    @madnatify ปีที่แล้ว

    🌻

  • @tarunsharma1895
    @tarunsharma1895 ปีที่แล้ว

    You are so nice

  • @tarunsharma1895
    @tarunsharma1895 ปีที่แล้ว

    You are so gorgeous so beautiful so pretty

  • @itsnikkiautumn
    @itsnikkiautumn ปีที่แล้ว

    What is the title of the book series? I’ve recently been reading The Iron Fey Series, and it was so good! Very exhilarating and fantasy filled, kept my attention for days 😊

  • @leona6761
    @leona6761 ปีที่แล้ว

    'promo sm'

  • @jessicapilkington9861
    @jessicapilkington9861 ปีที่แล้ว

    Mads you are an inspiration. Love these videos and appreciate your honesty. Thank you for teaching me about your life xxx❤

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      Thanks so much for being such a huge inspiration to me! Your support always means so so much to me <3

  • @nataliereid7609
    @nataliereid7609 ปีที่แล้ว

    Love this video, so many good tips! I really need to try a barrier wipe. Also, the plant behind you is AMAZING!

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      How good is the plant?! My sister gave it to me a couple of years ago :) Thanks for watching xxx

  • @rita.sotero
    @rita.sotero ปีที่แล้ว

    Thank you so much

  • @mariko1600
    @mariko1600 ปีที่แล้ว

    Hi Maddy!!! I'm so glad that I came across this video. I've been struggling with depression and panic attacks for 3+ years now and the chronic fatigue is just SO real. I completely understand what it's like to feel "sick of being sick", and I've always thought I have to work harder or do more to get out of this situation...but obviously it doesn't work that way. Thank you soooo much for making me feel that I'm not alone facing this, and providing great pieces of advice. Much love ❤❤❤

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      Thank you so much for sharing your story <3 It's so hard to be sick and hard to explain to people what you're feeling and going through every day! I feel so lucky to have met people who get it online <3 I hope you've had a lovely start to your week and you're feeling as well as possible xxxx

    • @mariko1600
      @mariko1600 ปีที่แล้ว

      @@paralysedwithlove8565 Thank you so much ❣️

  • @KatieSimmonds1
    @KatieSimmonds1 ปีที่แล้ว

    Thank you for this vlog! I appreciate your transparency on mental health with chronic illness - one of the hardest parts of being sick imo and not always spoken about. I relate to feeling over it and burnt out, sometimes I want to just stop trying. Thanks for sharing, you made me feel less alone 🤍 Btw your skin looks so nice!! ✨✨

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      Thanks so much 💛 I’m so sorry you’re going through that, it’s such a hard thing to explain to people. Sending you so much love xxx

  • @nuggetandem
    @nuggetandem ปีที่แล้ว

    Please contact the company that does kangaroo pumps. If it's leased they will be able to replace it or give you tips your Dietitian can't give you. You should be able to run it without it alarming all the time.

  • @bonnie1303
    @bonnie1303 ปีที่แล้ว

    😂🙃

  • @admar6934
    @admar6934 ปีที่แล้ว

    Is not s serious condition as doctors make it sound like I had this problem and it was terrible ,but change your diet and you will see the results, some foods tend to be hard to digest for our system and stay there longer which makes it hard to digest anything you eat ,but change it up to lighter foods easier on your digestion and problem solved

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      Thanks for the suggestion. I’m glad you are able to control your symptoms with diet. I have gone through many diet and lifestyle changes with doctors, dieticians and other professionals but unfortunately my condition is progressively worsening. I’m actually tube fed in to my small intestine and my stomach and large intestine are almost completely paralysed, as we found out with a lot of testing and studies. Doctors don’t do this lightly, it is serious intervention for a life threatening condition (I was in hospice for two months). I definitely understand that gastroparesis isn’t the same for everyone and is a spectrum of severity but I think it’s important not to minimise others’ experiences.

    • @alyssawssinging4039
      @alyssawssinging4039 หลายเดือนก่อน

      Not for everyone my gastroparesis has gotten worse and daily life for me is terrible with this illness it doesn’t matter what I eat or what I do I still will vomit and get sick and all the symptoms so yes this illness is serious u can’t speak for everyone

    • @admar6934
      @admar6934 หลายเดือนก่อน

      @alyssawssinging4039 for me what makes it worse is starches and alot of fiber, if I eat meat not red meats those ate harder to digest but fish , poultry I find it helps alot along with drinking something hot afterwards my favorite peppermint tea or ginger tea

  • @carlodom7422
    @carlodom7422 ปีที่แล้ว

    Niiiiiiiiiice!!! You are missing out on potential viewers by not using a service such as "PromoSM".

  • @kathleendeboer3427
    @kathleendeboer3427 ปีที่แล้ว

    🥺🚛 have you read the flat share!? It’s just come out on tv and I can’t wait 😍

    • @paralysedwithlove8565
      @paralysedwithlove8565 ปีที่แล้ว

      Ooooh i haven’t!! Is that by Lucy Foley too? 😄 thank you xxxx