Your frustrations are exactly how I would feel in the same situation. Knowing things from both a medical professional and patient perspective makes for a unique take on things. I am an emergency DVM and work overnights. I spent way too much time inpatient at a new hospital the last thirty days (fourteen going on fifteen days between two stays). I got readmitted two weeks after a nine day stay and even with it documented in my chart what IV fluid and tube feed schedules I use at home and while inpatient I had an overnight hospitalist try to stand firm about not ordering the liter of fluids I get overnight (I did not have any fluids or tube feeds all day). I was on night two and when the nurse said that the overnight doctor was probably afraid to make a misstep" I was a very polite but ticked off patient. I told them that I wanted to speak with the provider and guess what? They ordered the fluids. I am in charge of other DVM's inpatients at work and if I saw documentation that meshed with what was being requested (by a patient to doctor in my case or owner/veterinary nurse to veterinarian) and I see no contraindications it is a no brainer. As far as appointments with new doctors I am at the point I do not want to waste time. If I do not get a good feeling the first go around I switch. Moving from Nebraska to Connecticut was harsh.
There seems to be an overwhelming number of Health care providers who are incompetent right now. I totally feel your frustration right now and hate to admit that I am feeling the same. Pretty sure I have blockage and my primary cares answer is miralax, stool softener and fluids 🙄. I can’t get in with my GI for a month, went to the ER because pain was off the charts(I have had 30 surgeries including a rectocele repair, this is pretty up there) the ER does a CT and says oh you have a navel orange size hemorrhagic cyst where your ovaries used to be. I said I’ve had cyst before this pain is different and I haven’t 💩 in 2 weeks and have been taking miralax and stool softeners, along with my normal medication of Linzess. Well CT only saw the cyst so that’s all that’s wrong. 🤯🤬 Called GI and told them hey can you have the dr check my CT that was done at the same hospital I already signed release forms, to which they say he will check them at your appointment in a month. Yes I am in tears with you, but we will persevere somehow. Praying for you
You just summarized what almost every person has experienced!! Phone calls that don't get returned, mixed messages, more than one answer to a question, aps that don't work....and doctors that are more concerned with the computer in front of them than the actual patient. I feel so bad for you, a long term illness is such a drain on you. I hope it gets better. Get a new doctor!!
We just came off of 2 weeks dealing with mixed messages for hubby's meds because nurse was out of office (so app was worthless) and front desk can't relay a message to save their own lives (how many times do I need to say 3 month supply for mail order until you understand this?!? and still end up getting sent a one month supply 🤦♀️🤦♀️🤦♀️).
No need to be sorry! I’m in the medical field as well but I’m also a patient. I recently went to the ER and one of the nurses just took my arm without telling me she was going to insert an IV and I was like “what are you doing?” I feel that people in the medical field forget that they are working with people not just a checklist.
Absolutely can relate. Don’t apologize. You’re 100% right, it shouldn’t be your job as the patient to make sure HCPs do their jobs properly. It is exhausting. And frustrating.
No your not being picky, some doctors & nurses don't care about patients..I had an appointment and my Dr said "I read the notes, your gona take this prescription, and your gona do this and that...then I told the Dr" wait do you not want to hear what I'm feeling how and when this started happening? , No you don't need to tell me what you have I know what you have.. I was there for literally 5minutes..but in the waiting room 1.45 minutes..🤔. Drs & nurses need to be more sensitive to their patients we r people.. not all nurses or Dr are like this but some...
🇬🇧 OMG I can’t believe the difficulty your having with your medication etc. Here in the UK I have a personal Stoma nurse who is located at my local hospital who takes my calls and sorts out any problems I may have regarding my colostomy products and liaisons with my GP (general practitioner) I can obtain blood work and medication anytime through my doctor’s surgery and all my stoma products are delivered to my home on a monthly basis and are also pre cut to my stoma size for me. All of this for FREE GOD BLESS THE NHS. Shame on the USA for treating its citizens like this.
I agree. I'm an American living in France and here patients just don't have to endure the obstacles, challenges and frustrations that Maggie has had to with her health provider and the overall Healthcare system in the US. I am so very sorry for all that Maggie and Zak are having to go through. Totally unneccesary suffering. Lisa
@@lwc3310 i am french and working for the french healthcare system. I knew the US system was diffrent from ours but I didn't know it was so difficult to get treatment for a chronic illness.
@@lwc3310 That must be why so many folks flock to the US for the latest and most sophisticated treatments. Like my cousins from Canada. The US health care has it's faults however it's still the best in the world.
This is why I am going to nursing school now, in my thirties, as a mom and patient myself of multiple chronic illnesses. Patient care is HUGE. It is the point of healthcare! We have to do better. You deserve better.
We need more people like you getting into nursing for the RIGHT reason, sending you prayers, it’s inspiring that you are not letting your chronic illness keep you from doing this!❤️
Maggie, I want to wrap my arms around you in one giant hug and cry with you ❤️ I am so sorry you are dealing with such horrendous health care. This story is all too familiar when it comes to healthcare and it troubles me deeply. Your feelings are valid, your frustration is valid, your needs are valid. I am so sorry you've had to push and push to advocate for your needs, it should not be this difficult to get the medications we require to manage our condition. Shame on that provider for not doing more for you as a patient, as a human being. I hope things begin to turn around for you, and I hope you can find a provider who truly looks at you wholistically as a patient. I'm cheering for you, you're a warrior, you've got this ❤️
Hi Mqggie. I started watching your videos a few weeks ago. I don't have Chron's disease but I have radiation colitis and rectal cancer. Your videos have been helpful and I enjoy watching your beautiful dogs and your work in the farm. You don't have to apologize and you have all the right to vent. You are not been picky. There are a lot of people working in the medical field that should be working doing something else. I have surgery on July 6th to remove the tumor and to have a colostomy done and in the last two weeks, I had headaches dealing with the lab place and with my primary doctor's office, just to be able to get clearance for my surgery. It shouldn't be that way. They are there to help you not for you to do half of the job for them. I hope you find a new good GI doctor and I hope you feel completely better very soon. Hang in there. You are warrior! An inspiration to many. All the best to you, your husband, your doggies and all the animals in the farm ❤️
Oh Mags, I hear you sister! It's hard not to get emotional when you're not feeling well and it's hard when you're doctor that you love retires, and it's hard when the new doctor basically sucks. I think we've all been there from time to time. All I can say is hang in there and feel better! Oh, and find a new GI doc! ❤
Oh Maggie, I understand exactly what you’re going through. I’m on a bunch of meds for my back pain, and you can’t just quit those kinds of medications cold turkey. It’s beyond frustrating and maddening. I could write you a book about everything I’ve been through since I was 16, and I’m now 35. Thanks for opening up to us about what’s going on, and never be sorry for having to vent. I recently had 9 vials of blood work done at LabCorp and they were not nice to me at all. I had one girl who did it perfectly and felt no pain. Then the next time I went, the lady just jabbed the needle in and I started to cry as well. It takes a lot for me to cry when it comes to pain, so when I do cry, my family knows it must be really bad. I’m so sorry you’re going through this, as well as the many people on here who also knows what it’s like. Hang in there!!
I just wrote a huge story as to why I was made to quit, mostly likely similar meds, cold turkey to miscommunication and being treated like hell. I know your pain and I am so so sorry.
Maggie, it truly is frustrating! I have been waiting 6+ days for the office to call me to schedule for colonoscopy and enteroscopy! I just wanted it scheduled, prep done and the procedures to be over for answers! Take care of yourself and there is nothing wrong with venting!
Don’t apologize for your venting! You needed to let it out. I’m sending you hugs! Are there any other GI docs in your area. Maybe you should talk to people you worked with when you were having a few months ago? Maybe she was a nurse practitioner. I’m going to say a prayer for you if that’s OK with you. Go rest up, you’re over extending yourself.
I hope this lady is not an NP..she would give us a bad name. IF she is an NP frankly her case should have been referred to a medical doctor just due to Maggie’s complexity (multiple surgeries, longevity and severity of disease…etc) also she would have had a collaborative physician to consult with prior to her appointment just to prepare..the nurse could have done some case management to coordinate medications ALL of it and if needed a PsyD if the person is really struggling with stress, anxiety, a dietitian for food counseling to help troubleshoot problems like obstruction..just so much can be done with a provider whose head is in the game and has a heart that cares..
Coming from someone who doesn’t have a fraction of the issues you have gone thru, what you said about “I don’t have the time (or energy) to diagnose myself…” is so spot on! I only go to the Dr when I’m really sick for that reason. Who needs that stress?! And my daughter always gets the anorexia diagnosis because she’s so tiny and is afraid to tell them she doesn’t know why she feels so bad sometimes. It’s a viscous circle, and yet could be easily overcome if they would just actively LISTEN to the patient tell her story. You are a brave and beautiful soul ~ don’t ever let your voice go unheard. 💕 PS - Venting is healthy!!
