i came across this video as i was looking up methotrexate and i saw that we have the same birthday. im 21 now and was diagnosed with lupus 5 years ago. got lots of good info from the video thanks and hope your doing well.
I've been on Methotrexate - MTX for about 2 years for Psoriatic Arthritis. Initially I would feel flushed in the face for the day lethargic and nauseated and loose stools . The guys in a forum I am a member of told me to drink lots on the my MTX day and that helped me so much. I carry a water bottle with me on Fridays (my designated day) and probably drink at least 1-2 litres more than a normal day. I have taken up to 25 mg/week which is more than the 17.5 mg that our blogger took, but still significantly less than the dose given for cancer treatment which can be up to 30 mg or more per day for 4 -5 days then a break for a week then repeat it for several weeks. I reduced back to 20 mg per week when I commenced treatment with Enbrel biologic medication. From about 3 months into my treatment I barely noticed any side effects and the benefits far outweigh anything that I have ever experienced. I am very sun conscious (I live in Australia - slip/slop/slap) and avoid alcohol, I say - if your doctor suggests it, give it a go.
I have Psoriasis and Rheumatoid Arthritis that causes severe pitting of the finger and toe nails and large itchy skin patches in the groin area, back of head, and elbows. I also suffered from intussusception when I was born, having removed over 18in of my intestine. Would this prescription cause a higher chance of developing stomach ulcers and other intestinal issues, and/or would this be a recommended medication people like me?
Been there done that. For 5 yrs on and off my body finally was to sick to continue . I developed luekimia and so much more. Liver failure kidney nephritis .anyway benlysta wasn't available here in Australia so they tried immuran . Ugh now I stick to my prednisolone plaquinil and a about 8 others. I can't put my body through any more . I am 48 and know that the meds made me worse long term .
You probably won’t see this, but if you do: Did you take the methotrexate with folinic acid or folic acid? If so, did it still make you sick?? Thanks ahead of time
Methotrexate! So glad you posted this! I have been on methotrexate for about two months now. I take it for Ulcerative Colitis! Along with the my other meds, it has helped so far. Hopefully this will get me off prednisone, which I have been on for over a year. Interesting hearing you talk about it. It does make me really nauseous as well (which I'm used to, cause my other meds do that too) and the feeling like crap. I also take it on weekends like you did! Great video! Very informational!
I started methotrexate today for crohns disease I am scared took me 35 days from when it was prescribed to get up the courage to take it... I am taking a low dose of it I hope it doesn't damage me too much.
Hi! I did not lose any hair but I did experience nausea pretty bad. My cousin who is also on it takes her 6 pills every few hours throughout the day. I would recommend doing that! I took them all at once and that is what probably made the nausea so bad. Everyone is different though! Hopefully it'll work out for you.
My experience with MTX has been good, so far! It makes me super tired on dose day and the day after. I pretty much just sleep those days away. I never threw up because of it, but it did make me nauseous like twice, then went away after about 30 minutes. The pills started irritating my stomach (I had raw, persistent pain, plus heartburn and GERD), so I just switched to injections. My stomach is already feeling better. I think it's helping my inflammation and joints, but the real test will be when I taper off Prednisone. Dun dun dun! Oh, and I take folic acid to help minimize the side effects. My rheumatologist said that's super important, as well as the regular blood work to check the liver. I don't really drink, either, but she said I'm allowed to have one glass of wine a week, which works for me (I'm 30 but boring, I guess). I thought the lymphoma thing was pretty weird, too-though I read that the risk is very low, thankfully.
I’ve been taking Methotrexate for YEARS!! It started at a low dose but as my condition adapted so the dose went up. At 25mg I felt so sick so my specialist gave me 20mg injections, the nausea was gone because it all goes straight into your blood stream rather than through your stomach and for a while it did an amazing job...since then my A.S, Rhumatoid arthritis and peripheral joint disease has got so bad I’ve had both hips replaced, constantly take Anti TNF drugs, still on Methotrexate and anti inflammatory tablets, co-codomol and tramadol for pain, and another drug called leflunamide....and still I’m in pain and discomfort every day, monged and unsociable from the pain killers and fearful of the day that nothing works....I’m only 47!!!! I would think that the cure will kill me before the condition does.
