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I've been pshing myself for 40 yrs, not realizing that I have ME. After ruling out many things and not even one dr mentioning it I have diagnosed myself.

How are you doing now?

Locations effect = higher barometric air pressure

The genetic disposition is autism adhd

Do you get a fever when you have it? People describe it like having the flu.

Thank you so much for this video. It unbelievable to most people except the sufferer. I am glad i am not the only one. You have described my problem so eloquently and i wouldn't have been able to do that myself.

I’ve never been the same since living in a moldy condo 💔 and doctors don’t understand it

My father s cfs was his thyroid

Lot of us hav àspergers adhd or combined with hypomobility

Dr Nancy Klimas is a brilliant doctor! My mom got to see her when she was at the University of Miami! She studied my mom’s immune system which was working at 2% !! She had to many B cells that were banging into each other spitting out toxins that were making her sick! With me, I don’t have enough B cells to contact the T cells that something is going on, like the Epstein Bar virus that most likely impaired my immune system. We have 4 parts to our immune system. I have a sub class three compromised immune system. To say my life has changed is an understatement 😔

I am balling my eyes out because I'm feeling exactly how this men is describing the life with ME/CFS. It's been 5 years. I lost everything including my self esteem. I'm alone 24/7, home bounded and most of the time in distress. I litterely went from "Super woman" to "zero woman". Sending a big hug to everyone out there, living with this condition. 🙌✳️

You figured this out 12 years ago. That’s impressive. I’ve been misdiagnosed multiple times for over a decade, & only two weeks ago, realized I have a severe form of this. Thank you for making these. I hope you’re doing well.

Excellent list and description of the symptoms, particularly given the fact that your video is 12 yrs old. Your theory about inflammation in the brain is well established now. You’re a rare breed, Doctor. Thank you. I just wanted to add a few other very common symptoms: - neuromuscular motility disorders in any section, or all of the GI tract (swallowing issues, esophageal spasms, slow emptying of the stomach, etc) - blurred vision …as if there’s a blurry film over the eyes (moisturizing drops are very helpful) - Extreme heat intolerance (or cold intolerance) in a very common - shortness of breath, particularly if talking or during even mild exertion. - chest pain that can present like angina - loss of the ability to talk out loud without triggering other symptoms - can also cause physiologic changes in the SNS branch, manifesting as extreme anxiety, or depression, separate from the natural depression someone with ME/CFS would feel. There’s more, but I think those are pretty common & also extremely debilitating.

Stellar advice and also amazed at the great sound quality when there's clearly wind going on in the shots plus, wonderful pacing and enunciation.

MELATONIN? ONLY BY PRESCRIPTION IN UK.. and VERY DIFFICULT TO CONVINCE DR TO PRESCRIBE IT !!!!!!!!!!

It really does make such a HUGE difference. Location...especially staying away from toxic molds.

I have 98% of all of that. It seriously sucks.

Very insightful video thankyou

I was wondering why I was able to do so many steps per day when I was in South France last year🤯went for swims etc etc. Suspected it had to do with the dry heat

Stachybotrys mold

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I wish this were true....I just got back to Scotland from France and sorry to say symptoms quite similar in both locations.

Anything that affects the vagus nerve, like Hiatus hernia. I'm convinced this has been my problem all along.

How did you straddle the getting back to work part? I'm much improved from my previous utter disability, mainly because of specific supplement protocols. The NHS has been beyond useless and continues to try to brush the countless people suffering under the carpet. But the employment part - having to go to assessments you've agreed to not let anyone down, explain all the lost time and commit to being punctual and productive fills me with absolute dread. As an aside I've recently been told I've got a hiatus hernia after a much delayed gastroscopy. I'm really cross this has come up so late as I believe this is actually a root cause as it restricts the vagus nerve. I'm pretty sure its at the root of a lot of chronic illness. MIght be worth checking.

That's the problem. The health service offer no effective treatment whatsoever and personally you don't know if you're doing right from doing wrong when you try to implement treating yourself.

I've had ten years of this sickness. I improved a lot by implementing a certain protocol of vitamins and amino acids. I can hardly believe how ill I was allowed to become and the complete lack of effective treatment and management offered by the NHS, I have very recently been diagnosed with a hiatal hernia. This has been delayed by ten years because of incompetent and uncaring doctors. But I do believe this is a root cause as it impinges the vagus nerve that governs neurological symptoms, digestion and parasympathetic nervous system. I believe this may be a common cause of the illness.

Every symptom on here

Omg This is so me..... My diagnosis is Fibromyalgia & lupus. Im certain i have CFS. How can i get a proper Diagnosis? Thankyou.

Thank you for your time and energy to post this video. It is very informative for many of us. I hope you are well and you could enjoy the day-to-day life. Blessings.

What happened to him? He has the best talks and advice I've ever come by. I hope he's ok!!