There’s nothing worse than HAVING to get a new doctor when you have had a good one before. Keep the faith and hang in there ok. So sorry you have to go through this. Thank God for Zach. 😊😊
You know in nursing school they taught us that "your tensing up" is code for I'm horrible at blood draws. I'm assuming she wasn't taught that same lesson.
❤️ reminds me of the appointment I went to because I was feeling sick for over a month. I wouldn’t leave his office until he did some tests. Then he was sorry.. good for him! I’ve had to fire a few doctors. Not worth it! Hang in there!! A new doc is needed for sure, your not too picky or a complaining patient. Your awesome! Thanks for sharing.
Do not apologize!! I think so many of us needed to hear this. I am an endometriosis patient I know this is nowhere near the same thing, but I completely understand the quest for a good doctor). After my diagnosing doctor moved, it took me five different doctors to find one that would spend more than 5 minutes with me and ask me the questions that needed to be asked. It is so nice to hear someone else who has been there. A good doctor who listens and take time with the patient can make a world of difference in how the patient feels (both physically and mentally).
My heart goes out to you Maggie. I’m 60 and I’ve Health issues pretty much all of my life. I can’t relate to your health experiences but I can relate to your medical frustrations. It’s been good for me to watch your videos…..my spirits can get pretty low and tired of it all. I respect that you are a fighter! I get tired of people saying “to accept my new normal” when what I’m experiencing is NOT normal. Fight fight fight….and feel comforted knowing that you have friends unseen who really respect you and wish we could give you a great big hug! Your life and personal experiences are touching many lives. Thank You! God Bless You!❤️
As a fellow RN I can say this new computer box checking is such BS that there is no more compassionate care with the actual patient. It’s frustrating being a knowledged provider knowing you are not getting proper care and having to do way more leg work than you should. Seems providers don’t go the extra mile and you are just a chart.
I used to be a nurse here in uk the standard of nursing and lack of empathy and kindness has spread across the pond I’m almost grateful my fibromyalgia hastened my retirement as the stress of working to ever increasing deteriorating standards was impacting my mental health
I’m glad we could be your friend and be there to listen to you!. Being stressed is hard, being stressed and sick is harder, being stressed, sick and dealing with people who are not caring is impossible to cope with. I feel honoured you felt we were your your community enough to vent to us. All I can do is send you HUGE VIRTUAL HUGS 🤗💜🌸
Oh sweetheart, I'm so sorry you are going thru this. I'm going to be praying for you that God will give you peace and rest. So glad you vented. We are on your side and will listen whenever you need us. Hugs and more hugs. You are special and precious!
😔 I know how you feel, sometimes it feels like it never stops. Hope you’re feeling better now. You’ve gotten me through some very hard times; I appreciate you.
My heart breaks for you watching this, Maggie. I wish I could scoop you up in a giant hug. I too am a spoonie; I have chronic migraines, IBS, depression/anxiety, and a new diagnosis we're still trying to figure out lol. Having chronic illness is exhausting- symptoms, managing dr appts, meds, etc and manage regular life stuff/stress on top of it. It's awful when drs make things harder for you instead of easier. Praying you find a good new GI dr who treats you with the respect you deserve and that you would feel better soon. Thanks for sharing yourself and educating others. You have a beautiful heart and you're an inspiration to others struggling not to give up. It gets better!
Gosh Maggie, I wish I could explain in few words how the past few weeks have been just this for me. Fighting healthcare providers tooth and nail over simple but very important things. I'm so sorry you've been through so much recently. I hope you're able to mentally recover as quickly as possible. Sending good vibes
We pay astronomical prices for terrible care. I’ve been really sick in a third world country and got better care than I ever got here. And it cost a lot less. It’s insane. Why we don’t demand change is beyond me.
I am a professional pt and dealing with doctors is like herding cats. I have so many doctors in different systems and I have to make sure they talk and I didn’t go to medical school so I make it up as I go along. That causes me to get really sick more than I should. My life does not matter to most of my providers.
Dear Maggie, I am so sorry this happened to you. Don't apologize for your feelings, you deserve so much better. I was diagnosed with Ulcerative colitis several years ago and I totally relate to what you are saying... It's not that easy to go and have a colonoscopy and it's not always the answer to everything....
I am so sorry that you had to go through this. I have been a nurse for over 40 years, 20 of those in administration and it would break my heart to hear what you described. It doesn't take more time for healthcare providers to care, to be kind, to say you are sorry if you hurt someone. Thank you for providing a platform for others to share. I hope you can find a GI physician who cares. Also These patient electronic healthcare records are frustrating and I think the office staff have standard responses and don't even read your message. Please continue to take care of yourself.
Maggie, I cannot relate to most of your medical issues but as an empathetic human being I was nearly brought to tears. Consider this a hug and a wish for better service going forward. Thank you for sharing.
I’m glad you make these videos, small chance that some one somewhere might listen and make changes to how they operate. I wish more people could appreciate the knock on effects of their actions/inaction.
Hi you have all the right to complain you are a patient and these people need to do there jobs that's what they get paid for. Sorry you had to go through that and I'm sorry your not feeling well May God Bless you and Prayers for fast healing. Love you guys. Prayers always. Get Well Soon.
Maggie, you and Zak are such a source of encouragement and ya' know why? Because y'all are honest. We need honest in this world. You are becoming "the face and voice" for the American Healthcare System and all the problems that need to be addressed. God has a dynamic plan for you or else y'all both wouldn't be given this challenge in your lives. As a nurse and patient, your knowledge, insight, logical approach to sickness coupled with the emotional cost to the patient, will be so valuable to the rest of us. I truly believe that the future will have a public platform for you to speak for all of us. TH-cam is just the beginning. Blessings to you both. And, thank you. (By the way, I am crying for your suffering.)
I feel you. My RA doctor retired however they assigned a colleague automatically so that my Humira wouldn’t get interrupted. I don’t like the new doc. Wasn’t in love with the original one but she was thorough and took labs, X-rays, MRIs. I stopped Humira because of the pandemic and I still have 2 more pens (citrate free) that I’m happy to donate to you so you can have on hand. My pharmacist messed up an order and thought I took it once a week rather than biweekly so I ended up with extra until they fixed it all. I don’t find Humira helpful for me. This new doc spends less than 5 minutes with me…unreal. When I was on Humira I needed to go every 3 months so I called to schedule my 3 month appointment and they gave me an appointment for 9 months later! I asked why since I’m on this med and I’m on a 3 month rotation and they were like, nope, that’s the next appointment and I said ok, then I’ll find another doctor, thanks. Doctors nurse called me the next day apologizing and somehow got a message that I was going to a new doctor. I said I was since he didn’t have the capacity to see me every 3 months which is typical with this med. she made the next 2 appointments for me. But I’m still looking for another doctor because I’m cranky and in pain EVERY DAY and if I strike out with this one I’m done. I’ll just live like this. Can’t take rude medical workers and it’s best they don’t get rude with me because I have a SHARP tongue! Stay strong girl! You’ve got this and you have all your followers to lift you when you’re down ❤️
Thank you so much for being vulnerable. I’m so sorry that this is going on. You’ve been a really important person for me in my illness and i just really appreciate you opening up about it ❤️❤️❤️❤️
My heart goes out to you. I hate that you had to go through this, and you continually go through this stuff all the time. I just wish healthcare providers were... better... in this country (U.S.). I wish there was universal healthcare with apps that worked consistently for everyone. I wish that healthcare didn't cost so much in time, money, and mental and emotional processes. I am glad that you made this video. It helps remind those of us in the healthcare field what challenges and obstacles and absolute soul-crushing, draining stress that managing a chronic condition can often feel like to a patient.
Love u Maggie. ..I've been disabled by the health profession wjo didn't advise me about what a drug could do to me. In two days I will be told if I now have to have an ileostomy. You aren't imagining how callous these people can be..... I've felt it first hand. We have the right to be upset. They are supposed to be taking of us.. Some are fabulous some are very narcissistic and in the wrong job!!! Our feelings are valid don't believe otherwise. I have zero support (fam dont care)and I love the fact you share how you feel ... it makes it real for me that I'm not crazy or quite so alone. All the best to you ❤🙅
I could type a novel about some of my experiences with my broken back and taking care of mother who just moved in with us from a different state. Right now the most important thing is for you to feel better and get a better dr. I am sure there are so many others who understand your frustrations. Hugs!
