วีดีโอ

In comparison, I would take Temodar over over Ivosidinib. I’m not a fan of sixty day cycles, with no off days. Ah well, after 14+years of fighting,it’s just another day. Cheers.🤙

Looks like I am roughly 91 miles-according to my map app.

Thank you very much. Belated well wishes to you and your family.

Because of bullying as a kid, I have been training since the late seventies. The martial training helped me get out of a wheelchair, after a mini-stroke during the initial craniotomy.

Yes, I am taking the Ivosidinib(Tibsovo). I had been taking Temodar since 2010, in between radiation and craniotomies.

Thank you for your kind comment. The chemo drains the energy from the very marrow of my bones.

I have always wanted to visit India. My first university degree focused on Asia.

@ReasontoLiveAdventures but I am not from India I'm from Kashmir worldest most beautiful place

My apologies. The chemo and radiation have done a lot of damage to my long term memory. I have one degree in Asian Studies and another in Middle Eastern Studies. These days everything everything gets mixed together, especially now that I am doing another cycle of Ivosidinib.

Hi from Belgium. Do you take the médecine called "vorasidenib" ?

Yes, I am currently taking Ivosidinib(Tibsovo). It’s easier on the body than Temodar used to be.

Thanks Chris. 🤙

@@ReasontoLiveAdventures your welcome bud

Thank you for those kind words. Bruce Lee wrote that one should not pray for an easy life. Instead, pray for the strength to endure a difficult one.

I am doing well. Still on my lifelong quest of enlightenment.🧘‍♂️

I have an X account, but no WhatsApp.

Aye, my family are from this mountain, and winters can be a pain in the arse.🤙

On a long break from chemo, and loving coming out of the chemo “fog”.🤙

@@ReasontoLiveAdventures Right on! 😎

I need to get out and do a long format(30min) video.

@@ReasontoLiveAdventures That'd be sweet!

Thank you for watching.

Thank you, it’s been a fourteen year fight. Mine is a grade 3 oligodendroglioma in the parietal lobe of my brain.

@@ReasontoLiveAdventures I'm so sorry to hear that. My sister has brain cancer, Glioblastoma. It's a rough road for her so I understand your battle somewhat. Prayers for you🙏

Thank you Alan, I appreciate the kind note. It’s been a long strange trip, to borrow from Jerry Garcia, since waking from that coma.🤙🧘‍♂️

Mine is grade three now.it was a 2 for almost thirteen years. Then it got very aggressive. On 03/21/23, I underwent another craniotomy,, which removed most of the tumor.

@@ReasontoLiveAdventures sir my husband have grade 2 oligodendrogloima

@@ReasontoLiveAdventures sir is it serious

I am saddened to read of your husband’s grade 2 oli. It is a difficult diagnosis to accept.

I completely agree. The Osprey is the most comfortable pack I own.

Thank you Alan. One of my daily mantras comes from The Shawshank Redemption. “Get busy living, get busy dying.” It’s literally that simple.

I have studied Asian history and philosophy for most of my life. If I can use that knowledge to help someone, it will bring me contentment.

All give you a big shout out mate on me lakedistrck cave camp mate .

Ah, the Lake District has been on my bucket list for several years. Thank you for the comment.

Thank you very much. I appreciate the kind note.

Thank you very much. 😎🇺🇸

I thank you for your kind note. It’s been a long strange trip, since opening my eyes from the chemically induced coma. I miss the “old me”, but I push forward because Confucius taught that dwelling on the past leads to depression. “Get busy living, get busy dying”, is my mantra these days.

I had to take Temodar for eight and nine months at a time, starting back in 2010. The difference in how I feel is amazing. The Temodar actually mutated a portion of my oli, which is why I am taking the Ivosidenib now.i would definitely ask your doctor about it.

@@ReasontoLiveAdventures thank you for sharing! I did first 6 weeks and now finishing round 3 of 12 of the 5 day on/ 23 day off cycles. Definitely going to ask about it on my next visit.

I am happy that I was able to help. Feel free to reach out anytime you have a question. 🤙

No, not really. I have exercised and followed a pretty good nutrition routine for most of my adult life. Which has helped me recover from the various treatments I have had to do. My study of tai chi chuan and chi gong are two of the major things that have helped more than anything.

Been fighting the oligodendroglioma in my head for almost fourteen years. I was told that I would probably never get out of a wheelchair, and life expectancy was roughly five years. 🤙