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You seem to forget it doesn't just affect the brain. YOU STILL HAVE A BODY and it get into all of it.

Hey, hang on. I was Epilim for twelve years and was past childbearing age but it still turned me into a mess. It was my chemist that told me in the end to get off it. He said, "no one is on this crap anymore." See your doctor and get off it. I was shaking too hard to sign for my script. All my hair had fallen out and I'd gained 53 kg more than doubled my weight in nine months. That was thirty years ago and I'm still not right.

Rats don't have mental delay and drug companies don't care what their drugs do as long as the initial result is accomplished.

Nice interview-fascinating

you ought just to talk your language, and let google translate for you because you sound like a baby, dude.

Fascinating!

Great interview. Was really impressed with the research and how easily this complicated material was explained.

This was a great video. Very complicated stuff explained simply.

I lost 2 friends to sudep and ive had to be resuscitated twice which is sad. Its one of the many reasons i fundraise for epilepsy charities charities and donating epilepsy information packs to schools and libraries

I love music My grandad taught me classical music on his piano as i grew up and always listened to classic fm on the radio which i love hearing now.

Sounds unique. Ive never associated spiders stopping seizures. If it helps its really interesting.

Thanks for sharing

I've been on Keppra a short time. No "rage" or emotional outbreaks, but man, it makes me feel like I'm on muscle relaxer 24/7. Doctor wants me to pop 1500mg daily, but if I do that, I'll be a vegatable. I won't be able drive or do my job. Splitting a 750mg pill twice daily I feel it the next day! I hate how it feels!

What a sad diagnosis.

❤

so a lot of oversea stem cell clinic uses umbilical cord MSC can help with epilepsy?

Another excellent podcast. Thank you all!

I see people like cartoons while having this meds

Dr. Rubinos is the kind of neurologist we would all be fortunate to have caring for us.

I know Neil personally I worked with for a number of years as always Neil is a fantastic guy with a heart of gold. His knowledge and skills and creativity he has always used for the benefit of others what a brilliant man. ❤

I’m not surprised to hear this research, but I’m so happy that someone is pursuing the connection between seizures and gut microbiome. My son has had seizures for years and I’ve always thought there was something going on with his gut. He gets constipated and has seizures, or he runs straight to the bathroom after a seizure. Thanks for this video. I hope to see more human trials with fecal transplants.

I got a meg test and it do anything

Great interview mate, keep up the good work, love your blog about the response to 'John', and hope you're well too! 🖤

As a epileptic man it's good to hear this is good to hear

Excellent Insight from Christine here at Young Epilepsy and the OPM-MEG project.

Thank you Torie! for having us!! You're the best😛

I wish I could help my son more. We have had no neurologist for the past two years here in Northern Ireland. They left!!!

Nice

No wonder people once thought epileptic seizures were a form of demonic possession

Seizure free two years and counting!!!🎉🎉🎉 if I improve my cognitive skills, could I reduce chance of dementia..... further my new seizure free life? Hope this don't sound stupid.

Any studies or anybody have positive results with keto diet with mesial temporal sclerosis epilepsy ? Even if it’s keto and drug combined?

Great description!

Very informative thanks!

Thanks for sharing

Great video with some interesting food for thought

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I was going to school to become a pro pilot when I had my first seizure and later diagnosed with epilepsy. It ruined my life and career. I tried doing software engineering in the aerospace industry. Nothing can replace flying. And for the record, software engineering is NOT fun for someone who wanted to fly. Some advice for someone who is the same boat I'm in. If you're trying to figure out what to replace your broken pilot dream with, give yourself plenty of time to think about it. Don't rush into things. Take classes, research different professions, interview professionals in those fields to get an idea of what the daily life is like for that career before you jump into it. Also, don't delay grieving. If you need to live with a family member to care for you while you grieve, do it. And don't beat yourself up if you end up grieving for years. It's been 7 years and I'm still grieving. Also, spending time in nature can help a little bit. I do a lot of hiking and the trees, rocks, flowers, waterfalls, etc is peaceful. I won't lie, nature is not a permanent fix, but it's a nice temporary relief from the grieving and depression. Animals help too. They can really sense your sadness and will give lots of love. Just hang in there. I never stopped wanting to fly too. So hold onto the little things and let people know when you need to talk. Also study different subjects. Math, science, engineering, history, etc. Those topics can be grounding when you're feeling down. Art, music, and meditation can be helpful too. Of course all of these things only bring temporary relief, but it's better than no relief at all.

I have epilepsy

It was a rollercoaster trying different epilepsy medication over the years. One moment it seemed to be working, next moment i had a seizure

Your posts are always helpful

To reduce memory issues after a temporal lobe resection is cool, right?! What do you think?!

What are your thoughts on Epilepsy caused by Gene NOTCH 3 Chromosome 19; CADASIL? My brother & suffer intractable Tonic/Clonic Seizures, diagnosed at The Cleveland Clinic?

Dr. Kwan: What are your thoughts on Gene NOTCH 3 Chromosome 19; CADASIL. My brother & I were diagnosed at the Cleveland Clinic. We have intractable Tonic/Clonic seizures.

Very informative and helpful video on the subject of cannabis and seizures

Fascinating research, love your shows Torie!!

Do you think epilepsy ever be cured?

I always enjoy learning new things from your posts

This would be fantastic! I was lucky enough to qualify for minimally invasive surgery, but not everyone is as fortunate.

Is there Gene Therapy for CADASIL: Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts with Leukoencephalopathy -Gene NOTCH 3 Chromosome 19

YES. I look after my elderly wife who has poorly controlled epilepsy. The breakthrough seizures - and other unpleasant symptoms - seem to be partly correlated with constipation. However taking laxatives sems to reduce the effectiveness of her eplepsy meds. So it is quite a problem, on top of all the normal epilepsy issues!