MS being your own advocate

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  • เผยแพร่เมื่อ 31 ธ.ค. 2024

ความคิดเห็น • 2

  • @MiSunderstoodGrit
    @MiSunderstoodGrit 15 วันที่ผ่านมา

    Amen! I’m so sick of it feeling like our doctors aren’t on our team! Cancer patients don’t feel this way. Patients of other disorders don’t feel like ALL Multiple Sclerosis patients do. There’s a huge problem with this, and it’s NOT us!

  • @BrookeJones-q8x
    @BrookeJones-q8x 10 หลายเดือนก่อน

    I question my Neurolgist through the Portal. All her answers were given to her nurses which read Tell the Patient…… So I signed everything “The Patient” which then escalated everything. I ended up on the phone with the head of the Department ! I also don’t care for one of her assistants. When she was going over the MRI I had previously before coming to the MS center and the one I had with them she kept on flipping back and forth between the two. Telling me what a poor quality the first one was compared to the one I had there. I have no idea where I have lesions . It just goes on from there. When I told her other assistant about it his response is why do you want to know? I am supposed to go back in April of this year hopefully I will actually see my neurologist!