My MS Story, 6th Annual Update

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  • เผยแพร่เมื่อ 29 ก.ย. 2024

ความคิดเห็น • 100

  • @__Wanderer
    @__Wanderer 2 ปีที่แล้ว +1

    I am newly diagnosed (about 1-2 months), in my 20s and already have a bunch of lesions on my spine and in my brain :/ pretty scary, trying to apply similar lifestyle changes at the moment although considering taking Ocrevus. My first symptom was optic neuritis, went blind in one eye and after 3 months it's still very poor sadly :( makes me a little worried for the future / makes me feel like taking a DMT as if i go completely blind my life is over. I am done. My first flare up with ON was 5 weeks after I had covid (mild) for 10 days so I would definitely say that wasn't a coincidence. C19 seems to attack the nervous system as well / aggravate it for sure. Edit: very happy you're doing well :) it's inspirational for sure, gives me a little hope!

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว +1

      Sounds like some real challenges! I'm sure you'll make some good decisions. Just know that many of us are doing well (and are much older now) ... so there's hope. Check out Matt Embry's story. Check out the "Overcoming MS" stuff. And most of all hang in! Rest up and stay positive. You've got this

    • @__Wanderer
      @__Wanderer 2 ปีที่แล้ว

      @@SpencersMSStory Thank you so much for your reply Spencer :) Feels overwhelming but I am wanting to fight this any way I can! Will follow you along the journey - will definitely check out the overcoming MS stuff, thanks for the recommendation!

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว +1

      @@__Wanderer Hang in! go slow. you've got this

  • @mkc0005
    @mkc0005 3 ปีที่แล้ว

    Spencer - Glad you are doing well and enjoying life. I was formally diagnosed the month before my 40th birthday and that was 18 years ago. Staying positive is definitely the right thing to do. Good luck with your new career and I wish you the best outcome with the COVID vaccine.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      Good hearing from ya! 18 years ... I"m hoping things have stabilized for you. thanks

  • @NeilBradleyMS
    @NeilBradleyMS 3 ปีที่แล้ว +1

    Hey Spencer, thanks for video .. I'm super pleased things are going well for you with regard to your health. It definitely sounds like your MS has taken a back seat, and you're doing all the right things to keep it there. Really pleased to hear your business is doing well also. I know what you mean about having the vaccine and being tentative, I felt the same .. but like yourself I've now had it. I genuinely hope things continue to improve for you. Enjoyed the video, and general chat. Thumbs up from me (and I've been subbed to you for ages) :) Take it easy. - Neil.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +2

      So nice to hear from you, mate -- and it's been powerful to hear and see you tell your own story. Thanks so much for the positivity!

  • @debraindxb
    @debraindxb 2 ปีที่แล้ว +3

    Thank you for this. So inspiring. My teenage daughter was diagnosed about 4 months ago and it has been rough (emotionally) and it is great to see how "long-haulers" such as yourself are doing so well and also responding incredibly well to diet and lifestyle changes.

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว +2

      It's gotta be hard having a kid with a serious diagnosis, but stay optimistic! I'm still not on any drugs and haven't had an exacerbation in 6 years on this anti-inflammatory diet ... be strong!

  • @MSisChronic
    @MSisChronic 2 ปีที่แล้ว

    Just catching up on this video. Always a good watch.... your MS story is so similar to what my experience has been, I've been taking tecfidera though. I forget even with alarms set. Doh! I love your now doing the tree thing - though I can't help think of the Monty Python Lumberjack song :-) All the best.

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว +1

      Good hearing from ya man ... stay well in these wild times!

    • @MSisChronic
      @MSisChronic 2 ปีที่แล้ว

      @@SpencersMSStory you too buddy - we didn't need a tree cutter at the weekend - the high winds did the job :-)

  • @lisak6321
    @lisak6321 3 ปีที่แล้ว

    I had to come over and see what's been going on with your MS. I've been curious if all the tree climbing and heavy work you've been doing has helped in anyway. I will say that you actually look healthier now than before and seem genuinely happier. Not to imply that you were unhappy, but since the prison bus was completed and you and the fam moved to the farm, you seem to be thriving and that's a good thing. All that you're doing is working, maybe it will inspire others to try some changes.

