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I have been told by my own mother that my sense of humour is not only darker than my coffee but also brutally sarcastic so I love Ella's outlook and share it

I agree the alerts are not as accurate as my head

Ty

My type of migraine...diagnosed at aged 32

Love this doctor

❤

Could I ask why Triptans are not recommended for hemiplegic migraines?

5:09

Going to give this a ago. I deal with it 24/7 and can no longer walk. It's taken my ability to live my life. Need a wheelchair to get around. I live in a dark room with hardly any sound or light. I hope it helps. I don't want to live like this for much longer.

WOW- another utterly factually WRONG -person ! I’m OUT ANOTHER BULL SHITTER !

I cannot wrap my head around the fact that you need to pay for your medications in US 👀👀👀 In Europe, we get them free of charge 😅 And I think it’s also cheaper in Europe - the current price for AJOVY is 383 EUR.

what about patients who were well before a martial artist, soccer player, swimmer and in the army so impeccable balance and tolerance, but post head injury pain/migrains and sensitity all the time, disabled and can't hardly leave the house.

I have constant headaches, noise light sensitivity, sensitivity to scents, trouble balancing and all kinds of problems after a head injury. I never had problems or headaches before my head injury, I also have oscillopsia and visual vertigo, extreeme fatigue. But tests show the vestibular system is norma;l my neuro said it's hypersensitivities post head injury and a study from cambridge came out this year and corroborated that saying post concussion hyperconnected pathways can cause the myriad of symptoms we suffer. The question is how on earth do you treat it as I've had vision and vestibular therapy with a slight improvement to how dizzy I get but not massive. It also feels like the dizziness and imbalance can fluctuate which is confusing, I have heard autonomic issues can cause dizziness and I have alot of issues like I don't sweat anymore and my stomach doesn't seem to work properly. Could it be autonomic causing the dizziness and imbalance. It's been 5 years I'm completely disabled, can't work and rarely leave the house because it causes so much more suffering.

You cover alot of ground there but what about post head injury headaches? I have a constant aching head and almost constant migraine, how do you abort it when it never goes away? A patient who never had headaches in life and post head injury is disabled by them and many other symptoms going on 5 years now.

This may be my last hope. I've tried so many things and medicines. I cant walk anymore or see straight and doctors dont care. Its 24/7 i cant live like this.

The wear off period is killing me

Thanks for this video. A rare but possible hereditary cause of hemiplegic migraine (especially FHM) is a genetic cerebral small vessel disease called CADASIL, which is caused by one a Notch3 mutation on chromosome 19. I was diagnosed in 2006 and had regular, severe hemiplegic migraines several times a year for 23 years. From predrome to prodrome, each could last for up to two weeks. On one occasion, parasthesia in my right calf muscle did not reverse for about seven weeks. On a few occasions, I had dual parasthesia within 24 hours. Didn’t always get head pain but, most times I did and it was horrendous.

My name is Doris , and I zam from Peru. I suffered with migrain gor many, many year. It was a hell, I suffered terribles mom 3:00 moments of pain but thans to a Dr Schults I recovered my life. If you would like to contact me I be very glad to help on your research about this awful ill.😊

The low dose almost killed my sister. Tachycardia, weight gain, hair loss, not to mention the migraines were the same. Oh fatigue and inability to sleep. Plus the long term effects of suppressing calcitonin is a dangerous path

My doctor won’t prescribe Triptans due to having history of asthma even though it was over 10 years ago. They’ve put me on anti depressants instead for migraines but doing my research I’m convinced the anti depressants will be less beneficial compared to triptans

My doctor gave me a sample of Emgality. I'm still reading and listening about it. Thank you for sharing your experience. Several months ago I did injection of Ajovy. I like it. I took a break from a migraine more than one month. There were about 6 migraines during this period. Some of it gone itself.

It's a shame you don't have more views on this video. I'm certain it could help so many people! Thank you for interviewing the great Anne Swain!

The auras are the problem for me, just debilitating and sometimes last all day. How to prevent these?😊

This doctor is one of the few who actually understand. Thank you.

I'm starting Ajovy tomorrow so fingers crossed. I was on botox and after intitial success it stopped working which was heartbreaking so I am hoping this will give me back some quality of life.

Fantastic interview, thank you. I have had migraines for over 23years now. Quit my job because of it. Good to hear there are others out there learning how to work with migraine.

So I've been dealing with vestibular migraines for a decade. Only I didn't find out they were vestibular migraines until about three months ago. It's gotten so bad to the point that I have blackouts, vision loss, and vertigo. I also survived two massive heart attacks this year and I'm only 33 and so many medications I am denied as I am at major heart risk. I'm at the point where I don't want to live anymore and am so broken and depressed. I can't even leave the house let alone my bed. I don't want to die but at this point, I don't want to feel anymore pain

I used to get migraines about 15 hours after exposure to diesel fumes. Since I avoid that situation I have not had them for quite a while. We also changed location. I'd stand in Grenfell Street (Adelaide) waiting for a bus and then next morning around 5 or so I had these enormous headaches and vomited. I reckon it must be the dioxins in diesel fumes. I was a smoker but that never made a difference. I never went to a COVID testing site for fear of diesel vehicles running their engines.

Someone should try making lenses which block out all colours by at least 50%. At least then we know we aren’t missing anything 😄

After mixed results with Botox, I'm giving Ajovy a crack next week. At least it's on the PBS now. Wish me luck!

Thank you Roger and Sarah, great little interview. Lots of information and easy to understand. If anyone is considering seeking out a Watson Headache Clinician this is a great introduction and helps explain that sensitised brain stem in Migraine, Headache and other related conditions.

Love love love that he discusses addressing central sensitisation as “changing how sensitive the brain stem is” rather than “how the patient perceives symptoms.” Shows an incredible awareness of the power of language in discussing these things and the importance of minimising stigma and blame on the patient. It’s not a matter of our cognitive interpretation of the pain being wrong - it’s the central nervous system rewiring itself in a misguided attempt to protect itself. Discussing it as such is so important for reducing the tendency we have to question our own perception of our pain.

I've had my first double dose of Emgality. It's been 3 weeks. Still waiting for positive results. Fingers crossed. I've got all my eggs in this basket.

I have been on Ajovy for 9 months and I still have to take meds for my Migraines. The Adovy helps very little with my problem.

Am Christine from Kenya 🇰🇪, migraine patient.

You are one strong and truly courageous lady, Simone! I hope many other migraine sufferers as well as other chronic disease sufferers learn from your amazing example! Wishing you all the very best for Eurovision! You deserve every success! 🙏😊

Stay strong Simone. Can't imagine how hard it must be. Thank you for opening up. Been a fan since Hyperventilating came out and best wishes for Eurovision. Love from 🇮🇳

Thanks, this was a very informative video!

Thanks.

amazing! thank you for sharing

Can I ask you how much does Aimovig cost in Australia per month? Thank you. Andrea New Zealand

Interesting interview, thank you. @Reay_of_light_

Good on you Flynn!

Interesting interview!

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I suffer from chronic migraine that last for 5-30 hours every time I cough, sneeze or bend over.

Love your advice about saying no.... unless it makes you heart sing

Very interesting!

So interesting. What's the clinic book and books mentioned? I definitely am hearing new things here re eliminating. I have the dizzy cook and heal your headache books and have done both of those. I did find out I can't have oj or lemon but confused on the rest.

Great interview!