Actor Bill Duke Shares His Prostate Cancer Journey With Active Surveillance | PCRI

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  • เผยแพร่เมื่อ 2 ต.ค. 2024

ความคิดเห็น • 31

  • @brianbennett1068
    @brianbennett1068 3 ปีที่แล้ว +10

    please tell us Bill's PSA and Gleason score, otherwise, his testimonial doesn't help us

  • @cooperjdcox49
    @cooperjdcox49 3 ปีที่แล้ว +23

    It would be helpful if the PSA score and history was shared with Gleason score. Three decades is a long time. What were the research keys to his decisions over the years?

  • @roger1uk676
    @roger1uk676 3 ปีที่แล้ว +8

    🙏🙏🙏🙏 This has got to be the best video you have done for someone like me diagnosed 3 monthe ago with small low grade pc! Will you say thanks to dr.scholz and alex for this, you can never know how much this means to me, controlling the stress fear and anxiety is something i am initially having a problem with, but i can watch this over and over again to reassure myself. Thank You!🙏🙏🙏🙏

  • @timwallace5786
    @timwallace5786 3 ปีที่แล้ว +6

    Thanks for sharing that. Yes. Be your own advocate. Educate yourself. Minimize stress in your life. Eat you veggies. Exercise. Walk. Prayers. Meditation. Control the fear . Wim Hof breathing does wonders for that.

  • @terrifictomm
    @terrifictomm 3 ปีที่แล้ว +6

    My urologist has not once discussed treatment options with me. He has just assumed I should have my prostate removed. Norvm has he mentioned likely or even possible side-effects to surgery! Nevermind I'm just 61 and he admitted it is both small and slow growing. Whatever happened to informed consent? He even agreed with me that it's possible I've had this cancer for more than ten years! My PSA has been slowly climbing since around 2009 when I was first informed it was 3/4. I don't remember exactly. It was when it reached 19 this past May that I finally agree to a biopsy, which turned up positive. Hence all the talk of surgery.
    Yet it took me less than an hour searching TH-cam to find Dr. Shotz's videos, as well as many others. Including videos from actual conferences where doctors talk to one another! So we patients get to be flies on the wall, learning the findings from the horse's mouth and hearing what doctors really think! It's great.
    As a result of this information I put myself on a schedule of mega-dosing Vitamin D3 because of the videos I've watched talking about the latest research results.
    The good news? As of last Friday my PSA is 10.3. So a drop of 8.5 points in two months. Not bad!
    BTW, in that two months time, I raised my vitamin D3 blood level, which had been deficient at least since my elevated PSA was detected (my then-primary doctor put me on 2KIU a day. When I was STILL deficient after months, I upped the dose to 6KUI a day, still without raising my blood level much at all) from 30ng/mL to 105ng/mL!! I consider that high normal, which is great!
    So thanks for these videos, doctor! You are not only saving lives you're protecting lives from unnecessary pain and suffering. Thanks.

    • @nancywhite3212
      @nancywhite3212 3 ปีที่แล้ว

      May i ask what your biopsy gleason score was? And were more cores positive than negative? Do you have any other condition that might elevate your PSA? My husband is in the same boat ... or similar. PSA 13.5, gleason 3+4, intermediate risk, exploring treatment now. Where did you read about the vit D effect?

    • @terrifictomm
      @terrifictomm 3 ปีที่แล้ว

      @@nancywhite3212
      My Gleason was 6, which my second opinion doctor said isn't used anymore (I've heard this from no one else). He said the rating now was 1-6 with mine a 1. I had 2 cores, 1 25% the other 30%, which I was told was small. I learned about D3 on TH-cam but first, I think, from an ebook by Jeff T. Bowles, "The Miraculous Results of Extremely High Doses of Vitamin D3". Also there's a book I have but haven't read called, "How Not To Die With True High Dose Vitamin D3 Therapy".
      Without checking first, I'd suggest searching Vitamin D3 and prostate cancer on TH-cam. Good stuff. Very encouraging.

    • @terrifictomm
      @terrifictomm 3 ปีที่แล้ว +1

      @@nancywhite3212
      I also have benign prostate hyperplasia, which can definitely raise PSA. My urologist said my prostate was five times normal for my age. 102mm vs. 20mm.
      Strangely, I sleep through the night.

  • @GogsGagnon
    @GogsGagnon 3 ปีที่แล้ว +7

    Thank you, Mr. Duke, for speaking so openly about your prostate cancer diagnosis. Your video will help a lot of men and their loved ones.

  • @jamesvezina9886
    @jamesvezina9886 7 หลายเดือนก่อน +1

    Always get tested & catch it early I was dx in 2023 high Gleason 7 had ADT & IMRT radiation My psa 1month ago is 0 Still in remission while ADT wears off & will keep monitoring I am age 69 in Chicago IL

  • @24hourgmtchannel64
    @24hourgmtchannel64 3 ปีที่แล้ว +3

    Thank you for this. I wish I wasn't in Illinois as Dr. Mark Scholz, MD seems like a dream doctor to have on your side and Bill Duke is a amazing actor. Just a bit of clarification as the time seems a bit off. Was Bill diagnosed in 1994 at age 53? Or was it 20 years ago from the date of the video as Dr. Scholz states? Bill has been very lucky to go this amount of time without the need of treatment. I read that something like 50% originally diagnosed Gleason 6 will be elevated sometime to require treatment. I also cannot fault anyone who decides on a RP right away with G6 because it does become a phycological wait game as Ben Stiller pointed out all be it that he had been diagnosed with a intermediate stage "It came down to did I want to have a great sex life or did I want to live ?" I also read one posters experience where he was G6, nothing seen on the 3T MP MRI and decided on RP surgery based on a couple of factors including his brother and a friend who where taken off AS due to progression within 2 years. After surgical removal of the gland, the tumor was identified as being on the very edge of the prostate and nearly breaking its capsule. Again, it seems logical that no two outcomes will be the same.

