What a wonderful, informative video! Thank you so much. I have this disease and it’s horrible. I feel so sick everyday of my life. Im going to a hepatologist in April to discuss a transplant so this info has really helped me. I know the chances of a deceased liver donor is slim but I don’t think I could ask anyone to be a living donor to help me. I couldn’t have someone go through that and suffer like that for me.
Hi Deann thank you for your comment. We know many recipients are concerned about the health of living donors. The transplant team takes donor safety very seriously and only those for whom the procedure is very low risk are approved for living donation. We often hear from donors that this is something they want to do and have no regrets about their decision. We offer webinars on living liver donation, how to find a donor and supports available that may be helpful. Visit www.givelifeuhn.eventbrite.ca for more info.
@@lilwing144000 a blood test checking liver function, She mentioned it at 8:40 on the video. It is rare but if your liver functions tests are high it should alert your doctor to investigate further.
Hi Niten we encourage your mom to speak with her care team. They would be able to provide the best advice because they know her and are familiar with her medical situation.
Primary billiary cholangitis causes intense itching on palms and foot sole. There is no medicine for the same. We tried something I.e mixing raw mashed turmeric with mustard oil and heated when applied at the point of itch or bruise gives some relief . Please share it with those suffering
Loose cotton or linen clothes, Vaseline after showering and sleep with nothing on. I'm so sorry. I've woke up having had scratched myself raw. And being at the store scratching my belly, I get some looks. But Vaseline has been very helpful to me, I know everyone is so different though
me too! I've been suffering for a year. I've tried all the creams, ointments, suspension drink, Medication, Phototherapy. I rarely get to sleep all night. I will start screening for liver transplant.
What a Beautiful person Jacquie is. Kate is so Blessed to have her as her sister n law and donor. ❤
What a wonderful, informative video! Thank you so much. I have this disease and it’s horrible. I feel so sick everyday of my life. Im going to a hepatologist in April to discuss a transplant so this info has really helped me. I know the chances of a deceased liver donor is slim but I don’t think I could ask anyone to be a living donor to help me. I couldn’t have someone go through that and suffer like that for me.
Hi Deann thank you for your comment. We know many recipients are concerned about the health of living donors. The transplant team takes donor safety very seriously and only those for whom the procedure is very low risk are approved for living donation. We often hear from donors that this is something they want to do and have no regrets about their decision. We offer webinars on living liver donation, how to find a donor and supports available that may be helpful. Visit www.givelifeuhn.eventbrite.ca for more info.
Very informative and great video on PBC. Thank you.
Very informative, thank you! I was diagnosed in 2020..
My husband had a liver transplant 8 years ago. He had PBC. He is doing so much better now. Thanks to his liver donor.God is good. Don't never give up!
How he is doing now?
@@ruijunior9110 He's doing great! He's been working out and doing things that he couldn't do before. we're so blessed🥰
@@ShannonAndNe-Ne for how any year hes was dealing with PBC before transplant? Thank God hes fine.
I have side branch LPMN and a cyst in the main duct in the pancreas. Not sure why I’m diagnosed with PBC now. How are they related?
What type of Doctor can diagnose this? I’m pretty sure I have this.
Diagnosis is by blood test.
@@elizabethananda930 what kind of blood test
Your hepatologist will do it for you.
@@lilwing144000 a blood test checking liver function, She mentioned it at 8:40 on the video. It is rare but if your liver functions tests are high it should alert your doctor to investigate further.
PBC is usually diagnosed by a Gastroenterologist or a Hepatologist…
My mom is suffering from psc and even the medication isn't able to counter the syptoms such as itching , Can you please help me! 🙏
Hi Niten we encourage your mom to speak with her care team. They would be able to provide the best advice because they know her and are familiar with her medical situation.
Primary billiary cholangitis causes intense itching on palms and foot sole. There is no medicine for the same. We tried something I.e mixing raw mashed turmeric with mustard oil and heated when applied at the point of itch or bruise gives some relief . Please share it with those suffering
Loose cotton or linen clothes, Vaseline after showering and sleep with nothing on. I'm so sorry. I've woke up having had scratched myself raw. And being at the store scratching my belly, I get some looks. But Vaseline has been very helpful to me, I know everyone is so different though
Thank god for modern technology
Having normal liver function can take ursodeoxycolicacid?
I have PBC and it’s horrible
me too! I've been suffering for a year. I've tried all the creams, ointments, suspension drink, Medication, Phototherapy. I rarely get to sleep all night. I will start screening for liver transplant.
I'm sorry. To me, Its horrible when I get told I don't look sick. I wish for you to have patient and supportive family
My dr says I have nafld but I’ve been exposed to hrt funny enough that’s when it started
IS ANYONE TAKING URSIDOL AND NOTICE ANY WEIGHT GAIN 😮😮😮
I lost weight
I am allergic to it, unfortunately.