It's nice to see when someone else stays home to conserve energy like what you talked about. It's REALLY hard to take good care of myself by not pushing myself too much, because I feel like I'm missing out, I'm grieving not being in better health, and other people don't understand what it's like. Thank you for sharing!
YES x 10000!! I think about this literally everyday, and it can be hard to realize that most of my peers don't have to deal with this. Overtime it has become a bit easier to not let FOMO bring me down too too much. It took me SO long to feel a bit better about it, though it's still really hard. ❤️
When the pandemic made more things available virtually I had to reframe how I referred to things. For things like your class instead of saying I watched the class online, I say I attended class virtually. It's a little shift but it really makes a world of difference to me. I am still attending and doing the work. I simply don't spend my limited energy traveling to attend in person.
If you’re comfortable, I’d be interested in hearing what accommodations you have worked out with your school’s disability services. It’s hard to balance what is worth using, I feel like I lose out on a lot of valuable in class discussion by doing things online and/or taking absences
I love how you showed in this that things can be harder and just different for chronically ill students in higher education, but still doable. I start my senior year of college as a costuming student next week, and I’ve been so worried about going back and working on everybody’s senior thesis films and just dealing with the heavier course load with my current level of pain and fatigue. This kind of gave the solidarity and reassurance that I needed that, yes, some days it’s gonna be hard, but I can still do it. :)
I’m a High school student who wants to pursue costuming, but I’ve had a recent unexplained illness that has made even going to school tough. I’d hate to bother you, but do you have any tips that helped you on your education journey??
I don't have EDS, but ME/CFS and POTS and I'm currently thinking about going back to uni. Honestly, I could've watched you for another 2 hours. This was so informative and inspiring, so please, please, please do more of those videos
I just met with a genetic counsellor today for the first time and she was amazing! Now that I've seen what genetic counsellors do, I think you're going to be fantastic at it!!
Hi Izzy! Since I've started having negative symptoms from my EDS I've had to drop quite a few classes due to fatigue. It's encouraging to see you still pursuing education (AND a Master's!) in combination with combating chronic illness. Thanks for being so positive and open about your struggles because it really helps me to relate.
Your videos make me feel so much less alone. I’m a grad student in Tennessee a year into doing a masters in International Affairs/Political Science, and as isolating as zoom classes were, they were so helpful for my chronic pain. Starting school again was such a big adjustment physically and emotionally. Migraines and fatigue have been the biggest battle. Going to sleep early (taking sleep aids if necessary), once a month massages, sumatriptan rx, keeping up with even just a little PT consistently, resting when need be, and telling my professors about EDS, chronic pain, fatigue and migraines and them allowing late work have been the most helpful things. I bring my cane on days I need some extra support. I literally just bought a rolling backpack too because walking on campus with books is no joke! I wish you all the best in this journey, and also to anyone else with chronic illness pursuing a degree.
It's so hard for me to be okay with staying home/not going out when I need to conserve energy! I get the worst FOMO but I know it needs to be done so that I can function. Thanks for showing that it's a valid and "ok" thing to do :)
It's definitely still hard for me to deal with the FOMO, but it has definitely gotten better than it was. I don't think it'll ever be easy, but I know I'm doing what I really need to do
Please do more videos like this! I’m also trying to get into grad school for genetic counseling but I also really enjoy seeing your perspective of going through school with chronic illness. I learn a lot about both aspects. :)
i really enjoyed this video! i don't have EDS but i do have another chronic illness + it's really nice to see someone in a similar situation to me doing grad school - i want to go to med school so it's really cool to see that it is actually possible to do a rigorous course with long-term medical conditions.
Congrats on starting grad school! It’s so nice to see grad school content from someone with a chronic illness (and my chronic illnesses especially), it makes me feel seen (and I’m so glad that I don’t have classes for my PhD!) I know the feeling of struggling to address individual issues with EDS, it feels like it’s all for nothing coz it’ll just hurt anyway (and so many people in the community tend to lean into the feeling) but actually addressing my joints has made such a difference to my quality of life! Hope the MRI and doc can help with your neck!
It really gives me hope to see this. I truly think i have hEDS and POTS/dysautonomia and i had to go thru medical withdrawal from college and a general failure to thrive to realize it. I got late diagnosed w audhd and CPTSD and assumed that was the answer to everything but i think hEDS might be the root of my chronic fatigue and your channel makes me feel more confident about going and getting help!
It’s so inspiring to see you going after your dream while managing your chronic pain! I know that I’ve had to adjust my life goals because of brain fog and memory loss alone.
I have neurocardiogenic syncope (which is also a form of dysautonomia like POTS is) and I live in Florida and I love it here but the weather does trigger my symptoms really badly a lot of days. Especially around, like, 3 PM walking to class will make me have a presyncopal episode which doesn't really mean I'm going to pass out but sure does feel a lot like dying lolol. I just found your channel and I'm definitely sticking around since I'm chronically ill and working on applying to grad school right now! I'm so scared of the idea of moving to a new environment and how that could hurt my symptoms, how not having enough humidity could make me forget to drink enough water, and how demanding grad school is when I feel like I am always in an energy deficit to begin with. So thank you! And hope you're having a good health week this week!
Dude you have to talk to me more about this 'Masters with chronic pain' shit I feel so ... frail and incapable of getting a master's because of POTS, chronic fatigue+pain, and holy shit the brain fog. You have to tell me what helped you and your experiences. It's so fking inspiring seeing someone talk about this because i feel so helpless and isolated. So thanks and please post moar.
I am starting two in-person classes at my community college at the end of the month! We are doing quarters rather than semesters and I think it will be really good for me. Good luck in your classes guys!!