    • @metaspencer
      @metaspencer 3 ปีที่แล้ว +1

      Thanks for noticing! Yeah, I also changed jobs in that time from office and computer work to being outdoors ... so lots of good stuff going on. One never knows when a disease like MS will come back ini and take a toll, so I try to live in the moment as much as possible. :)

  • @televisionlee1
    @televisionlee1 3 ปีที่แล้ว

    I was diagnosed with multiple sclerosis in May 2021. I feel depressed. I am from China. I am currently taking Aubagio for treatment. I don’t want to take any medications. In the past few months, I have changed my diet and exercise. At the same time I also took vitamin D. Although the symptoms have not recovered, I want to keep it on.

    • @metaspencer
      @metaspencer 3 ปีที่แล้ว

      Vitamin D and an anti-inflammatory diet works for me. Hang in there!

    • @televisionlee1
      @televisionlee1 3 ปีที่แล้ว

      @@metaspencer I am trying and hope it will work for me too

  • @lorenar4695
    @lorenar4695 3 ปีที่แล้ว +5

    Thank you from one warrior to another!
    I found your first video about 3 years ago. It helped me so much when things were scary for me.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      Warriors unite! :) Great hearing from ya and I hope you're doing well

  • @carolstender588
    @carolstender588 3 ปีที่แล้ว +4

    Always makes my day when your annual update pops up in my feed! So good to hear you are still doing well, and also the dream job coming into fruition..God bless you Spencer for doing these vids, they always encourage me.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      So great to hear. I was a few weeks late on this one but eager to get it up ... had some free time today. :) You've made my day

  • @cafeconcass
    @cafeconcass 2 ปีที่แล้ว +1

    I love how you amplify the 3 view videos, thank you so much for posting!!

  • @a.mstree
    @a.mstree 2 ปีที่แล้ว

    I literally got the shot the day before you posted this. 4/20/21 I was fine at first… 10 days later I had the first very major “episode” that has me now looking down the barrel of an ms diagnosis. I am more concerned about the treatments then the disease to be honest. I’m not a fan of pharmaceuticals. Thanks for sharing and giving testimony that they may not be a best option. I am curious how you feet about CBD type products. Also, I hope you did okay after the shot.

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว

      Sorry, must have missed this comment when you posted it. How are things now? I haven't looked into CBD much but hear good things about it

  • @dorindageorge7989
    @dorindageorge7989 2 ปีที่แล้ว

    Hi Spenser, thank you for sharing your story! I’m thinking about doing an update on my health soon if I’m up to it. Lol. Hope your doing well, I hear you on the Covid!! Most families around here stay home as much as possible and away from large crowds. Shoot I’m afraid I’ll get it just going to a doctors appointment ya know!!? Lol

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว

      Updates are good, I think, as they give us a chance to reflect and think about how things are REALLY going. Wild times for sure ... hang in and be well!

  • @holly-annowen7681
    @holly-annowen7681 3 ปีที่แล้ว

    If you could get ahold of me that would be Great!! I just have a few questions for you!
    "Thank you!"

  • @d-ai-y2969
    @d-ai-y2969 2 ปีที่แล้ว

    Hi, what is your opinion about infusion (ocrevus). I was diagnosed last year, and have been taking this medication every 6 months. I am considering to stop the medication. As I am not having too much symptoms and I think and feel that I am doing good.

    • @metaspencer
      @metaspencer 2 ปีที่แล้ว +1

      Hello and great question. From my perspective there is no reason to risk a potentially dangerous drug like that unless years of following a strict anti-inflammatory diet + Vit D have failed to stop disease progression. For me, diet has worked for 6 years now so I'm hesitant to suggest drugs that seriously alter the immune system and body.

    • @d-ai-y2969
      @d-ai-y2969 2 ปีที่แล้ว

      @@metaspencer thanks for your quick answer. I will have to make my own research, make proper consultation and then decide. You’re very inspiring. Thank you so much. I will be waiting for your next upload. Let us all cope together and live a happy life with this MS.

  • @KaitsterSaysHello
    @KaitsterSaysHello 2 ปีที่แล้ว

    Did you get a referral for the specialist in St. Louis?

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว

      Yeah my insurance required a referral and pre-approval each time I travelled out of town... I could only see certain doctors so had to do research before going to anyone new

  • @nickbrodeur4586
    @nickbrodeur4586 2 ปีที่แล้ว

    Hi Spencer, how did everything with the vaccine end up going?

    • @metaspencer
      @metaspencer 2 ปีที่แล้ว

      No problems -- three jabs.