You are amazing. There must be so many people in a similar position to you. I hate to see a beautiful lady like you upset. Thank you for being real and taking us on our journey good and bad. Sending you both love and hugs and I hope things get better. Xx💕
Had a doctor tell me “we’re going to do all kinds of pill cams and endoscopies” - I never saw him again. I knew he was all about the volume and I had really mild symptoms. It’s okay to be picky.
OH MY STARS !!!…oh Maggie I hate you are having to go through all of this…but I do understand & you have every right to feel the way you do!!!…I have an ileostomy & I totally get it!!!…you as the patient should get the best care ever!!!…sometimes the doctors & nurses are only there for the paycheck & don’t really care about the need of the patients!!!…I hope you feel better soon!!!…you are a BEAUTIFUL & WONDERFUL lady!!!…
I totally get it. I have been passed around from doctor to doctor. Recently my feeding tube broke and I went 6 days without food/nutrition until I could be fit in for emergency surgery. The other great one is the endocrinologist that tells me I don’t have hypoglycemic episodes despite the reading on my glucometer. I am going to Mayo Clinic in two weeks hopefully getting answers.
I so hear you Maggie! I was crying for you as I know how this feels-it's overwhelming and maddening!! I don't know how you got thru this without crying-way to go. You need to find a kind, caring IBD specialist-keep trying until you get the right one!
A doctor you have had for along time and you like retires, it sucks. I have severe insomnia which I have taken same 2 medications for 25 years and they work. My doctor retires and I get a new younger doctor and she says I don’t think it’s good to be taking these 2 medications together. What? I have been doing this for 25 years and now this new chick doctor says I’m taking you off one of them which would eventually kill me because sleep is life. You don’t sleep you die. So had to doctor shop until now found one who listens to the patient, which is hard o find,, and gives me both medications. So totally feel your pain, thank you for being real and being you. And for sharing, we are on your side. Hope you feel better soon🙏
It's one thing when a person is healthy to have to deal with borderline incompetence but when you're vulnerable, to feel no ones looking out for you, just hurts. I'm so sorry Maggie.
I can relate love. You & I have been dealing with this kinda stuff forever. 30 years now for me and I'm only 36. Hang in there sweetheart. You're so strong and an inspiration to me. I don't feel so alone in this battle anymore. Sending hugs from Florida.
Geeeeeeeeeez. This sounds like the disaster my aunt goes through CONSTANTLY when trying to get her insulin and other diabetes meds refilled. Absolutely infuriating!
I'm so sorry, Maggie! I hope you feel better soon. It actually really helps to hear someone who works in health care talk about problems. We all know they exist. I have close friends who have like five doctor's in their family and they will never admit that there are problems. (Also, I feel like they have a very different experience then I have with access to health care. They can potentially get a family member to write a prescription for them, I don't have that option.) I'm always afraid a prescription that I really need and isn't super easy to get will run out. And the doctor's office and Phramacy is always like, "We've got it all under control." And I'm like "Uh, sure...." My doctor finally gave me his cell phone number. I don't know all your options, but I hope that you can switch doctors.
I think you as a patient have every right to question and complain if you feel you need to. I have been going with my mom to most of her Dr appointments and I will not tolerate bad bedside manners at all. We all know that we as patients are in a very vulnerable state and the last thing we need is to be talked down to or talked about that is totally uncalled for. As you can tell I feel strongly about this issue. Just know that you don’t have to settle keep looking for the right Dr. that will take the time to listen to you. There are plenty of great Drs out there. Best of luck to you !
You are right to feel as you do. You shouldn't have to be a squeaky wheel, you shouldn't have to be your own health advocate. More and more doctors and their staff seem so incompetent! I am constantly falling through the cracks. I feel for you when a good doctor retires its awful. Hug your hubby and dogs, I'll pray you have a better night.
You are NOT wrong for venting sweet lady!! I vented a bit to my husband earlier today (actually yesterday now) as I've been super frustrated, my mobility is limited, I've lost all of my teeth due to chemo and radiation, so I have to get dentures, but I have a few teeth on the bottom of my mouth that are just too painful to extract with local novacaine, so I have to go to an oral surgeon for sedation in order to get those teeth out, then I start wearing dentures!!! I SO very much feel for youm please try and get a new GI doctor, and if you have a situation like you did at the lab again, praying you don't, ask to speak to a supervisor, and make sure Zak is with you, as your advocate, if necessary. It's SO sad that we, as, sicko feeling like crap patients, have to oversee and advocate everything, but with the way our healthcare system is, we pretty much do. I cancelled an appt yesterday with my oncologist, it was a 6 month check up, I've been in remission for years and I just couldn't pull myself together to go, I am doing what I feel I need to, and until I get my mouth straightened around, I can't deal with much else. Do yourself a huge favor and take an entire day for just YOU, everything else can wait 24 hours, rest, watch a funny movie, get hugs from Zak, whatever YOU need . You are so strong, but even us strong people need a break every so often. Sorry this is so long, but I definitely understand how you feel and just wanted to share some love and support with you. Take good care!! ❤❤❤
Please don't apologize for sharing your rough times with us. I know I speak for many of your subs when I say that we care about you and appreciate you and all that you give to us. I am 58 and I have had to fight with doctors, nurses and phlebotomists many times when I shouldn't have had to, for both myself and my daughter. I am so sorry that you have had to fight so hard to make them do what you are paying them to do. It sucks even more when you don't feel well and you have other things in your life stressing you out. Sending you love and support from Atlanta GA
Maggie, you are NOT asking too much. I’m a CT Tech(with over 16 years experience) and I feel the same way about my colleagues across specialties who display that attitude and deplorable patient care. The ones who act that way should work at a bank or something. They have no business in the healthcare field if they have no regard for the lives they touch everyday. I’m so sorry that you are going through this. I also am a patient with multiple chronic illnesses. I can totally relate. Not specifically GI related but in the sense of dealing with providers/staff who are checked out. Much love and hope you start feeling better soon. ♥️🤗♥️🤗
I totally get how this feels... im in the UK, but every single time I put in a prescription for meds and continence supplies I order it online, I specifically put in every comment box ring me if there's any issues... at least once a month there's a problem and don't call, so I have to order meds, 2 days later ring the drs, and two days later ring the pharmacy see if its ready, they dont seem to get the stress x
Medical PTSD is so real. I have the same issues. It hurts me to watch you hurting. Quit gaslighting yourself because they're gaslighting you. If you don't advocate for yourself, nobody else will. Don't forget how many things you've been through, and you've advocated your way through ❤️
OMG sweetie no, don’t feel bad about venting! You are totally valid in how you feel! Being the patient sucks! Vent as often as you need to!!!! When we should be the focus but instead are treated like the problem this is the entire issue with the healthcare industry! I’m so tired of my doctor not listening to me! I’ve asked for testing and gotten “I have no reason to think that your condition is anything other than this (which is a catch all diagnosis that they use when everything else is ruled out)” instead of let’s rule out these other things before we say your diagnosis is this, and then lumped into the catch all diagnosis when all tests rule out everything else when I’ve never been tested for everything else! I’ve asked to be referred to a specialist and been told “they don’t treat what I have”, but they treat the other conditions that you won’t test me for. I’m tired of feeling like crap and not being listened to! But then when I suggest seeing someone else I get “oh your just doctor shopping” and “if you see someone else then we can’t see you anymore and won’t be prescribing you meds anymore”. And then what if the new dr refuses to give you the meds you have been on for years and so you’re stuck with no meds and no dr. Then when you try to explain that the meds don’t work as well as they used to, because you’ve been on them for years and your body is built up a resistance or immunity to them or they changed the way they make the meds so they aren’t as potent, you get “well we don’t want you to become dependent on the meds and even possibly addicted to them so no we won’t change your dose,” that’s a load of crap! I’ve been on one med for years and they told me they won’t give it to me anymore because it can cause bone loss and osteoporosis so the send me for a bone density scan and don’t find osteoporosis and say I only have a 5% chance of fracture over the next 10 years but we still aren’t going to give you the meds anymore but we will give you this instead which come to find out is the same meds just in a different form and different name instead of a shot every 3 months it’s a pill you take every day what’s the difference give me the shot that I only have to remember every three months instead of another pill I have to take and remember every day! These doctors only care about $ they don’t care about us. Went to a different chiropractor than my usual one, my usual one didn’t have any openings but when I went to them they adjusted everything that could be adjusted and I was good to go, different one only wanted to adjust my neck and then popped it right back out so I would have to come back for another appointment the next day then did the same thing the next day, and mind you I left the day before in more pain than I walked in the building with, then after a repeat of the day before wanted me to come back daily for two weeks then weekly for three months at a charge to my insurance for each visit and a 25$ copay for each visit from me and I only get 26 visits a year and that would have been 24 visits. So yeah you can’t make me believe they aren’t in it for the money! They have lost their focus! If I wasn’t already 47 I would go back to school to be a doctor and treat my patients with compassion, respect, dignity and the belief that their concerns were valid, but by the time I finished I would be retirement age!