I have been living with Lupus/Sjrogrens for nearly 40 years. I have been on so many meds. I was given Leflunomide today. I am wondering if you have ever taken this or if you know anyone who has.
From all these other comments, I feel like I do not want to take MTX. My dermatologist wants to put me on it for psoriatic arthritis, but I don't think it is worth it.
MTX is not an easy drug but it did help my arthritis and blood-work numbers for the time being. I would talk to your doctor about it and maybe ask what other options you have.
Terrible stuff!! Am on week number six. Feel like crap for about three days before I start to bounce back. I take it for psoriatic arthritis. It makes me hurt in joints that I didn't even know I had it there. My knees in particular. But also my fingers feet, and the main problem source of my lower back pain. Also have Celiac's and hypothyroid. The psoriasis skin disease part for whatever reason went into remission over twenty years ago and came back with the arthritis part. I really hope this stuff gives me some relief, as I haven't worked a job in almost five years. Alberta's health care system really sucks!!!! I finally have a decent ruematologist that has a clue what is going on with me!!! It has taken over twelve years and a bunch of doctors to find this one!!!!! You would not believe the crap that I've been told by a lot of them on this journey!!! Thanks for the information on the metho. You look great for having Lupus!!!! I hope it stays in remission for you!!! Great video!!!!!!
I've been on MTX for almost 2 years now for systemic vasculitis and I can't wait to get off it. The side effects I've had include Nausea, headaches and lots of exhaustion also I feel like a vampire trying to avoid the damn sun all the time. But on the plus side I think it has worked it's magic and I've been symptom free for almost 3 months now. Anyway, I hope you are doing well.
Hi I'm on Methotrexate ! And My vision is blurry and I have the worse headache s ever I neen dx: with Lupus sense 2010 and it's so painful I don't sleep and the sweats are awful I be having so much pain I cry so much with this disease . I hate it write me back to let me know do u have all those throbbing pains . Thanks!
Thanks for the reply. I just came back from the Ruematologist. She has taken me off of methotrexate. Told me it is doing the opposite of what it is supposed to do. On top of the additional pain and fatigue it is causing, my memory is just terrible. I couldn't remember where the doctors office was. I have been there 3 times now!!! She is going to call me in 3 or 4 weeks to see if I improve. I feel like I am 90 with Alzheimer's!! I hope I recover from this. Thanks for the support! Stay well!
i just started this for psoriasis and this stuff gives me so much anxiety because i've thrown up from it and i had to go home from school because and im only on week 3 of using it but oh well (ive had psoriasis for the past 10 years and im 14 now and ive done pretty much everything to get rid of it from every topic to lasers)
I have psoriatic arthritis, and was prescribed this med. I only took it for three weeks, the stomach issues were terrible. My rheumatologist keeps pushing me to give it a try again. Anyone have any issues with hair loss?
loralie smith hi Loralie I would definitely look into trying some natural remedies. pharmaceutical drugs have heaps of side effects and they only cover the symptons (and cause more symptons) but they never heal the condition. i used to have eczema and i took dr schulze superfoods plus and it completely changed my life. the first day i took it the bleeding on my legs stopped. my eczema is now cured which is pretty amazing considering eczema is a pretty hard condition to cure as its related to the immune system. thats when i started realising about the evils of big pharma and how they only prescribe drugs that are a synthetic version of real herbs and thats why the body can't recognise them and they have such strong effects (although temporary and then after you stop using them the condition comes back and worse). then i realised why big pharma gives out drugs that only cover the symptoms and never completely heal the condition. they make more money out of a sick person who needs to take drugs for life that only cover the symptoms then someone who actually heals from taking the drugs. i would really encourage you to look into taking the dr schulze superfoods plus. even though it is a general supplement, it is an extremely powerful shot of nutrition that can help heal the body. i would also recommend taking herbal calcium or bone flesh and cartilege tea from sites such as herbal-apothecary.net. we have been using plants and herbs for thousands of years and big pharma and their profit oriented drugs are only 200 years old. the side effects such as stomach pain nausea etc are an indication that you should stay well away from them and that they are harming your body rather than healing your body so that the immune system becomes strong enough to fight pathogens on its own. i would stay well away from synthetic drugs - they belong nowhere inside our bodies.
