CureSHANK: Epilepsy Research Updates

This is the segment of CureSHANK's Fall 2023 Community Webinar that focused on our biggest accomplishment of 2023: our "Defining a Roadmap for SHANK3-related Epilepsy Research" conference at Boston Children's Hospital on September 27, 2023.
This conference of experts on epilepsy in Phelan-McDermid syndrome (PMS) and on the SHANK3 gene (changes to which cause PMS) convened to identify the biggest gaps in translational research that must be filled to bridge the gap to successful clinical trials for patients with SHANK3-related epilepsy.
CureSHANK's will soon be issuing a request for applications (RFA) for the Epilepsy in Phelan-McDermid Syndrome Research Grant, and we are excited about making progress in this field, where there is such a high level of unmet need.