Thank you so much ! Currently the Dietetic Intern at Long term care facility, preceptor super busy I am pretty much on my own. Please continue posting this super useful and important info. Thank you from the bottom of my heart .
The detailed nutrition details are so helpful....thank you! I have SBS and am very motivated to learn as much as possible to help myself. This was a great resource. Thanks again!
I’m looking for a nutritionist who works with a SBS diet. No surgeon or GI or Physician has helped with potions and greater understanding of what and when to eat. 30:12
If you are looking for a Registered Dietitian Nutritionist near you, you may find this search page from the Academy of Nutrition and Dietetics to be helpful: www.eatright.org/find-a-nutrition-expert Experts listed on these search pages should have profiles available to read through to find someone who may suit your needs and who is also in your geographic area.
My has recently had a small bowel resection with 87cm of her small intestines removed. She is loosing weight. She eats small amounts of food throughout the day . Carbs lean protein. Also Pedialyte. OJ mixed with water. Some days she had pudding like stool with an occasional some what semi firm one. Then about half to 2/3rds it diarrhea She is a small woman who currently weighs 105 bs, The surgery was performed on 8/2024. At that time she weighed 108 lbs. At her best average weight is 120 lbs If you are in the Chicago area where are you located and do you provide a more in depth consultation?. . I am concerned that the weight loss will cause her to further weaken. How can I contact you ? Any help would be appreciated. Thanks
Thank you! Curious if you think there would be a risk of giving too much protein in a short term PEG for patient with previously resected ilium (79 centimeters) after recent surgery with total duodenum resection and partial jejunum resection (100centimeters) patient is underweight and protein deficient. Thanks
Great question! If this patient recently underwent surgery and is baseline underweight and malnourished, I would definitely recommend providing protein on the higher end of the range. I would aim for at least 1.5 g/kg and up to 2 g/kg for protein recommendations. Important parameters to monitor would include: hydration status (ensuring adequate hydration) and renal function. If you have the capability to complete a nitrogen balance study, this may provide additional information relating to protein status. Thanks! - Stephanie
@Stephanie what is your opinion on the Liquid I.V. Electrolyte drink mix? Im 41 with SBS, gastroschisis from birth, with colon intact. Ive recently quit smoking mj and suffered 10 lb weight loss. Im trying to get to 155 lbs and can barely stay at/above 130. I eat chicken and rice and steak and potatoes daily and can barely maintain weight. I stopped TPN @ age 7 and enteral nutrition at 17. I would rather die than have another stomach tube or live on machines again. Thank you for what you do.
Hello! Thank you for reaching out. I recognize and empathize with your nutritional challenges managing this lifelong condition. You seem to be making very positive nutrition choices! While I cannot provide individualized nutrition information since I am not on your care team, here are my thoughts on Liquid IV. Risk of dehydration is very common in SBS, but so is the risk of kidney stones. Some versions of Liquid IV contain high amounts of Vitamin C (especially the immunity line), and high dose supplementation of Vitamin C increases the risk of calcium-oxalate kidney stones. While I think oral rehydration packets like Liquid IV can be great, especially when in a pinch, I would avoid consuming products with a significant amount of Vitamin C. It would be important to compare labels and choose the product that has a lower Vitamin C content-- but also consider what taste you like too! Also, creating a homemade oral rehydration solution can be a great way to be in control of what contents are in your beverages. - Stephanie
Thank you so much ! Currently the Dietetic Intern at Long term care facility, preceptor super busy I am pretty much on my own. Please continue posting this super useful and important info. Thank you from the bottom of my heart .
The detailed nutrition details are so helpful....thank you! I have SBS and am very motivated to learn as much as possible to help myself. This was a great resource. Thanks again!
Wow, so informative and helpful. Thank you!!!
Very good content. Thank you!
I’m looking for a nutritionist who works with a SBS diet. No surgeon or GI or Physician has helped with potions and greater understanding of what and when to eat. 30:12
If you are looking for a Registered Dietitian Nutritionist near you, you may find this search page from the Academy of Nutrition and Dietetics to be helpful:
www.eatright.org/find-a-nutrition-expert
Experts listed on these search pages should have profiles available to read through to find someone who may suit your needs and who is also in your geographic area.
My has recently had a small bowel resection with 87cm of her small intestines removed. She is loosing weight. She eats small amounts of food throughout the day . Carbs lean protein. Also Pedialyte. OJ mixed with water. Some days she had pudding like stool with an occasional some what semi firm one. Then about half to 2/3rds it diarrhea She is a small woman who currently weighs 105 bs, The surgery was performed on 8/2024. At that time she weighed 108 lbs. At her best average weight is 120 lbs If you are in the Chicago area where are you located and do you provide a more in depth consultation?. . I am concerned that the weight loss will cause her to further weaken. How can I contact you ? Any help would be appreciated. Thanks
Thank you! Curious if you think there would be a risk of giving too much protein in a short term PEG for patient with previously resected ilium (79 centimeters) after recent surgery with total duodenum resection and partial jejunum resection (100centimeters) patient is underweight and protein deficient. Thanks
Great question! If this patient recently underwent surgery and is baseline underweight and malnourished, I would definitely recommend providing protein on the higher end of the range. I would aim for at least 1.5 g/kg and up to 2 g/kg for protein recommendations. Important parameters to monitor would include: hydration status (ensuring adequate hydration) and renal function. If you have the capability to complete a nitrogen balance study, this may provide additional information relating to protein status. Thanks!
- Stephanie
@Stephanie what is your opinion on the Liquid I.V. Electrolyte drink mix?
Im 41 with SBS, gastroschisis from birth, with colon intact. Ive recently quit smoking mj and suffered 10 lb weight loss. Im trying to get to 155 lbs and can barely stay at/above 130. I eat chicken and rice and steak and potatoes daily and can barely maintain weight. I stopped TPN @ age 7 and enteral nutrition at 17. I would rather die than have another stomach tube or live on machines again.
Thank you for what you do.
Hello! Thank you for reaching out. I recognize and empathize with your nutritional challenges managing this lifelong condition. You seem to be making very positive nutrition choices! While I cannot provide individualized nutrition information since I am not on your care team, here are my thoughts on Liquid IV. Risk of dehydration is very common in SBS, but so is the risk of kidney stones. Some versions of Liquid IV contain high amounts of Vitamin C (especially the immunity line), and high dose supplementation of Vitamin C increases the risk of calcium-oxalate kidney stones. While I think oral rehydration packets like Liquid IV can be great, especially when in a pinch, I would avoid consuming products with a significant amount of Vitamin C. It would be important to compare labels and choose the product that has a lower Vitamin C content-- but also consider what taste you like too! Also, creating a homemade oral rehydration solution can be a great way to be in control of what contents are in your beverages.
- Stephanie
I drink plenty of water and im fine carnivore diet works for me and I have sbs I use lots of sea salt