When I was taking MTX I had little bit issues on hair loss. Not much hair loss, but I could see that my hair was getting thin. After I told my nurse that my body couldn't handle MTX and I would not touch it again in my life I returned the medicin to my nurse. After that I have only had hair loss after I have been on shower and few weeks after I stopped MTX my hair was not thin. It tooke some time, but eventually my hair was normal again.
I have a severe case of eczema. We thought it was mycosis fungoides but my dermatologist thinks it's just a severe case of eczema it's all over my body I've taken so many steroids and steroid creams it just comes back so much worse after I'm done taking the steroids my legs were purple and my whole body is so itchy. He just prescribed me methotrexate. I'm scared to take it.
I was diagnosed with seborrhea when I was a kid by my family doctor, gave me treatment for it. It also made it worse. Was mostly on my scalp, about a 1/4 inch thick!!! Yuk!!! I finally got in to see a dermatologist after a long battle with it. It turned out to be psoriasis. I used the coal tar shampoos,creams, that stank like hell!!!! The best for it was olive oil!!!! Might want to give it a try.It didd go into remmission on it's own for about 20 years(i'm 52 now) but unfortunatly has came back as psoiatic arthritis. I am taking methotrexate and am week 6. It has nasty side affects, at least with me. Good luck!!!!
HI Kambree i have similiar symptoms t yourself i have been asked t go on it and like you are very apprehensive. how did you find it and did it rely help .Steve.
Hi there! I'm currently on Methotrexate once a week. I have some side effects, but my insurance will not cover Benlysta. So I will continue to feel icky and tired and just deal with it. Make ye best of what you got, yes?
i was on methotrexate also, for allergies and eczema. Before Obamacare was passed, having this on my chart allowed insurances to deny me, it was just terrible! i could not get any insurance at all. Anyway, it wasnt too effective for me, so i got off it.
a comment about listed side effects, (for any medication): when a med is produced, it has to report all symptoms in the clinical trials. This could mean some of the patients may have had symptoms caused by something else in their life, but it's reported still. If 100 people take a drug, and 1 gets lung cancer, and that 1 person smokes alot, the drug reports 'may cause lung cancer.' If possible, try to find the studies, find the distribution of patients with problems. , or ask your doctor.
I felt the same way on it with the nausea! I would get SO sick and would only end up feeling "better" for maybe 1 or 2 days of the week.. so it was just ridiculous. But it did help me when I needed it most. When I basically paralyzed from my RA and couldn't walk at all, it helped my legs move better. But like you, I would get super sick from side effects. :(
Oh my gosh Methotrexate is horrible. I was on it for a few years and I've never felt sicker from a drug. It made me nauseous for days. I was getting it through IV and I'd have to sit there for hours waiting for bottle after bottle after bottle to finish. They first started me off by getting a shot every week of it then they bumped me up to the IV. Never again. I know exactly what you're talking about.
Happy belated Birthday! I hope it was well. Hey have you ever been on Leflunomide? I just got taken off of Plaquenil because it wasn't doing any good and they want me to start it.
Hi I had a few questions about this medication I am already supposed to be taking it for MCTD/ lupus and Hashimotos Thyroiditis and was wondering about the side effects you expierenced Did u loose your hair? Did u get like stomach cramps or nausea to the point you couldn't function? I am a wife and mother of 6 children and scared to death to take this as I have to be able to function and take care of my children . If you could please let me know just how bad it was I would greatly appreciate it
I couldn't stand methotrexate. The only thing I was not doing was vomiting. Other than that I had every side effect listed. At that time I was also on enbrel. so bad to both medications I couldn't even get out of bed I couldn't breathe I couldn't pump blood and it was just driving me crazy I also had fever sweats chills and I just didn't feel good at all every time I got up to go to the bathroom or something I would end up coughing and hacking up my heart and lungs it hurts so bad.
