Hi Lana, glad to see an update :). I've watched your videos and I'm just wondering if you could compare, if they measured it in the hospital, your EDSS score pre-HSCT and post-HSCT. I'm going through with the procedure here in Sweden in the beginning of October, so I'm trying to stay as positive and realistic as possible as to what to expect after the treatment. Other than that, I truly wish you the best and hope that you recover more an more as time goes by!
Hi Sam, EDSS is one of the things that every facility looks at. Mine was 5.5 prior, I am at 2 right now. It is an amazing difference. Please, keep in mind that I am only a year in and things can change, I hope they will not but it could. Stay realistic and stopping the progression is the key, everything else is a cherry on top. I am very excited for you and best of luck!
Thank you :) Are you on HSCT forums on FB? I also have a website with QA info that maybe helpful to you? lanapiller.com/archives/category/hsct-qa-videos Stay positive, enjoy the experience, this is one of the most amazing things you will ever ever do!
thanks
Hi Lana, glad to see an update :). I've watched your videos and I'm just wondering if you could compare, if they measured it in the hospital, your EDSS score pre-HSCT and post-HSCT.
I'm going through with the procedure here in Sweden in the beginning of October, so I'm trying to stay as positive and realistic as possible as to what to expect after the treatment. Other than that, I truly wish you the best and hope that you recover more an more as time goes by!
Hi Sam,
EDSS is one of the things that every facility looks at. Mine was 5.5 prior, I am at 2 right now. It is an amazing difference. Please, keep in mind that I am only a year in and things can change, I hope they will not but it could. Stay realistic and stopping the progression is the key, everything else is a cherry on top. I am very excited for you and best of luck!
Thank you so much for your fast reply, very much appreciated!
Thank you :) Are you on HSCT forums on FB? I also have a website with QA info that maybe helpful to you? lanapiller.com/archives/category/hsct-qa-videos Stay positive, enjoy the experience, this is one of the most amazing things you will ever ever do!
Hello Lana glad heard from you ...Why you quit working? Was it something with the recovering? thanks Luis
Too stressful
You not planing to work again?
Of course, that particular situation just wasn't good for my stress level.
Forever?
forever what?
Why would anybody be pissed at you? This is your reality.
what? who is pissed at me? I am sorry I do not understand...
You talking about how that Stem cell transplant is not a cure... People might be mad, but so what! 15:55
Cheers Boozetique I do not care if people are mad, honestly, it is not of my business. My purpose is to tell the truth and carry an honest message. :)
You have been an inspiration.
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