วีดีโอ

Hahaha 🤣 how am I feeling? I’m trying to live day by day as best as possible. Seeing the beauty in life where possible. Movement causes pain, but feeling pain and experiencing pain just by not moving and just being still is funny, right?! Nope! 🤷‍♀️ Distraction, certain physical activity and a positive mindset and just pushing through helps me. Take care Bonita. 😊

Also of note: not only is there no cure, there is no treatment. And it, as my experience has shown, is progressive. It's been 30 years now. I have nothing good to tell you. The last doctor who gave me my diagnosis said simply, "There is no cure. There is no treatment. Learn to live with it."

1:56 In England lidocaine is infused in a vein. Patches are imperfect. Leak channels turn off comments . I believe because they're lying. You have my sympathy paratheshia and AA. is the definition of a full plate plus motherhood. I'm aware people in comments here are basically in your boat from an epidural steroid injection gone wrong. Its true what they're saying. However those shots can bail you out too. #1 Ieak expert on earth says steroid injections can't mitigate leaks. My experience says he's wrong about that . AA protocol says nsaids. Not every day. Pretty sure that's correct. The specific procedures are your's if you want. Just ask.

Hello I have recently been diagnosed with arachnoiditis four months ago by my MRI. I experience severe back pain, leg pain, and temporary paralysis I'm scheduled for a major spinal surgery next week and I scared

Hi Bonita, I have arachnoid it is 50 years . Yea, Fidty years. Now I am facing a Hip replacement.

I am 29 and had L5-S1 Discectomy and laminectomy 4 months ago because the herniated disc was very painful. After completing surgery I have had nothing but complications including a post operative bleed and fluid collection. My neuro surgeon keeps saying i am opioid shopping and nothing is wrong even when the radiologist pointed out that i am developing arachnoiditis.. My neuro surgeon and i have been going back and forth for a few months now and she just does not believe me. I took my images to the university hospital here where the neurologist confirmed that I indeed have arachnoiditis of the arachnoid and the left and right nerve roots. I am so sick of doctors being so conceded and not willing to admit some of the things they do don't work. This is giving me migraines, visual snow, lethargy, nausea, TERRIBLE pain, insomnia ect. I am sorry to hear what you are dealing with.. This healthcare system is a joke

Thank you Bonita for sharing your struggles & being an encouragement to us! ❤

Bless you and your husband. I’m a widow and doing this alone is something I would not wish on my worst enemy. It’s a horrible existence.

I deal with migraines as well. Have since I was a teenager

Good days are definitely a blessing from God. Praise the Lord for that

You're so right about trying to block out the pain. I've had to teach myself over the last several years with my fibromyalgia to try to sleep even though I'm in pain. Even if the pain wakes me up I try to block it out and fall back to sleep. It's been a training and sometimes it works and sometimes it doesn't.

Thank you for making this video Bonita, thank you for talking about chronic pain it is definitely a reality for many of us❤

So sorry. I had a Myelgram last Friday. I have multiple lumbar issues as usual. However there was something new on the report. Chronic Adhesive arachnoidiitis. I’m like what the hell is that. Apparently the leg weakness and bladder issues are being caused by AA. Monday my urologist was ruling out my bladder as the problem. He gets the scope is and what do we see? A blob of bladder cancer. So over two days I find out about my AA and bladder cancer. My brain is swimming. I’m not sure what to worry about first. I have surgery the 28th to remove the tumor. I still haven’t heard from my neurosurgeon about my spine issues. I’m so confused. Take care

Great to hear from you again Bonita. Appreciate your efforts in getting the word out about living with chronic pain.

Do you know if adhesive arachnoditis is a disability.

I have vision problems blurred vision. I have all the stuff you have.

I wake up freaking out from the pain. What should I do?

I take alprazalom. Is that similar to amytripiln. Does gabepentin help you. It doesn't me. 90 milligrams of cymbalto doesn't work for me. It makes me nauseated and stomach pain. I'm cutting back. What's your opinion. Thanks hun

No one cares stop moaning about it now as I said no one cares

I just got diagnosed with arachnoiditis but this chronic pain is since 9 years ago 😢

I HATE the gaslighting and lying they do. They cause this most of the time and blame it on us or just act stupid about it as if they're dumbfounded.