I have psoriasis. My dermatologist prescribed me this drug. I am heavy athlete, naturalist and i never get sick, except psoriasis. I am really scared of the side effects....and i think i wont use it. I better live with the scars of psoriasis and do my workouts, 15km runs, 50km bike rides, winter swims, sunbath....,, and live my life as a normal person., instead of destroying my health for cosmetic causes!
Is methotrexate the first drug you're trying for it? I'm pretty sure it isn't typically used as a first line treatment for psoriasis due to its toxicity and side effects. Have you tried any corticosteroids? They can be very effective treating psoriasis and have minimal side effects compared to methotrexate
Rektspresso I have used steroid based creams for years. For me they tend to work for few months but then my psoriasis develops immunity for them and returns either i apply the cream or not... Only true salvation is sunlight which i get only 150 days a year due to the climate.
I just started methotrexate and I haven't had 1 single side affect at all this is for psoriasis as well so hoping this works.no sickness or tiredness nothing at all hope it stays this way
how old r u and since when have you been taking it? how has it been successful improving your arthritis? i am prescribed but have refused to take it. Lately I am having more pain, im taking a second look on this meds, pls inform me
sanBastian123 hi sanBastian maybe try some natural remedies like dr schulze superfoods plus and maybe check out herbal calcium or bone flesh and cartilege tea from sites such as herbal-apothecary.net
I was on it but, I did not like it i off it now.I would not do anything and I was sick to my stomaga for 48 hr. I can not do it side efet are to much and drangres.
Hello sweetie i surely agree. Diagnoised a lupie at 19 now 42. im on 10 pills weekly. I am going to inquire about the injections. But great review. very informative an would love more reviews on benlysta. I have subscribed to your channel feel free to sub to mine. May is lupus awareness month lets rock youtube with awareness an support each other. Keep up the good work. YOU ROCK! TOODLES!
I have been on mtx since 2001. I took the pills for about 4 years then switched to the injection .9cc once a week. It is better on the stomach but I still have nausea and vomiting and feel like I have been run over by a truck for 24-48 hours. It has kept me stable for a while now and my rheumy says I could be on it for the rest of my life. I can't get the Benlysta because Medicare won't cover it. I hope to one day be off of it and hope there will be something more affordable soon.
i came across this video as i was looking up methotrexate and i saw that we have the same birthday. im 21 now and was diagnosed with lupus 5 years ago. got lots of good info from the video thanks and hope your doing well.
I've been on Methotrexate - MTX for about 2 years for Psoriatic Arthritis. Initially I would feel flushed in the face for the day lethargic and nauseated and loose stools . The guys in a forum I am a member of told me to drink lots on the my MTX day and that helped me so much. I carry a water bottle with me on Fridays (my designated day) and probably drink at least 1-2 litres more than a normal day.
I have taken up to 25 mg/week which is more than the 17.5 mg that our blogger took, but still significantly less than the dose given for cancer treatment which can be up to 30 mg or more per day for 4 -5 days then a break for a week then repeat it for several weeks.
I reduced back to 20 mg per week when I commenced treatment with Enbrel biologic medication.
From about 3 months into my treatment I barely noticed any side effects and the benefits far outweigh anything that I have ever experienced.
I am very sun conscious (I live in Australia - slip/slop/slap) and avoid alcohol,
I say - if your doctor suggests it, give it a go.
I have Psoriasis and Rheumatoid Arthritis that causes severe pitting of the finger and toe nails and large itchy skin patches in the groin area, back of head, and elbows. I also suffered from intussusception when I was born, having removed over 18in of my intestine. Would this prescription cause a higher chance of developing stomach ulcers and other intestinal issues, and/or would this be a recommended medication people like me?
My son is supposed to start taking this, and this was soooo helpful!
