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It's definitely tough finding triggers, but it’s useful info to know. Thanks for sharing! 💙

​​@@MissionCurehey pls rply. I have chronic pancreatitis since 14 yrs and i am 31yr old women. From last 1 yr i m diagnosed with epi and 3 month ago when i constantly loosing weight my doctor said it is sibo.. i was 39kg in april this yr .3 month course of antibiotics i am 42 .. in September i am going back for check up..but i am noticing loose stool again..but when taking antibiotics i was constipated everytime..but from some days loose stool..is sibo curable or surgery needed? Is it worse my pancreas? Pls relpy what shout i do?

​@@MissionCureit will be helpful if u guide me.

What do the bile capsules do, or help with?

We're so glad it was helpful!

We're glad you found this webinar informative!

We're sorry to hear about your son's severe EPI. The appropriate dosage of pancreatic enzymes often depends on both age and weight. It’s crucial to work with a pancreatic specialist who can tailor the treatment to your son's specific needs. Here are some resources that might help: PERT Dosing Guidelines: For detailed information on dosing guidelines based on age and weight, please visit our webpage: mission-cure.org/pancreatic-enzyme-replacement-therapy/ Managing EPI: Learn more about managing Exocrine Pancreatic Insufficiency (EPI) here: mission-cure.org/complications-of-chronic-pancreatitis/exocrine-pancreatic-insufficiency/ We highly recommend working closely with a pancreatic specialist to ensure your son gets the right dosage and to monitor his progress. They can provide the best advice and adjustments needed for his condition.

We are glad you found our resource informative!

We're glad to hear that it was caught early!

We're so glad the video and our website have been helpful and reassuring!

For a thorough evaluation of your severe EPI and related symptoms, we recommend consulting with a pancreas specialist or a gastroenterologist who specializes in pancreatic conditions. They can help determine the underlying cause of your pain and gastrointestinal issues. To participate in clinical trials, a detailed diagnosis is typically necessary to assess whether you meet the eligibility criteria. You might find our diagnosis toolkit(mission-cure.org/pancreatitis-diagnosis-toolkit/) and diagnosis webinar (th-cam.com/video/1s0xKVDX8qY/w-d-xo.html) helpful as you seek further evaluation.

​@@MissionCure i have chronic pancreatitis and epi and my weight is constantly decreasing.in april 2024 iwas 39 kg..in 2022 i was 53. my doctor gave ct scan and bllod test that appears normal but have stone and mpd in head. He said i will not intervene it right now.. he said i think u have bacterial overgrowth which is quite common in chronic pancreatitis patients. So he gave me antibiotic (rifagut) and normaxin..and creon 25k three times a day..my epi level is 4..i gained weight in this two month but only 1 kg..can you please help me how can i gain weight and is this a severe problem?

Thank you! We're glad you found this EPI video helpful.💙

Hi there! Exocrine Pancreatic Insufficiency (EPI) can cause vitamin and mineral deficiencies, which may affect your skin and hair, sometimes resulting in conditions like dry skin or eczema. Floating, oily stools are a common symptom of EPI. For testing, it’s best to consult with a specialist rather than relying solely on a general practitioner (GP). They can perform specific tests for EPI, such as a fecal elastase test. Over-the-counter enzymes are often not strong enough. We recommend looking into FDA-approved PERT brands, which you can find on our website: EPI Webpage: mission-cure.org/complications-of-chronic-pancreatitis/exocrine-pancreatic-insufficiency/ PERT Webpage: mission-cure.org/managing-pancreatitis/pancreatic-enzyme-replacement-therapy/ For more detailed information, check out our EPI playlist and our vitamin and mineral deficiency videos: EPI Playlist: th-cam.com/play/PLJXha4Nvx8NJRu03C4kOj3CyoqjvB_Q6u.html&feature=shared Nutrition & Vitamin and Mineral Deficiency Videos: th-cam.com/play/PLJXha4Nvx8NIxUzyrWc8ec0plt44vpMo4.html&feature=shared