My Gastroparsis does that to me, worse pain than having birth. Makes me roll into a ball and just cry, I get pain in my back and in my front. It burns really bad!!
Insurance decided that my Humera can only be given in 1 month refill instead of 3 months at a time. Specialty pharmacy cannot refill since I now need a 1 month prescription instead of 3. Well my GI medical practice seems unable to respond to my phone calls, the fax messages from specialty pharmacy. Been without Humera now for almost 2 months & of course I am now in a NASTY flare. End of rant.
Thank you for preaching it!! I know first hand myself, when you have multiple health issues others have no clue what it's like! Thank you for all you do on your channel, my prayers are with you! Just remind yourself that all the crap you are faced with you will rise above it because dealing with them makes you that much more of a superwomen!
Sorry for the rough time you are having, but glad you are talking about it. Healthcare is frustrating, painful, humiliating and expensive. Recommend that you try to find better providers, while dealing with the ones you have. Healthcare is a service business. Those aspiring to go into healthcare careers should be thoroughly screened for attitude and motivation. Technical proficiency can be learned, but attitude and motivation cannot. Over the years I have found there are always some people I like and some I don’t. I try to only deal with with the former and avoid the latter.
Maggie - I appreciated your rant I just got an ostomy 6 months ago. With your help and other videos on line' I'm learning things I should know. You are a great help...thank you. I'm older, 71, I've gone through so much of what you're talking about. Please don't give up; you're helping so many people like me. Thank you. I'm going through all you videos.🌹🌹🌹 Peggy K
I hear you and understand. Don't minimaliz these situations. Put your foot down and let them have. I'm someone who has had a difficult time and continue to.
When I was 11 and first starting to try and get a diagnosis my pediatrician told me that my leg and back pain was just growing pains after only doing an x-ray of my legs and checking for scoliosis in my back. My mom being the amazing mother she is didn’t buy that shit and took me to a leg specialist who ordered a full body scan which found a cyst and fluid in my spine and two bulging disks in my spine against my sciatic nerve.... and I’m now also diagnosed with endometriosis now so yeah, six doctors later and I’m managing my symptoms now xD
Hope you have a better day and are feeling better. Sending hugs! I’m a nurse as well and we expect respect and when not feeling well our tolerance goes way down. Everyone deserves respect. We would never complain to our patients about the work they are causing us to do because we expect to work for our job.Take time to care for you!!
Keep your chin up and keep fighting for YOU!!! I understand everything you talked about as I have also experienced the same things. Difference being my struggles have only been the last 18 months. I pray for you and Zach nightly as your videos have gotten me through some dark times within my own health journey. I am blessed to have stumbled across your videos. Go ahead and shout those frustrations from the rooftops. They are real, not imaginary and putting a voice to those thoughts always helps.
Oh, Maggie, I'm so very sorry that you are having such a difficult time. When you don't feel good it makes going through all of this that much more difficult. Praying that your get some much needed comfort and relief soon 💕
You are totally justified in everything you told us in this video. You're right, you need to get another Dr that specializes in your health issues. The snarky office staff didn't help at all. These people, Dr's & snarky office staff WORK FOR YOU. That's how you have to look at it. 🙂
Hi Maggie, I am so sorry that you have had to endure this . We have the same situation here in England too. I am constantly having to chase up on prescriptions, appointments & supplies etc. Sometimes I get so angry & frustrated & just feel like nobody cares let alone understands. Having a chronic illness is enough in itself to deal with day in & day out. I call our services “ The National Don’t Care “. ..........There you are, I’ve vented !!!!! Love to you & Zak from Kit XX.
I am so sorry that you are going through this! I learn so much from your videos! I went to a Gastroenterologist for a diagnosis due to repeated ER visits for severe abdominal pain. Multiple tests were ran and the Dr knew I had Crohn’s but didn’t tell me before he closed his practice for 6 months to travel the globe. I found out when another Dr I see called me to find out what Crohn’s medication I am on since he didn’t see it in my chart. I told him that I wasn’t on anything for Crohn’s because I hadn’t been diagnosed with it. He said that the diagnosis is in my chart and he was getting my a referral to an IBD specialist ASAP and was filling a complaint on the gastroenterologist. Thankfully I now how a wonderful IBD Dr!
Oh honey I’m so sorry! I hope things settle down for you soon! Healthcare right now is at an all time low. My GI doctor had to be prompted by my infectious diseases doctor to schedule my Remicade! And that was after I told him that I hadn’t heard from them in a month! Don’t feel at all bad about venting-we love you and you have many, many shoulders to cry on!! ❤️❤️
At my dr’s office they have it wrote in my chart that I absolutely will not allow a certain phlebotomist take my blood. The only and only time she did she was dropping things on the floor, picking them up with her gloved hand, threw them away and never once changed her gloves. I think I’m super veiny yet when I had a colonoscopy done a month ago it took 4 nurses plus the vein finder to put In my IV. Then all I got for two weeks at work was oh honey what happened to your arms?
Hey! I started watching you a while ago you’re such a sweety! I’m so sorry you suffer so much! But, you have such a positive outlook on things! God help her!! Don’t let these stupid dr. take advantage of your sweet, good, soft heart. Ugh! Some dr. Are just awful!!! Go somewhere else! Don’t put up with bs!! And, it’s really therapeutic to talk it out!! You are awesome!!!
Maggie, I’m so very sorry you went through this…sad thing is, I think most of us chronic illness patients have and probably most patients in general, and OT HAS TO STOP!! We are not just a number or an appointment, Its OUR Very LIVES andOUR FAMILIES AND/SIGNIFICANT OTHERS LIVES TOO.. The thing is, it’s not their lives or them fighting, suffering, and living with the pain and symptoms we do on a daily basis, every single second of every single day and night for us! It has to stop!!! I know we all in this chronic illness community feel the same when we say we wouldn’t wish this on ANYONE!! Again, I’m so very sorry! I just got my urostomy and my diseased bladder removed in Jan 2023. I was born with my bladder on the outside back in 1980, and I also have several chronic illnesses as a result. I’m so thankful I found you and your channel back before my surgery when I was searching for information and comfort in preparing for this big change. You have helped me so much and I’m forever grateful, and I hope that I too, can someday make videos and posts to help others like you and I. I’m praying for you and sending you love and happy thoughts!!
I have had some of the worst doctors so I understand 120%. I wish all doctors actually listened to their patience and tried to understand where we are coming from. I am thankful for those doctors who listen and understand (or at least try to) what a person may be going through. Rant all you need to, quoting a movie "Let it go!"
I am so sorry for everything that you are going through. You do not need to apologize for anything. You have every right to be upset. We have to be our own advocate. I used to be intimidated by doctors thinking we have to accept everything they do and say. I do not think that way anymore thank goodness. My mom would say that not every doctor graduates top of their class. I hope you feel better soon and I will pray for you sweetheart.
![เปิดใจ “ต้นหอม ศกุนตลา” หลังโดนพาดพิงธุรกิจที่เคยทำ และผลกระทบทำถูกปลดฟ้าผ่า! | แฉ 24 ต.ค.67 [2/3]](http://i.ytimg.com/vi/vCi5OIqlxaE/mqdefault.jpg)
I can't even explain how thankful I am to all of you for letting me make this video and supporting me.
Your frustrations are exactly how I would feel in the same situation. Knowing things from both a medical professional and patient perspective makes for a unique take on things. I am an emergency DVM and work overnights. I spent way too much time inpatient at a new hospital the last thirty days (fourteen going on fifteen days between two stays). I got readmitted two weeks after a nine day stay and even with it documented in my chart what IV fluid and tube feed schedules I use at home and while inpatient I had an overnight hospitalist try to stand firm about not ordering the liter of fluids I get overnight (I did not have any fluids or tube feeds all day). I was on night two and when the nurse said that the overnight doctor was probably afraid to make a misstep" I was a very polite but ticked off patient. I told them that I wanted to speak with the provider and guess what? They ordered the fluids. I am in charge of other DVM's inpatients at work and if I saw documentation that meshed with what was being requested (by a patient to doctor in my case or owner/veterinary nurse to veterinarian) and I see no contraindications it is a no brainer. As far as appointments with new doctors I am at the point I do not want to waste time. If I do not get a good feeling the first go around I switch. Moving from Nebraska to Connecticut was harsh.
So sorry you are dealing with this Maggie. You vent to us anytime you need too. 💗
You know what Maggie we’re sick of being sick!
There I said it! Smile Maggie I mean all of us that have chronic illnesses!
