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National CMV Foundation
United States
เข้าร่วมเมื่อ 30 พ.ย. 2015
Ava's Village CMV Fundraiser 2024
Our CCA Chair, Taylor, hosted her annual fundraiser to support the National CMV Foundation and Ava's ongoing therapies due to congenital CMV. We are so grateful and proud of our volunteers!
มุมมอง: 40
วีดีโอ
NYBERG CMV Interview SEGMENT with Moderna's Dr. Jacqueline Miller
มุมมอง 855 หลายเดือนก่อน
News anchor Ann Nyberg interviews Dr. Jacqueline Miller, Senior Vice President of Therapeutics and Infectious Diseases at Moderna. They discuss the CMV virus and the CMV trial vaccine.
National CMV Foundation 10 Year Anniversary Video
มุมมอง 236 หลายเดือนก่อน
Thank you for your amazing support over the past 10 years. Together, we've made great strides in CMV risk reduction and awareness. Let's continue this journey for another decade and continue to make a positive impact. We value our past achievements and eagerly anticipate future successes with your ongoing support. From awareness campaigns to groundbreaking research, we have worked tirelessly to...
National CMV Foundation -- "Joy of the Season" Virtual Celebration, 2022
มุมมอง 2772 ปีที่แล้ว
Join the National CMV Foundation for our "Joy of the Season" Virtual Celebration, December 16th, 2022 at 7PM EST. We’re highlighting exciting updates from the National CMV Foundation, sharing family stories, enjoying special music, and so much more. Be sure to get your tax-deductible donations in before December 31st. Visit www.nationalcmv.org/get-involved/donate to help us #StopCMV
#Screen4CMV 2021 Awareness Month
มุมมอง 1763 ปีที่แล้ว
Members from National CMV Foundation, CMV Canada, and CMV Action UK describe why newborn CMV screening is critical for the identification and optimization of long-term developmental outcomes in children.
#GivingTuesday2020 Appeal
มุมมอง 934 ปีที่แล้ว
Congenital cytomegalovirus is the #1 viral cause of birth defects in the U.S. Board members, parents and volunteers share their reasons why they give to, and serve with, National CMV. Help us fund meaningful research in 2021 to fuel our mission and propel universal newborn CMV screening forward. Every baby deserves a fighting chance. #stopCMV
CMV Awareness Gap PSA
มุมมอง 5224 ปีที่แล้ว
Congenital cytomegalovirus (CMV or CMVirus) is the most infectious cause of birth defects and the leading cause of non-genetic hearing loss in children in the United States. And 91% of women DON'T know about it. CMV is a global public health issue. Know your risk, ask your doctor about CMV.
CMV COVID19 PSA 2020
มุมมอง 3474 ปีที่แล้ว
With most states under specific quarantine directives due to COVID-19, many are staying home managing young children and their individual needs, loads of school work, a mountain of household tasks, professional career demands, and the emotional or physical strain of caring for loved ones during this time of great uncertainty. While COVID-19 is top of mind, pregnant women should also practice CM...
One Child's Journey Towards Independent Mobility
มุมมอง 4.1K4 ปีที่แล้ว
Gideon has severe cerebral palsy due to a congenital CMV infection. Through the creativity and belief of an occupational therapist, he now has independence through powered mobility. Thank you Dr. Kathleen Muldoon from Midwestern University for sharing your story.
A Day in the Life
มุมมอง 114K5 ปีที่แล้ว
Meet the Hall family. This in-home documentary goes behind the scenes and offers a family's personal account in caring for a child with congenital cytomegalovirus, or CMV or CMVirus. Captured by Rays for Rare. Learn more about CMV at www.nationalcmv.org
:60 CMVirus Pledge PSA
มุมมอง 1.1K5 ปีที่แล้ว
Cytomegalovirus, or CMVirus, the most infectious cause of birth defects and a global public health issue, isn’t on the Recommended Uniform Screening Panel (RUSP). We need to identify every baby so we may offer them diagnosis, treatment and intervention for the best possible developmental outcome. Sign the petition today at Screen4CMV.org Note: The actress is using British Sign Language (BSL).
:30 CMVirus Pledge PSA
มุมมอง 3115 ปีที่แล้ว
Cytomegalovirus, or CMVirus, the most infectious cause of birth defects and a global public health issue, isn’t on the Recommended Uniform Screening Panel (RUSP). We need to identify every baby so we may offer them diagnosis, treatment and intervention for the best possible developmental outcome. Sign the petition today at Screen4CMV.org Note: The actress is using British Sign Language (BSL).
2019 Parent Storytelling, Video Compilation A
มุมมอง 7K5 ปีที่แล้ว
Parents share their pregnancy journeys and personal experiences with congenital cytomegalovirus (CMV).