We're sorry to hear that the prescribed pancreatic enzymes are causing you discomfort. It's important to address this with your healthcare provider to ensure you get the right treatment without adverse effects. Here are some points to consider: FDA-Approved PERT: Pancreatic Enzyme Replacement Therapy (PERT) is FDA-approved and should be prescribed by a healthcare provider, rather than over-the-counter supplements, to ensure proper dosage and effectiveness. Side Effects: PERT can have side effects, and it’s essential to monitor how your body reacts. Discuss any adverse reactions with your doctor to adjust the treatment as needed. EPI Playlist: We have a playlist with videos that provide insights into managing Exocrine Pancreatic Insufficiency (EPI) and using PERT effectively. You can find it here: th-cam.com/play/PLJXha4Nvx8NJRu03C4kOj3CyoqjvB_Q6u.html&feature=shared Consult a Specialist: Working with a pancreatic specialist can help you find the right fit for your condition and manage any complications. They can provide personalized advice and adjustments to your treatment plan.

Stool test must be a formed stool or it will always come back low.

To test for Exocrine Pancreatic Insufficiency (EPI), it’s best to consult with a doctor. They might recommend a fecal elastase test and possibly a 72-hour fecal fat test. Additionally, blood tests for vitamin deficiencies and imaging studies like CT or MRI scans of the pancreas might be needed. A specialist can help determine if your loose stools are due to EPI or another underlying cause. Sometimes, they may treat it with Pancreatic Enzyme Replacement Therapy (PERT) to observe the response and then order a test on a formed stool. Hope this helps!

Loss of normal pancreatic lobulations isn't specific to autoimmune pancreatitis (AIP). This change can also be seen in other conditions affecting the pancreas, including various types of pancreatitis. A definitive diagnosis should be made by your healthcare provider and a pancreas specialist, who will consider your clinical symptoms, lab results, and imaging studies. If you're in the US, we recommend consulting with one of the experts listed in our autoimmune pancreatitis blog. They can provide more personalized advice and help address your health needs and queries. AIP Blog: mission-cure.org/autoimmune-pancreatitis-symptoms-diagnosis-and-treatment/

There are ongoing developments in the Pancreatic Enzyme Replacement Therapy (PERT) space, with several companies working on creating more efficient and effective products to help manage EPI better.

Hi there! We're sorry to hear about the difficulties you're experiencing. Many patients with chronic pancreatitis face similar challenges. Our holiday tips video provides advice on managing such conditions when you're out in public, which you might find helpful. Additionally, we recommend working with a gastroenterologist to rule out any digestion-related conditions that could be causing the issue. Maintaining a well-balanced diet with a good amount of fiber can also be beneficial. For more detailed tips, please check out our nutrition webinar. Wishing you the best! Holiday Tips Video: instagram.com/reel/C1Hh4iqNaR7/?igsh=MzRlODBiNWFlZA== Nutrition Webinar: th-cam.com/video/iW3OlS1QPg0/w-d-xo.html

There is some research exploring the impact of COVID-19 on various bodily functions, including the pancreas. While there are indications that the virus could affect pancreatic functions, conclusive evidence linking the spike protein specifically to IgG4 production, which is associated with AIP, is still being researched. For a deeper understanding of AIP and its association with IgG4, you may find our video on AIP symptoms, diagnosis, and treatment helpful: mission-cure.org/autoimmune-pancreatitis-symptoms-diagnosis-and-treatment/ Additionally, here are a couple of studies that discuss pancreatic injuries related to COVID-19: www.ncbi.nlm.nih.gov/pmc/articles/PMC9021704/ www.ncbi.nlm.nih.gov/pmc/articles/PMC7118654/ www.mdpi.com/1422-0067/23/2/864 These resources might provide further information that you can discuss with your healthcare provider.

​@@MissionCure is it common to have bacterial overgrowth as a chronic pancreatitis patient.. my epi is 4 and recently i lost 10kg after ct scan of pancreas it seems normal but according to my loosing fat and body mass doctor said may be you have bacterial overgrowth qs symptoms indicate towards it..i am not diabetic..i am taking rifagut400..can it will be difficult to gain weight agai ? Plz explain

And yes i am taking creon 25k 3 times a day only. Pls make a video on it

@@chetnajaiswal75 I benefitted a lot from fasting. It seems counterintuitive when you are losing weight, but it really helped to restore my gut microbiome. After that I started to gain weight and symptoms like bloating disappeared. Now I fast every time I feel it is necessary. I guess that, because of malfunctioning pancreas, bad bacteria (and bacteria in the wrong place in your gut) get a chance to develop. Despite supplementing pancreatic enzymes. Fasting may restore balance. Consult your doctor to see if this might be an option for you.