Izzy, I'm a 35 yo mom of 2 EDSer who went back to school last year. I'd love to see more about your study tools/ devices used. I've got some visual complications so note taking/ review is probably a bit more complicated
I also just started back at school in person in New York! It’s so great seeing someone else with similar concerns adapting and figuring out how to do school successfully with chronic illness. I’ve been trying so hard to navigate feeling included with saving my energy, because I know the semester is only going to get harder. Also THANK YOU for mentioning going places, I’ve had a doctor question why commuting was so hard and I didn’t have an answer for him then but you explained it so well- it’s the walking, the being upright, and no options for lying down. Anyway, so excited to see your journey, hopefully we can run into each other sometime! It would be so great to make more chronically ill friends in NYC, I’m really missing community right now.
Ahhh thank you Izzy! Your videos always make me feel less alone ♡ I'm currently working on my BS in nursing and my fatigue the past week has been so terrible, and my pain was flaring like crazy all day (even now). My clinical rotation got moved of when I'm going in and I'm still not informed on some info so I've definitely been very stressed which has not helped
I don’t have EDS but I’m hypermobile especially with my fingers. Writing has becoming hard for me and prefer to type. Thank you for sharing this week in your life and it’s so interesting to learn about genetic counseling and grad school!
I loved this video especially the way that having chronic illness affects doing school. I have EDS and am about to start my master's and it's a daunting thought after spending a year and a half in online lectures. The thought of all the extra energy I'm going to need to be going into university in person is daunting
how how how do you do this you are incredible I couldn't even fathom an intense course like this my chronic illness make it so hard for me to ever study and retain anything and now in don't know what to do with my life. You are an inspiration. I don't even have the energy to know what my dream is
Seemed so happy on the second day,found computer work effected wrists and Joint pain,going for a walk and meeting students sound good.Glad you met up Feel relaxing will help.
Cool to find someone with chronic pain just like me (mine on my wrist) and dealing with masters which where I will be in a year from now. You have so much energy as an online student and look so happy. Keep up with your great work!!
I am still hoping to see a genetic counsel lot having been diagnosed at 55. I’m a dentist and single mom of five. Keep going but slowwwwwly. Take four years instead of two if u can. BIG HUGS!
If I had learned how to conserve energy when I was in school, it would have been a lot easier. It’s cool to see you working toward something you’re passionate about. All the best!!
I'm sorry to hear you're having an awful time. It can really get so hard sometimes with chronic illness and I'm sure that's especially true in med school ❤️. I'd love to make a video about this!!
Oh man I relate so hard to what you're going through. Somehow undergrad wasn't as difficult for me as grad school was. I lived on campus for both, and I tried to have a part-time job during both when I could but my god just walking across campus to get to class was tough. Sitting through lectures? Awful. And then having to actually do the work for the classes before or after my job, or trying to have a social life? It was just impossible during grad school. I actually lost at least one friend because they just didn't understand (aka they were ableist af comparing me to their friend that "has three jobs, is full time student, and still can hang out) during that time. The friends who matter are still my friends so, y'know. And at this time I just didn't even know, didn't even consider, that my experience wasn't normal. In retrospect it's so obvious, and this is just so validating. Good luck with the rest of the term!
I have seen several of your videos, I have EDS and many more health issues. Something I have learned from my pt, is your pain and response and be from something else. I have heard this prior to today, but with no good understanding. I have severe instability, I was having a bunch of my normal symptoms. Things related to my cervical instability, or my vertebrae. I had a depressed rib, causing all the same symptoms as other instability. People ribs can affect more of the nervous system than expected. I would have never have guessed my. Rib was my cause. I had neurological issues, pots, MCAS attack, and more. I felt like sharing this for you or anyone reading this. The idea of sharing this is that you could have cervical or other pain actually caused by a nerve being irritated. I honestly had no clue that my joints were in place, yet pain signals sent from one area.
Congrats on your first week!!!! So excited you’re doing this !! Def do not feel guilty for not going in when you’re able to do it from home- we only have so many spoons per day and only you know how much you can handle on a given day. Hugs ❤️🦓🦓
I had the same problem with my neck which caused migraines and my neurologist discovered my neck and shoulder joints were to tight and trigger point injections really helped.
Congratulations! It seems like only last week you were waiting on acceptance letters to arrive! Is your neck MRI going to be the upright MRI where they bend your neck in various positions to screen for several EDS-related issues that affect that area?
Thank you!!! I know right?! It was actually just a regular MRI which is really the one I wanted, even though I know it can't really show everything as well when it comes to instability. My doctor has asked me to go to his colleague though to get ultrasound images with my neck in different positions, which will hopefully show the same thing an upright MRI with flexion/extension would
I loved it. I want to make videos about how I conserve my energy working full time and having so much going on. It's not easy, but so glad the pandemic lets me work from home permanently. 🙌🏾 I loved this video and so happy for you and school and being able to save your spoons. Hoping the scans go well and you rock school. Hugs and good vibes your way! Keep up the great work and definitely make more vids to keep us updated on school and life. Thanks Izzy!
Loved this vlog being retired nurse I still love to learn... I would need to find a new way now to retain info previously even with handouts I would go home re write them all and years later can still pull random info out of head however could not sit long enough neither could I manage to write of type all notes.. Where there is a will there will be a way tho. If I can get symptoms under control considering doing a Major and Minor Degree in Psychology and Counselling. I figure I could then work from home and round symptoms. I just got my daughter similar rolling Rucksack to save her back and shoulders she has sewn on patches, buttons, and added pins to jazz it up. Take care and enjoy course :)
I’m an older EDS sufferer and my back is falling apart. I got a diagnosis much later in life unfortunately. Congrats on making it through! I love seeing someone pushing through! I feel like it’s too late for me at 35 since so much joint damage has already been done.