Much, much love to you❤️
There seems to be an overwhelming number of Health care providers who are incompetent right now. I totally feel your frustration right now and hate to admit that I am feeling the same. Pretty sure I have blockage and my primary cares answer is miralax, stool softener and fluids 🙄. I can’t get in with my GI for a month, went to the ER because pain was off the charts(I have had 30 surgeries including a rectocele repair, this is pretty up there) the ER does a CT and says oh you have a navel orange size hemorrhagic cyst where your ovaries used to be. I said I’ve had cyst before this pain is different and I haven’t 💩 in 2 weeks and have been taking miralax and stool softeners, along with my normal medication of Linzess. Well CT only saw the cyst so that’s all that’s wrong. 🤯🤬 Called GI and told them hey can you have the dr check my CT that was done at the same hospital I already signed release forms, to which they say he will check them at your appointment in a month. Yes I am in tears with you, but we will persevere somehow. Praying for you
You just summarized what almost every person has experienced!! Phone calls that don't get returned, mixed messages, more than one answer to a question, aps that don't work....and doctors that are more concerned with the computer in front of them than the actual patient. I feel so bad for you, a long term illness is such a drain on you. I hope it gets better. Get a new doctor!!
We just came off of 2 weeks dealing with mixed messages for hubby's meds because nurse was out of office (so app was worthless) and front desk can't relay a message to save their own lives (how many times do I need to say 3 month supply for mail order until you understand this?!? and still end up getting sent a one month supply 🤦♀️🤦♀️🤦♀️).
No need to be sorry! I’m in the medical field as well but I’m also a patient. I recently went to the ER and one of the nurses just took my arm without telling me she was going to insert an IV and I was like “what are you doing?” I feel that people in the medical field forget that they are working with people not just a checklist.
Absolutely can relate. Don’t apologize. You’re 100% right, it shouldn’t be your job as the patient to make sure HCPs do their jobs properly. It is exhausting. And frustrating.
@sky Health Care Providers
No your not being picky, some doctors & nurses don't care about patients..I had an appointment and my Dr said "I read the notes, your gona take this prescription, and your gona do this and that...then I told the Dr" wait do you not want to hear what I'm feeling how and when this started happening? , No you don't need to tell me what you have I know what you have.. I was there for literally 5minutes..but in the waiting room 1.45 minutes..🤔. Drs & nurses need to be more sensitive to their patients we r people.. not all nurses or Dr are like this but some...
Grrrr.. wish we could charge them for our time waiting for them...
And they over book themselves so they can't take the time they should with their patients. It sucks.
It is getting worse all the time.
Been there done that … it is a doctors thing and a wrong system that is everywhere … also here in Belgium. Doctors are super arrogant
🇬🇧 OMG I can’t believe the difficulty your having with your medication etc. Here in the UK I have a personal Stoma nurse who is located at my local hospital who takes my calls and sorts out any problems I may have regarding my colostomy products and liaisons with my GP (general practitioner) I can obtain blood work and medication anytime through my doctor’s surgery and all my stoma products are delivered to my home on a monthly basis and are also pre cut to my stoma size for me. All of this for FREE GOD BLESS THE NHS. Shame on the USA for treating its citizens like this.
I agree. I'm an American living in France and here patients just don't have to endure the obstacles, challenges and frustrations that Maggie has had to with her health provider and the overall Healthcare system in the US. I am so very sorry for all that Maggie and Zak are having to go through. Totally unneccesary suffering. Lisa
@@lwc3310 i am french and working for the french healthcare system. I knew the US system was diffrent from ours but I didn't know it was so difficult to get treatment for a chronic illness.
@@lwc3310 That must be why so many folks flock to the US for the latest and most sophisticated treatments. Like my cousins from Canada. The US health care has it's faults however it's still the best in the world.
I am in the UK too & have constant problems with the so called health services. Maybe you just got lucky.
@@padrat88 Thank you for pointing this out. We may have our problems, but I couldn't agree more.
This is why I am going to nursing school now, in my thirties, as a mom and patient myself of multiple chronic illnesses. Patient care is HUGE. It is the point of healthcare! We have to do better. You deserve better.
We need more people like you getting into nursing for the RIGHT reason, sending you prayers, it’s inspiring that you are not letting your chronic illness keep you from doing this!❤️
@@sharib5922yes!! So many people get into it for the wrong reasons
I don’t think you’re being picky. It’s your body, your life and your money!
Maggie, I want to wrap my arms around you in one giant hug and cry with you ❤️ I am so sorry you are dealing with such horrendous health care. This story is all too familiar when it comes to healthcare and it troubles me deeply. Your feelings are valid, your frustration is valid, your needs are valid. I am so sorry you've had to push and push to advocate for your needs, it should not be this difficult to get the medications we require to manage our condition. Shame on that provider for not doing more for you as a patient, as a human being. I hope things begin to turn around for you, and I hope you can find a provider who truly looks at you wholistically as a patient. I'm cheering for you, you're a warrior, you've got this ❤️
Hi Mqggie. I started watching your videos a few weeks ago. I don't have Chron's disease but I have radiation colitis and rectal cancer. Your videos have been helpful and I enjoy watching your beautiful dogs and your work in the farm. You don't have to apologize and you have all the right to vent. You are not been picky. There are a lot of people working in the medical field that should be working doing something else. I have surgery on July 6th to remove the tumor and to have a colostomy done and in the last two weeks, I had headaches dealing with the lab place and with my primary doctor's office, just to be able to get clearance for my surgery. It shouldn't be that way. They are there to help you not for you to do half of the job for them. I hope you find a new good GI doctor and I hope you feel completely better very soon. Hang in there. You are warrior! An inspiration to many. All the best to you, your husband, your doggies and all the animals in the farm ❤️
@Sara Thank you!
It's sad when you have to apologize and feel like you're asking too much for people to just be kind and considerate.
Oh Mags, I hear you sister! It's hard not to get emotional when you're not feeling well and it's hard when you're doctor that you love retires, and it's hard when the new doctor basically sucks. I think we've all been there from time to time. All I can say is hang in there and feel better! Oh, and find a new GI doc! ❤
I think every Crohn’s patient has multiple of these stories and frustrations. I’m sorry you’re feeling crappy and hope you feel better soon x
I've been saying for a long time now, that the medical profession is nothing like it used to be!
Oh Maggie, I understand exactly what you’re going through. I’m on a bunch of meds for my back pain, and you can’t just quit those kinds of medications cold turkey. It’s beyond frustrating and maddening. I could write you a book about everything I’ve been through since I was 16, and I’m now 35. Thanks for opening up to us about what’s going on, and never be sorry for having to vent.
I recently had 9 vials of blood work done at LabCorp and they were not nice to me at all. I had one girl who did it perfectly and felt no pain. Then the next time I went, the lady just jabbed the needle in and I started to cry as well. It takes a lot for me to cry when it comes to pain, so when I do cry, my family knows it must be really bad. I’m so sorry you’re going through this, as well as the many people on here who also knows what it’s like. Hang in there!!
I just wrote a huge story as to why I was made to quit, mostly likely similar meds, cold turkey to miscommunication and being treated like hell. I know your pain and I am so so sorry.
You deserve to be seen and validated. We love you Maggie, hang in there ❤️
Maggie, it truly is frustrating! I have been waiting 6+ days for the office to call me to schedule for colonoscopy and enteroscopy! I just wanted it scheduled, prep done and the procedures to be over for answers! Take care of yourself and there is nothing wrong with venting!
Don’t apologize for your venting! You needed to let it out. I’m sending you hugs! Are there any other GI docs in your area. Maybe you should talk to people you worked with when you were having a few months ago? Maybe she was a nurse practitioner. I’m going to say a prayer for you if that’s OK with you. Go rest up, you’re over extending yourself.
I hope this lady is not an NP..she would give us a bad name. IF she is an NP frankly her case should have been referred to a medical doctor just due to Maggie’s complexity (multiple surgeries, longevity and severity of disease…etc) also she would have had a collaborative physician to consult with prior to her appointment just to prepare..the nurse could have done some case management to coordinate medications ALL of it and if needed a PsyD if the person is really struggling with stress, anxiety, a dietitian for food counseling to help troubleshoot problems like obstruction..just so much can be done with a provider whose head is in the game and has a heart that cares..
The follow up notes from appointments always has me shaking my head. I wonder if they even listen to me while I'm talking.
Coming from someone who doesn’t have a fraction of the issues you have gone thru, what you said about “I don’t have the time (or energy) to diagnose myself…” is so spot on! I only go to the Dr when I’m really sick for that reason. Who needs that stress?! And my daughter always gets the anorexia diagnosis because she’s so tiny and is afraid to tell them she doesn’t know why she feels so bad sometimes. It’s a viscous circle, and yet could be easily overcome if they would just actively LISTEN to the patient tell her story. You are a brave and beautiful soul ~ don’t ever let your voice go unheard. 💕 PS - Venting is healthy!!
