- 161
- 8 730
Lizzie Dunn
United Kingdom
เข้าร่วมเมื่อ 18 ต.ค. 2022
I'm on a self-healing journey with a rare genetic disorder called MEN1 (Multiple Endocrine Neoplasia).
Hi! I'm Lizzie, a MEN1 patient of thirteen years & I've been on a healing journey for the past five of those.
My healing journey began when the news of a third round of pancreatic lesions drove me to explore what I could do for my own health, potentially changing my own MEN1 prognosis. I am now eight years surgery-free, completely symptom-free, (prescription) medication-free & present stable test/scan results.
Here I share weekly videos on the ups & downs of my journey: what's working, not working & everything in between, at all points of the scale from conventional medicine to 'hippy' healing.
I also run the only MEN1-specific podcast. I help open the stage to patients & professionals who want to create a more empowering narrative for this disease.
Join a thriving community via the links below.
Enjoy!
*Personal experience only. No medical advice.*
Hi! I'm Lizzie, a MEN1 patient of thirteen years & I've been on a healing journey for the past five of those.
My healing journey began when the news of a third round of pancreatic lesions drove me to explore what I could do for my own health, potentially changing my own MEN1 prognosis. I am now eight years surgery-free, completely symptom-free, (prescription) medication-free & present stable test/scan results.
Here I share weekly videos on the ups & downs of my journey: what's working, not working & everything in between, at all points of the scale from conventional medicine to 'hippy' healing.
I also run the only MEN1-specific podcast. I help open the stage to patients & professionals who want to create a more empowering narrative for this disease.
Join a thriving community via the links below.
Enjoy!
*Personal experience only. No medical advice.*
(35) Holly Kennard: Courage, Curiosity & Questions in MEN1
A little intro from my lovely guest today...
"Hi, I'm Holly. MEN1 patient recently diagnosed in November 2023. Even though I'm a newbie, I hope that people can find courage to be curious, ask questions and feel empowered in their healthcare."
Some of the topics that Holly & I get to chat about are:
- a diagnosis 'black hole': strange symptoms, uninformed GPs & Dr Google
- managing healthcare: chasing answers, taking control & settling only for the best
- empowering oneself: being curious, asking questions & learning to say 'no'
Does something in Holly's story resonate with yours? Let us know in the comments below!
Take an empowering step & get the next episode straight to your inbox: lizziedunn.ck.page/men1voicesofempowerment
Enjoy!
Lizzie xo
Resources:
Reach out to Holly here: that_girl_holly.25
Maternity and Neonatal Voices Partnerships (MNVPs or MVPs) nationalmaternityvoices.org.uk/
Medical disclaimer: the content in the podcast and on this webpage is not intended to constitute or be a substitute for professional medical advice, diagnosis, or treatment. Never disregard professional medical advice or delay in seeking it because of something you have heard on the podcast or on my social media channels.
"Hi, I'm Holly. MEN1 patient recently diagnosed in November 2023. Even though I'm a newbie, I hope that people can find courage to be curious, ask questions and feel empowered in their healthcare."
Some of the topics that Holly & I get to chat about are:
- a diagnosis 'black hole': strange symptoms, uninformed GPs & Dr Google
- managing healthcare: chasing answers, taking control & settling only for the best
- empowering oneself: being curious, asking questions & learning to say 'no'
Does something in Holly's story resonate with yours? Let us know in the comments below!
Take an empowering step & get the next episode straight to your inbox: lizziedunn.ck.page/men1voicesofempowerment
Enjoy!
Lizzie xo
Resources:
Reach out to Holly here: that_girl_holly.25
Maternity and Neonatal Voices Partnerships (MNVPs or MVPs) nationalmaternityvoices.org.uk/
Medical disclaimer: the content in the podcast and on this webpage is not intended to constitute or be a substitute for professional medical advice, diagnosis, or treatment. Never disregard professional medical advice or delay in seeking it because of something you have heard on the podcast or on my social media channels.
มุมมอง: 6
วีดีโอ
Dietary Requirements or Difficult Guest? (How to manage food, family & friends)
มุมมอง 816 ชั่วโมงที่ผ่านมา
It is NOT EASY to have dietary requirements and eat with other people. The fear of the "difficult / awkward guest" label meant I spent years getting stressed out before gatherings, eating what I didn't want to or not eating at all. Here I share three ways I've approached this problem so that five years later, food with friends & family no longer makes me worry. I hope it helps you too! I go int...