I love this and would love to see more talking about your experiences as a chronically ill person in graduate school since I am planning to go to graduate school in a few years and have gotten great ideas for helping myself out from your videos
Such a great video and perfect timing, I start my masters in occupational therapy next week. I’ve been quite apprehensive but it really helps knowing I’m not the only one going through this. Would love to see more videos on chronic illness study tips! It would be great to hear how much you have disclosed your chronic illness to the university and the lecturers, if you felt comfortable sharing of course. I never know how much to share with new advisors, too little and I can come across as lazy, too much and I could seem incapable. The chronic illness life being complicated as always haha
Oh girly!!!! Wow I just am coming across your channel! What a strong woman you are for having to go through all these things!!! God Bless you!!! Anyways, about your neck I am trying to get into physical therapy school next year so I have to study all that nerve stuff etc and Im sure you studied plenty yourself already as well; Do you have any sharp pain or anything with your neck? With the tightness I feel that for sure could be the case like you said and I would recommend to go to a physical therapist to help you get rid of the pain there for good. I did an internship with a PT place this past summer and we had A LOT of cervical patients. I feel you just need some stretching, neck exercises, and I know u may have other issues for this but if u can ice/heat. GOOD LUCK!!!! :)
Kinda nice that there is some else out there that also feel the need to lay down because of neck pain, knee, back... Always felt so bad about it, haven't got the diagnose yet, but pretty sure I also have Ehlers Danlos. No body in my family understand why I can not stant up for too long...
Hi Izzy! Absolutely loved this video ❤️. I’m applying to GC school this year and it’s awesome to see these week in the life at school videos. Hope you’re doing well!
Ps. I’m on propanalol and midodrine and salt stick help me quite a lot. My thermostat is shot too I feel you extremes of temperature in the weather especially when it changes rapidly really effects me badly.
I also have hEDS and POTS and I tried trigger point injections recently. While it felt amazing for about 2-3 days, unfortunately it cost like $200 for two shots even after my really good insurance covered a hefty portion of them. It just wasn't worth the cost benefit analysis for me. Hope they work better for you though!
I just read an article put out by Mount Sinai about thiamine deficiency. It mentions gastroparesis, POTS, and some other conditions. If you’ve not seen this yet, you really should check it out.
As someone who plans to go to college in person in a couple years(I currently do online homeschool), I really appreciate this video. I was just thinking about school with chronic illness earlier today because I want to do a tour of one of the schools I’m interested in and I’m currently trying to figure out how to navigate that.
It's awesome that you're looking into it to figure out the best way for you! Something that really helped me was taking summer classes (especially at an easier school when possible). This way I could take one less class per year or per semester, and it really made a difference. Best of luck to you!!!
I love this style of video, Izzy. Please keep it coming. It’s nice to see how you pace your energy. As a fellow zebra, I really struggle with that sometimes. ❤️
Hi Izzy 🥰 how far do you live from the school? Can you decide when to go according to your fatigue and pain level of the day? Lots of love from a spoonie in Denmark 🥰
Being outside in Texas is hot especially since I’m dealing with random dizzy spells which have been undiagnosed and the heat makes my gp worse I get nauseous. If I’m not sipping on something very cold I can’t stay outside . That’s why I attend class only once a week in person
i'm looking forward to seeing your vids doing school w your chronic illnesses! i have pots & am not ready to go back to school , but I can't wait to get back to it :')
Can you please make video on how to manage pain and live life. It’s not easy and which doctors you see if possible coz most doc say it’s hypermobiity syndrome and Eds is a fad and it’s so discouraging
@@IzzyKDNA definitely such a good way for you to work! have great aspirations for you. You’ll smash this. Super proud of all you achieve as a fellow EDS’er, with pots, Gastroparesis et al. Not meaning to be patronising in any way though. ♥️
Thanks for sharing this!!! I want to study nursing and I have a chronic illness as you have (I have dystonia) I thought that I was crazy because I want to be a nurse whit a chronic illness but I know that I'm not haha it is difficult but not impossible!
Hey! Cool video! I’m actually looking into applying for the genetic counseling program next year! Do you have the option to virtually watch all of the lectures on your own time instead of physically going to class? Also, do they offer options for dual masters for example if I also wanted to get a masters in public health? Thanks!!
Still trying to figure out my neck issues but trigger point injections and occipital nerve block saved my life and helped with pain. Hope you figure it out. I have EDS and made it thru grad school. It's tough but doable!
I totally love your videos! I wanted to be a genetist (first doctor, then genetist), but I think that the residence is totally hard for me. I have a can, and I think that I won't be able to survive this 😂
Hey!! I just came across your YT! Idk how severe your Eds/ pots is, but I’ve only gotten diagnosed and started getting help this year. I also have chronic fatigue from it I think. But also, my brain doesn’t seem to work the way it used to. How is it you were able to survive med school?? I’d like to one day go back and switch careers and go into medicine but I’m so so scared.
I got into the MSBS program at ISMMS for Fall 2022. I was hoping I could talk to you regarding the college, faculty, housing, etc. I would love to get in touch with you!
4:21 I noticed that you have an update to do. Please, don't hold off on them. I hope you'll continue to like your school as much as you seemed to in this video.
I’m currently a high school jr and becoming a genetic counselor is my dream job! I know many people take bio as their major in their first four years of college, but what was your major? I am interested in other majors I could take in the event that if I don’t get accepted into a genetic counseling masters program that I could still find a great job with a 4 year degree with that major. Thanks!