A healthy lifestyle and good nutrition are definitely factors that will positively influence overall health and well-being, but diseases, including Chronic Pancreatitis, have multiple causes. A progressive disease like CP represents an increased risk of EPI, bone disease, and other possible co-morbidities. For more detailed information about the complications associated with chronic pancreatitis, please visit our resource page: mission-cure.org/complications-of-chronic-pancreatitis/ We highly recommend consulting with a pancreas specialist and assembling a multidisciplinary care team to tailor the treatment to your specific needs.

We're sorry to hear about your struggles with chronic pancreatitis and EPI. For more information, please visit our pages on Exocrine Pancreatic Insufficiency (EPI) [mission-cure.org/complications-of-chronic-pancreatitis/exocrine-pancreatic-insufficiency/ ] and Pancreatic Enzyme Replacement Therapy (PERT) [mission-cure.org/managing-pancreatitis/pancreatic-enzyme-replacement-therapy/ ]. These resources can help you discuss your care more effectively with your doctor. We also recommend exploring the FDA dosage guidelines on the PERT page and watching our videos on EPI management [th-cam.com/video/9Cqn3uSxCRs/w-d-xo.htmlfeature=shared ] to see if your current treatment protocol aligns with recommended practices.

It's important to consult with your healthcare provider or gastroenterologist to find the option that works best for you.

We encourage you to visit our PERT webpage (mission-cure.org/managing-pancreatitis/pancreatic-enzyme-replacement-therapy/ ) to learn more about enzyme therapy options. Currently, there are no FDA-approved vegan enzymes available for treating EPI. It's important to always consult with your healthcare provider or gastroenterologist to explore the most suitable and effective treatment options for your specific condition.

Neither of these projects is in clinical trials, unfortunately, but there is the trial of paricalcitol for chronic pancreatitis, a few other studies, and 2 more recurrent acute and chronic pancreatitis therapy trials starting soon. Check our website, mission-cure.org/clinical-trials-and-strategy/our-cure-strategy/pancreatitis-clinical-trials/.

We're sorry to hear that you’re experiencing stomach pain after taking enzymes. Some patients do report side effects with PERT (Pancreatic Enzyme Replacement Therapy). It’s important to work with your doctor to pinpoint the cause of the pain and see if it's related to your PERT therapy. They might suggest trying different digestive enzymes. You can also find more information on PERT dosage and possible side effects on our PERT webpage: mission-cure.org/managing-pancreatitis/pancreatic-enzyme-replacement-therapy/ Hope you feel better soon!

There is some research exploring the impact of COVID-19 on various bodily functions, including the pancreas. While there are indications that the virus could affect pancreatic functions, conclusive evidence is still being researched.

We are sorry to hear of your symptoms and the diagnosis of EPI. Please visit our webpage where causes and symptoms of CP have been detailed, linked here: mission-cure.org/chronic-pancreatitis/ You can also have a look at our diagnosis webinar and toolkit to help you navigate your conversation with your doctor linked below: Toolkit: mission-cure.org/pancreatitis-diagnosis-toolkit/ Diagnosis webinar: mission-cure.org/pancreatitis-diagnosis/

Thanks for your input. Pancreatitis has various causes, including gallstones. As our expert highlights, there's no one-size-fits-all diet recommendation for all pancreatitis patients. Clinical research evidence suggests a positive relationship between fat content and exacerbation of symptoms in some patients. We always recommend patients work with their doctors and dietitians to find protocols that suit their specific needs, which are multifactorial. You can explore our nutrition webpage for more information on the topic:mission-cure.org/managing-pancreatitis/nutrition-for-chronic-pancreatitis/

Thank you. I'm glad you found it useful. I hope you've subscribed to our channel. Megan