Why London's pollution could affect me but cannot worry me
มุมมอง 1614 วันที่ผ่านมา
A MEN1 patient & close-community member asked me recently: "Lizzie, I'm really interested in knowing how you feel pollution in London might affect you? I feel it's such a big environmental part of what to try and avoid." This video here contains my answer to one of the most obscure and yet most important questions I've been asked on my MEN1 healing journey so far. Register for my weekly email u...
5 Supplements I'd Take to a Desert Island
มุมมอง 19021 วันที่ผ่านมา
Still curious about supplements? I share more with my close community. Click the link to receive weekly email updates, brand new podcast episodes and early access to my events: lizziedunn.ck.page/jointhecommunity Here are the supplements I talk about in the video: 1. Magnesium (Taurate) 2. Probiotic 3. Vitamin D 4. Zinc 5. Fish Oil & Seed Oil (Omegas 3 & 6) *these supplements are not taken dail...
Which supplements do I take daily?
มุมมอง 12หลายเดือนก่อน
Want more support with your own supplement journey alongside MEN1? Join my close community here for exclusive email updates: lizziedunn.ck.page/jointhecommunity Check out the video above & see whether or not supplements could benefit your own gut-health & MEN1 journey. Here are my personal supplement programme details: 1. Antioxidant Treatment (for the delay and possible prevention of cell dama...
Do You Feel Dismissed by Your Doctor? 3 Ways to Change It
มุมมอง 9หลายเดือนก่อน
Have you ever left a consultation feeling like you haven't been seen, listened to or taken seriously? Here are 3 things I did to change that. Now I feel seen, heard & respected by my professionals, always. Enjoy! Lizzie xo BUILD YOUR A-TEAM to help you achieve "remarkable results" (like I did) in MEN1. Join my close community & I'll send you my free MEN1 Teamplate here: lizziedunn.ck.page/joint...
Let me introduce my (medical) A-Team
มุมมอง 82 หลายเดือนก่อน
Can I help you with Step 1: Build your MEN1 A-Team? Design & download your very own MEN1 TeamPlate here (so you're surrounded by only the BEST in your healthcare journey): docs.google.com/forms/d/e/1FAIpQLSe3NLdc71GfkiDHyrfz-rR3jliaZehgO31X-bY7s-S4P1x4dw/viewform?usp=sf_link *This page and any affiliated content is designed to educate and inform, not to provide medical or health advice. Always ...
How to change your MEN1 trajectory
มุมมอง 22 หลายเดือนก่อน
Over the past five years, I've watched my MEN1 symptoms disappear, my blood levels stabilise and my scans come back clear. Yesterday, I shared with my endocrine consultant how I'm doing it and he was fascinated. But it's YOU (the patient) whose long-term health & life you do not leave at the consultation room door. Watch this video and learn how you could start changing the trajectory of your M...
How I'm healing MEN1 (and this might work for you too)
มุมมอง 202 หลายเดือนก่อน
Only five years ago, I assumed there was no other option than for my MEN1 to take a trajectory of repeated surgeries or medicating symptoms, if I was lucky. Five years later: my bone density is increasing, my pancreatic tumours are shrinking & I'm entirely asymptomatic. What's happened in between? In this video, I share the three, pivotal actions I took to put the power of my health back in my ...
3 Ways to Influence MEN1
มุมมอง 133 หลายเดือนก่อน
A genetic disorder can feel super disempowering but did you know that you're not the passenger on this ride? I share three important areas of your health & healthcare that can have a direct link with your MEN1 experience, making YOU the driver of your MEN1 experience. Enjoy this super quick video (and don't forget to like/comment/subscribe/share)! Lizzie xo P.S. I get to share more detail & act...
(33) Tori Burnell: We Don't Find Until We Look
มุมมอง 173 หลายเดือนก่อน
I've been super excited to finally share this podcast episode with you! My guest today is Tori - MEN1 patient, mother & radiographer (based in Maine, USA). The MEN1 gene disorder has been knowingly present in Tori's family for no fewer than five generations, likely making hers among the first in the disease's discovery. Tori explains how watching these older generations manage MEN1 influenced h...
MEN1: How to get out of survival mode
มุมมอง 93 หลายเดือนก่อน
It’s easy as MEN1 patients to feel as though this diagnosis has boxed us within a state of “survival at best.” But did you know, you can still thrive in life as a MEN1 patient? This isn't the way it's painted out for us at diagnosis and we continue believing that we can only ever hope for 'so much.' I'm here to share with you why this isn't true and could be limiting you from a vastly different...
