Thanks for your brave & informative videos. Hubs is a brand new patient after an unexpected surgery due to blockage where cancerous tumors were found through a CT scan, and your videos give me inspiration that we can do this together. God is good to help us every step of the way.
I discovered your channel last night. I go back to my surgeon in 3 days. That’s when we will talk more about me getting an ostomy. I think we will be scheduling it then. He has done 2 surgeries on me due to prolapse already. I was very against an ostomy because my mom had rectal cancer and had both ostomies (one then the other) and I didn’t want what she had. Now though I have realized I need it (he has been trying to prepare me for it). After watching you tube videos non stop the past few days I’ve gotten somewhat calmer in some areas but also somewhat more nervous. Thank you for making these videos, they are really helpful and I have learned a lot from you in the past 24 hours
I am so thankful I happened to be scrolling this morning and came across your video!! You are so informative and knowledgeable … thank you so much!! I have subscribed to your channel!!!! I have had 4 surgeries due to diverticular disease ( I am quite a bit older than you .. lol) I’ve had my ileostomy now for almost 1 1/2 years.. this is my second ileostomy, my first surgery I had resulted in a colostomy. My life is so much better since this ileostomy surgery. Definitely gave me much better quality of life!!! I truly am inspired by all you younger ostomates .. I also follow Maggie on Let’s Talk IBD as well as Danielle on Ostomies are Beautiful as well as a few others … all so very helpful and positive!!! I’ve now added you to my list👍 you have covered so many issues I’ve been concerned about and I thank you and will continue to follow you… I will receive notifications whenever you post 😊 Thank you once again! You are a trooper and I admire your courage, knowledge, positivity and inspiration 💗
Hi Patricia! It’s so wonderful to meet you, thank you for joining the GutSquad 😊 I’m sorry you’ve had to endure so many surgeries. I know that diverticular disease can be debilitating and painful. However, I’m thrilled to hear that your ileostomy has given you a better quality of life. Positivity oozes through your words. Hearing stories like yours really helps me feel less alone, as I’m sure it does for all the other ostomates who will read your comment. Thank you for your support and kind words…I’m truly so happy you found this little channel ❤️
Thank you so much for all this great information. I’m having a loop ileostomy placed soon and I’m extremely nervous. This video has helped me out a lot.
Thank you I found the #4 section dry interesting as I am swollen at the stoma placement and f that what you spoke about was exactly what could be wrong with my stoma. I am having my reversal in 4 weeks hope it will hold out. It been like this for 124 days now.
Hi Andrea! I'm so glad you found the information useful. I hope your operation goes swimmingly and that your recovery is swift. At least you have an idea of what the surgery will be like after having your J-pouch, but I'm sure that doesn't quell the nerves. Just know that ostomy operations usually go very well and that complications as severe as what I discussed in this video are relatively rare. As I mentioned, it's vital that you monitor the stoma very carefully after surgery (it's color, shape, size, etc.) and take pictures if anything looks off. As my mom always says--it's the squeaky wheel that gets the oil. Always let your surgeon and/or ostomy nurse know if you have concerns or uncontrolled pain...that's what they're there for. Wishing you the very best. Please let me know how the operation goes!
I am see my surgeon Feb 1 I have a lot health issues I do have gasparitis diabetes I used to wear size 18 I now wear size 4 my problem is I can't poop no matter what laxative they gave me did not work so my Dr said it time to see about surgeon I am in pain and nausea all the time I have had every test I swallowed smart pill it took 100and 22 minutes to pass thru my colon so I am learning a lot from you thank you if you
When I had my ostomy surgery, EVERYONE who saw my stoma was questioning the color. It looked purple-ish, but it was basically kinda like it was a wet scab is how the surgeon explained it. It is very healthy now.
Fortunately all I had was a laparascopic right hemicolectomy last october to remove my ascending colon due to a couple of large polyps that were discovered during a colonoscopy in early january of 2021. Other than developing a post op abdominal abcess I've recovered rather well but am plagued by constant liquid bowel movements as opposed to more solid BM's which is extremely frustrating. Sometimes I'm left thinking I would be better off with a colostomy as I wouldn't have such frequent problems with and worries about going out and being unable to get to the restroom in time in case of such an emergency situation.
