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Thank you

I am very interested in exploring more information regarding this survey. I have been on anything and everything for these debilitating migraines. How do I obtain more information?

I have a consultation with one of your mentors, Bahman Guyuro, just across the border from me in Canada. Just a few hours drive. This sounds like exactly what happened to me after my SAN nerve got hit from a biopsy a few years ago. I am mostly recovered , but I was left with a hypertrophied scm and occipital neuralgia/splenius capitis syndrome on the right side. This is reassuring regarding the nature of my remaining pain. Thank you for your knowledge. If he thinks you are better suited I will potentially use his clinic for a diagnosis and then reach out to your clinic.

How do you differentiate between splenius capitis syndrome and occipital neuralgia? Can both exist simultaneously? I suspect i have compressed nerves in my lesser occipital region. Two nerve block steroid solutions worked great for the last year but my third injection exacerbated the pain dramatically. Two weeks since the injection and still in extreme pain. I'll give the injection one more week but honestly the baseline prior to the injection was more manageable.

Good to know! Looking to travel from Toronto.

I had three steroid nerve blocks, a solution of celestone and marcaine in the last year. First two blocks worked like a charm for my lesser occipital pain. The third recent nerve block exacerbated my pain. Over two weeks and no pain relief yet since the third injection. I regret getting the third nerve block but it pushed me over the edge. Now I am highly suspect of a compressed nerve or nerves. Reaching out to this clinic from Canada.

So glad i just saw your video on nerve ablation. The comments were turned off. And I was about to potentially get it. Reaching out to the clinic soon. How to differentiate between splenius capitis syndrome and occipital neuralgia? Can these conditions overlap and occur simultaneously?

I have chronic neuralgia pain on my right side only. I suffered from an iatrogenic injury to my right SAN nerve over two years ago. I have been diagnosed by a couple of specialists with occipital neuralgia. I suspect I have splenius capitis syndrome as my pain is chronic in that area near the splenius capitis or my SCM. I know the lesser occipital nerve runs through this area and nerve blocks to the lesser occipital region have provided me relief. My third nerve block might have missed the nerve but it was a steroid nerve block (Marcaine and Celestone) and this time it caused me pain for 2 weeks and still going and didnt provide me any relief. Would I be a good candidate for a lesser occipital nerve release?

I have chronic neuralgia pain on my right side only. I suffered from an iatrogenic injury to my right SAN nerve over two years ago. I have been diagnosed by a couple of specialists with occipital neuralgia. I suspect I have splenius capitis syndrome as my pain is chronic in that area near the splenius capitis or my SCM. I know the lesser occipital nerve runs through this area and nerve blocks have provided me relief. Would I be a good candidate for a lesser occipital nerve release?

I certainly understand what you’re saying! Essentially, no matter what you call it - it’s a migraine headache that drs or scientists have decided to categorize it by different medical terms. For purposes of describing this particular disorder, you’re 100% correct. My last diagnosis was occipital neuralgia and I’m seeing Dr. Lisa Grferer in NY this week. After 8 years of suffering from this condition, I’m ready to try surgery and for once get my life back! I don’t like the idea of going under the knife, but I’ve exhausted every conservative and non conservative treatment you can think of, and I’ve had mild improvements. However, not 100% recovery as of yet. I’m back in school studying acupuncture, and I know how to relieve my migraine and occipital nerves, but my goal is to figure out the technique that can possibly minimize this discomfort by at least 80% and gradually work towards the healing of that final stretch in order to prevent surgery. I may not have that formula today, but I’m inspired to figure it out and help many others to not experience the agony and debilitating symptoms of this condition. I completely believe in healing the body to its optimal potential if you have made the decision to heal! Do your research and find your drs whether alternative, conservative or western and all 3 combined if you will. Trust God, and work out the insurance after 😁 it’ll all work it for the goodness of those who trust in Him!

So do you first test for food sensitivities and detox pathways?

Thank you, I am having this done soon Its good to see what it is about first

What do I do then?! Emgality and Tramadol. I have tried everything. Surgery is not an option in my country.

Often and right now. I got woken by a migraine. Botox, doesn't work for me. I've tried EVERYTHING between aspirin and full anesthesia. Now Emgality and Tramadol , Phenergan, Atacand. Hoping for Deep Brain Stimulation pacemaker. Hoping that the research proves that the method works for migraine.

Adam you are the best . I have OA and one branch of my LON has been removed but i still have pain and headache 2 yars after the surgery . Apparently i might still have a problem with this LON or maybe the GON .... I have a painfull triggerpoint in my neck . Can i come to see you and see what can be done ? Thanks .

Do your clinic offer Deep Brain Stimulation for migraine?

Greetings. How much does this operation cost? Thank you from Puerto Rico.🇵🇷 🙏🏼

Does this pertain to occipital nerves in neck?

