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I was told I had some endometriosis and a paraovanian cyst(I think I spelled that right) but I was supposed to get my period and I was lightly spotting for one day before my period was supposed to start but the spotting stopped and I haven’t gotten my period yet and today is the day I should be getting my period…is that part of endometriosis or pregnancy?

I have servere fatigue a week or two before my period. And bad pain. The fatigue Its so debilitating i can't do any thing.i feel tranquillised Still seeing specialist to see if i have endometriosis had scans done nothing shows its been going on for years. No confirmed diagnosis yet

One of my ureters was adhered to my pelvic wall due to endo, i know that i'm lucky to still have both kidneys. To me, it's an absolute travesty of justice that most doctors have absolutely no knowledge of endo despite 1 in 11 women having it and that it can cause loss of kidneys!!!!!!! Are you kidding me!?!?!

That's what I was dealing with.

Holy crap you’re story is like mine, also had Pubic hair at just 5. Looking for a hysterectomy at 19

Some people (like myself) can't take birth control. It's really mixed how people respond to all of the treatments.

I’m so lost bro what-

Almost committed suicide on birth control....I say f--- birth control.

Absolutely. I experienced this today, after waiting a year to see a gynaecologist, so fed up 😢

This is pure Gold!!! Thank you! I seriously thought I had chronic fatigue or was lacking in certain vitamins and minerals, but my levels were fine. This explains ao much!!! Anyone here ever almost passed out from the pain or felt nauseous even when you weren't on your period?

My endo put me in the hospital last month. I started a diatomaceous earth detox and my most recent cycle has been truly amazing! No pain, no back pain, my skin is clearing. It’s absolutely amazing

😂 Do your research! Parasites CAN be a cause of it but obviously not in all cases

But some of us actually have gotten rid of our endometriosis symptoms by detoxing parasites and I’m not affiliated with anyone. I’m speaking truth. Be careful what you accuse people of and look into the studies. There are studies on this. Several. Maybe it didn’t help you but it helped me get my life back and I happen to know a lot about endometriosis.

Thank you for sharing this my wife suffered for so many years with out knowing why 😢

Hi Jess I learned about your story seeing your experience at Panera Bread and you certainly have educated a number of people with that condition that a lot of people don't know about and just want you to keep in mind that every trial in our life as a beginning a middle and an end and try to look forward to day when all these trials will will end .. remind me people can I meet people in similar situations I recommend do not let yourself be defined by your condition and realize you are a lot more than your condition

Me again. I’m learning so much from your videos. It’s a shame not many others are seeing them. Thanks for the effort you’ve put in :)

Thanks for making these videos. I’m sorry you’ve gone through this. I have as well.

I have an endometrioma in right ovary in starting I have pain in pelvic during periods but as the treatment going on I m feeling the pain all the time with black discharge, my CA 125 is 54. Doctor suggested go for medication instead of surgery and saying that it is only a cyst don't be panic but I have whole body pain in every joint also.plz suggest me

I’ve been battling hip pain issues for months…never even considered my lady parts could be involved. I had a hysterectomy on Friday and my hip pain is GONE! It’s a miracle! Totally unexpected!

I came to look up a video. See if someone could tell me something. I feel horrible right now. I feel absolutely horrible. I have pain in my left abdomen up to under my rib cage. It feels like someone is stabbing and doing surgery on me. My bladder is hurting so bad. It hurts when I have to use the bathroom. I feel like I’m being punished. I feel miserable.

👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻

Painful sex

I had heard of pain due to endometriosis, on my bladder and pelvic.wall, in.2013 I had a full hysterectomy everything took out, so now we are in 2024 and I am experiencing pain in the lower abdomen from the navel.down to the bladder, as I have no womb or other reproductive organs they don't want to know! Having a lot of pain in the groin going around the hips, and down my legs too, frequent urination, pain I have begun to take oregano oil in the hope it will.releive the inflammation, and any infection? they don't tell you it will.come.back after a hysterectomy they don't tell you or give you anything that's helps, operations.to remove it cause.scar.tissue to build up that also causes.pain, they give you experimental drugs that lead to other problems, if they don't know.what causes it, or how to get rid of it, we are literally being tested on, to see what their new concoction does. Not a.good place to be, and to be told that it was my fault that I had this disease, that I had chosen a career over having children! Well that was a load of crap! I couldn't work or have a career I was in constant pain, and not being abke.to.conceive well that is not down to me is it? Twenty odd years later and nothing has changed women are still being fobbed off and given the run around. If this is indeed a natural occurrence then there ought to be a natural remedy? Somewhere?