Been there done that. For 5 yrs on and off my body finally was to sick to continue . I developed luekimia and so much more. Liver failure kidney nephritis .anyway benlysta wasn't available here in Australia so they tried immuran . Ugh now I stick to my prednisolone plaquinil and a about 8 others. I can't put my body through any more . I am 48 and know that the meds made me worse long term .
You probably won’t see this, but if you do: Did you take the methotrexate with folinic acid or folic acid? If so, did it still make you sick??
Thanks ahead of time
Methotrexate! So glad you posted this! I have been on methotrexate for about two months now. I take it for Ulcerative Colitis! Along with the my other meds, it has helped so far. Hopefully this will get me off prednisone, which I have been on for over a year. Interesting hearing you talk about it. It does make me really nauseous as well (which I'm used to, cause my other meds do that too) and the feeling like crap. I also take it on weekends like you did! Great video! Very informational!
I started methotrexate today for crohns disease I am scared took me 35 days from when it was prescribed to get up the courage to take it... I am taking a low dose of it I hope it doesn't damage me too much.
hi, i wish to know how u been doing lately? Is mtx working for you? i heard it takes time before it works. How has it been?
I use the injectable MTX...did pills with lower doses, but once I got to 15 or so, I switched to injection.
I know they range for $5,000-$8,000 but mine is luckily covered by my insurance. I just have to pay a copay. & thank you!
Hi! I did not lose any hair but I did experience nausea pretty bad. My cousin who is also on it takes her 6 pills every few hours throughout the day. I would recommend doing that! I took them all at once and that is what probably made the nausea so bad. Everyone is different though! Hopefully it'll work out for you.
Live Hope Lupus I was taking METHOTREXATE for a while for RA. Then I stopped because another doctor told me it is really bad for you.
are you guys taking folic acid as supplement to counteract the effects?
My experience with MTX has been good, so far! It makes me super tired on dose day and the day after. I pretty much just sleep those days away. I never threw up because of it, but it did make me nauseous like twice, then went away after about 30 minutes. The pills started irritating my stomach (I had raw, persistent pain, plus heartburn and GERD), so I just switched to injections. My stomach is already feeling better. I think it's helping my inflammation and joints, but the real test will be when I taper off Prednisone. Dun dun dun! Oh, and I take folic acid to help minimize the side effects. My rheumatologist said that's super important, as well as the regular blood work to check the liver. I don't really drink, either, but she said I'm allowed to have one glass of wine a week, which works for me (I'm 30 but boring, I guess). I thought the lymphoma thing was pretty weird, too-though I read that the risk is very low, thankfully.
Thank you for this comment!
I’ve been taking Methotrexate for YEARS!! It started at a low dose but as my condition adapted so the dose went up. At 25mg I felt so sick so my specialist gave me 20mg injections, the nausea was gone because it all goes straight into your blood stream rather than through your stomach and for a while it did an amazing job...since then my A.S, Rhumatoid arthritis and peripheral joint disease has got so bad I’ve had both hips replaced, constantly take Anti TNF drugs, still on Methotrexate and anti inflammatory tablets, co-codomol and tramadol for pain, and another drug called leflunamide....and still I’m in pain and discomfort every day, monged and unsociable from the pain killers and fearful of the day that nothing works....I’m only 47!!!! I would think that the cure will kill me before the condition does.
Nigel Leheup Nigel i feel you, im 17 i take 30 mg and i just feel bad after taking it
I have been living with Lupus/Sjrogrens for nearly 40 years. I have been on so many meds. I was given Leflunomide today. I am wondering if you have ever taken this or if you know anyone who has.
From all these other comments, I feel like I do not want to take MTX. My dermatologist wants to put me on it for psoriatic arthritis, but I don't think it is worth it.
MTX is not an easy drug but it did help my arthritis and blood-work numbers for the time being. I would talk to your doctor about it and maybe ask what other options you have.