Can you please guide me to getting diagnosed? I am so embarrassed about my symptoms. I finally feel justified, I am desperate for a real diagnosis. Your symptoms mirror mine. I call the heat-cold issue that don't have a thermometer or I'm temperature sensitive. I get super short of breath being in the heat! Ugh!
I'm sorry to hear you're going through this! I know it can be so hard to figure out what's going on. If you think you might be dealing with EDS, here are some videos I think would be helpful in figuring out what to do. :) th-cam.com/video/AvYv2aAStg8/w-d-xo.html th-cam.com/video/zflMSj25DWk/w-d-xo.html th-cam.com/video/km17oL6i94s/w-d-xo.html th-cam.com/video/JZhRaGuwYm4/w-d-xo.html
I am just curious as to what tablet you use when you mentioned doing small notes, I am going back to school for phlebotomy and think it could come in handy
I have hEDS and am a premed student hoping to go into genetic counseling as well. I appreciate you posting about your life with chronic illness in higher ed and being transparent about how hard it is because it makes me feel like it's less of an unknown and not so impossible. Thank you! I look forward to more of your vlogs ♡ Good luck in your classes!
When I was getting my associates, my health took a turn for the worse and making it through was so tough. All my work would be done last minute since I had to spend a lot of my down time relaxing
@@IzzyKDNA I saw my doctor today and will be seeing a rheumatologist! Thank you for your videos, I would've never heard of this syndrome. You may be popular in my area cause when I mentioned I was watching videos, she said I was the second person this week to come in.
Is a geneticist and a genetic counselor the same thing?? Now that I am diagnosed with EDS I have a referral to see a geneticist to find out which type I have.
This is cool. I was wondering what to expect from that masters/graduate programme. But I'm wondering why a genetic counseling degree doesn't start with an extensive genetics course. That's what I would expect and do. You're becoming a counselor for genetic stuff so you should be able to know the genetics plays in physiology and anatomy as well as human development. I'm curious to see how this is going to progress. I love studying the medical field and am currently trying to find a graduation project in my field (biomedical engineering). I hope I'll find something that totally fits me like this degree seems to do for you. Good luck :D
I also get the energy thing. With my previous degrees I never had the option to stay home and online lectures until covid happened and it turned out that wasn't the best thing form ASD brain. When my head is tired and overstimulated I can't get to do anything no matter how much pent up energy there is in the rest of my body. And it usually takes days to more than a week to recover from. I've definitely had to say no to things I wanted to do in the past because I was too tired. I've also stayed home so I would be able to actually do school stuff as well.
Do your lecturers know about your illnesses? Do you have any special considerations or anything? Would love to hear about that. I’m a PhD student with hEDS and no one really takes my problems seriously so I just don’t really talk about it.
Is there any good hospitals in New York for gastroparesis and ehlers danlos? As I will be getting married to a gentleman there in New York, Don't know what part.
When you participate in your classes online are they live or are they something that you can watch at your own pace? Great video and again congratulations on school. I hope that you graduate and can land a great job as a genetic counselor?
Hey! I just looked and I can't find a tag or anything that says where it's from. I got it back when I was in the 8th grade hahaha so i dont remember, but i almost feel like I MIGHT have gotten it from Pbteen? But that could be totally wrong!
Hey! I just found your channel and as a 20 year old with POTS, I Love it !!! I was wondering , where did you do your undergraduate? And what did you study?! I would love to know especially because I am interested in a career in Public Health. If I win the Zoom Giveaway with you I’d love to talk more about your academic journey, but I’d appreciate a comment response too! 😂❤️
It's nice to see when someone else stays home to conserve energy like what you talked about. It's REALLY hard to take good care of myself by not pushing myself too much, because I feel like I'm missing out, I'm grieving not being in better health, and other people don't understand what it's like. Thank you for sharing!
YES x 10000!! I think about this literally everyday, and it can be hard to realize that most of my peers don't have to deal with this. Overtime it has become a bit easier to not let FOMO bring me down too too much. It took me SO long to feel a bit better about it, though it's still really hard. ❤️
When the pandemic made more things available virtually I had to reframe how I referred to things. For things like your class instead of saying I watched the class online, I say I attended class virtually. It's a little shift but it really makes a world of difference to me. I am still attending and doing the work. I simply don't spend my limited energy traveling to attend in person.
If you’re comfortable, I’d be interested in hearing what accommodations you have worked out with your school’s disability services. It’s hard to balance what is worth using, I feel like I lose out on a lot of valuable in class discussion by doing things online and/or taking absences
I love how you showed in this that things can be harder and just different for chronically ill students in higher education, but still doable. I start my senior year of college as a costuming student next week, and I’ve been so worried about going back and working on everybody’s senior thesis films and just dealing with the heavier course load with my current level of pain and fatigue. This kind of gave the solidarity and reassurance that I needed that, yes, some days it’s gonna be hard, but I can still do it. :)
I'm so glad we can go through this kind of together hahaha. You've got this, even though there will be some hard days. ❤️
I’m a High school student who wants to pursue costuming, but I’ve had a recent unexplained illness that has made even going to school tough. I’d hate to bother you, but do you have any tips that helped you on your education journey??
I don't have EDS, but ME/CFS and POTS and I'm currently thinking about going back to uni. Honestly, I could've watched you for another 2 hours. This was so informative and inspiring, so please, please, please do more of those videos
I just met with a genetic counsellor today for the first time and she was amazing! Now that I've seen what genetic counsellors do, I think you're going to be fantastic at it!!