(32) Dr Anitha Raval: Create Your Health
มุมมอง 63 หลายเดือนก่อน
In our episode today, Anitha shares some of the different approaches that have helped her ‘create’ better health for herself; why she’s seen from a professional perspective that these do actually work; and one thing we can all do to make this process - which doesn’t come with a handbook - more easeful & enjoyable. Anitha is one of my favourite guests to have on. As both a Hashimoto’s patient an...
Does diet & lifestyle really make a difference?
มุมมอง 83 หลายเดือนก่อน
Does diet & lifestyle really make a difference?
(31) Teresa Smith: Nurture Your "Self"
มุมมอง 714 หลายเดือนก่อน
(31) Teresa Smith: Nurture Your "Self"
Insist, resist, persist (or... just save your energy?)
มุมมอง 374 หลายเดือนก่อน
Insist, resist, persist (or... just save your energy?)
(30) Jane McCourt: Building Your A-Team
มุมมอง 114 หลายเดือนก่อน
(30) Jane McCourt: Building Your A-Team
MEN1: Symptom & surgery-free - but how?
มุมมอง 125 หลายเดือนก่อน
MEN1: Symptom & surgery-free - but how?
Why your healthcare is a team effort (but you might be shouting from the stands)
มุมมอง 105 หลายเดือนก่อน
Why your healthcare is a team effort (but you might be shouting from the stands)
Always Take a Step Back: Why Intuition Has a Caveat
มุมมอง 115 หลายเดือนก่อน
Always Take a Step Back: Why Intuition Has a Caveat
MEN1: Point of Observation - a Costa Rica Special
มุมมอง 236 หลายเดือนก่อน
MEN1: Point of Observation - a Costa Rica Special
(28) Dr Ruth Casey: Why Medicine Isn't Black & White
มุมมอง 236 หลายเดือนก่อน
(28) Dr Ruth Casey: Why Medicine Isn't Black & White
(27) Neil Stanford: Taking Ownership of MEN1
มุมมอง 257 หลายเดือนก่อน
(27) Neil Stanford: Taking Ownership of MEN1
(26) Hannah Ward: "Don't overthink it."
มุมมอง 677 หลายเดือนก่อน
(26) Hannah Ward: "Don't overthink it."
You are a positive role model for the newly diagnosed. Great work ❤
@scarba I appreciate your kind words & wish you every success on your own journey 🙏🧡
Without that regeneration the diseased cell's would consume themselves to death. I figure the old diseased cell's are doin or eatin whatever they can do to not die.
@johnmccoy1254 cool insight! Thanks for sharing 🙏
Brilliant ❤
@lucajaysmith glad you’ve found it helpful! 🙌🧡
Empowerment through the Healing Journey. . 💪🏻🤍❤️🩹💚💖
Thank you 🙏🏼 why hasn’t this got more views and likes? It is extremely insightful & inspiring . . Very brave women Thank you for sharing your journeys and holistic approach
Chuffed to hear you enjoyed the episode! Was there anything in particular that resonated with you? Please feel free to share this with anyone you think it may help so it can get to the right people for those views & likes you mention ☺🧡
Hello Lizzie, I can see this TH-cam creation date on Oct 18, 2022 This channel content is well. But your videos are not getting views and channel subscribers. Because your videos are not SEO-friendly optimization. I analyzed your channel all videos then found some issues such SEO score being 0% out of 100%. Your channel Video Title, Description, High-Res Thumbnail, video tag, Shared on Facebook, Pinned Comments, End screens, and Hearted Comments are not set up perfectly. So your video doesn't rank on TH-cam search results. As a result when people search for a video then they don't find it. I'm a TH-cam Channel growth manager and TH-cam Video SEO expert. If you want to I can help to fix your channel all problems and grow your channel. If you want to we can work together and grow your channel. I would like to know your opinion.
Thank you for sharing this on facebook. I also have MEN1 and have to decide again about parathyroid surgery.
Thanks for your comment! You are more than welcome. I'm glad you've found the episode helpful :)
Great interview
Thank you Anna! 🙏 glad you like it 😊🧡
Great video, really insightful and inspiring.
Glad you enjoyed it!
Well done son. Proud of you.
Aaww my boy! So proud of you ❤
Thank you Lizzie ❤
Thank YOU Kinga 🧡🙏this will resonate with many, I'm sure xo
“I try and put something in the piggy bank every day”. Love this! What an incredibly inspiring man.
Absolutely 🙌🧡
Hi
Thanks Lizzie
You’re welcome, Liz!
remember if you have a genetic disease, just stop it :)
So you can cure autoimmune disorders with patience and commitment?
Check out the full video here, where I explain in more detail th-cam.com/video/PD9hM3kVcX4/w-d-xo.html