Terrible stuff!! Am on week number six. Feel like crap for about three days before I start to bounce back. I take it for psoriatic arthritis. It makes me hurt in joints that I didn't even know I had it there. My knees in particular. But also my fingers feet, and the main problem source of my lower back pain. Also have Celiac's and hypothyroid. The psoriasis skin disease part for whatever reason went into remission over twenty years ago and came back with the arthritis part. I really hope this stuff gives me some relief, as I haven't worked a job in almost five years. Alberta's health care system really sucks!!!! I finally have a decent ruematologist that has a clue what is going on with me!!! It has taken over twelve years and a bunch of doctors to find this one!!!!! You would not believe the crap that I've been told by a lot of them on this journey!!! Thanks for the information on the metho. You look great for having Lupus!!!! I hope it stays in remission for you!!! Great video!!!!!!
good luck with the methotrexate. I took it for 8 years and In general kept my symptoms very low.
I've been on MTX for almost 2 years now for systemic vasculitis and I can't wait to get off it. The side effects I've had include Nausea, headaches and lots of exhaustion also I feel like a vampire trying to avoid the damn sun all the time. But on the plus side I think it has worked it's magic and I've been symptom free for almost 3 months now. Anyway, I hope you are doing well.
we know ourselves more than other know us.
What was the cost of your benlysta infusions? And did you insurance cover most of it? Thank for the helpful vids and Happy Birthday.....
Hi I'm on Methotrexate ! And My vision is blurry and I have the worse headache s ever I neen dx: with Lupus sense 2010 and it's so painful I don't sleep and the sweats are awful I be having so much pain I cry so much with this disease . I hate it write me back to let me know do u have all those throbbing pains . Thanks!
Thanks for the reply. I just came back from the Ruematologist. She has taken me off of methotrexate. Told me it is doing the opposite of what it is supposed to do. On top of the additional pain and fatigue it is causing, my memory is just terrible. I couldn't remember where the doctors office was. I have been there 3 times now!!! She is going to call me in 3 or 4 weeks to see if I improve. I feel like I am 90 with Alzheimer's!! I hope I recover from this. Thanks for the support! Stay well!
I have lupus and rheumatoid as well and have been on methotrexate 2months and I feel awful they said it well get better but when?
i just started this for psoriasis and this stuff gives me so much anxiety because i've thrown up from it and i had to go home from school because and im only on week 3 of using it but oh well (ive had psoriasis for the past 10 years and im 14 now and ive done pretty much everything to get rid of it from every topic to lasers)
Liverfailure. Did it work for you for your psoriasis ?
I have psoriatic arthritis, and was prescribed this med. I only took it for three weeks, the stomach issues were terrible. My rheumatologist keeps pushing me to give it a try again. Anyone have any issues with hair loss?
loralie smith hi Loralie I would definitely look into trying some natural remedies. pharmaceutical drugs have heaps of side effects and they only cover the symptons (and cause more symptons) but they never heal the condition. i used to have eczema and i took dr schulze superfoods plus and it completely changed my life. the first day i took it the bleeding on my legs stopped. my eczema is now cured which is pretty amazing considering eczema is a pretty hard condition to cure as its related to the immune system. thats when i started realising about the evils of big pharma and how they only prescribe drugs that are a synthetic version of real herbs and thats why the body can't recognise them and they have such strong effects (although temporary and then after you stop using them the condition comes back and worse). then i realised why big pharma gives out drugs that only cover the symptoms and never completely heal the condition. they make more money out of a sick person who needs to take drugs for life that only cover the symptoms then someone who actually heals from taking the drugs. i would really encourage you to look into taking the dr schulze superfoods plus. even though it is a general supplement, it is an extremely powerful shot of nutrition that can help heal the body. i would also recommend taking herbal calcium or bone flesh and cartilege tea from sites such as herbal-apothecary.net. we have been using plants and herbs for thousands of years and big pharma and their profit oriented drugs are only 200 years old. the side effects such as stomach pain nausea etc are an indication that you should stay well away from them and that they are harming your body rather than healing your body so that the immune system becomes strong enough to fight pathogens on its own. i would stay well away from synthetic drugs - they belong nowhere inside our bodies.