That's awesome that you had a great appointment!! And thank you so much! 😍😍
Hi Izzy! Since I've started having negative symptoms from my EDS I've had to drop quite a few classes due to fatigue. It's encouraging to see you still pursuing education (AND a Master's!) in combination with combating chronic illness. Thanks for being so positive and open about your struggles because it really helps me to relate.
Your videos make me feel so much less alone. I’m a grad student in Tennessee a year into doing a masters in International Affairs/Political Science, and as isolating as zoom classes were, they were so helpful for my chronic pain. Starting school again was such a big adjustment physically and emotionally. Migraines and fatigue have been the biggest battle. Going to sleep early (taking sleep aids if necessary), once a month massages, sumatriptan rx, keeping up with even just a little PT consistently, resting when need be, and telling my professors about EDS, chronic pain, fatigue and migraines and them allowing late work have been the most helpful things. I bring my cane on days I need some extra support. I literally just bought a rolling backpack too because walking on campus with books is no joke! I wish you all the best in this journey, and also to anyone else with chronic illness pursuing a degree.
It's so hard for me to be okay with staying home/not going out when I need to conserve energy! I get the worst FOMO but I know it needs to be done so that I can function. Thanks for showing that it's a valid and "ok" thing to do :)
It's definitely still hard for me to deal with the FOMO, but it has definitely gotten better than it was. I don't think it'll ever be easy, but I know I'm doing what I really need to do
I'm going to uni next year, and it's nice to see an accurate depiction of chronic illness in school! I hope to be a genetic counsellor too. :)
Ahhh good luck with university!!! 🥰🥰
Please do more videos like this! I’m also trying to get into grad school for genetic counseling but I also really enjoy seeing your perspective of going through school with chronic illness. I learn a lot about both aspects. :)
i really enjoyed this video! i don't have EDS but i do have another chronic illness + it's really nice to see someone in a similar situation to me doing grad school - i want to go to med school so it's really cool to see that it is actually possible to do a rigorous course with long-term medical conditions.
Congrats on starting grad school! It’s so nice to see grad school content from someone with a chronic illness (and my chronic illnesses especially), it makes me feel seen (and I’m so glad that I don’t have classes for my PhD!) I know the feeling of struggling to address individual issues with EDS, it feels like it’s all for nothing coz it’ll just hurt anyway (and so many people in the community tend to lean into the feeling) but actually addressing my joints has made such a difference to my quality of life! Hope the MRI and doc can help with your neck!
Thank you so much! And it's awesome to hear you're also in grad school while dealing with chronic illness! 😍 We've got this!
It really gives me hope to see this. I truly think i have hEDS and POTS/dysautonomia and i had to go thru medical withdrawal from college and a general failure to thrive to realize it. I got late diagnosed w audhd and CPTSD and assumed that was the answer to everything but i think hEDS might be the root of my chronic fatigue and your channel makes me feel more confident about going and getting help!
It’s so inspiring to see you going after your dream while managing your chronic pain! I know that I’ve had to adjust my life goals because of brain fog and memory loss alone.
I have neurocardiogenic syncope (which is also a form of dysautonomia like POTS is) and I live in Florida and I love it here but the weather does trigger my symptoms really badly a lot of days. Especially around, like, 3 PM walking to class will make me have a presyncopal episode which doesn't really mean I'm going to pass out but sure does feel a lot like dying lolol. I just found your channel and I'm definitely sticking around since I'm chronically ill and working on applying to grad school right now! I'm so scared of the idea of moving to a new environment and how that could hurt my symptoms, how not having enough humidity could make me forget to drink enough water, and how demanding grad school is when I feel like I am always in an energy deficit to begin with. So thank you! And hope you're having a good health week this week!
Dude you have to talk to me more about this 'Masters with chronic pain' shit
I feel so ... frail and incapable of getting a master's because of POTS, chronic fatigue+pain, and holy shit the brain fog. You have to tell me what helped you and your experiences. It's so fking inspiring seeing someone talk about this because i feel so helpless and isolated.
So thanks and please post moar.
I needed this. Getting through college with fibromyalgia it’s very challenging. I am still determined to complete my education.
I am starting two in-person classes at my community college at the end of the month! We are doing quarters rather than semesters and I think it will be really good for me. Good luck in your classes guys!!
Ahh that's so awesome!! Good luck to you too!!!
Wishing you the best
Izzy, I'm a 35 yo mom of 2 EDSer who went back to school last year. I'd love to see more about your study tools/ devices used. I've got some visual complications so note taking/ review is probably a bit more complicated
Such a great video idea! I'll definitely do this soon!
I also just started back at school in person in New York! It’s so great seeing someone else with similar concerns adapting and figuring out how to do school successfully with chronic illness. I’ve been trying so hard to navigate feeling included with saving my energy, because I know the semester is only going to get harder. Also THANK YOU for mentioning going places, I’ve had a doctor question why commuting was so hard and I didn’t have an answer for him then but you explained it so well- it’s the walking, the being upright, and no options for lying down.
Anyway, so excited to see your journey, hopefully we can run into each other sometime! It would be so great to make more chronically ill friends in NYC, I’m really missing community right now.
Ahhh thank you Izzy! Your videos always make me feel less alone ♡ I'm currently working on my BS in nursing and my fatigue the past week has been so terrible, and my pain was flaring like crazy all day (even now). My clinical rotation got moved of when I'm going in and I'm still not informed on some info so I've definitely been very stressed which has not helped
I don’t have EDS but I’m hypermobile especially with my fingers. Writing has becoming hard for me and prefer to type. Thank you for sharing this week in your life and it’s so interesting to learn about genetic counseling and grad school!