  • @uzer-95
    @uzer-95 2 ปีที่แล้ว

    Привет Спенсер. Наконец у меня перевелось это видео.
    Я с тобой полностью согласна, что Ковид похож на MS последствиями. Они непредсказуемы. Я переболела в оутябре. Мне кололи 2 укола monoclona. Мне стало легче. Потом Docsometazon неделю вливали.
    Слабость одно из плохих моих состояний. А в остальном -ремиссия, как у тебя .
    Сил и щдоровья, Спенсер тебе.

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว

      Похоже, ты там завис! Вы должны быть лучшим защитником самого себя. Всего хорошего

    • @uzer-95
      @uzer-95 2 ปีที่แล้ว

      @@SpencersMSStory Удачи в Пути. Спенсер.

  • @kevinhaselhorst1431
    @kevinhaselhorst1431 3 ปีที่แล้ว +1

    Man, so great to hear your doing well. Our stories sound so similar. I’ve haven had luck getting diagnosed since my scans came back clear 3 yrs ago. But I’ll be dang if this neuropathy comes and goes every so often. Just like yours.. would you mind sharing what diet you follow? I think I might as well treat this before permanent stuff happens.. living healthy is not a bad thing after all..thanks for sharing!!!

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      Hey man, good to hear from you. I have a few videos about my diet here on the channel, but it's pretty simple: it's an anti-inflammatory diet and I'm 100% strict with it. I follow a combo of the Best Bet Diet, the Wahls Protocol, and the Overcoming MS diet. All three focus on removing potentially inflammatory foods from your eating while focusing on simple, Whole Foods. Anyway, it seems to be working well for me so I'm sticking with it (along with vitamin D). hang in man!

  • @deljay1840
    @deljay1840 3 ปีที่แล้ว +1

    Thanks for this optimistic outlook (with a little caution👍). I agree that it does seem like a lifestyle disease. You're also smart to keep an active profession. Still not sure about the vaccine. What info changed your mind and which one are you taking

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      For me the vaccine info was entirely anecdotal (I haven't heard negative stories) but I think waiting or not taking a vaccine is a great choice as long as you can avoid Covid (which is avoidable).

  • @darrellmartin6741
    @darrellmartin6741 3 ปีที่แล้ว +1

    Really good to see that you are doing well and living life. I am in pretty much the same boat. Similar age, date of diagnosis, etc. I have had some tough times, but I pretty much just live my life too. Take care!

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      Good to hear from a fellow traveler! I used to think things were kinda over for me ... happy to find that's not the case

  • @thalitakum1993
    @thalitakum1993 3 ปีที่แล้ว +1

    🏋️🤸🤹🤸🏋️🤸So blessed to hear from you! My story is pretty the same, but mine started earlier and Im 44. You say that you feel like a healthy person, so please, believe you re one ! Most of the things come from our minds. My doctor tells me : bear in mind, that there are people with more lesions than you have and they are sypmtoms free. Our health is often combination of our projections, mindset and programming (i.e. i have this chronic disease, incurable, debilitating and so on...) From that proper mindset comes your decision concerning lifestyle changes and then you can only get better 😊. I don't take meds, I get accupuncture, antiinflammatory diet, everyday outside activity and I also believe that God wants me well and supports me every step of my way ❤️. Specer, cast away all your fears and believe you are healthy!!! 😀😀😀. Its not only my wishful thinking, Im convinced. Once I read this study of people with mild ms, andafter 25 years from onset 90%stayed stable and ok. God bless you brother 😊🤸😊🤸!!!!

    • @thalitakum1993
      @thalitakum1993 3 ปีที่แล้ว

      About Covid, my daughter had it few months ago, I had only mild symptoms ,like slight headache , 2 days of runny nose. I am also puzzled by the similiarities between covid and ms, and I think its because ms is probably infectuous disease or at least triggered by infections ( maybe of many kinds) . I test negative for Lyme ( Western Blot, Elisa) but positive in LTT Lyme test done in Berlin. That's another puzzle. In Germany they use it as an approved test, but not in Poland where I live. I guess its the same in US.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      Great hearing from you ... what a wonderful perspective and attitude! The power of the mind and positive thinking is certainly amazing

  • @wheelchairhomestead
    @wheelchairhomestead 2 ปีที่แล้ว

    Rock on, brother!