Hi Richard, I'm sending you a big virtual hug. I know this seems like a weird analogy, but my experience with getting an ostomy was a lot like how I imagine birth. It's messy, painful, and scary at first...but it opens you up to a far better world. Less urgency, fewer days days spent struggling in the bathroom, and a sense of peace--knowing that some of your control has been restored. Please know that there are so many ostomates out there, including myself, who will be with you throughout your journey with help, support, tips, and a place to rant. Ahead of your operation, I would suggest looking on Facebook at some of the many ostomy forums there. I am a part of Ostomy Buddies, the Real Ostomy Support Group (my personal favorite), and Ostomy Humor for those days when you need a laugh. Feel free to friend me, my name is Cecily Zecca-Naples. Also, consider looking into joining the UOAA at www.ostomy.org/membership/. It's a great organization that can help you get acclimated to the stoma life. Please keep me updated as you approach the big day. Sending love! ❤️
Richard I hope you are doing better! My surgery is in 2 weeks…. Can’t wait! Cecily really takes the fear of the unknown out of the equation on several levels. Thanks Cecily… as always!
@@jillwilson8212 Hello Jill: Good luck with your surgery. You're probably already doing this but I suggest stocking up on supplies such as food, water, things you'll need post surgery such as baby wipes to help with Stoma cleaning and the like. I stocked up pre surgery and I am so glad I did because you'll be uncomfortable for several weeks post surgery, even with medication. If you're not already doing this, I would suggest becoming part of a support group. I did that, and I am so glad I did. Chatting with others who have already gone through the process or even have yet to go through surgery helps with loneliness and isolation, least for me it helped. Good luck to you. I'll say prayers for you. Best, Richard
I know that if I have an ileostomy I will not be able to absorb water, 'B' vitamins or electrolytes. I cannot live like that; my surgeon will soon make a decision and I am praying she says 'Colostomy' because I will not have the other.
Hey Flower Petals, I totally understand your reservations. It's scary to imagine losing the ability to absorb/re-absorb/synthesize certain nutrients after ostomy surgery. However, you'll still be able to absorb water and vital electrolytes (some water and solutes are always re-collected in your small bowel, and the end of the ileum adapts overtime to absorb more than the average person's if your colon is removed). You might struggle a bit with vitamin B12, I know I have, but there are supplements, injections, and medications that can help boost your B12 levels if you fall behind. Just food for thought! Definitely discuss it with your doctor and let me know how it goes!
@@CecilyLivingBeyondtheBag Hi Mrs Cecily. Well that surgeon said Ileostomy so I am seeing another surgeon in 3 months time. Am hoping he says Colostomy. It's insane what the surgeons say: 'Well, we'll disconnect you from your Colon because it is slow, and then we'll give you tablets to slow your small intestine down'. The small intestine and large intestine work in different ways, do different things. Take away the large intestine, you lose that. I saw the video on how you organise your infusions. It's great if that is working for you. I would not want to undertake such a surgery, knowing what is in store. So here is to hoping, for that Colostomy and a better quality of life.
I had my ileostomy.. in June this year 22.. & you will be absolutely fine with it.. nearly all your nutritions are absolutely through your small bowel (small intestine).. so Its OK.. you just need to drink a lot of fluids eg diluted juice.. decaffeinated drink.. not plain water as there is nothing in plain water.. if your worried take some vitamin tablets.. you will be OK please don't worry.. have your operation & enjoy been well x
Thanks for your brave & informative videos. Hubs is a brand new patient after an unexpected surgery due to blockage where cancerous tumors were found through a CT scan, and your videos give me inspiration that we can do this together. God is good to help us every step of the way.