🥰🥰
I loved this video especially the way that having chronic illness affects doing school. I have EDS and am about to start my master's and it's a daunting thought after spending a year and a half in online lectures. The thought of all the extra energy I'm going to need to be going into university in person is daunting
how how how do you do this you are incredible I couldn't even fathom an intense course like this my chronic illness make it so hard for me to ever study and retain anything and now in don't know what to do with my life. You are an inspiration. I don't even have the energy to know what my dream is
Seemed so happy on the second day,found computer work effected wrists and
Joint pain,going for a walk and meeting students sound good.Glad you met up
Feel relaxing will help.
Cool to find someone with chronic pain just like me (mine on my wrist) and dealing with masters which where I will be in a year from now. You have so much energy as an online student and look so happy. Keep up with your great work!!
I am still hoping to see a genetic counsel lot having been diagnosed at 55. I’m a dentist and single mom of five. Keep going but slowwwwwly. Take four years instead of two if u can. BIG HUGS!
If I had learned how to conserve energy when I was in school, it would have been a lot easier. It’s cool to see you working toward something you’re passionate about. All the best!!
Im in med school and having an awfull time trying to manage eds and pots. Id love to know how are you able to study with ci :)
I'm sorry to hear you're having an awful time. It can really get so hard sometimes with chronic illness and I'm sure that's especially true in med school ❤️. I'd love to make a video about this!!
I’m a dentist with hEDS and dysautonomia and mast cell stuff. Keep going. Pace yourself
Oh man I relate so hard to what you're going through. Somehow undergrad wasn't as difficult for me as grad school was. I lived on campus for both, and I tried to have a part-time job during both when I could but my god just walking across campus to get to class was tough. Sitting through lectures? Awful. And then having to actually do the work for the classes before or after my job, or trying to have a social life? It was just impossible during grad school. I actually lost at least one friend because they just didn't understand (aka they were ableist af comparing me to their friend that "has three jobs, is full time student, and still can hang out) during that time. The friends who matter are still my friends so, y'know. And at this time I just didn't even know, didn't even consider, that my experience wasn't normal. In retrospect it's so obvious, and this is just so validating. Good luck with the rest of the term!
Best wishes as you pursue your Master's Degree! I hope you're able to find out what's happening with the neck pain soon.
Thank you so much!
I have seen several of your videos, I have EDS and many more health issues. Something I have learned from my pt, is your pain and response and be from something else. I have heard this prior to today, but with no good understanding. I have severe instability, I was having a bunch of my normal symptoms. Things related to my cervical instability, or my vertebrae. I had a depressed rib, causing all the same symptoms as other instability. People ribs can affect more of the nervous system than expected. I would have never have guessed my. Rib was my cause. I had neurological issues, pots, MCAS attack, and more. I felt like sharing this for you or anyone reading this. The idea of sharing this is that you could have cervical or other pain actually caused by a nerve being irritated. I honestly had no clue that my joints were in place, yet pain signals sent from one area.
Congrats on your first week!!!! So excited you’re doing this !! Def do not feel guilty for not going in when you’re able to do it from home- we only have so many spoons per day and only you know how much you can handle on a given day. Hugs ❤️🦓🦓
I'm blind from mito disease, have EDS and am doing my premed in Alaska right now.
Yay that's so awesome that you're doing premed!! All the best to you 🥰
This is very relatable, I work, go to college in ny, and I feel the pain and fatigue. Also I love your cat.
I had the same problem with my neck which caused migraines and my neurologist discovered my neck and shoulder joints were to tight and trigger point injections really helped.
Congratulations! It seems like only last week you were waiting on acceptance letters to arrive!
Is your neck MRI going to be the upright MRI where they bend your neck in various positions to screen for several EDS-related issues that affect that area?
Thank you!!! I know right?! It was actually just a regular MRI which is really the one I wanted, even though I know it can't really show everything as well when it comes to instability. My doctor has asked me to go to his colleague though to get ultrasound images with my neck in different positions, which will hopefully show the same thing an upright MRI with flexion/extension would
Amazing! good luck you can do it. May take more time with limitations and pain but I think your profession and goals are great!
I loved it. I want to make videos about how I conserve my energy working full time and having so much going on. It's not easy, but so glad the pandemic lets me work from home permanently. 🙌🏾
I loved this video and so happy for you and school and being able to save your spoons. Hoping the scans go well and you rock school. Hugs and good vibes your way! Keep up the great work and definitely make more vids to keep us updated on school and life. Thanks Izzy!
Congrats and good luck with the semester! I'm finally having in-person classes for my MPH in a few weeks and I'm so excited!
Thank you so much! and ahhh that's so exciting that you're going to be in-person for the first time. I hope it's fun and enjoyable in person :)
Loved this vlog being retired nurse I still love to learn... I would need to find a new way now to retain info previously even with handouts I would go home re write them all and years later can still pull random info out of head however could not sit long enough neither could I manage to write of type all notes.. Where there is a will there will be a way tho.
If I can get symptoms under control considering doing a Major and Minor Degree in Psychology and Counselling.
I figure I could then work from home and round symptoms.
I just got my daughter similar rolling Rucksack to save her back and shoulders she has sewn on patches, buttons, and added pins to jazz it up.
Take care and enjoy course :)
I’m an older EDS sufferer and my back is falling apart. I got a diagnosis much later in life unfortunately. Congrats on making it through! I love seeing someone pushing through! I feel like it’s too late for me at 35 since so much joint damage has already been done.