  • @mattwildchild
    @mattwildchild 2 ปีที่แล้ว

    I have been diagnosed with MS 7 years ago after an epiode of double vision. I am not on a DMT yet (i will soon though) but i have been treating nthe disease the same way as you have (i think). By this i mean lots of activity (im a runner), very good nutrition (wahls protocol), no smoking, meditation, reducing stress etc and I have not had an epidose in 7 years. As you have explained in the video, MS reacts differently from person to person and I am lucky enough to not have had any serious symptoms (no tingling, no numbness, no blindness) etc. I am lucky and intend to follow the same life style as I currently have for a as long as i can.

    • @SpencersMSStory
      @SpencersMSStory  2 ปีที่แล้ว

      Sounds like you're doing well and good to hear that you've read Wahls's book. I'm surprised to hear that you're going for a drug approach but hope all the best for you! Hang in

  • @Thisbook2022
    @Thisbook2022 3 ปีที่แล้ว

    Legend! Thanks for sharing. I might be starting copaxone because my disease is relentless. Still walking and kicking though!

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      Good luck with it and thanks for the comment. Hang in!

  • @s0phian0va
    @s0phian0va 3 ปีที่แล้ว

    Im newly diagnosed with MS and I just got my Pfizer vaccine today. It was recommended to get it before starting Ocrevus.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      Sounds like you're taking some purposeful steps. Good to hear. A new diagnosis can leave you raw and confused -- I'm hoping you're making good sense of things. Hang in!

  • @lngatang
    @lngatang 3 ปีที่แล้ว

    Wow. Just watched all of your annual MS videos and it gives me hope! I haven’t been officially diagnosed yet, but have definitely had symptoms for several years. Just this year they are becoming more pronounced. Last night I actually was freaking out some because I kept having numbness/tingling throughout my body. Been suspecting MS for some time now - I finally made an appointment with a neurologist to get the ball rolling. I’m 39 now and hope to follow in your footsteps! Thanks for being an inspiration - your videos are making a difference, all the way to Texas.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +2

      Hope is the way to go! Get those vitamin D levels checked either way, just so you know you're keeping the D up. Hang in there! If it does end up being MS just know that many of us live well with it

  • @onMyTeam
    @onMyTeam 3 ปีที่แล้ว

    I’m currently in the process of being evaluated for MS and you’re definitely a inspiration of hope. Not sure what neurological disorder they’ll find, but I’m definitely a subscriber to you now just to continue watching your optimistic journey.
    I know you mentioned the medications. Did you ever start them and then stop? Or did you just decide immediately that you wanted to try and use good dietary habits?

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      Sounds like you're getting close to finding some answers .. hang in! I never tried the meds myself because I found so much progress and help from Vit D and an anti-inflammatory diet. Hang in man!

  • @CoolGen10
    @CoolGen10 3 ปีที่แล้ว

    Hey. Me again. Found this and you answered my questions. Still amazed. Did you ever get any professional arborist training? If so what did you do? Your array of skills is impressive. I learn something with every video. You watch any of the other tree guys? August Henke? Bucken Billy? Reg Coates?

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      Howdy! Cool to see ya popping around the channels. No formal arborist training but I do have a bit of a climbing background ... I prolly would have benefitted from some tree-related schooling and training, but I've become a DIY curmudgeon over the years. I am reading up for the arborist exam, though, so that's in the works for the future. Re: arborists on TH-cam oh yeah, I watch all those guys and more. Love their content and learned most of what I know from them all. :)

  • @babybaby5893
    @babybaby5893 3 ปีที่แล้ว

    You inspired me even I don’t have MS but lupus, your personality and your lifestyle inspired me. Really enjoy your videos, you are a hero in MS world !!

    • @metaspencer
      @metaspencer 3 ปีที่แล้ว

      Big thanks! Hang in there with that Lupus ... I hope you have it under control or something close to it

  • @nbme-answers
    @nbme-answers 3 ปีที่แล้ว

    Fifty! Happy birthday, Spence!!

  • @SANDS78
    @SANDS78 3 ปีที่แล้ว

    Fuck Yeah.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      Thanks buddy! Always good hearing from ya :)

    • @SANDS78
      @SANDS78 3 ปีที่แล้ว

      @@SpencersMSStory You've went next level with your endeavors. That diet and mindset seem to be working well.