2019 Parent Storytelling, Video Compilation B
มุมมอง 2.6K5 ปีที่แล้ว
Parents share their pregnancy journeys and personal experiences with congenital cytomegalovirus (CMV).
2018 My Cause, My Cleats with the Tampa Bay Buccaneers
มุมมอง 1676 ปีที่แล้ว
2018 My Cause, My Cleats with the Tampa Bay Buccaneers
2017 My Cause My Cleats with Ali Marpet
มุมมอง 7586 ปีที่แล้ว
2017 My Cause My Cleats with Ali Marpet
CMV Knowledge Vaccine - Dr. Demmler-Harrison
มุมมอง 8347 ปีที่แล้ว
CMV Knowledge Vaccine - Dr. Demmler-Harrison
CMV Ends With Me - Dr. Demmler-Harrison
มุมมอง 11K7 ปีที่แล้ว
CMV Ends With Me - Dr. Demmler-Harrison
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As an adult I tested positive for CMV
Liliana cu daniel lulu luca oleg acasa klara mea urgent acasa klary te bag an puscarie tot restul vieti tale urgent klary acasa fetitele mele acasa urgent hotii de copii stradali fara soarta mincinosi gunoie tupeu de javre cu angela conty emil stoica pata ratu oamenii fara soarta gunoie stradale fraudisti hotii lumii rosu alina oleg daniel lulu luca aurelian vitan Rica relu viorica boros ioan falsilor sarlatani gunoie stradale fata mea acasa urgent klary boros ioan viorica mocian rosu alina
Liliana berchi cu banu Mircea musi fata mea acasă hoții de copii răpitorii Viorica falsa de Kovacs dewiiliams hoții lumii mocieni indentitati furate de la oameni din cluj Napoca hot de copii stradali oamenii fără Soarta escrocii lumii și hoții lumii mocieni
😊🙏🫂🤍💙💕
She is so cute
Ce face tibi conți da r ți am cerut favoare sa ma ajuți 😅😮crezy nebuni ultimii masculi de pe pământ și hoți mânuță de aur de ce a ți plănuit moartea fetei mele da ca face parte Nicu
Frumos va sta ce mi ați făcut din fetitele mele sciopati jmecheri mari 😅fata mea acasă boschetari stradali amărâților de javre ordinare putoare jegoasa de uraturile dracului de poteghera de jeg an pizda nespălate din triteniu de jos sărăntoci cu toată fam moceni Viorica
Nani Boroș Ioan cu mori cine ți a zis sa mi duci fata la fundații cerșetorul de putoare gheule de lica fata mea acasă hoților de șrlatanilor va vine rândul sa plătiți cu pușcăria grea impostori mincinoșilor de parazitiilor
Anna Mihaela 93 din spital furata de Mircea banu Viorica mocian este escroaca lumii și frați taii wiiliams rege fanatic caciosu de lenți Claudiu campean viscri de nebun nr 1 fanatic futuva an creier ma lingăi de cur nani Boroș Ioan diamante și aur puta mica aliens criminali te mare jolt iubirea vieții tale cioara neagra papistocu negru uite ce mi ai făcut din 2 fetite una nu este sănătoasă muriuai an chinuri taganca vrăjitoare de copii răpitorii sunt ți țigani amărâți fraierilor hârtii false copy seroxate de pe gunoi din Cluj hoții de copii răpitorii sunt ți țigani amărâți
Speak to her the same as the other kids she’s not a baby or animal.
🍟🌭😊
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WHAT A BEAUTIFUL GIRL.
Walk. Daelsy Chloe. Jeff
I love how your daughter was next to a guinea pig. I LOVE guinea pigs! I have three. They are so sweet and gentle. They are perfect therapy animals. Is the guinea pig yours or someone else’s?
Ahhhhhhh! I thought the same thing!!! They are sweet gentle little babies.❤❤
А как её зовут
thank you
thank you
THE LITTLE LADY HAD A PIGALICOUS SQUEAK NEXT TO HER AND SHE PETTING THE PIGALICOUS SQUEAK THAT LITTLE PIGALICOUS SQUEAK WAS PROVIDING THE MUCH NEEDED LIFE SAVING THERAPY PETTING TIME
CMV is like a common cold. Most people are exposed to the virus and have antibodies. It can also be passed by cleaning a litter box, person to person, eating undercooked wild meat like Squirrels. It’s devastating and the virus can stay active in the infected person. I am a retired Special Education Teacher. I’ve had kids with very severer physical and Intellectual disability, deafness, inability to walk, crawl, or take care of their daily life skills Pregnant women should avoid people with “colds” wash their hands often while cooking meat…
You and your husband are the real heroes of this world. This video should have millions of views not videos about celebrities and politicians.
Remington 🚗🚓
remingtonBaggs
👍👍👍👍👍
Gorgeous young lady needs a more supportive wheelchair.