I discovered your channel last night. I go back to my surgeon in 3 days. That’s when we will talk more about me getting an ostomy. I think we will be scheduling it then. He has done 2 surgeries on me due to prolapse already. I was very against an ostomy because my mom had rectal cancer and had both ostomies (one then the other) and I didn’t want what she had. Now though I have realized I need it (he has been trying to prepare me for it). After watching you tube videos non stop the past few days I’ve gotten somewhat calmer in some areas but also somewhat more nervous. Thank you for making these videos, they are really helpful and I have learned a lot from you in the past 24 hours
Hello. How did your appointment go?
Thk u for your post. I am going for am appointment too regarding an illiostomy and I'm petrified. Good luck
I am so thankful I happened to be scrolling this morning and came across your video!! You are so informative and knowledgeable … thank you so much!! I have subscribed to your channel!!!! I have had 4 surgeries due to diverticular disease ( I am quite a bit older than you .. lol) I’ve had my ileostomy now for almost 1 1/2 years.. this is my second ileostomy, my first surgery I had resulted in a colostomy. My life is so much better since this ileostomy surgery. Definitely gave me much better quality of life!!! I truly am inspired by all you younger ostomates .. I also follow Maggie on Let’s Talk IBD as well as Danielle on Ostomies are Beautiful as well as a few others … all so very helpful and positive!!! I’ve now added you to my list👍 you have covered so many issues I’ve been concerned about and I thank you and will continue to follow you… I will receive notifications whenever you post 😊 Thank you once again! You are a trooper and I admire your courage, knowledge, positivity and inspiration 💗
Hi Patricia! It’s so wonderful to meet you, thank you for joining the GutSquad 😊 I’m sorry you’ve had to endure so many surgeries. I know that diverticular disease can be debilitating and painful. However, I’m thrilled to hear that your ileostomy has given you a better quality of life. Positivity oozes through your words. Hearing stories like yours really helps me feel less alone, as I’m sure it does for all the other ostomates who will read your comment. Thank you for your support and kind words…I’m truly so happy you found this little channel ❤️
Thank you so much for all this great information. I’m having a loop ileostomy placed soon and I’m extremely nervous. This video has helped me out a lot.
Thank you I found the #4 section dry interesting as I am swollen at the stoma placement and f that what you spoke about was exactly what could be wrong with my stoma. I am having my reversal in 4 weeks hope it will hold out. It been like this for 124 days now.
Super informative thank you. I have a failed jpouch so I'm get a permanent ileostomy in October.
Hi Andrea! I'm so glad you found the information useful. I hope your operation goes swimmingly and that your recovery is swift. At least you have an idea of what the surgery will be like after having your J-pouch, but I'm sure that doesn't quell the nerves. Just know that ostomy operations usually go very well and that complications as severe as what I discussed in this video are relatively rare. As I mentioned, it's vital that you monitor the stoma very carefully after surgery (it's color, shape, size, etc.) and take pictures if anything looks off. As my mom always says--it's the squeaky wheel that gets the oil. Always let your surgeon and/or ostomy nurse know if you have concerns or uncontrolled pain...that's what they're there for. Wishing you the very best. Please let me know how the operation goes!
Thank you very much thank you for your time and patience
Very interesting I wish I understand my surgery as you I just doing everything by guess and watch videos l8ke yours thank you❤
Thank you! Very helpful!!
Thk u so much. You explain things soo well
How long hospital visit!
I am see my surgeon Feb 1 I have a lot health issues I do have gasparitis diabetes I used to wear size 18 I now wear size 4 my problem is I can't poop no matter what laxative they gave me did not work so my Dr said it time to see about surgeon I am in pain and nausea all the time I have had every test I swallowed smart pill it took 100and 22 minutes to pass thru my colon so I am learning a lot from you thank you if you
I had my operation a week ago does the pipe up your bottom hurt when they come out
Sadly do to my situation I had 0 say as a wheelchair user sucked but managing as I can
When I had my ostomy surgery, EVERYONE who saw my stoma was questioning the color. It looked purple-ish, but it was basically kinda like it was a wet scab is how the surgeon explained it. It is very healthy now.
