MY PCOS AND ENDOMETRIOSIS JOURNEY | Having surgery, diagnosis and managing it now
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- เผยแพร่เมื่อ 12 มี.ค. 2022
- Happy Sunday!
Today’s video will be covering my journey with PCOS and endometriosis (going all the way back to the first period up until now).
If anyone is struggling I hope sharing my journey and management tips helps. You’re not alone and 1 in 10 women suffer from PCOS and I think the more we talk about it and share our stories/ advice the more we can help each other.
PCOS NHS: www.nhs.uk/conditions/polycys...
Endometriosis NHS: www.nhs.uk/conditions/endomet...
Kyleena IUD: www.verywellhealth.com/kyleen...
Zoe's instagram is: @zoeantonia_fit
Zoe is someone I looked to a lot for advice and information on my PCOS and if you are struggling with PCOS and hair growth she offers so much advice and support!
I hope you all enjoy the video, thanks so much and see you next Sunday!
Honestly it’s so refreshing to hear that I’m not alone. I had almost the exact same experience as you. For years I was so lost, so broken - mentally and physically that I genuinely didn’t know what to do or where to go anymore. I pray that if I have a daughter, she doesn’t end up with these issues as they are genetic, but I promised myself that if she ends with PCOS or Endo, I will give her the best possible care so that she never has to suffer like we did!
Been dismissed about my pain for years, it started when I was 10. Well controlled with birth control. Came off birth control 2 years ago and all hell broke loose. Confirmed by an MRI I have deep infiltrating into my bowels, rectum, 2 chocolate ovarian cysts and a blocked tube. Getting surgery in December it feels so good knowing why I always had so much pain in my day to day life.
Hi from the USA👋 Our symptoms are similar! I have been experiencing a lot of the symptoms of PCOS for years but didn't think anything of it after I brought it to my mom's attention when I was 14. She said I was fine as she had the symptoms I had at her age. This year I finally went to a gyno for my pap and I told her about the PCOS symptoms I was experiencing. She even saw my hairy face after not shaving for a whole week. I have to shave every other day otherwise the stuble and shadow shows like a man 😔 I was embarrassed but she said that's normal for PCOS girls. I did blood work and turns out I have very high DHEA and testosterone levels. Ultrasound showed everything was okay I assume as I didn't get my results. Now this year, I'm noticing endometriosis symptoms. I too get sharp lightning like pain that shoots down my crotch and dull, aching, and stabbing pain where my ovaries are randomly. I also get lower back pain too. In addition, I have digestion issues and some bladder issues like a UTI kinda feeling but I don't have the blood in urine. Waiting for my endocrinologist appointment next month. Hope I get answers soon. I'm scared of surgery as I have really bad anxiety( been hospitalized for it many times) but I know it will be worth it😬 Thank you for sharing your story and helping raise awareness for female reproductive health 😊
As a women who doesn't experience healths problems i cant imagine how much pain they feel 💔. Its important for young women to learn about disease that might change their life and to help those who do have problems with fertility ect. Im here and think of this as a virtual hug
It's so sad that most of us are messed around by medical professionals and not taken seriously. I thank God that as soon as i mentioned something to my gp, she was on it immediately and referred me for an ultrasound. I've had a positive experience with the NHS so far... currently waiting for my laparoscopy.
I'm currently waiting for a lap to diagnose endometriosis, it breaks my heart to hear of yet another girl getting dismissed by doctors! Thank you for opening up about this 💛
I would just like to post this so share my experience with PCOS. So as long as I have known I always had every irregular periods, I went when to the GP when I was around 18. I was given a scan and told everything was normal and stuck on the pill without further explanation. Finally as I have gotten older I wanted to try for a baby… seeing as my periods were regular from being on the pill I thought everything was fine. Of course soon as I stopped the pill I didn’t have a period for around 6-8months again I went to the GP they offered tests and finally was diagnosed with PCOS. As many people are aware PCOS often is discussed along topics such as fertility. Although it was a very difficult I finally did get pregnant. I just want to let others know a success pregnancy story with PCOS as I can remember looking for those when I was first diagnosed..
From USA: I feel really blessed right now..... what you and the commenters are experiencing sounds like negligent medicine. 💔 Does the NhS block you from going to directly to an OB/GYN? My GYN heard very heavy bleeding and immediately did an internal ultrasound. Yes, the post-op gas pains are rough. Outpatient surgery, went home, drank yogurt, went to sleep, woke up and drank about 48 oz of water in 1 hour. Around 3 or 4 am, the pain from#2 was HORRIBLE. After that, bowel pain dropped from 10 to 3 until 0. My wish is for you to not have to deal with this any longer. One Love ♥️♥️♥️
Thank you so much for sharing your story. I’m currently fighting the battle to be heard and taken seriously but you’ve given me hope ❤️
I feel you I went to 9 different OBGYN’s in Ohio and Pennsylvania for issues I was having and finally when I moved to florida, one took me seriously because I told her I would get sharp shooting pains when I would go to stand up or come back up after bending over and I was seeing dark circle and blacking out. They finally did an ultrasound and saw that I had a tubal pregnancy the size of an orange in there. Had it surgically removed within the week.
That video was amazing thank you I have experienced more or less the exact same last year and it’s so good to hear someone else talking about it 😊
Followed you on Insta for a while, always loved your page but can relate even more now about PCOS!
Been following your Tik toks for months now and came across your TH-cam today to see this vid, I also have Endo and PSOC. Listening to this video sounds exactly like what I tell all of my friends and family I feel, and I’v also been fobbed off every by doctors and been put on every form of contraception you could name! Can totally understand the dull pain and shooting pains in the lower stomach!! Never seen anyone else say they get this when I’ve watched vids. Sorry you’re suffering with this too ❤️
Omg I’m so thankful you filmed this. I’m experiencing the same exact things you went through. This is sooo helpful, thank you.
I feel your wait is actually quite lucky a lot of girls including me waited years on end, I went to my gp at 16 and only now at 22 had surgery, but I have no answers there’s no signs of endo but I have all the symptoms etc. but I’m so pleased you were finally listened to and got the help you needed. The wait through the nhs is years on end even worse since covid xxx
Thank you for your video and transparency. I have all the symptoms you have /had. I’ve been to multiple doctors and have comment about the birth control effecting my mental health and they still put me on it. It can definitely be very frustrating. Just recently been diagnosed with pcos and do have the symptoms you had that came with endometriosis. It is hard when the doctors just dismiss you, I will probably have to get the surgery to check for endometriosis just nervous but thank you for the video definitely helped to not feel alone and validated about what I have been experiencing for years!
Thank you so much for posting this! I have been following you on TikTok for a while now for your amazing recipes and had no idea that you suffered with endometriosis and PCOS! I was diagnosed when I was 19 with endometriosis after suffering for years with probably over 30 appointments before being taken seriously! So refreshing seeing people like you thriving as know first hand how difficult it is living with a chronic illness x
I’m new to following you and just wanted to say thank you so much for sharing this ❤️❤️❤️
I relate so much to your story! Like exactly the same as mine. I’m going for my first laparoscopy next Wednesday and I’m just praying it brings an answer.
I can't tell you how i exactly feel to see someone sharing the same experience I've been going through all these years and wondering why i'm the only one.Thanks alotttt for the video.❤❤