I don't believe it's rare. Diagnosed with die endo in the 90's. Fast forward endo in lungs and diaphragm. Specialists feel the same. No walk in the park.

Hi Mam, It’s been 8 months I am suffering from IC and I am under treatment of endometriosis. My quality of life sucks. There is no life. I don’t know what to do. I am on the mercy of NHS.

For my last 3 periods I've had pulmonary embolisms. The first cycle I got 2 in my right lung, the next i got 1 in my left lung, and the most recent i we think i got at least 1 but probably 2 one in each lung. My last period is uncertain because i have stopped going to the er about it (my pcp said it was 9k as long as my O2 sats and heart rate behaved themselves) Edit: It also could be as a result of covid because I had very severe covid recently, and my cycle is so wacky that it could just be a coincidence, but my Dr. (who is amazing and I love him sooo much, he respects and trusts me and he cares about me a lot) and I have noticed the pattern

I wish my dr.s had listened to me before my illnesses got too bad to be treated noninvasively and maybe i wouldn't be disabled and unable to pursue my dreams. This isnt all because of reproductive illnesses but my endometriosis has caused a lot of damage. I appreciate this video and you are so right, i hope this reaches the people who really need to learn and the young girls experiencing pain and not being taken seriously so they dont feel as alone. ❤

you forgot chocolate!!! srsly though wonder if they could prescribe antipsychotix for a few days, 3-5days, it gets so intense sometimes!!! thank you for video, am going to take your advice and get more magnesium, nice one *[=* ,and ginger amor similar for an anti-inflammatory cheers 🙏🏼

Thank you for sharing this. I am going through month 5 of figuring a diagnosis. Back pain flares a few days after period ends, in crying pain. Close to labor back pain oh my. But ultrasound clear they say. Do you have a link to that study profile ?

Can u hv constant vaginal discharge mam or thrush

I have PMDD and my doctor has prescribed me both of these and my insurance has denied both. I'm terrified to try either.

Surgery was the best choice I had to fight for it the doctors told me to live with the pain.

I believe it stems from childhood trauma

Isolation 😢

I learned to not make plans because I began to look flaky cancel last minute on people. They would say stupid things like take Tylenol they have no clue.

Constantly misdiagnosed. Sucks

The doctors cause trauma more than anything in my personal experience.

My admenoysis is the evil twin of endometriosis. I never knew about it until my hysterectomy and oh boy do I wish I had a hysterectomy 14 years ago after my child was born.

Admenyosis and pmdd

Diagnosed with endo and having bowel issues now after having a complete hysterectomy 4 years ago, lower back, hip, left leg and sciatic pain. Had all surgery two weeks ago and it was inconclusive… next is MRI and then going to see if Mayo Clinic here in AZ can help

Helpppp😢😢😢 I shoulda never touched orrillissa 😔

Yeah! Thats not what right it is wrong not to tell someone!

Thank you this has helped me feel less like I’m lazy

Hi, Ive had pain in my right hip for years now and my doctor suspects that I "probably have endometriosis" after going into clinical shock from my period pains several times, but never did any further tests to find out for sure. In the last few years the pain in my hip has gotten a lot worse and it feels like its getting weaker, do you think this could be sciatic nerve endometriosis?

I FEEL YOUUUUUU❤!! I’m so angry and frustrated for you and I am going through the same thing. I wish I could hug you!

Should I cut my daily coffee habits? Could I switch to decaf?

Wow! I can definitely agree that the pain is debilitating! I have faith thus next generation will be the change we need to see 🥲

Is this tiredness lasting the whole month? Or just during period?

😳 Promo'SM

I have so much worse period pain that I cannot even properly walk sometimes it becomes so difficult for me to maintain my posture. Every month it is getting worse and is accompanied with nausea. Even between periods I got so much pain that is getting difficult for me to cope with. I have body aches, my body get numb chest pain