When I was taking MTX I had little bit issues on hair loss. Not much hair loss, but I could see that my hair was getting thin. After I told my nurse that my body couldn't handle MTX and I would not touch it again in my life I returned the medicin to my nurse. After that I have only had hair loss after I have been on shower and few weeks after I stopped MTX my hair was not thin. It tooke some time, but eventually my hair was normal again.
Thats good :).. keep eating healthy and improving :))
Niels Mathiassen the body has a remarkable ability to heal itself :)
loralie smith yes
I have a severe case of eczema. We thought it was mycosis fungoides but my dermatologist thinks it's just a severe case of eczema it's all over my body I've taken so many steroids and steroid creams it just comes back so much worse after I'm done taking the steroids my legs were purple and my whole body is so itchy. He just prescribed me methotrexate. I'm scared to take it.
I was diagnosed with seborrhea when I was a kid by my family doctor, gave me treatment for it. It also made it worse. Was mostly on my scalp, about a 1/4 inch thick!!! Yuk!!! I finally got in to see a dermatologist after a long battle with it. It turned out to be psoriasis. I used the coal tar shampoos,creams, that stank like hell!!!! The best for it was olive oil!!!! Might want to give it a try.It didd go into remmission on it's own for about 20 years(i'm 52 now) but unfortunatly has came back as psoiatic arthritis. I am taking methotrexate and am week 6. It has nasty side affects, at least with me. Good luck!!!!
HI Kambree i have similiar symptoms t yourself i have been asked t go on it and like you are very apprehensive. how did you find it and did it rely help .Steve.
Hi there! I'm currently on Methotrexate once a week. I have some side effects, but my insurance will not cover Benlysta. So I will continue to feel icky and tired and just deal with it. Make ye best of what you got, yes?
i was on methotrexate also, for allergies and eczema. Before Obamacare was passed, having this on my chart allowed insurances to deny me, it was just terrible! i could not get any insurance at all. Anyway, it wasnt too effective for me, so i got off it.
a comment about listed side effects, (for any medication): when a med is produced, it has to report all symptoms in the clinical trials. This could mean some of the patients may have had symptoms caused by something else in their life, but it's reported still. If 100 people take a drug, and 1 gets lung cancer, and that 1 person smokes alot, the drug reports 'may cause lung cancer.' If possible, try to find the studies, find the distribution of patients with problems. , or ask your doctor.
This was offered to me, but my liver had been enlarged.. so we decided not to. Instead my Imuran and Plaquenil doses went up.
I also remember fever sweats and chills and I just didn't have good with that medicine I didn't have good luck with enbrel either.
You didn't mention Pulmonary Fibrosis. I'm going to attach my video
I felt the same way on it with the nausea! I would get SO sick and would only end up feeling "better" for maybe 1 or 2 days of the week.. so it was just ridiculous. But it did help me when I needed it most. When I basically paralyzed from my RA and couldn't walk at all, it helped my legs move better. But like you, I would get super sick from side effects. :(
Okay I accepted it! Thanks for sharing. That includes some much needed information.
I hve R.A in right hand.i start this tablet how long i will use
Oh my gosh Methotrexate is horrible. I was on it for a few years and I've never felt sicker from a drug. It made me nauseous for days. I was getting it through IV and I'd have to sit there for hours waiting for bottle after bottle after bottle to finish. They first started me off by getting a shot every week of it then they bumped me up to the IV. Never again. I know exactly what you're talking about.
Opps sorry didnt mean to hit dislike. This is very informative. did you have hairloss with this drug
Happy belated Birthday! I hope it was well. Hey have you ever been on Leflunomide? I just got taken off of Plaquenil because it wasn't doing any good and they want me to start it.
I just started it this week and so far i havent gotten any of the side effects. I hope they dont appear that much later on...
@@CVC-cp5le other than my autoimmune system becoming slightly weaker, I got no side effects.
I stopped taking this med a few years ago, though.
Never tried it. Pray I never have to! Sounds horrible.