I love this and would love to see more talking about your experiences as a chronically ill person in graduate school since I am planning to go to graduate school in a few years and have gotten great ideas for helping myself out from your videos
Such a great video and perfect timing, I start my masters in occupational therapy next week. I’ve been quite apprehensive but it really helps knowing I’m not the only one going through this. Would love to see more videos on chronic illness study tips! It would be great to hear how much you have disclosed your chronic illness to the university and the lecturers, if you felt comfortable sharing of course. I never know how much to share with new advisors, too little and I can come across as lazy, too much and I could seem incapable. The chronic illness life being complicated as always haha
Oh girly!!!! Wow I just am coming across your channel! What a strong woman you are for having to go through all these things!!! God Bless you!!!
Anyways, about your neck I am trying to get into physical therapy school next year so I have to study all that nerve stuff etc and Im sure you studied plenty yourself already as well; Do you have any sharp pain or anything with your neck?
With the tightness I feel that for sure could be the case like you said and I would recommend to go to a physical therapist to help you get rid of the pain there for good. I did an internship with a PT place this past summer and we had A LOT of cervical patients. I feel you just need some stretching, neck exercises, and I know u may have other issues for this but if u can ice/heat. GOOD LUCK!!!! :)
You have inspired me to go into genetic counseling I am applying this year😍
Ah I'm so glad!!!! Good luck to you!!!
Wow I am as well fingers crossed 🤞🏾 for us !💙 good luck
@@silkence9561 omg good luck 😍
Kinda nice that there is some else out there that also feel the need to lay down because of neck pain, knee, back... Always felt so bad about it, haven't got the diagnose yet, but pretty sure I also have Ehlers Danlos. No body in my family understand why I can not stant up for too long...
Not for neck pain (for thoracic on mine) but trigger point injections were so game changing for me!
Yay! That's so good to hear! I hope it helps for me :)
Hi Izzy! Absolutely loved this video ❤️. I’m applying to GC school this year and it’s awesome to see these week in the life at school videos. Hope you’re doing well!
Wishing you all the best ❤️
Happy new year Izzy! May your year be fillled with blessings, joy and celebration xxxxxxxxxxxx
L'shana Tova, Penny!!!
Ps. I’m on propanalol and midodrine and salt stick help me quite a lot. My thermostat is shot too I feel you extremes of temperature in the weather especially when it changes rapidly really effects me badly.
I also have hEDS and POTS and I tried trigger point injections recently. While it felt amazing for about 2-3 days, unfortunately it cost like $200 for two shots even after my really good insurance covered a hefty portion of them. It just wasn't worth the cost benefit analysis for me. Hope they work better for you though!
looking forward to the next 1
thank you! It's in the works!
I just read an article put out by Mount Sinai about thiamine deficiency. It mentions gastroparesis, POTS, and some other conditions. If you’ve not seen this yet, you really should check it out.
As someone who plans to go to college in person in a couple years(I currently do online homeschool), I really appreciate this video. I was just thinking about school with chronic illness earlier today because I want to do a tour of one of the schools I’m interested in and I’m currently trying to figure out how to navigate that.
It's awesome that you're looking into it to figure out the best way for you! Something that really helped me was taking summer classes (especially at an easier school when possible). This way I could take one less class per year or per semester, and it really made a difference. Best of luck to you!!!
@@IzzyKDNA thanks for the suggestion, I’ll definitely look into it. And thank you! I hope you’re able to have a great time for the rest of college. 😊
Proud of ya!
I love this style of video, Izzy. Please keep it coming. It’s nice to see how you pace your energy. As a fellow zebra, I really struggle with that sometimes. ❤️
Hi Izzy 🥰 how far do you live from the school? Can you decide when to go according to your fatigue and pain level of the day? Lots of love from a spoonie in Denmark 🥰
Being outside in Texas is hot especially since I’m dealing with random dizzy spells which have been undiagnosed and the heat makes my gp worse I get nauseous. If I’m not sipping on something very cold I can’t stay outside . That’s why I attend class only once a week in person
i'm looking forward to seeing your vids doing school w your chronic illnesses! i have pots & am not ready to go back to school , but I can't wait to get back to it :')
Loved the video!! Thanks for sharing! 🥰
Can you please make video on how to manage pain and live life. It’s not easy and which doctors you see if possible coz most doc say it’s hypermobiity syndrome and Eds is a fad and it’s so discouraging
Super cool they do the lectures online! You got this Izzy! ♥️♥️
It's so helpful!
@@IzzyKDNA definitely such a good way for you to work! have great aspirations for you. You’ll smash this. Super proud of all you achieve as a fellow EDS’er, with pots, Gastroparesis et al. Not meaning to be patronising in any way though. ♥️
I was wondering how you were doing last week. All the zebras are rooting for you! 🦓🦓🦓
Thank you so much!!! 🥰🥰
Thanks for sharing this!!! I want to study nursing and I have a chronic illness as you have (I have dystonia) I thought that I was crazy because I want to be a nurse whit a chronic illness but I know that I'm not haha it is difficult but not impossible!
Hey! Cool video! I’m actually looking into applying for the genetic counseling program next year! Do you have the option to virtually watch all of the lectures on your own time instead of physically going to class? Also, do they offer options for dual masters for example if I also wanted to get a masters in public health?
Thanks!!
I thought about doing a masters there, but chose another program. I’m considering even further education and would love to be in NYC for it!
I love this so much
What's wrong with a rolling backpack? I used one for years when I had to commute to my job.
Still trying to figure out my neck issues but trigger point injections and occipital nerve block saved my life and helped with pain. Hope you figure it out. I have EDS and made it thru grad school. It's tough but doable!
😘
Congrats on your first week! I just started my second week of GC school as well. Love watching your videos :)
Thank you! And ahhh no way! Which school are you at???