Fortunately all I had was a laparascopic right hemicolectomy last october to remove my ascending colon due to a couple of large polyps that were discovered during a colonoscopy in early january of 2021. Other than developing a post op abdominal abcess I've recovered rather well but am plagued by constant liquid bowel movements as opposed to more solid BM's which is extremely frustrating.
Sometimes I'm left thinking I would be better off with a colostomy as I wouldn't have such frequent problems with and worries about going out and being unable to get to the restroom in time in case of such an emergency situation.
What type of op do you have for uro stomy
I have surgery in April 2021. I'm very scared, and my spirits are down.
Hi Richard, I'm sending you a big virtual hug. I know this seems like a weird analogy, but my experience with getting an ostomy was a lot like how I imagine birth. It's messy, painful, and scary at first...but it opens you up to a far better world. Less urgency, fewer days days spent struggling in the bathroom, and a sense of peace--knowing that some of your control has been restored. Please know that there are so many ostomates out there, including myself, who will be with you throughout your journey with help, support, tips, and a place to rant. Ahead of your operation, I would suggest looking on Facebook at some of the many ostomy forums there. I am a part of Ostomy Buddies, the Real Ostomy Support Group (my personal favorite), and Ostomy Humor for those days when you need a laugh. Feel free to friend me, my name is Cecily Zecca-Naples. Also, consider looking into joining the UOAA at www.ostomy.org/membership/. It's a great organization that can help you get acclimated to the stoma life. Please keep me updated as you approach the big day. Sending love! ❤️
How you doing now
Richard I hope you are doing better! My surgery is in 2 weeks…. Can’t wait! Cecily really takes the fear of the unknown out of the equation on several levels. Thanks Cecily… as always!
@@jillwilson8212 Hello Jill: Good luck with your surgery. You're probably already doing this but I suggest stocking up on supplies such as food, water, things you'll need post surgery such as baby wipes to help with Stoma cleaning and the like. I stocked up pre surgery and I am so glad I did because you'll be uncomfortable for several weeks post surgery, even with medication. If you're not already doing this, I would suggest becoming part of a support group. I did that, and I am so glad I did. Chatting with others who have already gone through the process or even have yet to go through surgery helps with loneliness and isolation, least for me it helped. Good luck to you. I'll say prayers for you. Best, Richard
@@richardcloer3510 I was told you cannot use baby wipes as they contain oil.
I know that if I have an ileostomy I will not be able to absorb water, 'B' vitamins or electrolytes. I cannot live like that; my surgeon will soon make a decision and I am praying she says 'Colostomy' because I will not have the other.
Hey Flower Petals, I totally understand your reservations. It's scary to imagine losing the ability to absorb/re-absorb/synthesize certain nutrients after ostomy surgery. However, you'll still be able to absorb water and vital electrolytes (some water and solutes are always re-collected in your small bowel, and the end of the ileum adapts overtime to absorb more than the average person's if your colon is removed). You might struggle a bit with vitamin B12, I know I have, but there are supplements, injections, and medications that can help boost your B12 levels if you fall behind. Just food for thought! Definitely discuss it with your doctor and let me know how it goes!
@@CecilyLivingBeyondtheBag Hi Mrs Cecily. Well that surgeon said Ileostomy so I am seeing another surgeon in 3 months time. Am hoping he says Colostomy.
It's insane what the surgeons say: 'Well, we'll disconnect you from your Colon because it is slow, and then we'll give you tablets to slow your small intestine down'.
The small intestine and large intestine work in different ways, do different things. Take away the large intestine, you lose that. I saw the video on how you organise your infusions. It's great if that is working for you. I would not want to undertake such a surgery, knowing what is in store.
So here is to hoping, for that Colostomy and a better quality of life.
I had my ileostomy.. in June this year 22.. & you will be absolutely fine with it.. nearly all your nutritions are absolutely through your small bowel (small intestine).. so Its OK.. you just need to drink a lot of fluids eg diluted juice.. decaffeinated drink.. not plain water as there is nothing in plain water.. if your worried take some vitamin tablets.. you will be OK please don't worry.. have your operation & enjoy been well x
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