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I’m so glad I came across this podcast. I am living with fasd as well. I would love to have a conversation with you about my life growing up as a child and now. You are absolutely right about the lack of information that’s out there. I was born in 1975 and adopted to a wonderful family that traveled the world. But they had no idea the child that they adopted would struggle with FASD. I have managed to graduate high school and go on to become a licensed massage therapist.

We don’t reach people through information; we engage them through emotional resonance. When we bury them in data they get overwhelmed, shut down and avoid. I appreciate Dr Rich and her passion, her student, and would urge shorter emotionally social stories as the way to have bite sized progress with policy makers! We fight smarter, not harder, and touching the heart with the pain and the steps that help provide modelling so others can step up too, in their own ways.

Dear Mem! Very helpful video But, I have watched your TH-cam videos and researched them and I have found some problems due to which your videos are not going viral and your videos are not reaching people they are not finding your videos. So the viewer, subscribes like, comment is not coming in your video. Thank you ❤❤

Patricia, this was an excellent interview with Dr. Brown. I am writing my doctoral dissertation pertaining to FASD, and he is the chairman of my committee. I could not do this without Dr. Brown's support and guidance. He is truly a subject expert and is a wonderful human being. Thank you Patricia and Dr. Brown.

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I'll have to find a way to connect with Robbie. I can talk about my diagnosis, as well as what my son is currently going through in regards to living with fasd. I had a book idea regarding the masks that we wear as neurodivergent people.

Can you refer me to someone who can help my boyfriend who is 59 with AFASD. We live in Western Maryland thankyou

And Patti, your point and Joel’s point, about giving ourselves some measure of kindness, or grace, is important, and we keep learning ALL of our lives. How lovely that their son loves and wants to enjoy his family’s company. ❤

It is entirely common to discover that the further one goes into one’s specialty the less people there who are experts know about other types of brain syndromes. It’s surprising but common. It is unfortunate, however, in that there can be wonderful techniques which emerge and can be adapted given what circuitry/systems are involved. This is a compelling interview.

What a great conversation!

I have heard her name repeatedly in relation to "Embracing Zak". It's nice to hear her. Family dynamic health is a difficult thing.

Beautiful conversation 😊!

Keep doing what you are doing Carl. Great interview! Thank you.

RIP Josh. Your strength showed in your writing & in your art!

Rip Josh.

RIP Josh. You were a beautiful human, friend and brother!

Yes,organicity is ROUTINELY missed. Which is why I was so grateful and so very very fortunate to find Dr. Taylor’s work early in my career and why all the methodologies from TBI were the starting point for the toolkit we developed in Parenting Your Porcupine. I appreciate this conversation about social challenges so very much!

Thank you both Ssmie UK

Thank you for this

Shame, worry, fear, the stress lense, absolutely!!! It is one of the hardest things about living with a medical condition.

I love this interview, and value both your expertise so much because we can’t get to solutions without the fear losing its grip. Stigma versus solutions. Solutions come from 'straight through it' practice, Patti, you are 100% right.

Excellent video

❤ always love listening to Antonia and her wisdom ❤

I'm so frustrated that I have fetal alcohol syndrome

Blessing sent to you from Albuquerque NM

What a sterling conversation….! I would give anything to share with a beloved person but because of the diagnostic term, I cannot make it available to them. I am just so glad others will hear you both and broaden their minds and actions to improve mutual respect around neurodivergence.

Biting my tongue on your behalf. And yes, fawning is painful. And then there we go neurological drives intensity of trauma reflexes. The coping/cower/covering appeasing, is tenuous. Responsibility to fix things I break, to keep track going forward as best one can, and where does the reciprocity underlying social rhythm land? I love what plan A and plan B can offer, Patti. I like that “no more name calling” as in yes, no character assassination. Aggressiveness was unwarranted. Where there is education there is the opportunity for change!!! What a GREAT conversation between two wonderful minds/hearts. Can’t wait to learn more about persistent demand avoidance. That is REAL. But this is everything: it is not personal. The $10,000 incentive is the novelty button that kicks the chain of dopamine into action. It is about the amount of the brain which gets recruited thus causes the fatigue crash after the task!

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the quality of life survey - Lay of the Land - was the opening plenary for the conference

I want to watch the film so bad do you know when it is coming out for the public?

Where I can watch her Movie?

Patti I meant

Kathy do you know the date of the 8 keys for Adults with FASD movie for the public I can’t wait to see it

I can’t wait to see the new Movie

Not just thrown under the bus, but the alcohol industry will do more than the tobacco industry did to suppress awareness and contaminate possible identification and intervention. They actively have since the earliest research, so be ready, they are going to hit hard to keep their industry addicting future generations.

I am thrilled to see all of you, and even more excited that our collective efforts are advancing! I am so encouraged seeing you all! 😂❤❤❤

Donnie, you look gorgeous!

What an enlightening episode! Beautiful, everyone!!!❤

Doing awesome work Patty!

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The FASD Infobus!!! 🎉

Great episode! Melissa is an awesome advocate for people who live with this diagnosis that is so misunderstood

Great interview! Yay Danielle!

Yes….the beauty of candor, integrity….I see that too in you Patricia Kasper…!

I love these podcasts….it is so encouraging …..and validating to see you say things that I saw over the years…..makes me feel like I connected with the families in a good way.

Too old, white, different, same, whatever….yes indeed….😅

😂 what a great conversation. ...such humor....and truth....!!

I'm Josh. Thank you for giving me the opportunity to have this interview.

Awww, thank you!

Great interview.