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      @@SANDS78 fortunately I get the taste of the old IPA every time you post a pic of one :) "next level" is what I think of all your stuff, too, man

  • @carolinegray3150
    @carolinegray3150 3 ปีที่แล้ว

    My husband is doing well with his treatment to do with the kidneys,he gets treatment three times a week,he still cooks

  • @aba1791
    @aba1791 3 ปีที่แล้ว

    Hi Spencer its good to hear you're doing well. After watching your yearly videos in the last couple of days ( I'm a newbie in your channel😉) I wonder if you'd change your mind and consider taking meds if you ever have any more flare-ups? I'm just curious to know. Be well and keep strong 💪

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว

      I try to think that anything its possible, and new drugs are always being developed (either for MS or for other things and then used for MS). With that said, my last 5 years without exacerbations has convinced me that at least FOR ME I'm doing good things. And at 50 years old I'm unlikely to change course ... but then, anything is possible. Great question and thought experiment, buddy

    • @aba1791
      @aba1791 3 ปีที่แล้ว

      @@SpencersMSStory hey thanks for your reply, I figured you'd say something like that😊 You sound more enthusiastic and energized in this video . I'm happy for you things are going well for you. First time I hear you say you have a child, so get the vaccine and get on that plane! Do you have a video where you talk about your antiflamatory diet? If so, could you please post the link? And lastly, I'm a girlie hehehe 😀.

  • @carolinegray3150
    @carolinegray3150 3 ปีที่แล้ว

    My husband has had his vaccines,it’s about doing what you can in your life

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      Agreed ... we all make our choices and it's good that way. I hope he's as good as can be

  • @srcartwr
    @srcartwr 3 ปีที่แล้ว

    Thanks for sharing Spencer. I am so glad you are feeling well.

  • @carolinegray3150
    @carolinegray3150 3 ปีที่แล้ว

    Doing your work will keep you fit and

  • @mekit.mariam3198
    @mekit.mariam3198 3 ปีที่แล้ว

    you are doing really really great! I am having exactly all the symptoms you have but I did not see a doctor yet. I have appointment on sept 13. your video gives me hope! Thanks so much for making the videos

    • @metaspencer
      @metaspencer 3 ปีที่แล้ว +1

      Good luck! If it does end up being MS stay optimistic! Many of us live well with the disease ... just takes some diet changes

    • @mekit.mariam3198
      @mekit.mariam3198 2 ปีที่แล้ว

      @@metaspencer they did all the tests Brain MRI with and with out contrast.Spinal MRI with and with out contrast. I even insisted on getting Spinal tap but they say they see nothing. I have changed my diet to less carb. I am doing great no tingling. I am not sure if it's coincidence but if I eat carb I start having burning sensation around my neck and arms. So I leave those out and I am good. I take my vitamin D

    • @metaspencer
      @metaspencer 2 ปีที่แล้ว +1

      @@mekit.mariam3198 Hang in! sounds liike you're doing better. good job!

    • @mekit.mariam3198
      @mekit.mariam3198 2 ปีที่แล้ว

      @@metaspencer thank you Spenser how are you doing?

    • @metaspencer
      @metaspencer 2 ปีที่แล้ว

      @@mekit.mariam3198 I'm great. 6 years with no MS exacerbations on my strict anti-inflammatory diet

  • @hussienmohammed7988
    @hussienmohammed7988 3 ปีที่แล้ว

    It’s obvious that your Ms is benign type which is rare form of Ms

    • @metaspencer
      @metaspencer 3 ปีที่แล้ว

      Could be, or could be that everything I have done to live with the disease has kept it from being overly damaging

    • @showkattantray4325
      @showkattantray4325 3 ปีที่แล้ว

      What's benign MS ??

    • @SpencersMSStory
      @SpencersMSStory  3 ปีที่แล้ว +1

      @@showkattantray4325 My understanding is that "benign MS" is a term used to describe cases of the disease with mild or no symptoms

    • @showkattantray4325
      @showkattantray4325 3 ปีที่แล้ว

      @@SpencersMSStory as I know you are getting symptoms from 23 years. And now diagnosed since 5 yrs. Are u able to do things normal. Like a normal guy does. How long u are able to walk and stuff.

    • @metaspencer
      @metaspencer 3 ปีที่แล้ว +1

      @@showkattantray4325 If you check out my most recent videos you'll see that I'm pretty healthy ... MS hits people in very different ways. Following an anti-inflammatory diet has helped me continue to live