  • @texascommtech637
    @texascommtech637 3 ปีที่แล้ว +4

    I like Bill Duke. Have always thought him a terrific actor and I intend to try to re-watch some of his videos. I am 68 next month and have intermediate risk prostate cancer. I've had a biopsy, bone scan, whole body scan, a first appointment with a radiation doctor, and waiting to have a shot to stop my testosterone. After watching numerous videos, I am probably going to decline the shot because I know I can't/won't go lift weights, etc. I am already 68; we ALL die. Why live out the rest of what life I might have with fatigue, depression, enlarged breasts, mood swings, etc. Besides, my wife is gorgeous and a great woman; she deserves better than this. She will hopefully get scooped up by a good man; a man with money, a sensitive, kind, loving man who would comfort her and be good to her. I'm not afraid of death; either God loves me or He doesn't. Surely I have not been so evil as to deserve anything but a better life than this, cause much of this has sucked.

  • @raymundjagan47
    @raymundjagan47 3 ปีที่แล้ว +3

    Awesome interview! The information on being a partner in your care, getting informed and deciding is so important. Thank you Bill for addressing the fear that arises. And the humanity of Dr Scholz and Bill is so reassuring.

  • @markbrown5117
    @markbrown5117 3 ปีที่แล้ว +1

    GReat video and points made Sir Duke.

  • @tootsrr1
    @tootsrr1 3 ปีที่แล้ว +1

    Since 2010 l know what it's like the highs and lows he feels it's a journey of living with it

  • @mikemir121
    @mikemir121 3 ปีที่แล้ว +4

    Just like the deer frozen with the car headlight, I got so scared that I failed to make rational decisions about which treatment to pursue. It's true. It is very scary. It's sad not having any support for thousands of new patients every year while most doctors do not present enough information.

    • @phitness2429
      @phitness2429 3 ปีที่แล้ว +1

      I found the current Urologist is adament on Biopsy, biopsy, biopsy! I persued an MRI MYSELF first then a biopsy. Gleason score 6 with grade 1 which is LOW RISK. Now he says, remove prostate, remove prostate. I think hes a HACK!!!!!!!!!!! im doing research on my own. MONITOR at this stage with and GOOD DIET. Praise be to God!!!!!!!!!!!!!!

    • @hocstix
      @hocstix 3 ปีที่แล้ว

      Phil Ness, one day in not to distant future you will have to remove Prostate. It will only get worse over time. To prevent spread outside the Prostate do it now. Do not go for focal treatments either - they are localized leaving most of Prostate open to cancer. Speaking from personal experience my own and other people I have takes to who have come down with Prostate cancer and have been on active surveillance etc.

  • @tomslick2058
    @tomslick2058 2 ปีที่แล้ว +1

    Yes do your research. My initial urologist said surgery is the the gold standard. A second opinion said slamming his hand on the table damn it the cures rates with radiation are the same and he said he's a surgeon and likes taking prostates out. I will give credit to both who said don't worry about the radiologist ratings a biopsy could very well come back not cancer. But these doctors are super busy. They don't want to explain much until biopsys are done.I ended finding a third urologist who did the perineal biopsy. The other two did not do that procedure. But also the internet can scare alot of people. So be careful on what sites you go on. I do like the idea of catching significant cancer early and do seeding. It seems like a no brainer. There's also a laser focal treatment that looks promising. But it has not been around long enough for long term study results and insurance does not pay for it. Guys get the yearly psa.

  • @ejphoto
    @ejphoto 3 ปีที่แล้ว +1

    With my PSA and PI-RAD being as high as they are my biopsy is just a formality. Its just a matter of how far gone is my cancer.

  • @yourluxxuryautoconcierge1303
    @yourluxxuryautoconcierge1303 ปีที่แล้ว +1

    I initially clicked-on to see brother Bill's interview. But, uhhhh, who's the good-lookin' girl, though???

  • @markbrown5117
    @markbrown5117 3 ปีที่แล้ว +3

    Roswell Park in Buffalo, N.Y. is a terrible place if you have prostate cancer. I called and requested to speak to an oncologist about receiving radiation treatments. They had me meet with a surgeon who proceeded to yell and bully me to have robotic surgery this summer (2021). He was so rude I was going to write a letter to the CE0. I really was upset but I feel so much better understanding radiation vs surgery as discussed by Dr. Mark Scholz. Thank you so much.

    • @billyp9205
      @billyp9205 3 ปีที่แล้ว +1

      don't be bullied. I had radiation 20 years ago.

  • @phitness2429
    @phitness2429 3 ปีที่แล้ว +1

    We ALL LOVE you Mr. Duke!!!!!!!!!!!!!!!!!!

  • @jb66young
    @jb66young 3 ปีที่แล้ว +2

    Thanks for sharing

  • @24hourgmtchannel64
    @24hourgmtchannel64 3 ปีที่แล้ว

    My other question what what was Bill Gleason number or was his biopsy just HGPIN or ASPA?

  • @michaelrichmond3315
    @michaelrichmond3315 3 ปีที่แล้ว

    Great video makes me feel better as I am waiting for biopsy results. What was his Gleason score? Has his psa been going up? Thanks a million

  • @jimh3595
    @jimh3595 ปีที่แล้ว

    This was not useful.

  • @phitness2429
    @phitness2429 3 ปีที่แล้ว +1

    Can we get some names of the top people he talked to?