Thanks 4 your time
Hi I had a few questions about this medication I am already supposed to be taking it for MCTD/ lupus and Hashimotos Thyroiditis and was wondering about the side effects you expierenced Did u loose your hair? Did u get like stomach cramps or nausea to the point you couldn't function? I am a wife and mother of 6 children and scared to death to take this as I have to be able to function and take care of my children . If you could please let me know just how bad it was I would greatly appreciate it
Thank you for this!
I couldn't stand methotrexate. The only thing I was not doing was vomiting. Other than that I had every side effect listed. At that time I was also on enbrel. so bad to both medications I couldn't even get out of bed I couldn't breathe I couldn't pump blood and it was just driving me crazy I also had fever sweats chills and I just didn't feel good at all every time I got up to go to the bathroom or something I would end up coughing and hacking up my heart and lungs it hurts so bad.
I took one dose of this poison and threw it in the bin, made me feel horrendous.
Great video, very informative.
Ive just been prescribed this drug but Im not taking it
why not?
its bad for you
I have psoriasis. My dermatologist prescribed me this drug.
I am heavy athlete, naturalist and i never get sick, except psoriasis.
I am really scared of the side effects....and i think i wont use it.
I better live with the scars of psoriasis and do my workouts, 15km runs, 50km bike rides, winter swims, sunbath....,, and live my life as a normal person., instead of destroying my health for cosmetic causes!
Is methotrexate the first drug you're trying for it? I'm pretty sure it isn't typically used as a first line treatment for psoriasis due to its toxicity and side effects. Have you tried any corticosteroids? They can be very effective treating psoriasis and have minimal side effects compared to methotrexate
Rektspresso I have used steroid based creams for years. For me they tend to work for few months but then my psoriasis develops immunity for them and returns either i apply the cream or not... Only true salvation is sunlight which i get only 150 days a year due to the climate.
I just started methotrexate and I haven't had 1 single side affect at all this is for psoriasis as well so hoping this works.no sickness or tiredness nothing at all hope it stays this way
I have juvenile arthritis and I take methotrexate
how old r u and since when have you been taking it? how has it been successful improving your arthritis? i am prescribed but have refused to take it. Lately I am having more pain, im taking a second look on this meds, pls inform me
sanBastian123 hi sanBastian maybe try some natural remedies like dr schulze superfoods plus and maybe check out herbal calcium or bone flesh and cartilege tea from sites such as herbal-apothecary.net
What's in ur fridge pantry?
I was on it but, I did not like it i off it now.I would not do anything and I was sick to my stomaga for 48 hr. I can not do it side efet are to much and drangres.
I had terrible stomach pain.
thank you
My birthday is April 7th too!!!
We share a birthday! Interesting 😢
I hope you are well. ❤
Yeah Methotrexate is not fun! Sadly, it's a last resort many of us have to take.
Oh no :( that is no fun! Seems like everyone had a horrible experience on this drug.
You have the same birthday as my daughter lol I recently just got off this stuff
Im on this and it is love hate realthionship.
I'm gonna be on methotrexate and benlysta
Hello sweetie i surely agree. Diagnoised a lupie at 19 now 42. im on 10 pills weekly. I am going to inquire about the injections. But great review. very informative an would love more reviews on benlysta. I have subscribed to your channel feel free to sub to mine. May is lupus awareness month lets rock youtube with awareness an support each other. Keep up the good work. YOU ROCK! TOODLES!
Love from England ♡♡♡♡♡♡
i started injecting about yr ago better than pill
I have been on mtx since 2001. I took the pills for about 4 years then switched to the injection .9cc once a week. It is better on the stomach but I still have nausea and vomiting and feel like I have been run over by a truck for 24-48 hours. It has kept me stable for a while now and my rheumy says I could be on it for the rest of my life. I can't get the Benlysta because Medicare won't cover it. I hope to one day be off of it and hope there will be something more affordable soon.
I love your eyes
I hope you are doing well.
i dont take
I have the injection
Post more
Shot of breath