There’s nothing worse than HAVING to get a new doctor when you have had a good one before. Keep the faith and hang in there ok. So sorry you have to go through this. Thank God for Zach. 😊😊
You know in nursing school they taught us that "your tensing up" is code for I'm horrible at blood draws. I'm assuming she wasn't taught that same lesson.
❤️ reminds me of the appointment I went to because I was feeling sick for over a month.
I wouldn’t leave his office until he did some tests. Then he was sorry.. good for him! I’ve had to fire a few doctors. Not worth it!
Hang in there!! A new doc is needed for sure, your not too picky or a complaining patient. Your awesome! Thanks for sharing.
Do not apologize!! I think so many of us needed to hear this. I am an endometriosis patient I know this is nowhere near the same thing, but I completely understand the quest for a good doctor). After my diagnosing doctor moved, it took me five different doctors to find one that would spend more than 5 minutes with me and ask me the questions that needed to be asked. It is so nice to hear someone else who has been there. A good doctor who listens and take time with the patient can make a world of difference in how the patient feels (both physically and mentally).
My heart goes out to you Maggie. I’m 60 and I’ve Health issues pretty much all of my life. I can’t relate to your health experiences but I can relate to your medical frustrations. It’s been good for me to watch your videos…..my spirits can get pretty low and tired of it all. I respect that you are a fighter! I get tired of people saying “to accept my new normal” when what I’m experiencing is NOT normal. Fight fight fight….and feel comforted knowing that you have friends unseen who really respect you and wish we could give you a great big hug! Your life and personal experiences are touching many lives. Thank You! God Bless You!❤️
As a fellow RN I can say this new computer box checking is such BS that there is no more compassionate care with the actual patient. It’s frustrating being a knowledged provider knowing you are not getting proper care and having to do way more leg work than you should. Seems providers don’t go the extra mile and you are just a chart.
I used to be a nurse here in uk the standard of nursing and lack of empathy and kindness has spread across the pond I’m almost grateful my fibromyalgia hastened my retirement as the stress of working to ever increasing deteriorating standards was impacting my mental health
Ask your wound nurse to refer you to a new GI Specialist. So Sorry you had a terrible experience with doctor and getting blood work.
I’m glad we could be your friend and be there to listen to you!.
Being stressed is hard, being stressed and sick is harder, being stressed, sick and dealing with people who are not caring is impossible to cope with.
I feel honoured you felt we were your your community enough to vent to us.
All I can do is send you HUGE VIRTUAL HUGS 🤗💜🌸
I'm sorry. I hope next time you are shown all the kindness you deserve. Blessings
Oh sweetheart, I'm so sorry you are going thru this. I'm going to be praying for you that God will give you peace and rest. So glad you vented. We are on your side and will listen whenever you need us. Hugs and more hugs. You are special and precious!
😔 I know how you feel, sometimes it feels like it never stops. Hope you’re feeling better now. You’ve gotten me through some very hard times; I appreciate you.
My heart breaks for you watching this, Maggie. I wish I could scoop you up in a giant hug. I too am a spoonie; I have chronic migraines, IBS, depression/anxiety, and a new diagnosis we're still trying to figure out lol. Having chronic illness is exhausting- symptoms, managing dr appts, meds, etc and manage regular life stuff/stress on top of it. It's awful when drs make things harder for you instead of easier. Praying you find a good new GI dr who treats you with the respect you deserve and that you would feel better soon. Thanks for sharing yourself and educating others. You have a beautiful heart and you're an inspiration to others struggling not to give up. It gets better!
I'm so sorry I've had terrible times with doctor's also and blood work. They need compassion and they need to do their job.
Gosh Maggie, I wish I could explain in few words how the past few weeks have been just this for me. Fighting healthcare providers tooth and nail over simple but very important things. I'm so sorry you've been through so much recently. I hope you're able to mentally recover as quickly as possible. Sending good vibes
We pay astronomical prices for terrible care. I’ve been really sick in a third world country and got better care than I ever got here. And it cost a lot less. It’s insane. Why we don’t demand change is beyond me.
I am a professional pt and dealing with doctors is like herding cats. I have so many doctors in different systems and I have to make sure they talk and I didn’t go to medical school so I make it up as I go along. That causes me to get really sick more than I should. My life does not matter to most of my providers.
Dear Maggie, I am so sorry this happened to you. Don't apologize for your feelings, you deserve so much better. I was diagnosed with Ulcerative colitis several years ago and I totally relate to what you are saying... It's not that easy to go and have a colonoscopy and it's not always the answer to everything....
I am so sorry that you had to go through this. I have been a nurse for over 40 years, 20 of those in administration and it would break my heart to hear what you described. It doesn't take more time for healthcare providers to care, to be kind, to say you are sorry if you hurt someone. Thank you for providing a platform for others to share. I hope you can find a GI physician who cares. Also These patient electronic healthcare records are frustrating and I think the office staff have standard responses and don't even read your message. Please continue to take care of yourself.
❤️❤️❤️ so sad to see you hurting. Made me want to cry. I hope things turn around for you very soon..
Maggie, I cannot relate to most of your medical issues but as an empathetic human being I was nearly brought to tears. Consider this a hug and a wish for better service going forward. Thank you for sharing.
I’m glad you make these videos, small chance that some one somewhere might listen and make changes to how they operate. I wish more people could appreciate the knock on effects of their actions/inaction.
Hi you have all the right to complain you are a patient and these people need to do there jobs that's what they get paid for. Sorry you had to go through that and I'm sorry your not feeling well May God Bless you and Prayers for fast healing. Love you guys. Prayers always. Get Well Soon.
Maggie, you and Zak are such a source of encouragement and ya' know why? Because y'all are honest. We need honest in this world. You are becoming "the face and voice" for the American Healthcare System and all the problems that need to be addressed. God has a dynamic plan for you or else y'all both wouldn't be given this challenge in your lives. As a nurse and patient, your knowledge, insight, logical approach to sickness coupled with the emotional cost to the patient, will be so valuable to the rest of us. I truly believe that the future will have a public platform for you to speak for all of us. TH-cam is just the beginning. Blessings to you both. And, thank you. (By the way, I am crying for your suffering.)
I feel you. My RA doctor retired however they assigned a colleague automatically so that my Humira wouldn’t get interrupted. I don’t like the new doc. Wasn’t in love with the original one but she was thorough and took labs, X-rays, MRIs. I stopped Humira because of the pandemic and I still have 2 more pens (citrate free) that I’m happy to donate to you so you can have on hand. My pharmacist messed up an order and thought I took it once a week rather than biweekly so I ended up with extra until they fixed it all. I don’t find Humira helpful for me.
This new doc spends less than 5 minutes with me…unreal. When I was on Humira I needed to go every 3 months so I called to schedule my 3 month appointment and they gave me an appointment for 9 months later! I asked why since I’m on this med and I’m on a 3 month rotation and they were like, nope, that’s the next appointment and I said ok, then I’ll find another doctor, thanks.
Doctors nurse called me the next day apologizing and somehow got a message that I was going to a new doctor. I said I was since he didn’t have the capacity to see me every 3 months which is typical with this med. she made the next 2 appointments for me. But I’m still looking for another doctor because I’m cranky and in pain EVERY DAY and if I strike out with this one I’m done. I’ll just live like this. Can’t take rude medical workers and it’s best they don’t get rude with me because I have a SHARP tongue!
Stay strong girl! You’ve got this and you have all your followers to lift you when you’re down ❤️
I completely understand your frustration level. There is such a disconnect in the "medical" field. I'm so sorry. Thanks, Maggie, for being so candid.
Thank you so much for being vulnerable. I’m so sorry that this is going on. You’ve been a really important person for me in my illness and i just really appreciate you opening up about it ❤️❤️❤️❤️
My heart goes out to you. I hate that you had to go through this, and you continually go through this stuff all the time. I just wish healthcare providers were... better... in this country (U.S.). I wish there was universal healthcare with apps that worked consistently for everyone. I wish that healthcare didn't cost so much in time, money, and mental and emotional processes. I am glad that you made this video. It helps remind those of us in the healthcare field what challenges and obstacles and absolute soul-crushing, draining stress that managing a chronic condition can often feel like to a patient.
Love u Maggie. ..I've been disabled by the health profession wjo didn't advise me about what a drug could do to me. In two days I will be told if I now have to have an ileostomy. You aren't imagining how callous these people can be..... I've felt it first hand. We have the right to be upset. They are supposed to be taking of us.. Some are fabulous some are very narcissistic and in the wrong job!!! Our feelings are valid don't believe otherwise. I have zero support (fam dont care)and I love the fact you share how you feel ... it makes it real for me that I'm not crazy or quite so alone. All the best to you ❤🙅
I could type a novel about some of my experiences with my broken back and taking care of mother who just moved in with us from a different state. Right now the most important thing is for you to feel better and get a better dr. I am sure there are so many others who understand your frustrations. Hugs!