I noticed that when I don’t take omega 3. I hurt. I also take collagen powder daily and use bone broth as well. I’ve heard great things about serrapeptase. Also listening to videos from dr Mandel the motivationaldoc and Dr. Berg has been helpful. Oh yes and I’ve heard fasting works really great as well

I enjoy your videos

Hi Bonita, my name is John. I finally rc’d my AA diagnosis about 9 years ago. I’m trying to collect what meds everyone is on to see if we can’t find any doctors approaching this disease the same way. Dr. Forest Tennant is by far the leading doctor in America regarding AA. Unfortunately, he is now retired but you can find his materials on- line as well as on here. As for vision I have “some” bluriness that I thought was from needing new glasses. I got new glasses but still I go blurry every now and again. Most of my pain is from my diaphragm and below except for the damage being done to my brain from this. Constant overworked and never at rest because it’s processing pain where there’s no injury (like the feeling of a twisted ankle). There’s nothing technically wrong with the ankle it’s the nerves telling the brain pain signals. Two minutes later your ankle is better but then your leg bones feel like they’re being crushed. Mine moves all over and is constant, horrific and I would not wish this on my worst enemy. I am always here to help with questions you may have. Maybe I can answer but I’m trying to collect “victims” of this disease so we can work together to see what works. In Michigan, I have not found one doctor who hasn’t said, “Mr. Thompson I’m sorry but you seem to know more about this disease than we do.” It sucks. As I once read on a med journal “this disease comes with the pain of cancer but without the relief of death.” I know this sucks to hear but if you need answers, help or just someone with AA to talk to I’m available as I’m on disability.

Hi Bonita. Someone in the comments over on the channel "Centsible Living with money mom" just posted a comment that u have videos on chronic pain. I already watch your frugal living videos & am subscribed to u but I had no idea u have done chronic pain videos! I'm so happy I saw the comnent.

Those days when you feel almost normal are very few and far between but it's so nice when they do happen. I'm hoping you're having a great day too. Today was a good day for me as well.

Good morning Bonita. 😊 Thank you. Those “less pain” days are few and far in between, but are extremely appreciated. I hope you have a SUPER day too! Do you feel that caffeine from coffee consumption increases your pain level and affects your sleep? 🌷Sam

I’m so tired……

So basically you're calling it your massager but it's really a cat massager or, LOL😂😉😉

I also have to be careful lifting and pushing and pulling and that type of thing as well. I did a bunch of housework today more than I normally do and I can tell by tonight into tomorrow morning I will be stiff and it will be rough. I have already started with pain in my shoulder down my arm and into my side. I'm trying to learn to Pace myself and just working a room a day as I can plus because we have a dog we need to keep our house vacuumed also because my husband has asthma so we need to keep the dust and dander down so that's something else that I need to do daily. But I have to take a lot of breaks as I know you do as well.

For sure bedtime is my hardest time. All through the night I'm turning from side to side as the pain in my shoulders and in my hips gets to painful and then I need to flip to the other side also a lot of pain in my knees when I sleep as well and even down both my legs.

Everyday is different you're absolutely right about that. Just like with my condition of fibromyalgia literally everyday can bring different pain different injury different anything.

What kinda meds do you take. Help

Chewy is Great! I also will use my Sam's plus membership to get things shipped free. I don't really do delivery mainly because I have an arthritic old dog who acts like a fool. I do get pick up from grocery stores. All saves on my back.

I have spent a lot of money and tried so many medications, endless medical treatments, supplements, exercises, shoes. Some things work sometimes and don’t other times. or don’t work at all. I find for me it depends on the days, the weather, the food I eat, and the stress and how relaxed my body and mind are. It’s very relative. What is a constant factor is my chronic pain. That I can can count on! 😔 Stretches and yoga poses are beneficial to me. Stationary bike and the elliptical machine help me with my severe osteoarthritis and fibromyalgia diagnosis. The list can go on, but why bother. lol 🤷‍♀️ I also depend on a cane for support and to walk. My balance is quite unstable. But I’m not giving up! As I am writing to you now, I have an electric heat massager working on my lower back. I will soon put the massager on my shoulders.and neck. Dizziness also affects me. I tell you it just keeps on giving. 😆 From the tip of my toes to my hairline and everywhere in between, pain is evident and severely felt. I will not give in! Even though, I “hurt too bad to get better”, many , many, many days, I will not give in! Let’s hang in there! I’m hoping that together we can be stronger to fight our pain and to hopefully find a certain amount of comfort and some healing! Thanks Bonita for sharing and talking about this subject of pain. I’ll look into that mat and pillow. 🌷Sam

Benita. Ii am now 74 years. Old and have had Arachnoiditis for 50 yes, 50 years. I have, like yourself, Stenosis. I have had 8 eight surgeries. The AA was caused by a MYLOGRAM DYE. I. Now have a Morphine Pump Implant. Still in bad pain. I did try t two stimulators but, to no avail. I just keep wondering how much more pain would I have if I did not have the Pump. God bless,. From Ireland.❤❤❤😅

I am going into my 5th year of having this. I had a back injection that was no injected properly. The pain I experience is like no other. My activities are very limited but, I do try to push through. Suffering g the next day, week, or weeks afterward. My medications are helpfu. I have a wonderful Dr. In Pittsburgh, PA. He understands this condition and is so caring. We work hard on a combination of meds that would at least remove much of my pain along with a pain psychologist that works along with my doctor. Depression has become a huge part of my life. Trying to accept the new lifestyle I have to live.