That's why you should wash everything
Such a sweet angel. Mom your the best. Write a book to help people understand and what to do. Your wonderful💕👍🙏
Minnesota becomes first state to screen newborns for CMV
Minnesota becomes first state to screen newborns for CMV
Minnesota becomes first state to screen newborns for CMV
Minnesota becomes first state to screen newborns for CMV
Hopefully she doesn't rely on social security.
What a wonderful family. You are a great mom. Kira has a beautiful smile. God bless you all.
Prayers and healing AMEN
Prayers aren't going to heal anything. Prevention is the answer.
@@pearlbonnie1369 Prevention is the key but prayer gives hope and strength to families. She will probably never be healed but she can learn and love!
@@cindygarwood109 What is the mechanism by which prayer gives hope and strength? What are you doing when you pray? Are you talking to a god and asking the god to do something, or are you just talking to yourself?
She's very alert & interactive. You're such great parents, giving her everything you can to give her as normal life as possible. She's beautiful with a beautiful smile.
I’d rather be dead then to live like this
@@scottgourley2700 You probably couldn't be saying that crap then. Your mom don't told you if you don't have nothing nice to say better shut the hole off? She should
This little sweetheart is loved and cared for to the highest standard. She isn't left alone in a bed she is stimulated all day. Just because she cant talk or control her body doesn't mean she is unhappy.
Bless u an your family. An from one Momma bear to another. U ARE AMAZING! For all u do for KIRA. Note u aren't alone❤️
As always were is her father
He's in the vidio kissing her when she woke up.
Que irmão carinhoso e tão atencioso com a irmã ❤❤❤
What a great brother she has. You can tell he loves her lots.
I lost my 2nd pregnancy related to CMV. It was advised that I not have any more babies because of the known defects with it. I was waiting for my period to come so I could get a tubal but I got pregnant instead. No CMV issues but I know I skirted the odds.
I tested positive my first pregnancy and although they suspected my son had it he tested negative at 1 week old !! I also went on to have another son 7 years later ! I was informed that it’s most harmful if u get it during your pregnancy. Please get lots of advice n different opinions!! It did not affect my second pregnancy at all ❤
Also I’m so sorry for your loss 🥺… congratulations on your little one ❤
Love her smile 🐻
I had CMV with my first child. I research it at UCLA, it come to USA during late 60's to 70's. My Dr said you put 100 baby in the nursing, 70% will test with CMV in some form. 1 baby might be affected. My daughter was born healthy, she stayed in the hospital for a extra day of testing to make sure. I am so sorry you had such a bad case!
Why would u put the paci in ur mouth lol stop bein gross lolol
ive had 5 children and ive never heard of this! ty for making these videos now i can educate my children about this.
My sister's first baby,.a girl, was born with CMV. She was only about 5 lbs at birth. She, Jennifer, was born with her toes almost touching her leg & her finger's were clinched to her palm. Jennifer was put in leg cast's at less then a day old. She had seizures several times a day & was on phenobarbital. We would have to feed her baby cereal because she didn't have a sucking reflex. That sweet little girl was in & out of the hospital her whole life. When Jennifer was almost 2 my sister had another baby girl. When my second niece was 4 months they made the difficult disison to let Jennifer pass on. My sister was holding her in the hospital when the ventilator was shut off. Jennifer was layed to rest just after Thanksgiving 1987. This is such a devastating disease, I agree that all women should be tested. Our family had never heard of CMV until Jennifer was born. I'm sorry this post is so long, but I haven't ever seen another family dealing with this. God Bless you to any family that has to deal with this. 💖 🙏🌈
I’m so sorry to hear your story! How heartbreaking 😢
How is she doing now 3 years later?
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What a Special Mommy! God Bless you and your Family ! Very Inspiring. xo
My special needs daughter is deaf and developmentally delayed. She has a controlled seizure disorder. She takes Depakote that causes chronic constipation. After being on many different drugs, many all at the same time, her doctor asked if I had heard of Smooth Move Tea? I had not. Found it and now she only needs 2 or 3 cups a day and No Other Constipation Meds. We have been on this regime for 5 or 6 years now. The tea is Senna which is one of the meds she was taking, but somehow the warm tea works when the senna liquid we were using alone and with many other products was not helping much. The tea can be found at Amazon, Target, regular grocery stores and Walmart. It has taken one burden off my shoulders. I still track bowel movements but I am not as worried about fluid intake behind all the different syrups, powders, yogurt, etc. Thought it might be something you could try for your child. My adopted child, Laney is 36 going on 3 and deaf. So physically I am somewhere near you in exhaustion. Like you I have learned lots about many things. I feel that we are the same kind of mother, always checking every inch, every motion of our child, often seeing and sensing things others do not see. All I can think to say is "I see you". ~Tina .
Thank-you all of you for sharing