I totally love your videos! I wanted to be a genetist (first doctor, then genetist), but I think that the residence is totally hard for me. I have a can, and I think that I won't be able to survive this 😂
Hey!! I just came across your YT! Idk how severe your Eds/ pots is, but I’ve only gotten diagnosed and started getting help this year. I also have chronic fatigue from it I think. But also, my brain doesn’t seem to work the way it used to. How is it you were able to survive med school?? I’d like to one day go back and switch careers and go into medicine but I’m so so scared.
Good video...great editing
Thank you!!
I'm not even this early for my online classes haha
😂
I got into the MSBS program at ISMMS for Fall 2022. I was hoping I could talk to you regarding the college, faculty, housing, etc. I would love to get in touch with you!
I loved the style of this video!
I’m so glad!!
4:21 I noticed that you have an update to do. Please, don't hold off on them.
I hope you'll continue to like your school as much as you seemed to in this video.
I’m currently a high school jr and becoming a genetic counselor is my dream job! I know many people take bio as their major in their first four years of college, but what was your major? I am interested in other majors I could take in the event that if I don’t get accepted into a genetic counseling masters program that I could still find a great job with a 4 year degree with that major. Thanks!
Can you please guide me to getting diagnosed? I am so embarrassed about my symptoms. I finally feel justified, I am desperate for a real diagnosis. Your symptoms mirror mine.
I call the heat-cold issue that don't have a thermometer or I'm temperature sensitive. I get super short of breath being in the heat! Ugh!
I'm sorry to hear you're going through this! I know it can be so hard to figure out what's going on. If you think you might be dealing with EDS, here are some videos I think would be helpful in figuring out what to do. :)
th-cam.com/video/AvYv2aAStg8/w-d-xo.html
th-cam.com/video/zflMSj25DWk/w-d-xo.html
th-cam.com/video/km17oL6i94s/w-d-xo.html
th-cam.com/video/JZhRaGuwYm4/w-d-xo.html
I am just curious as to what tablet you use when you mentioned doing small notes, I am going back to school for phlebotomy and think it could come in handy
This is so relatable! I’m glad I’m not the only one😂😅
Definitely not the only one! We're doing it together! ❤️
I have hEDS and am a premed student hoping to go into genetic counseling as well. I appreciate you posting about your life with chronic illness in higher ed and being transparent about how hard it is because it makes me feel like it's less of an unknown and not so impossible. Thank you! I look forward to more of your vlogs ♡ Good luck in your classes!
It's so cool that you're also interested in genetic counseling. Best of luck to you, Paige! It's hard with chronic illness, but it can be doable :)
Great to see you izzy your beautiful long time no see glad to see you love you izzy awesome video
Thank you! :)
Love this style of video. Best of luck lizzy
Thank you! And I'm so glad you like this style of video. I'll definitely be doing some more then :)
@@IzzyKDNA When I heard about the weight lost I am like WELL that is long gone lol
When I was getting my associates, my health took a turn for the worse and making it through was so tough. All my work would be done last minute since I had to spend a lot of my down time relaxing
I'm sorry to hear it became so difficult. I know when I go through flares, sometimes I have to do the same thing 🧡
@@IzzyKDNA I saw my doctor today and will be seeing a rheumatologist! Thank you for your videos, I would've never heard of this syndrome. You may be popular in my area cause when I mentioned I was watching videos, she said I was the second person this week to come in.
Is a geneticist and a genetic counselor the same thing?? Now that I am diagnosed with EDS I have a referral to see a geneticist to find out which type I have.
This is cool. I was wondering what to expect from that masters/graduate programme. But I'm wondering why a genetic counseling degree doesn't start with an extensive genetics course.
That's what I would expect and do. You're becoming a counselor for genetic stuff so you should be able to know the genetics plays in physiology and anatomy as well as human development.
I'm curious to see how this is going to progress. I love studying the medical field and am currently trying to find a graduation project in my field (biomedical engineering). I hope I'll find something that totally fits me like this degree seems to do for you.
Good luck :D
I also get the energy thing. With my previous degrees I never had the option to stay home and online lectures until covid happened and it turned out that wasn't the best thing form ASD brain. When my head is tired and overstimulated I can't get to do anything no matter how much pent up energy there is in the rest of my body. And it usually takes days to more than a week to recover from. I've definitely had to say no to things I wanted to do in the past because I was too tired. I've also stayed home so I would be able to actually do school stuff as well.
I’ve been told to try trigger point injections too. How did it go
Do your lecturers know about your illnesses? Do you have any special considerations or anything? Would love to hear about that. I’m a PhD student with hEDS and no one really takes my problems seriously so I just don’t really talk about it.
Is there any good hospitals in New York for gastroparesis and ehlers danlos? As I will be getting married to a gentleman there in New York, Don't know what part.
When you participate in your classes online are they live or are they something that you can watch at your own pace? Great video and again congratulations on school. I hope that you graduate and can land a great job as a genetic counselor?
they are live but you can actually watch them afterwards and pause it and stuff!
and yes! I hope to be a genetic counselor!
What pad and pen are you using?
Have you looked into CCI?
do you think i could survive medical school with chronic illnesses?
Hi izzy. I'm wondering what kind of rolling backpack u have.
Hey! I just looked and I can't find a tag or anything that says where it's from. I got it back when I was in the 8th grade hahaha so i dont remember, but i almost feel like I MIGHT have gotten it from Pbteen? But that could be totally wrong!
@@IzzyKDNA thankyou. I will look into Pbteen.
Keep going girl do you
🥰
Hey! I just found your channel and as a 20 year old with POTS, I Love it !!! I was wondering , where did you do your undergraduate? And what did you study?! I would love to know especially because I am interested in a career in Public Health. If I win the Zoom Giveaway with you I’d love to talk more about your academic journey, but I’d appreciate a comment response too! 😂❤️