I really like your channel. You give me hope. Thanks

I'm tapering down off gabepentin and cymbalta for the same reasons.

Look up Forest tennant. I believe west covina, California. To me he is the only one who understands the condition. He uses a treatment using cortosteriods, certain herbs and some pain medicines when needed. True Arachnoiditis is inflammation of the nerves inside of the spinal canal which can cause pain, burning, numbness, pins and needles in your legs feet and saddle are. Left untreated it can increase to adhesive arachnoiditis which is when the nerves start to stick together. I do not believe surgery could fix or cure arachnoiditis. You need neuro anti-inflammatory medication to suppress the inflammation. Those medications must be able to cross the blood brain barrier. Unfortunately this can be caused by an epidural injection given improperly that they went to far and possibly injected into your spinal canal. The cortosteroid some doctors use is depomedrol. I say some not all. Depomedrol is not intended to be used in the spinal canal area. Depomedrol is supposed to be used in joints such as knees, shoulder. You also should not have had an immediate reaction from the procedure. That is not supposed to happen and is not a great sign. It should be a relatively pain free procedure except when the needle first goes in. I unfortunately had two of these epidural injections given caudally in 2018 and 2019 with depomedrol. The first one was fine the second one i had a reaction but more in my legs, feet, they became extremely stiff and numb and after my lower back was extremely painful. I also felt numbness in my saddle area. Now this is not an easily diagnosed condition. It needs a proper MRI diagnosis. With thst said look up Forest Tennant, west covina California. He is an expert in this particular condition. Dont believe what everyone says. Technically we all have arachnoiditis in our backs its just some people shiw symptoms and others do not. Hope this helps

*Promo SM*

It helps if you have a support team.

Wow you’re are blessed with beautiful children ❤

I've experienced back pain since childhood. Always active and always slender (till menopause added 30 lbs). I looked SO forward to being a glowing, pregnant Mom! I've had 6 (now grown) children and pregnancy was exhausting and non-glowing. I always bruised easily and never healed well from basic scrapes and cuts growing up in the country as an otherwise healthy, active child. I liked running and participated in track. Horrific shin splints every season which were likely stress fractures in high school. Began running again in my late 30"s after baby #6, and lifting weights. I felt Strong and healthy! Except my joints and ligaments weren't loving it. Later my back pain became unbearable...but no doctor could find a reason. Imaging tests showed mild arthritis and there was no "reason" for my extensive, debilitating pain. Have been seeing a rheumatologist since 2012. Finally 2 yrs ago my always "speckled" ANA pattern flagged Positive. I've been diagnosed with MCTD- Mixed Connective Tissue Disease. It Finally explains Everything I've been dealing with my entire life without having an explanation for all this time. I had been on SSRI antidepressants from my PCP...but it was my rheumatologist who suggested switching what I was taking to Cymbalta- that Cymbalta had off-label help for chronic pain. I will 100% attest that it was a game changer when I made that med switch. I'm not magically "healed", but it Greatly lessened the pain and spasms. Side note: I am not a fan of Big Pharma.

Bonita, I do agree with you, on losing weight. Extra weight on us, even a few pounds are excessive and provokes pain and health problems. 🌷Sam

Bonita, hoping your pain decreases with your exercises and movements. Do you find movements in the swimming pool relieves your pain and strengthens you? I find yoga is beneficial. Do you feel certain foods cause you more pain? 🌷Sam

Yes, walking can definitely help with pain

It can be discouraging 😊

I'm so glad that you talked about those different medications that you would not take. I am going to make a folder and put this specific video in it so that in the future if I ever have to make decisions about my nerve pain that I will not do any of the things that you've decided not to do you've been through the trenches with it I really haven't. I pretty much just have gone to the rheumatologist, the primary care physician, the orthopedist, the neurologist, and really all any of them can give me is just pain medication. So you've been through the trenches with this you know things you've tried that have not worked and I would just rather not experiment. I feel like my pain is manageable enough and I have the luxury of being a stay-at-home wife and mother so if I have a day where I feel bad, then I can lay down. Or I can just stay home. Or even limit the amount of times I go out in a week. I know not everyone has that luxury.