I am late to this content and wish I'd found it earlier. Wondering how you are today. You have articulated what it feels like perfectly. I have not experienced as severe a case as you but it has definitely affected my longevity and life quality has been nil for quite awhile. The worst thing is talking to doctors and being told "but you look pretty strong" and then proceed with a procedure that shouldn't have been handled so roughly and then you crash afterwards again. They see a tiny bit of our life and they judge us by that.

CFS 真是可怕．經過了這麼多年、不知影片中的主人現況如何？

Everything you say are the same conclusions I have reached since having these symptoms for more than 25years.

Very good but telling people to not sleep during the day is not good advice. When your body says sleep, it's best you sleep, and remember that you're not the boss of your body until you are completely well and maybe not even then.

This is possibly the best description of me/cfs I ever heard. I've had this condition for more than 60 years and I feel better knowing that at least one other person knows what a mystery it truly is and how disappointing it is to think you may be over it only to find that you're not.

If you have a diagnosis of myalgic encephalomyelitis, always look for the underlying disease. Lyme disease is very often the cause. The symptoms are similar. I had this diagnosis (CFS/EM) 15 years ago and eventually found out that I actually had Lyme disease and other tick-borne infections transmited by one tick I hadn't seen. This is one of the main causes (not the only one, but the most important to look into). However, be aware that Lyme disease tests are not very reliable. Lyme disease specialists first check for symptoms (some symptoms are particularly typical) and do a blood test as well, but only at the best labs for testing for this disease (Igenex in the US).

If you have a diagnosis of myalgic encephalomyelitis, always look for the underlying disease. Lyme disease is very often the cause. The symptoms are similar. I had this diagnosis (CFS/EM) 15 years ago and eventually found out that I actually had Lyme disease and other tick-borne infections transmited by one tick I hadn't seen. This is one of the main causes (not the only one, but the most important to look into). However, be aware that Lyme disease tests are not very reliable. Lyme disease specialists first check for symptoms (some symptoms are particularly typical) and do a blood test as well, but only at the best labs for testing for this disease (Igenex in the US).

Thank you for all these beautiful souls bearing such suffering. It’s not easy to explain what we’re going through. May will mark 17 years that I have had ME and I keep getting worse. It’s ridiculous that after so many decades of millions of people suffering that at least one treatment would work but we still get ignored and neglected.

10 years passed and doctors still have no clue. Ridiculous.

WHO gave out a paper back in 2009 where they had gone throug all the research on the subject mold/humid and Illness. They stressed the fact about natural ventilation and severe symptoms.. the people that had natural ventilation,, like the ones one the wall and thereby circulation of the air all the time, had milder symptoms or could live better with the sympt. The paper is still out there but was said to not rule after 2014. That IS STRANGE!

I have to use hydrogen peroxide 3,6 or 12% foodgrade to get rid og the toxins or spores . They are exploding on my skin, hair, clothes, kitchen sinc oa. On my skin they give a yeast like smell. Sometimes worse -than -ever- smell I just spray on and leave it for a minute. When I clean off I am completely clean and smell good, aka nothing at all. I live without mold and humid. totally. My washingmachine stays clean as I use Hp 12% in it every time I wash my clothes. I never wash clothes I have used out in the society in the washingmacine. Just by hand outside on the terrasse. Aflatoxins is a great problem in Norway, I was sick/ill everywhere. Here in Catalunya Spain.. I have not been exposed to aflatoxins for some reason.. the high note that makes your head totally spin, pain everywhere and breathing problems. I have not smelled that smell anywhere here. But penicillium.. the damp cellar smell, or hard to tell -smell, just not clean-smell is so many places so is the dead flower smell from stachy botrys. And the smell from the sewer. OMG .. It is too much ...But that smell does not stick to anything luckily. When it is gone it is gone. And then we have the Polyurethane.. it is growing... really.. new building materials, new cars and AC mold spores that react to the toxins in this stuff. hard to get off the clothes... There are so much info on this subject- mold and illness. we need many books and many papers..

Sou ME do Brasil há 10 anos pode por legenda por favor em inglês e spanish please? Sim só quem tem sabe o que é 😞

This is one of the most amazing explanations of Mold illness I've ever heard. Bravo!!!

I turned yellow too!

thankyou so much for doing this video - no one gets it

Thank you for sharing your experiences!

I can relate to this quite a bit. I have a moderate brain injury. There's a saying that I relate to..."A person with a brain injury goes to bed at night feeling as though they've run a marathon, and after 8 hours sleep, they wake up feeling like they've run a marathon." Sometimes I'm so exhausted, my heart just pounds in my chest. Speaking of that, I best get to bed. I wish you a better day tomorrow than you've had in a long while. ❤

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How you now? Thank you for this channel.

Really love the new look! Very well done!