You are amazing. There must be so many people in a similar position to you. I hate to see a beautiful lady like you upset. Thank you for being real and taking us on our journey good and bad. Sending you both love and hugs and I hope things get better. Xx💕
Had a doctor tell me “we’re going to do all kinds of pill cams and endoscopies” - I never saw him again. I knew he was all about the volume and I had really mild symptoms. It’s okay to be picky.
OH MY STARS !!!…oh Maggie I hate you are having to go through all of this…but I do understand & you have every right to feel the way you do!!!…I have an ileostomy & I totally get it!!!…you as the patient should get the best care ever!!!…sometimes the doctors & nurses are only there for the paycheck & don’t really care about the need of the patients!!!…I hope you feel better soon!!!…you are a BEAUTIFUL & WONDERFUL lady!!!…
I totally get it. I have been passed around from doctor to doctor. Recently my feeding tube broke and I went 6 days without food/nutrition until I could be fit in for emergency surgery. The other great one is the endocrinologist that tells me I don’t have hypoglycemic episodes despite the reading on my glucometer. I am going to Mayo Clinic in two weeks hopefully getting answers.
I so hear you Maggie! I was crying for you as I know how this feels-it's overwhelming and maddening!! I don't know how you got thru this without crying-way to go. You need to find a kind, caring IBD specialist-keep trying until you get the right one!
Your venting is VALID! Hope you are doing better and have a better week Maggie. Waiting for the NEXT ONE!! HUGS
A doctor you have had for along time and you like retires, it sucks. I have severe insomnia which I have taken same 2 medications for 25 years and they work. My doctor retires and I get a new younger doctor and she says I don’t think it’s good to be taking these 2 medications together. What? I have been doing this for 25 years and now this new chick doctor says I’m taking you off one of them which would eventually kill me because sleep is life. You don’t sleep you die. So had to doctor shop until now found one who listens to the patient, which is hard o find,, and gives me both medications. So totally feel your pain, thank you for being real and being you. And for sharing, we are on your side. Hope you feel better soon🙏
It's one thing when a person is healthy to have to deal with borderline incompetence but when you're vulnerable, to feel no ones looking out for you, just hurts. I'm so sorry Maggie.
I am glad you have this space to share. Sounds so frustrating. Sending love sister
I can relate love. You & I have been dealing with this kinda stuff forever. 30 years now for me and I'm only 36. Hang in there sweetheart. You're so strong and an inspiration to me. I don't feel so alone in this battle anymore. Sending hugs from Florida.
Geeeeeeeeeez. This sounds like the disaster my aunt goes through CONSTANTLY when trying to get her insulin and other diabetes meds refilled. Absolutely infuriating!
I'm so sorry, Maggie! I hope you feel better soon. It actually really helps to hear someone who works in health care talk about problems. We all know they exist. I have close friends who have like five doctor's in their family and they will never admit that there are problems. (Also, I feel like they have a very different experience then I have with access to health care. They can potentially get a family member to write a prescription for them, I don't have that option.)
I'm always afraid a prescription that I really need and isn't super easy to get will run out. And the doctor's office and Phramacy is always like, "We've got it all under control." And I'm like "Uh, sure...." My doctor finally gave me his cell phone number. I don't know all your options, but I hope that you can switch doctors.
I think you as a patient have every right to question and complain if you feel you need to. I have been going with my mom to most of her Dr appointments and I will not tolerate bad bedside manners at all. We all know that we as patients are in a very vulnerable state and the last thing we need is to be talked down to or talked about that is totally uncalled for. As you can tell I feel strongly about this issue. Just know that you don’t have to settle keep looking for the right Dr. that will take the time to listen to you. There are plenty of great Drs out there. Best of luck to you !
You are right to feel as you do. You shouldn't have to be a squeaky wheel, you shouldn't have to be your own health advocate. More and more doctors and their staff seem so incompetent! I am constantly falling through the cracks. I feel for you when a good doctor retires its awful. Hug your hubby and dogs, I'll pray you have a better night.
You are NOT wrong for venting sweet lady!! I vented a bit to my husband earlier today (actually yesterday now) as I've been super frustrated, my mobility is limited, I've lost all of my teeth due to chemo and radiation, so I have to get dentures, but I have a few teeth on the bottom of my mouth that are just too painful to extract with local novacaine, so I have to go to an oral surgeon for sedation in order to get those teeth out, then I start wearing dentures!!! I SO very much feel for youm please try and get a new GI doctor, and if you have a situation like you did at the lab again, praying you don't, ask to speak to a supervisor, and make sure Zak is with you, as your advocate, if necessary. It's SO sad that we, as, sicko feeling like crap patients, have to oversee and advocate everything, but with the way our healthcare system is, we pretty much do. I cancelled an appt yesterday with my oncologist, it was a 6 month check up, I've been in remission for years and I just couldn't pull myself together to go, I am doing what I feel I need to, and until I get my mouth straightened around, I can't deal with much else. Do yourself a huge favor and take an entire day for just YOU, everything else can wait 24 hours, rest, watch a funny movie, get hugs from Zak, whatever YOU need . You are so strong, but even us strong people need a break every so often. Sorry this is so long, but I definitely understand how you feel and just wanted to share some love and support with you. Take good care!! ❤❤❤
Please don't apologize for sharing your rough times with us. I know I speak for many of your subs when I say that we care about you and appreciate you and all that you give to us. I am 58 and I have had to fight with doctors, nurses and phlebotomists many times when I shouldn't have had to, for both myself and my daughter. I am so sorry that you have had to fight so hard to make them do what you are paying them to do. It sucks even more when you don't feel well and you have other things in your life stressing you out. Sending you love and support from Atlanta GA
Maggie, you are NOT asking too much. I’m a CT Tech(with over 16 years experience) and I feel the same way about my colleagues across specialties who display that attitude and deplorable patient care. The ones who act that way should work at a bank or something. They have no business in the healthcare field if they have no regard for the lives they touch everyday. I’m so sorry that you are going through this. I also am a patient with multiple chronic illnesses. I can totally relate. Not specifically GI related but in the sense of dealing with providers/staff who are checked out. Much love and hope you start feeling better soon. ♥️🤗♥️🤗
You’re speaking for a lot of us chronic illness patients. Thank you.
I totally get how this feels... im in the UK, but every single time I put in a prescription for meds and continence supplies I order it online, I specifically put in every comment box ring me if there's any issues... at least once a month there's a problem and don't call, so I have to order meds, 2 days later ring the drs, and two days later ring the pharmacy see if its ready, they dont seem to get the stress x
Medical PTSD is so real. I have the same issues. It hurts me to watch you hurting. Quit gaslighting yourself because they're gaslighting you. If you don't advocate for yourself, nobody else will. Don't forget how many things you've been through, and you've advocated your way through ❤️
Please don't apologize for sharing your frustrations. Sending you positive thoughts, and hope that you feel better very soon.
OMG sweetie no, don’t feel bad about venting! You are totally valid in how you feel! Being the patient sucks! Vent as often as you need to!!!! When we should be the focus but instead are treated like the problem this is the entire issue with the healthcare industry! I’m so tired of my doctor not listening to me! I’ve asked for testing and gotten “I have no reason to think that your condition is anything other than this (which is a catch all diagnosis that they use when everything else is ruled out)” instead of let’s rule out these other things before we say your diagnosis is this, and then lumped into the catch all diagnosis when all tests rule out everything else when I’ve never been tested for everything else! I’ve asked to be referred to a specialist and been told “they don’t treat what I have”, but they treat the other conditions that you won’t test me for. I’m tired of feeling like crap and not being listened to! But then when I suggest seeing someone else I get “oh your just doctor shopping” and “if you see someone else then we can’t see you anymore and won’t be prescribing you meds anymore”. And then what if the new dr refuses to give you the meds you have been on for years and so you’re stuck with no meds and no dr. Then when you try to explain that the meds don’t work as well as they used to, because you’ve been on them for years and your body is built up a resistance or immunity to them or they changed the way they make the meds so they aren’t as potent, you get “well we don’t want you to become dependent on the meds and even possibly addicted to them so no we won’t change your dose,” that’s a load of crap! I’ve been on one med for years and they told me they won’t give it to me anymore because it can cause bone loss and osteoporosis so the send me for a bone density scan and don’t find osteoporosis and say I only have a 5% chance of fracture over the next 10 years but we still aren’t going to give you the meds anymore but we will give you this instead which come to find out is the same meds just in a different form and different name instead of a shot every 3 months it’s a pill you take every day what’s the difference give me the shot that I only have to remember every three months instead of another pill I have to take and remember every day! These doctors only care about $ they don’t care about us. Went to a different chiropractor than my usual one, my usual one didn’t have any openings but when I went to them they adjusted everything that could be adjusted and I was good to go, different one only wanted to adjust my neck and then popped it right back out so I would have to come back for another appointment the next day then did the same thing the next day, and mind you I left the day before in more pain than I walked in the building with, then after a repeat of the day before wanted me to come back daily for two weeks then weekly for three months at a charge to my insurance for each visit and a 25$ copay for each visit from me and I only get 26 visits a year and that would have been 24 visits. So yeah you can’t make me believe they aren’t in it for the money! They have lost their focus! If I wasn’t already 47 I would go back to school to be a doctor and treat my patients with compassion, respect, dignity and the belief that their concerns were valid, but by the time I finished I would be retirement age!