Love these videos I so wish doctors in the UK did alot more about looking into this! Rather than ignoring it

I wish Dr Lowestein had done my migraine surgery, his support and aftercare is amazing. I have had so much pain after surgery including new trigeminal face pain and my surgeon just doesn’t care.

This was brilliant so in detail I hope to get this surgery one day I have suffered for 11 years wondering if this will also help dizziness

As I’ve been on this journey it seems that insurance companies dictate treatment from least costly to most.

My daughter has severe migraines for past 10 years. She had Botox treatment which worked a couple of times and later had no effect. How do you identify candidates and impacting nerve. Any estimated cost and is it insurance covered?

How are migraines treated post op?

What is padding, is it fat?

Love these videos! Gives people who suffer hope

Hi do you excise the nerves to? I have spoken to alot of people who ended up needing this after decompression came back with pain. Appreciate some help

I think this is what is happening to me. I had an occipital nerve block 4 days ago and I’ve had a migraine for 3 days with nothing helping to stop the pain. Tylenol Advil Sudafed etc. how long will this go on if it’s the irritated nerve from the nerve block that is causing my pain?

I’ve just been diagnosed after 3 years of electrocution to my face in all 3 branches. I’m not presenting with headache at all but Trigeminal pain. Nothing was working in the end even Carbomazepine. I told the Neurologist I get the worst neck pain and sleep with ice as I can’t take it. It reduces the attacks during the night. My sternocleidomastoid muscle swells every time too. I always feel like I can’t drop my left shoulder. I’ve just had an occipital nerve block although I knew it wouldn’t work. To my surprise it’s took it away after two weeks. I can brush my teeth using my electric toothbrush and cleanse my face without attacks. The Neurologist said the Occipital nerve can be trapped and refer pain to the Trigeminal pain. I’ve never felt a pain like this as I feel every bit of the current through my face and it burns. I can’t believe it’s worked and nothing I look up shows this but headaches. I had to be different! 🍃

I’m not sure if I had a stroke or what happened I had Covid three times and I felt my brain swelling down like my neck area. My school plates had moved and overlapped over each other my scalp for a year. I couldn’t really speak right my eyes were glossy, my leg was kind of like dragging it still does, though I used to rollerskate but I mean it’s a lot better now . I’m trying to get back to work. I’m gonna go back to work. It’s been three years. I want to try to get this done. Try to get some sort of a life back. Thank you for posting these videos.

And steroids build and stay in the body forever. Not many doctors disclose that.

I just want to have a rhizotomy done every 5 years in the places where it hurts I'll take the 6 weeks of healing where it hurts worse at first

I have been constantly dizzy for 11 years now after a concussion is this something surgery will help??

I thought i was going to die physically the worst pain etc...never, ever again. I would die first!

Are there ever cases where this may be related to Chiari malformation?

This absolutely makes sense. I have chronic migraines. Thank you for putting out these videos. The more I know, the better informed decisions I can make.

Nerve blocks never gave me any relief. Severe DDD.

I have pain in the front of my neck that started behind my head behind my ear and traveled down my neck to back of head.one side..and to my collarbone. The first neurosurgeon mentioned occipital neuralgia because I would cry when the front and of my neck muscle would spasm. He could actually see it happening. This is all one sided pain..I don’t have migraines. I also developed Allodynia later on under my neck, front of one side of neck and chest. I get a sensation that goes all the way from my occipital nerve behind my ear down my arm into my thumb. I’ve had head mris and Ct scans which show I have issues with c-3 c-4 but I get the feeling that that not really causing this. I’ve seen two neurosurgeons that are stumped. I was offered ACDF surgery if a diagnostic cortisone injection in that area gives me relief. Does this sound like I could have occipital neuralgia?

How do I get this surgery? I’m so tired of living with this pain. I honestly can’t concentrate anymore as it activates the pain

Can this help with dizziness??

Wow thankyou so much for sharing. As a migraine sufferer this is invaluable

Can this help with dizziness?? Vestibular migraine?

I have been dealing with a headache issue for a number of years and I just want to thank you for making these videos. They are so informative and they have helped me have hope for the future. Thank you so much.

Can this treat vestibular migraine?

Thank you for being honest about your recovery!!! I have had 2 decompression surgeries (NOT by Dr. Lowenstein) and experienced that same horrific recovery. Some part of every single day, is spent in bed in the dark w/the terrible pain. I can literally understand your recovery!!

Having patient updates after a full year of recovery would be great! It could be something as simple as they submit a video by phone, or do a FaceTime call with them! That is the true test = seeing how patients do in the long run of recovery. Thanks so much for your info today!

I can empathize w/the patient w/several diagnosis. I have several headache diagnosis also!

I wish there was a way to see these trapped nerves on an MRI. I know the nerve blocks are available

It doesn’t matter if you office is hectic - we just want to hear from you and your valuable information!!

Do you have an update on how this patient is doing now? Would love to hear if the monster pain stayed away!