I hope you're felling better after the vent, and are feeling better. Sometimes I wonder why someone works in the health field and are so not nice.
My Gastroparsis does that to me, worse pain than having birth. Makes me roll into a ball and just cry, I get pain in my back and in my front. It burns really bad!!
Insurance decided that my Humera can only be given in 1 month refill instead of 3 months at a time. Specialty pharmacy cannot refill since I now need a 1 month prescription instead of 3. Well my GI medical practice seems unable to respond to my phone calls, the fax messages from specialty pharmacy. Been without Humera now for almost 2 months & of course I am now in a NASTY flare. End of rant.
Thank you for preaching it!! I know first hand myself, when you have multiple health issues others have no clue what it's like! Thank you for all you do on your channel, my prayers are with you! Just remind yourself that all the crap you are faced with you will rise above it because dealing with them makes you that much more of a superwomen!
Sorry for the rough time you are having, but glad you are talking about it. Healthcare is frustrating, painful, humiliating and expensive. Recommend that you try to find better providers, while dealing with the ones you have. Healthcare is a service business. Those aspiring to go into healthcare careers should be thoroughly screened for attitude and motivation. Technical proficiency can be learned, but attitude and motivation cannot. Over the years I have found there are always some people I like and some I don’t. I try to only deal with with the former and avoid the latter.
Maggie - I appreciated your rant I just got an ostomy 6 months ago. With your help and other videos on line' I'm learning things I should know. You are a great help...thank you. I'm older, 71, I've gone through so much of what you're talking about. Please don't give up; you're helping so many people like me. Thank you. I'm going through all you videos.🌹🌹🌹 Peggy K
I hear you and understand. Don't minimaliz these situations. Put your foot down and let them have. I'm someone who has had a difficult time and continue to.
When I was 11 and first starting to try and get a diagnosis my pediatrician told me that my leg and back pain was just growing pains after only doing an x-ray of my legs and checking for scoliosis in my back. My mom being the amazing mother she is didn’t buy that shit and took me to a leg specialist who ordered a full body scan which found a cyst and fluid in my spine and two bulging disks in my spine against my sciatic nerve.... and I’m now also diagnosed with endometriosis now so yeah, six doctors later and I’m managing my symptoms now xD
Same here Mag! Totally get it.
OH MY GOD DON'T START ME!!..
On my Very similar problem with these ridiculous health care system!!!..
Hang in there Maggie this is terrible!
Please don’t second guess yourself. You have been going through this for a long time and know your body. I hope you can find the right doctor for you.
Hope you have a better day and are feeling better. Sending hugs! I’m a nurse as well and we expect respect and when not feeling well our tolerance goes way down. Everyone deserves respect. We would never complain to our patients about the work they are causing us to do because we expect to work for our job.Take time to care for you!!
Keep your chin up and keep fighting for YOU!!! I understand everything you talked about as I have also experienced the same things. Difference being my struggles have only been the last 18 months. I pray for you and Zach nightly as your videos have gotten me through some dark times within my own health journey. I am blessed to have stumbled across your videos. Go ahead and shout those frustrations from the rooftops. They are real, not imaginary and putting a voice to those thoughts always helps.
Oh, Maggie, I'm so very sorry that you are having such a difficult time. When you don't feel good it makes going through all of this that much more difficult. Praying that your get some much needed comfort and relief soon 💕
You are totally justified in everything you told us in this video. You're right, you need to get another Dr that specializes in your health issues. The snarky office staff didn't help at all. These people, Dr's & snarky office staff WORK FOR YOU. That's how you have to look at it. 🙂
Hi Maggie, I am so sorry that you have had to endure this . We have the same situation here in England too. I am constantly having to chase up on prescriptions, appointments & supplies etc. Sometimes I get so angry & frustrated & just feel like nobody cares let alone understands. Having a chronic illness is enough in itself to deal with day in & day out. I call our services “ The National Don’t Care “. ..........There you are, I’ve vented !!!!!
Love to you & Zak from Kit XX.
I am so sorry that you are going through this! I learn so much from your videos! I went to a Gastroenterologist for a diagnosis due to repeated ER visits for severe abdominal pain. Multiple tests were ran and the Dr knew I had Crohn’s but didn’t tell me before he closed his practice for 6 months to travel the globe. I found out when another Dr I see called me to find out what Crohn’s medication I am on since he didn’t see it in my chart. I told him that I wasn’t on anything for Crohn’s because I hadn’t been diagnosed with it. He said that the diagnosis is in my chart and he was getting my a referral to an IBD specialist ASAP and was filling a complaint on the gastroenterologist. Thankfully I now how a wonderful IBD Dr!
Oh honey I’m so sorry! I hope things settle down for you soon! Healthcare right now is at an all time low. My GI doctor had to be prompted by my infectious diseases doctor to schedule my Remicade! And that was after I told him that I hadn’t heard from them in a month! Don’t feel at all bad about venting-we love you and you have many, many shoulders to cry on!! ❤️❤️
At my dr’s office they have it wrote in my chart that I absolutely will not allow a certain phlebotomist take my blood. The only and only time she did she was dropping things on the floor, picking them up with her gloved hand, threw them away and never once changed her gloves. I think I’m super veiny yet when I had a colonoscopy done a month ago it took 4 nurses plus the vein finder to put In my IV. Then all I got for two weeks at work was oh honey what happened to your arms?
Hey! I started watching you a while ago you’re such a sweety! I’m so sorry you suffer so much! But, you have such a positive outlook on things! God help her!! Don’t let these stupid dr. take advantage of your sweet, good, soft heart. Ugh! Some dr. Are just awful!!! Go somewhere else! Don’t put up with bs!! And, it’s really therapeutic to talk it out!! You are awesome!!!
Maggie, I’m so very sorry you went through this…sad thing is, I think most of us chronic illness patients have and probably most patients in general, and OT HAS TO STOP!! We are not just a number or an appointment, Its OUR Very LIVES andOUR FAMILIES AND/SIGNIFICANT OTHERS LIVES TOO.. The thing is, it’s not their lives or them fighting, suffering, and living with the pain and symptoms we do on a daily basis, every single second of every single day and night for us! It has to stop!!! I know we all in this chronic illness community feel the same when we say we wouldn’t wish this on ANYONE!! Again, I’m so very sorry! I just got my urostomy and my diseased bladder removed in Jan 2023. I was born with my bladder on the outside back in 1980, and I also have several chronic illnesses as a result. I’m so thankful I found you and your channel back before my surgery when I was searching for information and comfort in preparing for this big change. You have helped me so much and I’m forever grateful, and I hope that I too, can someday make videos and posts to help others like you and I. I’m praying for you and sending you love and happy thoughts!!
Oh sweetie, big hugs to you. It’s a moment that seems endless. I know how difficult it is. The health care system sucks at time everywhere.
Make me cry 😢 I hopping you feel better,God Bless You I sent you a big hug
Have Zac take you on a beautiful road trip. Relax girl. Prayers for you.
I have had some of the worst doctors so I understand 120%. I wish all doctors actually listened to their patience and tried to understand where we are coming from. I am thankful for those doctors who listen and understand (or at least try to) what a person may be going through. Rant all you need to, quoting a movie "Let it go!"
I am so sorry for everything that you are going through. You do not need to apologize for anything. You have every right to be upset. We have to be our own advocate. I used to be intimidated by doctors thinking we have to accept everything they do and say. I do not think that way anymore thank goodness. My mom would say that not every doctor graduates top of their class. I hope you feel better soon and I will pray for you sweetheart.
You are the most beautiful person..my eyes tear up listening to everything you went through, hang in there Maggie..💝
I'm so sorry about your bad experiences. I pray things will be better for you in the future.
Bless your heart honey I just want to give you a big hug, you have been through so much! No way are you overreacting! Sending you love and hugs 🤗!